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Date: 03.05.2006
From: stace

Subject: New to this

Hey everyone, I am new to this, but not new to suffering. My name is Stacey, i am nearly 19 and I am from Worcester. I have had JCRA since I was 18 months old. I have it in every joint, over the years have a tried so many different drugs, some for better, and some for much worse.
I am now on enbrel, a once weekly injection of 50mg instead of two injections of 25mg a week. It has helped me an aweful lot, but recently I have started my first job since i have been on enbrel. I find that towards the end of the week i am in immense pain, and i have already had lots of time off work. I am very interested in what drugs you are all taking, and how it affects you, be it side affects, how it helps (or doesnt), and how you generally cope. I have never had the privellege of chatting with other people with similar conditions to me.
I am researching arthritis and your information would be helpful, both for me and my future as I will start college this year, and carry on to one day become a consultant rheumatologist.
thanks for all your time, I hope to read your replies soon. :-)
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Date: 05.05.2006
From: JOYCE GILLHAM

Subject: Re: New to this

Hi Stacey, Did you see the poem I wrote and sent to Debbie about my hands, I am an old lady but have had RA since I was about 18, and like you I have always wanted to chat to 'someone' who KNOWS how awful the pain can be, for unless you have had it yourself you tend to think that 'rheumatics' are just a bit of pain here or there in a joint now and again, one day when you become a rheumatologist you can tell the powers that be just how bad it gets, I often think that if a person has cancer pain killers are given straight away, but not so with RA, and I almost have to fight to get a pain killing injection more than twice a year !! my love to you and please God a CURE will be found before you get anything like my age Joyce x
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Date: 08.05.2006
From: Stace

Subject: Re: New to this

I have just read your poem Joyce. You chose your words well, I have tried to express my pain and anxiety with words, but I never think it sounds quite right. I usually draw a person with red angry arrows pointing to joints, that is the only way I feel I can describe my pain. Your poem was very very good. Would you mind if I was to include it in my research? I like your expression, of course it is of no comparison to the full extent of your pain, but at the same time, it is one of the best insights. I think your poem would be helpful to make other people understand. If only people such as my manager was to understand. I am facing "the sack" at work as I have had "too much time off" and they are "trying to run a business". By law i know they cannot sack me due to my condition, but as always they will find some excuse. I have tried my hardest which of course, isn't good enough. I am struggling to walk, but work will not allow me to use my walking stick, then they moan that I won't go in. I am now unsure as to what I am supposed to do. I want to go to college so much, now I fear I won't be able to afford it. The worst thing about this workplace discrimination, is that I actually work at Worcester Royal Hospital. This country has been fought for, so many people have lost their lives to keep this country ours today, However i feel the government is letting us down severly.
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Date: 09.05.2006
From: Joyce

Subject: Re: New to this

So sorry to hear about the people you work for being SO NASTY, I worked all my life, but when I was younger the RA was not so bad and flare ups were only about two a year, unlike now, with this ALL OVER flare up that looks as if it will last a *****year !! Is there not a charity that would fund your college course?? I was thinking about the Duke of Edinburgh award scheme ?? have a look around you might find something, all good wishes for your future, and of course you can use my poem, you are very welcome, love Joyce
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Date: 27.05.2006
From: Richard Henderson

Subject: Re: New to this

Hi Stace and Joyce, I am only just beginning to understand what arthritis means. I am sad at the response on this forum. I think it is the easiest forum to use, specially for us older people who don't have too much computer experience. Currently I am not under any treatment except exercise which does not seem to help so far. Good luck with your research project and I will pass the word about this forum.
Richard
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Date: 29.05.2006
From: sharon

Subject: Re: New to this

hi i am also new i am 34 and was diagnosed a year ago every day when i try and get out of bed i know its going to be another one of those days, when i am having a bad flare up day which is normally 5 out of 7 everything about raising children becomes more challenging especially with my youngest (20)mths i should be taking him to the park and playing in the garden but most days i am unale to do this i personally have to rely on my friends and family to do a lot for me they help out as much as they can this makes things somewhat easier. I have been on methatrexate for about 7 mths now and the RA is still speading and getting worse daily dont know how long i will have to wait for some positive results but hears hoping it will be sooner rather than later. sharon x
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