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Date: 19.05.2014
From: SammyO

Subject: Simponi and Hair Loss

Hello, Ive just found this site as Im desperately trying to find out if anyone is having the same symptoms as me and if there is anything I can do to stop them. Ive been prescribed Simponi (Golimumab) and about to take my 4th injection. In the past week Ive noticed my hair is falling out very quickly, clumps in the shower, in my brush and even if I put my hand through my hair I have a huge amount come out. Hair loss isn't a side effect of taking simponi. I have gone from not being able to walk 12 months ago to feeling as though I dont have the arthritis (psoratic)as ive no pain, stiffness or anything. I would be so grateful for any help, doctor and rheumatologist don't see the hair loss as being of any importance. Am I just expecting too much.
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Date: 19.05.2014
From: Julie

Subject: Re: Simponi and Hair Loss

sorry I cant help but hang on in there somebody will come along with some advice. I am not on same med so am unable to comment, although I started to lose a bit of hair when I first went onto mtx but it wasn't a real problem and not didn't last too long.
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Date: 19.05.2014
From: SammyO

Subject: Re: Simponi and Hair Loss

Thanks Julie, it is really good to know that it may settle down on its own. I just keep thinking that once it has started it isn't going to stop, think ive lost at least a third of my hair and I cant think of anything else at the minute. Will keep checking posts to see if anyone has had the same. Thanks again.
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Date: 20.05.2014
From: Eve

Subject: Re: Simponi and Hair Loss

I don't know about Simponi but I had some hair loss, possibly with methotrexate, I only had fine hair too but reckon I lost about a third too - it's awful isn't it the temptation to see if it's still coming out and finding hairs all over!

They stopped the methotrexate and I'm on now at a lower dose and not had it as much since. At the time, before they stopped it, they recommended Sulphate free shampoo though not sure if that's more specific with mtx, they recommend it for chemotherapy patients too apparently.

I found a L'Oreal range which is Sulphate free and some others but it's in most shampoos, even baby ones!

I was also advised to avoid shampoos which encourage hair growth like caffeine shampoos as apparently it increases the blood flow to your scalp (or something like that!) which is not what you need for hairloss caused by a drug like methotrexate.

I also tried to avoid anything which pulled on the hair too much, like lots of brushing/styling and tight bobbles, the ones which can pull at your hair.
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Date: 20.05.2014
From: SammyO

Subject: Re: Simponi and Hair Loss

Hi Eve, can I ask how long you noticed the hair loss - Im hoping this is going to stop soon before there is little left. I have tingling all over my scalp then about an hour later another clump falls out. My eyebrows are stinging too and have started to fall out. I am prodding at it every five minut you are right about it being tempting, I just keep hoping no more comes out but so far I havent been that lucky.
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Date: 21.05.2014
From: Eve

Subject: Re: Simponi and Hair Loss

It's awfully addictive (in a bad way) isn't it! It calmed down a lot when I came off the mtx and started using the sulphate free shampoo (back on normal now but still careful about styling and such).

It was over a month or so I think. My eyebrows were affected too, had to leave them well alone as the hairs would just come out without even pulling them.

Another thought I forgot to say yesterday is to ask your GP/rhumo for some blood tests just to rule out anything else which could be causing it. With me if was for things like thyroid function, B12 etc...

I know how you feel though, I even ended up looking at costs for wigs and such on the NHS in case it went really bad!

So glad you have found somthing that helps though, I've recently started tocilizumab infusions but my liver enzymes have shot up so a bit in doubt as to what happens next!
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Date: 24.08.2016
From: Antonio Y Van

Subject: Re: Simponi and Hair Loss

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