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Date: 21.08.2009
From: Jill

Subject: FATIGUE/tiredeness

Hi peeps

ok 4 the last few days by 12 clock ive been KKKKKNACKERED! Dreadful feeling like the life is draining away from me...i know this is fatigue, but by 5.30 i cld barely walk, had to go to bed, which I did, got up at ten put youger ones to bed(fella dont like doing that bit lol) and then i slept all night!...ive hd this happen to me so much, and altho kids r going bk to skool soonish, ive got to get up at 7ish everyday, drive them to skool etc...know I can go bed when i get home, but thats like sleeeping my life away, rally hate this Fatigue, cant stand it...this part of the illness is ruining my life... i feel ok at ko, recharged my batteries etc... but i cant be bothered to do a thing, just tiedied kitchen up, and now not interested in housework, kids rooms r terrrible!... they do their rooms, but now like properly, I havnt even cleaned the upstairs bathroom either...fedup feeling like this, I feel i need yet another dose of steroids...yuk!
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Date: 21.08.2009
From: J

Subject: Re: FATIGUE/tiredeness

ok offfffff to bed for an hour, going bliddy dizzzzy! grrrrrrrrrrrrrrrrrrr laters peeeps xx
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Date: 21.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

poor u fell asleep when got in from work yesterday as was in pain and just exhausted is it the bodys way of saying stop u r doing to much feel much better to day so doing nothing till go to work lol. might wash dishes but that it . i do not know how u cope is there no one else who can take kids to school for u shame not near enough to walk to u need to look after your self girl hope u have a good rest
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Date: 21.08.2009
From: Lynne

Subject: Re: FATIGUE/tiredeness

Hi jill I'm much the same can't get out of bed in the morning. Usually about 11 or 12 by the time I can get up even then I am sluggish. Then I've got a few hours of energy before I have to put my feet up and rest usually about 5.30pm that's me done for the day. I'm biltzed by then . Lol
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Date: 21.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

hope u better jill and had nice nap?
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Date: 21.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

Hahaha, oh the funniest things happened when I was really tired - I tried to plug the laptop power cable into the USB port and wondered why it was fitting in! Hahaha! Hope you're all okay :)
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Date: 22.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

trust u mind u we all do silly things while needing sleep
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Date: 22.08.2009
From: j

Subject: Re: FATIGUE/tiredeness

stillkkkknackered grrrrrrrrrrrrrr
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Date: 22.08.2009
From: amber

Subject: Re: FATIGUE/tiredeness

The Fatigue bit part is one of the main things that gets me down with this RA. I mean don't get me wrong, i love sleep, absolutely love it to bits, but it seems to be ALL i want to do. Which makes me sad when you see other people up and out and about making a day of it and doing all their housework and then they often go out later on to the pub etc. I'm whacked after just puttin the washin out or washing the pots. I just can't find the energy and i think i am just wasting my life away, which upsets me. The only time i feel on top of the world and like i did before i got this illness, is when i have had some steroid injections done. Then i am like Wonder woman and just go ballistic, tidying, cleaning, running about here there and everwhere, full of beans. I wish i could just feel like that all the time, but sadly it only last about 5 weeks (if i'm lucky), then back to the extreme Fatigue again. I feel bad about it when i am sleeping and doing nowt around the house coz i feel as though my family think, 'lazy cow', but i just can't snap out of it. I wish they understood exactly what Fatigue is and that when you have to sleep, you really have to sleep, there and then. They say they understand but i'm not so sure.
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Date: 22.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

Hugs to you Amber...and hugs to j who seems to be in a badish mood :(

Mine's strange...I can be okay for a while, then the next week it'll be tired almost constantly. I know what you mean though - one day of pottering about then people are going out clubbing, and saying I'm using it as an excuse not to go out with them. Silly people - if they're not even going to attempt to understand, then they're really not worth it.
xx
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Date: 22.08.2009
From: Jill

Subject: Re: FATIGUE/tiredeness

HI Amber...i couldnt have put that explaination about fatigue better myself!...you r exactly right how it affects us all.... i feel exactly same, my steroids(have injections sometimes) they work, but not as long as 5 weeks, I also get the energy they give and do the 'catchup jobs'... and then family think Wow shes doing good! and then we go down hill again, Im forever saying to my fellla and children, im sorry but ive got to go to bed....feel i have to justify myself all the time....... even when i can do housework, when my fellla gets home, i say hey, i cleaned the kitchen, did sons room etc etc....he must think im nuts! he says to me"u dont have to tell me, i cn c what u have done" but really thats me showing him that Ive managed to do things around the house.... Amber do u suffer with a bad memory also?? I do, so bad, My gp sent me to have a CT scan of brain LOLOLOL(dont have one) to see whats going on etc, and various blood tests.... awaiting the results! LOL it will Hit the Front page of the newspapers saying LADY ALIVE AND WELL BUT HAS NO BRAIN!!! lolo....oh well lets c what happens...

take care ok, and we understand totally what yu r going thru, dont take too long to come bk to forum, u have been gone too long x Ps do U work Amber?
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Date: 22.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

Jill, let us know if they do find a brain!! LOL.
...and the results from the blood tests etc.

xx
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Date: 22.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

hi all u r so right about the fatigue some times i only manage to get to work (only do 4 hours)do not manage to even wash dishes but other days can do most things strange life we have
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Date: 22.08.2009
From: Jill

Subject: Re: FATIGUE/tiredeness

Val U mUST claim for DLA... look if u were well, bet u wld work full time? U deserve DLA just like any of us...u have Arthritis ok...doesnt matter if its R.A. or Inflamatory artha or O.A.... its wear and tear, causes the same type of pain.... u MUST claim...or else!!!!!!!! lol x
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Date: 22.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

well at the moment feel like a normal human very little pain hard to belive even hand back to normal went over to doncaster for the day and no pain so far a little stiff but can not have everything can u. want to work for as long as posible gives me a reason to get dressed and go out
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Date: 22.08.2009
From: jILL

Subject: Re: FATIGUE/tiredeness

hEY U AVOIDED THE QUESTION lololo....have u claimed yet Val????
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Date: 22.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

decided years ago would work part time when could afford to me and oh he does 30 hours me 22 and works 4 us some days would love if give up others would work full time on bad days would love all day to do house work as never get straight have i put in for it no would i qualify only missed one day at work so far this year and not under hospital so can not see how would qualify
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Date: 22.08.2009
From: j

Subject: Re: FATIGUE/tiredeness

Try!! x
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Date: 22.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

yes mum she nags me as well love u both
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Date: 22.08.2009
From: j

Subject: Re: FATIGUE/tiredeness

goooood, so she shld...ya deserve it!!
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Date: 22.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

so true mind u she is so fit makes me feel worse some how
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Date: 23.08.2009
From: Della

Subject: Re: FATIGUE/tiredeness

hiya girls ye i find that the worse part as well the tiredness go to bed when im tired and then i can be up all night think body clock is all over the place,mind u sat up with my dog whos just had 9 pups blessher.when i went to see rhummy was told i need iron tablets only went and forgot to get them so must get some next weekmy memorys awful.anyway hope everyone is feeling ok big hugs to all xxx
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Date: 23.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

hi good to have u back and away from those games lol
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Date: 24.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

I've noticed, I get really tired, but can't sleep. I'll be up till about 3/4:00am, but really tired. Do you think it could be a side effect?
Sorry for asking silly questions.
xxxx
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Date: 24.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

u could be right or it might be depresion that also causes it when u can not get the exercise u want to and enough to make u sleep. but some meds make u drowsy others keep u awake jill will know she has taken quite a few different ones
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Date: 24.08.2009
From: Lynne

Subject: Re: FATIGUE/tiredeness

Val .... JIll is right you should claim.. and sweet heart it does not matter that you have not missed work.. its not for that. you can still work full time and claim it. the allowance it to help us cope with the illness by giving us extra money to get the things we need to cope with this insidious illness. Please claim now nag nag nag.
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Date: 24.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

bless best nagging so far
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Date: 24.08.2009
From: jill

Subject: Re: FATIGUE/tiredeness

nnaggg nagggg nayyyyyyyyyy....claim or wont talk wit cha innit....lolol
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Date: 26.08.2009
From: Lynne

Subject: Re: FATIGUE/tiredeness

Lol jill with you there val were goin to keep nagging nag nag till you do it. You know we care very much and that's why were doin it lovee xxxxx
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Date: 26.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

I have noticed that it's been since I've started taking Naproxen (for the past 3 weeks) but I don't know whether it's me just being strange.

Anyway...is this nag Val day?
I like it :)
I'm agreeing with what the experts are saying :)
There's no harm in trying, even if they refuse you, you don't lose anything do you.

xxxx
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Date: 26.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

kirsty think u r an expert as much as any one my pal
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Date: 26.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

Far from it!
I have no idea what I'm talking about half the time.
LOL
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Date: 27.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

no girl i only been diagnosed since jan so u loads more idea than me and u give us a balance u see a different side to all this . also not to sure she got it right mind u think she just keeping an eye on things to see if they settle but they not which not happy about. u have your life ahead of u and lots of new friends soon so head up life will be so good for u i know it will have its problems but u r strong and have us they wont have the same help so remember u have your own army girl and jill will phone your pal if u wish mind u might be to scared to be pal with u then lol
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Date: 27.08.2009
From: Brenda

Subject: Re: FATIGUE/tiredeness

Today, I can do a bit more, like do some cleaning, not much but some, I just feel like I should but don't want to coz i am tired , with all this resting on the sofa.. But I have to do something..
the swelling pain pain are there still, but the pain killers are helping me cope with the pain.. so i want to do something usful..
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Date: 27.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

little and often pace your self u do not want to be in pain to nite so take care listen to what body saying
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Date: 27.08.2009
From: Lynne

Subject: Re: FATIGUE/tiredeness

That nasty fella called Guilt will get you everytime. Brenda. He's best ignored if you can. Although he's a persistant fella like arther. They hang around when you wish they'd rather not xxx take care and take it easy and they minght just cut you a break and leave you alone for a while. Xxx
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Date: 27.08.2009
From: Brenda

Subject: Re: FATIGUE/tiredeness

Thanks for that, I been laying on the sofa, writing in my journal, which really helps, for everything in my life.. I am taking an easy and listening to my body.. Its hard , coz there is so much ironing to do, ect... I am so glad we got a dishwasher, thanks to me,. My other half did not want it, but if it make my life easier then I will have it, like a dry also.
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Date: 27.08.2009
From: Lynne

Subject: Re: FATIGUE/tiredeness

Absolutly. Any gizmo that makes life easier I'll buy it. Electric can opener. A thing called a boa which help undo tight lids on jars and bottles etc. Have you seen the web site called funky arthur. Full of gizmos on there for us peeps. Xxxx
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Date: 27.08.2009
From: jeanette

Subject: Re: FATIGUE/tiredeness

sleeeeeeeeeeeep cant stop i am stuk to the sofa today had to take kids shopping for the dreaded school uniform i need a steroid to get me goin then i do everything for a good while then it comes and gets me the dreaded fatigue im a support worker and cant stop yorning in work and clients are asking me if im ok i just say ye late night but really cant be bothersd just want sleeeeeeeeeeeeeeeeeeeeeeeeeep . lol
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Date: 27.08.2009
From: GirlWonder

Subject: Re: FATIGUE/tiredeness

God, i didnt even realise this was part of R.A :( Ive been going mad wondering if i have depression.. so so so tired these days..only 34 and got 3 kids and i dont know how to get out of this constant tiredness..makes me feel so low :(
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Date: 27.08.2009
From: Kirsty

Subject: Re: FATIGUE/tiredeness

It does make you feel low...best thing is to just take the time out when you need it, and when you can - only do what you're able to do!
xxx
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Date: 28.08.2009
From: val h :-)

Subject: Re: FATIGUE/tiredeness

good girl hope u practice what u preach (can not spell sorry) am educated just words a mistery to me lol. but balence is improtant social life as well kirsty as and when u feel up to it .
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Date: 28.08.2009
From: Lynne

Subject: Re: FATIGUE/tiredeness

Hi Jeanette & girlwonder new to the forum? Welcome. Hi all ... Yes tired ness fatigue is a major part of any arthritis., that's why speviist usually have their clinics in the afternoons lololol so we have a chance of gettig there lol.
You will find your balance bit it must be really hard when you got three kids to run around after. Take care x
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