Date: 12.10.2009
From: vicky
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Subject: hydroxychloroquine
Hi All, Does any one have any experience of this drug? I was started on this drug today.
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Date: 13.10.2009
From: jill
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Subject: Re: hydroxychloroquine
soz, not sure what it is....is it an Immune suppressaant?
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Date: 14.10.2009
From: vicky
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Subject: Re: hydroxychloroquine
Hi, Sorry not got back to you its a Dmards aparently its one of mildest you can get?
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Date: 15.10.2009
From: JILL
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Subject: Re: hydroxychloroquine
Hi Vicky, havnt heard of that one, most common one we use seeems to be Methtrexate, if its the mild one, then hopefully u wont have any side affects....let us know how u cope with it...take care jILL X
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Date: 15.10.2009
From: Bernie
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Subject: Re: hydroxychloroquine
Hi Vicky, I was on them. Took them for about 3 months but I'm afreid I didn't notice any difference, I didn't have any side affects thank goodness. Good luck with them
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Date: 16.10.2009
From: Emma
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Subject: Re: hydroxychloroquine
Hi Vicky
I'm on this drug combined with other dmards. I did take it on its own for a while, but as my arthritis progressed I needed extra help. It has not caused any problems for me, but you need to be aware that you should have your eyesight checked annually whilst on this as rarely it can cause problems with your retina. Hope this helps.
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Date: 16.10.2009
From: vicky
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Subject: Re: hydroxychloroquine
Thanks everyone, ive been on it for nrly a week and to be honest ive felt no difference, i know it can take 12 weeks but my foots as big as ever! Even the steroids rnt helping much :(
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Date: 18.10.2009
From: jill
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Subject: Re: hydroxychloroquine
one week on it is not enough to say if its made a difference or not...stick at it Vicky Jill x
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Date: 30.10.2009
From: Elaine
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Subject: Re: hydroxychloroquine
Hi Vicky
I have been taking 300mgs daily of Hydroxychloroquine (Plaquenil) for 2 years now. It took six months to work for me and so far I've had 18 good months whilst on it. I do get my eyes checked annually at the hospital. I did experience several side effects to start with but they wore off after a couple of weeks.
Hope it works for you soon
Elaine
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Date: 02.11.2009
From: vicky
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Subject: Re: hydroxychloroquine
Well its nrly been a month now and to be honest im seeing no change at all the only thing i have experience is more flare up and constant ill health from bad flu, cold, ear infection and so on. x
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Date: 04.11.2009
From: jill
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Subject: Re: hydroxychloroquine
Keep at it Vicky....pain I know, but its still early days, regards ya colds etc...mb u need a flu jab...xx
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Date: 06.11.2009
From: Nick
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Subject: Re: hydroxychloroquine
Hi Vicky, been taking Hydroxy for 15 months now and not noticed any side affects. I was in hospital for a week as i was so bad and they put me on this as well as leflunomide, methotrexate and changed my ant-tnf to Humira. It did take a few months to feel the difference but so far all my drugs have taken months to have any affect. I'm better than i was but still have a lot of pain on a day to day basis, just have to accept i'm one of the very bad cases.
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Date: 06.11.2009
From: jill
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Subject: Re: hydroxychloroquine
Nick Im same as u, im on MTX and Enbrel....but sadly not without pain.... mind u, imagine how we wld be without the Anti tnf meds? im struggling a lot at the mo.... but I will fight it...take care Nick, let us know how u get on Jill
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Date: 15.02.2011
From: George Ashford
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Subject: Re: hydroxychloroquine
Hi Nick, I work for a market research company that specialises in the medical device field. We are looking for RA sufferers that inject Humira and either live in the London area or are willing and able to travel to London to take part in an interview. The interview will relate to a new device to help RA sufferers administer their drugs. We will pay £200 to cover expenses and the interview would last approx 90 minutes. Would you be interested? Please do get in touch if you would like to know more - george.ashford@creativemedicalresearch.com Best regards,
George
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