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Date: 22.05.2014
From: Sean

Subject: Celiac and Gluten Sensitivity and Autoimmune Diseases

Just sharing an amazing talk from a really charismatic professor researching Celiac and other autoimmune diseases - from January this year. It's an hour long :-/

Particularly mentions Fibromyalgia and rheumatoid arthritis.

Tells us everything about the role of the gut in autoimmune diseases.

http://m.youtube.com/watch?v=VvfTV57iPUY
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Date: 24.05.2014
From: Emm

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

I watched this yesterday and found it very interesting as I have RA, from age 24, and my grandson who is 16 is celiac.
He was diagnosed as a baby and my daughter has always respected his diet. He is doing really well because she does. I was interested in the fact they have come up with a test instead of the biopsy intrusive test that they perform every now and again to see how his insides are doing.
No one else in the family is celiac, RA is in the family a bit but no one has it to the extent I have.
I am tempted to try a gluten free diet. Wish I didn't love fresh bread.
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Date: 24.05.2014
From: Patricia

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Thanks for this Sean :-) Really appreciate all the time and effort you put in to helping us on here with all the info you have. I am at the moment adapting my diet to dairy and gluten free - did go vegan for the first three weeks but found my pain in spine/neck and shoulder flared up more than normal oddly. Brought fish back in and dropped the lentils and beans and it is now back to my normal pain levels - proving i suppose that we are all individuals and what is right for one isn't right for the other. I am seeing however with my 'researching' that dairy and gluten seem to be the main triggers. I have found (now nearly four weeks) that I have a bit more energy and the awful brain fog is much better. I seem to be able to walk a bit better too. Early days but I am hopeful for a bit less pain :-) Thank you again x
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Date: 02.06.2014
From: Sean

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Hi Patricia - I'm so glad that you are feeling a bit better the energy and brain fog is a really good sign. You're so brave experimenting. :)

I agree completely with us being individuals with food allergies - but as you say there is usually the finger pointed at the usual gluten and dairy staples.

One of the major diet studies that looked at vegan diets for rheumatoid arthritis is often quoted by other forums as why a vegetarian diet is good for arthritis - but the key thing in the diet was it was also gluten free!

http://rheumatology.oxfordjournals.org/content/40/10/1175.full

Not sure if they proved if meat was bad, milk was bad or gluten was bad - ? but they would have certainly removed lots of potentially reactive.

The youtube video from Dr. Fasano above opens up so many questions for all of us with an autoimmune disease - as it proves that in the case of Celiac the whole body autoimmune reaction can stop when the "invader" is removed.

I think I posted this before but it dovetails perfectly with Fasanos talk on celiac - and it help people picture what the body is doing when an invader creates an initial immune response - the key phrases for autoimmune and development of food intolerence is "epitope spreading" and "molecular mimicry" -

http://www.direct-ms.org/molecularmimicry.html

What is fascinating for me is this paper is the description of 3 way molecular mimicry involving a virus, food protein and then our own tissues (in this case the myelin sheath).

It then goes on to explain that the amino acids that are expressed in our tissues (by our different genes) in different parts of our bodies - explain that this is why the same protein from a bacteria (proteus Mirabilis - in RA) is harmless to some.

One area I find really interesting too is the role of Strep and other bacteria in molecular mimicry in brain tissue - with a huge link to a variety of conditions ranging from OCD to Autism, even Huntingtons. Especially as Zonulin reactions from wheat proteins can also effect the blood brain barrier.

Btw - please beware of gluten free corn and starch based foods, many are very highly processed and as well as being a top allergen corn is nearly all genetically modified - and can mimic wheat in some people. From my researching and personal experience - White rice is safer as far as carbs go for anyone that might be reacting,

Sorry to rattle on - and again I might have posted before but you might want to look up Barbara Allen on YouTube - I think her journey is authentic and important to many of us!

Take care and stay positive - as many people can get good results x
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Date: 02.06.2014
From: suz

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

I seen Barbara Allen's viedos and they are really interesting she tackled her R.A. She mentions lots of stuff about R.A and diet.

Good information here Sean, I feel cow's milk is very bad culprit for my R.A
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Date: 02.06.2014
From: Sean

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Hi Suz - not sure if you read it but there is a lot about cows milk in this paper also that I put in Simone's thread -

http://www.drperlmutter.com/wp-content/uploads/2013/11/HEADACHE-Gluten.pdf
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Date: 04.06.2014
From: Linda

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

I once sent my blood away to be tested for food intolerances Suz.

I had no reaction to wheat as I had already cut it out of my diet. My blood reacted to pork and beef, but not to lamb as I rarely eat lamb. The worst reaction I had was to dairy. It was because I thought I might have had a problem with dairy, that I did the test in the first place.

I don't know if these tests are kosher, but I think they were spot on with dairy as fresh cream gives me awful heartburn, and milk can make me feel sick.

It is, as I have found, much harder to eliminate milk from your diet to cut out gluten.

Notmilk is another good website.
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Date: 04.06.2014
From: Sean

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Hi Linda - what tests did you have done?

"Notmilk" is a very colourful site!

I am considering having one of these tests at some point. I've seen the York test - and then there is one for Cyrex laboratory

Your correct though that anti-gliadin antibodies wont be found if you are already gluten free.

I read that the "base-line" for normal (wheat eaters) is that they expect there to be some level anti-gliadin antibodies - which links to Professor Fasono's talk. But it helps physicians dismiss studies like this - (44 out 93 participants had raised antibodies to gliadin wheat protein)

http://www.ncbi.nlm.nih.gov/pubmed/2902267
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Date: 05.06.2014
From: Linda

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

I did the York test Sean. If I remember, it was quite expensive, but it's hard to do an elimination diet, if you're not sure which foods to eliminate.

I've read newspaper articles that say these tests are worthless, but I was quite certain I had a problem with dairy, and the test confirmed it.

I find cutting out dairy much harder than eliminating gluten from my diet. I love cheese and recipes with cheese in, but the cheese substitutes are not very nice.

It's been a while since I visited Notmilk, and they are colourful. They seem to be quite fanatical about dairy, but still, there's some good information on there.
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Date: 05.06.2014
From: Sean

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Linda

I once hijacked my sons pin-prick allergy tests after he had a peanut reaction - and asked the nurse to test me for wheat. Likewise it confirmed what I had known - I reacted with a red blister!

One of my colleagues has mentioned that his daughter had the York test and was reacting to Chicken. I didn't believe him at the time - but now I understand it more I can see that any protein (expecially lectins) can react.

I react to cows milk (I get excema and horrible blepharitis) - but cheese less as one of the key proteins (casein) in cheddar cheese is broken down due to the production process.

Sheeps / Goats cheese is also another possible option as the proteins will be different.
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Date: 05.06.2014
From: suz

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Hi Linda and Sean

I have been thinking about doing a food intolerance test. have been reading about the York test they seem like a very good company to provide you with accurate information.

Its good to know Linda that you had the TeST AND DAIRY is not good for you, have you had R.A for long time ? ha it helped avoiding the milk and wheat?

Sean I didn't know cheese doesn't contain casein after its process maybe 1 pizza now again maybe fine then lol... I don't know think I would still be reluctant to eat pizza cos of the cheese and wheat!

But casein isn't a good protein for autoimmune conditions.
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Date: 05.06.2014
From: Sean

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

Suz / Linda

Sorry but I think it is lactose not casein that is removed from the process. Either way I can tolerate some cheddar but cannot drink milk - so maybe it's the lactose that is part of my issue!

"Cheeses such as Cheddar and Swiss-styles undergo a further process called ripening, giving the cheeses their unique flavour, texture and appearance. During the ripening phase, any remaining lactose is often converted into lactic acid and other products, so little or no lactose is left in the cheese."

Some of the casein the broken down by cheddar production.

York have been around for a while - I think I trust them - but until these sorts of test are embraced as important by mainstream medical practice then we are left in a sort of limbo.
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Date: 06.06.2014
From: Linda

Subject: Re: Celiac and Gluten Sensitivity and Autoimmune Diseases

I have Lupus and a crossover with RA suz. I do think the York test is one of the better tests Sean, because they test your actual blood. Giving up eating gluten has helped my IBS suz. I was going toilet six times times a day. When I was diagnosed I told them I had diarrhoea, but if you have something else like Lupus, they're not interested.

I still eat cheese occasionally on gluten free Pizza. Can't resist it. Interesting what you say about cheese Sean. I also think you know if intolerant to certain foods. If my husband eats too many mushrooms, he gets a bad stomach ache. He doesn't need a doctor to tell him that. He naturally avoids eating too many mushrooms. Twice in my life I've had seafood. Both times I've been sick. I've never eaten them since.
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