Date: 03.07.2009
From: emma
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Subject: psoriatic arthritis - just diagnosed
Hi, Im Emma mum of 2 young kids, am 33 have had sore big toe for 9 mnths and a little toe now for 3 months on same foot, doctor screened me for gout but had a reumatology appntmnt yesterday and lady said I had psoriatic arthritis am in shock and a bit scared, my gran had psorisis but I have never had it, I think it will follow the arthritis am scared that it is going to spread am a very active person, have to start on sulfasalazine and have regular blood tests for first 4 months to check for anemia and my kidneys?? just looking for comfort and avice really, came totally out of the blue wasnt what I was expecting at all
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Date: 03.07.2009
From: Della
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Subject: Re: psoriatic arthritis - just diagnosed
Hi Emma I don't know anything about Psoriatic arthritis but i was only diagnosed with rhumatoid arthritis 9 weeks ago and i know it comes as a shock mine came on really quickly. What i will say is the people on this forum has given me a lot of advice and support and i'm sure they will you as well so take care and i hope you get the comfort u need.
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Date: 03.07.2009
From: blogger
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Subject: Re: psoriatic arthritis - just diagnosed
sulfasalasine takes a few months to control the symptoms you will get used to it and be amazed at the difference it mae to your life if it orks for you
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Date: 03.07.2009
From: emma
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Subject: Re: psoriatic arthritis - just diagnosed
Hi, thanks for your emails, just hearing from people is a big comfort, think am still in shock and frightened and a big hypo at the best of times,lol, thanks again x
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Date: 03.07.2009
From: Angela
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Subject: Re: psoriatic arthritis - just diagnosed
Hiya Emma,
I was diagnosed with RA in December, and started sulfasalizine in April this year.
I was in shock to when diagnosed and still am if I think about it to much.
The medication sacred me to death after reading about it,and I was dreading taking it.
I can honestly say I have not had one bad reaction to the sulfa, and although I still am not 100%, there has been a big improvement in my well being.
There is always someone on here to support you when you need it.
Take Care
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Date: 03.07.2009
From: val h
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Subject: Re: psoriatic arthritis - just diagnosed
hi u will feel shocked it is normal we have all been there u wonder what future going to bring. when meds kick in u will feel more your old self .also the exhausted feeling will lift life should be much better dont get stressed makes things worse hope meds kick in quick takes time but worth it
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Date: 04.07.2009
From: Jill
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Subject: Re: psoriatic arthritis - just diagnosed
((((emmma)))) hugs for u...im so sorry to hear your bad news... I beleive the treatments are the same as R.A. and inflamatory Artha.... we r here to listen to u and any concerns, and try and support u thru this rotten shock u have had....I was like that also...I couldnt acceot it at all, and I was terrified of the meds... i dint know this forum was here, Diagnosed in 2002, but on,ly beeen on Methtrexate 3 years, and Enbrel just over a year and half.... they forgot about me, until I changed doctors! U will be looked after so much better now...it does take 3 months for them to kick in...goood luck x
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Date: 05.07.2009
From: Lynne A
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Subject: Re: psoriatic arthritis - just diagnosed
Regards to all.. it is scary at first ,, quite difficult to get your head around.. one day fine.. next day.. unknown? That's the difficult one to overcome and accept. If you can live with uncertainty and still cope your well on the way to managing. It takes a little time and of course your meds. You can still have a productive, fulfilled life.. just a little different than perhaps what you though.. you have still got a life with Arthritis is what I was trying to get at.. Good luck to all
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Date: 05.07.2009
From: Jill
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Subject: Re: psoriatic arthritis - just diagnosed
Very Tru Lynne...goood advice there x...u learn to know your limits....
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Date: 25.07.2009
From: Sandie
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Subject: Re: psoriatic arthritis - just diagnosed
Big hugs emma we can relate to what you are feeling
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Date: 29.07.2009
From: Jules
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Subject: Re: psoriatic arthritis - just diagnosed
Lots of hugs to everyone.. I can really relate to the scary feeling god I was worried when I first got diagnosed.
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