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Date: 27.11.2009
From: Amelia

Subject: for those or you who remb me :)

Hiya

It has been soo long since i have been on and i am just trying to catch up with everyone's posts and info.

My RA is pretty bad at the mo i'm on 20mg of methtrexate and have been told to take arcoxica everyday for 3 months, but dosent seem to be helping and i seem to be in more pain than ever and constantly feel sick so feeling pretty miserable today.

Does anybody get pains down the arms??? but not in the actual joints and does anybody have pains in their jaw??? i get it loads somedays i can't even open my mouth it's that bad. I had my blood tests results too and my ESR was 35 which is not good right??? was 14 before. At the hospital in a couple of weeks and hoping they will change my meds completly. Sorry for firing off a load of questions but just want to feel well for once and need some advice to throw back at the consultants when i go.
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Date: 28.11.2009
From: Kaz

Subject: Re: for those or you who remb me :)

Hey Amelia,

I had pains in my jaw whilst I was on mtx, although I was only on it for a few weeks so it didnt get too bad. I can relate it to the mtx though.

Sorry I can't help much, stay positive and take care x
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Date: 28.11.2009
From: lisa

Subject: Re: for those or you who remb me :)

hi amelia

poor you, im on same mtx as you but i changed to sub cut injection really helped with sickness as it bypasses the stomach this way maybe ask about that? injections are fine dont hurt too much as needle very fine. i used to get jaw and arm pain too, hop you feel better soon x
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Date: 29.11.2009
From: jill

Subject: Re: for those or you who remb me :)

Hi Amelia....dont get JAw pain, but i do get pain down my arms..infact im riddled with it....im jsut thinking, so ask your GP or rhummy about this ok....ask iof they think U have tendonitis? does the pain come from your shoulders? do your shoulders hurt at all??think u have tendonitis.... i have that.....also U r on the best anti infla, Arcoxia are the best, but U must eat with them, take them at night, thsta what i do....remember also that the Arcoxis isnt a painkiller, altho is has a little painkiller in the tablet, its to stop the inflamtion ok...ive been on arcoxia at leat 5 years now.... please do NOY stop taking them.... most of us in here take the Methtrexate at night, to sleep off the side affects, nxt day if u feel sicky, eat digestive bicies or taost... ginger nuts help, if u like them.... u must eat with arcoxia tho ok...they r strong on the tum...u r also on a high dose of MTX, so rest when u can....fatigue is part and parcel of this nasty condition.....listen to that body of yours, if U need a rest, do it, if u work, telll your Boss Immediately ok.... they should support u....also calim for Disability living allownace...DLA...we r all entited to it!!

let us know how u get on, u r not alone, trust me....take care ok love jill xx
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Date: 05.12.2009
From: Dennis

Subject: Re: for those or you who remb me :)

Hi Amelia,
Your sore jaw may be unrelated to your R/A but be a condition called Bruxism.This is caused by grinding of your teeth at night whilst asleep and is generally stress related and any one with R/A is under severe stress.My sore jaw did not become apparent until I stopped all my medication because the steroids and anti-inflammatories masked the pain but it has now become very apparent.I now wear a gum shield called a splint fitted by an orthodontist which prevents me from grinding what is left of my teeth.I will have to wear the splint for at least a year.Happy days! Ask your GP for a referral to either an orthodontist or maxilloficial specialist and do not suffer needlessly .Hope I have been of some help.
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Date: 05.12.2009
From: Amelia

Subject: Re: for those or you who remb me :)

Hiya everyone,

Thanks for all the advice i will deffo mention these things to the hospital. Hiya Jill yes the pain does come from my shoulders sometimes it's that bad i get no sleep :( I will mention what you have said to the specialist as i have noticed i am getting it up my shins now!!! Also i have started college now and stuggling a bit but i am determined not to let RA take over my life lol.

Thanks again xxxxxxx
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Date: 05.12.2009
From: Amelia

Subject: Re: for those or you who remb me :)

Hi Lisa thats what i am hoping they will put me on needles don't really bother me i think you get use to them as i am constantly having my blood tested lol

Do you feel better now your on the injections??? I asked last year to be put on them!!! but they want to try all other avenues first all comes down to cost again!!!

xxx
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Date: 06.12.2009
From: lisa

Subject: Re: for those or you who remb me :)

hi amelia
yes injections really cut down on side effects for me, i used to feel like id got a massive hangover every sat after taking tabs the night before, i wouldnt have minded if id been drinking! lol but i dnt really now, still feel a bit rough but nowhere near as bad, try and push for it good luck xxx
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