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Date: 25.08.2009
From: Brenda

Subject: I am in so much pain

I am on MTX and I was told I cant take nothing for pain, I am fed up now, and I am about to stop the med, if i cant get pain relive
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Date: 25.08.2009
From: val h :-)

Subject: Re: I am in so much pain

u poor thing who said u could not have pain killers i know those meds take a while to kick in try to hold on if u can sure you must need them and can understant how hard it must be sat here and back and feet screaming at me do not know where to put my self lol. sure jill or one of the others will have advice to help u good luck
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

Val, i called my GP and spoke to the nurse ans she called me back, after she spoke to my GP and she got back to me explaining this to me
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Date: 25.08.2009
From: val h :-)

Subject: Re: I am in so much pain

that not good it takes month if what i have read from others to kick in have u got a rhumy nurse might be worth a call
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

I will have to call tomorrow to see who I can call. thank you.
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Date: 25.08.2009
From: val h :-)

Subject: Re: I am in so much pain

feel for u i have just taken some pain killer so know the pain will go in next couple of hours i did not think they would leave some one in pain as u r there must be something they can do. all can give u is a hug and to say keep popping in sure some one out there can help u
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

On Friday the rhumy wamted to injected my feet with steriods and I refused, .. We all know that it no good for joints, and i have enoght shots. and in the feet are very painfull.. But now I wish I had...
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Date: 25.08.2009
From: val h :-)

Subject: Re: I am in so much pain

can understand where u r coming from take the lowest pain killer i can and stop when ever well enough know sooner or later will have to have something stronger (only at early stages) but like u dont have anything do not need. think if u can get the injections might be for the best u r in so much pain u need something
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

There got to be more then that, Its just crazy, coz when I was not taking the MXT I can take pain meds and I felt like I have a life.. and I wont get to see my rhumy for 6 weks now, and there is no way I can wait that long... Like tonight I was supposed to go to a garden party and can not go , My husband coming home from work to cook dinner, and he want to quit his job to take care of me, which is a sweet idea, but its not realistist.. He has a great job and I don't want to be the one for him to give it up.. If I can take something for pain, then I can do things here, .. I did nothing today, i cant even do the washing up
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Date: 25.08.2009
From: val h :-)

Subject: Re: I am in so much pain

u will be better when meds kick in. i know u must be so down and feel it not worth it. but as i am sure others who know more than me will tell u things will get better and then u will be much better than when u were on pain killers i am sure in the long run one of the others who can be of more help will be on soon i am sure take care try not to get to down
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Date: 25.08.2009
From: jill

Subject: Re: I am in so much pain

Brenda please please Do NOT accept that from your GP, do u live in the UK>? that is disgusting saying that u cant take painkillers whilst being on MTX...that is utter rubbish.... Listen Brebda... I am on MTX, plus Enbrel injections, plus ZOMORPH 100mg twice daily(morphine bassed meds(hugh dose tho...Plus Co codomol, Plus Diazapam to relax the spasms in muscles, Plus a liguid med callled ORAMORPH(MORPHINE) I can take that every two hours in a bad flare up.....who ever told u that U cannot take Painkillers shld be Shot!!! Parecetomol works very well with Ibubrofen, so give that a go until u get the corrects medication! im so angry right now....Y wld they give yu MTX, without the support of a painkiller.... MTX has a little painkiller ingredient but not much..... Brenda Im guessing U r new to all this...Please please get bk to your doc...and ask for even Tramodol!!!! U r entitled to patched also callled Trantec patches, All r for PAIN!!! IM SO SORRY U ARNT GETTING THE HELP WE HAVE....BUT HONESTLY, i CANT (oops caps soz) I cant imagine Not having proper Painkillers.... this is ridiculos....... I wld like U to give me your Doctors number so I can ring him and ask Y u cant get Painkillers like us lot r on in this Forum(our Rooom I call it) anyway.... be strong, take no crap, and get what U deserve!!!


gooood luck ok ,love Jill x
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Date: 25.08.2009
From: val h :-)

Subject: Re: I am in so much pain

told u she would know
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

Thanks for that Jill, I had no clue about all this.. Thank you so much.. I am from the UK , and I wont stand for that eather, knowing now what I can have..And I will be strong,. i tell ya if I cant get hime to do it,, I will give you his number, but I will like to try on my owen first... Why would I have to suffer and in pain for.. i thought that was crazy...
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Date: 25.08.2009
From: jill

Subject: Re: I am in so much pain

LOL@ U val lol.....your wwelcome Brenda...be strong!!! x PS I meant it about ringing your Doc I will say I am a family member, ya sister etc....jsut tell me when U need me x
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

thank you.. I will take you up on it if needed... this foreum is great , I would not know what to do with out it..
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Date: 25.08.2009
From: jill

Subject: Re: I am in so much pain

I only found it about 6 months ago...I use to go on an american one.... but time delays etc wasnt goood...so i found this... got some fab regluars in here, they r crazy like me lol
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

Why don't your doctors give us all the information for pain as well, as many of us on here and who are not on here, to help us cope with the pain..
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Date: 25.08.2009
From: jill

Subject: Re: I am in so much pain

Docs r just general practioners, however, having said that, your gp must be stoooooooooooooopd!!, bet if hes in pain he wld take painkillers....wot I dont understand Brenda is this bit.....U were given MTX I assume by your rhumatologist Nurse, or by the Rhumatologist himself, everytime I c my rhummy Nurse, we go over my painkillers, the type of anti inflamatorys I am on(please dont tell me yu r not on them either)! wot anti inflas r u taking BTW? I cant beleive this has happened to u, how can U be on MTX, and not allowed painkillers....... may I ask a question? when were U first diagnosed? recently? how long have u had pain and where about do u get the pain? becos Usually, we get painkillers given along with anti inflams, so the painkillers r already in place...... then and only then, wehn we cant cope with the pain, only then do they Offer MTX(becos of the toxicity and blood tests U must have Montly, so I dont get Y U havnt been given the best advice, given the fact U r on a very toxic type med(not the worst by a long shot, so dont worry)

hope u can answer my questions, cos I dont get it...
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

Jill,
This is a long story, so her goes I have stared all this in 2005, and my knee swell up the gp I had at the time gave me pain meds called co - codomol, then he did blood test to see what was going on , as my knee was so swillen size of a football, and he tried to drain it.. after the results said nothing just some my esr was very high and he reffer me to a Rhumatologist, i saw this specialist and he did more bllods and gave me a steriods injections..I kept going back for more blood and more steriods injections, then the and course i was not in pain at the time, the specialist put me on salazine, for 4 months my knees continue to swell and and of course the pain, I was told i can not have any more steriods injections coz i had what was allow.. which the last steriod was not helping by this point. i was on the salazine for 4 months and got real sick from it .. my blood leavel went throught the roof and if was effecting my lungs as well and liver...Fially I beg and beg to have surgery for my knee coz they could not give me any more meds do to my leavel, and I had to wait for months before they would do the surgery to make sure my blood level are better, ..i had the surgey but did not geta proper dignoses ( not spell reight 0 untill 3 months later i came back with my feet swollen and very painfull, now we are talking 2008 now. I had seen my rhmy and he just look at my feet and said its all part of this and I did not have a clue what he was on about untill I said something, I was posstive for hla b27 , and i flip out coz i was not told , i thought it was a one off.. then he was trying to tret me with this and he would not listen to me at all, I had my husband come in and seen it also, coz he was the docotr and i was just the patients, so i went to my GP an now he is a new GP coz the other gp left the pratice, and I was told he would not reffer me to a new rhmy, I need to work it out with him , so I said forget i just suuffer and walk out, untill I had pain in my hip and I was in tears so I seen a different gp and explain why I stop going to see my rhmy, and she refeered me to his one who i am seeing , and he did test and found out i was given the wrong dignoses, because this rhmy did bone scan , which the hospital lost them. and i had mri more blood work and xrays,, so he put me on MTX and thaT ISmy story...
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Date: 25.08.2009
From: jeanette

Subject: Re: I am in so much pain

hi im on mtx injections and also receive cocodamol and naproxen prescriptions and take them most days go get some
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Date: 25.08.2009
From: Brenda

Subject: Re: I am in so much pain

And i did forget to mention Iwas on a anti inflamatorys, but i ran out and of course my Gp said the Rhumy did not say you are to need more... grrrrr like it helps anyway.. i have 3 different kinds and nothing happens, so i guess it was forgotten
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Date: 26.08.2009
From: val h :-)

Subject: Re: I am in so much pain

hi hope u got doc and some help and that today a much better day for u if u did not sleep do not feel bad about having a nap your body going through a lot be nicr to it. good luck :-)
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Date: 26.08.2009
From: Brenda

Subject: Re: I am in so much pain

Val, Hi

I am going to see my GP this morning... and I wrote down some of the pain killers to help, also I wen on the web and got some info, and printed it off for my GP... my friend is going with me today...Thank you. as for last night my friend came over and gave me some codine and I took it, had a great night sleep...
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Date: 26.08.2009
From: val h :-)

Subject: Re: I am in so much pain

that great news so glad u got that friend with you fingers r crossed and thoughts r with u
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Date: 26.08.2009
From: Brenda

Subject: Re: I am in so much pain

Hi got some pain meds and feeling better now, its not much but its a start...
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Date: 26.08.2009
From: Lynne

Subject: Re: I am in so much pain

Hi Brenda wot meds did your GP give you. Did he give you more anti inflams. The thing with those is you need to take them continuously for at least three months for them to fully kock in. Just taking them for a week will not make much of an impression.!
Hope your well, take care x
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Date: 26.08.2009
From: Brenda

Subject: Re: I am in so much pain

Hi Lynne,

I am on pain killer is Solpadol 30/500mg and for the anti inflams Tauxib 90mg
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Date: 26.08.2009
From: Lynne

Subject: Re: I am in so much pain

Hi Brenda hope they work for you. If you find your still in a great deal of pain there are plenty more drugs they can prescribe. dont suffer in silence. Our Jill on here knows which ones to ask for shes very experienced about the meds..
Take care xx
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Date: 26.08.2009
From: Brenda

Subject: Re: I am in so much pain

I know, and I wrote it down and said to my GP I want these meds, coz and he said I need to see my Rhmy to have him give me these meds, coz they dont want to step on any toes, so I said if i am still hurting YOU need to sort me out, i will not suffer in pain, and if you was in pain I assure you would not suffer so don't give me that ****.. I think my gp was supised coz I stood up for my self.. now I am waiting to see my Rhmy to see what he will give me.. I was so much in pain yesterday, I was in tears.. and I am not letting that happen to me any more.. Thanks to jill she was a great help to me, I have my eyes open now..
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Date: 26.08.2009
From: val h :-)

Subject: Re: I am in so much pain

hi brenda great u were so brave very proud of u hope things start looking up for u
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Date: 26.08.2009
From: Brenda

Subject: Re: I am in so much pain

Thanks
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Date: 26.08.2009
From: jill

Subject: Re: I am in so much pain

Brenda your story made me feel so sad...u have gone thru too much, shame u had lousy advice...as u kow im Hla b27Pos too... always tell any GP that u now c....im glad u told hom how u felt today, well done, took courage.... from now on, for u things will get better, WE in here wont allow u to suffer any more ok.... when u c rhumy, be he will ask u how u have been, dont ho,d back those tears, let him know u r strugggling with Life! and ask for decent painkillers....kinda say sumat like" u have some freinds that have same probs, and that they r on fab Tramodol...Zomorph...Buphrenorphine Patches....(transtec patches) "there is soooooooo much out there for u... then ask is there anyway that u cld begin a very goood pain killer like the ones said!...im sure he will listen to u...chin Up ok x
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Date: 27.08.2009
From: val h :-)

Subject: Re: I am in so much pain

hi brenda hope things a little better now and pain more under control
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Date: 27.08.2009
From: Lynne

Subject: Re: I am in so much pain

Brave girlie Brenda. Well done ... It's not easy standing up to them when your in pain. I think your GP will take you more seriously from now on. Hope your feeling better soon xxxx
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Date: 27.08.2009
From: Brenda

Subject: Re: I am in so much pain

i do feel alot better, my pain is under control now.. adleast I am not in tears with pain..
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Date: 27.08.2009
From: val h :-)

Subject: Re: I am in so much pain

so glad u must have felt no one cared so glad u getting things under control
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Date: 27.08.2009
From: Lynne

Subject: Re: I am in so much pain

Hi Brenda pleased your feeling a little better. What painkillers did your GP end up giving you ??? Xxx
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Date: 27.08.2009
From: Brenda

Subject: Re: I am in so much pain

Hi Lynne,

I have Solpadol 30/500mg and for the anti inflams Tauxib 90mg .. untill I get to see my Rhmy, for other pain meds coz my gp dont want to give it me anything else, he told me to talk to my Rhmy.. I am ok as long as a i take pain meds and I dont walk around the house coz my feet really hurt, and I have notice my right hand it painful today this is a new one now.. but I dont see any swelling just alot of pain.. i cant do much with my hand now, so i am not
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Date: 27.08.2009
From: Kirsty

Subject: Re: I am in so much pain

Brenda, sounds like you're having a real rubbish time. I hope you feel better soon :)
Big hugs xxx
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Date: 28.08.2009
From: Lynne

Subject: Re: I am in so much pain

Hi brenda was thinking about you. Your Docs comments annoyed me yesterday. " he does not want to prescride you painkillers cos he does not want to stand on your rheumys toes" !!!!!!!!! Bliiidy bliiiidy helll gggeeeeeeerrrrrrrrr
so what he's saying in other words. He would rather leave you suffering in pain for a few weeks unable to have a quaility of life so that he ( your doc) does not upset the proffesional pride of your rheumy!!!!!!!!!!!!!!!!!!!

Spit spit dam and blast ( don't want to offend anyone swearing) chit chit chit!!!!!!!! Argh I dispare of our doctors sometimes. Know they are not all bad but when they leave you on pain for no good reason than pride it grinds on me

rant over.
Hope you feel better soon Brenda xxxxx
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Date: 28.08.2009
From: jill

Subject: Re: I am in so much pain

S S P D...I love it Lynnneypooos !! new word lolol....btw....My GP gives me wot he likes... he doesnt send a letter to the rhummy everytime i get upset and i get bigger and better meds.... besides, altho my rhummy is goood, he told me that he can no longer do a thing for me, as im on all the best meds... my gp is amazing... shames hes not eye candy tho! lolol
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Date: 28.08.2009
From: Lynne

Subject: Re: I am in so much pain

Hi jiiillley awe. GP no a looker I take it. Mines not bad lookin but I don't fancy him. Don't matter what they look like as long as they are good at their job eh!!

Spit spit dam and Blast .... SSDB was right hey.. Flipflopin Doc. Had to get it off my chest. Lololol ok now xx
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Date: 28.08.2009
From: Brenda

Subject: Re: I am in so much pain

Hi Jill and lynne,

I have Solpadol untill I get to see my Rhmy amnd that makes you tired, so what am i supposed to do during the day... I went out today to M&S to get my sister in law a birthday gift, I really needed to get out as I am stared to feel depressed being in this house and not be able to do nothing, so I was walking not godd and not for long, but I was pushing myself and thios man said to me are you having a stroke.. I could not beleive he said this to me, I said what NIO I AM NOT I have arthritis.. so now I am thinking am I really walking that bad?? came stright home in a taxi coz we only have one car and hubby has it.. don't people know the difference of a stroke ... I had such a bad day today with my sister having a go at me also. I am going to have a glass of wine and chill..
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Date: 28.08.2009
From: val h :-)

Subject: Re: I am in so much pain

enjoy your wine at least he cared enough to ask most people near us would walk straight past might even knock u over lol. why your sister upseting u she should be strung up does she not know u do not need people stressing u shall i phone her for u and sort her out lol
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Date: 28.08.2009
From: Brenda

Subject: Re: I am in so much pain

No I just spoke to my other sister who is the oldest, she was mad and she will take care of it. I know the man was only trying to help. but it was a shock for me since I push my self to go out instead of staying home and relaxing, I don't snap at people, but I did this time, with the pain , and my sister .. I just lost it..
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Date: 28.08.2009
From: Lynne

Subject: Re: I am in so much pain

Awe Brenda. You had a bad time of it latley. I think you need
((((((((((((((((((((((((((((((((((((()( Big Hugs. ))))))))))))))))))))))))))))
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Date: 28.08.2009
From: Brenda

Subject: Re: I am in so much pain

Thanks, but I am not having the winr=e tonight,because I have the fever now, so I took some paracetamol.. and I called that number for advise.
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Date: 28.08.2009
From: val h :-)

Subject: Re: I am in so much pain

hope they do not take to long to get back to u having glass of wine and going down well it has lime and raspberries does that make it part of the five a day lol
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Date: 28.08.2009
From: Lynne

Subject: Re: I am in so much pain

Hi Brenda there's some good peeps on here ways willing to help like Sharon . Some good advice there.
Hope your feeling better soon xxxx
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