Subject: Re: Questions n a lil update!
Hi Lynne, Thank you for your reply. My problem with medz is i also have congential heart diesase (sp) basically called Fallots of Techtrology and so the medz conflict with it n as im also under investigation for possible surgery for my heart i crnt be started on ne drugs incase i need drugs for my heart (heart specialist sees there drugs more important! which doesnt help me!) So although i n consultant want to help me its impossible with my cardiologist saying yes (i have 2 cardiologist & one rhmertologist & asthma nurse) n i am still getting no ware i cud just cry. Im really pleased you have managed to get a qualification i wish i cud finish my degree but i have no energy n find it hard todo much :( Your right i crnt cook ect my partner has to cook and prepare all our meals and has had to leave work to look after me because i crnt do much at all its so depressing, Im also on anti-depressents cuz RA came out after id lost my mum (within 2 months of loosing my mum i started getting symptoms.) I get confuse as to what my tiredness is because of my heart and ra i take regular naps these days but im only 24 n its quite embrassing esp wen friends come rnd to see me! I will read the the memory post i can somtimes be doing somthing then suddently its completely gone n im just staring into space, another depressing factor. DLA awarded me care middle rate but i think this is unfair ive appealed but they have lost my file and so crnt send me paperwork. I sent in my appeal form 3 weeks ago and still no paperwork from them and i had to wait nrly 14 weeks for an original decisition. How did you manage to get the decisition in the end? have you any tips? I dread seeing my consultant because ive not been able to have a blood test because ive lost so much weigh my vains are collapsing as soon as a needle is put into my arm so i crnt give him an up-to date reading of my bloods its realli upsetting me these days cuz i just want to be health even if its just for one day i seem to be forever at the doctors or at hospital seeing one consultant or another i just want to live my life again :( Thanks for replying again
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