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Date: 30.08.2009
From: Brenda

Subject: Having such a bad time of it..

Ok I have stop my MTX for now waitng for my bloods and see my GP.. I finally had a large glass of wine tonight, its my hubby Birthday, and I would love to have another not sure if thats a good idea..
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Date: 31.08.2009
From: val h :-)

Subject: Re: Having such a bad time of it..

go for it if not taking meds. have good eve. take care
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

OHow would you you know val you not been on these meds please don't give advice out when you not Been there
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Date: 31.08.2009
From: val h :-)

Subject: Re: Having such a bad time of it..

sorry only telling her to enjoy a drink while able to as not on meds sorry if u took it to meen something else lynne
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Date: 31.08.2009
From: jill

Subject: Re: Having such a bad time of it..

I agree with Val...lol....i drink hlf bottle on Mtx and enbrel....so if shes not on her MTX, and onky took one dose anyway, think Brenda shld enjoy her night with her hubby... mind u, wot I dont get, is Y Brenda bothered to come online whilst enjoying her hubbys birthday lol that thte real qwessssy here
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Date: 31.08.2009
From: val h :-)

Subject: Re: Having such a bad time of it..

she loves us so much and knows we miss her lol
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Date: 31.08.2009
From: jill

Subject: Re: Having such a bad time of it..

hi Lynney poos....u know i luffs ya lots....but that posting to Our Valipops came across as harsh......Val has/is there, she suffers as we do, pain is pain at end of day. only diff is she isnt yet on the meds we r.... and as Brenda is unhappy at mo and not on the meds, val meant her to enjoy her self....... how ya doing anyway Lynne x
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Date: 31.08.2009
From: jeanette

Subject: Re: Having such a bad time of it..

hi i didnt take my mtx this week cos i was going to a party felt fine having a drink when i do take meds i only have a limited amount or i pay for it the next day try low alco wine you still feel you are with the grown ups lol ,need to take mtx thurs cos iam starting to seize up
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

I Know will explain
!.MTX stays in your system for a long time after you have stopped taking it.
2.brenda said she had a chest infection that was so bad she called emerg on call doc this weekend and was thinking about going to A&E if it got worse
3. we dont know if shes on antibiotics. not supposed to drink then
4. she just recently upgrade her painkillers.. dont know what to. plus we don't know if she not taking them.
5. specialist advise against drinking alcohol on MTX and if you do they only reccomend two units per week. because it can affect your liver.

Making an informed decision to have a drink is ok with me, but when there is someone new to the meds and is scared of taking them and then asks for advice is something different in my book. if offering advice I feel you need all the facts
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Date: 31.08.2009
From: lynne

Subject: Re: Having such a bad time of it..

Hi Brenda sorry for all the ho ha. how are you feeling sweetheart, hioope your over the bad chest and are feeling much better take care. xx
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Date: 31.08.2009
From: jill

Subject: Re: Having such a bad time of it..

ok get what ya mean...i agreee with how u put it...to be honest, if I had a chest infection, dont think I wld even want a drink...... anyway, I know the point ya getting at Lynnne, ya right to say what ya feel.... MTX guys is a ser4ious Toxic med and shld be taken with care.... sometimes i get fed up and takea drink.... Lynne im wondering if I cld come off my MTX, u said when U came off yours it didnt make any difference, tht the Enbrel has helped.... I hate taking MTX...mire give Nurse a call..... reagrda to enbrel....im bruised for weeks at injection site.... they r size of 50ps..... lasst at l;east 8/10 days, brusies r black...sick of it....do u get that Lynne? x
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

Hi Jill came off MTX before went on enbrel. it had stopped working for me. The enbrel has been great, he did say I could take MTX as well if I wanted too but it has worked fine for me on its own. so I have not bothered with it.
My injection site sounds the same as yours a get a big sore red welt afterwards. I am going to change my injections from the 50mg prefilled syringe to two 25mg amples you fill yourself. this is because there is a preservative in the prefilled syringe that causes the pain/swelling. (rang their pharmacist about it)
hopefully no pain then xxx
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Date: 31.08.2009
From: jill

Subject: Re: Having such a bad time of it..

ok think i understand t5hat.....NOT lol.....ok its still enbrel right? i take 50 like u once a weeek,but we still have to inject ourselves dont we? also Lynne wot about remicade, the pen thingymajig.... heard its like a diabetic type pen, just put it to ya tum, and u press the top and it goes in by itself..... I dread my injection, plus it stingssssssssssss like mad when injecting.......ok...just re read ya post, makes snese....mite ask about that too....lol or wait to c how u get on with it...... I reckon I cld do wothout the MTX, im happy to try and leafe it out....mite ask her when i c her at clinic...x
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

He did offer to change mine to remicide too, not sure what i want to do as enbrel is working fine for me. yes I will still inject the endrel its just that the meds come in viles like it used to in the begining. that you fill with sterile water to mix it then fill the syringe. theres no preservative in that so it does not sting, just have to inject twice a week instead of once.
There is also an advantage to that in that your dose are split up into two, a few days apart from each other so they are more effective xxx lololololol
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Date: 31.08.2009
From: jill

Subject: Re: Having such a bad time of it..

thing is Lynney I did use to take my Enbrel 25 twice a week,,,,I hated doing that.... I prefered the 50 dose(helped me with aRTHA better, but the thought of injecting twice a week feels me with dread!
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

Guess were al different whatever rocks your boat and makes you well is fine with me.xx
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Date: 31.08.2009
From: Jules

Subject: Re: Having such a bad time of it..

wow you had a little go there at lynne when she was only trying to give sound advice. I thought you all liked the truth even if it is harsh. thats what you keep saying.
jill you were graceiuos enough to admit lynne had a good point I like that. Kiss and make up and all xx
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

Hi jules Thanks for the support. It's okay were big girls in here. Not angry or upset with anyone. We can usually talk things through.. Take care
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Date: 31.08.2009
From: Jules

Subject: Re: Having such a bad time of it..

All kissed and made up.. Sounds good to me xxx
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Date: 31.08.2009
From: val h :-)

Subject: Re: Having such a bad time of it..

hey who is kissing who getting strange on here lol play nice girls
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Date: 31.08.2009
From: Brenda

Subject: Re: Having such a bad time of it..

Hi

I did not take any pain meds, and I would not drink if I was. Sice I have stop the MTX and I will see my gp tomorrow, I am doing better a bit, I can breath a bit easier and no fever today.. I am still caoughing a bit, but the emergcy doctor said if I wanted to wait till tuedays I can but if i felt worst i would go to, the A & E, I did not go , and I am ok, today would have been the day to take my MTX.I wont have any more wine while i am on this drug, I know you are concern, I just had enough of not feeling normal.. thanks again .. xx
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Date: 31.08.2009
From: Lynne

Subject: Re: Having such a bad time of it..

Pleased your feeling a little better Brenda. we do worry about peeps when they experience problems. hope your better soon Take care XXX
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Date: 31.08.2009
From: Brenda

Subject: Re: Having such a bad time of it..

Thank you for caring... I have been resting and taking care of my self..
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Date: 31.08.2009
From: val h :-)

Subject: Re: Having such a bad time of it..

glad y taking care of your self well done
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