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Date: 24.08.2009
From: Claire

Subject: Anti TNF - which one??

Hi ya. I've had RA for 18 mths. Took Sulfasalazine but still in pain so then added Methotrexate to take along side but side affects of metho were too bad eg flu symptoms and sickness after each dose despite taking folic acid so now have just leuflonmide with co-codamol and celoxib.
Still in pain. it seems to move round my whole body from jaw, wrists, hands, knees,feet etc. etc. Kids and partner are really patient and understanding but I am now fed up with constant pain.

I am due back at rheumy on wed for second DAS score and have been told I'll probably be eligble for anti-TNF so I have to decide which one I would like.....I dont care how they are administered I just want the best one. Can anyone here recommend or tell me their experiences of these drugs ??
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Date: 24.08.2009
From: Lynne

Subject: Re: Anti TNF - which one??

Hi Claire Ive been on enbrel for about four years now and I would not be without it. Ive had RA for over twenty years,and its been the best thing I have had no side effects and it is still working well , I have had very few flare ups and when I do they are very mild compaired to how they used to be. There are are few others like Jill who is on it too, and there are a coupleof others in here who are taking the other ones, Im sure they will come and talk to you. Mind you I still does not take away all the pain but it does slow the disease down. Take care hope this helps.
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Date: 24.08.2009
From: jill

Subject: Re: Anti TNF - which one??

Dittto Lynnneypooos....dampens down the damage....blimey cant imagine not being on it....
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Date: 25.08.2009
From: Lynne

Subject: Re: Anti TNF - which one??

Hi jill me either.. Life so much better for taking it lol
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Date: 26.08.2009
From: Karen

Subject: Re: Anti TNF - which one??

Hi Claire, similar to myself..sulfasalazine for a year now methotrexate, altho ive been told to stop that now.

Whats this leuf? ive never heard of it, im hoping to get onto one of the anti tnf but maybe I will be given that.

Also what is DAS?

Karen x
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Date: 26.08.2009
From: jill

Subject: Re: Anti TNF - which one??

Claire im same as Lynne...on MTX and Enbrelllsulfasalazine didnt work, just made me sick.... enbrel seems the one they offer...some take Remicade....I use to talk to an american arthritis group, most said that Enbrel worked for them, by injections tho... also Like Lynne said, still get flare ups, but they r mild, and far far lesss often, but also milder than before.....there really isnt anything that is a cure is there for artha, so the next best thing is the ANTI TNFS!

goood luck ok.....Brenda if U read this, can U ask your thymmy about Enbrel?
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Date: 28.08.2009
From: Lynne

Subject: Re: Anti TNF - which one??

Bump this one back up for girl wonder to look at xxx
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Date: 28.08.2009
From: jill

Subject: Re: Anti TNF - which one??

bumpsy bumpsy...Lyunne how ya doing? x
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Date: 28.08.2009
From: Lynne

Subject: Re: Anti TNF - which one??

Me just about recovered from my m8's visit. More rested now. Back still aching yet need to get onto my rheumy to sort it. How you doing kiddo xxxx
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