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Date: 10.03.2009
From: Anita

Subject: seronegative spondyloarthropathy (psoriatic arthritis)

have just been researching what i was told today at my appointment, it seems that he thinks i have seronegative spondyloarthropathy, has anyone else got this?? it is under the seronegative arthritis umbrella but is a bit different in that it's the tendons where they connect to the joints that are affected from what i can see, but the sacroiliac joint that is involved too and this can become fused (i think i understood that correctly), the consultant is going to discuss my case with the chief radiographer to see if i should have an MRI, I have to have physio and see the OT for splints etc. He also recommends that i have the carpal tunnel operation as this is still there despite an injection recently. All in all i was impressed with the rheumy, seemed to know straight away what it was after hearing my history (20 years of various problems). I have also had blood taken to see if the gene HLA B27 is present (usually is in this case). Basically it is psoriatic arthritis (didn't realise i had psoriasis!!!).
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Date: 11.03.2009
From: Jill

Subject: Re: seronegative spondyloarthropathy (psoriatic arthritis)

Hi Anita

altho I origionally had Reiters diagnosed, it soon turned into Inflamatory arthritis, im HLA B27Pos, so predisposed to Reiters...think when we have these conditions, we all go under the Spondy Umbrella....one of my rhuatologists beleives im R.A. also, yet another one says NO! bloods are good at mo, but I could be seroneg R.A., Also had DDD(disc degeneration disease) and Cervical spondy, so all in all....fallling apart!

Glad your happier, and get the corrects Meds very soon

Love Jill x
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Date: 12.03.2009
From: Anita

Subject: Re: seronegative spondyloarthropathy (psoriatic arthritis)

you poor thing, nightmare. I looked at my blood results at work today, CRP and ESR both normal as always, in fact my bloods are perfect. The CCP has gone off to shefield as my hospital doesn't do that test, so will be interesting to see if that's normal, not sure where the HLA test has gone to, i didn't notice on computer!
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Date: 30.05.2009
From: michelle Isle of wight

Subject: Re: seronegative spondyloarthropathy (psoriatic arthritis)

I was diagnoised with sero negative (RA) a few weeks back after being told it was osteo, as I'm only 48 my x rays of hands wrist and feet are that of a 70 plus lady,according to my surgeon he was amazed at the damage to my joints, basically my joints including my toes and feet are becoming badly deformed and very very painful that along with SMA in my other arm and neck along with spondelothesis in my back makes my life pretty hard at times
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Date: 31.05.2009
From: Jill

Subject: Re: seronegative spondyloarthropathy (psoriatic arthritis)

Michelle I.O.W

So sorry to hear your in a terrible way, if any consolation, I am also, we all vary I know, I need another spine op, recently had another spinal probe(cocktail of drugs into the discs) so far so good, but already had one spine op, but the disc above the operation site has almost disappeared, therefore I need another scaffolding structure type Op...trying to put tht off until im desperate, will c how the months go.... I have synovitis in my feet and hands, dreadful, ive had arthritis probs since I was 23ish, amd misdiagnosed in 87, im now 49, and Im sick of the pain, even tho im on DMARDS....what Meds are u taking?

take care
Jillx
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Date: 10.12.2009
From: lorraine silver

Subject: Re: seronegative spondyloarthropathy

I was diagnosed with this condition 1.5 years ago but have had it for a long time. sulphasalazine doesn't help, had lumbar spinal fusion which has not worked. Consultant says she can't offer me anything further like anti tnf. would be interested to hear from anyone that has this condition - it is also called undifferentiated spondyloarthropathy - USpa for short.
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Date: 10.12.2009
From: jill

Subject: Re: seronegative spondyloarthropathy (psoriatic arthritis)

Welcome Lorraine, do u get a lot probs from other joints too? or mianly your back... u say that your spine fusion didnt work, does that mean U still have pain , and th4e same amount of pain? also how comes U needed that op? due to disc loss?dont undertstand Y consultant wont offer u anti TNFs..... akk i know about the spondy is I have Inflamatory arthritis, Reiters disease and comes uner the Umbrella of the Sponyloarthropathy.... hope your coping at mo.,.... take care Jill
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