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Date: 18.04.2016
From: Phil

Subject: Natural cures?

Hi everyone. I'm new here and have, or rather, had, psoriatic arthritis all over to a level that it was pretty crippling. Nowadays I have a very small tingle in one knee and one wrist to warn me if I make a dietary mistake, but it's really no bother. I am browsing through the posts and they mostly seem to be about meds and rheumatologists, which I cannot imagine going back to. Has anyone else had any success with gentler means such as diet and lifestyle modifications? I'd love to hear some positive stories! :)
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Date: 18.04.2016
From: s/f

Subject: Re: Natural cures?

I'm curious as to why you want to hear stories about 'natural cures' if you aren't suffering yourself any more.
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Date: 19.04.2016
From: Phil

Subject: Natural cures?

Hi s/f. Because I think they are inspiring, and I am always looking for ideas to help other people. I often Skype people to help with their autoimmunity issues and have had some wonderful success with them too. However, I am the first to admit that I can't possibly know everything, or anywhere near, so to get some ideas from others would be very welcome. Also, I was shocked by the amount of people still suffering on some of the forums and groups. These are always complicated issues with many aspects needing to be addressed to get success, so nobody's going to be exactly the same, and I learn from everyone who has found natural ways to balance themselves again. Traditional research into chemical treatments are never really going to nail it, as is evident by the amount of people still suffering despite the meds. Increasing awareness can never be bad, eh? :)
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Date: 19.04.2016
From: Bored with this forum

Subject: Re: Natural cures?

Phil

If you are looking for optimistic ideas , then you are on the wrong forum.

The Arthritis Forum is a pity party for a small group of members that are too old or too afraid to join face book.

Everyday they post online, through this anonymous site , how bad they feel and how they wish they could give one another " gentle hugs".

If anyone other than the usual bunch, Marlene (Louis), Sleek Fox (bsk) and the rest of the old dears, posts anything other than stories of woe & abject suffering & pain, they group together & dismiss your posts and even run to the moderator & have your comments removed.

Phil, go with your ideas but you are wasting your time on this dull & over indulged forum.
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Date: 19.04.2016
From: Young at heart

Subject: Re: Natural cures?

Oh dear, someone is being rather bitchy! I don't remember anyone's post being dismissed and I have found the "old dears" as you call them to be very helpful to many on here. If you find the site so dull why are you still reading the posts on here?
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Date: 19.04.2016
From: Not really interested

Subject: Re: Natural cures?

As the last post says why are you even reading the posts leave alone commenting. Is face book not so good tonight?????????????
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Date: 19.04.2016
From: Lois

Subject: Re: Natural cures?

Hi Phil, I would just like to apologise for the awful post.
Yes there is a group that support one and other on here and have done so for a long time. This is usually a very pleasant forum.

We are all up for any help and support on here and your post is not being dismissed at all.

I don't really know very much about alternative help out there. I do use medication but I also use the good old hot water bottle and have just started using heat pads and find them very helpful. I have only been taking meds for 10 months and so far I have no issues with them.

I hope the unfortunate post have not put you off of posting again.

Take care and hope to hear from you again.
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Date: 19.04.2016
From: s/f

Subject: Re: Natural cures?

Phil, thanks for answering my question. There are a couple of rather unpleasant people on here and I see one of them has been posting again. I laugh, though, at the idea that the poster thinks Facebook is at the cutting edge of social media!

I put 'natural cures' in quotes because it's not a term I would use but I agree you can always learn from people. I choose to use 'traditional' meds as I haven't found any alternative therapies helpful. Not that I think 'traditional' meds are any better, just different and my poison of choice. My disease is rather persistent and aggressive and doesn't really seem to respond to anything much. So, I'm afraid I can't offer anything to add to your arsenal of cures.
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Date: 21.04.2016
From: Sean

Subject: Re: Natural cures?

Let's be fair most people are open and honest about their experiences on here.

There is a degree of skepticism of course to any claims of "cure".

I've reached out in the last year to a number of people on twitter - there are more like me all over the world using diet change to treat their AS and other autoimmune diseases.

I have learned to be respectful - as there are differences in us all.

However, I truly believe (from extensive research - enough to make most people yawn) that ALL of us have much in common at a fundamental level.

We are all experiencing an errant immune response to something (AS, RA, MS.. and many other diseases are all linked), I do not believe that that the immune system just attack us for NO reason.

It is attacking something and creating "dodgy" anti-bodies that attack us. By discovering our "something" we can work to reduce the immune response to it and us at the same time.

That "something" is described in most medical research - food protein, bacterial protein - may remain a mystery through lack of experimentation or skepticism in some cases - but I fully understand the need to trust doctors and drugs also.

Trouble is on drugs it is harder to determine if your alternative is working. So there is no point trying if you are on drugs. One exception might be B Cell deletion drugs...

This is because I understand that B Cells can carry memory to react again to the unknown "something"... so a time for experimentation would be after these drugs.

I'm not cured but I am drug free since age 26, was 50 last month (had this disease AS since my teens) - I might get occasional flares in my back / hips. So I have no idea how someone else would fare on any alternative regime.

If someones symptoms did not subside without drugs who can blame you - I know the pain that come come from arthritis.

Then again - if we all ignore the wealth of research then it will perpetuate the lies from big-pharma that we all need to be medicated with Statins, Blood pressure drugs etc.

450,000,000 people with diabetes and rising and same dietary advice leaves more getting more ill and taking drugs.

Since being on twitter - I have linked up with many who follow a diet called LCHF for diabetes.

For me there is a comparison to auto-immune disease in the way that diabetes is treated - for diabetes they ignore a lot of research in to regulation of insulin response with carbohydrate reduction.

I believe that the "somethings" and underlying causes for auto-immune diseases are ignored and that switching off the immune system is a short cut one size fits all pharma approach - this is because time is money and treating us all individually is difficult.

I don't believe the system does the best it can to implement what it knows about these diseases.

Main stream media / Pharma are complicit in talking down some alternatives and making out that some things are quackery when they are actually routed in science. Profits first!
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Date: 22.04.2016
From: Phil

Subject: Natural cures?

"Lois" and "Young at heart" Ênot put off at all. :) "Bored with this forum" Êrather amused by your post actually. I cannot say that what you post is true on this forum and would not judge, but it can be true elsewhere. :) "Sean" incredibly intelligent and informed post. Thank you. Yes, LCHF can be miraculous I have 99% reversed my PA naturally, so from being totally crippled I just get a tiny tingle in one knee and one wrist if I eat certain dodgy things, which I seldom do. I am now back to drumming, weight training, mountain biking etc For me it was a combination of ketogenic diet (high fat, low carb), rebuilding the gut flora, cold thermogenesis, avoidance of EMFs, WiFi and artificial light and various other tweaks, and perhaps the most important, emotional balancing with EFT etc. People would be astonished that it is possible to 100% cure one (or a matching pair) of joints while others are still troublesome, but once you clear an emotional block correlating to that bodypart, miracles happen. It surprised me, and I'm an old hippy! It takes time of course, as does anything natural, and the rheumatologists will do their very best to discourage you and tell you it doesn't work, so you have to be strong to keep your confidence high when they unleash their fearmongering on you. :) But if you Google great docs like Natasha Campbell McBride and particularly Dr. Jack Kruse, you will be on the right track. The reason why they will not find a single cure is that there are probably 50 causes in everybody, 30 of which will be unique to that person. You have to cover all bases. As they say, water does not boil at 99 degrees. :) If you need a drug to tide you over, go for something safe that the pharma companies don't push because the patent has run out Google Low Dose Naltrexone. It turns the volume down 80% while you work on the real causes. Good luck! I have a website where I discuss this a lot (and no, I'm not selling anything to arthritics the info is free). You can find it easily I guess, but I don't want to go advertising with links and get into trouble. :) Good luck!!
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Date: 07.05.2016
From: MaggieJ

Subject: Re: Natural cures?

Hi Phil,

I realise you are not specifically asking about OA, so sorry if this isn't of interest. :)

I have OA and am very wary NSAIDs after years on them, with little to no relief and then researching them some more to find out some of the negative side effects. I now take a herbal rememdy of Scutelleria baicalensis and Acacia Catechu called Cararthron. I am thrilled with the pain relief! I have got my husband onto them as well for his shoulder and knee after years of NSAIDs and he is feeling relief from them as well. I was initially very wary to try them being herbal but this particular one has been clinically trialled. Have a great day. :)
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