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Date: 12.11.2013
From: rhona

Subject: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls,

I decided to start a new thread as I was having problems getting to the bottom of the old one and it was too long to start scrolling from the top.

I hope you got your cooker sorted Marlene, it is so inconvenient when you can't get a wash on.

Today was hospital day for my infusion again, I do hope it continues to work. I was sitting so fed up the other night with all the rain and dampness, that I decided to look at cruises online, and then ended up booking one, I gave it great consideration then thought, to heck with it just book, so we go on Friday. It is a Canaries cruise. I think I got thinking about life and thought to myself while I can move then make the most of it.

I hope you are all doing as well as can be expected.

Take care all xxx
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Date: 12.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona I didn't notice you had started a new thread and have posted a long message on the old one LOL.
Rhona, good for you a cruise sounds just great. You are right grab it with both hands why not?
I hope you enjoy. Have you done a cruise before?
They are going to give me a new washing machine to expensive to repair but I haven't heard anything yet so I suppose I might have a fight on my hands with the insurers. (I hope not).
Take care xx
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Date: 12.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thought we were going to get to 1000 posts..:)

A cruise sounds a great idea as does a new washing machine! I bought a new jumper - a cheap treat!

Willis and Emm, hope you catch up with us here.

I have been feeling so tired and ill these last couple of weeks (and some). I could barely get off the sofa today. Roll on next week and my appointment with the rheumy nurse. I'd forgotten how awful the fatigue can be. I've also had tingling and numbness in my head. I thought this was supposed to stop by now.
speak soon. xx
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Date: 13.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning again
when i click onto this site on my computer it now automatically goes to the last thread ;)so had a read then saw this one.
brr it's getting cold isn't it.
bsk i still sometimes get up and think oh why am i feeling like this, then remember the arthritis! the fatigue is just maddening but when you're in pain too it's yeuk. i hope the nurse can help you next week.
A cruise Rhona, good for you. i've been thinking about breaks and holidays more now that i've stopped working full time, think husband and i should start living a bit because its been non stop full time and some for the past 14 years with i think 2-3 holidays overall so maybe we should do more things for us now.
Marlene was it you that mentioned a fire - we have one of those in the house - been here 17 years and never used it!! but, i am going to get a company out to quote a service etc on it so i can be used this year as last years heating bills were just cry-able.
So today i've an appt at 11am with an NVQ student then bloods done then home to the warm and TV.
it's the last poirot on tv tonight so will be watching that with a wee tear i dont' doubt - sad I know but i do love it.
you all keep warm and i hope you have as good a day as possible xxxx
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Date: 13.11.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good Morning Girls,

I don't know why my laptop isn't allowing me to go to the bottom of posts anymore bsk, so there goes our record lol. I'm sorry to hear that you're not so good bsk, when do you think they will start you on something else? I have been so tired lately as well, my thyroid tablet was reduced so i'm not sure if that has anything to do with it. I was lucky to get my infusion yesterday as the nurse said my white cells are very low and if they had been one unit less then they wouldn't have done it. My feet are still hurting and I have a big cold sore at the side of my lip so I will be a pretty sight on the ship.

I have been a few cruises before Marlene but not round the Canaries, I just hope the winds are not too strong. I would love a log fire Marlene and I think it would be a healthier heat. Sitting on a winter's night beside a log fire would be idyllic. I do like a real fire and wish I had one.

You should try and get some breaks Willis. To be honest, I am frightened that this drug is going to stop working and I want to try and do what I can while I can. I find a cruise is easier as everything is together.

I hope you enjoyed the cinema Emm. I want to go and see it too.

Take care everyone. xx
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Date: 13.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Bsk you really need some new meds and I am so wanting you to get sorted soon. This is just too long for you and I feel for you. It is awful being so tired all the time. I know how it gets me down when I am in pain all the time. Hugs

Rhona I have never considered a cruise and what you say makes sense everything in one place. I hope you have a good rest and get waited on as much as you can lol.

My son has just had two cream log fires installed in his farmhouse and when we walked in it was just such a lovely welcome. The lounge was so warm and the one in kitchen was just great so homely he has a very large kitchen come diner come sofa area. He is hopeful this will reduce his expensive oil bill.
I just like the idea of snuggling up on the sofa and watching the flames.

Emm I hope you enjoy the film I thought it was very funny and very sad in places.

Take care all xx
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Date: 14.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I can't cope with two threads!

I wish I had an open fire Marlene. Central heating is great but it doesn't provide the same comfort levels. Willis, you really should get yours going!

Rhona, I think you have the right attitude, live for today. As you say, I don't know what the future holds so am trying to do as much as I can. Not always easy I know.

Emm, hope you are doing ok today.
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Date: 14.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
glad you got your infusion rhona and that it helps a bit.
guy who called about sweeping chimney says i should get a stove place out to look at fire as that and chimney prob need realigned before we can use it! so have to find someone now.
it is really cold out today so will be wrapping up warm for my xmas shopping with daughter today.
better go or we'll loose time
hope you all have a restful pain free as possible day
xx
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Date: 15.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, I have found you, so are we posting about things in general here now?

Rhona I had typed posts and lost them like you, and then my poor fingers are too sore to type again, think it happened 3 times in the past.
Going to an emergency apptmt today, my knees are so sore I had no sleep, do any of you feel aweful asking for a GP apptmt on the day, gosh the receptionist made me feel so guilty, I am questioning myself about it. She made it clear I would not get an injection today and may have to wait 6 weeks. This is the new GP I changed to! If I get no help from them I will have to ring my Rheumatolagist secretary and try to get pushed in. I hate having to do that.
I wish there was special clinics for us were we could go for quick treatment.
I get frightened I may fall down the stairs when I am this bad.
I will report back later!!!

Rhona I have done a cruise, beautiful food and great night life. I did all the tours but found it tiring days out and nights out. We visited Venice on ours oh it is fantastic, so different, yes we went in a gondola, fantastic. I know you will have a super time.

Marlene my daughter has a log fire in Switzerland, it is lovely, but they have under floor heating, which is marvelous, and when they put it on I am absolutely roasted after half an hour. It looks lovely though, on a snowy night.

Willis I hope you had a good shopping day with your daughter and didn't get too tired.

Bsk, I hope your fatigue is a bit better, I am the same at present, struggling. I had no sleep last night due to knee pain.
I am out in sympathy with you, take care.

That's it for now, sorry to be grumbling again,
Have a nice day, it is nice again here in Durham. X
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Date: 15.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
going into ex work today to help for a while as they are not sure how to do some things!!! nice to feel needed though lol
shopping was good yesterday - we had lunch first then 2 hours shopping - that was enough and got a few things - presents for people i hadn't remembered! oops
daughter got a nice cosy parka type quilty coat thing (not sure how to describe it) she is off to iceland for a week at end of november to see the 'lights' wont' even attempt to spell the correct name, so we made sure she had lots of nice warm jumpers etc to take.
so jealous but think the cold here is enough to cope with without inviting more :)
Emm when you see GP can you not explain that you can't wait 6 weeks for an injection and that you changed to that surgery as it was so highly recommended as being so helpful etc - it may work!
Doctors Receptionist have such a bad reputation and it's no wonder - ours is no better i promise you
I hope you get some help and quick x
hope you all have a good day xxx
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Date: 15.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

OOOOO ladies, I saw a lovely doctor I had never seen before and he gave me my injections, one in each knee as he said he could see how distressing it was for me. WOW!!!
He said when I need them I would not have to wait in the future either, due to chronic RA.

Oh it was so refreshing not to have to fight for them, after all my specialist say's I can have 2 a year in any one joint.
It is my two knees and left shoulder that may require them.
At last an understanding GP. There are 5 in the practice too and two of them will do injections. At my old practice it was one doctor who is never there because she is on so many committees and lots of locums. That is no good to people like us with ongoing problems.
So ... Am resting the rest of the day and maybe tomorrow and hoping they work, they usually do.
Am hoping it will make my Edinburgh trip more do- able too.

Thanks for listening and for your support via the site, it's amazing isn't it we don't know each other but we appreciate the support of each other. X
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Date: 15.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's fantastic news Emm! Doesn't it make a difference when someone is really supportive. Hope the steroids kick in very soon and you can get some decent sleep.
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Date: 15.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thankyou bsk, it's 9.30 and they are still painful, but can see a small reduction in the swelling, good.
Going to have early night and hope for more improvement in the morning. X
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Date: 16.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies hope you are all ok for a good week-end.
I am waiting on new washing machine how exciting!!
When it is all fitted I will have to catch up on the washing excitement all over LOL.

What are you ladies up to this week-end?
Emm glad you can see some change in the swelling. The film was good wasn't it every emotion you
can think of. Very well told although very very sad what went on.

On a lighter note enjoy your day xx
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Date: 16.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm glad to hear the news of a good doctor, hope it's working more this morning for you

washing marlene - yes i've got plenty of that to catch up on too.

off to get some breakfast as not long up out of bed
hope you all have a good weekend x
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Date: 16.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well 4o'clock still waiting on washing machine. Won't be catching up with washing today it is such a shame LOL. Tomorrow will do, when I do the washing I will have to get the ironing board out. Not something I enjoy I actually hate ironing with a passion.
I shall be snuggling up on the sofa soon for the evening.

Take care all xx
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Date: 17.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Marlene, what a shame about the washer, it is not nice waiting in all day for things that don't arrive. Hopefully you will be up and running soon.
Thanks for all your good wishes regarding my knees, they are a bit better again today ( sunday) but got glowing steroid cheeks today. Still I suppose I look healthy!
Been out to lunch today. I hope you have all had a restfull Sunday and are doing OK. X
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Date: 17.11.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope you got your machine sorted out, Marlene. Glorious day in London yesterday and the city looked beautiful. Today a bit meh!
Seeing my nurse tomorrow so wish me luck. I hope to leave clutching a prescription for something in my grubby paws.

How are you Rhona? You've been a bit quiet for a couple of days or are you cruising on the Med already?

Emm & Willis, hope you had a good weekend.

xx
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Date: 18.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning,

It is very warm here today, got up to rain but am surprised how mild it is after listening to the weather forecast last night.

I wish you luck, bsk, with the nurse. Loved your comment about the city looking beautiful, I love visits to London. Last time we were there we toured B. Palace, it is beautiful, I loved the ballroom and sat there looking around mesmerised. Then afterwards tea in the garden and it was a lovely day too.

Hope Marlene has the new washer loaded up, but spread the ironing out over a few days or look for volunteers!

Willis, hope you are good today.

Rhona, how are you, hope all is well with you. X
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Date: 18.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good Luck Bsk. Let us know how you get on!!!
Tested the washing machine on Saturday evening it is so quiet. It plays a lovely melody when it has finished that will soon become very annoying I am sure lol.
Emm I am doing my ironing either this evening or tomorrow not sure yet haha.
I believe Rhona started her cruise on Friday I hope she is having a fantastic time.
Willis hope all is well with you.
Drizzly rain all day here but I have to say it isn't cold. Took the dog for a walk with hubby in the fields behind the house lucky the farmer is happy for us to use. The dog is so happy running free!!!


Take care all xx
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Date: 18.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi All,

Am starting on Sulphasalazine tomorrow if my bloods are ok. However, I found out today I have been anaemic for the past few weeks, no wonder I am tired. I'm not sure what is causing it but will have a chat with my GP when I see her on Thursday. I can see now I am quite pale and did wonder why.

Wish me luck with my new meds!

xx
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Date: 18.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, wishing you lots and lots of luck with your new drug and hope your anaemia is addressed quickly.

Funny I am all flushed with steroids and you are wishy washy with aneamia ( I am like that pre steroid! ).
Actually it has died down a bit today.

Marlene, it has turned sunnier and colder as the day went on!
Probably frost tomorrow,

Happy Ironing!! Forgot about Rhona's cruise, hope she has a wonderful time.

Regards for now. X
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Date: 18.11.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Are they helping Emm?
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Date: 18.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yes, my knees feel 'oiled' and less painful, thanks!
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Date: 18.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good. Long may it last.
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Date: 19.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
bsk fingers crossed for the new meds :)
Emm, glad you've got some relief at last, long may it continue
lucky rhona, i'm sure she is having a ball or at least a nice time :)
Marlene a singing washing machine how lovely :) i have all open fields beside me and our little dog loves it too getting to run around. in summer he hides in all the corn and you see him jumping up to look over to see you or he hides from us - daft thing he is. Don't over do it with the ironing, creased clothes are the new fashion accessory these days - or so i keep telling myself :)
was in work a full day yesterday - showing the new owner the accounts and how to do them :) bit complicated at times but he's sharp as a pin that one so he'll have no problems with it.
a dog walk, trip to shops for food for tea and that's about it for me today.
hope you all have a good day
xx
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Date: 19.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, so happy you have some meds at long last. Lets hope they do the job very soon you have been in so much pain and feeling unwell you deserve some relief. It is so cold BSK I finished putting my bulbs out today and couldn't get back in fast enough.

Emm so glad the steroids are helping you!!! Your break should be a good one if you are in less pain.

Willis I though you had retired LOL. I am glad you are resting today its not good to overdo things and pay later. Sometimes I should take my own advice.
It is getting dark now and it is only 20 past 4 how miserable!!!
It is really cold out there now well winter is right upon us now.

Take care and all have a nice evening.
XXXXXXX
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Date: 19.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene we woke up to a quite severe frost, then a beautiful day and now it is dusk, the cold is coming back. But it is winter.

Today I had a letter to renew my driving licence, a card type and it is 10 years old now, hence renewal every 10 years.
I did not know this till now. It cost 20 . My gripe is I have been driving years and previously had just a paper one. I took a medical and asked to be re- assessed to drive when I realised I was struggling with the handbrake and gear stick.
I went to a centre at a Newcastle hospital and tried various car adaptations and drove an automatic for the first time! It was amazing, I drove all around central Newcastle with a chap monitoring me and was told I was fine to drive an auto only and have a handbrake adaptation which is only a handle sort of thing. So was given a written report to send to DVLA and got a change of licence which shows the classes of vehicle I can drive ( not manual) That was my first plastic licence.
My gripe is , people who just have a paper one do not have to renew till they are 70 I believe, Why a two tier system, some have to pay extra and some don't!

Have a good evening everyone. X
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Date: 19.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I had to renew mine recently Emm, everyone does, it's just a lot of people don't know they have to and get caught out.

Had a phone call from my new rheumy today, who explained in great details about my MRI results and what she thought was going on with the neurological symptoms. She also told me to start the sulpha very slowly (you have to increase gradually.) She's fantastic, very thorough and clear and put my mind at rest. I can't have any anti tnfs as they don't really know what caused the symptoms and she says she can't take the risk of giving me more. I like her a lot, which is a bonus. My nurse is great too, I have such good care from my hospital.

It's cold here too. (Smugly, I put my bulbs in before the cold snap!) I need a winter coat but can't find one I like (and can afford lol!) I want a warm down one but they are expensive and also make me look very fat, not a good look! So I have put it on hold, maybe til the sales. I don't mind if it's not fabulous if I haven't paid a fortune.

Willis, when are you retiring exactly? lol! Glad you are handing over to someone who is bright. Must make it easier for you.

Wrap up warm when you go out this week everyone. xx
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Date: 20.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
brr its cold - sad face - and raining! dog will not be happy if he doesn't get out today! i'll have to see how it goes.
bsk, glad they are giving you good help it makes a big difference
emm - i think the licenses were changed years ago and that anyone passing test at that time got the plastic ones but yes the 10 year bit - i wondered if it's something to do with the photo you put on it - we all know how much we resemble our passport photos after 10 years lol
bit of a cheek charging to get you license eh
i've still got my paper on - it is dog eared and falling apart but - still got the details needed if i should ever get stopped by police or need it for ID purposes.
i'm off to get a cup of tea, see if that can't keep me warm
hope you all have a good day
x
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Date: 20.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone, well just had a downpour of Hailstones battered the cottage and the dog was scared stiff bless her!! It is becoming windy and it is grey skies and very cold. My dog will not be going out today. She will be fed up like your dog Willis.

Bsk so glad you have a great network at the hospital it really does help. Hope all goes well!!
Bsk my chunky jacket makes me look fatter not a good look but I don't let it bother me hey ho I just need to be warm. I purchased mine in Matalan last year it wasn't too expensive. Happy hunting for that warm coat.

Emm tell me what we don't have to pay for oh yes the air we breath don't let the Government know LOL.

Well as it is awful outside the ironing is definitely getting done. I have a lovely chicken stew in the slow cooker and the house smells lovely. More comfort food.

Take care and be careful outside wrap up warm.xx
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Date: 20.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hail here this morning as well. It's vile outside and I need to go and get some shopping etc. Cat is curled up on the sofa, wish I could do the same!
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Date: 20.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good afternoon ladies, quite a nice day here, had some washing out, cold of course but calm and sun.
I have been productive today, cleaned big bay window and steamed kitchen floor, amongst general housework, so am proud of myself.
It is the first day in ages I have stayed in and devoted myself to chores, will be out and about tomorrow though.
I was only moaning about plastic as if I had never changed to plastic, I would have not had to pay anything till age 70, like my sister for example, not my fault I got RA and had to be re- assesed. But yes the government don't miss a chance to make us pay!
Debenhams have good choice of coats and have had loads of reductions lately. I just can't go and say I like something any more I have to be sure I can manage zips or buttons, I even like the pockets set in a certain way and can't manage anything too heavy. Not an easy task!
Bsk, I hope your new meds agree and you get good results.
I too cannot have bio's, wish I could to see if the difference is dramatic.
You are lucky to get MRI, I never get offered one and asked once to be told you have RA so we know what is going on.
It won't be that long when your bulbs pop up. Once Christmas is over!
Willis keep warm,
Happy ironing Marlene, you will feel good when it is done. You always make your home come to life for us, reading of the smells of cooking and the mental picture of your garden. Lovely.
Is Rhona away two weeks? I hope she is well and enjoying it.
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Date: 20.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Just thought I would let you know I have put a big flag out LOL ironing all done as well as bed linen change and upstairs all polished and hoovered. Like you Emm proud of myself. Bet I will suffer tomorrow. I am out with my daughter tomorrow shopping and lunch out.

It was my own fault having to put bulbs out yesterday I did half weeks ago and just kept walking past them in the shed. I find walking past things easy at times. Oh well all done now.

The weather has been awful all day so glad I was able to stay home. Dog sulking a bit she will have to have a treat later. I just couldn't face staking her out in the cold. My daughter might walk her tomorrow.

Rhona should be home Friday I think she will get a shock with the temperature here!!!! I hope she is enjoying every second of the cruise.

Oh well time to eat that stew.
Have a lovely evening. xx
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Date: 20.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Marlene, the rain arrived here about 4pm with a vengence, still daylight hours were OK, washing almost dried.
Seems we have both had a good day cleaning! sitting on the sofa this evening and my shoulder is hurting so took a Tramadol, due to window cleaning probably.
You have achieved a lot today! I hope you are fine for your treat day tomorrow. Well done.
Will be nice to hear about Rhona's cruise, I like to hear about where she lives. it sounds a lovely area.
Hope you all enjoyed the stew. X
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Date: 22.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
well hasnt' the weather gotten cold and all i can think is its going to get colder :(
hibernation time now - only going outside when i need to.
nothing much to report just hope you all have a good day and good weekend.
xx
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Date: 22.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, had a good day shopping yesterday and actually did some xmas shopping. It was cold out I have to say and my feet were really hurting when I got home and they have been throbbing all day today. The price we pay for a day out.
We had a lovely pub lunch with a coffee.

It is sunny with a bit of a breeze very cold albeit the washing did dry almost just an airing needed.

Emm the stew was so good even if I do say myself. Today I am cooking a roast of pork my hubby will be home about 6-30 after a 12 hour shift. So I am sure he will appreciate a good old roast dinner.
He is outside most of the time so he will be cold He does have very warm clothing for the job so that helps.
I am waiting to hear all about Rhona's trip. I agree it sounds just lovely when Rhona talks about where she lives.

Well take care all hope you are ok bsk. xxx
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Date: 24.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well you all must be very busy this week-end. No post's at all.
Rhona are you home?
I hope you are all ok this miserable week-end so grey!!!!

I am suffering today my joints are so sore not many that are not. I have to say I have been very busy catching up on things in the house. Although I think it is the weather more.
I have a quiet day so time for putting my feet up with a hot water bottle I think.

Take care all xxxx
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Date: 24.11.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning marlene
well i've not been too busy but have been feeling poorly. had stomach ache all yesterday and pm. no idea why just sore ;(
then had cramp in feet all night - still there this morning so feeling bit miserable.
just trying some cornflakes now to see if stomach can handle it.
ooh this weather just makes the miseries worse eh :) roll on summer lol
have a good day with hot water bottle, think i'll do the same. x
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Date: 24.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Willis, so much for the hot water bottle. I had a visit from my eldest son wife and my granddaughter but do you know it was a much better tonic. I will cosy up this evening after dinner.
I hope you are feeling better as the day has gone on. Take care xx
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Date: 24.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, today has been grey here with a little more brightness in the afternoon, but it is quite mild.

Afraid I have to join in the moaning about pains. Ankle particularly, but everywhere else too.

Have been out with family today and was out most of yesterday too. But the nights are sooo long it pays to get out some time through the day.
Sorry to hear of your pains Marlene and Willis. It is relentless!
We are all waiting to see how Rhona has been on her cruise!
Hope her pains have not been too bad and she has enjoyed it.

A week on Tuesday and I am off to Edinburgh, hope the weather keeps mild! I am looking forward to the train journey as much as anything, it's great in 1st class.

Had a lovely beef casserole with broccoli and spinach on the side, was yummy. Lemon mousse for desert!

Washing up then into dressing gown and watch Strictly and X factor ( sad) no of course not!
Chiropody tomorrow. Feet feel better after that!

Have a lovely evening And a painfree one as much as possible x
reply | back to forum

Date: 25.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well the pain is awful but I am keeping chirpy (best I can).
Hubby putting up wall paper in spare bedroom today. I will be pasting paper.
I had a curry yesterday it was very good it made a lovely change from the traditional Sunday roast.

Emm that has come around fast I hope you have a fab time in Edinburgh!!!!

I am going to a Christmas Fare on Thursday and we have decided we will all go including hubby and have dinner out so when I get home I can put my feet up. I am looking forward to it hoping the rain keeps off as some of the stalls are outside.

Have a good day all xx
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Date: 26.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

BSK are you ok I noticed you haven't posted for a while??????
reply | back to forum

Date: 26.11.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, Marlene,

I've been away for a few days. Went to visit my sister and family. I have a lot more energy already with the iron supplements. No idea if they work so quickly but can see an improvement but maybe it's placebo effect.

Saying that, I'm off to bed. Will post again tomorrow.
xx
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Date: 26.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good to hear you are feeling more energetic Bsk.
It is good to get away so nice to visit family. I think the iron does work very quickly my brother had to take iron and he said he felt better within days.
I hope you sleep well.
talk later xx
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Date: 27.11.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good Morning Girls,

I just got home last night and was too tired to post, although I had a quick read at your posts to get up to date with your news. We had a lovely time on the cruise although I ate too much and have put on a few pounds that I could have done without. At times the sea was a bit choppy and I had to take anti-sickness tablets on one of the days when the sea was exceptionally rough, but I soon found my sea legs lol. The entertainment on board was excellent, they put on some good shows in the theatre that we went to after dinner. There was a choice of waiter service or a buffet but it was nice to get it served to us. We went on a trip to a souk in Morocco and also a craft market, it was quite funny when we got there, one of the craftsmen, once realising that we were Scottish, asked if we had any whisky with us and he would give us something from his shop in exchange, I didn't think Moslems were allowed alcohol but seemingly some of them do drink and it is difficult to get there and also very expensive. I was wishing that I had some for him as he looked so disappointed.
After the cruise finished we went to a hotel in the north of Tenerife for 4 days, it was a beautiful spa hotel and the staff were so attentive. The area was far too hilly for me though and I foolishly walked downhill to the town on Monday and ended up in agony with my feet.

Bsk, I hope the sulphasalazine works for you, I found it very effective when I was prescribed it years ago. It can take your body time to get used to it though.

Marlene, try not to overdo it, if you are helping with the papering then take plenty breaks to rest your hands and wrists.

Emm, Try and rest your ankle as much as possible before your trip to Edinburgh, do you use a support for them?

Willis, I hope your stomach is better today, poor you, arthritis is enough without anything else.

Take care everyone. xxx
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Date: 27.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, welcome home. Your cruise sounds just lovely. I would of opted for table service and why not? Your trip to the market sounded great. Well maybe he shouldn't drink but we all have our failings LOL. Shame you didn't have any Whiskey you could of had a good old barter.
I have never been to Tenerife and judging by what you say about it being hilly I don't think I will be.
Rhona I am so pleased you enjoyed the holiday and didn't suffer too much pain. I am looking to book my next winter holiday to Fuerteventura and that way I will have too go or lose my deposit.
The wallpapering is all finished and my hubby made a very good job of it. I am lucky I have a hubby that is very good with DIY and my two sons and daughter are the same. I used to decorate all the time but I find it hard now with my hands. So I just help where I can.
Well take care Rhona and wrap up warm the weather has been so cold here. XXXXX
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Date: 27.11.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Marlene, It wasn't as bad as I expected, I expected it to be freezing when we got off the plane, my daughter said last week was much colder. I don't like this damp weather though.

I'm not sure if the south of Tenerife would be flatter, but I don't think I will be going back to the place we were, it was called Puerto de la Cruz. It didn't matter too much as I was happy to enjoy the hotel facilities. They had a beautiful lake in the gardens with two black swans. The gardens were so tranquil and the oriental spas were gorgeous.

That's good that the papering is all finished, try and rest a bit now before the Christmas madness. xx
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Date: 27.11.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good evening ladies,
Rhona welcome home, I did laugh reading about the whisky, you seem to have had a lovely time. The entertainment is very good on the ships and lots of variety. I found Tenerife hilly when I have been too, but I do like it there regardless.
Marlene I have never been to Fuerteventura, but have been to Lanzerote, is it flatter there? I love the constant breeze that seems to be in the Caneries.
Nice to read your posts again, have a lovely evening all. X
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Date: 28.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, sorry I haven't been posting. Still lacking in energy it seems. Rhona, good to hear you had a lovely holiday. I hear it's a bit cold in Scotland today so not nice to come back too! I'm away this weekend too so probably won't be on here but hope you all have a good one.

xx
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Date: 28.11.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, went to Christmas Fair today I am absolutely shattered. I did buy some presents for xmas so glad about that. Not much left to
buy!!
We had dinner out so I am sofa surfing now. Lots of aches but worth it.
Have a good evening and take care xx
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Date: 28.11.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It was actually a lovely day here bsk, although it has turned cold tonight. Are you coming to Glasgow for Christmas? Have a good weekend.

Shopping at this time of year is exhausting Marlene. I went into Boots this afternoon and couldn't believe how busy it was, everyone in buying perfume sets, etc and parking was a nightmare, what is it going to be like in a couple of weeks if it is this busy now.

How are you Emm? I hope your ankle is a bit better. Is it next week you are in Edinburgh? It will be lovely there at this time of year. We have the outdoor ice skating at George Square in Glasgow, I don't think I will manage it this year lol.

Sleep well everyone and keep warm. xx
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Date: 28.11.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I went to a Christmas market at the weekend, which was great. Got quite a few presents.

No, I'm staying in London for Xmas Rhona. My family are all coming down so maybe Scotland next year.

xx
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Date: 01.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, I hope you all have had a good week-end.
Emm, you must be looking forward to your break. I hope you have a fab time. xx

Rhona how are you keeping? Are your girls coming to you for Christmas?
I will be waited on this year by my youngest son's wife (lovely cook). We are eating at 7 o'clock in the evening as my husband and daughter are both working Christmas day. Late I know but we will all help fill her dish washer.

Willis are you doing ok?
Bsk hope you had a good week-end.

Just going to get a hot water bottle and curl up on the sofa. Take care and keep warm xxx
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Date: 01.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, I've not felt too good for a few days now, throat bit funny and no energy and feel quite unwell. I don't usually get colds etc so hope it passes soon.

I made some homemade soup this afternoon, so that might help. My daughter said she could smell it when she came up the path. Just what we need in this cold weather.

Yes, they will be here for Christmas Marlene, my daughter is coming back from Spain on the 23rd.

Take care and stay warm. xx
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Date: 01.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That will be just lovely your girls at home for Christmas.
Home made soup with crusty bread just what the Dr ordered lol.
Sorry you haven't felt well. Myself and hubby have had a cold and we also felt unwell. Time of the year I think!!!

Take care Rhona and rest up big hug xxx
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Date: 01.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Crusty bread and butter is my weakness Marlene, I just love it. That is lovely that your daughter-in-law is making the xmas dinner, you deserve to be waited on, what a difference that will make. Will you have the traditional turkey?
Nite nite xx
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Date: 02.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

We are having traditional Christmas Turkey and the Christmas Pud just lovely. Just a few more pounds I will be putting on.
I also love a Fresh Tiger loaf toasted with plenty of butter very naughty.
I always said to my three when you get your own homes Christmas dinner is on you!!! Although I love doing dinner. I have only done Christmas twice since they all left home so I was working it all out that's seven years of being waited on not too bad. Two years running we did have Christmas Dinner in Hotels it was very nice maybe when the little ones are a bit older perhaps we may all do it again.
I just love the whole family being together. I am not sure if my eldest Son is going to be there he may be spending it in his gorgeous Farmhouse and I wouldn't blame him. It will be a sight with those log burners and Christmas tree.

Enough of my rambling take care and have a good day xx

Bsk Emm Willis I hope you are all ok xx

Lynn how are you not heard from you in a long time? x
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Date: 02.12.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, I am fine thanks, apart from the cat biting me on the wrist when I wouldn't give her any of my tuna sandwich. I've washed it out very well and put TCP on it but I've got to train her to be less bitey.

I'm going to my sister's for Christmas. There will be 10 of us. Glad I am not doing the cooking, though I will help out of course.

I had a lovely weekend with my friends but back into the routine today. I hope you are all well.
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Date: 02.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well that's gratitude for you!!! one should never bite the hand that feeds you LOL. I hope it is not too sore.
That will be fun at your sisters. I bet you will help out just like me. I couldn't just sit there and I think I know you enough that you will be the same.
Glad you had a lovely weekend. That's the trouble with breaks its all back to reality after.
Take care xx
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Date: 04.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
sorry not been about again. bit of a stressful weekend that gave me stomach ache again - at least i know where the stress ends up now :)
brr getting colder and more coming this weekend i believe.
i'm off to colchester with daughter today in the hunt for curtains for her wee house. if nothing else it will be nice to spend time together.
hope you are all ok and have a great day
xxxxxx
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Date: 04.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Willis you really must try to stay stress free (haha) easier said than done.

I hope you have a lovely day with your daughter I love my days out with my daughter. We have for years made time for girlie days out. Sometimes in the summer we just go to a local garden centre for a coffee and a chat. Enjoy!!
Take care xx
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Date: 05.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone!

It's windy out there this morning. I was going to go to the gym (yes, new thing I've started) but came home as am a bit hungover and I shouldn't drive and my knee hurts too much to walk. The 'gym' is a physio run thing and is under strict supervision. I have to start with something like 2 mins of each thing, so very low key to begin with. I need to get some weight off so hoping it will help. Not if I carry on like this though lol!

Hope you are all well.
xx
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Date: 05.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It was blowing a gale here earlier bsk, although it seems to have settled a bit now. My ornamental fountain was blown over, it didn't work anyway.

I'm still not feeling good. I don't usually get colds and sore throats so I am guessing it is because of the infusions lowering my immune system. I should have known it was too good to last.

That's great that you are starting at the gym, especially when it is under supervision but probably wise giving it a miss if your knee is hurting.

I hope you are well Marlene. You too Emm & Willis and Lynn.

Take care xx
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Date: 05.12.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you are ill, Rhona. I hope you feel better soon. The drugs certainly lower our immune systems. Because I haven't really been on anything since July, I've managed to avoid getting anything but am sure that will change now with the Sulpha. It's vile out anyway, so stay warm, inside. I'm going to get a hottie and lie on the sofa and read my book.

xx
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Date: 05.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, what a day the wind has been terrible here as well.
Popped out for a while it took my breath away and it is so cold as well.
Rhona we have had colds as well. I spoke to my daughter-in-law today and the little ones have colds. It must be the time of the year. I hope you feel better soon.

BSK I am doing just what you are on the sofa with a hot water bottle. To be honest I have been doing a lot of that. I am finding the pain a bit difficult to deal with lately it is getting me down a bit. I am trying my best to ignore it and getting on with stuff. No good moaning it wont change a thing (just makes me feel better).

Take care every one and try to stay home in this rotten weather. xxxx
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Date: 06.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning, sorry to hear you're all feeling poorly, this cold weather just makes it feel worse too.
i was nailing down felt on the shed yesterday as the wind was taking it right off. only a small shed and easy to get to thankfully.
then had to go into town for xmas bits! oh that wind nearly had me off my feet.
was out watching Snow White Panto last night. 8 yr old god daughter was in - all kids 7-17yr olds - it was fabulous they all did so well. Obviously did hubby the world of good as he slept in for work this morning - well, i say slept in but only because he was up at a reasonable hour instead of 5am which is his usual these days - doesn't start work until 9am !! the mans mad. :)
well, i have presents to wrap so i'll go for now and check in this afternoon to see how you're all doing. Try have a nice relaxing, warm cosy day everyone
lots of hugs
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Date: 08.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, it is a beautiful sunny day and have my washing blowing on the line.
I hope you are all enjoying your week-end. I finished my prezzie shopping yesterday. I have to get them all wrapped now.
I looked after the little ones and they were just a lift. The little girl sang all her Christmas songs she had been taught at nursery with the most serious face I have ever seen. She also has a key for Santa as they don't have a chimney bless.
Willis the Panto's with the little ones in are the best!!!

Well I am off to tackle the wrapping. xxxx
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Date: 08.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies.

I am home from Edinburgh, where we had to stay an extra night, curtesy of the bad weather and train cancellations! We spent Thursday afternoon sitting on a train going nowhere for 3 hours as staff announcements said you will be updated in 2 hours, It got to 4 o'clock and we thought we had better go and book in a hotel an extra night. The mercure, where we had previously stayed had no rooms left, so reception rang round and managed to get us in The Scotsman, it cost us 87.50 an expense we could have done without! However we managed to get on the 2.00 the next day after trying an earlier one but we could not get a seat!
Up until then we had a lovely time, my ankle was a bit of a pain, but here I am, home.

The Scotsman was rather posh and we got upgraded rooms that normally cost 200 plus, so we experienced a little luxury.

Sorry you are not so well girls, here's hoping you pick up for Christmas.

I am sitting in the dark typing this, it is 4.05, so going to get a cuppa and then start the tea.

Love Emm x
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Date: 08.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening everyone!
I hope you made the most of your upgrade Emm! Glad to hear you got a boost from the children Marlene, you too Willis. Rhona, how are you?

I've been celebrating my birthday today with a very nice lunch at a local pub . I did enjoy it but am now snivelling at home (I think I've got a cold) with a hot chocolate and the telly on.

xx
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Date: 08.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

HAPPY BIRTHDAY, bsk.

Hope your cold is gone for Christmas!!!!

Emm x
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Date: 08.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Emm!
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Date: 09.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

good morning, happy belated birthday bsk glad you had a good day but hmm the cold - hope it clears up soon and as Emm says that you are fine for xmas
Emm sounds like you had a lovely time. You got home at least and that is the main thing. Is the Scotsman hotel the one on the Bridges? hmm nice room i'll bet :)
well i'm off to help out at work for a few hours today - finance stuff needing sorted! at least i have my uses.
hope you all have a good day
xx
reply | back to forum

Date: 09.12.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Willis. I meant to comment on you hammering down roof felt in a storm. Admirable but no repercussions I hope?

Marlene & Rhona, how are you both?
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Date: 10.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning Ladies, Happy Birthday BSK late I know but glad you had a lovely day. How's that cold?
Hubby and I got over ours and now mum has it curse of the winter!!!
I know Willis hammering the felt back I could picture the scene. Well just because we are of the gentle sex (LOL) doesn't mean we don't have a go at the men's work. Sometimes it is quicker to do it our selves hehe.
Don't over do things Willis.
Glad you had a good break Emm. What a pain in the backside being held up.
Rhona are you ok???

Take care everyone I must go I am really busy today lots to fit in!!!!! xxxxx
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Date: 11.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls, I haven't been too good, my cold has almost cleared up but my feet and ankles are agony, I can barely manage to put my weight on them. I am worried that the infusions are going to stop working. It is a struggle to walk at the moment.

Happy belated birthday bsk. Pub lunches are often the best lunches. Keep warm and plenty hot drinks.

That was a shame that you were delayed Emm but glad you had a good time.

You are all organised Marlene! I haven't even written my cards yet, it is an effort to do it now as it hurts and my writing has deteriorated since having this horrible disease.

Stay warm everyone. xx
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Date: 11.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone,

Thanks for the birthday wishes. It was one of my better ones!

Sorry to hear you are in pain Rhona but it could just be because you are ill that you are having a flare, not necessarily infusion fail. Do you have a walking stick or two at home to help you about?

Marlene, don't overdo things will you? I know what you are like lol! I've finished my shopping (most of it done online I have to admit.) Now waiting for it to arrive.

Thick fog in London today. Cold but scenic!
Take care. xx
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Date: 11.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona, sorry to hear you are struggling at present.
Snap with the ankle problems, it is very debilitating as far as walking about goes.
I have not booked to go to Switzerland this year because of this problem, am at specialist next week, am hoping for a miracle I think as I keep telling my daughter I will see what happens at hospital and then make up my mind definitely
You didn't have to come out in sympathy you know !!!!
Anyway, wishing you well. Big hugs. X
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Date: 12.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
brr the frost outside and fog!!! oh dear it is december but...
off to office sit today as everyone out to see a client!
but we woke up this morning to boiler having leaked all over kitchen, the shower wouldn't work last night! they come in threes! hope the leaky kitchen tap is the first and that there is nothing else to come!
sorry to hear you are feeling so poorly Rhona, i do hope you are feeling better today or are at least managing to rest to see if it helps.
I hope you are all taking it easy with everything this time of year seems to dictate - everything a rush and stressful.
have to go now as 8am and time to gather stuff together for today.
have a good day
xxx
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Date: 12.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Willis, hi, we have had quite a nice day here, yesterday was very cold with a bit of fog but nothing like down south.
A lot warmer too.

I got up today and after usIng the bathroom the light would not go out! Strange, I pulled on the cord numerous time and it snapped! Then after a few more tugs it snapped again, so I had to take out the light bulb. Man coming tomorrow to fix it.
A few days ago the clock radio broke, so I am like you and hoping a third catastrophy DOESN'T happen.

Good luck with the boiler, it is too cold to be without it for long!

Hope you had a good day at work.x
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Date: 12.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Firstly hugs on the way Rhona!! Hope you feel a bit better soon.

Emm you may get a miracle it is Christmas!!!

Willis hope that boiler gets sorted soon. Don't work to hard!!!

Bsk glad you had a good birthday. I am resting have no choice I have so much pain don't know what to do with myself.

My poor father-in-law has had a heart attack and is in hospital. Fingers crossed he will be ok for Christmas.

Well take care all and make sure you all keep warm. xxxxxx
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Date: 12.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, just read your post and am sorry to hear of your father in laws health problem. I wish him well and as you say especially at Christmas.

I hope your painful experience is short lived and you get a bit relief soon. Sometimes no medications seem to work anymore!!

We all seem to be having a rough time, let's hope 2014 brings all of us improvements.

Hugs especially to you and Rhona. X
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Date: 12.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thank you so much for your hugs girls, they are much appreciated. I'm sorry to hear about your father-in-law Marlene, what a shame. Was he not in hospital a year ago or was it longer than that? I seem to remember you telling us about him, I hope he recovers soon and gets home for Christmas.

I was at the dentist this morning for a scale and polish, thank goodness their car park is beside it or I wouldn't have managed. I have rested all afternoon, not much choice at the moment. We got the xmas tree up tonight, it's a fibre optic one and looks quite pretty.

That was strange your light not going off Emm, hope you get it all sorted tomorrow.

Don't be working too hard Willis. Hope the boiler has been fixed.

Are you alright bsk? Your description of London being foggy and scenic brought pictures of Victorian times and street lanterns to mind, like on a Christmas card.

I'm going to bed shortly with my bottle (not alcohol) lol.

Sleep well everyone
xxx
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Date: 13.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm sorry, too, about your FiL Marlene. I hope he recovers soon.

I'm ok, Rhona, my hand is suffering a bit, painful and swollen but I am seeing my Rhuemy on Monday. I think she wants to put me on Rituximab but I don't want to take it, given my history of side effects. I hope it hasn't stopped working for you.

Hope you are ok Emm and Willis and everyone not overdoing things in the run-up to Christmas.

xx
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Date: 13.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, thanks for your thoughts so far so good so still hopeful he will be home for Christmas.
This time of the year is so busy for all of us and it doesn't help our pain. The cold and damp doesn't help either.
I am in a lot of pain still so is my hubby with his back so we are both sofa surfing.

Bsk I hope all goes well on Monday and you are given something you are happy with.

Rhona we have put up the tree and lights on the outside of the cottage it all looks very pretty. I love Christmas and always have a bit of a child really!!!!

Emm, lets hope we are all feeling a bit better real soon.

Take care all xxxxxx
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Date: 13.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene. I like my consultant so will give her a chance!
Sorry to hear you are both suffering so much.
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Date: 16.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning all

well i hope your weekend was tolerable if not enjoyable due to ailments and aches and pains and swelling and frustration and annoyance and and and and
even the thought of putting tree up exhausts me :)
not too bad a weekend for me this week. managed 4 hours shopping with hubby on Saturday and got new jacket and pair of hush puppies for xmas so was worth the trip :)
just got to force hubby to doctors now for referral for gallstones again and this cough he seems to have that won't go away but... he is male and the thought of docs appt is alien to him!
I hope you all have a good day
bsk i hope you get some relief
marlene hope you and husband are feeling better today and that you FiL is getting better

lots of hugs to you all xxxxx
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Date: 16.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Everyone, I hope you are all doing ok and not rushing mad round the shops (that was a joke) seriously though, don't be overdoing things.

How is your father-in-law Marlene?

Was it today that you were at the hospital Bsk?

My ankles are still giving me bother but I could be worse, the weather doesn't help.

That was worth the shopping trip, Willis, hope the boots are comfy!

How are you doing Emm?

Take care everyone. xxx
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Date: 16.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone,

Willis, I hope you can get your o/h to the doctor soon. What is it about men and not going to the doctor?

I had a disastrous appointment with the consultant today. She was unbelievably rude, dismissive and insulting, she even was raising her voice to me when I questioned some of the things she said. I ended up in tears and giving her a piece of my mind. When she asked what I would like her to do, I replied 'refer me to one of the other consultants.' I told her how appalling I thought her behaviour was and left.

I don't know what got into her as she has always been very nice before. There were two students present, so maybe that didn't help ,but she was questioning my diagnosis, and not in a nice way, and kind of implying that I should be feeling better because my blood results are ok. My old consultant always said the steroids mask any inflammation but she wouldn't agree with that. She then said my right wrist wasn't swollen but my left one was. I saw my nurse afterwards and she agreed that my right wrist was more swollen. She was then saying the pain in my right wrist was OA, not RA. She has no evidence for that assertion quite frankly. She then almost shouted at me about not taking 'toxic' drugs unnecessarily - which I found quite amazing seeing as I've always been extremely reluctant to take any of them and have dragged my heals on any decisions.

The upshot is that I am coming off all my drugs - my decision. I want to see what is going on without any meds. My nurse is supporting me with that decision and says I can see her if I get any swelling and pain and she will document it for me. It's her belief I won't be able to get off the drugs because the arthritis will become too active. She is going to get a referral for me for another consultant in the meantime. I'm through with this one.

It was really upsetting on lots of levels but I am turning it around into an opportunity to find out exactly what is going on with my body. I certainly don't want to take any risks with drugs I don't need so will be delighted if nothing flares up. Watch this space!

Sorry for my rant but it was pretty awful. Hope you all ok.
xx
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Date: 17.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Does she think you have been taking steroids for the fun of it bsk? She doesn't sound very professional behaving that way and upsetting you. Is she doubting that you have RA? It would be great if you didn't but I hope you are not coming off the drugs just to prove something to her, you know your own body better then anyone else. I don't suppose in the short term it will matter too much as long as you have something to hand if you need it.

I'm going to get my blood checked tomorrow, I haven't been taking the mtx for weeks now, perhaps that's why my feet are so sore, I decided myself to come off them for a while as my white cells have been low but like I said we know ourselves sometimes what's best.

Take care and sleep well, at least you won't be seeing her again. xx
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Date: 17.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Rhona, it's not that I'm trying to prove something to her but more that I want to see for myself what is going on. I thought she might be doubting that I had RA but she didn't listen to anything I said so it was impossible to have the discussion. I don't mind in the slightest someone questioning my diagnosis - I would be delighted not to have RA - but the way she was doing it was vile, as if I was taking these drugs for no reason. I'm not being treated like that.

I'm sure your feet are reacting to the lack of methotrexate. You made me laugh, actually, making your own decisions too. We are strong women and we do know our bodies well. Hope your blood results have improved tomorrow.

Thanks for your support, I don't know what I would do without this place! xx
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Date: 17.12.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

A codicil to my post: my nurse rang this morning and said my liver enzymes have gone up two weeks in a row and she would have stopped the sulphasalazine anyway. So another drug bites the dust.
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Date: 17.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, fellow sufferers, and frustrated patients.

I have waited until today to post as I have been to my 6 monthly RA apptmt with specialist.

I got an ankle and shoulder injection ,,,again! Discussed my ankle and knee problems and I said I think it may be time to consider knee replacement and surgery for my ankle, which I gather will be fusion. So he is making me a referall to a surgeon for a discussion.

He won't make any changes to my meds! He says I am in pain because of bone on bone ! I then pointed out I have been having new problems over the last two years i.e. Ankle and a finger. I pointed out the restrictions and my quality of life suffering because of it hence I have decided maybe surgery is all I have left to try!! I do find it scary though and I know I will need some persuasion to actually do it.

Rhona, I too have weeks I miss methatrexate and I told doctor today that a few weeks ago I dropped my dose back from 6 tablets a week to 4. As they make me feel sickly.
He said that was OK?
But if I have antibiotics I do not take them. I was sort of pleased to hear I am not the only one.

Bsk, what a terrible time you have had with your doctor. Poor you. We have enough problems without attitude from doctors.

It is such a difficult disease to treat though! There doesn't seem to be anything that is greatly successful. It is a shame. But coming on this site makes us realise we are all in the same boat, if I had not found this site I would probably think I was not getting the right treatment or had a hopeless doctor but I now realise it is the complexity of RA itself, it is not easy to treat!

I am going to really try to rest for 2 days this time to see if I get more success from my jab. First time I got ankle jab I went to Newcastle the day after and after half an hour it was back to square one. It didn't work at all, he did say ankles are not prone to work as well as knees or shoulders but I decided to try again.

Oh aren't we all having a terrible time, I wish you all well girls and hope we can all improve in the coming weeks.

Big hugs to us all. Regards M x
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Date: 17.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm,

does that feel like a good appointment for you then? It's good they recognise you are in pain and you can have surgery but a shame there are no more meds to offer you. From my experience, which, admittedly, has not been good, none of them seem to work for everyone. None, really, for me.

I've decided to relax and enjoy Christmas and stuff the arthritis! I bought some outdoor lights on the way home and have decorated a small tree outside my front door. I will deal with stuff in the New Year.

Like you, Emm, I'm glad there are others on hearing going through similar stuff. I don't feel so alone with it.

Marlene, are you ok?
Take care. xx
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Date: 17.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, I like your attitude! Now my visit is over I am going to try to just get on with it too.
I am one of the ones that cannot have bio's or anything else other than Metha'. In a way I feel trapped, but he is probably right and I would get more and nastier chest infections! So will content myself, maybe surgery will give me a new lease of life. Perhaps I should think of it as a positive! Do you think?

Oh he suggested a bone density scan so will be getting apptmt for that. Have you all had one? I have never in all these years been sent for one. Maybe because I am considering surgery, do you think that is the reason?

Your outdoor lights sound lovely. I posted my daughter some outdoor ones to put in her apple tree in the garden, she loves them. There is a good choice for them this year in the shops. lot's of battery ones too.
Regards to all, will look in later to see replies.

Love to all x
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Date: 18.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good morning
well reading your posts just makes me feel like a fraud moaning about my feet! And you are so good taking it head on and deciding that you will enjoy the festive season regardless.
The biggest problem i have at the moment is feet and weariness so i forget how it feels to have all that horrendous pain everywhere else constantly on top of that.
i remember what it made me feel like and i suppose when i'm having not such a bad time like now i deliberately forget what it can be like.
oh guys I so feel for you and what you are suffering at the moment. this bastard disease.
i put the xmas tree up with daughter last night and was dancing to xmas tunes - well only for 5 mins and body said don't think so :)
I do hope that you get somewhere with meds and pain and consultants - i was considering dropping a card to my consultant to say thanks for giving me a life back cause that is how i feel - very lucky that my meds are helping just now as i know it could change at drop of hat.
hope you have as best a day as possible
lots of love and hugs and prayers
xxxx
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Date: 18.12.2013
From: b8

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You moan away Willis. We all have our different problems but it doesn't diminish from your own. It's good to hear you have got your life back and gives other people hope to hear that. I'm not so bad myself, just going through a bit of a tough patch. I've got a fantastic nurse who is looking after me.

Emm, I've had a couple of bone density scans and am due for another in a month. Have you been on steroids? That is probably why they will do it, plus an age thing. They are nothing to worry about, take about 10 mins and you should get the results straight away.

Rhona, how are you doing? Things any better?

I'm worried about you Marlene, is everything ok?

xx
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Date: 18.12.2013
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's me above, where did the b8 come from lol!
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Date: 18.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, are you now b8?
Or am I thick and it is someone new????
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Date: 18.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

no, it's me! It was a mistake.
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Date: 18.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, yes, steroids for years now and this last 2 years, quite a few injections. I thought it may be to see what state my bones are in as I am considering new joints in my knees.

Have a good day. X
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Date: 18.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls, I'm not too bad bsk, although my feet are still sore but I think I will just have to get used to it. I went and got a few last minute pressies in today. I bought my daughter a camera. Isn't it great that you don't have to buy batteries for them now and just charge them up.

That's great that you are feeling good Willis and can still manage a wee dance lol, don't apologise, we must make the most of those moments.

I can hear the wind starting up, it is forecast for really strong winds tonight.

Are you ok Marlene? we are all concerned about you.

Take care everyone xx
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Date: 18.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, We have the wind lashing rain against the window at the front of house, makes me feel cosy inside. Hope it goes by tomorrow though. Are you expecting snow yet in Scotland, I think I saw it on weather forecast but did not look as low down as us.

Sorry your feet are hurting too. Nice for you to have been shopping and got your gifts.
Keep well x
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Date: 18.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Emm. I haven't heard about any snow but it sure is windy and wet. It's a night to sit by a big log or coal fire. (wish I had one). Although it is cosy being inside listening to the wind and rain. I love listening to it when I'm in bed, as long as it doesn't cause any damage.

My daughter has an appointment to see her
consultant tomorrow about her operation, I think it will be soon, she said she was in a lot of pain today at work.

I hope you knee isn't too sore. xx
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Date: 18.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, I will be thinking of your daughter and am hoping all goes well for her! You too, as I know how worried I was for mine when she had to undergo the surgery.

She is fine now, she is so lucky to have had such quick treatment.

We had a mini tornado about 9.15 tonight it was really scary, the rain turned to hail at that point and really battered down. Was so pleased it calmed again. Although it is still wet and windy. That really was freaky weather for about 20 minutes!!!

Keep me posted about your daughter, it is time she was sorted?
Regards and hugs. X
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Date: 19.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Emm, she is having her pre-op mid January and operation week or so later.

It is so cold here tonight, I haven't been across the door today as my ankles are really hurting. I hope your knees are a bit better.

Hope everyone is ok.

Take care xx
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Date: 19.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good luck to your daughter Rhona, I hope everything goes smoothly.

It's getting colder here too and very wet tonight. Mini tornado sounds very scary Emm.

Stay warm and safe everyone.
xx
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Date: 20.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning ladies, just a quick hi. Sorry haven't posted dad-in-law is in the critical care unit.
I am so busy running around full of pain.
I will post tonight take care xxxx
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Date: 20.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I thought that might be the case Marlene. So sorry to hear it. Chat later. xx
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Date: 20.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thinking of you Marlene. xx
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Date: 20.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, Thinking of you and your family too.x
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Date: 20.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well as I promised a little post. Well they have moved Dad back to cardiac ward as he has perked up a bit. It is very sad the poor man is so unwell. I don't know what to think about it all. Time will tell that's all they can say. I have to say he is 90yrs old but it doesn't make it easier at all.

I have been reading through your posts and seems you have all been having a rough time.
Keep your chins up and big hug for each and every one of you.
Take care don't worry if you don't hear again for a few days just so much running around and my bed beckons me early LOL xxxxxx
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Date: 20.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope things go well for you all Marlene. You've had a lot to deal with this year. Hugs to you to. xxx
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Date: 20.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope things go well too Marlene. I hope you manage to get a good sleep tonight and things improve more tomorrow with your dad-in-law. Love and hugs xx
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Date: 21.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, having a pyjama day today. Hubby and I could do with a day just to chill.
Mum has just come home from my brothers she has been spending time with old friends from the clubs she used to go to. She has enjoyed it all but looks a bit tired so chill out day for us all.
We will be visiting Dad tomorrow and hubby back to work Monday. He is holding his own and seems cheery enough. But!!!! we will have to see.
I am going with my daughter on Monday to grab a few last bits for Christmas.

I hope you are all coping with the extra load Christmas brings.
Take care all xxx
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Date: 21.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That is a good sign Marlene if he is cheery, I really hope he continues to improve. He is probably in the best place at the moment and they do say it is a nice atmosphere at Christmas. A pyjama day sounds good. I have been resting my feet for the last few days and they feel slightly better for it but I will have to make a move tomorrow and get things organised for my daughter coming home on Monday.

Hope everyone is doing ok.

Take care all xxx
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Date: 21.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good news Marlene.

I've also had some good news as I am now under a new consultant, who is very nice, by all accounts.

I think I'm coming down with something though and am in bed at the moment so I'm having a pyjama day too!

love to you all. xx
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Date: 21.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, I hope your new Consultant is the best ever. You can do without people being so downright rude. It is not necessary and I just hate people that are rude and condescending.

I hope you feel better in the morning. The bed is the best place for you.
I am on the sofa with the tree lit up and the dog snuggled up on the floor beside me. Hubby watching The young Queen Victoria on the other sofa with Mum. Just how I like it all snuggly.

Love to you Bsk take care xxx
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Date: 22.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well I see we are all in for some bad weather. Stay safe everyone and stay home if you can.
Love to all xx
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Date: 22.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Brrr it really is cold tonight. I had to go to Tesco this afternoon and it was snowing when I came out, although, when I got home there was no snow and it was only a 10 minute drive.

How is your Dad-in-law today Marlene? My feet are in agony, I could hardly walk round the supermarket, I was glad of the trolley for support. I don't think I will go out tomorrow, high winds are due. I hope my daughter's flight isn't disrupted.

I had an email from my niece in Canada today telling me they are having an Ice Storm there and she is lucky that her power hasn't been effected but my sister that lives alone there has no power at all and her phone lines are down. I hope she will be ok as she is elderly now.

Take care everyone and stay warm. This cold weather isn't good for us. xx
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Date: 22.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope your daughter has a safe flight Rhona. I've got family coming from all over the country so am hoping they get here safely too.

Thanks for your post Marlene. I'm deciding whether to put a complaint in about the last one, or not. Not sure what it will achieve, apart from giving me a chance to tell her what I think. Will think about it over the hols. How is you FiL doing? Will he get home for the festivities?

I'm suffering too. Both my wrists are very painful at the moment. No doubt it's the weather changing etc.

Love to you all and Happy Christmas, just in case we all get too busy to post.

take it easy! xx
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Date: 22.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good evening ladies,

Bsk I am pleased you have a new consultant, it seems to have happened quickly which is good I hope you have better treatment this time.

Rhona, I saw on the weather that Scotland is getting snow, I hope it doesn't disrupt your daughters flight too.
Your feet sound a bit like mine although I had a jab on Tuesday and have taken it easy and yesterday and today I think the swelling and movement have improved in my ankle slightly.
Hope your sister braves the ice storm in Canada OK. That sounds very scary!

Marlene, hope your dad in law continues to improve and you all have a worry free Christmas. I have watched the young Queen before and enjoyed it very much.

Willis have your feet improved, hope so. Keep well and have a good Christmas. I am feeling a bit better after my two jabs. Fingers crossed it gets even better and lasts a good while.

Feel like I am getting my mojo back as they say. It is because of less pain. Yippee.

Regards for now, night night. X
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Date: 22.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's great to hear Emm! Hope you enjoy the festivities.
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Date: 23.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, This weather has a lot to answer for lol I blame it for everything. Joking aside I hope your daughter has a good flight without any delays Rhona. I hope your sisters are safe and well and your older sister is getting some help out there. I am sure they probably get better help than here. Try not to worry xx.

Bsk enjoy your Christmas and worry about all those rude people after. To be honest I am sure that consultant got the message when you went elsewhere and if others do the same people will begin to notice. I hope all your family have safe journeys and not too many delays on the road.
My DiL sadly will be in hospital for Christmas but to be fair he is so weak he can only sit in a chair by the bed. He is too weak to walk so in hindsight he is safer where he is. He will be getting lots of visit's.

Emm so glad to here you are feeling much better as your pain is less. Take care not to overdo things. I love all the history programmes no matter what form they are in fascinated by it all. Not that I would of wanted to be one of them for a minute. Their lives were far too hard!!

Willis how are you not overdoing things I hope. Are you ready for Christmas??

Lynn, Haven't heard from you for so long I hope you are ok.

Take care all. Going to do my last bit of shopping today lets hope the wind and rain hold off. xxxx
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Date: 23.12.2013
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning
I hope your FiL is more on the mend Marlene and that you are ok
Bsk good to hear about a new consultant here's hoping that the new year brings you some help and relief for you
Rhona I hope you are fine up there and have everything that you don't have to venture out too much now and that as Emm said that your sisters are ok in Canada
Emm glad your mojo has returned :) if anything at least it give you some respite during the next few festive weeks.
I'm off out to suffer the packed Tesco for as much shopping as i can! Then I have to wrap presents - i've got them all just none are wrapped so that'll take me the rest of the day i'm sure!
I think the steroid jab i had in sept is wearing off - hence my feet pain - my sense of taste is back which is good so hopefully will enjoy actually tasting my turkey lol
ok so best move or i'll not do it
have a good day everyone
xxx
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Date: 23.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Weather doesn't seem too bad here at the moment, just the usual rain but I believe high winds have been forecast. Let's hope your family all arrive safely and without delays bsk and try not to overdo things if your wrists are hurting.

Pleased to hear that you're getting a bit of relief at last Emm, it makes such a difference to our mood when the pain levels drop.

I hope you manage to get some relaxation Marlene in between hospital visits.

Willis, I was at Tesco yesterday and I they didn't have any turkey crowns left so then went to Asda and got one but I am sure they will be all stocked up again this morning.

I got an email from my sister this morning, her daughter managed to get to her and has taken her to stay with her near Niagra Falls as she still had power and she also has a generator. Seemingly there are trees fallen across roads, the weight of the ice breaks the trees and pulls the power lines down, at least it isn't that bad here, well so far.

Have a lovely Christmas everyone and really hope your pain isn't too bad.

Take care all. xxx
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Date: 23.12.2013
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oooooo Rhona, your family live near Niagra Falls, wow! That is somewhere I have always wanted to go since watching Marilyn Monroe in that film years ago. On the boat with a mac on, wouldn't that be great.
Have you ever been? Would love to hear about it if you have.

Am just in again, second visit to the shops today and am so wet that I had to change my trousers and that is just between the car and shops! The wind and rain are lashing down here!
It is absolutely YUK.

Having a cup of tea to warm up and looking in on here, was so excited about Niagra I had to ask more.

Keep snuggly everyone. X
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Date: 23.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, Yes I have been to Niagra (many years ago) and went on the Maid of the Mist and wore the black cape lol and it was needed as you get a lot of spray. Then we spent the night in a motel in Buffalo, it reminded me of Bates Motel in the Alfred Hitchcock film "psycho". You can watch a video of the boat trip at the falls on U Tube.

My daughter will be arriving anytime now, just waiting on them arriving back from the airport. xx
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Date: 27.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, I am tired with storm keeping me awake. Hope you are all well. I feel for all those poor people flooded out.
My granddaughter was amazed by it all and I have learned some very modern Christmas songs. I am shocked at the ability that 3yr olds have for remembering so many songs. She has an amazing voice (not). Bless her she was Mary in her play and was in awe that we all new the story about baby Jesus, LOL.

Take care everyone xxxx
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Date: 29.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone!

Much fun was had, family have gone home and I'm now nursing a sore throat. I really shouldn't have gone to that party last night but wanted to see my friends. Oh well, I might have to sofa surf with Christmas DVDs and Christmas chocolates.

I've been reducing my steroids slowly. My hands are getting painful again but am optimistic I can do it.

How was everyone's festivities and what have you all got planned for the new year?
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Date: 29.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk so glad you all had a good time. Lets hope that sore throat goes ready for the New Year.
I will be having a very quiet New Year unfortunately like Christmas hubby is working. I will be opening a bottle of Rose to share with Mum.
I had a lovely Christmas hubby home each day for dinner and spent the evenings together so it was still very nice. Christmas evening was so much fun four generations under the same roof ages from 88yrs to just 1yr it was amazing.

Take care everyone xxx
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Date: 29.12.2013
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

We had a similar age range, Marlene (2 to 87) it was really great. I could do with a quiet NYE to be honest but am committed to go to dinner. I might just quietly get drunk in the corner!
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Date: 30.12.2013
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad to hear you both had a lovely time with your families. It does make it special when families can get together. My daughter goes back to Spain again on Tuesday, it will be sad to see her go again but I have to accept that is where she wants to be.

My feet and ankles are still very sore, it is an effort to walk, I am trying to rest them as much as I can and hope that they will come alright again.

Take care everyone and keep warm, the strong winds and rain are due again tomorrow, I think I might just stay in bed. xx
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Date: 30.12.2013
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, Bsk I am picturing the scene LOL. Why not???? I had a few on Christmas day and was pleasantly glowing. It is fab that even with a wide range of ages everyone is having fun!! Enjoy NYE.

Rhona I guess it must be tough each time your daughter goes back to Spain but as you say as long as she is happy! It is great that Spain is a short trip and you both travel to see one and other.
I am in a lot of pain this morning and its 11 o'clock and still sitting on the sofa. Going to IKEA later.
It is dark windy and raining here soooooooo miserable.

Take care xxxx
reply | back to forum

Date: 01.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well lets hope 2014 brings some new meds for this Arthur.
I am suffering already this RAIN!!!!!!
Not much to say only hope you all had a good New Years Eve. I had a very quiet one Me Mum and my Jess (dog). I watched the fireworks on tv they were just lovely.

Take care all xxxxx
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Date: 01.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Marlene. Happy new year and all that.

I'm suffering too, but that is from overindulgence last night plus DANCING. My throat is on fire and my joints killing me. What a mistake but I had a good time.
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Date: 01.01.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Happy New Year
i had a late night and had a few drinks rpund at daughters future in laws !
half a game of trivial pursuit!
like you marlene watched the fireworks on tv they were lovely
bsk hope you are able to rest today
my hips have been giving me grief for the past 4 days so sitting standing walking all irks me
here's hoping 2014 has some miracles for us all for arthur
have a good day
xxx
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Date: 01.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Happy New Year to you all, I really hope we all feel less pain this year. We had it quiet for hogmanay, no dancing for me bsk just a few drinks. I watched the fireworks from my window and also on tv from Edinburgh. take care all and have a good day. xx
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Date: 01.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, my best wishes are on the other post.

I have had a good time too. But maybe ready for normality now!!! i.e less eating.

I am not doing too badly at present, my injections must have helped a bit.

I hope all your niggles are short lived.

Love to all Emm x
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Date: 02.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm with you on the eating Emm! Glad to hear you are not doing too badly. I'm somewhat achey today.
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Date: 02.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have you sobered up yet bsk? Hope you are all doing alright. I never had a weight problem until being told to reduce the thyroid pills and have now put on a stone, I just hope I don't put anymore on, it can't be good for the knees and ankles but it is difficult, especially at this time of year. Take care xx
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Date: 03.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yes I have Rhona! I'm actually feeling quite chipper in spite of being ill over most of the festive season. I've put on a stone as well. I need to get it off this year.
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Date: 03.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, add me to the dieter list lol. So glad you all have had a good Christmas and New Year.

We had a downpour of Hailstones like I have never seen before and the thunder and lighting was an added bonus. My poor dog was terrified. I wasn't very impressed either. The rain goes on!!!!!

I have made my self an appointment to see my GP on the 13th of this month to have a chat about my pain and if they can help any more than just pain killers. I am maxed out on painkillers and still hurting like mad. I will wait and see.

Rhona you should get that thyroid checked again you may be on a too low dose of thyroxine. We all seem to suffer the same ailments and I just wonder is there something in this. I also suffer with an under active Thyroid. Just a thought!!!!

I hope you are all well. Take care xxxx
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Date: 03.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, The weather here is horrendous too, rain, rain and more rain with strong winds.

I was on 150mg of levothyroxine then when the new doctor came she told me to reduce it to 125mg and I started putting on some weight so I went back thinking she would put it back up but instead she told me to reduce it again to 100mg. I got my blood checked before xmas and hope they don't tell me to reduce it even more, she said I shouldn't have been taking so much, obviously the old doctors couldn't have been checking my blood results and that makes me angry. I think you are right it does seem quite common to have this and arthritis.

Sleep well and hope you pain eases Marlene.

Good to hear you are feeling chipper bsk, must be all that booze lol. xx
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Date: 05.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Just a quick post. Hope you are all ok.

It was sunny here to-day which was a bit more cheery. Popped up to Tesco and it was quiet pleasant in the Sun.
Now sofa surfing nursing my joints that are hurting soooo bad. I think I might get the leftover chocolates out. Then worry next week about the 4lbs I have put on. I have more weight than that to lose and I really must give it a good go this year.

Well take care everyone xxxxxx
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Date: 06.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, I have had a lazy day, sofa surfing too. My feet and ankles are still hurting. It's 1am so I'm off to bed now. Hope everyone is ok. xx
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Date: 06.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello all! Another vile day here in the big smoke. I am still reducing the steroids and can feel myself slowing up. However, am still retaining a sense of optimism about it all. I sent of a hastily written email to complain about my appointment. Who knows what will come out of it but I feel better for doing so.

Hope you are all ok and getting back to normal (whatever that is)
xx
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Date: 07.01.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
well another morning after horrendous wind and rain. all those poor people flooded out of their homes for weeks now I feel so sorry for them.
nothing to report, just the usual aches and pains. so it's another year - may it bring you all some relief and good times
lots of hugs to you all
x
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Date: 07.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well the rain is still coming those poor people oh dear!! Makes me feel bad for moaning!!

I hope you are all doing ok. I can't wait for my Drs appointment on Monday although I really don't know what I am expecting. My joints are so painful and all these painkillers I need to get me through the day is a bit worrying.

Less of me Bsk I hope stopping the steroids doesn't start all your pain up. I don't blame you for e-mailing about your appointment they take so long and it is no joke. I have had to wait two weeks just to see the Take care hugs xxxx

I am with you Willis hoping for plenty of good times and of course a few rough ones lol. I am trying to be positive about this year and intend to visit a lot of new places.

Well not much else to say apart from take care xxx
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Date: 08.01.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi All
oh my I am sooo tired and weary! but I'm actually thinking it's a good thing -
Last night in bed I thought I must post in the morning and ask
Does everyone else wake up at least 3 times EVERY night!! so exhausting having broken sleep - and hey I only woke up once last night - is that a good thing :)
maybe body isn't use to it so now all i want to do is sleep again!
anyway -
I hope you are all feeling not too bad.
Marlene I do hope the docs can offer you something that will help
I'm off to get some breakfast and sort out washing! oh great joy of housework don't we love it :)
have a good day ladies and take it easy
xxx
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Date: 08.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, It seems you are all still struggling!

It is lovely here today, came in from shops a little sweaty, with a light jumper under a coat, you don't know what to wear!

I am thinking of going to visit my daughter soon and the day After Imentioned it to her my ankle feels worse and my knee is clicking after being a little better after the injections.
Isn't this RA cruel to us.

Picked up a calcium injection, I get 6 monthly, today, so will have to make apptmt with nurse to have it. Tommorow is my first ever bone density scan, so will see if I have osteoparosis I suppose.

Willis, I have sleepless nights but not if I take a Tramadol at night , they chill me out and make me sleep.

Marlene, you are lucky coming off steroids, but my friend did after taking them for many years, Humira is the reason she managed to. Humira gives her constant sinus infections, but she puts up with that.

Will post soon before I take off, best wishes to all.

Oh, an after thought, has anyone had assistance at airport, apparently they put you in a wheelchair, which I am not too comfortable with. Please let me know your experiences of it if you have. Starting to dread the long walks in the airports. X
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Date: 08.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies,

My internet and landline had been down for the last couple of days, just came back on this afternoon.

I do hope your doctor can suggest something new for you on Monday Marlene. You do get fed up taking pills.

Pleased to hear you are managing to reduce the steroids bsk. You don't take a high dose so it might be easier than you think.

Willis, I don't know the last time I managed to sleep more than 3 hours without wakening in fact the last couple of nights I have hardly slept, I think it is the pain that wakens me. I sometimes wonder if the methotrexate contributes to it as I took it on Sunday and have noticed it's worse after taking it.

I do hope you manage to go to see your daughter Emm, I know what you mean about planning things. I have booked flights to go over on 21st Jan as my daughter's op is meant to take place on the 23rd and my ankles are really sore. I called the hospital today to see if I could get a jag and they said the first appointment for the joint clinic is 21st so that's no good. I will try again on Monday in case there has been any cancellations. I have asked for assistance before Emm but on the day of travel I was ok so didn't require it but when it was time to get off the plane they arrived with a wheelchair and I was embarrassed and wouldn't use it but I might need to get it this time if it gets any worse.

Take care all xx
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Date: 08.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene and Bsk, sorry seems I got you mixed up, regarding who was coming off steroids!

Rhona at last your daughter is going to be attended to, I do wish her well. I hope, like me, that you manage your journey well, with your ankles, they are my problem too plus knees.

I have never thought travelling was going to be such a struggle till my ankle started, I have had knee problems longer than the ankles but the combination of both is making it very hard.
Oh and feet!
Quite honestly I find it frightening because it has been a while now and doesn't improve as I had hoped.
Rhona I am trying to be brave about assistance, it is probably silly, but I too will probably be embarrassed hence have not done it yet.

Thanks for your reply. Big hug. X
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Date: 08.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, use that assistance help, it's really worth it and makes things much easier. They'll whisk you through customs and immigration.

How is everyone else doing? I apologise for not posting much but my hand is quite painful at the moment. I'll be back tomorrow.
Take care everyone.
xx
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Date: 09.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, have you used airport assistance?
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Date: 09.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yes I have Emm. It is really good. You need to book it either when you book your flight (easy jet, for example, has a box you can tick) or 48 hours before your flight.

You go to the assistance desk and, from there on in, you are either escorted or wheel chaired or buggied through every stage to the plane. Taken off the plane, again either walking to a buggy or wheelchair all the way through the arrivals lounge. They pick up your luggage from baggage arrivals for you on the way.

It's worth doing for lots of reasons, one is that you don't have to queue for passport control (which in big airports can be a very long one) or customs. So invaluable if you can't stand for long. Lots of people use it even when they can walk a bit as they take all your hand luggage etc. People with heart and lung problems, weight problems, invisible disabilities etc. use it. I couldn't travel without it.

I was embarrassed the first time until I saw the queue for customs! I knew I couldn't stand that long or hold hand luggage. Please don't hesitate to use it, it's exactly for people like you.
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Date: 09.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone, just a quick post. I hope you ladies have good journeys to visit your girls. If you think assistance would be helpful then go for it BSK is right if it makes your journey more comfortable why not?? Don't be embarrassed.
Bsk and Willis hope you are both relatively well.

Take care all xxxxx
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Date: 09.01.2014
From: rhona

Subject: new thread for, Bsk, Marlene, Emm, Willis & Lynn

How is everyone tonight? You are right bsk, it does make sense to get assistance and some airports are so big now and getting from one end to the other can be difficult. Malaga airport is huge.

Just went to Morrison's today for a bit shopping and what a treat not to have the rain pelting down on me, although I did hear that cold weather from America will be making it's way over the Atlantic to us in time for the weekend.

Sleep well everyone xx
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Date: 12.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning on this bright Sunday, well I have been through the threads and it has been busy on here.
Some good some bad.

Drs tomorrow and I must say I can't wait not sure what I think is going to happen. I suppose I am clutching at straws. I have had so much pain this last week or so.
My dad-in-law managed a day at home and is now back to square one bless him. It is a waiting game not very pleasant at all.

Well I hope everyone is ok and take care all xxxxxx
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Date: 12.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi guys,
Marlene, I hope you have a good outcome at the doctors. It's always worth pushing for more treatment. Out of interest, have you ever been referred to a pain-cllinic or been offered any other support? Mindfulness, for example, is supposed to reduce the levels of pain. Sorry to hear about your DiL. I hope he gets better soon.

Everyone else, how are things? I'm doing ok. Surprisingly well coming off the steroids, fingers crossed! I'm hoping it stays that way.
Speak soon.
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Date: 13.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, Hope everyone is doing ok. I don't know whether I am coming or going just now. My daughter's operation has been brought forward a week to this Wednesday but now she is not sure whether the insurance is covering it or not so I am sitting here wondering whether to change my flight to tomorrow or not. Why is life never simple. xx
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Date: 13.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

ps. Hope you got on well at docs Marlene. x
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Date: 13.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, well I have just come back from GP he is trying me on Amitriptyline starting one a night and I can up it for two if not much success. He is a lovely Guy and is going to try all ways round on different ways to help with the pain so a good result and I have another appointment for three weeks time.

I felt a fool I fell to pieces in the surgery unfortunately Dad-in-law passed away yesterday evening. It was a very tough end but thank God he is now at peace. He had a very long life 90yrs but it just doesn't make a difference at all he will be so missed. My poor mum-in-law is so sad bless her they have been together for 66yrs in all it will be hard for her.

Rhona, your daughter is being messed around a bit. Rhona there is always something to worry about. I do hope it all gets sorted for her with the insurance. Try not to stress she will need her mum so you need to be as well as you can. HUGS for you both.

Bsk so glad you are doing ok coming off the steroids I will keep my fingers crossed for you.

Take care all if I go missing for a few days you will all know why so no need for you to worry xxxxx
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Date: 13.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Marlene, I am so, so sorry to hear about your father-in-law. That is really very sad and I send my condolences, love and hugs to you and your husband. xx
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Date: 13.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear your sad news Marlene . I hope new meds do help.
Take care
Xx
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Date: 13.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Bsk and Willis your support helps me endless especially now hugs and xxx to you both
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Date: 13.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I also add my condolences Marlene, it is sad but remind yourself how well he did getting to ninety, I know it doesn't make it any easier.

I am going to see my daughter tomorrow so not sure when I will be back on, take care everyone and try and keep well. xxx
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Date: 13.01.2014
From: Biscuit (formerly known as bsk)

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Best of luck Rhona. I hope everything goes well. xx
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Date: 13.01.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Biscuit hahaha. I wondered why you were calling yourself biscuit then I did some prowling and saw another message from MMM, at least he has a sense of humour hahaha. He does take the biscuit. xx
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Date: 14.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, hope all goes well for your daughter, try not to get too stressed.

My condolences too to Marlene and family.
Regards to all. Emm
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Date: 15.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, hope you are all keeping as well as possible.
Xxxx
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Date: 15.01.2014
From: Lynn

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies I'm so sorry it's been ages I've been having a rough time of it still am to be honest but not much I can do as u know I have tried hydrocloraquine,sulphasalazine,methotrexate 3 different times gold injections leuflominde enbrel and humira and I have been taken off all these drugs by my rhumy due to side effects when I first started humira I was to take it with methotrexate but my wbc was falling so mxt was stopped and I waiting for bloods to return to normal then started it fortnightly then bloods started to drop again so waitied for them to get better and started humira again on monthly but as the time went by say 3 months max the wbc and neutrophils went down so I have finally been stopped on humira there is only 1 other drug I can use for my condition it's simponi or something like that but I've been warned by my rhumy she is expecting it to go the same way as the others because of the type of drugs these are I am disappointed that this has happened to me I feel I have tried tried and tried again and getting no where fast the pain specialist I saw put me onto gabapentin which have helped my pain a lot I still take maxitram and tramadol as well my rhumy has said there will be newer types of drugs coming out but could be 2-3 years before these bet trailed so if this new drug fails I guess it's a case of just riding things out.

Sorry to rant on just wanted to bring you up to speed I hope you are all doing well (far too many posts for me to read lol)
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Date: 15.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Lynn , so sorry to hear all this with meds, how frustrating for you. Really hope this next one is one that works for you.
Nothing I can say to help you feel any better but am thinking if you
Lots of hugs xxxx
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Date: 15.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Today is the first day I've been without steroids for over 4 years! It feels amazing, if not just a little painful. I swear I am not ever going back on them again.

Lynn, I sympathise with you as I've gone through rather a lot of meds myself. I really hope the Simponi works for you.

Willis/Emm how are things with you both.

Marlene, I know you have a lot on your plate at the moment so just sending you my love.

take care everyone. xx
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Date: 16.01.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning
bsk how does it feel any different? what differences are you noticing - apart from pain?
when my jab wears off i can tell as i can taste foods instead of everything tasting bland or much the same

Hope you're having a good day guys or have a good day depending on when you see this post :)

xx
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Date: 16.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, I have a bit of time to post today. I can't help but mention BISCUIT where did that come from? haha.
I have been busy with everything and all seems to be settling again.
Bsk I am so pleased you are coping with coming off the steroids. I have stopped the tramadol and also am coping really well with the amitriptyline. My pain is so much less.
Poor you Lynn big HUG.
Emma and Willis hope you are both ok.

I hope Rhona is ok and her daughter is doing well.

Well I will pop back when I can.
AKA the famous five I just had a count and we are actually six. xxxxxxxx
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Date: 16.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,

Just read other posts and would just like to say, I think we just discovered we seem to be a similar age, with similar problems and identify a lot with each other and for me, when we started to add other bits like social things we do and a little bit about our families it feels like you are now my pals rather than just arthritis sufferers.

Bsk, you must be delighted coming off pred'. Wish I could have the newer drugs. Well done.

Marlene, what type of drug is amitriptyline? If a painkiller, what is different about it and is it a good one?

I too am thinking about Rhona! I am thinking of going to see my family too, maybe 7th Feb. I just haven't been able to get motivated but am going to have to push myself!!

I am ticking over with not a lot of change to report arthritically, waiting for surgeon apptmt about new knee, but don't know if I would dare do it. I am such an indecisive person anyway.

Take care all and hugs to all. X
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Date: 16.01.2014
From: Marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, I think I may be one of the eldest haha 63 next month. Still young in mind. I think Emm that's why we all bounce off of one and other. We do share lots of other things besides our pain and meds. That's why maybe some think they cannot join in but of course they are more than welcome. I like you feel we are all great friends that have just never met.

I hope you do decide to see your family it is so important to stay close. Your daughter will be so glad to have Mum around!!!!
The new pill I take at night is a muscle relaxant and I take one a night 10mg They also use it for depression in a much higher dose. It is working well I have also had three nights of solid sleep for 7 hours. I just can't remember the last time I did that. So a happy bunny I am.

You make me laugh so indecisive it is a hard decision to have surgery. You just have to weigh the pros and cons and say yes and go for it. You will be fine I am sure. Oh yes and a pain free knee BONUS!!!!

Take care Emm and everyone else xxxxxxxx
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Date: 16.01.2014
From: Biscuit (formerly known as bsk)

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Willis, I don't feel any different at all coming off the steroids, just increased joint pain. I'm not even sure whether this might be a side effect or the arthritis returning. Hard to know and have decided not to google it in case I find anything to worry about!

I was on amitryptiline for about a year when I first got ill. It does help with pain, especially nervy pain and it certainly helps you sleep, though some people say they feel a bit groggy in the morning but I never did.

Re: surgery for your knee Emm; my mother had to wait too long for her surgery to her knees (in the days of Thatcherism when people waited 18months or more for ops , in case we've forgotten.) Unfortunately for her, it meant she didn't get full benefit. It is something ask your surgeon about - whether it's sensible to wait or not. Lots of people do well with the op.

Marlene, the biscuit was what MMM called me. I quite liked it. I am sure they are a regular poster with a name change. Hmmm...

Anyone I've forgotten - apologies but speak soon, as it were.
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Date: 16.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Biscuit, bsk I also think MMM is a regular poster. I am going to take my pill in a minute and hopefully get another good nights sleep. I hope you sleep well. Goodnight bsk xx
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Date: 17.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning on this lovely sunny one. Hope you are all ok. Sorry to brag but another full night sleep WOW. Amazing how another GP can sort you out at a drop of a hat.

Take care all xxxxx
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Date: 17.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I wrote a long spiel on meaning of 'biscuit' last night then the flamin thing wouldn't post arghh lol
Glad you are getting sleep Marlene makes all the difference and you are certainly more chirpy :)
So instead of famous five are we the secretive six? Sexy six? Silly six?
Anyway biscuit - ever heard of tv prog Taggart? He always referred to his boss as the biscuit - his actual name was Macvitie -
So was in old work today helping out, oh boy do my shoulders ache now . Sitting here trying to balance a hot water bottle and type lol
Hope you are doing ok, if not on then have a great weekend ladies
Lots of hugs
Xxx
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Date: 18.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, I remember Taggart and the Macvitie Guy being called biscuit.
Willis what happened to your retirement!!!! Hope your shoulders have recovered.
Well I am off to tackle the ironing now fantastic job just so not worthwhile it will all be back in the washing basket in the blink of an eye.

Take care all xx
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Date: 18.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening all
Retirement Marlene - only doing odd days till end jan, then maybe 3 days a month for 2hrs a day but looking for part time job as bills still to be paid unfortunately
Oh I hate ironing, I stand there thinking what's the point when, like you said, it'll be back in wash soon enough!
How are you doing bsk emm?
Going to try cleaning suite tomorrow! So no doubt ill be complaining of more aches on Monday
Hope you're having a good weekend and hope Rhona n daughter are ok
Xxx
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Date: 19.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, I am sitting by the window basking in the sunshine lovely.
Willis that Bill follows me everywhere I go Supermarket shoe shop clothes shop even in my own home electric poll tax phone broadband you name it he is always there. LOL
Good luck cleaning the suite mine could do with a clean. I was thinking about hiring one of those machines you see in the shops. Then the carpets could be done as well. My son said they are really good he hired one when he moved to his new house. He has little ones and wanted to know the carpets were clean.
I was just thinking why I am sitting here talking about my carpets and sofas?? I think it's what Emm said we all feel like good friends and I suppose these are the things you chat about to friends LOL.

Willis don't work too hard.
I was also thinking about Rhona last night I hope all is well.
Bsk Lynn and Emm I hope you are all ok. xx
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Date: 19.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, hi, got a 'clicky knee' today, only had a jab in November, they usually last longer than that. Oh Yuk.
I hate it when am more restricted, head is willing but joints aren't!
Going out to lunch with family.
Cinema on Tues...12 years a slave is on. It was the railway man last week. It was very good.
Going to dry my hair now.
I too often think of Rhona and her daughter, mine had the same prob and op last year so I know what they are going through. But poor girl has had such a long wait. My daughter was seen to very quickly.

Have a lovely day everyone. X
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Date: 19.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Can someone remind me what op Rhona's daughter is having? i've forgotten and think there would be a lot of scrolling back to do to find out. (sorry R, memory like a sieve.)

Some of my joints have been quite painful over the past few days but not much visible swelling. I'm going to ask for my knees to be x-rayed as I would like to find out how the OA is progressing. I know I have a bit but how much is a mystery to me. I'm waiting for an MRI on my hands to see if there is any joint damage. It would be lovely if I could stay off the drugs quite frankly. I didn't get on with any of them.

xx
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Date: 20.01.2014
From: Lynn

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies thanks for the replys it is so frustrating knowing there is drugs that can help just u can't take them grrrrr oh well just need to keep on trying hope you are all well

Take care
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Date: 20.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, well one week post steroids and back to the clinic to be offered the very same steroids my last consultant said I didn't need. I declined. hey ho.
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Date: 21.01.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
well i took one of the 'help sleep pills' for two nights now - spent yesterday like a zombie as didnt' take it till 2am and awoke at 10.50am so it obviously helped some
took it at 7.30pm last night but didn't go to bed till 11.30pm, awake at 9am this morning
feeling alot better so maybe they do help but i had the weirdest dreams last night. the only thing i remember before waking is a 'saw' but a 'man's saw' it does everything you know!!!
oh dear. Think i kept hubby awake with my tossing and turning though.
anyway will give it a try tonight too and see what happens.
still got the aches in feet and hips but not feeling as bad as i did.
i hope you're all feeling ok or as best as you can be.
xxxx
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Date: 21.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Have a look at Patten Ficketts post and cheer yourselves up. It made me laugh.
Bsk what goes on in some peoples head amazes me. Why would you want to go back on steroids after taking all this time to come off of them?

Willis a good night's sleep is amazing. I have a about 7 nights straight 7 hrs and I feel so much better. I have had a lot of back pain today but have coped with it well. I am sure it is because I am less tired.

Take care Ladies don't forget to look at the post xxx
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Date: 22.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, we have lots on here that have all the answers again. I guess I will get an onslaught from MMM for daring to reply to one. Oh well never mind my shoulders may be sore but they are broad as they say.

I hope you are all ok today.
Sadly we have the Funeral tomorrow.

Take care every one xxx
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Date: 22.01.2014
From: Jonny

Subject: Medicinal Marijuana?

Hello all,

There is a profound amount of new evidence that suggests cannabis and cannabis-based meds as an effective therapeutic option for arthritis derived pain and inflammation.

I am a biomed research student from UWE England, writing a report entitled: "Medicinal Marijuana: Are modern society's prejudices redundant or justified?"

I have devised a really quick anonymous PATIENT survey:

https://docs.google.com/forms/d/1s1Sbjjak04hlVBe739QdBYODYV3CvzzsL1lHPK7H7wY/viewform

All participation welcome, thank you!

-jonnyprice@hotmail.co.uk
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Date: 22.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Jonny you might like to start a new thread. Go to the top of the page and click on new topic.
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Date: 22.01.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, I hope tomorrow goes well. I shall be thinking of you.((( )))

Below is a link to a 2 minute thing about pain. Have a look. I will be interested in whether you think it is helpful or not.
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Date: 23.01.2014
From: helen

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis hope you don't mind me posting here. Its 5.30 am slept a couple hrs finite. I went drs Monday very tied tearful and in pain hating my moon face from two months off steroids. Anyway Dr was brilliant and said iI needed to sleep hadn't slept properly in ages but last WK was the worst ever no sleep at all. Anyway was given floxatine 7.5 take in bed so thought I'd be asleep within seconds so first nite felt so bad so bed at 7pm took tablet and other meds 10pm still awake. Suddenly felt tired turned light of and yeah I slept til 8am fish. No hangover feeling. So again Tuesday night. Didn't want to be reliant so didn't take last nite hence this post at this time of morning. Hope youv had a good night again. I will be taking it again Thursday. Must admit I felt better in myself for the sleep and no tears. Poor mum had it Sunday Monday she only phoned to see how I was. Upset her which I really hate doing and try not not tell all. Wrong timing. Anyway thanks for listening. Xx
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Date: 23.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, I will be thinking of you today, lots of love.

Helen and Willis, I too had a sleeples night and in the two short sleeps I had, I had an unpleasant dream each time, quite scary ones.
I hardly ever dream. Hope you both conquer the sleepless nights.
I find Tramadol make me sleep. I only take 1 a day at night.

Regards to all. X
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Date: 23.01.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
helen you can post on here anytime with us the girls are great for advice and keeping your pecker up when you feel down :)
I'm glad you got some sleep - it does help. I hadn't taken mine for months but decided maybe i should try as i was so tired. It's now 3 nights on the trot and i do get better sleep. maybe take them every night for a week then every other night after that. if they work then getting even a week's decent sleep could make a difference to how you're feeling or how you cope with the pain.
Do let us know how you get on and come on here everyday or evening and post. It's good to post and although we're not 'there' with you the support here is great. xx

Marlene I hope your day went ok and you and hubby are fine xx
Emm, I'm the same as you I either don't think I dream or I dont' remember them. Had a few good nights sleep which is helping :)
Lynn I hope you are ok xx
Bsk there is no link :) hope you are ok xx

It is raining here and been doing so for hours and doesn't look like it's going to stop anytime soon! So won't be venturing out today if I can help it.

Have a good day everyone, lots of hugs xx
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Date: 23.01.2014
From: Lynn

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies I'm not on as often but I do try and read as much as I can I'm ok my fingers and all the rest of my body as slowly swelling since stopping the humira I've not heard from my rhumy nurse about simponi yet so just need to grin and bear it
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Date: 23.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Lynn I hope you hear from her soon xx
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Date: 24.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, hope you are all relatively well. Thanks so much for all of your thoughts. The day went very well Five generations were there. So mum-in-law took great pride in her family.

xxxxx
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Date: 24.01.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

So glad to hear that Marlene. It's a time when families need to support one another so great everyone was there.

I had a long chat with my GP today, who had a long chat with my new consultant. It was explained to me thus: Inflammatory arthritis can cause osteoarthritis, muscle pain and other stuff so it can be hard to work out what is an inflammatory response or what is mechanical (i.e. OA). It is fast becoming clear to me that I have both, the mechanical in my knee and base of my thumb and possibly elsewhere and the former is getting worse because of coming off the steroids. However, I am staying off the drugs for the time being and am, instead, taking strong painkillers. So, let's see what happens.
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Date: 26.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, Well your new consultant seems to know his/her stuff. I hope your painkillers keep you relatively pain free. I guess coming off steroids for a while will be good for your body. Bsk don't stay in any bad pain will you.
I went out with hubby on Friday and I had an onslaught of pain. I went back to the car with a bottle of drink I quickly purchased. My hubby was shocked that I was trembling with the pain. I just sat for a while until the pain meds kicked in. I am not sure I am coping with the change in meds but my gp asked me to persevere for a month so I will. I like you am not sure what is in the pipe line for me. So I am going to do my best to keep going with the new meds and see what happens.

Yesterday we were battered with a hailstone storm blackness wind thunder and lighting. For ten minutes it was quiet spooky!! LOL. Today we just have rain and wind and it is very cold.

I am sofa surfing as hubby is working but I am going to make a chicken roast later.

Take care all xx
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Date: 26.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Marlene, sorry to hear you are in so much pain. Can I ask what painkillers you are on? I'm in quite a lot of pain too, in my wrist. I woke in the night and it hasn't stopped hurting since. I took codrydamol this morning but it hasn't really helped & I've felt out of it all day. Saving the 30mg codeine for tonight!

I wish I had someone making a chicken roast for me. xx
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Date: 27.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Bsk, My GP change everything I take 10mg amitriptyline at night and co-dydramol four times a day. The amytrip makes me sleep well. I think because I am sleeping well my joints are so painful when I wake up the co-dydramol just don't seem to be working. I agreed with my GP to give it a month and then I have to go back to see what will happen next.
I feel like I just jump from one cocktail to another and nothing works for long.

Bsk I am sorry you are going through so much I absolutely feel for you if you have OA to deal with as well. Life sometimes chucks sh** at us. My son has a great view on life he tells me "Mum every time you deal with your problems you don't realise how much stronger you are". I guess he is probably right it just doesn't feel like it at times.
The chicken roast was lovely and I have so much chicken left I am throwing it in the slow cooker with lots of veg and dumplings. More comfort food.
They are saying it is going to get really cold and snow is on the why. FANTASTIC.
I bought a nice pair of boots in a local shop that was closing down. The are like Hug boots. They cost me 10 bargain. They will keep my feet warm and plenty of room for socks.
It is shame all the small shops going out of business.
Well Bsk I had better get on ironing to do once again!!!!

Take care everyone.
I hope all is well with you and your daughter Rhona.

XXXXXX
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Date: 27.01.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, I don't find codydramol very good either. My gp gave me some 30mg codeine last week and they are much better. It is frustrating that the options are so limited. Have you looked into some of the new treatments for OA? I think Arthritis Research have some info. I believe they are saying methotrexate seems to work but I found it a horrible drug, tbh.

I don't want snow, sorry! It makes it hard to get around. But it is so cold today I may well snow I think.

take care everyone. xx
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Date: 27.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I didn't know anything about methotrexate being used for OA. I have to be honest after reading some of the things on here not sure I would try it. I will have a look at Arthritis research.
It is so cold here today and now it has become so dark and it is only 4 O'clock I think more rain is coming. We are paying big time for that lovely summer we had.
xx
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Date: 27.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi guys
Sorry to hear pain still about hope you are coping with it ok.
I have a stupid question - steroids - do they give us them for the pain or the stiffness?
Had a shot at end sept and am starting to feel a lot more pain again, the stiffness isn't as bad as when first diagnosed but still there e.g after sitting down for half hour I'm like ooh aah until I get going again.
Started taking the pregabilin to see if that helped me sleep, it did for a few nights but back to still wakening up in the night - sweats and husbands snoring I think! Driving me up the wall.
Sorry for bleating , just needed to get it all out.
Bugs hugs to you all xxx
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Date: 28.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well I have been out for two hours mostly window shopping and I am in so much pain now. It is cold out but I was wrapped up warm. Like you Willis and Bsk it is a case of getting on with it.
I am not going to let it beat me that's for sure. I am not ready for the armchair yet!!
So Willis that's me bleating on as well. At least on here no one raises an eyebrow at you LOL. Well not that we can see anyway haha.


Does anyone know when Rhona is due back? I do hope all is well with her daughter.

Take care xxx KEEP WARM
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Date: 28.01.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bleat away everyone!

Willis, the steroids are for pain and stiffness. Maybe you need another shot?

I don't know when Rhona is back. I hope things are ok with her daughter too.

Marlene, take care of yourself, please!

xx
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Date: 28.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening ladies, i have been wondering about Rhona and daughter, I do hope things are going well for them.

My knee and shoulder are not as good as they could be!
I am another one wondering if I could get another injection, but only had them done in Nov' and Dec' . So would Dr re do them already. May ring down for a telephone call to ask as am off to Switzerland, to see my family on 7th and need to be fit as I can be.


Marlene, hope you enjoyed the window shopping! It is hard but as you say we know we will suffer afterwards, but we don't give up.

See the knee surgeon on Monday..... Wonder if I can be brave enough to have a replacement op! I think the recovery time puts me off too, and the wondering if it will be a success too.

Poor Colin is having a rough time, isn't he. I hope all goes well for him.

Well off to get a cuppa, been very wet here today and sooooo dark. Think I get a touch of that lack of sun thingy. I have been out though so can't be that bad. No cinema this week as 12 years a slave was repeated and we saw it last week.

Have a good evening girls, I wish you big sleeps and little pains.

Big hugs. Emm x
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Date: 29.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well haven't moved much more than from the sofa to the Loo. Oh dear I really must get going I have so much pain today I just can't be bothered. Bad attitude I know.

Hope you are all ok xx
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Date: 29.01.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene
Oh dear a bad day for you, sorry to hear that
Hope you get a decent nights sleep and that tomorrow is better for you xx
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Date: 30.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well the pain is not settled. I have got up the last three days we a bad headache. I can't get hold of my gp so I am going to stop the meds for a night and see what happens.
I have to take my mum for a hearing test today not looking forward to going out as guess what the rain is falling and it is so grey out there.
I just want to close the blinds and rest.

Sorry about all the moaning and groaning lately.
Thanks for listening take care everyone.

No word from Rhona yet????? (starting to worry)


xxxxxxxx
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Date: 30.01.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, I'm suffering too. I've just taken some strong painkillers so that is my day pretty much gone to pot, as it were! I was up until nearly 3am but couldn't take anything as I'd had a couple of drinks. Woke this morning in agony.

What do people think about rain and increased pain? Do you think that is a factor?

On a more positive note, my book group friends came round last night and did EVERYTHING! One friend, in particular, was fantastic, so something I was dreading was much more enjoyable than I thought. However, even the bit of preparation I did has played havoc with my hands and my knee (standing about). However, a small price to pay.

Emm, what's holding you back from the surgery?

Rhona, I hope things are going ok for you and yours.

Lynn, how are you getting on?

xx
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Date: 30.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good afternoon ladies.

Sorry all are suffering, when will we all get a break!!!

Had a busy day today and my foot is going crazy, I can hear about 5 cracks in it when I walk, just like it was before my injections.
It is the one with the bad ankle. All connected.
I will show the surgeon and see if the ankle or knee are more needy.

Bsk, I think the long recovery and the fact that the ankle on the same leg are really bad, i have lots of questions for the surgeon. Also will it work....

I am a scary and indecisive person to start with.

I am often thinking of Rhona, but maybe her daughter needs her for a few weeks, post surgery, I am sure she will get in touch eventually. She is probably still abroad wth her. I hope all has gone well.

I think the damp weather does affect our joints too.

I want to go to Australia next February and think I am hoping I can get sorted enough to be able to do it. Would be away for a month at least. So if I get the knee or ankle done I will have to get cracking as apparentley you cannot fly for 3 months afterwards.

Hope the day gets better for everyone and their pains.

Hugs and regards. X
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Date: 30.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, in answer to your question about the rain it so makes a difference to me. I have been told and read that it isn't the rain but the high pressure that causes the extra pain as high humidity can do the same. I don't really understand it but rain or pressure it makes me worse.
Sorry you are in pain Bsk and Emma.
Bsk it is so good to have great friends that don't judge they just get on and help out where would we be without it?

Emm if my mum can do a hip replacement at 84yrs I know you could do your knee or ankle op and come out the other side very well. Do whatever your consultant suggest you know it will be the right thing. It will be worth it to be pain free again. Recovery time is just a short time in the mix of it all. Aim for that trip to Australia next year.

Take care all xxx
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Date: 30.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene,

Regarding the weather, I was in Singapore a couple of years ago and thought the humid weather wouldn't suit me but it did.
The Australian dry heat was harder work, maybe all to do with the chest problem I have!
I think our damp and cold mixture seem to go right through to the bone. The Swiss dry cold in the winter is better.
In summer though Switzerland is really hot. Just like it's neighbours. Some people think it is snow all year round,
Am being very British......going on about the weather.

I am a bit of a wimp about operations and admittedly do babble on a bit. I think I know I would probably feel down too afterwards. I will try not to bore you all any more until i know what I am doing.

Well may go to bed now, feeling tired but like everyone else, hope to get some sleep.
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Date: 31.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, no don't stop talking about your operation we are all here for you. If we can just help you a little bit!!!! I have a neighbour and she is quiet ill and should of had a hysterectomy about ten years ago but she is scared. It is natural to be scared and worried so keep posting and if we can help you with your worries we will.
Emm never feel you are boring us!!! hug xx

Well I left off the amytripline last night no headache and I feel less stiff. Well back to the pain killers until I see the GP I have no intentions of suffering for a month I have come to the conclusion that I know my body best.
Well I am out today to a local Market and then a Pub lunch. (watch this space).

Have a good day all xxxx
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Date: 31.01.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good afternoon, I am watching a weepy film on tv cos it is freezing outside and windy and raining, but soooo cold.
So am on sofa with a cuppa and a crunchy bar!
When I came in I thought oh so what, am gonna have a lazy afternoon, there is no pleasure outside in that!
Was going to go to Durham city but after doing local messages, thought OOO no, not today.

Ordered my swiss francs online today and they are coming in the morning, registered post. Great service, I always use this company, you get a better rate, this time next week I will be there.

Keep cosy everyone! X
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Date: 31.01.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Lovely Emm, Have you got room in that suitcase for a little one LOL. Something really good to look forward t.
I went out to the local Antique market and a pub lunch I have to say it was cold just as we got to the pub the heavens opened. It hasn't stopped raining since.
I have had a better day pain wise to be honest fingers crossed.

The wind is on it's way so they say. Keep well wrapped up if you are going out and about.

NITE NITE xx
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Date: 02.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi friends, I just got back from Spain tonight and thought I would leave a quick message before I head to bed. My daughter's operation went well and they managed to save the ovary although she was in a lot of pain, especially the first week but thankfully she seems to be getting back to normal again.

I have had a quick read through the posts to catch up. I am so pleased that you are going to see your daughter in Switzerland Emm, I hope you have a lovely time with her. I can also understand the worry of an operation and wondering what to do for the best, you will not meet anyone more indecisive than me and you are right to ask opinions. I wish you all the best in whatever you decide.

Good that you feel a bit better Marlene, you are right we do know our own bodies best.

You are doing well being off the steroids bsk, it is too easy to become dependent on them, if you can manage without them then that's GREAT.

Good to hear from you Lynn but sorry that you are still suffering. Let's hope something new comes along soon that agrees with you.

Hope you ok Willis.

Take care all. xx
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Date: 02.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, welcome home. So glad your daughter is feeling better bless her. It is absolutely great the managed to save her ovary I guess her pain was worth it for such a good outcome. I was getting a bit worried I don't know why I thought you were only going for a week. Your daughter must of been so glad you were there for her.
I hope you didn't overdo things and had a bit of a rest while you were there.

The weather seems to be a bit better today sunny and not so cold as yesterday. I have just about had enough of the rain now.

Take care Rhona xx
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Date: 02.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Marlene. Her operation was brought forward a week and I had to change the flight going over so we kept the original flight to return so that's why we were away so long. Thankfully I wasn't too bad although my ankles did hurt but my husband was a good help too, he walked her wee dog, he is a little rascal but adorable. It is raining here too this morning, that I didn't miss although it was quite cold over there too.

Have a good day. xxx
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Date: 02.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, so glad you are back.
Delighted for you daughter's good recovery and they saved her ovary.
My daughter had hers removed but has recovered well. She has her children and was not planning any more. They thought she may have needed a hysterectomy.

So our girls both had good results. Yippee.

I am still thinking of airport assistance for next week. I can do it online no later than 48 hours beforehand. But think I need it!

I am such a wimp.

I have got a boost of steroid tablets to help me over the week.
Needs must, I don't like it, but i really need to see my lovely family before any surgery.

Anyway, it's lovely to have you back.

Hope all other friends are not too bad today.

Hugs for all. X
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Date: 02.02.2014
From: r

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Emm. I was so worried when she was at the theatre as she was gone for ages, they took her down at 7.30pm and it was almost midnight when they brought her back but the lovely surgeon came in and spoke to us and told us it had been quite complicated as it was sticking to the ovary and it had to come out bit by bit and that's why it took so long, so glad it's over now and hope she makes a full recovery.

At least having the steroids with you will make you feel more confident Emm. I think you should go for assistance. I didn't and last night coming home I wished I had because when we were queuing up to board the plane we were put into two separate queues, the people boarding the front of the plane walked right onto the plane and as we were at the back we were told to go to thr right hand side and I got a shock when I saw a flight of stairs to go down and then we were boarded onto a bus even although it was only about twenty yards, that's when I wished I had booked it, the people that had assistance were wheeled right onto the front of the plane. It's the first time I have ever know easyjet to do that but I think it was to save time.

Take care. xxx
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Date: 02.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again Rhona,
Thanks for reply, I am easyjet and I got an e.mail saying refurbishment is underway at Geneva and to report two and a half hours early instead of the usual two. It is a large airport and always busy in winter skiing season, so this is what has decided me to go for assistance.

So glad you wrote your experience to me.

Wow you must have been so stressed, waiting for your daughter coming out of theatre. What a long time...
It is terrible waiting for the news to come back. But so relieving to hear all was well.
Will she be off work for long? Wishing her all the best with recovery. It is hard for us mums when they live abroad and they get problems!

Night night for now, I will report after my hospital appointment tomorrow. X
reply | back to forum

Date: 02.02.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Just popping on to say hi n hope you all not too bad,
Jerked my back Thursday n suffered a few days
Calling nurse tomorrow to ask if I can go in next weekend for a steroid shot, don't think ill last till end march when I see consultant
Lots hugs xx
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Date: 02.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh good luck tomorrow Emm xx
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Date: 03.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, Rhona, welcome back! I'm glad things went well with various daughters.

I've got a bad back as well Willis, I think it is sacroiliac joint pain. I slept very badly last night as it hurt every time I rolled over in bed. I'm debating whether to take some strong pain killers and sofa surf or whether to go out and try and walk it off. Mind you, I went swimming yesterday and that didn't help.

Hey ho, same old complaints.
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Date: 03.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi girls, been to hospital to see surgeon, what a lovely man, a lovely manner and a man you felt you could trust, he was thorough and you could talk to him.

We discussed my problems and we both agreed the ankle is more bothersome than the knees at present. But he does not do ankles!!!! So has reffered me to a colleague, so am waiting for another appointment.
Meanwhile, he thinks taking excess steroids is ok.

So there we are, more waiting! But will have no qualms when it comes to knees with him.
They do need doing but he is prioritising, which I suppose is sensible.

Hope all have had a good day. X
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Date: 03.02.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm pleased you thought he was good. At least you won't worry when you come to have those done, hopefully! Have you got a referral to an ankle surgeon?

I'm in agony today with y shoulder and my SI joint hurting. I don't know what to do, whether to ring my rheumy nurse or not. I've sort of lost confidence in the hospital right now.
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Date: 03.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks bsk, yes he is writing to ankle surgeon.

I am struggling too and have resorted to extra oral steroids to get me abroad and back! Shame but no other option for me at present.

I would give someone a ring, I think we all know now when we need an extra bit of something to help.
I wish there were better drugs for this horrendous disease.

No-one ever seems to be flowing along nicely for long do they?
Good luck bsk, will be thinking of you. Big hug! X
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Date: 03.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls, I'm pleased that you got on well with the surgeon Emm and I hope the ankle man is as nice. It is a shame that you have to take steroids but hopefully it will just be short term. What dose have you to take. I was on 10mg before the rituximab. We have to do what we can to get a bit of relief. Not long now until your trip. Have you booked for assistance yet and how long are you going for? Have a great time, it will be lovely to see your family again.

I hope your shoulder eases off soon bsk. I wasn't feeling too bad this afternoon and I went to the supermarket and came back with a delicious chocolate sponge and made myself a cuppa tea and had a slice when I came in and would you believe within twenty minutes my wrist and hand got really sore, makes me wonder if it had any connection. Perhaps a lot of what Sean says is true. Anyway, hope you feel better soon.

How are you Marlene? Is your back any better Willis?

Take care xxx
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Date: 03.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Emm & Rhona, I'll see how I am in the morning. Currently in a codeine induced blissful pain free state.
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Date: 04.02.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi
Glad you felt at ease Emm, always helps.
Good to see you back Rhona
Don't think this weather helps any of us at all
I spoke to nurse this evening and as I only had jab in sept she is reluctant to give me another one so soon
Has suggested doc visit for anti inflammatories like naproxen or ..... I can't remember what other she mentioned
I have ibuprofen 400mg the doc gave me a whilst back so taken one of this earlier and feeling bit better
She said get something from doc and take for 7-10days and if not helped then go see her -she reckons a flare of sorts is what is up. So will call docs tomorrow but not sure instill get appt ! So ibuprofen it is till I do.
1.23 am so best get to bed as meant to be seeing two nvq students tomorrow and can't do that half asleep lol
Lots of hugs to you all
Xxx
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Date: 04.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Woke in severe pain this morning so phoned my lovely nurse. I've got an appointment to see my new consultant tomorrow morning. Nurse things I'm in a flare, even with low inflammatory markers.
On the codeine again today. Let's hope they can work out what is going on tomorrow.

Hope all are well here. xxx
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Date: 04.02.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

oh bsk sorry to hear you're in such pain. i do hope they can help when you see them
i took ibuprofen and it actually seems to be helping although sitting here typing isnt' :)

hope you all have as good a day as possible girls
xxxx
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Date: 04.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, oh so sorry to hear you are suffering Bsk and Willis. It just wants to make you swear. My old Nan used to say it is enough to make a Saint swear and I always thought NAAAAN, but now I know what she means.
It is freezing out to-day, so I will be staying home.
Managed a Drs appointment on the 13th trying a different GP so lets see what happens this time.

Hope your appointment is a good one Bsk.

Take care all and keep warm xxxxx
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Date: 04.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Marlene. The codeine (30-60mg) helps. Slightly dreading going through everything again with a new consultant but it can't be avoided.

Hope your new GP is good.
xx
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Date: 04.02.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hiya
Couldn't get doc appt so still on ibuprofen but as I said it is helping a little
I hate taking them , like you say to Colin - all these drugs - what else are they doing to us ?
Hope you all keeping warm thru this awful weather
Lots of hugs
Xxx
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Date: 05.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope everyone is feeling a bit better this morning. Let us know how you got at your appointment today bsk.

Don't know what is wrong with me but I'm feeling really down at the moment,though it doesn't do to think and worry too much about things, or so I tell myself. On a brighter note, I noticed lots of lovely little snowdrops in my garden yesterday, it will be nice when all the flowers and plants come alive again, spring is just round the corner (well I hope it is)

Have a good day everyone. xx
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Date: 05.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you are down, Rhona. Are you worrying about your daughters or yourself? Do you have friends you can talk to about stuff (apart from us, of course!) I have one snowdrop in my garden which gives me great pleasure every year!

I had a good appointment in many ways. My new consultant is very nice and explained to me quite clearly that people with seronegative arthritis quite often have low inflammatory markers even when they are flaring. she examined me throughly and said I should start another dmard, start oral steroids and have an injection. So much for no disease activity that other doctor said. I knew she was wrong, that's why I was so upset.

I am flaring, lots of joints painful and swollen, apparently and the X-rays showed I have very little OA in my knees, not enough to cause the pain I have. I've also been referred for a scan and injection into my shoulder and thumb and also for therapy on my hand.

The down side is that I have to go back on the drugs. I'm not happy about that at all and need to consider my options.

I can't believe that last consultant was so dismissive but I am very glad I have switched.

On the sofa with painkillers and about to watch a dvd. I need to rest today.

Take care xx
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Date: 05.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

No wonder you were angry with the last consultant bsk. I think I told you when I was in hospital as a patient last year and they brought students to see me the consultant told them always to remember that the ESR doesn't always have to be high to be in pain. I guess you will have to think seriously now about what you want to do. If possible try and stay off the steroids, I hope you feel better soon.

I'm alright bsk. I think I just think too much about things, especially when I am lying in bed at night. I went for a facial this afternoon it was lovely and relaxing, nice to give ourselves a wee treat now and again.

Hope everyone else is doing ok. xxx
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Date: 05.02.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Rhona. It's very hard to stop your mind at night. Do you do any relaxation exercises etc? I find they help a bit.
xx
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Date: 05.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,

Sorry to hear all are suffering, me too, the pain in my legs is aweful, sometimes I wonder is it coming off my knees and ankle or is it the bones themselves!!!

I did book assistance. Yesterday, came in from Durham and thought I must do it I am really struggling and wouldn't want to tumble down the airplane steps. When out in the street I dread anyone bumping into me as my legs feel so fragile, I feel I would go down with the slightest knock.

I have not let it stop me getting out but it is certainly not pleasant.

Rhona I hope your daughter is getting well. It's hard for us mums not to worry. I will see mine soon yippee.

Bsk I am pleased you had a good appointment and seem happier with the findings.

Keep as well as you all can. X
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Date: 05.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad to hear you booked the assistance Emm - very sensible. I do hope you have a lovely time with your daughter and that your pain eases off, poor you having so much pain in your legs, it is horrible, I really hate when my feet are sore, I feel I can suffer pain elsewehere a bit easier but not my feet or knees. I will be thinking of you and really hope you manage fine. When do you come home? Take care xx
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Date: 05.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Rhona, only there a week.

When I booked assistance, it was tick boxes online, and I ticked can't walk far, then it asked if you can manage stairs so I said no, (probably could but very slowly and am afraid someone in a hurry pushed me.) there was no where to write this) as I said the questions are set and you just tick boxes.
What I was wondering is how do I get up, do they walk up with you or do it some other way.

I know what I am like, I am going to feel a nuisance and embarrased.
But you can go back on line and cancel.
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Date: 05.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening Ladies, I have read your posts and it seems we are all suffering in different ways.
OH FOR THE SUMMER at least it makes us smile more.
Snowdrops are so lovely. I have little white flowers in my garden I haven't a clue what they are but they are flowering already and I can see them from the kitchen window and I just thought how lovely they look. I really should google them.

I hope you all sleep well. It is so windy here again and of course raining.

Take care chin up and keep warm xxxx
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Date: 05.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm, you usually go to the assistance desk (or wherever they tell you to report to) and report in and they get you a wheelchair or a buggy. They take you through everything. You don't have to worry about anything, they will even get you on and off the plane if you need it. Don't do anything you don't feel like and have a good time!
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Date: 07.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well the rain has just about stopped here.
I hope you are all good today!!

Emm take all the assistance at the airport and arrive fresh and enjoy your holiday with your daughter.

Rhona how is your daughter doing? I hope you are resting up a bit.

Bsk how are you?? I am fed up with this weather I need to get out a bit more. I am off out Saturday for a while so fingers crossed it stops raining for a bit.

Willis are you ok?

Lynn haven't heard from you in a while hope you are feeling ok.

Ladies take care and keep wrapped up if you are going out.
xxxxx
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Date: 07.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It is quite bright here today Marlene but I haven't been outside yet to see how cold it is. My daughter is back at work now and seems to be recovering well, she will see the consultant next week to make sure everything is ok.

How are you today Bsk, Willis and Lynn?

Emm will be on her way to Switzerland today, I do hope she manages alright with the travelling but getting the assistance should make it easier for her.

Have a good day everyone. xx
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Date: 07.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Gah! I've got elevated liver enzymes. They now think my previous high levels weren't to do with sulfasalazine at all. I've got to have a liver scan but it's probably fatty liver from the steroids. I need to control my diet a bit. I'm only about 101bs over what I should be but I think it helps to cut down on fat etc.

It's a never ending **** saga.
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Date: 08.02.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

hi all
well the sun is shining and the water is falling from the sky at the same time! like being back in scotland lol

hope you are all having a good day
emm if not already left - have a good trip

rhona - hope all well your end

bsk - well, yes quite, at least they have found out it wasn't meds but perhaps caused by other meds! maddening for you. hope your resting and not in too much pain.

marlene - hope you are keeping ok

lynn - hope you ok whatever you're up to hope its fun

I didnt' go to doctors in the end - just carried on with the ibuprofen - kinda figured that they'd only give me same strength tablets anyway and it has helped so saved the doctor time i suppose.
At least another 3 months before we feel any real heat in the air - as kids we were laughed at for 'wishing our lives away' and yet here i am wishing it away to warmer months :)
have a good weekend ladies keep warm x
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Date: 08.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

HI ladies from beautiful Switzerland !!
Brought my I Pad, just had a quick browse at the posts.
Just to let you know my first experience of assistance was marvellous!
It did make it so much easier. I did feel a little embarrased in the chair but it did make everything sooooo easy.
Glad I listened to you and used it.

Just had a lovely lunch out in Vevey, en route the scenery is beautiful, snowy mountains and blue sky. AHHH makes me feel good.
Treat my grandson to trendy shoes. But it is a joy to treat them.
Rhona am pleased your daughter is back to work.
Hope everyone finds a relief soon.

Regards Emm x
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Date: 08.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh how lovely Emm, I would love to go to Switzerland, lovely fresh air and beautiful scenery. So pleased that the assistance went well for you. Have a lovely time with your family. xx

Bsk, I hope they find out what's causing the elevated enzymes, sometimes this happens and then they return to normal again.

No sun in Scotland today Willis, just rain again but thankfully no floods here.

Hope all is well with you Marlene, thinking of you too Lynn and hope you are not in too much pain.

Have a good weekend everyone xx
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Date: 08.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Afternoon Ladies,
Bsk what a nuisance this all is for you. You must wonder if you are coming or going. Fingers crossed the enzymes drop on their own.

Emm so glad you used the assistance now get on and enjoy that holiday. I love treating the Grandchildren as well and why not????
Sounds just wonderful where you are never done Switzerland sounds just lovely.

Rhona we are still getting wet here LOL. At least the sun pops out in between the storms!!!

Willis, your post made me laugh I remember wishing the summer holidays were here and Christmas the Easter and my Mum saying don't wish your life away. Like you I can't wait for the summer. LOL


My neighbours husband had the flu and has become so ill he is now in ICU. They are such a lovely couple and helped me no end when my Hubby was laid up. I am so upset for her. He is 67yrs and I am so shocked that he has become so ill. I have been shopping for her and keeping her company I just don't know what else I can do for her. I am just trying to be there for her.

I really could do with a little something a bit sweeter to happen. I am actually going on line to see if I can find a little cottage in Yorkshire to rent for a week. The last week in May springs to mind just to get away hubbby and me for our anniversary. I need a break from it all. My daughter has volunteered to have my Mum and the dog. Bless her.

Well have a good week-end all and take care.xxx
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Date: 10.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That is a shame about your neighbour Marlene, she is lucky to have you as a neighbour. A break would do you good and May is usually a lovely month for a holiday.

My hand has been so sore today, it feels like it is broken.

Hope everyone is doing alright.

xx
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Date: 11.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, you poor girl that hand sounds awful rest it on a hot water bottle. So pleased your daughter is doing well after her op.

I am booking a cottage in York for a week. We haven't visited this part of the country so will be lovely to have a look around. Seems like there is plenty to see. Hopefully we will be back to our favourite Island in November for a winter break. We have really missed not going this winter.

Rhona my neighbour is so sick they have put him in an induced sleep. He is Stable but Critical. I have just chatted with Carole his wife she is so lost and throwing all her trust in them getting him well. Fingers crossed. Life is very fragile!!

Take care Rhona xx

Bsk Emm Willis and Lynn I hope you are all ok. Take care xxxx
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Date: 11.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That sounds lovely Marlene and I hope you manage back to Feurty in November. My hand feels a bit better but I've not been using it too much today. I went to the hairdressers today and got my roots done. Perhaps I should just grow old gracefully lol.

How is your neighbour today? I hope he pulls through, it is frightening how quickly these things can happen.

We have had some snow showers tonight and it has turned really cold here, a night for the fire.

Take care and keep warm.
xx
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Date: 11.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, Glad your hand feels a bit better. Rest it until it feels good again.
I was just saying today I need my roots done. Grow old gracefully Why? I would like to grow old disgracefully LOL.

My neighbour is still critical so fingers crossed.

Oh Rhona snow showers just has me shivering at the thought. The fire sounds good keep warm!!!!
Take care Rhona.

Hope everyone ok!!!!!! xxxxx
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Date: 12.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, I have noticed you haven't posted Bsk are you ok?????????
Willis are you alright???

Bracing myself for the storms on the way later. I think we all have suffered this awful weather long enough. Those poor people must be so deflated. Until this rain stops not much will help them bless them all.

Take care everyone xxxxxx
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Date: 12.02.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
not been on marlene as been too sore and down and miserable. finally got to the doctors yesterday after the tears wouldn't go away and after the rhuemy nurse saying i've got to have tablets the doc wasn't sure which ones to give me knowing that they upset my stomach so she called the hospital
she came back to me saying they said i could have tablets or steroid injections! so i took the injections and can feel the difference this morning already! she also gave me sleeping pills so i finally got a better sleep last night. still work up a few times but feeling alot better than i have since mid Jan. long may it continue.

this cold weather is just brrr horrible and i hate the thought of having to go out in it. hibernation sounds good.
hope your neighbour improves and that his wife is holding up ok

Rhona i hope your hand is bit better today and you are ok within yourself

bsk how are you feeling today, have any of the meds helped? i hope so

lynn hope you are ok whatever you are up to ;)

have a good day all for me it's a small stroll with dog then couch, hot water bottle and that's about it i think.

sending hugs to all and all on forum xxxxxxx
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Date: 12.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, sorry you have been having a rough time of it. Glad things are easing for you after the Steroid injection. I hope it helps for a while. It is brow beating I'm off to the Drs. again tomorrow. Not sure what they will suggest next. Whatever it is I will give it a go.
I was so fed up last week had a few tears quietly on my own what can we do. No matter how strong we are we are only human and it gets to all of us this constant pain and feeling low.
Roll on the warmer weather!!!!

Take care Willis and don't overdo it take it slowly otherwise you will be back to square one.
XXXX
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Date: 12.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, sorry I haven't been online but things improved with steroid injection - glad yours is working for your Willis.
Marlene, sorry to hear you're having a rough time too. It's much as usual then!

rhona, Emm and others, hope you are all doing well. This weather is something else, it was like the end of the world today.
xx
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Date: 13.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Very windy here today but when I hear about the floods and winds over 100mph in some places I can't complain. I hope no one on here has been affected by the dreadful floods or gales.

Sorry to hear you haven't been so good Willis and feeling quite down, the steroid injections can work wonders, long may it last.

Good to hear that you are feeling a bit better bsk.

Hope you are alright Marlene, how did you get on at the doctors today?

I think Emm will be home tomorrow, I'm looking forward to hearing all about it.

Lynn, I hope things are improving for you.

Take care everyone. xx
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Date: 13.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

HiLadies, well I went to gp not really bothered with my OA today psoriasis is pretty bad and so is my chest. It seems that my last chest infection didn't clear up.
SO two lots of antibiotics to take along side one and other and a five day course of steroids.
Then a steroid cream for the psoriasis. So I will be laid up for a bit plenty to be going on with. As long as this chest problems clears up a bit worrying after what happened to my neighbour. I have to say I did mention that and the Dr knew who I was talking about so maybe they are just being careful.
Oh well I am sure it will sort it's self out. Now I know why I feel so rotten. That is the trouble with this Arthur it covers up so much. I just thought all my aches and pains was the Arthur. I have an appointment for my OA GP in a couple of weeks.

So far we have not been affected by the storms. Rhona when I see the news it is heart breaking for those poor people. The wind yesterday was awful and I was waiting for something to happen it was so noisy as well.
It will be good to hear from Emm and all her news.
Take care Rhona and stay warm it is very cold here today.

BSK so glad you are on the up. You deserve a bit of respite from it all. You take care and I hope the storms haven't affected you.

Take care all xxxxx
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Date: 13.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Marlene I didn't know that you suffered from psoriasis as well as OA and to have bother with your chest as well is not good, you poor wee soul. Let's hope the antibiotics clear it completely this time. I remember years ago when my daughter was young and she suffered from asthma and we took her to a specialist as she always seemed to be getting chest infections and the specialist said when the doctor sounded her chest and said it was infections it wasn't always the case, he said it was her asthma but to the doctor in sounded like it was an infection. If you are prone to this Marlene it might be a good idea to see a chest specialist, you should feel better though with the steroids, this weather is not good for us and for anyone with chest problems or arthritis.

I haven't been across the door today, it was too windy and cold, I am turning into a right softie. Tomorrow, regardless what the weather is like, I am going out, before I go insane.

Take care Marlene and keep warm. xx
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Date: 15.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone, well after the night storm I hope you are all safe!!!!!

Rhona, luckily I have a mild form of psoriasis just on my knee and a small patch on my leg. I usually keep it ok but it is a bit angry at the moment. I also get very dry skin in my ears that sometimes has my hearing not so good LOL. I also had to get a steroid spray for that. So full of steroids for the next week. Not too happy about it but I need to get well. The antibiotics seem very strong and have me feeling a bit sick all day. I will have to grin and bear it its only 7 days.
This week end my husband and son are fitting the Log Burner it will be lovely but not looking forward to the mess. They have to alter the fireplace.
My neighbour still in Critical Care on life support. It is so awful I can't tell you. I can't believe all this from the Flu. I hope everyone on here sees this post and gets a Flu Jab done every year.

I hope you and your family are all well. Take care. X

Bsk Willis Emm and Lynn hope you are all good and take care in this awful weather XXXXX
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Date: 15.02.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
this is a winter we are having.. i don't remember winds so bad since being here 20 years! my poor wee garden is being destroyed and all hubby and i can so is sit and watch.
got appt thru to see nurse next week, can only assume it's since being allowed the steroid jab. feel like i've a cold or something but assuming its' from jab too and what it's doing. i do feel so much better though
sorry to hear you're still feeling so bad marlene. we spend most of our days just getting up and on with it and I feel stupid moaning about aches and pains but some days just can't help it.
so any of you get head frazzle? If i try to think a week ahead my head just overloads and find it hard to cope! also start a panic attack thinking i've forgotten something or i must do this or that.
oh listen to me prattling on, sorry
hope you all have a warm weekend and be careful out there if you venture out.
lots of hugs
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Date: 15.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, sorry to hear your neighbour on life support. I hope they can get on top of it. It's shocking what flu can do. Sorry to hear, also, you are suffering. I read Colin's comments on the other thread and maybe he's got a point.

I'm doing ok and got the good news my liver results had gone back to normal. My nurse and I think my liver results go up when I'm in a flare and the steroid jab had bought them down. I haven't come across other people with this. Maybe I should start a thread.

Hope you all take care in this wind. Pretty wild here last night but trees still standing this morning, though I can't vouch for the rest of the day!
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Date: 15.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, I am home, sadly, but have had a wonderful time with my family.
Switzerland was mild, sunny and beautiful. Some days I was in the garden with a cuppa, in just a t.shirt, brushing the dog! And getting some sun on my skin.
Had some lovely trips out for meals and treating my grandaughter and grandson on a shopping trip.
The scenery there is amazing, everywhere is up or down and as you drive long you see the snow tipped mountains and lake geneva set at the bottom as you wind your way down. It really is breathtaking.

Family values are much more in evidence there and I notice the difference in the way my grandchildren have been brought up. I know I am biased, but I am so proud of them.

I took extra steroids whilst away, just so I could enjoy my week without struggling too much. It worked but will now wind them down!

I am definately going to Australia next February for a month, with my friend and then staying with another friend over there!
Christmas in Switzerland and Australia in Feb, can't wait!

So will see ankle surgeon and knee surgeon again and see if that is the route I will have to take to get more mobile.

Airport assistance was fabulous, can't praise them enough and wouldn't hesitate to use it again. At both airports.

Well must go shopping in a bit for food.

Hope I haven't bored you all, but I think as I only see my family about three times a year I get a bit carried away.

I noticed the damp in the air as the aircraft door opened, and know my joints will be back to aching before long.

Sorry all are suffering at present. Best wishes to all. X
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Date: 15.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, firstly so good to hear your liver results are now normal. This Arthur sure has a lot to answer for. I think a thread would be good sometimes people just don't know what is going on. Reading your thread could help others!!!
I find all the info on here is so positive and I definitely have learned a lot.

Willis our neighbours fence was damaged and the cottage is empty and up for sale. My hubby went round and did his best to prop it up as we have a dog and she is very nosey LOL. We haven't had a lot of damaged small branches and things blowing around. Had to go into the garden and retrieve the wheelie bins and contents. Lovely at 8O'clock in the morning. The paper bin had emptied and blown everywhere and we have a large garden so fun was had by all.(not).
When you work hard in the garden all summer and then the force of nature batters it what can we do but just watch. My neighbour has her plate full and now she has trees down and her swimming pool enclosure has been quite badly damaged. It never rains as they say. The wind is still wild here!!

I have to say the steroids are helping my pain so much. One painkiller in two days YEAAH. I know it won't last as I only have a weeks worth I will be making the most of it. To be honest not sure if the powerful antibiotics have something to do with it as well??
Bsk that's why I find every ones stories fascinating as I have notice certain meds for other things seem to help the OA.

Well I need to stop rattling on. Take care and be safe in the wind if you have to venture out. XX
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Date: 15.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, I am so pleased that you had a lovely time with your family, it sounds beautiful in Switzerland. I can almost smell the fresh mountain air see the snow tipped mountains, like icing on a cake. Now that you have tried the assistance you will feel much more confident travelling again, and my goodness - Australia. A right jet setter you are becoming lol.

Great news about the liver results bsk. Perhaps it was all that wine over Christmas (only joking) but you will be relieved, and starting a new post is a good idea.

Willis, I think what you describe is quite common, it's hard enough coping with pain and our heads can get a bit too full of things, try and find a little time to relax, although I think the drugs can cause that too.

Marlene, your poor neighbour, I hope he pulls through. How lovely to be getting a log burner, I would love one and it will be so cosy in this cold weather.

I hope the winds die down for you all, it has been windy here too but not nearly as bad as you have been getting.

Take care all xxx
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Date: 16.02.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Ha ha Rhona! Feeling the benefit of steroid jab much more this weekend. It's a relief but I know it's not going to last forever. I've got about a million scans coming up. Fingers crossed they are all clear.


Lovely day today. Blue skies and sun. Felt like spring alright.
xx
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Date: 17.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, hope you are keeping well. I have read all the posts and you seem to be on the up and it is about time you all are getting a bit of relief.
I have to say the steroids I have been taking have had my pain much less. Sadly I only have a weeks worth so I expect the pain will be back soon. I have to say I am grateful for a bit of relief.

Take care everyone and stay well xxxxxx
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Date: 18.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Hope you are all ok. Thought I would pop on before going to bed. I have earache tonight, not sure if it is coming from my shoulder, as it is sore too. I have my rheumatology appointment in the morning and if I feel alright I might head into town afterwards.

Did you get your log burner operating Marlene? How is your neighbour doing?

Nite nite all and sleep well. xx
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Date: 19.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good morning all, It is a beautiful day here. I had a jumper on and had to change to a three quarter T shirt as I was too hot!
Winding down my steroid dosage now, am back to more pain and niggles but I know that will happen. Got waist level back pain now.
Not got ankle specialist appointment yet.
I couldn't get to sleep last night it was after 4.30 when I nodded off and was awake after that too. Just was not tired!
Had my blood test yesterday and she said there was a trace of glucose on the test strip so have to go for a fasting test on the 3rd March!
Is it caused by my upping my steroids. hope am not going to be diabetic!!! Have enough probs. sorry I always take a urine sample too every month!
Has anyone else had this, any comments welcome.
Poor us we just have problem after problem. Good we have each other!
Have a good day everyone, regards Emm x
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Date: 19.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, It's not so sunny here today, it's been drizzly all day. I often get nights when I go to bed thinking that I'm really tired and then not being able to sleep for hours. I have had glucose in my urine too and sometimes a bit protein, when that happens the nurse sends it away and so far it has always came back alright. I was told at the hospital that can sometimes happen and they don't really know why. I always get my blood checked in the mornings before I eat anything. It may well have something to do with the steroids. Take care. xx
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Date: 19.02.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi All
well Emm you are having a time and a half, I know the feeling about the sleep or lack of
these sleeping pills are helping but not taking one tonight as after a week i can feel the constant tiredness now and feeling down again
head is a muddle and it was before without them :)

think the arthur is on the rampage again as hands are swollen up and down , knuckles struggling to bend! feet - well i just won't go there lol

was quite sunny here today and even warm for about 2 hours, nearly time for the march snow then spring will come :0

i hope you are all holding your own , that all gadgets in home are working and that meds are doing something positive

lots of hugs
xx
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Date: 20.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, how are you all. Sorry haven't posted in the last few days. I see the Arthur is relentless for some of us. I'm just waiting to see what happens when the steroids I was taking wear off!!!

Rhona the Log burner is nearly in there was more work than expected and of course more work more mess. LOL. You asked how my neighbour is doing...... Not so very well. He is still critical but he is now breathing by his self. They have told his wife it could all change again for the worse. I feel so so sorry for her. I am trying to support her the best I can. They were so good to us when my hubby had his back problems and then his op. To find such lovely new neighbours and then this happens is horrible to say the least.

I hope you are all coping well and this weather is not too bad where you are. I will post soon.

Take care all hugs xxxxx
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Date: 21.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope everyone is doing ok. Going to bed shortly and hope I manage to sleep tonight, I was still awake at 4am this morning. My shoulders are really hurting and making my head and ear feel so heavy and sore.

Have a good weekend everyone and I hope the sun shines for you wherever you are. xx
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Date: 22.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, sorry I haven't been around, typing hard with my shoulder etc. I'm going for a about a million scans this next week of various bits, including one for my shoulder with possible injection. Hopefully, things will improve. Hope you are all ok.
xx
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Date: 22.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well steroids finished three days ago and onslaught of pain is terrible. Full on pain meds. My Gp for OA is on holiday so won't be seeing him for two weeks. I have just gone back to my old painkillers until I see him.
Just as well I still hung on to the Tramadol and CO-codamol.

Bsk I hope you get that injection for your shoulder. Hope all the scans go well.

Rhona I also have a bad shoulder that gives me a neck ache then the head ache starts and before I know it I have to turn my whole body rather than just my neck. Seems we are all in the same boat at the moment.

At least the sun has been shining all day and I actually had a coffee in the garden earlier. Have a good week-end all xxxxxx
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Date: 23.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

My liver is in good shape, according to the scan. So I can get back to my usual bad habits! More scans tomorrow and Friday.

Sorry to hear things have got worse again Marlene. I hope you can see you new gp soon.

Why have we all got shoulder problems?
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Date: 23.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I have no idea Bsk where the shoulder problems come from. Just too much over use I think LOL.
Joking aside not a clue. I have OA in my left shoulder considering I am right handed doesn't make much sense to me. I would have thought the more use the more damaged. Who am I to make any sense of it all? !!!!!

First evening with the log burner so cosy. The mess was worth it.

Take care all xx
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Date: 24.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, just to say I am also a 'shoulder' person, it is my left one. Xrays show it is bone on bone like my knees and ankle.
I worked all my life and it is repeatative use.
My friend of the same age, with RA also has it.
Some days you cannot reach to comb your hair with the left arm or stretch down to pull the left sock on.
But do you all find a sort of tingly muscle in the upper arm, down from the injured shoulder?

Got a bad chest at present and a very dry tickly cough.
It wears me out, I go all hot with a coughing fit!
Oh I may have to miss the cinema this week as it will annoy all the audience. That is Tuesday, so will see.

Oh well, had a good moan to you all.
Keep as well as possible. X
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Date: 24.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm, make sure you get something for that chest infection I have just got over one and my GP said there are a lot of nasty ones out there.
The shoulder problem is a real nuisance as it stops me doing a lot. I do get a lot of pins and needles in my hand this apparently is a nerve thing coming from the shoulder.
I hope you get to the cinema!!!!

I love a good old moan at times LOL.
I am having a few days out over the next three weeks my daughter is taking the rest of her holiday. Birthday on Thursday so out all day it will be lovely to spend some mum and daughter time. My daughter always takes my birthday off from work so we can go out. Not sure what we are going to be doing. Watch this space.

Take care have a lovely day hope you all have the sunshine. XXXXXX
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Date: 24.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, hope everyone's shoulder is a bit easier tonight, mine is a little better. Sorry to hear you have a bad chest Emm. Have you been to the doctor about it?

Good news about your liver bsk, now you can have a wee glass of wine again lol. I hope the scans will be fine.

Your fire sounds fab Marlene - I want one lol.
Oh and a lovely birthday treat on Thursday to look forward to. Hope you have a great day whatever you do.

Hope everyone else is well.

Take care and sleep well. xx
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Date: 24.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, sorry to hear about coughs and shoulders etc.

My MRI scan on my hands today was agonising as I had to lie on my front with either arm stretched above my head and hold it for ages - I was there for an hour and a half and my shoulder very painful by the end. Let's hope they are clear. 3 scans down,two to go!

Marlene, I can't believe it is birthday time again! I hope you have a fabulous day.

take care everyone.
xx
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Date: 25.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, oh Bsk I know all about those scans fantastic things but leave you very sore after. I hope all is well with the results.

I know I was saying we have been in the cottage over a year just flown by. I am only 63yrs still young at heart and in the head but my joints let me know different LOL.
My hubby bought a TV for the spare bedroom so when I can't sleep or need a bed of my own I have something to watch. Lovely prezzie and lovely idea. I might just be using that room a lot more LMAO.
Rhona the log fire is so cosy and I do feel like a right old lady curled up on the sofa watching the flames haha. The dog hates it (poor girl).
This country life definitely suits me.
I bought some cheap plums yesterday and I am going to make some jam tomorrow. I have become a little countrified.
I sometimes miss the bustle of London but not for long!!!!

Take care Bsk Rhona Emm Willis and Lynn xxxxx
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Date: 25.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening girls, I got to the cinema and saw George Clooney in Monument men, very good it was and I didn't cough much!
Think I am a little better today, so thats good.
Bsk, what a lot of scans you are having, I have never had one but am hoping they do my legs when I see the ankle surgeon.
Are you going to be having any surgery?
Forgive me if I have forgotten why you were having them.
Marlene your fire sounds great, my daughter has one in Switzerland but they don't use it unless it is super cold as they have under floor heating. It is so cosy when it is on though.
I know what you mean about 'watching the flame, very therapuetic.
Rhona I have got antibiotics. I hope you are good at present and that your daughter is well now.
Lovely day here today and yesterday too, they are getting longer now too.
Thursday am going to the theatre to see Buddy Holly story, another reason I am glad the cough is past the dry stage.
Marlene a very happy birthday for Thursday.
Rgards to all, Emm x
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Date: 25.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad you have got antibiotics, Emm, I hope they kick in soon. Scans are 1) bone density to check for osteoporosis, 2) liver for high liver blood results -but this one fine 3) mri to look at what kind of inflammation I have in my hands, if any 4) shoulder and possible injection 5) base of thumb and definite injection.

I'm not going anywhere near the hospital after my appointment with my consultant on Monday!
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Date: 26.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Wow bsk, what good care you seem to get! I have actually asked for a scan before and was told why do you want a one, we know you have RA!
I would just love to see the extent and have heard scans show much more than xrays. I am hoping the ankle surgeon asks me to have one, the knee surgeon just looked at an old xray that is a couple of years old.
I know how you feel about being at hospital constantly.
It is a pain, and never ending. Take care x
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Date: 27.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Happy Birthday Marlene, I hope you have a lovely pain free birthday today...Have fun...xxxx
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Date: 27.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

And from me too! xx

Emm, I do get excellent care. I just wish I could have a break from it all.
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Date: 27.02.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Happy birthday. Marlene
Hope you had a lovely day

Hi all, hope you all coping ok
Xx
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Date: 27.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, thank you all!!!
I had a lovely day out not too much pain. I did a bit of shopping all things for the house. I found the perfect Duvet cover for the spare room. A few bits for the kitchen. I went for a Pub lunch with my daughter lovely place.
I have another fruit tree so now I have Cherry Plum, Pear and a Damson tree orchard coming along nicely!!
I have seen all the children and my grandchildren over the last couple of day so it has been lovely.
I am now resting as I feel a little shattered and the back is throbbing very nicely LOL.

I hope you are all ok.
Nite everyone and sleep well xxxxx
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Date: 27.02.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I am coming for damson crumble in the autumn!
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Date: 27.02.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to hear that you had a good birthday and a successful shopping trip Marlene. You will soon be making lots of lovely jam with all that fruit.
It has been very wet here today and I have been very lazy. I am spending that much time on my laptop that I am wearing all the keys away lol.

Hope everyone is doing alright. xx
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Date: 28.02.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You would be more than welcome Bsk.

I had lovely day paying a bit today but that is normal LOL.
Going to see Wicked Monday night tickets were a Christmas present looking forward to it.
I am also going to book that week away at the end of May going to York. Will be looking on the net tonight with hubby. My son and family are going to Zante for a week in August so that has give me a push.

Good news my neighbour is on the mend he has a Trackky fitted sorry can't spell it but I am sure you will know what I mean. He is sitting in the chair today for the first time and can now hold a small conversation. Very tired but improving slowly. God love him!!!!

I hope you are all good it is so miserable weather wise today and I see that SNOW word has been mentioned. My Plum Cherry tree is absolutely smothered in white blossom so pretty. I also noticed my sun daisy is in flower. Spring must be on its way for sure. (it is isn't it?) LOL.

Take care all and stay out of the rain. XXXXX
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Date: 28.02.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies. Marlene we have such a beautiful day here, sun is bursting the sky!! Yesterday was good too. Sorry you do not have the same as my spirits are really lifted.
Oh you paint such a lovely picture of your garden, I agree the blossom trees are lovely. I hope you get our lovely weather tomorrow Marlene. Pleased to hear your birthday was a lovely day for you. Oooo enjoy 'wicked'
I went to see the Buddy Holley story at the Theatre yesterday. Afternoon performance, my friend and I had a shop then lunch and the Theatre at two o'clock. Oh it was good. Great music, we had a little dance in the aisle, ( more like a bit of a shuffle really by me.) you just couldn't help it, carried away with the music...
Of course I am hobbling even more on my ankle but no gain without pain as they say.
It is the 25th year anniversary of that show, wow wonder why I never saw it before! Is at our local Theatre for a week.
Rhona you too have rain, aw, hope you get our sun soon too.
I have been washing, grocery shopping and like you am now surfing for an hour. Hope you are keeping not too bad.

Best wishes to everyone. Emm x
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Date: 02.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Hope you are all doing alright. That's good news about your neighbour Marlene. Enjoy your night out on Monday. I am off to Aviemore tomorrow and staying overnight. I do like it there. We are leaving the car and travelling by bus this time (I have a bus pass now) so going to make use of it. lol.

I like all the Buddy Holly songs Emm and good for you dancing in the aisles.

My shoulder is very sore tonight but I am off to bed now and hope it feels a bit better in the morning. I am looking at the time on my laptop and it is now Sunday, still early for me 12.40 so off to bed as I have to be up early in the morning.

Take care everyone xx
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Date: 02.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, enjoy your stay at Aviemore. I googled some pictures it looks absolutely stunning. ENJOY!!!!
I see you are a night person like me. Somehow my pain totally changed my sleep pattern. I still get up in the mornings less hours sleeping is a better quality sleep for me. Take care xx
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Date: 02.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I was awake at 3am , beautiful morning here.
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Date: 03.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk good luck today.
Lovely sunshine here today.
Going to see Wicked tonight.
Take care all have good day.

xxxxxx
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Date: 03.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, enjoy Wicked, sunny here today too. Been for fasting b/ test because glucose showed in sample,
Rhona, hope you had a 'wicked' time in Aviemore, beautiful place.
Bsk good luck hope all goes well.
Regards to all.
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Date: 04.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, well Wicked was exactly what it is called WICKED. My hubby not really into musicals but he said the best show he has ever seen. If the show comes near you see it.
Went for a meal first had a little tipple. We
had a fantastic night.
Lovely sunny day here.
Going out for Lunch on Thursday with Mum and my daughter. Mum has to have a hearing check and it is a very pretty village so making a day of it. I will pay the price I know but it will be worth it.
I hope you are all good and are all enjoying the sun.
Take care xx
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Date: 04.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Unfortunately it's not sunny here today Marlene, it is quite wet and windy although the weekend was nice. It was a good bus journey up to Aviemore and some nice scenery on the way and lots of snow on the mountains, you see so much more when you are on the bus. I would have liked to stay longer though.

Glad you enjoyed the show, I like to make a night of it to when I go to the theatre and go for a meal and a refreshment beforehand.

I hope everyone is doing alright today.

Take care xxx
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Date: 04.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello all, been to see The Book Thief today, what a great film, I cried my way through most of the last 45 minutes.
Well worth a trip to see it girls.

Rhona am glad you enjoyed the bus trip, the scenery is outstanding up there.

Got some naproxen prescribed this morning, to try to help with inflammation and the tummy protector tablets. Dr said just take when in bad state, use my judgement as this is a trial. After all these years I have never had them before. Also told him of very dry mouth and eyes, got some pastilles for mouth but Boots did not have them in till tomorrow. Has anyone else had these? and a different eye drop in the form of viscose gel.
The Battle goes on,,why can we never get on top of it all.
Keep well all x
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Date: 04.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Tell me about it, Emm. Went to the eye hospital today and I have to have a small op in my conjunctiva in one eye. This from the cataract op from the steroids. I had a very good doctor who actually listened to what I've been saying sine last July.

Hope the naproxen works well.


Glad Aviemore was nice, Rhona, it's lovely up that way/
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Date: 04.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls, I hope the naproxen helps you Emm. My mouth gets that way too, don't know if it's the disease or the medication that causes it. Glad you enjoyed the film.

Bsk, Will it be done as an outpatient? My daughter had to go to the hospital last week as she has blurriness in one of the eyes that was operated on, her usual consultant was on holiday but the lady that looked at it said it is quite common for this to happen after the surgery she had and she will have to have it lasered again. It is never ending. Hope it is a simple procedure you have to get. xx
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Date: 05.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm pretty sure it will be as an outpatient. It is very minor. Sorry to hear your daughter is having to have more treatment. I hope it helps. Absolutely beautiful here this morning and the garden is full of birds.
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Date: 05.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope it goes well bsk, I always feel like a piece of grit is in my left eye and occasionally get up to a bloodshot one on a morning but this week is strange because it is not black and blue in the eye but at the side right in the corner next to my nose. What is all that about? Strange! Doctor looked in it and was at the optician in November for two yearly check and everything was healthy.
Enjoy the sun, we have had a lovely week.
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Date: 05.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Emm you are making me jealous, please send some of that sun up here. xx
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Date: 06.03.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning all
sorry haven't been on to say hi but been feeling bit low so just kept to myself for a bit.
was a bit down after last hospital visit.
when i spoke to nurse on the phone she told me not to have steroid injection but take tablets for the pain - did this but not any better, gp sorted out steroid injection.
got appt through from hospital then to see nurse - was meant to have appt with doc end of march
they only called me in so he could tell me that he can't write a letter in support of ESA if i claim! no how are you, come see me end of march as planned for your yearly visit just another 6 months and if any probs call the nurse, but plenty talk of why he can't write letter of support - go to your gp and get her to write a letter.
I can't say that you cant' work full time - eh why ? he knows without the meds only he is allowed to give me that i wouldn't be able to walk let alone work! Jerk! and I thought he was a good doc. he was nice about it but didnt' even ask how i was. nurse did das test but didnt' really listen, arghhhhh
sorry, just annoyed at them for being so dismissive when they've always been so supportive.
the sleeping pills have helped me get some sleep but still half groggy the following day and i dont' feel human till 8pm at night, then it's time to take another one! So, stopped taking them. Head is back in the room :)

sorry i'm ranting!

I hope you are all having a good day today and all is fine in the world were you are.
sorry not read the threads today, maybe tomorrow i'll be better for catching up properly

take care guys xxx
reply | back to forum

Date: 06.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Do you have a sympathetic nurse, maybe they could write in support, along with your GP. In my experience, the consultants have little understanding of day to day life with arthritis.
reply | back to forum

Date: 06.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi girls, sorry Willis I thought you had retired. I feel for you not getting any support from your specialist. Thats tough!
I think tramadol make me light headed and dozy! So not had any as was given some naproxen and am taking that for inflammation and I hardly dare say as it is early days, only my second actually, but I think they are helping my ankle!!

Ranting is fine on here, is it not why we write?
Hope things improve for you.

Rhona I think we are getting rain for two days, a bit grey now but sun again for weekend. Been to the metro centre today but only scouted round Debenhams as it is enough. Had a little lunch though.
Hope all are 'reasonable' today.
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Date: 07.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello Everyone, Hope you are all doing alright this morning. It is blowing a gale here at the moment.

That was a shame about your appointment Willis. No wonder you were angry.

Hope the naproxen continues to help your ankle Emm. I was on it a while ago and it did help with the pain.

Hope you are doing alright bsk. Have you started the supha?

How are you Marlene? hope all is ok with you.x
xx
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Date: 07.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi, I have started it, Rhona. I feel very tired but suspect that is disease activity, not the drug. It was a beautiful day so I pottered around in the garden a bit. I need to get some seeds sown but just haven't been up to it of late. Might try and do some tomorrow.

How are you doing?

xx
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Date: 07.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well the weather has been just lovely. I also have pottered in the garden Bsk like you I enjoy it so much. Bsk if you feel very tired take it easy. You talking about the seeds you have to sew. I have about 2 dozen Lily bulbs that need doing. I might do them over the week-end.

Willis they say all this rubbish is sent to try us. Try us for what I am not sure. I fully understand why you were angry. I took sleeping pills and I had the same waking up just in time for bed LOL. I hope you are feeling somewhat better tonight.

Emm I hope that ankle is feeling a bit better today.

Rhona, so glad you enjoyed your trip. I still haven't book my trip for May if I don't do it soon everything will be booked. I just can't get going lately. My pain is not helping. My middle finger on my right hand is so painful I can't tell you, along with the pins and needles and the throbbing. How can one finger be so painful??.

My neighbour has turned the corner and is now in intensive care rather than critical care. Slowly but surely recovering. Thank God!!!!

Well ladies have a great week-end and make the most of the weather. xxxx
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Date: 08.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, I am in trouble again! I tripped up my back door step, which is very steep, went flying into the doorway of the one into the dining room and bumped my shoulder right on the corner of the wall. Oh what a shock and so painful. That was yesterday and developed pain up into neck, chest and down my back. This morning a huge bruise is starting and it really hurts to put my clothes on and comb hair. Any upward movement really. I will see how it goes today and may pop to walk in centre at the local hospital.
Ugh am annoyed as the ankle is doing a little better and was looking forward to the sunny weekend we are all hearing about and having a drive to see friends.

All that apart I hope you are all OK and the 'gardeners' among you can get on and do a little. I know you all enjoy it, and it is lovely to see the results of your hard work throughout the summer. I just have a really small one. It is hard to keep on top of that for me.
Enjoy!
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Date: 08.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear that Emm. Have you tried ice packs to calm it all down? Only ten minutes and wrap them well (I use frozen peas.)
Regarding gardens, I have a biggish one and absolutely can't keep on top of it so it is a bit wild and rough around the edges. Everyone who comes round loves it. I call it shabby chic.
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Date: 08.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Emm, how rotten for you I hope the soreness goes away quickly. It is such a shock when our bodies get jarred. You poor girl I feel for you. HUGS on its way.

BSK I love it shabby chic what a great expression I love shabby chic. I always like a tidy garden but a little wildness here and there gives great character. Our garden in big and is hard to keep on top of and I just say oh well the wildlife just love it LOL. The front of the cottage is great shingle drive with a few planters and hanging baskets pretty easy to look after.
I did a bit of pottering today enjoyed it until I caught my fingers between the shed door and fence. They have been so sore lately so that didn't help but hey ho that will teach me to be more careful!!

Hope everyone is enjoying the good weather.
Take care xx
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Date: 09.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh ladies, have been to urgent care and had xrays and have fractured my collar bone with my fall.
Have to go to fracture clinic tomorrow, got a temporary sling today but it makes my neck ache.
I have a huge bruise it goes down to my chest.
Cannot drive for 6 weeks, oh that is a pain in itself!
Will find out more tomorrow.
This morning I washed my hair and I knew by the pain something was not right.
Hope you had a better day than me! X
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Date: 09.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Emm! that is dreadful, poor old you. I hope it feels better after the fracture clinic. One tip, which may or may not help, is to sleep with one of those triangular pillows to prop you up at night. I had shoulder injury many years ago and had to use a bean bag to prop me up in bed as I couldn't lie flat.
xx
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Date: 10.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm, oh what a calamity you had you poor girl. Lets hope the fracture clinic can get you some relief. Great big Hug xxxxxx
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Date: 10.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, That sounds so sore, hope you get on well at the fracture clinic today. I always dread something like that happening as I wouldn't even manage to get off the floor.

I love the description of your garden bsk, shabby chic sounds like the type of garden I would love.

The weather here is a bit brighter today but not as warm as you have been getting.

take care all xx
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Date: 11.03.2014
From: Embm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning girls Thanks for all your nice comments.
I just got a cloth sling, they say its all they use for clavical fractures. I have to use it for two weeks then go back and have another xray and if its doing ok then will start physio.
I was not in two minutes. Then in the next room, the nurse just re-tied the sling a bit tighter and that was it.
Very matter of fact, just get on with it really. They didn't seem to think my RA probs were probs.
I do hope it gets back to normal and no long lasting effects.
Thats my main concern.
Miss driving my car though and the weather is lovely to be out and about.
Hope you are all 'reasonable' today and that you all have the nice weather. X
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Date: 11.03.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, Emm sorry to hear you've been in the wars, I hope you feel better soon as x
Hope you are all having a good week and nothing too major setting you back.
Tomorrow is second time this month without my humira as they still haven't delivered! Just about to phone nurse as I have had 3 conversations with delivery company in the past 4weeks so now have to moan to nurse!
Feeling not bad though thankfully.
Here's hoping the weather keeps getting better each day now
Be good, be well
Xxx
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Date: 12.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well the sun has finally broken through and another lovely day.
It has been lovely having the sun back have had a good few days out. Yesterday we had a pub lunch and then went to a garden centre come farm shop. Just had a look round. It was just nice to be out and about.
I hope you all have been out in the sunshine.

Emm how are you doing???

Willis just as well you are felling ok. If it was a Bill it would have reached you in good time LOL. All joking aside how annoying for you to have to keep chasing it up yourself. BE GOOD what's that???? Please can I be bad sometimes?

BSK and Rhona how are you both? Good I hope.

Take care all xxxxx
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Date: 12.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls/ladies, It has been a beautiful day here today again, doesn't it make such a difference to see the sunshine (quite a treat here in Scotland) I went into town today with my youngest daughter as she wanted to buy shoes etc and I bought a couple of cheap tops. The sunshine makes me think about summer clothes but I better not get too excited as it could all change again soon lol. My sister that lives in Canada said they are having another snow storm there today and it has to be minus 20-25 tonight. Hope you are all as well as can be expected. Going to watch Coronation Street now, the simple pleasures lol, i have the house all to myself tonight and enjoying the peace. xxx
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Date: 12.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, Coronation street all curled up and the house all to yourself how lovely. I also like my house to myself sometimes. I hope your sister is all cosy in her house the thought of it makes me shiver. Pleased to hear you are also enjoying all the sunshine. Shopping is a great feel good factor LOL. I am going to watch TV now so speak soon. xxx
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Date: 13.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, how are you all today? It's very foggy here in London.

I am pleased to report the steroid shot in my shoulder has worked wonders. No pain at all and all the pain in my neck gone too. The base of the thumb one not quite as effective but I suspect that's because I've got synovitis in my wrist as well.

However, I am getting side effects from the sulpha. Did you ever get any, Rhona? I feel very tired, for a start.

Hope you are all doing ok. How's the clavicle Emm?

xx
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Date: 13.03.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning All
Emm I hope you are feeling better today and coping ok
Bsk glad the steroid worked on parts of you :) our own bionic woman, we will rebuild you x
marlene be as bad as you want lol x
Rhona glad the sun is out up there even for a while - the old saying of 4 seasons in one day in scotland :)
Lynn hope you are ok whatever you are up to x
well, i finally got hold of HAH this morning at 2 mins past 8!
they 'should' be delivering my humira on saturday - that's 2 or 3 i've missed - i can't remember now but yesterday evening and this morning i'm feeling it now so bit peeved, i just hope they do deliver as off on hols for a week at beg april and last thing anyone needs is me in pain or hobbling about!
been a busy but stressful week even in 3 days but glorious news is seeing our grandkids tonight - for the first time in 7 yrs! families eh!
husband and daughter and I so excited, husbands already rushed to shops to stock up on things they probably wont' even eat or want lol
so hopefully going forwards i can talk about grandkids at birthdays and xmas again,
so the pain can be there if it wants, nothing is going to get me down today
the sun is shining and i hope it is were you are in the country.
have a great day guys xxx
reply | back to forum

Date: 13.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good Morning to you all. A bit hazy here this morning. Let's hope the sun comes through later.

Bsk, Sulphasalazine was the first Disease modifying drug thst I was given after being on ibruprofen for about 4 months at a high dose. I did have terrible pains in my stomach after I started the sulpha and sickness but not sure if it was because of the ibruprofen or the sulpha but I have a feeling it was the ibropofen as I was given a two month course of tablets for a stomach ulcer and the pain stopped. I persevered with the sulph and found after a few weeks it was starting to make a small difference to my pain although if I remember correctly it was around 6 weeks before I felt quite a bit better. I would stick with it bsk, as your body will get used to it. I can't remember feeling tired though but as you know that can be a symptom of the RA and when they kick in you might feel a lot better. I will say though, that one of the side effects, is wind. lol.

Willis I hope you get your delivery and enjoy your holiday. Are you going somewhere nice?

Hope you are well Marlene and continuing to have the sunshine.

How is your injury Emm?

Take care all xxx
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Date: 13.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks rhona. I've got stomach ache and a bit of bloody diarrhoea ( sorry everyone!) Not terrible but enough to phone my rheumy nurse this morning. I am waiting a call back. I hope they don't take me off it as I'm fed up with the whole thing, to be honest. xx
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Date: 13.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk, you are right to call her. It's always best to check anything like that out and get their advice. Let us know how you get on. xx
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Date: 13.03.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk, when I was on sulpha I lasted 4 days , had naeusia (can't spell) , stomach ache . Nurse told me before I took it read this leaflet n if you get any of the side effects stop taking it immediately, so I did! I really didn't feel well on it. I do hope if staying on it that it helps you as I definitely noticed a difference even in the few days.
Xx
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Date: 13.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thank you Willis, that is very helpful. I feel like such a hypochondriac as I've had bad side effects with every single drug. There doesn't seem to be anything I can tolerate. Still waiting to hear from the hospital!
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Date: 14.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear Bsk you poor girl I am sending you a great big hug. xxx

Willis Hope all goes great for you with the Grandchildren!!! Enjoy.

Rhona hope you are ok. The sun is trying hard the fog is clearing here. Have you still got the sunshine?

Emm hows that shoulder doing.

Lynn hope you are doing ok.

Take care off to do the washing and ironing now YUKKKKKKK.
xxxxx
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Date: 14.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, Thanks for your good wishes, much appreciated.

My shoulder is feeling a bit better, in fact I have to try not too overuse it. I can lift it a bit better today, but am getting told off, that it has to knit together properly. The other side, which is normally my bad side is getting over used and hurting more too.
I did not feel good yesterday and out of the blue my left knee ballooned. Oh gosh I thought that's all I need, I will see on Monday if it has improved before going to the doctors, honestly I am sick of hospitals and doctors. Plus I see ankle surgeon on Tuesday.
Bsk, sorry to hear of your problems, I know what you mean about being a hypochondriac!
My arms are hurting to write anymore. Love and hugs to all. X
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Date: 15.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Poor old you, Emm. I hope your knee settles down. Do rest your shoulder, it's not worth it in the long run.

I spoke to the nurse and am back on the sulpha as my guts seemed better. I think I may have a bug as felt sick yesterday and went to bed at 9pm, unheard of for me. I am keeping an eye on things and am not going to continue on it if it is the cause. Not worth it.

Hope everyone else is doing ok. What's the weather like in Scotland Rhona?
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Date: 15.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It's very windy here in Scotland bsk and a bit wet too. Pleased to hear things are a bit better today for you. I have been getting pain high up in my stomach too, we went for a meal the other night and it's not been right since. How many of the sulpha are you on at the moment? I started on one a week and increased it weekly until I got to four but if any tummy probems then I was told to reduce them again until things eased then increase again gradually.

Sorry to hear you knee is hurting Emm, did you maybe fall on it when you went down? My left knee is feeling quite tight this morning, it feels like there is some fluid in it.

Hope all is well with you Marlene.

How are you Lynn? let us know how you are getting on.

Wonder why we all have tummy ache Willis. I am hoping I don't have an ulcer or something again as I also have quite bad indigestion.

Have a good weekend everyone. I don't think I will be doing too much. xxxx
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Date: 15.03.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you've got stomach pain too. Perhaps you should get it checked out after the weekend. Thanks for the tip about reducing and going up again on the Sulpha. I was on two but am down to one and will stay there for a few days I think.
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Date: 16.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning on this lovely sunny Sunday.
Sorry some of you are not too good at the moment.
Emm I hope you will be ok soon. Rhona I suffer with a lot of indigestion from the pain killers and have thought I should really mention it to the GP. Every time I go I forget. Rhona I hope your stomach is better soon.
Bsk I hope you are ok on your Sulpha you really need something to help.

I am not too bad a lot of pain but that is normal. The sun helps and being able to potter in the garden. My fingers the middle three on my right hand are all numb at the minute I just say go on OA do your worst.

I am glad to say my neighbour came home yesterday. He is very weak and so thin. He has a nurse and a physio visiting each day. He has a long road to be back to his normal self. But thank goodness he is home.
Willis and Lynn I hope you are both well.

XXXXXXXX
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Date: 16.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, just came on to moan a bit.
I am tired of being in a sling now and being so restricted.
Plus I am hurting. My left arm is aching more with having to use it more, my upper muscles particularly.
It makes me appreciate what I had before.

Thanks for listening and watch were you walk, don't trip up stairs. X
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Date: 17.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm, poor girl. I have listened and have no intentions of tripping up the stairs LOL.
Joking aside how much longer do you need the sling? The trouble is when we compensate with another part we end up hurting everywhere. I do hope you mend real soon. You are right is does make us appreciate what we had. I have three fingers I can't use and it is driving me mad. I keep dropping things and I can't tell you how many mistakes I made typing this and had to go back and correct it all. So now I am moaning also Oh Well it keeps me happy haha.

Take care and hugs on its way xxxxx
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Date: 17.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hugs gratefully received Marlene! what you say is soooo true about everything hurting.
Ankle surgeon tomorrow I will see what he has to say but can't contemplate doing anything yet. One bandage at a time.
Am back on Thursday 27th for an xray. And see what it shows, if good doctor said physio would be next. Initially 6-8 weeks was mentioned, so I just have to wait to see.
Regards to everyone. X
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Date: 19.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, I hope you are feeling ok. I have had a busy few days and now of course paying the price. We have been lucky with the weather but looks like it may become cold again. Can't have too much of a good thing LOL.
Oh well I am off to my bed soon early night in order I think. I am taking some painkillers and hoping for some sleep tonight.
Take care everyone xx
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Date: 19.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, It is still quite windy here but the sun did shine today and it was pleasant outside, I went into town today and bought some tickets for a 60's concert. Makes me sound ancient lol.

How did you get on at the ankle surgeon Emm? and I do hope your collar bone is healing well. You take it easy too!

How are you getting on with the sulphasalazine bsk?

Hope everyone else is keeping alright.

Sleep well everyone. xxx
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Date: 20.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone,

Sulphasalazine ok,thanks, Rhona. I know I'm not supposed to feel the benefit for 12 weeks but I feel things are slightly better. However, am fighting off a sore throat at the moment. I'm off to physio for 'hand therapy', whatever that is. I am hoping for a support of some kind for my painful thumb which might help with gardening etc. I will report back.

Hope everyone else is doing ok? Willis,haven't heard from you for a while.
xx
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Date: 20.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to hear it bsk. I could feel it starting to work after a few weeks although it was around 6 weeks on 4 a day when I felt the full effect.

It's a right miserable morning here, very wet. xx
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Date: 20.03.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning all
hope you are all feeling as best as can today. the sun is shining again here, it was cold yesterday. Having an open day at home for hubby on Saturday for his 60th so been running round - not actually achieving anything i dont' think lol
my meds finally arrived monday and took it straight away, apart from weariness can feel it working already! so please though as could feel the downward slope.
Been seeing quite a bit of Grand kids for past week -got 6 years to make up for :) went to see lego movie! not seen a kids film for years lol
just nice to spend time with them again - they are 11 and 13 this year! so big
next adventure is to teach them to fish - well i get to spend the day reading a book so i'm not complaining :)

I hope the hand therapy helped bsk
Emm hope hospital goes well today
Marlene are you still taking pills to help sleep? I hope your neighbour is doing better now home
Rhona i hope the weather brightens up throughout the day up there
we've rain forecast for the weekend here :(
Have a good day ladies
sending lots of hugs
xxxxxxxxxxxxxxxx
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Date: 20.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Wow! I got three pairs of wrist supports today. Thermoskin ones, night supports and wrist and thumb supports and I can go back for more or different ones if I need them. Plus I got a sheet of info on how to protect my hands. They were really good and I wish I'd been referred months ago. I have to say my new consultant has been really helpful getting me the treatment and support I need. Back for exercises etc. in a month's time.

Wills, hope you have a fab day on Saturday and have scheduled a day of rest on Sunday!

Beautiful here but a bit of a wind.
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Date: 20.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

How do you do it bsk? I think you must have friends in high places lol. Seriously though, that is excellent that you are getting so well treated. I wish all the other health boards would be as generous, although I shouldn't complain, as the infusions I get are quite expensive. I hope they help you. What are the night supports like?

Hope your hubby has a great birthday Willis and good luck with the humira.

How are you Emm?

Are you managing to have a rest day today, Marlene?

take care everyone xxx
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Date: 20.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

They are all quite stylish, Rhona, all black. The night ones are quite long. He said I can have longer ones if I need them, though not sure why I would nee them.

To be honest, I think I should have had these a long time ago plus the info sheet.
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Date: 20.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, I stopped the Amytripline after a few days they made me sleep well. The only trouble was after such a deep sleep and keeping still I was having so much trouble getting out of bed. I also had such bad headaches in the morning. I have to go back to GP after trying Paracetamol and C0-dydramol together not much good either.
I just don't seem to be able to find a happy medium. I guess it will always be this way.
so glad you are having a good time with the Grandchildren they are just great at that age.
My neighbour is doing ok it is going to be a long recovery for him he has a lot of hard work ahead of him. He is very weak so physio every day.
Take care and don't wear your self out x

Bsk you have found your self one caring guy there. Well done!!

Emm and Rhona hope you are both well it has been windy but warm here today. I now see it is raining here goes with my pain again. Oh well can't have too much of a good thing.

Take care all xxxx
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Date: 20.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

He's a she, Marlene! They are nearly all women at my hospital.
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Date: 21.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh sorry Bsk I don't know why I thought it was a HE. I hope you continue to feel the benefits. The support gloves sound good!! Have a lovely afternoon take care xx
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Date: 22.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, The sun is shining although it is cold. I don't mind the cold as I am home all day!!
I hope you are all good and have a lovely week-end. X
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Date: 23.03.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh morning guys
headache from 2 glasses of wine! never again lol
a great day had by all and to top it all off some friends came round and played the bag pipes - hilarious - never heard happy birthday on the pipes before. then when they left they piped up the street - half the street were out wondering what on earth was going on at 8pm at night - so funny :)
I got hubby a spa day for Tuesday so I will have a nice relaxing day to make up for the cleaning and tidying I've been doing for a week! I'm shattered so glad it only happens once a year this birthday lark - he was very surprised by it all and had a great day.
So, I hope you are all well today and the weather isn't too bad it is windy and raining here today so a day indoors sounds good.
update you on how the aches pan out in the week.
xxx big hugs x
reply | back to forum

Date: 23.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, sounds like your Hubby had a great day. Oh and you sound delighted at the outcome so it seems the hard work was worth it. A spa day what a great idea!!! One to remember for the future. It is just great having some happy news. Willis make sure you have some rest now.

We have had all seasons in a day here wind rain hail sunshine grey skies then lovely blue. The sky is blue now the day is over Typical of British weather. We have had the log burner going all day so a lot of sofa surfing has been going on LOL.

Take care Willis xxxxx
reply | back to forum

Date: 27.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, How are you all doing? Hope everyone is keeping well. The weather here has been quite good over the last few days. My daughter treated me to a night away in Aviemore on Sunday as an early mother's day present. It was lovely, we went up to the top of the Cairngorms the scenery was amazing and the mountains were covered in thick snow and skiers of all ages were on the slopes. I would have loved to have been able to do it too.

Sounds like the party went well Willis. I love to hear the bagpipes, that would be a treat for your neighbours lol.

Is your collar bone healing alright Emm? I do hope the pain has eased now.

How are you getting on with the sulpha bsk?

Hope all is well with you Marlene and Lynn.

Take care everyone. xx
reply | back to forum

Date: 27.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies,
Was at hospital today Rhona, it is going well, xray showed it has healed and now can use it but obviously not overdo it and no lifting. Have slung the sling! He will see me in 3 weeks and then start physio. I can judge when it hurts whether to do things or not and thats fine, but I told him its when I sit and relax the neck pain is terrible so he said it may be whiplash or a trapped nerve but physio should sort it out. I remember banging into the wall and sort of tumbling into a spin.
So am quite happy with that.
Couldn't write much lately because of pain and tingling, hence have not been on much. It is tingling now so better go.
Keep well everyone. X
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Date: 27.03.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone,

glad to hear things are going in the right direction, Emm and that you had a nice mother's day trip, Rhona.

I've been suffering with severe fatigue. I got a steroid jab today so maybe things will pick up. My nurse said the oral steroids had masked all the disease activity, which is now showing up.

Marlene, are you ok? Willis too?
xx
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Date: 27.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well just had a great storm thunder lightning and hail stones. It is cold outside but I am sofa surfing in front of the log fire.
Bsk sorry to hear you are so tired lets hope the Steroid jab will help you. Big hug for you. x

Glad to hear you are on the mend Emm. Don't over do it. XX

Rhona what a lovely Mums day prezzie. So pleased you enjoyed it sounds just a fantastic place. xx

Well me where shall I start. Hubby going back to see surgeon just waiting on appointment. He has been having a lot of pain again. The gp is sending him back as he has an open appointment for six months. She said he needs to make sure nothing untoward is going on.
My aunt passed away and my Mum is very upset (her younger sister). We will be taking her to the funeral of course the journey will be three hours so my brother will drive.
My hands are so painful and I can't wait to see the gp on the 4th April I have a few questions ready for her. Colin asked me if I might have PA so I need to check. I hadn't even thought about it. I am so sore every where at the moment. Oh well enough of my tales of woe. Sorry if I have bored you silly.

Take care everyone and hugs for you all. Including Willis and Lynn. XXXXX
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Date: 27.03.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening all
Marlene hope your appt helps sort things out a bit for you
Rhona wouldn't it be great to join the skiing I've been once - should have done it more as couldn't do it now :)
Bsk I hope the jab helps you get a bit more oomph to get on with life
Emm so glad to hear you are on the mend more
I'm still trying to recover from frantic week n weekend off on holiday next Wednesday for a week so looking forward to some sunshine
Been seeing grand kids lots, they have stayed over at weekend , have visited twice since then, it's great and just wish I could be more active with them but just being there is good :) husband took lad out fishing yesterday and yes they got caught in the rain so baths required later lol

Lynn I hope you are well as not heard from you for a while

Have a good day tomorrow guy an good weekend if I don't get on for a few days xxxxx
reply | back to forum

Date: 27.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, sorry to hear about your aunt. Big hugs to you too xxx
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Date: 28.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I am sorry to hear about your aunt, Marlene and that's not so good that your hubby is still in pain, I do hope he will be ok. xxx

Glad to hear thing are improving with your injury Emm.

Hope the jab helps you bsk and make sure you rest.

Where are you going to on holiday Willis?

I can't believe it, I just looked at the time and it's after 1am. I spend too much time on this laptop.

Sleep well everyone. xx
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Date: 28.03.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Rhona. I've got a bit of a sore throat today. I might stay at home again haha!
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Date: 29.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone, well its lovely to see the sun again.
I am in pain everywhere had such a busy day yesterday I am now paying the price.
I had my hair done lovely relaxation for me. Had a lovely treatment and head massage Heaven.
I came home and had all the family around 10 altogether as well as us. Hubby's birthday it was great but now my joints are screaming saying what have you been doing LOL. The little granddaughter said "happy Birthday Granddad you are 120 now" I wonder who told her that?
Have a good week-end I am taking a rest for this one. Hubby working just brother coming over to see Mum for mothers day. So sofa surfing here I come!!!!

XXXXX By the way Bsk hope that throat is on the mend.
reply | back to forum

Date: 29.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad you had a good time. Sadly, we have to pay the price but at least you can laze in the garden today as the forecast is great.

I am going to my friend's memorial event today, which I am dreading a bit. My throat is fine, I think the fluey feelings are due to the arthritis. I've stopped my meds for a day or two to see if it is that but probably not.
xx
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Date: 30.03.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, It has been very cold here today and very hazy. I heard London has to be warmer than Ibiza this week.

You did have a busy house Marlene, I bet it was fun though. I hope you have had a good rest today.

I often feel quite fluey bsk and it is the RA that causes it. My feet are hurting and fingers very stiff.

Hope everyone else is doing alright.
xxx
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Date: 30.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yes, I think you are right but it is so difficult to work it out sometimes. Sorry to hear you are hurting, I am too. Yesterday went well but I did too much.
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Date: 30.03.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello all, just a quickie as it is late evening and my shoulder is sore! Got a really itchy back, don't know why.
I am doing well but after sitting my neck and shoulder really hurt.

Sadly we have had another grey cold day here, but I am pleased for those of you who have seen the sun as I remember we had some sunny days a few weeks ago and some of you didn't. Forecast shows a wet week here! Yuk.

Off to bed now as I am too uncomfortable.

Keep as well as possible everyone. X
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Date: 31.03.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi All,
Emm so sorry to hear that shoulder is still playing up. You poor girl xxxxx

Bsk I am glad the day went well. You really must rest up now. I am only telling you what you tell me. We do far more than we should and pay the price for it. I have to say like you I am not ready for the armchair and slippers yet LOL. xxx

Rhona I am absolutely feeling your fingers mine are a nightmare so swollen I can't get my rings off. I am hoping the swelling goes away I really don't want my rings cut off. I have Drs on Friday am hopeful something can be done what I don't know.xxxxx

I hope you are ok Willis. xxx

Take care all xxx
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Date: 31.03.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope something can be done for you too, Marlene. It's all so hard to deal with all the time.

I'm actually buzzing after the steroid shot. I have to say it is wonderful to get my old energy back. Let's hope it stays with me for a while.
xx
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Date: 03.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, good to hear the steroid shot works so well for you. I am posting with one finger today the rest are so painful.
I how I would love to have some energy. Lets hope the GP can find something for me.

Take care Bsk and try not to overdo things xxxx
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Date: 03.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

good luck tomorrow, Marlene. Can you ask for a referral to a rheumatologist, perhaps? xx
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Date: 03.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh you poor thing Marlene. I hope you get some satisfaction at the doctors. My ankles are hurting this morning and fingers still stiff grrr.

Glad to hear the steroid shot helped bsk. Wouldn't it be good if we could have one a week and they had no side effects.

It is a wet miserable morning here and I feel like going back to bed.

Hope you are continuing to improve Emm.

How are you Willis?

xxx
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Date: 03.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Argh! I've got a sore throat tonight. Hard to know whether it is pollution causing it. My asthma has been bad for the past couple of days. It's really bad here in London and I tried to stay in pretty much all day but it doesn't seem to have helped.

Hope everyone ok? Marlene, fingers crossed for a good appointment tomorrow.
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Date: 05.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, how is everyone, Bet like me you are glad the horrid smog, fog has lifted, ugh what a horrid week.
Got up today with very sore knees, so I will have to see how they go before venturing out. My shoulder is more mobile but still sore. I am driving again now.
I am having a steroid injection in my shoulder on Thursday, not the broken one the left one, I may ask for the knees done if pain persists. The GP's I changed to are very good. Much better service.
Sorry to hear your ankle is bad Rhona, I have an MRI scan done on mine on Easter Monday of all days! Then see the surgeon in May again. Doesn't it all take ages, you would think a scan would be arranged for all new patients considering surgery as par for the course and should be done and in place for the surgeon to look at on our first visit.
Lack of planning I think, it would save loads of money cutting down on appointments!
Oh well we have to plod on I suppose.
Keep as well as possible everyone. X
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Date: 05.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, well it is sunny this morning and grateful for that like you BSK my Asthma has been bad. Sorry about every ones joints that are hurting oh for a pain free week or so not much to ask for.
Well my appointment went fairly well she was a really lovely GP. Full of sympathy but not too much they can do. Just what I expected reinstated my Tramdol. She gave my a course of Steroids 40mgs a day for two weeks to help with the inflammation. She explained its not the normal meds for OA but in her opinion it is very helpful. She believes there is much more that can be done but NICE have blocked certain drugs for OA. SO it seems I am losing the battle for any major help.
I have to go back in two weeks for another chat with her regarding how useful the steroids were with a view to using them now and again when I am not coping. So fingers crossed. Oh and I forgot she also gave me a course of anti-biotics for inflammation???? Not sure what this will do but here goes. I will let you know.

Have a good week-end take care everyone xx
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Date: 05.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene can I ask the name of the antibiotics you were prescribed?
You have been given quite a cocktail, I too have Tramadol, O....prozal, stomach protectors and Naproxen, anti inflams, plus I am always on 4mgs steroid daily and 10 mg methotrexate weekly. Ican't say I am ever great,
I once asked the Rheumatoligist about antibiotic protocol after hearing of it on this site and he said he had never heard of it. Yet I know his collegue has given it to someone!
Because I regularly get Ciprofloxillian for Bronchiectasis, I have wondered if they are beneficial full time.
Oh I hope this makes sense!!!
Emm
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Date: 07.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, hope you are well. I have just been given Amoxicillion 500mg three times a day for one week. I have to say although my fingers are still sore the swelling and angry red looking inflammation is much better. For me this is just a trial to see if this actually helps me. So far so good but have been down this road before thinking solution but it didn't last. So if I could cross my fingers I would.
Your post made sense I. it is all so hard to understand as all the Gp's have different thoughts on OA as NICE wont allow them to treat us with meds that could be more beneficial.
I like you find it very frustrating that they all say different things. What else can I say just its my lot and I just have to deal with it the best I can. My fingers have now gone numb just typing this message.
Hope my post makes sense!!! Take care speak soon. xxxxx
reply | back to forum

Date: 07.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene,
I don't think there is an answer is there?
No one ever seems well no matter what meds they are on.
It is a matter of trial and error, swapping and changing, and trying the next cocktail of drugs to try and get periods of respite.
'Keep trying'. Regards x
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Date: 07.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

How is everyone tonight? I hope your throat is ok now bsk and all is well with you.

That was quite a cocktail you got from your doctor, Marlene, I hope they have helped you lots.

I hope the steroid jab has helped your shoulder Emm.

My joints have been very sore today, especially my ankles. It becomes very tiring having constant pain.

My daughter that lives in Spain is going to New York next week so we are going over to look after her dog, I am looking forward to a bit of sunshine.

Sleep well everyone. xx
reply | back to forum

Date: 07.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, My hands are feeling less swollen but the constant numbness to two of my fingers is driving me mad it is such a weird feeling. I have to say my pain is much less due to the steroids I think. I will miss it when I stop and it wears off I am sure.
Emm I agree with you although it sounds like I am on a downer I don't think there is an answer to it all but who knows great things happen in the medical world all the time so here's hopeful.

Rhona, I am not Jealous at all!!! only joking enjoy that sunshine and rest up a bit. I am picturing you strolling with the doggie. Hope your daughter enjoys New York.

Bsk are you ok??? Hows that throat of yours??

Willis how are things going with you??


Take care xxxxxxxx
By the way glad to report my neighbour is doing great bless him. His wife is worn out but so happy to have him home.
reply | back to forum

Date: 09.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, no sore throat. It was probably pollution last week. I'm getting some results of tests this afternoon, hopefully. Keep your fingers crossed for me that they are all negative. I don't think I could cope with another condition.

Glad you are feeling better, Marlene.
reply | back to forum

Date: 09.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, my fingers are crossed for you, we don't want you to have anything else!
Good luck. Emm x
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Date: 09.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope it all goes well bsk, let us know how you get on. xx

Hope everyone is doing alright today.

My stomach is sore this morning, I'm hoping it's something I have eaten and not a virus, I have been feeling sick and running (no hobbling) to the loo. xx
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Date: 09.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

. Big hug for great results!!!!!Good luck Bsk

Rhona you poor thing hope that stomach settles soon.
Hi Emm!!
reply | back to forum

Date: 09.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aargh! I've been taken off Sulphasalazine. Some raised enzymes and positive tests . Will let you know more when I know more myself.
reply | back to forum

Date: 09.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You must be getting fed up with it all bsk. Hope it's nothing too bad. xx
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Date: 09.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Totally! They think there is some underlying problem with my liver. No point speculating though. Thanks for your thoughts though. xx
reply | back to forum

Date: 09.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

No point in worrying just now, this often happens with medication and it can correct itself. xx
reply | back to forum

Date: 09.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

They don't think it's the meds, Rhona. We'll see.
reply | back to forum

Date: 10.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, oh dear what can I say. Sorry you have having such problems. As you say no point speculating. Lets hope it all gets sorted soon and you are on the up again. Hugs x

Morning Rhona Emm and Willis, and a lovely sunny one it is. Hope you are all relatively well. When are you going away Rhona?

Take care all enjoy your day!!!
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Date: 10.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, just back from my gp who remains unconcerned about my liver results. She is going to talk to my herpetologist (who was vile) and try and sort this out for me. Like me, she doesn't want me to have to stop my drug unless absolutely necessary.

It's beautiful here today as well. I got up early and pottered about in the garden this morning. I have to say it is looking glorious at the moment.

Hope you are all ok.
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Date: 10.04.2014
From: arlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sounds like good news Bsk. I am also pottering in the garden today. Just heaven for me. Enjoy the rest of the day.
Thank goodness for the Great Gps we have. x
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Date: 10.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That would be marlene !!!!
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Date: 10.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Lol Marlene. I go on Monday, hope the little dog behaves as he is a rascal and chews everything.

That does sound more positive bsk, fingers crossed.

Nice and sunny here too but a bit breezy, a great washing day. xx
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Date: 10.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

and mine was meant to be hepatologist, not herpetologist! That's autocorrect for you!
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Date: 11.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Apparently, my high liver results are 'substantial.' I've got to have some more blood tests but have a horrible feeling they won't let me go back on the Sulpha.

On a more positive note, it is glorious this afternoon and I've managed a bit of gardening.

Hope you are all ok.
xx
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Date: 12.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's a pity if you have to come off it bsk. I hope the liver corrects itself.

Have a good weekend everyone xx
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Date: 12.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, Bsk what a pest I hope it all gets sorted soon for you. My goodness you have had one thing after another your poor thing. I have to say you stay strong regardless and get on with it all. Take care and have a great week end.

Rhona have you done that packing yet?? Have a restful break and give that puppy a hug for me.

I am going to chill out as much as I can this week end. Yesterday had an round five hour journey to my aunts funeral and my joints are screaming today. It all went well and caught up with lots of family haven't seen in a long while.
I have nothing planned apart from the dreaded food shop.
I am also not looking forward to finishing the steroids and anti biotics I have been so much better with them. Oh well all good things come to an end as they say.

Take care all xxx
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Date: 12.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Marlene.

Rhona, I forgot you are going away. When are you off? I would give lot for a week or too in Spain right now!
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Date: 12.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

No packing done yet Marlene, I will need to make an effort to do it today. I'm really needing my hair done but it will have to wait until I get there now. Make sure you do rest today after you get the food shop in. I hope everything will be settled for you when you finish the steroids and antibiotics and no flare ups.

I go on Monday bsk. My daughter said it is roasting there, I will need to take care as I burn so easily and it is like winter here today. I hope you have good news soon with all the results. Try not to worry.

Have a good weekend everyone. xxx
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Date: 12.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, have a good trip to Spain, my family in Switzerland are having some really good weather too. It was a little warmer here yesterday but grey and cooler today again.

Marlene, I had a knee and a shoulder steroid jab on Thursday and talk about steroid glow... My cheeks are almost purple today! But I know it will die down in a couple of more days and it is great getting movement back and energy. I do hope you are OK when your course comes to an end. Best wishes.

Bsk, sorry you have to stop your sulpha if it was helping you, nothing is plain sailing with this Arthritis, am thinking of you!

Willis, how are you? Are you still working, I do hope you are doing well too at present.

Oh I am going to see Tom Jones at Edinburgh castle in July. A lovely venue but open air so I hope the weather is kind,
I am supposed to be getting operations but it is so slow I got sick of it and booked this weekend break, so will have to work around it.

Have a good weekend everyone, Emm x
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Date: 12.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Emm. I hope your shoulder and knee jab lasts for a while, it is a great feeling having the extra energy and movement so long may it last for you.

It has been really windy here all day and so cold tonight.

Sleep well everyone xxx
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Date: 12.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Here too, Rhona. Have a wonderful break.

Glad you got some jabs Emma, what a difference they make!
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Date: 16.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, haven't been on for a few days mum had a fall in the garden. She is fine now. shaken and sporting a black eye and very bruised hand she said it all happened so quick. Now I find out she was wearing my flip flops at the age of 87yrs not the best plan. I was shopping at the time thank goodness my neighbour spotted her.

Now how about you all. How are you all doing?
I have to say I am loving the sun and have been pottering in the garden a lot. So when I tell you my hands are swollen just remember what I have just told you LOL.

I am having the whole family for Easter. There will be 12 of us. I am looking forward to it but a bit worried I might run out of steam.
I am looking forward to the summer flower shows and fares We have a local market coming soon just a one off but I just love the events. I am a great window shopper!!!
Well I have lots to do today so I will stoop boring you now.
Have a great day xxxxxx
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Date: 16.04.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Blimey, Marlene! It's dangerous round your way. I hope you have an accident free and relatively uneventful weekend! I saw most of my family last weekend and it was exhausting. Took me two days to recover.

xx
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Date: 17.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I am guessing it will take it out of me but I just love the family around. It is exhausting but like you I love every minute of it.

I laughed when I read your post it is normally very safe until Mum wears my shoes I wear a five and she is a three so all in all I don't think she will wear my shoes again God Love her. I thought I was the one who did stupid things LOL.

Take care Bsk hugs x
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Date: 17.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You too, Marlene. Have a lovely time with your family.
xx
reply | back to forum

Date: 20.04.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all
Sorry not been on for a while, haven't gone through all posts but hope you are all keeping ok. Had a lovely week in fuertaveture just as we all do, wish I was still there.
Been on week one of 3 week training course via job centre, not sure if I will get thru it all as was dropping by the time Thursday came.
On a positive nite, have seen the grand kids lots so making me smile.
Hope you had / have a great Easter weekend
Xx
reply | back to forum

Date: 22.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Wilis, one of my favourite places to enjoy the sun We usually go Nov/Dec. What is the weather like in April? I find I am just beginning to feel he benefit of the sun and it is time to come home. I would love to spend three months there in the winter (wouldn't we all?)
Willis can I ask you did you at one time say you had retired or did I misread your post.
How lovely grand kids they just have a way of making your day so much happier even when the pain is bad.
I had 12 for dinner Easter Sunday is was lovely all my family together no one missing (that's what normally happens). My grandkids are growing so fast the eldest is 15 this year. So Easter was great for me. I am still getting over it joints are screaming at me LOL
Now my steroids are out of my system my hands have returned to the swollen painful things they were so I will be speaking to my GP about it.

it was nice to hear from you take care and don't overdo things.


Hi everyone Bsk Emm Rhona hope you are all ok. I forgot you are away Rhona.
Take care everyone hugs xxxxxx
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Date: 22.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, and everyone.

I had a lovely easter too. Had a day out on Saturday with my girlfriends and Monday did an easter egg treasure hunt at Raby castle with family, it was great fun and lovely weather, in the grounds of Raby Castle! Today I saw 'the love punch' at the cinema.

I am ignoring all my pain and enjoying myself.

Had an MRI scan on easter Monday at 10.10am, unusual time for an appointment I thought but it was over quickly and the place was empty so in a way it was a good time, I was home in half an hour. It was on my ankle. Surgeon apptmt is in May, so will see then what is going on.

Two of my friends have started to struggle with painful feet and knee and backs, so sadly they are like me now because walking and getting about is not so easy for them, but I feel more at ease when out with them as we are in the same boat.
Of course I wish they did not have these things but I feel more 'understood' now. I am sure you will all know what I mean.

Lastly my broken shoulder has healed really well.
The doctor said last week rheumatoid patients broken bones tend to mend really quickly, Why I asked, thinking it would be the opposite, he replied that they thought it was down to inflammation! So I learned something new.

Finaly, loads of rain here today and it has turned murky, at least it was a warm sunny easter.

Hugs back everyone. X
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Date: 23.04.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again
Glad you had good Easters.
Marlene, my first time in fuertaveture but was told the week before I arrived it had been quite a cold wind but folks were still tanned :). The first three days the wind was a bit cold but still warmer than here the final three days were lovely and the slight breeze was needed. Folks were saying the winter past was the worst they'd had in years and it had rained a lot. I would def go back and the sooner the better :)
Semi retirement - well, if we sold and moved north I could just retire but here in South still have mortgage to pay! So, a part time job is needed! This training course is meant to secure a job but it isn't guaranteed , catch 22 situation.
However I am applying for jobs n waiting to hear back. Hoping to apply for ESA . Pain isn't too bad at moment but I can feel the steroid injection wearing off so no doubt the aches n pains will return again until then just plodding on as you do.

Hope gp can help with hand pain in some way, and that you are not over using them - lol not overusing your hands - a requirement of everyday though so quite stupid remark to make Willis.

Emm glad your shoulder is a lot better it must have been doubly frustrating with that on top of everyday usual Arthur stuff!

With any luck the sun will come back here soon and stay for a good few months .
Got to get packed lunch ready for today so have a good day everyone xxxx
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Date: 23.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, glad to hear you are both doing sort of ok. I understand what you are saying about the mortgage and prices in the South. Have you ever thought of moving north a bit? Willis isn't there things you could claim for PIP as you say ESA it just seems so unfair you have to struggle to work. I am lucky enough that I am now fully retired with a pension. I would never cope with work now so I count my blessings in that respect. I hope you get sorted somehow and soon. Take care not to overdo things.
Glad you liked the Island Rhona has been there with her daughters she also liked it there. I am looking now to see if I can get a good deal for the winter. We didn't go last year due to the move
to my cottage that I love. I have to say I missed my two weeks in the sunshine. As they say we can't have it all and I would like to know WHY NOT LOL.

Emm you had a busy Easter glad you enjoyed it. I know what you are saying about people understanding more when they are in similar situations. I always tell myself how could anyone understand what we go through daily. I find it hard to explain my day to any one. My fingers have all gone numb typing this. So I have just had a break. How would they have a clue!!!!

Take care and stay well xxxxxxxx
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Date: 26.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone. Hope you are all ok. When is Rhona back? Hope she is taking in the sun and relaxing.
Have a good week-end. Off to see Tonight the Night. Meal first. So a day off cooking.
Yesterday I had so much pain I felt ill. Steroids worn off good and proper. I am in pain from head to toe. So big dose of pain relief before I go to the show.

Take care everyone xx
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Date: 26.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Ooooo Marlene have a lovely evening, hope the pain subsides for you to enjoy.
Rhona seems to have been away for over a week so maybe she will not be too long, but her daughter has probably gone for more than a week to America, be good to hear from her again. Hope Arthritis is letting her enjoy herself too, maybe the warm weather will help her.
Horrid here yesterday, absolutely poured down murky today with light rain.
Just want to see the sun!!! X
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Date: 26.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, sorry I haven't been on this thread much. Things much the same. Sorry to hear your steroids have finished, Marlene, they help so much.

xx
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Date: 27.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, good to hear from you both. Emm the show was great and it took me back more years than I will admit too LOL. I could barely walk when leaving I felt so stupid but I don't think any one noticed at all. When we got home I went to bed with a cup of tea and pain killers. I have rested today but to be honest I don't think it helps.
Tuesday my daughter booked a hair appointment so I booked for a wash and blow dry and then I am going two doors down to get my nails and feet done. A pamper day a bit naughty I know but my
hubby said go for it. I don't need telling twice haha!!!

Emm the weather here has been relatively good with a little rain. It was sunny this afternoon and warm but now it looks like rain. I want the sunshine as well.

Bsk This is the first time I have had steroids for OA as it is not the norm. I will be having a good chat with the Gp when I see her again and see what she has to say. I haven't felt this bad for a while now and to be honest it is getting me down. Oh well I suppose things will seem worse the older I get LOL.

Take care both of you hugs xx
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Date: 28.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear things are deteriorating for you, Marlene. It is very disheartening to deal with it all the time. I really hope your GP can do something more to help you.

Take care and hugs to all of you. xx
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Date: 28.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Bsk I will take all the hugs going at the moment and yours is so appreciated. xxxx
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Date: 28.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

More hugs then! (((((marlene)))))
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Date: 29.04.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thank you LOL xxxxxxxxxxxxxxxx
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Date: 29.04.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

evening all
sorry to hear you are feeling so bad marlene, hope you are a little better today.
it's only tuesday and already i am exhausted lol
nothing much to report, just that i am constantly tired and weary as i'm sure you all are
feet are giving me a gip but that is normal again now.
i hope you are all having good days to match the not so good
big hugs to you all
x
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Date: 29.04.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, hope you had a really good pamper, and your evening out sounds great, even though you suffered afterwards, we all expect to when we push ourselves, but it is worth it.
Bsk, hello, hope you are doing ok , nice to see you are back, and with generous hugs, lovely!
Willis, hello, I am like you at present....tired, wish I could get some energy and get on while the sun is shining! I think it is fatigue. Wishing you well.
Finally Hugs to all. X
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Date: 30.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Everyone, Just got back last night and what a time we have had. It has all been such a nightmare. My daughter was looking after the dog for a couple of days before we arrived and on our first night she became unwell and had to be admitted to hospital where they discovered she had pneumonia. It was so difficult with us not speaking the language. I was told at one point that it was so serious they didn't know if she would make it. I had to change our flights as she wasn't fit to fly home last Friday, she is still not great and now has terrible swelling in her feet and legs, we had to go back today to the hospital here where they did all sorts of tests but thankfully they all seem ok. As though that wasn't enough I fell in the street last week and hurt my wrist and ribs and hip. I really thought I had broken my wrist and had it x-rayed but they said it wasn't broken although they have written something about osteoporosis on the report. I have damaged my ribs, I didn't bother getting them x-rayed as they can't do anything even if they were broken but they are so painful. It is the first time that I can honestly say that I was glad to be home. Hope everyone is doing alright. xx
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Date: 30.04.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona, that sounds absolutely awful. I'm so sorry. It must have been a very worrying time. I'm glad you are safely back home but how is your daughter doing? It takes quite a long time to recover from pneumonia, some weeks so I'm not surprised she's still feeling bad. As for yourself, maybe you need to have a dexa scan on your bones, though if you'd had osteoporosis, I would have thought you would have broken your wrist. Broken ribs are so painful. Try and rest up. I wish I lived nearby and could come and help you for a bit. Sending a lot of hugs instead. xxxx
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Date: 30.04.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk, yes, it was so worrying. I am absolutely exhausted now. With her being diabetic and she has a very low immune system it was so scary. After she came out of the observation ward (which was mixed) she was put into a room with an elderly Spanish lady, she was lovely but they encourage the families to stay at the hospital with the patients, not sure it was a good idea as the old lady had visitors 24hours a day and one night there were ten of them round her bed until very late, not ideal when the person in the next bed need peace and quiet to rest. I spent two nights on a chair beside my daughter but couldn't do it any more than that. I can't really fault the Malaga Hospital, they were attentive but I prefer our own. They couldn't have been nicer today to her, she had blood tests, chest x-ray, ECG etc so hope the swelling goes down soon, they said the same as yourself bsk, that it takes a while to recover. Would be nice if you did live nearby bsk and I appreciate the hugs xxx
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Date: 01.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona sweetheart I read your post and my heart sank. You and your girls have been through the Mill this last year good and proper. I like Bsk wished I lived near you even if it was just to give you a gentle cuddle. Rhona you should of got those ribs checked out.
Your daughter needs to take everything slowly and recover properly bless her hugs and love for her!!

Rhona you must try to rest up a bit now and recover yourself. Take care Rhona great big hugs for you gently of course xxxxxxxx
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Date: 01.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona, what a nightmare you have had. I was so sad to read about it.
Love to your daughter and a speedy recovery to her. My friend who was in an Italian hospital when she broke her leg on the cruise we did a couple of years ago had a similar experience of the Italian families staying in and sleeping in the wards there.
A few weeks ago My nieces husband had pneumonia and he is not very old. I thought it was something older people got.
I have just recovered from my fall and now you have fallen too.
You do have a lot on your plate at present. We are here for you to have a moan to as you are for us.
Is your daughter an in patient here now.
Try and look after yourself too. Sending you lots of love and hugs too.
Sometimes everything goes wrong all at once and they are very testing times. X
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Date: 01.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene & Emm, Thanks you both so much for your kind words. They sent her home last night Emm so we will just have to wait until all the swelling goes down in her ankles and legs, they think it's to do with the blood vessels leaking into the tissue that has caused the swelling and the fact that she was in bed for around 9days and had no food. Like yourself I always imagine older people to be more prone to it although I had pneumonia about 25 years ago but i was nowhere near as ill with it as my daughter was.

My hand and wrist is still so sore, it probably feels broken because of the arthritis as it wasn't great before the fall. I can't believe how easily it happens, one minute I was looking in a real estate agents window (looking at all the houses for sale) and I stepped back to see better and forgot the ground was raised at the shop level and fell right over onto my side. I could have cried with the pain. The one thing I don't like about the Costa del Sol is all the uneven pavements and it is quite hilly.

Hope you are all doing alright and getting some sunshine where you are, it is raining here today again but think it has to improve tomorrow and then I might get all the washing hung outside.

Have a good day xxx
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Date: 01.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad your daughter is home Rhona I always feel everyone recovers quicker at home.
Oh bless you I bet you didn't want to buy a house after that! Portugal is my pet hate for the same reason.
If it makes you feel better it is pouring down here as well. Grey and miserable.
The washing can wait LOL.

Take care Rhona xxxxxx By the way lovely to have you back.
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Date: 01.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk can I ask you a quick question. I was sorting all my old paper work out and came across a hospital letter. I can't say I ever remember reading it before. It is the letter I got after my bone scan in 2011 it states the blood test also showed low titre rheumatoid factor. but negative ccp antibody. Do you know what this means. Is it anything I should be concerned about? Thanks in advance.
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Date: 01.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again everyone,
Rhona nice to hear your daughter is home, like Marlene, I think she will improve quicker at home, do hope so. Is it another daughter that visited America? If so did she enjoy it?
Mabe you should have help hanging the washing out!!!
Raining here too, all day really heavy.
Xxxxxx
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Date: 01.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, I have negative ccp antibody. I believe it is an autoimmune test. If you are sero negative, like me, you can often have RA without positive tests. Interesting that you have low RF though. You might take that to your gp - maybe a referral to a rheumatologist.?

Rhona, I had very severe pneumonia when I was in my thirties, it took ages to get well. Sounds as if she had good care but I can say in my London hospital, people had visitors from morning until night. It drove me up the wall as I couldn't sleep!

How are you feeling tonight?
xx
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Date: 01.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls, Yes Emm, it was my daughter that lives in Spain that went to New York and she loved it, this was her second visit. They went to see "Phantom of the Opera" at Times Square she said it was fantastic and it made her cry.

I'm feeling very tired bsk, I think it must have been the adrenalin that kept me going while I was there, as the minute I got home I felt exhausted and very sore. I don't think I will be doing too much over the next few days except sleep lol.

Marlene, I agree, you should ask for a referral to a rheumatologist and the fact that the steroids etc eased your pain does make me wonder.

xxx
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Date: 01.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I am not surprised you are tired, Rhona. Do please go and see your doctor if you are still in pain from the fall.

goodnight everyone!
xx
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Date: 02.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, thanks for the replies. I can't believe I missed this letter. When I think back that was when mum broke her hip so I must of sort of read it and put it away.
I will be making an appointment and taking the letter with me. I will be asking for another check for RA and PA as Colin suggested.


Enough of me how are you all especially Rhona bless you. How is your daughter doing? I am not surprised you are exhausted Rhona as my granddaughter would say" oh my days" lol. Take some real good time out for yourself. Have a pamper day I just did and it was great.

Have a good day everyone. xxxxx
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Date: 04.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yes, do ask, Marlene. And ask about being sero negative as well (I have borderline rf factor which seems to fluctuate.)

I've got a really bad sore throat tonight. I think it might be hay fever related as I've been out all day but it is making me feel rough. I'm off to bed early tonight with a good book.

xx
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Date: 05.05.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all
Sorry to hear all the ailments, I hope all feeling a bit better today. Just returned from local May Day in village so exhausted think I will sleep well tonight! Off to Amsterdam On Wednesday for 3 days, weather forecast is rain so just hope it gets better.
Hugs to you all xxx
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Date: 05.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Willis, Are you going there for some pain relief. lol. Hope you have a good time.

How is your throat bsk? hope you are feeling better.

Hope everyone had an enjoyable Bank Holiday weekend. xxx
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Date: 05.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Gah! Terrible Rhona. I'm taking lots of painkillers.

How are things with you? Feeling any better?

Lucky you, going to Amsterdam, Willis. I went about 30 years ago and loved it. Have a great time.

love to you all. xx
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Date: 06.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh, poor you bsk. Perhaps you should make an appointment to see your doctor.

I'm doing alright I suppose, still tired and my daughter is still quite weak and her feet are still swollen, it's so strange as she is so thin everywhere else.

Hope you get a good sleep tonight and feel better in the morning. xxx
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Date: 06.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies just catching up with the latest posts.
I am off to see the ankle surgeon this afternoon. Am a bit scared to agree to an op! Last time I was there he mentioned injection under xray, so am going to see if that is viable as today he will have my MRI scan results.
Dentist this morning!
I get sick of hospitals, feel like I am there every week at the moment! On Thursday it is the shoulder Dr at another hospital but this should be the last visit as it has healed well from my fall.
Rhona hope you and your daughter soon get over your things it seems a long recuperation for you both.
Willis I hope you enjoy Amsterdam, I have not been and would love to. I laughed when someone suggested you were going for pain relief!
Hugs for you bsk and Marlene. X
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Date: 07.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, I hope you are all doing better. I also hope you have all had the warmer weather.

I had the two youngest grandkids on Monday while mum and dad did a 10Km run. Bless them they were so good. They were in their element in the garden. The girl (3) had a slip of the tongue and I will share in the hope it cheers you up.
"I need to get a new hat Nan" "oh do you?" "yes my Hello Titty one is lost" "oh Hello Kitty" "yes my Hello Titty one". Trust a little one to make your day.
I hope you are all improving including your Daughter rhona. Take care all xxxxxx
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Date: 07.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It's freezing here and my throat is still sore and probably about to become a cold.

Saw my rheumy this morning and they will start me on Lefludomide once the liver people and the lung people have said yes. So I've got that to look forward too. She is very nice (rheumy). I've come home and gone back to bed and cancelled a trip to see my Dad tomorrow. Which is a shame as I was looking forward to getting away for a few days. Grrrr!

I know what you mean about being sick of hospitals, Emm. I seem to be there every week. Sometimes I have to go two or three times a week. Hopefully, I've got a couple of weeks off til the next appointment.

Take care everyone. xx
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Date: 07.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, How did you get on with the ankle surgeon today? I do hope it all went well.

Marlene, Your little grand daughter sounds so cute, it is lovely when they are small and say some funny things.

Are you feeling any better today bsk? Perhaps a hot toddy would help.

Very wet here today. I went for a facial this afternoon (a little bit of relaxation) and then went for some shopping and got soaked just going to the car.

Take care everyone xxx
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Date: 07.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I was thinking the same thing about a toddy, Rhona, but am out of whisky. How did that happen? I will sort it out tomorrow.

Sorry to hear the weather is bad up your way. I hope the facial helped though.

I feel very rough tonight.
xx
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Date: 08.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning on this miserable wet one.
Bsk what am I going to do with you? You need to replace that empty Whiskey bottle. Sorry you are feeling so rough. It is a shame that you can't get to see your Dad. Lets hope it all clears soon and they get you on lefludomide soon. Take care and a big hug for you.

Hi Rhona, it is lovely to have a little time for ourselves a little bit of pampering goes a long way. It is awful here this morning and I have to take Mum to a hearing aid check up. So I will be getting wet. This weather has me struggling with the pain. How is your daughter and you of course after that fall. Take care hugs xx

Emm and Willis I hhope you are both ok. Emm how did that appointment go??

XXXXXX
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Date: 08.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Marlene, I am going to do that today. I rang my Dad this morning and he didn't recognise my voice it was so croaky. There is no way I am going to see him with this, he is 87 with COPD and, although he is relatively fit, he goes down very quickly if he gets a bug.

This rain is affecting my joints too. Best of luck getting your mum to her appointment.

Rhona, how are things with you? Is your daughter feeling better?

Hi Emm & Willis. Hope you are both ok.
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Date: 09.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi girls I had my apptmt with ankle surgeon and he showed my MRI scan and said lower part of my ankle had fused itself
. ( look down at the leg and just under the round sticky out bone on the outside of the leg, well just under there!)
Then said across the front, the main ankle joint, still has movement so he could do an ankle replacement. However then pointed out that they are not great! Pointed out infection and the fact that some have te be re- done quite often because they are hard to get right!
So we talked about having an injection under xray to see if that would help! So being a coward I said I would try that first.
So have to wait for apptmt approx 4-6 weeks.
I told him I wanted to get to Australia next year and as the year has rolled on I am not going to have enough recovery time as he said 9 months.
So that was that.
Also got discharged from the shoulder Dr as that has healed very well! Yippee at least something has gone right!
Ooo can I ask advice !!! My right cheek seems to have developed a " delve" in it. I have noticed it over about 4 weeks now and at first thought I had an imprint in from having my hand under my head whilst sleeping on my side, but it is here all the time so am a bit concerned, doesn't hurt just looks a bit odd and I hope it does not get bigger. Any comments welcome.
I will mention it to GP but not making a special apptmt.

That is me up to date, hand tired now from typing so will end for now.

Regards to all.x
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Date: 09.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I don't blame you for wanting to try the injection first, Emm. It wouldn't make you feel too confident about the operation after him saying that. You might find the injection helps enough to keep you mobile for a while. I really hope it does.

How are you bsk? I hope you are starting to pick up again. Just take it easy and look after yourself.

Hope all is well with you Marlene.

My daughter is a good bit better, although she never seems to get a break from it all as she has to get more lasering to her eye next week but they have said that is quite normal after a vitrectomy operation. My ribs are still a bit sore but a lot better than they were.

Hope you all have a good weekend. xxx
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Date: 09.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

The injection seems a much safer bet, Emm. I hope it works.

Glad to hear hour daughter is better. She needs to join our club, I think!

I think I may have thrush in my throat. I spoke to dr today and got some Nystatin. She said I might be run down but also my inhalers can cause it. Last time it went to my lungs so I don't want that again. We'll see.
xx
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Date: 10.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, you daughter seems to be going through so much lately bless her. Hugs for her. Sorry to hear those ribs are still playing up.

Bsk lets hope the Nystatin will clear your infection up. Then you can get to visit your Dad. It is just one thing after another.

Emm I hope the injection works for you. The surgeon has to tell you the worst that can happen so if you do in the future have to have the op try not to take it that it will happen to you. When I had my back surgery done it was enough to make me run when told the worst case scenario. Run who am I kidding!!! Emm lets hope you don't wait too long for the Jab.

Wilis are you ok????

Take care and have a good week-end xx
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Date: 10.05.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
well i got back last night about 9.30pm and have never been so glad to have a sit down :)
Amsterdam was nice but had to walk alot! so my feet are very sore and i'm limping at the moment.
So went to Van Gogh museum that was excellent, had canal boat tour. didn't do ann frank house as q was about 1.5 hrs! too much standing about for me.
the hotel was nice but i found amsterdam quite expensive overall. At least i can say i have been there and got the t-shirt as it were.
back to reality and wind and rain - it was the same in A'dam actually. flight was late in taking off as the plane coming in had to wait due to stormy weather.
so weekend and next week will be recovery time i think. next break will be more sun less walking :)
I hope you all feel not too bad and any ailments are clearing up a little for you.
have a great weekend , sending lots of hugs
xxxxxx
reply | back to forum

Date: 10.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, sounds right up my street. Never been I will add to my wish list. Museum and canal boat tour sounds great. Hope you recover quickly and are ready for the next holiday soon LOL. xxxxx
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Date: 14.05.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies
I hope you are all keeping ok and not suffering too much. The sun is out here today so that is a bonus!
I was successful in getting a position at the new M & S simply foods that is opening up in my area. it's thru, fri, sat 3.30-9.30pm - not ideal but have got foot in door and hopefully i can change to something else lighter work wise once started. hubby not too happy as he knows i will suffer but just getting foot in door is a start.
so i'm pleased and just hope health holds up for at least 3 months so they can see i'm worth keeping on even if it means giving me lighter duties.
outside of house is being re rendered etc and is looking a lot better as it looked like it was going to fall down before :)
still weary after amsterdam I think but not walking as much each day has helped already.
off to take dog a little walk.
lots of hugs to you all
xxx
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Date: 15.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, hats off to you. You can only try and if it should be too much then you can rethink. I hope you manage and all goes well good luck.
I bet that house looks smart again.
Take care and once again good luck in your new job xxxxxxxx
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Date: 16.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning all, hope everyone is doing ok and enjoying the sunshine.

Have you recovered yet bsk?

Congratulations on getting the job, Willis, I hope it works out for you.

Have a good weekend everyone and i hope the sun shines wherever you are. xx
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Date: 16.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good afternoon ladies, Hope you are all enjoying the sun, isn't it lovely!
I got my appointment for my injection under xray in my ankle. June the 12 th.
I do hope I get some relief to get me through the summer months. For my Edinburgh/Tom Jones concert too.
Well done finding a job Willis, it is not easy these days, so thats great , I do hope you can manage it OK.
Rhona are you and daughter on the mend, best wishes to you both.
Regards to you both bsk and Marlene, hope you are both ticking over quite well. X
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Date: 16.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry I haven't posted lately. I am going through a bit of a bad patch emotionally. I will be back and reading your posts very soon.

xx
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Date: 16.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, am sorry to hear things are not so good at present.
I hope things come right for you soon.
Sending you a big hug. X
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Date: 17.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, bless you take care and have plenty of you time. We will all be waiting for your post. A GREAT BIG HUG xxxxxxxxx
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Date: 17.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emms, good news about the appointment hope you get a good result. Tom Jones ehhhh!!!! Enjoy.

Rhona hope you and your daughter are ok. This sunshine is helping my spirit how about you?

Willis hope you are feeling less tired.

Speak soon enjoy the weather xxx
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Date: 17.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, the sun is great isn't it !
Yes Tom Jones and at Edinburgh castle, we are praying it doesn't rain!

Having a washing and ironing day today as not been in much this week! It is also nice just being in a little dress and not bothering with too many clothes.

I think I am doing a little better lately, touch wood as they say!

Hi Rhona regards to you and your daughter I too hope she is getting better.

Hugs to all. Enjoy the weather,
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Date: 17.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you are not so good at the moment bsk. i get times like that too, it will pass and as Marlene says, try and have some me time, do something nice for yourself. Hugs from me too xx

Emm, Good to hear that you are feeling a bit better. You will have a great time in Edinburgh, i like it there too.

Marlene, My daughter is not too bad, she went for the lasering on Thurday and it has made her vision a bit clearer although it has caused a little floater but they hope that will disperse, she has to go back in 2 weeks for a bit more to the other eye again. I am doing not too bad, my ribs are still a bit sore but not nearly as bad as they were.

Unfortunately we have no sun here today, it was raining earlier and very dull although yesterday was pleasant.

Hope you all have a good weekend. xxx
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Date: 18.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona so pleased your daughter is on the mend. It is such a worry when the children are ill no matter how old they are. Lets hope those ribs are good real soon.
As for the weather it has been glorious here but they say thunder storms next week. That will do the oa the power to have me in lots of pain again it is settling nicely at the moment. I should of guessed it wouldn't last long lmao.
Off to the Church Fete raising funds for repairs not really my thing but must show willing being a villager now LOL.

Take care xxxx
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Date: 20.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning ladies, it rained earlier just a shower and the air is so much cleaner. It is already very warm and looks like we may miss the storms today but to be honest I love a storm as long as I am home of course.

How are you all well I hope.

Bsk I hope you are feeling a bit better now miss your posts take care sweetheart Hugs.

Take care every one xxxx
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Date: 21.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, sorry for my absence. I've been really struggling over the past week and feeling very down. I've spent a lot of time under my duvet but am, tentatively, emerging.

I hope you are all ok. xx
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Date: 21.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk, I'm really sorry to hear that you've been feeling so down, it is horrible feeling that way, i have been there too. Is there anything worrying you? that's probably a daft question as this disease would get anyone down at times. I do hope you're feeling a bit better today. Treat yourself to something nice, or even having a walk if you can manage. I am going to have my hair done this afternoon at the Hilton Hotel, i got one of those deals online and it was cheaper than i normally pay for a hairdo so i hope it turns out ok.

Do you have the sunshine back Marlene? I have been finding it very uncomfortable to sleep at night, i think i will change my duvet today and put my summer one on, it will just be like the thing for it to turn colder again when i change it.

How are you doing Emm and Willis?

It has been ages since Lynn has been on, i hope she is ok.

Take care xxx
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Date: 21.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Rhona. I do have some worries as well as the RA. I suppose the impact of one is magnified by the other, if you know what I mean! I am trying very hard to not go into a spiral of depression. I have been in the garden this morning, which was nice - especially since the builders have left and cleared up properly.

I've been using my summer duvet for about a month already, with a blanket to pull over if it's a bit chilly when I go to bed. I need to sort out a summer skirt. I think I have grown out of them lol!

How are your ribs feeling? How are you Marlene, Emm, Willis et al?
xx
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Date: 21.05.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

hi All
not been on as actually been busy for a change or just resting because of that afterwards ;)
been on picnic yesterday , cambridge punting at weekend, and just spending time with Granddaughter when she has been here.
medically, feeling aches and pains and taking more paracetamol than the hospital would like i think but if i go to them i'm not to hopeful of them doing anything very constructive as they seem to be saying oh well all part of Arthritis alot in last 6 months, so i will just get on with it unless it gets unbearable.

I dont' have a 'summer' duvet but wish i did - just end up with a quilt cover lol still too hot :)
if i don't take sleeping pills i dont' get sleep but when i do i'm groggy most of next day - catch 22. but learning to live with it when I do take the pills
my daughter has been poorly - docs reckon she has bad sinuses and this is why her issue keeps recurring - could have told them that years ago :) however she is on antibiotics and decongestant pills and starting to turn the corner but she was really bad for a few days. went and spent a couple of hours with her today. She is currently watching the DVD 'The Secret' - have you heard of it?
So now, after watching that, I am visualising myself receiving the Lottery Cheque for millions lol so when i win you'll have to give me your addresses to send you some money for a nice hot holiday. I'm not knocking the concept of The Secret - just trying to be humorous!!! well i can only try. x

bsk I'm sorry to hear that life is taking it's toll at that moment and I do hope you are coming back out of the fog intact. sending lots of healing and love and hugs to you.

I'm glad you are all feeling good or are surviving in spite of Arthur or is that despite? never sure on that one. I'm rambling on like a novel here!
just wanted to say hi, that i'm doing ok, determined to live a life each day even if it is on the couch with a blanket some days - there are lots of rubbish tv progs on to watch.
lots of hugs and hoping the weather gets over itself and lets the sun out to play more
xxxxxxxxxxxx
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Date: 21.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, enjoying the sun but don't like the forcast from tomorrow and over the weekend, rain again, YUK

Willis have you started at Marks yet?
You are enjoying your grandchildren, it's lovely isn't it?
I am also getting back to being a little better, seemed like I was in a flare for 2 years!
It is good to feel like this again.

Rhona...hair at the Hilton,,,how glamorous, dying to know if you were impressed. That's great. Good for you.
Hope ribs and daughter are still improving!!
Love to you bsk, I do hope your worries are solved soon, I do know stress won't help the arthritis, am sure you already know that but hope it helps that someone understands.
Life is rubbish at times when it throws so much at us at once.
I think that the last two bad years I have mentioned was also due to a few challengenging stressful problems I had.
Hugs. X

Hello to Marlene I hope you are happy in the sunshine in your country garden, sounds lovely.

Speak soon. X
reply | back to forum

Date: 21.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, bsk so glad you are back here. take time for your self treat your self do things you want to do. Spoil your self remember you deserve it!!!!!!!! I hope you are back to your strong self soon (((hugs))) xxxxx


The weather seems to be changing again come on rain do your best I am ready for you LOL. My asthma has been quiet bad today so been taking it easy. Think it is all the pollen and dust around.

Rhona hope you are happy with your hair. The Hilton just get you!!

Emm you are right about challenges and stress but we always come out the other side it makes us stronger well that's what my Son always tells me. I also had two years full of problems including two ops but I am here and definitely stronger.

Willis I hope you are ok and planning that next holiday. When do you start your new job when you do I wish you luck.

I have just left this and walked up the garden with hubby to look at the beautiful sunset. Just glorious took some photos on my phone. Small things and all that LOL.

Take care all xxxx
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Date: 22.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene. The pollution has been bad so I expect that's why your asthma was too. Hopefully the rain will clear it a bit. There was quite a storm here.
reply | back to forum

Date: 22.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope you are feeling a bit better today bsk. You know we are thinking of you. I'm also feeling a bit fed up today, the sun has went away so perhaps that's something to do with it. Best not to think too much and just go with the flow.

The hairdo went quite well Emm, although it is a bit short for my liking but that was the result of getting it cut in Spain. We were also given a head massage with the deal so quite enjoyable.

I hope your chest has cleared Marlene, not nice to have breathing problems.

Are you getting excited about starting the job Willis. I was at marks today buying the dine in for a tenner again, i might even have a glass of the wine tonight.

My neighbour's smoke is coming in my window and making me cough, I'm away to close it now, they must be feeling the cold today having their fire burning.

Take care everyone and look after yourselves. xxx
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Date: 22.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, well the storms were spectacular hail stones battered the village. Lightning and thunder and it all went quiet dark for a while very eerie. Then the rain. Lovely sunset again tonight.
My asthma is better today so hopefully tomorrow it will be settled again. I feel so tired this evening had a restless night last night. Trying to stay awake so I sleep tonight. Going to bed soon.

Take care everyone and sleep well xxxxx
reply | back to forum

Date: 24.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening Ladies, it is very quiet on here I hope you are all ok!!!!!
This weather is very disappointing for the Bank Holiday. I am not doing anything as other half working.
I would of liked to just sit in the garden but that is not going to happen.

If you have plans I hope the weather doesn't spoil it. Have a good week-end.

Take care all xxxxx
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Date: 25.05.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
hope the sun is shining were you are, it is out here but not sure how long it will last!
think i have a touch of this cold thing going about as exhausted, more achy than usual, coughing, sniffing etc, oh dear. a day of sitting doing nothing me thinks.
rhona i am excited at the prospect of starting a new job but not the physical side of lifting etc i think it will involve so am still looking for something office based. i'll be having a discussion with my job centre advisor on what other benefits i can claim when i am working - we live in hope !
i'm off to take some paracetamol and rest some more
i hope you all have a great weekend or as best you can and that you aren't letting 'the blues' get to you too much.
lots of hugs xxx
reply | back to forum

Date: 25.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well it has been a lovely day warm and sunny.

willis I hope you don't have to lift too much or anything heavy!!! What a dilemma for you.
I hope by the time you read this message you will be feeling better.
I hope they give you some good news on the benefit side of tings.

Take care xx
reply | back to forum

Date: 25.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,

I hope you are all ok and your cold doesn't come to much Willis. Are you alright bsk?

It has turned really cold here Marlene, we were away for an overnight stay last night (another deal) lol and this morning we went to Stirling Castle, pity it was so chilly. It had been years since I was last there. I felt like a tourist amongst all the foreign visitors.

Tomorrow I am going to the Ideal Home Show, it is my daughter that really wants to go but then again if the weather isn't great then probably a good idea.

Take care everyone and be good xx
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Date: 26.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, glad to hear you are having a busy week-end just take little rests in between.
It is cold grey and miserable again to-day, typical British weather it just can't make its mind up LOL.
Rhona you go girl all the little over night breaks you have sounds great. I haven't been to the Ideal home since I got dragged along with my Mum and Dad. I bet you will see some very modern pieces I would love to go with you. Enjoy!!!!!

My joints are screaming again with this ran off to take a painkiller or two hahahah. When these painkillers work I have no intentions of being good why change a habit of a life time LMAO.

Take care xxxxx
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Date: 27.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

How is everyone? All this rain is playing havoc with my joints, mostly my wrists and fingers. I think it will soon be time for some more drugs, though I have no idea what is going vis a vis me starting on leflunomide.

Hope everyone is as well as can be expected.
xx
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Date: 28.05.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, good to hear from you. I am with you in pain from head to toe I certainly know where all my joints are. My feet are driving me mad they are so painful!! Oh for the want of the sunshine.

Bsk lets hope you get sorted with your drugs soon. It must be so frustrating for you.

Make sure you keep warm I was just thinking I might light the log burner in fact I will!!!

Take care Bsk chin up ((hugs)) xx


Hope everyone is ok.
reply | back to forum

Date: 28.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene. I'm wearing some Thermoskin gloves given to my by my physio and they are helping. I didn't think I'd be wearing them until winter! I recommend them, however.
xx
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Date: 30.05.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, I hope you are all doing alright and not too sore. It is a lovely sunny day here in Scotland, what a difference it makes to see the sunshine, it really does lift my spirits. I was feeling quite low this morning and then the sun came out. My youngest daughter passed her driving test this afternoon, so feeling a bit brighter now.

Hope you all have a good weekend and have the sunshine where you are. xxx
reply | back to forum

Date: 31.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

No sun here yet, Rhona :( It's supposed to be warm today but still overcast. Glad to hear your spirits lifted, though. And congrats to your daughter. Such a sense of freedom to pass your driving test. I remember the day well when I did.

Hope you all have a pain free weekend.
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Date: 31.05.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, it is grey here today but not supposed to rain!!!

Hope you are all pain free as much as possible!!

Rhona congratulations to your daughter on passing her driving test. You will have an extra chauffer when you are stiff!

I get low too when it is grey and rainy, ooo the sun has just popped out, yippee, I am getting work done on my small garden but every time the man was coming over the last fortnight the rain came and stopped him.
So he is going to come Monday now and the forecast is rain. Yuk.

I go for my ankle injection on 12th June under xray, never had one done this way before so hope it works, not long to wait now.

Keep well as you all can. Hugs x
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Date: 31.05.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Much better to get it done that way, Emm. They can actually see what they are doing. Best of luck with it.
reply | back to forum

Date: 01.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening Ladies, it has been lovely today sun out most of the day. Took advantage to try to soak up some vit D.
I am suffering so bad at the moment I don't know if I should laugh or cry. I am trying hard not to let it get me down. It doesn't help that my other half has problems with his back again. I feel for him so much. The Dr called surgeons secretary for an appointment. After a two week wait I rang the secretary myself to be told my husband was not the surgeons patient. I was furious and asked "well who did the operation then"?? She couldn't answer I am still furious a week later. The GP is not much use either so tomorrow up early to phone for an appointment and I will be tagging along to make sure it gets dealt with.
I just could do with out more stress.

Rhona fantastic news for your daughter passing her driving test. Hope you are ok.

Emm, I do hope the injection will help you not too long to wait. Take care.

Bsk hope you are feeling better. The sun hopefully lifted you as I know you love your garden as much as I do.

Willis I hope you are ok.

Take care every one xxxxxx
reply | back to forum

Date: 01.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, Sorry to hear you're suffering again. Let's hope the sunshine helps you. That's a shame that your hubby is getting bother again with his back, I hope he gets sorted out soon.

It started off quite pleasant here this morning but then the rain returned. I'm feeling more sore than usual these last few days, I think I might need to see about another infusion soon.

Don't know if it is so fantastic my daughter passing her test Marlene, she asked to borrow the car this morning to help out at a Dog's Trust Charity Day and I was unsure as it was quite a distance away and all motorway driving, her Dad offered to drive her but she wanted to drive herself, I told her to text when she arrived and of course she didn't and I was getting worried and we decided to go this afternoon to make sure all was ok and we got held up in traffic and then I saw her driving by on the other side of the road unaware we were on our way to see her. I don't think I can put up with any more worry lol.

Good news about the injection Emm, I hope it makes a big difference. When are you going to Edinburgh?

How are you bsk? I hope things have picked up for you and you are looking after yourself.

Sleep well everyone. xxx
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Date: 03.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, Oh dear they are such a worry when they first start driving I laid awake every night waiting for my boys to come home. They were both 17yrs and seemed so young to be drivers. You will get used to it although I still make my daughter text me when she gets home and she is 40yrs LOL.

Rhona this weather is getting me down the rain and humidity have me hurting every where and it is relentless at the moment. So I am a miserable little **** . So on it goes and I am sorry you are in the same boat and I hope you get an infusion to help you out.
I have been getting on the best I can and tomorrow we are out for the evening. I will be getting a bit of a break for a week as my younger brother is taking mum away on the 14th.
I hope you feel better soon.

BSK EMMA and WILLIS I hope you are all ok xxx
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Date: 05.06.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

hi ladies
i'm not too bad bit sore and achy but not taken my humira the last two doses as felt too unwell so i think that is having an effect on me. this horrid weather isn't helping, the colder and damper it gets the worse i get and the hayfever!
been trying to keep active as best i can.

hope you are all fine and keeping your spirits up
lots of hugs to you all
xxxx
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Date: 05.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone,

Just had to have a steroid injection this morning as everything flaring up. My knee is really painful as well as my right hand. Am still waiting to hear if I can start on Leflunomide.

However, at least the sun is out today. I've been reading in the garden this afternoon, with the cat by my side. Very nice if you can ignore the pain.

I hope you are all as pain free as possible.
Take care and hugs to everyone.
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Date: 05.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That should bring you some relief bsk. Why is it taking them so long to decide if you can start leflunomide are they still waiting on blood results? Sitting in the sun is what you need. We have no sunshine here today but I think tomorrow has to be better. My ankles are hurting but I'm trying to delay the infusion for a bit longer. I went to the loch this afternoon in between showers it's good to get some fresh air. I took some photos of the swans and their cygnets, they had eight but unfortunately there are only six left, I hope the others survive ok, nature can be cruel at times.

I hope you feel better soon Willis and can get back on the humira.

Did you enjoy your evening Marlene? A wee night out does you good.

How are you Emm? I hope you are ok, it's not too long now until your ankle injection.

Take care everyone. xxx
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Date: 05.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

My consultant was ill, Rhona, so she hasn't asked my gp to talk to the hepatologist yet, she also is waiting for an answer from my chest consultant too. I'm quite shocked at how bad I feel but, of course, I was on oral steroids up until Christmas. I'm hoping something will happen soon.

I don't blame you for delaying your infusion. I did the same with the steroid injection. I hope you get some better weather over the weekend.

Marlene, I hope you had a good evening out. It does the world of good sometimes!

Willis, hope you get back on the meds soon.

Emm, are you ok?

xx
reply | back to forum

Date: 06.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

The waiting game isn't easy bsk. I hope they come up with something soon for you. It's been a beautiful day here although I think they rain is back tomorrow.

Marlene & Emm, are you both ok?

Have a good weekend everyone xxx
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Date: 06.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Rhona. Lovely day here too. Spent this afternoon in the garden with a friend. Really nice but my foot kept giving way, for some reason. It's ok now.

Storms tomorrow, apparently.
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Date: 07.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well what a day after yesterday unbelievable.
It seems we are all in trouble with this arthritis. I am in so much pain and falling in the garden hasn't helped at all. The Christmas tree I grabbed hold of is only fit for baubles and fairy lights not fairy elephants LOL. Joking aside I have two shoulders that are so painful and a back to join them. I am sure It will settle (I hope) Painkillers at the ready at the slightest twinge I am not coping well with all the pain.
Having said all that I hope you are all having a good week-end what ever you are doing. We were thinking about going to a country fair but ..... Rain Rain and more Rain.

Take care everyone xxxx
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Date: 07.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear, Marlene. I always knew the country was dangerous! Seriously, take care and take the painkillers. I am resting up today, which is frustrating but I'm watching the tennis.
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Date: 07.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

What on earth is happening that we are all having falls. I hope it wasn't serious Marlene. Remember and take the brolly if you go to the fair. It is horrible here today. My fingers have started getting very stiff again. I wakened up this morning and couldn't bend them. No ironing getting done today. xx
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Date: 07.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk and Rhona I managed the country Fair the sun came out so did the pain killers and off we went. It was not big so walking not too bad. No need for a brolly. Then Fish and Chip restaurant on the way home. So at least no dinner to make.
Bsk your post mad me smile. Rhona first Emm then you and I make three so every one else should be ok. LOL.

Bsk I hope you enjoyed the Tennis.

Take care all xx
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Date: 08.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, been reading all about you tonight.
I am Ok ish.
I woke up with a huge wrist the other day, not a joint that usually bothers me, it has almost gone down again, but gosh it makes me wonder why? What did I do? After all these years it can still surprise me this b....y RA.
Yes Thursday is my injection day. I am hoping for great things having it under xray as have never had one this way before.
I went to see the Grace Kelly movie today, I enjoyed it.
Sorry to hear of Marlene falling, I hope there is no long term damage.
Been lovely here today until 7pm and then rain and a couple of bursts of thunder.
Am off to bed now. Hugs to all and lets have no more falls girls!!!, x
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Date: 08.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, thanks for your concern no damage apart from really painful shoulders the OA wasn't very pleased with me lol.
Spent the day with my youngest son and his family. Had a lovely BBQ.
We bought a tent for the two little ones on line a great present for 16 big enough for them and toys. Paddling pool out and the swings we bought them last year didn't hear a peep all day. BBQ followed by ice cream the were made up. So lots of quality chat with my son and his wife and of course mum and other half.
So after a lovely day I am in need of my bed like you Emm.

Emm hopefully no more falls as I said before it comes in threes you Rhona and me so that should be it.

Have a good nights sleep nite nite xx
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Date: 08.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aww that sounds lovely Marlene. I love BBQ's too especially with a wee glass of wine or two.

Glad that you enjoyed the film Emm. I really hope the injection works wonders for you. There should be no excuses for it not working if they know exactly where it is going.

It has been raining here most of the day, although it dried up and the sun came out late this afternoon.

Went out for dinner tonight, we have quite a few decent restaurants close by, although a bit too handy at times, especially when I would like to lose at least half a stone, preferably a stone lol.

I am going to have a cuppa tea then will be off to bed too.

Sleep well everyone and have pleasant dreams.

Emm, I was dreaming about Tom Jones last night, goodness knows why, unless I was thinking of you going to see him soon. xx
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Date: 09.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, fancy you dreaming of Tom, its July 20th the concert at the castle. Am praying it doesn't rain. Will have to get one of those full length poncho raincoats that cover your legs, just incase.
On the other hand it will be gorgeous if it's a beautiful sunny evening, can't wait. Oooo lovely Edinburgh.

Yes let's hope ther are no more falls for all of us.
Your day sounds lovely too yesterday with barbies and meals out. Am pleased we all had a lovely Sunday, I had lunch outdoors in the garden with family and a friend before the cinema, mmm was lovely, massive yorkshire puds and roast beef and new potatoes and lashings of home made mint sauce which I love on puds.

Will report back after my jab. Oh I have to take slippers and a robe to the day ward for it, I thought that was strange just for my ankle!!!

Regards for now. X
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Date: 09.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, what a gorgeous day!!!! Sounds like some lovely week ends were had. The sunshine makes it so different.
Rhona I forgot to mention I had some lovely peach sparkling wine. Very nice and I will be replacing the bottle LOL.

Take care all and lets hope the weather stays for a while xxxx
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Date: 11.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad you enjoyed the wine Marlene and good idea to replace it lol. It's been a lovely day here today, what a difference after all the rain yesterday. Feeling rather sore and stressed today.

Hope all goes well tomorrow Emm. Let us know how you get on.

How is everyone else?. xx
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Date: 11.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Best of luck tomorrow, Emm.

I'm in less pain but my joints are still very stiff. Walking was quite an effort this evening.

Hope you are all well.
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Date: 12.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning good luck Emm.

Rhona, why are you stressed is it the pain? I am sending you a great big hug!!!!

Bsk good to hear your pain is less. Lets hope the joints ease off as well.

The weather is just great and I am trying to get some of the rays. I am still in trouble with pain but I think I am just resigned to it now and plod on. My feet are very painful at the moment.

Take care everyone and hopefully the sun is where you are xxxxx
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Date: 13.06.2014
From: helen

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk. Hope you don't mind me butting in. I remember back along you wasn't on any treatment for your arthritis. Did you feel better in yourself by not taking anything. Iv not been on any treatment since February and feel better within my gut headaches Sicky. But last couple weeks felt awful but because of having fibro wasn't quite sure what was going on. Anyway spoke to clinic nurses they said they would ask consultant what he wanted to do. So bloods taken crp has raised since April bloods so now waiting what treatment they might offer me. Iv tried 3 already with horrid side effects. So just wondering are you still of the drugs and managing or back on one and your feeling the benefit from it.
Thanks. Helen. Xx
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Date: 13.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Helen, welcome to this thread! I've been on and off treatments and had problems with them all. I'm currently off , apart from steroid injections every couple of months, but might be starting another one shortly.

Going off the drugs wasn't my choice, mostly, and I certainly feel worse being off them. I was on long term oral steroids for a while and the difference in being off them is marked. Do you want to start another thread about this and I will post on there when I get back from a weekend away. We tend to chat on here so sometimes things get missed. I am interested in hearing what they will be offering you. xx
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Date: 13.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, enjoy your week-end away. Have fun!!!!
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Date: 16.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi every one!! just to add to my misery I now have a wisdom tooth that is hurting like hell. I couldn't get an appointment until 4-30 tomorrow so the pain goes on my face on that side has gone numb so my guess maybe an abscess. I am so peed off I am feeling so low arrrrggggghhhhh. Lets hope the dentist can sort it tomorrow.

I hope you are all ok and by the way what has happened to the sun????

Take care everyone XXX
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Date: 16.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Marlene, That sounds very painful. My father used to tell me to rub some whisky onto a sore tooth. I bet tomorrow can't come quick enough for you. Sometimes holding something warm against it eases it a little.

It has been a beautiful day here today, very warm and sunny. I went to the loch and checked out my cygnets again, they are getting bigger now and there is still six left. Then I went to the cemetery, my father would have been one hundred today if he had been alive.

How are you Emm? let us know how you got on with the injection.

I was having my blood checked today and asked for a Vitamin D test and also calcium and should get the results on Thursday.

How was your weekend away bsk?

Have you started the job yet, Willis?
x
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Date: 17.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies,

Thanks for asking about me. My injection went well, it was put in with anaestetic at the same time in a theatre under xray.
I was there all morning but the procedure took only a few minutes. Afterwards was given tea on the trolley and checked for MRSI which I do not have, yippee.
The following day pain returned as was advised, a few days later it is improving slightly but not great yet.
I am not expecting too much until two weeks have passed..so will report on it again soon to you.

Sun has just popped out here today 1 pm ish but got bedding out to dry.

Sorry to hear of your tooth Marlene, oh there is nothing worse is there! Hope you are successfully sorted today.

You paint a bonny picture Rhona of your wee loch and your ducklings, as I keep saying I love Scotland, lucky you. Sounds beautiful!
Do you not take calcichew tablets Rhona?
I do and also get a half yearly injection. Though we don't know if it helps.

I hope all the ladies are doing not too bad, hi to all.
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Date: 18.06.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all
Not read all your posts so apologies but I see Emm has some treatment done, Marlene has toothache and Rhona is stalking some baby swans! Lol
Yes started job Monday had induction mon and today don't work again now till next Thursday Friday and Saturday. Just wanted to come home yesterday and cry, I was so weary and didn't eat much so partly own fault. It's ok though , we have 3 weeks training in other store till ours opens in July so a bit more travel until then. Feet are sore so goodness knows what they will feel like for 3 6hr shifts on the trot! Hey ho bills to pay etc so onwards and upwards as they say - until I have a flare then it'll be a different story!
Anyway please keep well and lots of hugs to you all xxxx
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Date: 18.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad to hear it went well Emm, I hope it continues to improve over the next couple of weeks. I used to take calcium tablets years ago but stopped them when I went onto all the ra drugs. No doubt I will need them again. It has been very warm here today, long may it last.

How is the tooth Marlene? hope your not in too much pain. xx
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Date: 18.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, I hope you are all ok today.

Willis oh dear I feel for you. I know it is so difficult when the bills keep coming no good hiding them in a drawer LOL. I hope it isn't all too much for you I will keep my fingers crossed that you will cope well. Hats off to you!!!

Emm, glad the injection is out of the way lets hope it works well for you.

Rhona I went to the dentist yesterday and after poking and tapping and making me hit the ceiling a few times they decided a root canal filling would be best. So I have had the first treatment and a temporary filling along with a box of antibiotics. It is a bit sore today but biting the inside of my cheek whilst numb doesn't help lol. It will all sort it self out one way or another. At least the pain is a lot less. Teeth a pain when coming and a real pain when going hahaha.

The weather here is miserable today grey again I just can't cope with the grey I do suffer with SAD.
On the bright side I am going to book two weeks on my favourite island in November something to look forward too. I have found a little villa just outside Calleta de Fuste. So now I just need to book the flights. We missed our winter holiday last year so I am desperate to visit my little paradise again LOL.


BSK I hope you are ok. Hope your break was good.

Take care everyone and speak soon. Sorry about the long post it must be all the painkillers sending the brain squishy .

xxxxxxxxx
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Date: 18.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, I had a lovely break, thanks. Weather good and west country beautiful.

Saw my rheumy today and I'm starting on a half dose of Leflunomide tomorrow, if my bloods are clear. Not looking forward to it but am definitely slowing down.


Apologies if I don't comment on all posts. I've read them but my hand is a bit painful today. Take care everyone. xx
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Date: 19.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi BSK,so glad to hear you a had a lovely break and the weather was good to you.

Bsk I hope you get a lot of benefit from the Leflunomide. It is horrible when you just can't get going.

Don't worry about answering our moans and groans hope that hand feels better as the day goes on.

Take care and hugs xxxxxxx
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Date: 19.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene. I'm suffering a bit today. My nurse is away until next week, so I've got a reprieve.

Good forecast for the week ahead. Rhona, my sister says it's been fab in Glasgow. Long may it last.
xx
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Date: 20.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, My hands are really sore today. I wonder if its this heavy weather?
I am looking forward to some good weather although it is warm it's very overcast.

I am trying to sort out a winter holiday but the flights are not all up yet. I am going to wait a bit for a better deal.

Off to a flower show on Sunday so a few rays of sun will be good.

Have a great week-end everyone.
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Date: 23.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well we have just had a wow of a storm here. Now the air is much fresher.
The flower show was a very good day out yesterday. Lots of garden art and garden furniture along with a fantastic food fayre marquee. We spent five hours there. So lots of Tea and coffee stops. The sun was good to us
We ended the day with a meal out. The sun shone all day so that was a bonus.

Well my dentist has fixed my tooth 45 minutes in the chair this morning. My face feels very sore tonight but no pain. Fingers crossed.

How are you all??? Did you all have a good week-end???

Take care everyone xxx
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Date: 23.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, We have had some beautiful weather here for about a week now and think we need a storm here to clear the air but I won't complain too much in case the sun disappears.

My husband was taken into hospital on Saturday with cellulitis in his leg so I've not had a minute to relax.

Good that you have the tooth sorted now Marlene, it's not cheap having root treatment now but it's always worth it to save a tooth. Sounds like you had a lovely day yesterday.

Hope everyone else is doing well, or as well as can be expected.

Head sore tonight so will try and have an early night. xxx
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Date: 23.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh, Rhona. I'm sorry to hear about your husband. My niece and my father have both had that recently. I hope he's home soon. You really seem to have had a lot to contend with recently. Sending hugs your way (((( )))).

Marlene, good to hear you had a nice day out. Dentists are never much fun but very necessary!

I've overdone things today and am suffering. I've also got a bit of a bug so not particularly good here. I'm feeling a bit fed up, to be honest. Trying not to let things bring me down too much.

Early night for me too.

xx
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Date: 23.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks bsk, my youngest daughter is having some mental health problems just now as well and I'm finding that really difficult to cope with.

I hope the bug doesn't come to much bsk. It's to be expected that you are feeling a bit fed up with all that you have been through too, I am quite scunnered with it all to be honest. Hugs to you too and try and keep your chin up. Nite nite xx
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Date: 24.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

((((( Rhona ))))) You have got a lot on your plate. I hope things get easier soon. xx
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Date: 24.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening girls, just reporting on my ankle after my injection, it''s not too good.
As I walk it is painful and I can hear about 4 cracking noises in the ankle/foot.
I was sooo hopeful, but will live in hope for another week or two before I class it as a failure.

I am sorry to hear of your problems girls.
Doesn't it seem as if there is always something getting thrown at us!

Good luck with everything girls, I am thinking of you and your families. Hugs to all x
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Date: 24.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear, Emm. That sounds very disappointing. It might take a week or two for it to work so I hope it improves.xx
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Date: 25.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, just caught up with yours posts.

Rhona, I hope things are getting better for you.(((hugs))) for all three of you. xxxxxx

BSK I hope you are feeling better to-day. I know how you feel sort of I was so fed up last week with everything. We just keep getting all this rubbish thrown at us. (((hug))) xx

Emm, lets hope in a few days you may feel some benefit. What a disappointment for you. Keep your chin up (((hug))) xx

I hope things get better for all of us some time SOON. Take care all xxx
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Date: 26.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thankyou for your good wishes ladies.
I am still walking around 'cracking' today.

I need new shoes but am putting off going as it's soo hard to find any that suit me.

Keep well everyone. X
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Date: 26.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, I don't know what I am going to do this autumn and winter as I can only wear flip flops at the moment. I did manage to find some dressy ones to wear out. So when I go shopping for shoes I might join you LOL.

Oh dear what a shame that the injection isn't as great as you thought it might be. How is the pain thou ??

My left wrist is very painful today along with the left shoulder. I have noticed the last couple of days the muscle in my calf is very sore feels bruised along with the ones in my fore arms. I haven't done anything strenuous (if only). I am going to give it until next week then maybe a visit to the GP. I'm beginning to feel a nuisance. Oh well it will keep them busy.


Take care everyone.


RHONA how are things with you???? (((hugs)))

xxxxxx
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Date: 27.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

My left shoulder is very sore tonight too Marlene, it feels like toothache. I think stress is playing a bit part in it. My husband is still in hospital, they are having bother trying to clear the infection. They have tried two antibiotics but it's still as bad. They have taken swabs to check now for MRSA. I think someone must be sticking pins in voodoo dolls of us all, as I can't believe the bad luck my family is having.

How are you feeling now bsk? Hope you are getting better.

There is still time for your ankle to improve Emm. I really hope the injection works for you and it is very difficult trying to get a pair of shoes that are both pretty and comfortable, I have the same problem.

It's after 1am so best get to bed.

Sleep well everyone. xx
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Date: 27.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning all,

Rhona, massive hugs to you. You've had an incredibly stressful year and I really feel for you. I hope they get on top of the infection quickly.

Emm & Marlene, have you tried Hotter shoes. Some people swear by them for difficult feet. I haven't tried them and have my own difficult feet. I've been wearing trainers a lot and am going to look at some Skechers when I can face going into town!

I'm doing ok. Starting on the Lef next week, hopefully. Not looking forward to it but will give it a go.

Take care everyone. xx
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Date: 27.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies,
Rhona, I am sure they will get on top of the infection soon. You must be so stressed. I can understand why you must be feeling the pain more. Things will turn for the better soon I am sure. We all seem to go through months of difficult times then we get a lull for a while. Keep your chin up Rhona. Do you have some one that is helping you with the hospital visits shopping ect?? I hope you daughter is on the mend. Love to you all.

BSK thanks for the tip with the shoes. I wear sketchers trainers also. My daughter introduced me to them a few years back. They are so comfy.
I hope you get on ok with the lef. Bsk we all need a break from all this rubbish going on. Not that I need to tell you that.

Take care all xxxxxx hugs!!!!!
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Date: 27.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello all, still cracking today unfortunately. But my spirits are up again after a difficult couple of years. So I am a
Out and about and enjoying things again regardless of my pain.
I like it when I feel like this, it's the mental side of it isn't it?
I lost my mojo for a long time.

Poor Rhona you and your family are still having a rough time and I am so sorry to hear that.
Ihope it all ends for you soon and hubby and daughter are soon on the mend. X

Bsk good luck with Lef' I tried it once and it did not agree with me, hopefully it will work well for you.

I am thinking of Hotters girls, but with me I cannot tell totally if shoes 'work' for me until I hit the pavements! I have wasted lot's of money on shoes in the past and I hate going to buy them now.

I think I could cope with RA if only it was not in my legs, feet and ankles because I hate it when I cannot get out.

Have a good weekend ladies, hugs and special wishes for you and your families. X
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Date: 27.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm so pleased to hear you are on the up!!!
You are right it is our frame of minds that help us improve or fall back again. I have been down ever since my toothache. It was just another pain to go along with the rest of them and left me miserable. I have to say like you my mood has changed and I feel a lot better in myself. Long may it reign!!!!!!
Take care Emm xxxxx
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Date: 27.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good to hear you are in a more positive mood, Emm. Like you, I've wasted a lot of money on shoes too. I've always had tricky feet and not just to do with the arthritis.

I'm okish but have dropped something on my foot, which is now bruised and swollen. Honestly, as if I don't have enough to contend with.

Pleased to hear you more positive, Marlene.

Rhona, as M says, hope you have some help at home. Do let us know how your husband gets on.

love xxx
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Date: 27.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh bsk,
Your poor foot
I opened the car door the other day and let the bottom of it into my shin hence another huge bruise.
I am always bruised sometimes I don't know what I have done to get them.
Marlene I know your tooth was a big problem for you, it's fixed now though. Thats good.
Pleased your on the up, mood wise,!

Forgot to say I am booked to go to Australia for a month next Feb, so that helps and I am determined to be positive and enjoy every moment.
It's only three weeks till I see Tom Jones at Edinburgh Castle too. Oooooo
Happy days.
Xxx
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Date: 27.06.2014
From: marlene

Subject: Re: New thr.ead for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, oh dear your poor girl. The feet are so painful when they get hurt (((hug)))..

I am more positive I have told myself off and need to pick myself up. I have plenty to be grateful for and have lots of plans ahead.
My son and my lovely granddaughter popped round tonight. I know she is my granddaughter but she is such a little lady (nearly fifteen). She is working hard towards uni and I just hope she gets there.

Emm wow how lovely Australia for a month. Do you have family there? Good for you!!!!!
Tom Jones sounds good and the venue sounds just fabulous. Enjoy!!!

Rhona hope you are OK XX
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Date: 27.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks everyone. It's a bit swollen tonight.

Marlene, that's a great attitude. Count your blessings and all that.
Sometimes it's very hard to keep positive but you've got a great family around you.

Emm, some friends took me to see Tom Jones last year. He's not really my cup of tea but he was actually very good and I enjoyed it. You are brave going to Australia. You'll have to pace yourself for the journey.
xx
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Date: 27.06.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls,

My husband got home this afternoon, I wasn't expecting it, so a nice surprise, although he has to go daily for the intravenous antibiotic for the time being.

So pleased that you have booked your flight Emm, how lovely that will be, we will all be freezing here in February and you will be off to the sun, good for you. I haven't had any more dreams of Tom, it should be a good show.

Bsk, I hope your foot isn't too sore, we have all had accidents lately, thank goodness my ribs seem to have healed, it took six weeks for them to heal. Can't remember if I told you I got the blood checks for vitamin d and calcium and was short right enough so now more tablets to take.

Marlene, yes, you have lots to look forward to, especially that trip to the Canaries, it's all these things that keep us going.lol.

How is the job going Willis, hope you're enjoying it.

Off to bed shortly, I am absolutely shattered.

Have a good weekend all. xxx


.
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Date: 28.06.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Lovely news, Rhona. Hope you get a decent night's sleep. xx
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Date: 28.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, so pleased to hear your hubby is home. Lets hope the hospital visit stop soon for him. I bet you are shattered I hope you slept well. Remember to take care of your self as well.

Bsk hows that foot.

Have a good week end all!!!!!
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Date: 28.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I went to have an X-ray this morning as it was quite swollen but no breaks, thank goodness. They were surprised it wasn't broken. So rest and ice and keeping my foot up for today. What a shame that I'll be forced to watch the tennis.
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Date: 28.06.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh well bsk Tennis it is then. How awful that you will be punished this way for hurting your foot. LOL XX

Hope it gets better soon.
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Date: 28.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It's a tragedy.
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Date: 28.06.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good evening ladies.

I have just caught up on your posts, lots to read.

I am staying with my cousin and my friend is going with me as she is my cousins life long friend too. It is going to be great and we are going to do a few trips away a couple of times whilst there.
Wine tasting, boat trips on the Margaret river, rottnest island, are few ideas, my cousin will drive and we'll use hotels.
She has a swimming pool too so my RA will get some relief in the water. Oh we have booked assistance, another friend is travelling with us but going off to stay with her family but she is staying 3months wow.

Rhona, So glad you have hubby home, and I am glad your ribs are ok now, my broken shoulder is fine and healed very well.
But these things are slow aren't they and it is hard to get extra ailments when you struggle already.

Bsk I hope you enjoyed the tennis and your foot is getting better. Thank goodness it wasn't broken.
I didn't like Tom much either in his younger days, but it is the voice, fantastic!
Marlene best wishes, you sound pretty good at present thats brilliant.
Have a good evening all, hugs x
reply | back to forum

Date: 29.06.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

My foot is in good shape today. The frustration of having to sit with it up yesterday has paid off. In fact, I am feeling rather good generally. Let's hope the Lef doesn't mess that up. I start tomorrow.

Emm,my cousin lives near Rottnest. It's supposed to be beautiful.

Hope everyone is as well as can be expected. xx
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Date: 03.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies and a lovely sunny one it is. BSK so pleased to read your foot is on the mend. Hope the Tennis was entertaining enough to keep you from being bored. I hate having to just sit around and I know you well enough to figure out you are just the same.
Emm the trip just sounds fantastic packed with fun things to do. I bet your cousin is looking forward to seeing you and your friend.

Rhona how are you and your family doing? I really hope your husband and daughter are on the mend. Rhona don't forget to take time out for yourself (((hugs))) xx

Willis how are you doing.
Lynn I hope you are well let us know!!! Take care

Have a good day and enjoy the sunshine without getting sunburn of course xxxxx
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Date: 04.07.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

good morning all
sorry i haven't been on but have been working, recovering etc
oh my, it's hard work i can tell you. i literally dragged myself to the car after a 6 hour shift yesterday. today my arthritis has arthritis lol
joking aside, i enjoy the job, the people, even the grumpy customers but my legs have never had such a work out for years. there are 67 - yes i've counted them - steps just to get up to the staff room to drop my bag off, then down 67 steps back down to shop floor. then i do it all again on my break (15 mins) then at end of night. then i walk to car park i'm so glad of the 30 mins drive home for a rest ;)
today is my last day in the training store, then we have to stock the shelves of new store - the saving grace is there is not 67 steps to get anywhere :)
I'm in today instead of tomorrow as it's my birthday today - 48 - feeling 108 - and i'm spending tomorrow with the family. So on the plus side i have 3 days before the 'engagement day' that's a get together when all staff for new store are together for the first time. then not working again until the friday. so there you go, that is my life for the past two weeks - sorry to bore you with it
i'm taking paracetmol daily and ibuprofen when it gets real bad - like this morning
I have not read any posts above so sorry for that but I do hope you are all well as can be and can enjoy a little of this horrendously hot sun and that it helps you a little.
have a fabulous weekend.
this is Willis reporting from Essex.
lots of hugs to you all
xxxxxx
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Date: 04.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Wishing you a very Happy Birthday Willis. Have a lovely day tomorrow with the family.

I hope when you start at the new store things are a little easier for you. Fair play to you all those steps I would have run a mile LOL.
I am glad you like it thou. Not boring at all I love to hear what you are all doing it paints a picture for me.

Have a great day!!! xxxxxx
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Date: 04.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,

I enjoyed reading your Post too Willis, like Marlene I got the picture.
It's interesting hearing how M and S operate. Glad you like it, but wow all those steps....

My grandaughter in Switzerland has graduated from college and has a place to start in an eye hospital in Vevey in October.
I am soooo proud.

My ankle is still 'clicky' I had hoped it would pass but it hasn't.

It is still nice here, we are getting too used to it!

Rhona I hope your family are doing a bit better now, and you of course, best wishes to you.

Poor Andy is out of Wimbledon. Had high hopes for him too.

Enjoy your weekend everyone. Hugs as usual. X
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Date: 04.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm you must be proud and rightly so. It is just great to see them get on so well Well done that lady!!!

It has been another hot day here but down hill tomorrow. Went out and hit the shops today and spent some money. Clothes - Lovely Vase for dining room - Granddaughters birthday present - Strawberry's and cream.

Have a good week-end xxx
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Date: 05.07.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again
Emm that is excellent news for your grand daughter wow she must be so pleased :) Marlene I believe spending money is therapeutic :)
Just back from London went to see New English Theatre Ballet, was really good . swan Lake next I think lol
Hope you are all keeping well xxxx
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Date: 06.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, I have never been to the Ballet. It is on my to do list. I also want to see a big band sound. I have a long list and I am ticking them off one by one.
I think a little spend now and again is very therapeutic. LOL.

Take care everyone xxx
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Date: 08.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aargh! My shoulder is painful again. Back to the painkillers. No sign of the Leflunomide kicking in, though it is very early days.

Hope you are all ok. Rhona, how are things with you at the moment?
xx
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Date: 08.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk sorry about that shoulder of yours. Lets hope the Lef will kick in real soon. It is about time you had a reprieve from it all xxx

Rhona are you ok??? xxxx

Emm and Willis take care xxx
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Date: 08.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene. Enough is enough. Hope you are doing ok?
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Date: 08.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well what can I say my feet are being such a problem the pain is awful but I am trying to get on with it. It is hard as you well know to put a brave face on it all the time. It is making me a bit irritable but with myself as I just don't seem to have a day without constant pain.
I am talking like you don't know lol.

Bsk I think people like us deserve a medal haha.

Take care and have a good nights sleep if that shoulder will let you fingers crossed for you. xxx
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Date: 08.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, hon. I'm sorry you are suffering too. I'm taking codeine, which helps a bit. I hope you feel better in the morning. xx
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Date: 10.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, how is that shoulder? I am feeling a bit better today although yesterday I was in such pain I felt like crying but I refused to let it get that far. I am chilling today apart from food shopping so hopefully tomorrow will be even better.

I hope every one is well and not in too much pain.

Take care all xxxx
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Date: 10.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you've been feeling rough, Marlene. My shoulder feels better today. I feel there's a very slight improvement overall but it's early days yet.
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Date: 10.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk a slight improvement each day or so soon adds
up to a good amount. Fingers crossed for you!!!!!!
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Date: 13.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It's been quiet on here the last couple of days. Is everyone ok?
Rhona, Emm, Willis?
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Date: 13.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies,

Sorry for not being on much lately, just making the most of the beautiful weather and at the end of the day it is so sticky and close. But I am enjoying it and hope you are all too.

I still have my clicky ankle and now a swollen knee, i am trying to get in the GPs for a steroid injection in my knee before next week when I am off to Edinburgh to see Tom Jones. The surgery are going to ring me so I am hopeful.

This RA is relentless isn't it. I know after my Australia trip I am going to have to really go for replacements. I just hope I can get through it with jabs and medication.

Marlene and bsk, I hope you soon improve a bit. I had a bad day on Wednesday I woke up with a huge swollen wrist it was a bit less swollen on the Thursday and fine now but I just thought where the Hell did that come from as it is not a joint that I usually have much bother with.

Oh I had to cancel my 6 monthly RA specialist appointment and I cannot get in until December and that will be a year since I will have seen him.

He won't let me try anything else anyway so don't think I am bothered.

Rhona must be busy too at present I hope her and her family are OK.

Take care ladies and I hope your weather is good too. X
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Date: 13.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good to hear from you, Emm. You are lucky you can have the steroid injections at the GP and I hope it helps. I'm going for my first blood tests after starting Lef. Wish me luck as I really hope my liver results are fine.
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Date: 13.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, good to hear from you. Hope that steroid jab helps. You are right to wait until you have had that Australian holiday before having surgery.
Have a fab holiday first I would.

BSK hope the blood tests go ok for you. Fingers crossed.

I do hope Rhona is ok!!!! Bless her.

Well I went to my granddaughters 4th birthday today just for a couple of hours. BBQ and Pimm's lovely. Catching up with people haven't seen in a while. It was very nice. Home again now and chilling.

Take care everyone xx
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Date: 13.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You can't beat a Pimm's on a sunny day.
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Date: 13.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again,

Bsk I changed surgery last year because they did injections and they are so much more professional than the other surgery, who seemed to run on locums! There was no continuallity. (Spelling)
I tried LEF a couple of years ago but it did not suit me, but good luck to you, none of us are the same.

Marlene you've had a lovely day. I had pimms in the garden a couple of weeks ago with friends, they are delicious.
reply | back to forum

Date: 13.07.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Girls, I have just been catching up with your posts. Sorry that I haven't been on in a wee while but I have been feeling rather down with one thing and another and not feeling too sociable.

I do hope the levlunomide helps you bsk and you can persevere with it.

Marlene, sounds like a lovely day you have had. The weather has been beautiful here too, although yesterday the rain returned, just to remind us that it's never too far away.

Emm, hasn't the time flown by and it's now almost time for your trip to Edinburgh, I hope the weather is kind to you when you arrive, I am sure you will have a great time anyway. We are having the Commonwealth Games here soon as you will know, the cyclists will be coming through our village on the 31st July, all the local shops have been getting all painted and spruced up for the event as it will be on tv.

Hope the job is going well Willis.

Take care everyone and if I'm not on for a wee while I will still be thinking of you all. xxx
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Date: 13.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona. how exciting, we had the Tour de France not far from us last week and I visited Richmond in North Yorks the week before, it was a great sucess for the area.
You will enjoy the atmosphere.
Next Saturday night at Edinburgh castle (the night before our concert) there is a concert with some really famous stars, El Divo etc. We did not know at the time or we could have gone to that too. It's to celebrate the Commonwealth games too.

It's great that you are getting them in Glasgow.

Sorry to hear you're under the weather, I am thinking of you and hope all gets better soon. Take care x
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Date: 13.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, sorry you a feeling low at the moment. You have had a lot to contend with lately. I hope you can get to see some of the games.

Sending hugs your way (((Rhona))).
xx
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Date: 14.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, good to hear from you. Bless you Rhona you have had a lot on your plate so no surprise you have been low. I do hope you are on the up soon. Take time for yourself. Great big hug for you. xxxxxx
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Date: 15.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies, shall we start anew with posts, loads on here now.
Hope all are doing not too bad. X
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Date: 15.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

There's no need, Emm. Don't you just click on the 'Add comments to this topic' button? It takes you to the bottom of the thread.
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Date: 15.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

583 posts and now 584. lets change it when we meet I,000 LOL.

How are you all good I hope. Are you all ready for the heat wave on its way. It is going to be hot hot hot.

I have just booked my winter holiday (N0vember). So something to look forward to.

I was also looking at next May a short break in the Cotswolds but I thought lets not get carried away LOL.

Have a good day everyone !!!
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Date: 15.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again, yes it does go to the bottom, OK 1000 it is !!!

Oo Marlene you have a holiday to look forward to, thats lovely.
November is drab so a nice escape will be great for you, before Christmas.
You didn't say where you are going.

Bsk hope you are not too bad today.

I am warm enough now, always over heating shall we say.
But I do hope it's fine for our open door concert on Sunday night. I saw the weather on telly and heard 30 degrees.
We are having a good summer this year for a change.

Bye for now. X
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Date: 15.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yay! Let's go for a thousand.

I'm ok, a bit under par but have no idea if it's arthritis or something else. I expect the steroid jab is wearing off as I can feel my joints stiffening up. I'm liking this wether though.
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Date: 18.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, I hope you are all relatively well.

Beautiful sunshine followed by horrendous storms. JUST GREAT!!!!!!!


I have pains everywhere gardening and humidity don't go well together.

Emm we are off to Fuerteventura our favourite winter holiday destination.

Rhona HUGS xxx
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Date: 18.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, just had a huge downpour but no thunder yet. I was just going to hang out a darks washing, it's fine now but don't know for how long.

Ah I remember that is your favourite holiday place, I have been to Tenerife and Lanzerote but not to Fuerteventura. Oo you will have a super time, and it's good to have something to look forward to.
I did some errands out this morning and now spending the rest of the day cooling off in cropped trousers and a sleeveless top and no socks, it is cooling my ankle off lovely as the breeze coming in the open windows is a lot cooler today. I am jobbing around and having sits down in between. Clashing about all week in the heat has caught up with me. X
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Date: 19.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well two nights awake with fantastic storms but I am shattered. Just looking now and it looks very suspiciously like another storm brewing.( My poor dog is terrified and trembles.) It has gone so still and is so humid.
My hands are swollen and my feet are so painful again arrrggghhh.

I hope you are all good Hope you are all having a good week-end. xx
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Date: 20.07.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello all, well just finished the first week f the store opening! It was hectic and very busy and feel like I've been hit by a bus! The store is so hot and constantly on the move filling shelves showing customers were things are, my feet and ankles are so swollen and every part of me aches lol off for 4 days to recover now thankfully. This lovely hot weather is worse to work in. I'm glad you all enjoying the warmth of the sub. I'm off to fureteventura at beg august, can't wait :)
Jeep well all and hope you feel better soon Rhona xxxx
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Date: 21.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Willis, what a busy week. Enjoy your four days off. I hope you are enjoying you job.

Fuerteventura wow we have booked for our winter break there two weeks in November. It s such a great little island Rhona has spent time there as well. We could all do our own advert LOL.
Have a great time there put your feet up glass of wine and chill.
Take care and rest those swollen feet and ankles xxxx
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Date: 21.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

3 weeks on Leflunomide and I've got a chest infection. Bah!
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Date: 21.07.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's not good bsk. Do you think you will have to stop it? You have been unlucky with the meds. Perhaps you will seriously have to think about going down the natural route or have you asked about the antibiotic therapy that Sean and others talk about?

I bet you will appreciate your days off Willis. Make sure you rest plenty to recharge your batteries.

We haven't had any of the storms here (yet) Marlene. I hope you're not too sore. My hands are hurting, especially my index finger, I can't bend it at all.

How are you Emm? I hope your ankle is a bit better. I was looking at tickets for the opening ceremony for the Commonweath Games on Wednesday but probably see it better on TV unless I get one of the 250 tickets and I wouldn't spend that much. Rod Stewart I hear is disrupting his holiday in France to fly in to perform. Susan Boyle will be there too. Oh and the Queen is going to but she didn't ask me to join her.

Take care all xx
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Date: 21.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm seriously thinking about it, Rhona. They say you don't have to stop the Lef with an infection as it works in a different way. However, I may make my own decision on that if I don't feel better with the antibiotics and a short course of steroids.

Good to see you posting here again. Are you feeling a bit better? xx
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Date: 21.07.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Not really bsk but trying to have distractions. Take care xx
reply | back to forum

Date: 21.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Distractions are good. I'm also doing the same thing. Take care. xx
reply | back to forum

Date: 22.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona and Bsk, sorry to read you are both fed up. HUGS to you both.

Rhona Queenie didn't ask me and when I went to Buckingham Palace to have a look around and make sure the cleaners were doing their task's in the correct manner. LOL She went out how rude of her she must have known I had paid for a ticket.

Bsk I am sorry you have a chest infection you really do deserve a break. I don't know what else to say.

It is good that you are both posting distraction is good.

My hands are bad and to top it all my hubbies back has gone again. He saw the GP this morning and he needs to see his consultant again. It never rains !!!!
It just seems to go round in circles and it is hard not to let it all get on top sometimes.

Love and Hugs to you both and take care xxx
reply | back to forum

Date: 22.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aargh! Marelene, I'm sorry to hear about your hands and your hubby too. We all seem to have a lot on our plates. Sending you all hugs ((( ))). Try not to let things overwhelm you, Marlene. Just take it a day at a time.

I'm in that weird state that steroids (given for my chest) cause you to feel. Both exhausted and energetic. I've been trying to take it easy today as I'm going away on Friday and need to be feeling better.

xx
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Date: 22.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Bsk, fingers crossed you feel a lot better by Friday.
I am trying to take it all in my stride and just telling myself we will come out the other side. Positive is the way to go although sometimes it is hard.

We do all seem to be going through it. I am sure we will be that little bit stronger for it.

Goodnight sleep well xx
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Date: 22.07.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi All, sorry to hear things upsides down or sideways for you at the moment. Big hugs to you all. My feet are twice the size they should be and my ankles are trying to join the party still!b I know it's from the job and I just get on with it. I've more bruises than I ever had as a kid! Off to docs this week to see about some sort of support socks but she is on about my heart and going to vascular clinic! I'm sure it's just the standing on feet for 6 hrs x 3 days! But better safe than sorry! Had a wee bit retail therapy with grand daughter today so she got sale stuff from next and me from an M n S outlet near us. Ready for holiday now can't wait. Hopefully be heading to Edinburgh in October to see family all going well so very happy about that as could do with a breath of good Scottish air and a decent cup of tea lol. I put a post on Facebook yesterday to grumble about doctors receptionists, oh my, I nearly started ww3 . One of my friends is a practice mgr so she was telling us all off. It was funny though, I told her she should come have a look on these forums to see real grumbling :)
Anyway guys, I hope you all have a good day tomorrow and I will be doing the lottery to ensure we can all get away to the sunshine in winter xxxxx
reply | back to forum

Date: 23.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I don't know how you do it, Willis, I couldn't be on my feet all day. Can't you have a seat?
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Date: 23.07.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk , well so far the majority of job is on my feet although there has been a few times I've got to sit on tills for a wee while - an hour or two , depending on what doctor says I may be asking for the tills only for a few weeks. One girl - 18 - has been on the tills for her whole time working there! So maybe it's time for the younger ones to be on their feet lol :) this overly hot weather doesn't help , I hide in the house till nightfall!
Hope you're having a good day xx
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Date: 23.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm not bad, thanks. Antibiotics doing their stuff. Under the Disability Discrimination Act (called something else now, I think,) they have to make reasonable adjustments for you at work. You should ask your OH department at work about it or have a google.
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Date: 24.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, how are you all doing.

Well another glorious day. I got up this morning with a swollen hand and my Son asked "what have you done?" when I said oh its just my OA. He said "that really must hurt like hell".
I just told him it will be ok in a few hours but it has been swollen all day and yes it hurt like hell lol. It's just life and we all have to bite the bullet every day and just get on with it the best we can. I am just letting some feeling go sorry ladies!!!

I do hope you are all having good weather and you are all on the up.

Take care everyone xxxx Chins up!!!
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Date: 24.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have you tried ice on it, Marlene? It might bring the swelling down a bit.
reply | back to forum

Date: 25.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,

Edinburgh was fabulous, beautiful weather, lots going on in the streets, parades and music like a mardi gras, so that was a surprise and a bonus. Tom Jones was good, what a voice! We were right at the top of the seating on the highest level, I was quite scared doing all those steps! I think adrenaline got me up and down them. It was a lovely few days though.

I do however have a huge swollen ankle and horrific pain through my foot. I knew that there would be a price to pay. But it's a case of suffer more than usual or do nothing.

I think the warm weather makes me swell more.

Sorry to hear of everyones niggles, I guess I am just sharing and joining in with the moans and groans!

Love to all x
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Date: 25.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I did lots of cooling under the cold tap I find that helps a lot. Ice helps me as well. I finished the day burning myself on my face and chest. I went to take the meat from the slow cooker and it fell back in and of course a few bad words were said. I was let off as I was in the kitchen alone LOL.

Emm sounds like you had a great week-end and unfortunately we do pay. But just sitting in the chair is not an option for any of us.
I am at the village hall on Sunday doing my bit. Firstly I have to make 4 cakes and then I have to sell them along with Tea. Its just 2 hours but it is standing only haha. It is very busy as we are right in the middle of the walks and there is a little caravan site near by.
I am glad to say I have settled really well to the slower pace of life. I do have to get out to towns still for the hustle and bustle still a townie at heart.
Well the sun is out again and I have a busy day ahead just the norm shopping housework cooking oh you all get the picture.

Have a good day xxxx Hand still swollen!!!!
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Date: 25.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, I wish I could pop along and buy a cake. You are probably a great baker.
I have rested a lot since Tuesday to get my ankle down, Its not back to normal yet.
I am out to a get together with friends this evening but it is at their house so won't be too bad.
Am determined to do as much as possible while we have nice weather. Pain or not!
Have a lovely time and don't do too much. X
reply | back to forum

Date: 25.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, hats off too you!!! I am also making the most of the weather.

I have a lovely sun tan I look like I have been abroad and no sunburn at all I am pleased to say.

My hand has gone down a bit but I will be doing my ironing this evening as off out tomorrow. Hitting the shops. LOL.

Take care Emm and enjoy your evening out.

I hope the cakes turn out ok!!!!!
reply | back to forum

Date: 28.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone, hope you are all well. The cake sale went very well and it was very busy (just my luck) Yesterday made the most money this year. I have to say I enjoyed the two hours and met a lot of people from the village that I had not spoken to before.

It is another lovely sunny day here.

My fingers on my left hand are full of pins and needles and it is driving me mad any cures?? It is constant I can only think some nerves are being squashed by the OA. Oh well just another thing to be going on with.

Take care all xx
reply | back to forum

Date: 30.07.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Is everyone ok????
reply | back to forum

Date: 30.07.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene,
Everyone must be busy in the sun!
Nice to hear your cakes went down well.
I am struggling with my right ankle and the foot too now, feels like the joints under the ball of the foot is active, it's swollen and feels like more damage is happening! Oh dear, wish it would all go away.
I am probably doing too much but I want to enjoy the lovely weather and trips out as it doesn't last long.
I hope you and your family are OK.

Hugs for you. X
reply | back to forum

Date: 30.07.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad to hear you enjoyed Edinburgh, Emm and sorry to hear that your foot and ankle are playing up again. I can feel my knee starting to misbehave again, it has that horrible heaviness in it when the fluid is starting to build up.

I hope your hand is a bit better Marlene and glad to hear your cakes were a success. I'm afraid I would need to have went to Greggs and bought four as I'm not much of a baker. I made a decision years ago not to bake as I find it cheaper to buy the odd one if I take the notion. I think if I baked I would end up eating them all, lol.

How are you bsk? Did you enjoy the weekend away?

The weather had been beautiful here up until yesterday and today the rain is back.

Tomorrow we have the cyclists coming through our village, we have all had letters in saying we won't be able to get our cars out tomorrow and there will be no buses. The butcher is putting on a BBQ at the park beside me, I hope the rains clears for it.

My daughter is home from Spain next week for 2 weeks so looking forward to that.

Hope you are coping well with the job, Willis.

Take care everyone. xx
reply | back to forum

Date: 31.07.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone! Back from Glasgow. I had a fab time, went to some of the games and it was lovely to see my family. On the down side, my sister's MiL had a stroke while she was with us. I think she will be ok but it was quite stressful for everyone.

I did really well with getting to things and, although my legs were very stiff, wasn't in too much pain. The weather was good, on the whole. I arrived on Friday to 28 degrees, wonderful for Glasgow. I love that city!

Back now to a very pleased cat, more lovely weather and washing!

Hope you are all well. xx
reply | back to forum

Date: 01.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Gah! I've had to stop the leflunomide for a few weeks as my liver results escalated. I've also got loads of side effects. I can hardly walk today so am having to go back on oral steroids for a few weeks.
reply | back to forum

Date: 01.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Bsk, what a pain in the backside. I feel so sorry and wish I could say or do something to help you. I hope those steroids help you!!!
Bsk you really are going through the Mill.
So glad you had a good time in Glasgow. How is your sister? so stressful for you as you say. Bless you xxxx (((hugs)))
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Date: 01.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona and Emm I read your post and hope you are both well.


Rhona how lovely getting a long visit from your daughter. That must be making you smile. How is your hubby and other daughter doing? Well I hope.
Best wishes to you and your family. XXXX

Emm, you poor girl your foot sounds horrible. Hope it is easing off. I have to say making the most of the weather is just what I am doing and of course paying the price for it. I will rest up when the weather turns (winter).


I have booked to see a Gp in a couple of weeks He is worth waiting to see. He seems to be more interested in what I say than some of the others at the surgery. I am going armed with a few questions. So watch this space. LOL xxxx

Take care


Willis I hope you are rested and keeping well.
reply | back to forum

Date: 01.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That is a pain bsk. I think you are needing to have a long talk with your rheumatologist and see where you can go from here. Perhaps if a small dose of steroid works then might be as well sticking with them. Glad you enjoyed your break last week, the weather isn't so nice here now. High winds forecast for Sunday, unless they have got it wrong. I usually check the BBC weather forecast online as I find it the most reliable.

Yes, I am looking forward to seeing my daughhter on Wednesday Marlene, although she will be going to Iceland with a friend for a few days during her visit. Hubby is doing a lot better thanks. I hope your pain isn't too bad at the moment.

How is your foot and ankle Emm?

I think Willis is off on holiday now, I think she said it was the 1st August if I remember correctly.

I'm sitting here having a little glass of presecco, I am taking it for medicinal purposes. lol, it helps with the stress.

Have a good weekend everyone. xxx
reply | back to forum

Date: 02.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I will be, Rhona. I feel like a guinea pig at the moment. The good news is I can have a drink now, prosecco coming up later.

Lovely that your daughter is visiting. I really enjoyed being with my family, on the whole lol!

Emm, sorry, I missed the thing about your food. I hope it has eased up.

Marlene, thanks for your thoughts. My sister is well, coping with ill MiL, children and 6 of us. She's a diamond. Hope you get some answers from your GP!
reply | back to forum

Date: 02.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, So glad you hubby is doing well Rhona.

Bsk so glad also your sister is doing well.

You both must be delighted that your loved ones are doing well.

Bsk what are we going to do with you???? XXXXXX

I have been feeling unwell for the last few days I can't put my finger on it. I am tired no energy and just feel rubbish. Not much to go on. My pain has been settled. So its not that. Unless I have gone into shock at the lack of pain. LOL.

I had a visit from my eldest son and my two lovely Grandchildren. They sat down to Bacon sandwiches and cups of tea for breakfast. I settled for a Yogurt as my appetite is rubbish as well.

Anyway enough of my moaning. I spent the day doing gardening and enjoyed every minute of it. The weather here is still good.

Take care everyone xx
reply | back to forum

Date: 02.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope you aren't coming down with anything, Marlene.
reply | back to forum

Date: 03.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well guess what sore throat and a cough Fantastic!!! Oh well it could be worse.
reply | back to forum

Date: 03.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Poor you but at least you know what is wrong. Sit in the sun with a cuppa and a book and put your feet up for once! xx
reply | back to forum

Date: 03.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I am having an easy day I hope fingers crossed. I am supposed to be out for a girlie day tomorrow with my daughter. I need to buy some summer clothes for my winter holiday if that makes sense. No good looking in October.

Take care Bsk. x
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Date: 03.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Shopping for holiday clothes is what I enjoy doing, Marlene. There's a lot of sales on in the shops just now so perhaps you will pick up some bargains. I hope your cough clears up quickly. The time seems to be passing so fast just now so your holiday will be here before you know it. My chest is feeling a bit iffy just now too and that is unusual for me.

The weather here has been awful the last few days, yesterday it rained heavily all day and today doesn't look too promising for the closing ceremony tonight.

Hope everyone else is keeping as well as can be expected. xxx
reply | back to forum

Date: 06.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well the sore throat and cough is less and I feel a little better. I did go shopping and picked up some nice bits for the holiday.

I am waiting for the vet to come out and have a look at my poor little dog. She has Colitis and is suffering badly today. I had to close laptop as vet arrived. Antibiotic and anti-inflammatory and aVitB12 injections. Then from Friday 6 weeks antibiotic pills. I am paying the bill Friday the bank balance might not be too healthy either. I don't mind as I have a beautiful German Shepherd with a very soft nature and she came to me so she would be well cared for (that's what every one tells me).

Well back to you ladies how are you all? We had rain over night but the sun is trying to come through now. My left hand knuckles are very swollen and it reminds me of boxers hands after a fight LOL.
I am now off to make some Cherry Plum Jam!!!

Take care everyone hugs to you all xxx
reply | back to forum

Date: 06.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad to hear you are better, Marlene. Sorry to hear about your dog, it's rotten when pets are ill, you feel so helpless.

I think I'm coming down with another chest infection, gah! This is endless.

Hot and muggy here today. Again.
reply | back to forum

Date: 07.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Bsk, we all seem to be struggling and you seem to be struggling more. Oh bless you I hope it's something and nothing. I have felt rubbish for days now and I am fed up to the back teeth as the saying goes.
I have a Drs appointment on Monday, what I think is going to change I haven't a clue. I am asking for a stomach protector for all the pain killers I take. I am also going to ask for a steroid jab for my shoulder and elbow they are both so painful. I don't think they do much for hands and fingers but I will have the conversation about it. I am on a mission to get something sorted.
I am also going to have the conversation about oral steroids.

Well that's my rant over. Bsk how are you doing on the steroids?? I guess you must be fed up as well. I know like me you will pick your self up and fill your day pottering around and going out just the same. I am sure that armchair is not an option just yet LOL.

My dog seems a lot better this morning just fed her so now it's just wait and see. I wish the vet was looking after me hahaha. No lets see how this works then come back. Just this is what the dog needs.

Take care and chin up take some rest and hopefully you will feel better soon. xxxxxx
reply | back to forum

Date: 07.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you are feeling so rough, Marlene. They will do a steroid injection for hands, I had one earlier this year and it helped a lot. Actually, it was for the base of my thumb, so not, technically, even the wrist. Do ask. Try to get them done under ultrasound if you can as they can really target the inflammation and see what they are doing. You will have to wait a bit for that but it's worth it.

I know what you mean about expectations. It's grim when you think there is just more of the same. Keep your chin up , as well, though your spirit will carry you though!

I stopped the steroids as they were affecting my mood. I need to have a conversation with them all again at the end of the month but I'm really fed up too.

Take care. xx
reply | back to forum

Date: 07.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, I really feel for you. You just don't seem to be getting much help from anything you try. I have heard people say that steroids can be mood changing. I hope they can come up with something to help.
People wonder why we are so changeable with our moods. I do try to explain but it's that old thing if you look ok!!!! I guessed you were fed up I notice in everyone's posts when they are down so I would imagine you all notice when I am fed up.

Bsk have a glass of wine or something I have a fish dinner this evening and am going to chill a bottle of wine. Hubby has four days off now so I have decided a bottle of wine will be a tonic for us both LOL (any excuse).

My next two weeks are going to be busy weather permitting my daughter has time off and we are planning some days out. Something to look forward to.

Hug for you and take time out for you and don't forget your little tipple xxxxxxx
reply | back to forum

Date: 07.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks so much, Marlene. The support on here is invaluable. I know everyone understands what I'm going through and vice versa.

Enjoy your fish and wine!
xx
reply | back to forum

Date: 07.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Bsk same goes some days when I just need to let go or feel a bit low or sorry for myself I know you are all here for me. No Judging No yawning No Blah Blah Blah or yes yes yes.
My friends that I don't need to meet because I know you are all here and I am here for you all.
reply | back to forum

Date: 07.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona Emm and Willis, I hope you are all ok. The sun is still shining here but If the forecast is well we are in for a lot of rain. My pain can't get any worse so rain do your worst.

I am sitting by the window watching the farmers struggling to get through our road with the parked cars and traffic coming from the other direction. They must be frustrated no wonder they work up to midnight.

Yesterday I made eight jars of Cherry Plum Jam courtesy of tree already in garden and I must say it was a SUCCESS. Next year I am hoping my Damson tree will give me some more fruit.

Well that's my news. I hope you have all been doing something a little more exciting.

Take care xxx
reply | back to forum

Date: 07.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I love Damsons but they are hard to find here. I feel a purchase coming on.
reply | back to forum

Date: 07.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I have a wild Damson tree but the fruit is so bitter even when ripe. Not sure why people kept them everyone in the village say how awful they are. There must be a reason for them but I haven't found out yet. Any ideas????

Thinking caps on Ladies. LOL
reply | back to forum

Date: 08.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Damson Gin

http://www.womanandhome.com/recipes/532444/homemade-damson-gin-recipe
reply | back to forum

Date: 08.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Wow Bsk top of the class. I will have a look.
Hope you are ok.
reply | back to forum

Date: 11.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, quick update went and saw GP the outcome is I will be waiting for a phone call to go back to GP for steroid injections in shoulder and elbow joints. They have a consultant that goes to the surgery but I will have to wait 2-3 weeks. I could have gone to the Local hospital but the waiting list there is anything from 6-9 months as I will have to start all over again.
I am sort of happy at least he listened and came up with some sort of plan. If the injections don't work he is going to have another rethink of which way to go. He thinks maybe start with a new rhumey team. So watch this space.

How are you all doing. Bsk are you feeling any better????

Take care xxxxx
reply | back to forum

Date: 12.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Excellent news, Marlene. 2-3 weeks so much better than 6-9 months (which seems inordinately long to me, so much for 18 week waiting list for treatment.) I hope it helps and is a good start. I found the injections really worked.

I'm still feeling unwell but am starting to think it is probably arthritis 'flu' feeling rather than an actual virus. I'm going to chill out at home again today to see if that helps. This happens so regularly and is such a down side of RA. Not that there is an up side, haha.

How is everyone else doing?
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Date: 12.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, If it helps I am also having a stay at home day chilling does it help I don't know. We can only but try to help our bodies by resting up.

The 6-9 months in toll will be waiting for appointment then rebooking for injections that's 2 x 18 weeks this is how they get away with it. So 2-3 weeks will do me just fine. I am not looking forward to the elbow one not laughing at all. I remember my last two were so painful but I will grit my teeth.
I am hoping they work as they worked for me before.

When a GP asks me "what are you hoping I can do for you" gave me a good ten minutes explaining exactly what I was hoping for and for a change I got it no argument. So I came out pretty pleased with myself for a change. I normally just grunt and nod and kick myself for not saying what I had told myself I needed to say.

Forgot to say after the Injections he is going to look into tests for PA. At least this Gp listened well to what I said.


Take care Bsk and hi to all my other Ladies. Have a good day xxxx
reply | back to forum

Date: 12.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's really good, Marlene. Well done for standing up for yourself. xx
reply | back to forum

Date: 12.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies,

What a miserable day it is here today, so cold and damp, it feels more like winter today.

That's good that you got some satisfaction at the docs, Marlene. I hope the injections work wonders for you and keep you going until you get back from your holiday, it won't really be that long now.

My daughter came home last week but she has left us again to go to Iceland for a few days. Well seen she gets enough sunshine where she lives. She will be home again on Thursday and then back to Spain next Wednesday.

I hope you are feeling better bsk. Just have a few days being kind to yourself.

I ordered a rug from ebay and I don't like it so I will have to try and find a courier to return it, that's the worst of ordering anything like that as they always look better in the photo.

How are you Emm? I hope your ankle is ok.

I guess Willis must be busy working away.

Take care everyone xxx
reply | back to forum

Date: 12.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again, twice in a day with good news!! I got a phone call from the receptionist at the GP's. I am going Friday at 10:30 for my injections. I am a bit nervous but I know this is what I need.

Rhona you must be having a great time with your daughter being over. Iceland is supposed to be beautiful. Lovely she will be back with you for a few days before going back to Spain. I hope your husband is well.
What a nuisance you didn't like the rug. I have seen things on line and have backed off buying them just in case. The trouble is it all looks so good in a photo. I have to say there are lots of bargains on e-bay and my daughter has purchased a few things from them and always been very happy.

Take care ladies xxxx
reply | back to forum

Date: 12.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's good news Marlene and the sooner the better xx
reply | back to forum

Date: 12.08.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Excellent news, Marlene! I don't find the steroid injections painful at all. Best of luck.

Rhona, good to hear from you. We are having dreadful weather here too, rain, thunder etc. etc. Lovely that you've got your daughter staying for a bit. She's very lucky living in Spain. I would love to do so myself.

Could you put the rug back for sale on Ebay? That way you don't have to pay to return it.

xx
reply | back to forum

Date: 12.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I managed to get in touch with the seller bsk and they have arranged for a courier to pick it up tomorrow (at my expense) he sent an email with a label to print off to attach to it and as I don't have a printer it means I will have to rush down to the library in the morning and hope they don't arrive before I get there and back. I must try and sell some things on ebay, up until now I have just been a buyer.

Yes, my daughter is fortunate to be living in the sun, although she said the heat was unbearable when she left. What a contrast to Iceland she messaged saying how cold it was there.

Marlene, I meant to ask if your dog has recovered, it's bad enough when we are in pain but we hate to see out pets suffering. I miss having a dog but I don't know that I could go through all that again after poor Millie.

I was hoping to have an early night as I haven't been sleeping too well but I am sitting here having a wee glass of prosecco, I got a box of 12 bottles delived from Tesco, I'm not trying to encourage anyone lol but they do a deal where you get 10 off your first wine order and free delivery over 50.00 so not a bad deal.

Sleep well everyone and take care xxx
reply | back to forum

Date: 12.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Are you working your way through the box then, Rhona?
reply | back to forum

Date: 12.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Of course, bsk. I think it helps, better than some drugs lol. xx
reply | back to forum

Date: 12.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'd go with that. Now I'm off my drugs I can have a drink but haven't been bothering. Time to change my mind!
reply | back to forum

Date: 12.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

bsk, I should say that it doesn't always help the pain but it certainly relaxes me and that's a bonus. I think it is keeping me sane. I'm making myself sound like an alcoholic now lol. x
reply | back to forum

Date: 12.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Not in the slightest. xx
reply | back to forum

Date: 13.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Cheers Rhona !!!!!! Bsk get that bottle opened I have put a bottle in the fridge now LOL.

Rhona my little dog is good now. She has Colitis and has bad flares sometimes I suspect she was eating the cherry plums that had dropped. Her diet is so bland she will eat anything that she finds and the result is a flare up. Bless her.

I hope you are all relatively well have a good day xx
reply | back to forum

Date: 13.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, my little dog is back to her normal self. She had a real bad few days bless her she has flares of Colitis and it is just horrible for her. Thanks for asking. I understand how you feel it is not nice at all when we lose our pets. I said the last time NO MORE but my other half was so lost with out a dog my Mum paid for this one. I just would be lost without her now.


Bsk the only steroid injection that ever hurts me is the one in the Elbow joint apparently this is quiet normal. Not at all worried about the shoulder one. To be honest Friday can't come quick enough.

Emm and Willis I hope you are both well. xxxxxx
reply | back to forum

Date: 13.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to hear she is back to normal, Marlene. I hope she keeps well and has no more episodes of it. I went for a walk at the loch today as it was a reasonable day here and when I see all the dog walkers that's when I wish I had one again.

I hope the injection won't be too sore, if I know I am getting something like that or if I have to have a filling I usually take a couple of paracetamol before I go.

Take care everyone. xxx
reply | back to forum

Date: 14.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm so envious of you having a loch to walk by, Rhona! Are you thinking of getting another dog at some stage? Pets are supposed to be very good for us psychologically. I love my cat, she's quite a character. I would like a dog but suspect the cat would leave home!
reply | back to forum

Date: 14.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

.. I forgot to say, I caved in yesterday and bought a shopping trolley. Zebra striped but so out of keeping with my stylish normal looks (lol!) However, I have to come to terms with the fact I can no longer carry bags of shopping, even though I live very close to the shops. It is light enough to put in the boot of the car too. Oh well, middle aged here I am.
reply | back to forum

Date: 14.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Very sensible, bsk and it sounds very stylish. I see lots of people using them now and I wouldn't hesitate to use one but I wheel my shopping right up to my car. I did buy one of those bags that has wheels for travelling and then discovered it was too big to take on a plane but I kept it and if we go away for a weekend it will be handy.xx
reply | back to forum

Date: 14.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

LOL Bsk your shopping trolley sounds fantastic. I love the sound of it. Who cares about fashion. I have thought about it but usually I am lucky enough to have someone with me when I food shop. Fantastic little aid for you!!!!! I can't carry any shopping either I am resigned to the fact I am getting older LMAO. I emptied my handbag out the other day as I said it was too heavy what a joke it sometimes isn't even funny but my sense of humour always jumps in. I guess I only need my bank card when I go out I could tuck it in my Bra.
Happy shopping Bsk!!!!!!

I love cats Bsk I had mine for 17yrs and when I introduced her to my first rescue dog she lived on the top of a cupboard for a week and climbed in and out of the kitchen window. She then decided she had had enough jumped down bashed the dog who became a quivering wreck for the day. She let him know his place typical woman haha. They were ok after but the dog was always that bit scared of her if she stared he got up and moved.
I think cats have very funny little characters.

That sounds so peaceful walking along the Loch it sounds very pretty where you live.
Have you ever thought of fostering dogs Rhona at least when you are under the weather you can choose to have a break no worries when you go on holiday. I watched a programme about fostering dogs and I was in awe of the people that do it. A little older lady fostered all the little dogs bless her. (just a thought).

I am so looking forward to my holiday we have decided to spend the two weeks just chilling out. Taking each day as it comes no planning days out. Usually we would plan all the places and things we are going to do before we get there. I

I am going as I have been waffling too long.

Take care everyone xxx
By the way the rain reached us last night.
reply | back to forum

Date: 14.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, when I had a cat and dog together the cat was always the boss and my German shepherd pup would chase the cat into a corner then the cat would scratch her eye and she would go away whimpering. As they got older they seemed to look out for one another, I often found them sleeping side by side. I don't know about fostering, it is an idea. My daughter has left her wee poodle with a lady that the vet recommended rather than putting him into a kennel.

I bet your holiday can't come soon enough. My brother has just booked today to go to Portugal for a month in November. It is good to get away during the winter months for a break. xx
reply | back to forum

Date: 14.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Baby sitting dogs sounds like fun. Fair play to your brother a nice long break for the winter. I like Portugal and it is my brothers and his wife favourite destination and they go every year for a winter or spring break. They do long flight holidays in the summer I would never cope with a ten hour flight.
Off to bed now injections in the morning.

Take care ..
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Date: 15.08.2014
From: Bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope all goes well this morning, Marlene. Don't forget, you have to rest for two days after the injection. Which was what I was told earlier this year. So NO gardening, etc. this weekend! Put your feet up for once. ((((Marlene))).

Emm & Willis, you've both been very quiet. I hope things are going ok for you.

Rhona, hope you are doing ok. xxx
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Date: 15.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Gah! I had to call 999 this morning because I had severe pain in my back and felt I couldn't breathe. They think it is muscular and I felt a prat, though they were incredibly nice about it and said to call again if it gets worse.

So, now, I'm dosed up to the eyeballs and a bit zonked but glad I haven't had a heart attack or lung collapse.
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Date: 15.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh bsk, that must have been really frightening for you, you did the right things calling them out. Funny, I have a pain today around my lung area but hoping it's just muscular. I got my blood results today and my white cells are low so I'm going to stop the mtx. I have the hospital on Wednesday anyway but don't think I will be getting any infusions until they go back up. You take it easy today and keep it warm. I have a massage cushion that I put on now and again and it does help a little.

It's my birthday today so we are all going to the casino tonight for a meal and might even try my luck at the roulette table.

I hope you got on ok Marlene, take bsk's advice and rest for the two days, that's the information I was given too.

Are you ok, Emm? xxx
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Date: 15.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Happy Birthday, Rhona! I hope you have a lovely evening.

You are wise to stop your drugs. I had this on one or two occasions and they tend to go up quite quickly. Still, it's a bit of a worry. Hope your pain is muscular. Mine came on very suddenly, which was why I was worried. The paramedics were incredibly kind to me and tested me for everything.

take care. xx
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Date: 15.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Firstly "HAPPY BIRTHDAY RHONA" have a fantastic celebration tonight and I hope you are lucky on the roulette table. I hope things get sorted for you very soon Rhona.

BSK never feel like a prat you were right to call an ambulance and get your self checked out. Thank goodness it is muscular although very painful. At least you didn't get admitted for the day and night to be told it was muscular. I felt a real fraud amongst all those sick people LOL. We have to be careful and not assume chest and back pains are Arthur related. The paramedics are just great and on the up side you know you are ok. Bless you!!! You must of been so scared. (hugs) xxx

I had my injections but only in my shoulder he did inject two sites in hope the elbow will settle as well. I have some exercise to do for my elbow. He was a lovely guy. My shoulder is very sore tonight and yes I will be resting up for a good few days promise. Two days complete rest and then two weeks taking care not to lift too much.
He asked me what have you been doing I was honest and told him washing ironing cooking hovering polishing and lots of gardening. That's what being a housewife and a carer is all about. He agreed that it is hard for women. Oh well fingers crossed it will work. I can go back in 4 weeks for another in the shoulder if need be or in the elbow if things don't improve. So at least things are improving for treatment.

I have to go typing with one hand takes so long.

Take care and rest up as well both of you xxxx
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Date: 15.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene. Yes, I was scared but think I was right to call as well. They couldn't have been kinder to me and we had a very long chat about RA and all the difficulties I have had with the drugs. The painkillers are working well.

Good to hear your injection went well today. I hope it eases things up quickly and it's good to know you can go back for more if you need them. Try not to reply to this and have a good rest.
Take care everyone. xx
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Date: 15.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk glad to hear your painkillers are working. So glad you had a chat with them.

I had to reply to you and also to tell Rhona she shares her birthday with my 15yr old granddaughter.

Speak later xxxx
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Date: 16.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

We also share it with Princess Anne, Marlene. How is your shoulder today? remember and not to lift anything heavier than a cup.

How are you today Bsk? I hope the pain has eased.

Have a good weekend all. xx
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Date: 16.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear I am so bored but being so good. My shoulder is so sore but I am hoping for it to get better quick. I always get so sore for the first two to three days I won't ask is this normal LOL.

My son popped in with a big bag of Victoria Plums from his garden. So my shoulder needs to be over its self this week lots of jam and crumbles to be made. I gave him a jar of my Cherry Plum Jam so he is a happy bunny.

I didn't know it was Princess Anne's birthday whoops forgot to send a card. Hope your night out was good.

BSK are you ok today and resting????????

Good week-end to you all xxxx

Emm are you ok???????
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Date: 17.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone,

Yes, I am resting today, Marlene. What about you? How is your shoulder feeling? I, too, have Victoria plums but I can't be bothered to do any cooking, my joints are too bad. I need some meds!

How is everyone else?
xx
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Date: 18.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, oh dear I feel for you. When are you likely to get something?

I have to say my shoulder is so much better and the elbow seems to have righted it's self. I have been really good resting. Going out today for some hubby and me time. Stately home and gardens then out for dinner.

I haven't even looked at the plums yet! still sitting in a two big bowls.

The weather has definitely turned for the worst I hope it brightens up a bit.

Take care Bsk and I hope you are feeling at least slightly better today (((hugs))) xxxx
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Date: 18.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sounds like a lovely day, Marlene. I hope you enjoy it. I'm surprised about your comment about the weather as it is a beautiful day here. Perhaps you need to change your plans and come into town!

I rang to get results of my bloods that were done on Thursday. My GGT has come down but is still high, as is my ALT. I doubt, somehow, they will let me back on the Lef. My nurse and consultant are both back next week so I see another discussion coming. I'll talk about meds then but I'm not going back on oral steroids.

xx
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Date: 18.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Back home now with my feet up. Had a lovely day out and the weather was very good to us in the end. We spent five hours in the grounds and house and also had our meal there. It was a lovely day.

Bsk I hope they can suggest something for you that will actually help you. You haven't had any luck with your meds for a long while and it just seems so unfair. Is there a reason for this or is it that nothing suits you. I know that sounds a bit of a daft question but as you know I don't take your sort of meds. I do feel for you as you just seem to keep taking one step forward and two back. Oh Bsk I just wish I could help!!!!

Take care and just rest up until you see your consultant. xxxx
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Date: 18.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Nothing suits me, Marlene. The meds are quite strong and my body doesn't seem to like them very much. I think it does happen to quite a few people,though many do seem to do well on them.

Glad you had a good day out and some decent weather.
xx
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Date: 18.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk well that is pretty rubbish then. I have looked up some of the drugs and I realise they are very strong. Is there nothing lesser you could try? I suppose you will have to have that conversation and see what your options are.

Take care and keep your chin up xx
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Date: 18.08.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good evening all , happy belated birthday Rhona, hope you had a great time and got spoilt
Just back from holiday on Friday and been catching up with laundry and all that.
Had a great time, as brown as a berry as they say. Grand daughter loved it. She is back at home now but very quiet here without her lol
You have all been having a right old time of it, I hope you are all feeling better.
Looking for anothervjob, as I suspected I may have to, my knees are very sore and I really struggle to get out of chair or bed so when I go back to work at end of week there will be no more filling bottom shelves. Got hospital on. 6th sept so hoping he will give me steroid jab. Feet and ankles/heels still swollen and sore.
Bit sad tonight as ex colleague been at hospital all day, been told to cancel her holiday to Malta next week! They found a 'mass' at the back of her throat! She already has lumps or polyps or something in her lungs that they were keeping an eye on. She has some type of Arthritic condition too! She has got so thin in the past year it's scary. It started with what seemed like a constant nose bleed last Thursday so ENT was the first place they sent her. So sending out lots of prayers for her :)
Anyway, just thought I'd see how you were all doing and catching up and all that.
You take care , lots of hugs to you all xxxx
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Date: 19.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, so sorry to hear your news about your friend with the mass in her throat. I hope she gets the treatment she needs. Also the news about your job. Is there anyway you can stop working? Or is that impossible? I wish you luck with looking for something else though.
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Date: 19.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, good to hear you had fab holiday. So glad your granddaughter enjoyed it also. I bet you look the picture of health with that lovely sun tan.
Oh dear your poor friend my thoughts are with you both.
Willis you are right if you are suffering because of your job you must have a rethink. I know it's not easy with Bills to pay and everything being so expensive. I hope you can find something more suitable or the steroid jabs help you out.
I had a couple of steroid jabs and my shoulder and elbow are so much better.

Take care Willis talk soon. xx
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Date: 19.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad you had a good holiday Willis and sorry to hear that the job is making your joints sore. It's not worth it if it's affecting your health. You could ask if they could move you to something a bit lighter. Sorry to hear about your friend, I hope she will be alright after treatment.

My daughter has decided to stay on another week she changed her flight today, it's good to have a bit more time with her.

I have the hospital tomorrow but probably a waste of time as I won't get anymore infusions until the WC go up.

I hope Emm is alright as she hasn't been on in a while.

Take care everyone xxx
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Date: 20.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Nice to have your daughter around a bit longer, Rhona. I expect she's staying because of the weather!
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Date: 20.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, How lovely Rhona enjoy your extra week with your daughter!!!!
Good luck for tomorrow.

Emm are you ok???

Ten jars of plum jam made. Now three plum crumbles for the freezer. (comfort food). Very pleased with myself after so many days doing nothing.

xxxx
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Date: 20.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That is good, Marlene. Mine are still languishing in the fridge. I will have to do something with them tomorrow. No plum crumbles for me though, I'm on a healthy diet (and have, incidentally, lost 11 lbs.)

My shoulder is killing me tonight and I've taken 60mg of codeine. I hope to have a lovely sleep tonight!

xx
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Date: 21.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, well done you!! I am also on the dreaded diet for my holidays and I am pleased my first stone has gone. I piled the pounds on after back surgery. Not that I will have a bikini body by any means LOL.
Oh Bsk shoulder don't mention it!! I feel for you I hope you got some sleep with it. Thank Goodness for the pain killers. My shoulder is so much better and I am pleased to say the elbow feels better also. The exercise he gave me seemed to do the trick along with the steroid shot in the shoulder. Happy days.

Take care sweetheart ((hugs)) xx
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Date: 21.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aw thanks, Marlene. Well done you for losing a stone.That's no mean achievement, especially with arthritis.

It's beautiful here this morning, not a cloud in the sky.
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Date: 21.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, I have tried so many times and gave up but I seem to be doing fairly well this time. Thanks for the boost because people don't realise it is hard for us to exercise. We like all the nice things just like them so we have to be more disciplined.

I went out window shopping with my daughter and found some nice scatter cushion covers in Ikea that go with my new sofas. My last scatter cushions were fairly new so for 2 a cover cheap way of matching up with the sofa. Smiley face!!!

I also bought some lovely pansy's to brighten up the hanging baskets that are slowly loosing the appeal they had. So easy gardening if the weather allows.
I also purchased a lovely pair of lounging PJ's. I love my pyjamas. So the window shopping was quiet successful.
The weather has been lovely here also but the late evenings have been cold so snuggle throws have appeared on the sofas. LOL. I soon put them away in the mornings don't want to be reminded of the winter looming.

Take care Bsk.

Rhona Willis and Emma I hope you are all well.

I have been looking back and Emm hasn't been on since the 30th July I really hope she is just enjoying herself and not unwell. Emm lets us know if you are ok!!!!!
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Date: 21.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Let's hope she is ok. Rhona's got her daughter here so quiet from her too.

I changed my thinking a bit about losing weight. I decided to eat to bring my cholesterol down. I eat as much as I want as long as it is good stuff. The weight loss has been a by product of that. Occasionally, I'll have an ice cream, or something like that, but it's the exception rather than the rule. I'd put on a stone in weight over the past few months and it is good to get back into some of my clothes. Better for my joints too!

take care xx
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Date: 22.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Bsk, your diet is similar to what I am doing just leaving the rubbish alone. If I feel like something sweet I have a yoghurt or fruit. I couldn't starve myself I just don't have that will power. I did buy some Swedish biscuits in Ikea they are little oat ones so they will be a stand by for those craving days LOL.
So far my Cholesterol is ok but if I don't watch out I will have problems because it is a family thing.
The clothes thing is right I can fit so comfortable in so many things now it gives you that little push to carry on.

I know Rhona is busy with her daughter but it's not like Emm not to post. She did say she was making the most of the weather and fair play to her. It's just a little worrying when we don't hear from one and other.

Well I better actually do something like housework how exciting haha!!!!
Take care and have a nice day xx
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Date: 25.08.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies,

I am fine, just been busy and tired at times.

Thankyou all for enquiring, you are all lovely.

I have popped in for the odd read and actually spent a while typing yesterday but it seemed to disappear after I made a correction and my hand hurt to type it again.

My ankle is still a problem and is really swollen, I saw my specialist on Friday and he added Hydr'. Sulphate to my list of meds, I am not too happy about it and may not take them.
I feel I am taking enough. He won't hear of me trying a bio and so I may ask for a second opinion.

Opinions welcome! Please as I feel a bit rude as he is very nice but he won't let me try other things and I think he should.

Oh it's slowly changing isn't it my heating has come on tonight so it must be cooler. The dark nights are coming too. Yuk.

Best regards to all keep as well as you all can.

Bye for now. Emm x
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Date: 25.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, sorry to hear you are in so much pain. I can't remember where you are with your meds but if you've tried two dmards you are entitled to be considered for bios or anti tnfs. You have to fit the criteria. So, if that is the case, I would ask for a second opinion.
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Date: 25.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Nice to hear from you Emm, we were all getting worried at not hearing from you. Sorry that you are still having problems with your ankle. I don't know why he won't consider you for the biologic drugs, I know if I wouldn't have had the rituximab I wouldn't have be able to walk now. You should ask for a second opinion.

My daughter goes back to Spain tomorrow, so feeling quite sad tonight.

I have noticed a difference with the nights too Emm, I'm not looking forward to the winter nights brrr.

Take care everyone, nite nite. xxx
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Date: 25.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

(((Rhona))) It won't be long before you see her again.

I'm being an optimist about the weather and think it will get warmer. Though quite a few of the leaves on my trees are turning. Unheard of in August.
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Date: 26.08.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, I feel for you,

as you know mine is in Switzerland so I know where you are coming from and how sad it is when they leave again.

I think you seem to see yours more than me as mine has a family and they are soooo busy.

I hope she has fully recovered now from her illnesses.

Look forward to her next visit and keep well. X
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Date: 28.08.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, I've heard a rumour that summer is going to resurrect itself briefly so you might be in for a little more sunshine yet :)

I'm refusing to put my heating on yet though will have to test it soon as it always gets grumpy and a lot of faffing to get it back on after it's been off for a while.

I'm flaring at the moment and feeling a bit urgh with a UTI, waiting to see what they have in store for me next as looks like I may be taken off toci because of my ALT.

They mentioned something about seeing how I do off meds to assess me to work out the next plan, finally managed to get out of them they were thinking of a MONTH!!! Am not impressed and pointed out I need to work and am on my own with no family near me either.

They said they won't let me suffer but I can't see the two going together somehow and am already flaring, rang them a week ago but no call back yet. It might be a long few weeks.....

Might have to get myself some DVDs in! :)

I need to get some pounds (well, stones more like) shifted. Keep being told about this Juice Plus thing but sounds a bit drastic to me.
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Date: 28.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Welcome to the thread, Eve.

I've got problems with high liver enzymes, pretty sure they won't put me back on Leflunomide, but I might be wrong.

Re: the 'diet' thing, if you read upthread, you'll see how Marlene and I have both shifted some weight. Me through a 360 degree turn on how I eat. I eat what I like, as long as it is healthy, never go hungry and don't beat myself up if I have the occasional treat.
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Date: 28.08.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk,

I tried Leflunamide two years ago and could not tolerate it with high liver results too.

Hi Eve, sorry to hear you will have to try without medication,,, seems a bit drastic!

Good luck with the dieting, my sister is struggling and has not lost anything for two weeks, she goes to slimming world.
But she is not dertermined at present and not sticking to it.
It must be hard to succeed.

Regards to all. X
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Date: 29.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies and a big hello to Eve, How are you all good I hope.

Rhona you will see your daughter very soon. I bet you will be booking a flight as soon as you can.

Emm I hope the new drug works well for you. I read on the other post you are getting results already. Good luck!!!!

Bsk how are you? The leaves are all turning yellow here as well. It is very warm still and yesterday was a glorious day. I like you are sure we must get some more sunshine before winter sets in. It is still only August.

Eve, I hope you are ok without any drugs make sure you have some good painkillers just in case.
Dieting is difficult for us. Please don't do anything drastic. Just healthy food and less on the plate is the best way to do it. Bsk and myself have treats and this is the best way to go. I am still losing weight slowly but surely. 1st 3lbs so far. It is for my holiday in November as well. Good luck with it all.

I am going to go back to see the steroid injection man and get my elbow done. My shoulder is much better so now I am feeling the elbow more. I just can't win lately. The rainy days were a nightmare my poor feet were just agony. I did my usual and spent quiet time and withdrew. It is just my way of coping and to stop myself boring everyone with ouch ouch and more ouch.LOL

Take care all ((hugs)) xxxx
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Date: 29.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Nice to have you join us Eve. I hope you are right amount the sunshine, unfortunately it is wet and miserable here in Glasgow today. If you find yourself struggling then make sure you get back onto the hospital, sometimes we have to make a noise. I remember a nurse once telling me that those that shout the loudest get the attention, although it has never been in my nature to make a fuss but sometimes we have to let them know how it is.

I am pleased that the injection helped your shoulder Marlene and I hope the elbow gets the same benefit. Are you going to wait until nearer your holiday before you get it?

How are you coping without medication bsk? and well done on losing weight. I am trying too but I think a lot of it has to do with the reduction in my thyroid tablets. I have put on two stone since going onto the rituximab, I'm not blaming that for it but I was so ill before going onto it, I was happy to put on one stone but not two so will be cutting out my wine gums and also my prosecco.

I hope you are feeling better Emm. I guess Willis must be busy working, I hope she isn't overdoing it.

We are going up to Aviemore on Sunday for an overnight stay, I just hope the rain goes away.

Have a good weekend all. xxxx
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Date: 29.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, I don't think I can wait that long its becoming a bit dodgy. I have started dropping things with the pain. This is what happened in my right arm and the inevitable surgery. I am trying to avoid this on my left elbow.

Have a lovely time in Aviemore have a couple of wines and then think about cutting it out LOL.
ENJOY!!!!!!!!
XXXXXX
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Date: 29.08.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, It's great hearing all the reply's I got about my medication it's really cheered me up and I have a bit of hope.

Rhona enjoy Aviemore.


Love x
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Date: 29.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm, thank goodness for the forum!!!!!
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Date: 29.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well, I'm off the Leflunomide for good. Another one bites the dust!
My consultant is supposed to be calling next week to discuss next steps. I've lost confidence in her, to be honest. We'll see.
reply | back to forum

Date: 30.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, oh no!!! I have no idea how these drugs work but I am so sorry they are not any good for you. It is not good when we start to loose confidence in the people looking after us. I hope she comes up with something for you and sooner rather than later. It is about time you had a break from all this. Lets hope the next step is something positive. Take care and try to keep your chin up. ((hugs big ones)) xxxxxx
reply | back to forum

Date: 30.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I don't think any of them will suit me, Marlene. I'm a bit fed up of rheumy's cheery optimism. I think she should read my past notes.

My legs are very, very stiff today. I had difficulty walking and had to sit down to cook. I'll have to have some steroids soon, otherwise I will grind to a halt.

When are you getting your elbow done?
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Date: 30.08.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have you tried Plaquenil bsk? they don't affect the liver, etc, as far as I know. If you can get by on a small dose of steroid then it wouldn't be too bad. xxx
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Date: 30.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I did, Rhona, I got a rash. I'm not keen on going back to oral steroids, they cause too many problems. Not sure how the injections are in terms of long term effects but I will find out.
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Date: 30.08.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, I am going to phone Drs surgery Monday to find out if he can fit me in on his next visit to the surgery. It should be in two weeks otherwise I will have to wait six weeks. He goes to the surgery once a month. He is the our Drs husband he used to be a back and joint surgeon so he is well read on the subject. He was so nice and listened to me instead of talking over me.

Bsk I feel for you sweetheart. Maybe they will do some injections for you. Oh Bsk they have to do something for you!!!!!!!! Keep strong and chin up xxxxxxxxxxxxxxxxxxxxxx


Hi Rhona hope all is well with you and your family. XXXXXXXXXX
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Date: 30.08.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thank you both. I hope you get it asap.
xx
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Date: 01.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone, well it is grey drizzling and quiet honestly miserable BUT I am not going to let it get me down.
My hubbies first day off after a 4 night shift. I have a gammon joint in the slow cooker and a bottle of wine in the fridge. I think I deserve a glass or two ( not sure why but I will think of something).

I hope all you ladies and of course any guys reading this post are feeling relatively OK.

How was your night away Rhona was the weather good to you?
Bsk how are you sweetheart?

Willis and Emm hope you two are well.
How are you doing Eve?

Well I am now going to what is on at our local theatre I am up for a meal and show haven't been for a while!!

Take care all xxxx
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Date: 01.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all :) Aww bsk, so frustrated for you :( I really hope they can sort something out for you. Do you have liver issues on the drugs too?

The ups and downs do get you down after a while, well they do me, I get worried they will run out of options and I'll just end up on steroids and painkillers and end up like a zombied out beachball! ;)

Still no call from the hospital so am pissed off now. I know what you mean about making a fuss but it really isn't in my nature, to my detriment I think.

I've only recently started having my elbows and thumbs play up and the pain in my hands seems different somehow, not sure how to explain it. I'm not going to go on a crazy diet (she says eating a pack of Mini Cheddars....) and GPs have made sure I have plenty of painkillers, hoping I get nice bloods next week and a new plan in place.

Hope you had a fab time in Aviemore Rhona and a great time at the theatre Marlene, take care all x
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Date: 01.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Eve, Call the hospital you must be assertive other wise things take so long. You have to remember that only you can push things along.
Good luck for next week. Mini Cheddars sounds good to me.
Take care x
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Date: 01.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well I tried to make my appointment today for my elbow injection. The lady in the surgery that writes it in the Consultants diary is off for a week or two. They will leave a note for her to book appointment.
This is just JOBS WORTH gone mad what is wrong with people today. So if she was long term sick no one else could write in his diary please!!
I just said thank you and put the phone down in disbelief. Maybe it's just me!!!

Well that's my moan for today. Watch this space and I will let you know what happens or doesn't happen.
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Date: 01.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You could ring the practice manager as your situation is rather urgent, I would say. S/he can write it in the diary. Either that or try and find your consultant's email on line and email him/her. I've done that a couple of times lately. I don't really care what they think of me, lol!
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Date: 02.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Bsk I will do just that. Sometimes I just give in the fight in me at the moment is all gone.
I am fed up with it all just like you must be.
Good for you. I always say I don't care who likes me I know I am a nice person at heart!!!

Thanks again for that take care amd I hope you are ok xxxxxxx
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Date: 02.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That sounds so frustrating, hope they can find someone to sort it for you.

Did my assertive thing this morning and tried ringing nurse, got voicemail so left a message so will see if I get a call back now.

I'm going not very steadily down hill and I don't think it's to much to know what their plan is and a timescale.

I'm on the wotsits now :) Been in work since 7am and it's a long day and I'm really uncomfortable so am in no mood to be very virtuous with my eating at the moment though I have been good today so far, well, until the wotsits :)
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Date: 03.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, I thought I would send a wee message to you before I go to bed. We decided to stay the two nights at Aviemore and the weather was gorgeous, it was warm enough today to have short sleeves, although when we were on the road home just after Perth the weather changed, it looked liked there was a line drawn across the sky with beautiful sunshine on one side and grey clouds on the other side. It looked so strange. My ankle is very sore tonight, I probably walked more that I should have.

I hope you manage to get that injection for your shoulder, Marlene. Get back onto them and tell them not to be so stupid. Surely someone else can give you an appointment.

Are you ok bsk? I hope you are managing alright and not suffering too much.

Hope everyone else is coping alright.

sleep well and pleasant dreams. xxx
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Date: 03.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad you had a good time in Aviemore, Rhona. We've got decent weather here, at the moment. It makes such a difference to my mood!

Eve, you are right to be assertive and get as much info as you can. Sometimes I think they forget they are dealing with people!

I had a long chat to my consultant on the phone yesterday. She has persuaded me to go back on the oral steroids. Bah! I'm fed up about it but really need to do something to protect my joints and I'm in quite a lot of pain. It's 5am and I've woken because of my shoulder pain. She also tried to persuade me to go on Rituximab but I said no to that. I am zero -ve and it doesn't work so well so not taking the risk. She's going to apply for funding for Abatacept, another biologic. She also suggested another dmard Azathioprine. I don't like the look of that one as it talks about liver problems again. She said she wasn't worried about that!!! However, she is more worried that I was getting parasthesia from the Leflunomide.
We'll see.

Back to sleep now, my hands are hurting ++ from typing.
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Date: 03.09.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,
Been reading everyone's problems, ugh this viscious disease.

I am a little better in the leg department after two knee injections, so am not going to moan on too much.
I also feel the Plaquenil are helping.

Rhona your wee Aviemore break sounds delightful.
We have had some lovely days here too, I am sleeveless today.

I was out to lunch two days running, I just think ,get out while it's nice and my legs are carrying me a little bit better.

Going to see New Helen Mirren film soon, it looks good.

I am hoping I can have a few weeks of less hospital and doctors visits, apart from chiropody and blood tests.
I feel I haven't been away all year.

Good luck with all your ailments ladies.

Emm x
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Date: 03.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good to hear things are improving, Emm.

xx
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Date: 04.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to hear that things are improving for you, Emm and that's brilliant that the plaquenil is making things easier for you. I know what you mean about making the most of things while you can.

I must check out the film, it has been quite a while since I have been to the cinema.

Bsk, it may be an idea to take a small dose of the steroid until you can get something else, especially when the pain is wakening you up at night.

My ankle is really sore and I can feel me knee stiffening up. It's been 10 months since my last infusion. My consultant called me today and told me to go back onto the mtx but I am not keen, my white cells are still low but she said there are 4 different types of white cells and she doesn't think it's because of the mtx that they are low and she is still waiting on the other blood results for the other white cells that the rituximab affects. It is all a bit complicated, I thought if they were low then best being of it altogether, they all seem to have different ideas.

How are you Marlene, Willis & Eve? I wonder how Lyn is doing, it has been ages since we have heard from her. xxx
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Date: 04.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, you are right and I'm back on the pred, sadly.

I completely understand where you are coming from with the Mtx. It's difficult to know about the all different aspects of the various drugs and I think they need to be better in explaining them to us. For example, my rheumy said she didn't think I would get high liver results on the Lef as I did on Sulphasalazine because it works in a different way. Cue high liver results after a month. My instinct said she was wrong and she was.

I felt I was pushed into going back on the steroids the other day and pushed towards yet another drug when my feeling is not to take that risk. If the side effects are outweighing the benefits then you have to really think hard about it. It is very hard to go up against a consultant. Mine was insistent that I had had some relief from the anti tnfs, which may be true. However, I never managed to come of the steroids, so who knows what is working.

You have to be strong and trust what you know and your feeling about what the drugs are doing to you. AFter all, you are the one taking it, not them. They know the science but they are not suffering the uncertainty. I'm not saying you should refuse any drugs, I am just saying it is very difficult to make those judgments.

True to form, I'm writing this at 4am. I have pain in my finger joints but also am wide awake because of the steroids. Oh joy!
xx
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Date: 04.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies.

I had high liver results on methotrexate and toci. My back up drug is apparently abatacept but they said I have to take methotrexate with that so if that is the line they go down I can't help but wonder if the same thing will happen and I'll be back to square one again.

It is difficult refusing drugs, I did with leflunomide as I'm 35 and the two year period you have to be off it before you can try for a baby put me off, I don't have a partner now and may not be in a position physically to start a family but I have some dwindling years left and you do never know! Mind you, in my investigating the flush procedure I discovered it wouldn't work for me as I take the drugs they use for the flush for a malabsorption issue I have. Bit worrying that it was me who actually raised that as an issue! Turned out I was right though.

You have to be so on the ball though, I've pissed off some doctors who have tried to give me things like trimethoprim when on methotrexate even though you aren't meant to have it and I am allergic to some sulfa drugs. They tend to get less snooty though when they look it up and realise I'm right. Not that I get any satisfaction from the being right, I'd rather they got it right!

Still a wall of silence from the hospital! Have been booking a load of leave so I can work shorter weeks (as well as only being part time anyway) to help me get through in the hops they will sort something as it's a big struggle at the moment.

Having really bad issues with my neck and shoulder impingement at the moment, hopefully physio might help a bit later then, thank goodness, not in work until Monday.

I'm thinking of a gentle break away, somewhere by the sea I think where there are places I can just sit and drink coffee and watch the sea and people.

Am getting serious cabin fever as I'm so limited getting about and have missed a load of family and friends things as I've just not been in a position to travel much. I do appreciate my comfort zone with my coffee places and mini supermarkets and such, all near my bus stops, but I think I need a bit of an escape :)
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Date: 04.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I know you didn't want to go on the steroids again but you can't keep suffering with the pain. I also was awake most of the night in pain so I feel for you. Bsk you are right our instincts are usually right when it is our health and I always feel awkward saying I've had that and it didn't work and no I don't want to give it another go. I have to say why should we feel bad it is our bodies and they like you said have no clue how we feel physically and mentally on our worst days. I hope the steroids help you and you manage to sleep tonight being tired doesn't help either.

Hi Rhona I am ok of sorts!! Hope you and your family are all keeping well. Sorry to here your ankle and knee are giving you trouble.

Eve, take that holiday it will do you the world of good. You can drink coffee and chill out as much as you like. Just do it!!!!!

Love to everyone xxxxxxxxx
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Date: 05.09.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all sorry not been on, just resting in between work. Feeling it all again now so just hoping ill get steroid injection when I see consultant on Saturday. My knees are really feeling it now too, they've never been this bad before. To give you a laugh , my big toe kept me awake the other night, big toe! I actually just sat n laughed at one point, here I was 4am awake because of constant pain in big toe! Everywhere else ached too but that took the majority of my ouch ness lol.
Still enjoying job but taking its toll, I will keep up as long as I can!
Bsk you must be at the end of your tether at the moment and I'm sending big gentle hug to you x
I hope you all getting on ok and this mild weather is going to stay a bit longer to give us a little more relief until the horrid cold comes
Have as best a day you can
Lots of hugs to you all
Xxx
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Date: 05.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good to hear from you Willis, I know the big toe bit and toes are very sensitive thats why it is so painful. I have three toes that are so painful at times and when people say why are you limping is your back bad again I feel such an idiot saying no its my toes. LOL I have seen many frowns over that one.

So glad you are liking your job and resting up on your days off. It is so easy for people to say don't work but when the bills have to be paid they just don't go away. I didn't give up work until I was retirement age so now I am enjoying my free time. Having said that my free time is taken up with something every day.
I am looking for a short break in May a surprise for other half for 45th Wedding Anniversary. So far I am leaning towards Rome or York worlds apart I know.

My brother will be here soon so I will chat later.

Have a good day all xxx
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Date: 05.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well, that didn't last long. I'm off the steroids. My mood swings are just awful and I shouted at someone today over nothing and have spent the last few hours crying. I rang my nurse and told her I am off them for good. Gah!
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Date: 05.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh what a shame bsk. I have heard that they can affect people like that. Would it be different with the injections I wonder! possibly not.

Has she suggested anything else? I know it must be very difficult and I wish I could suggest something. Try and relax and if you could manage to book yourself a nice massage for a bit of relaxation, it might help, and spoil yourself over the weekend, perhaps a wee glass of wine to relax you too.

I have been fighting with a Debt collecting company today, I forgot to put my badge up in a Tesco car park about 2 months ago and they issued me a parking ticket and I found the attendant and showed him it and he told me to photocopy it and send a letter to them which I did and they wrote back saying that said they would reduce it to 15 as a goodwill gesture, if it was 15p I would still not have paid it, and they are hounding me with letters and threats, as far as I'm concerned they can whistle for it and if they want to take me to court they can. If I would have been on steroids I might have punched him bsk. xxx
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Date: 05.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Lol, Rhona! That really made me chuckle. I'm going for a half dose steroid injection on Tuesday, so will have a few days to calm down.

You are completely right not to pay. I'm sure I read somewhere that they can't enforce those types of parking tickets tickets anyway. I hope they get the message and leave you alone but have you tried to ring Tesco head office to make a complaint?

xxx
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Date: 06.09.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning, sorry to hear the steroids no good bsk, I don't recall side effects from them as I snap at people anyway lol I hope the injection helps x
Rhona tell to go swing for it and yeah I'd complain to tesco's although I'm sure they'll say not their concern as they outsource it!
Marlene I'd say Rome as it is amazing but..... Lots of walking....
Off to get ready for hospital appt, I'll either be on here celebrating injection or depressed because didn't get one.
Have a great day xxxx
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Date: 06.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, Rhona just ignore it they will threaten but don't even contact them. We overstayed in Mcdonalds at one of the airports it was an hour where all the other outlets are longer. All of the letters are from the company including the Debt collectors it is a civil matter. Just ignore them and they will go away. We didn't pay we had solicitors letters as well. The solicitors address was the same as the parking company address . So that told me all I need to know. Scammers. Just have a nice day LOL xx

Bsk, what are we going to do with you? I hope the injection helps you. Don't beat yourself up I am sure they kind of deserved you shouting hahaha.
They won't ever cross you will they? All joking aside get yourself something nice treat your self and curl up with a film or a book and just worry about your self. Big hugs xxxx

Thanks Willis Rhome it is then. With plenty of pain med packed!!!!!! xx

Emm hope you are ok xx
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Date: 07.09.2014
From: willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning all
well didn't get injection :( he said that as the pain i'm suffering is not inflammatory and i'm not having a flare then he doesn't want to give me it as it will be seen as the drugs not working!
so i said i'll just carry on with strong painkillers then - yes!
he gave me a prescription for ami something or other - it's meant to be a relaxant to take 2 hours before sleeping!
it'll just make me drowsy all the time so no point really. so will be going to doctors to get prescription for stronger painkillers than ibuprofen then i think.
worked from 3.30 till 11pm last night doing stock take at work - only got up at 11am this morning - oh dear that's today wasted then lol
hope you are all having a tolerable weekend and it's not raining xxx
marlene, Rome will blow you away. I so want to go back there one day. :)
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Date: 07.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone, in spite of of all my ailments (and I include decorators in that) I have had a lovely weekend.

I've never been to Rome but would love to go. Willis, I took amitriptyline for about a year. It really helped with the pain and you get used to it pretty quickly and it didn't make me drowsy.
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Date: 08.09.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk, glad you had a good weekend. Yes that's the prescription he gave me, well I might give it a go, I just don't want to feel fuzzy headed all the time, that's my main worry
Have a good day today xxx
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Date: 08.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, so glad you had a good week-end. You really deserve some lovely times. I hope you get sorted with that pain of yours. Decorators I know messy but it will all be lovely when finished.
Take care xx

Willis Rome it is then any tips will be most welcome i.e. hotels places a must to see. I am not booking until the new year. I never book to far in advance 6 months at the most. Just in case!!
My hubby also took the same was helpful give it a go.
Have a good day!!

I baby sat the neighbours chickens and ducks over the week-end. I have to say very brave of me. My Phobia birds of all kinds getting to close especially when they take flight. I just took a deep breath and went for it. I only had to lock them up and let them out in the morning. LOL well I am now.

To all you other lovely ladies out there have a lovely day and I hope the sun is shining for you.
xx
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Date: 08.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm getting to be an advocate for drugs less and less but unrelenting pain is so debilitating I think the trick with Amitrip is to take it early enough in the evening that you don't feel drowsy in the morning.
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Date: 08.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aww bsk, hope the amitriptyline works for you. I was on it on and off years ago.

Hope you are all ok ladies. Am off to GP tonight then rhumo bloods. Still no call from the hospital so hoping I can collar someone when I'm there later though bit late for many people to be around. Am due on two development days in the next few weeks which mean travelling which I'm really not sure about as really suffered after the last two and these are much longer days. It's part of a course though so not sure if they will let me continue if I can't go.

Am trying to organise a MacMillan coffee morning too at work so that's something nice to be doing :)

My elbows have really started playing up and round my neck and top of my spine, went out and got myself a wheat bag and some heat spray at the weekend after physio recommended them.
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Date: 08.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hoping everyone isn't too bad today. It in nice and bright here at the moment, it makes such a difference wakening up to the sunshine.

Marlene, I am going to take your advice about the parking tickets, they are in the bin, thankyou.

By the way, Marlene, my choice would be Venice or Florence, they are both beautiful. Why not just book a wee cruise and take them all in lol.

Are you alright, Emm?

Hope the pills help you Wills and the wheat bag helps you Eve.

It doesn't seen too long since you had the decorators in, bsk. Hope you ok. xxx
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Date: 08.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm coming down with a cold, I think, or it could just be the usual RA flu stuff. Anyway, it's a beautiful day and I'm in the garden enjoying the last of the summer etc.
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Date: 08.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona I just want to take my hubby somewhere we haven't been not too far away but with plenty to do in case the weather is not good. We did Paris short break two years ago and pre booked trips and
the Moulin Rouge. It was busy but we used Taxi's a little expensive but well worth it.
I am aiming to do the same thing so I am prepared for each day and can make sure it's not going to be too much for us.
The weather is just lovely again and is here for a little while they say hope so!!

Eve, the elbows are awful I am still waiting for a date for a steroid injection in mine. Everything seems to take so long. I use a hot water bottle it does help.

Bsk I hope you are not getting a cold you just don't need it right now. I am taking in the sun rays also. I hope this weather is going to stay a little longer as they say.

EMM WILLIS and of course LYNN I hope you are all ok.

xxxxxxxxxxxxx
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Date: 09.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies. Aww hope the cold doesn't materialise, it's getting to that time of year!

Well, went for my bloods and got to see my lovely consultant which was a blesing! No more toci for me due to my ALT results so, change of plan from abatacept which had been mentioned (maybe as has to be taken with mtx which also sets my liver off) and am going to be started at Enbrel.

She had one of the lovely nurses to give me a big dose steroid injection and am going to be booked onto an information day.

Am so relieved, was really worrying me about the leaving me off meds thing but she said she wasn't even going to scan my hands with the look of them.

How is Paris for getting around Marlene? I've been through it and always wanted to go, especialy round Monte Martre and such but worried it's a lot of walking or up and down on the underground?

Hope you are all having a good day and have got some sunshine up there, was chilly this morning (though perk of waiting for a 6am bus in the dark was two foxes running about!) but warming up now if a bit overcast.

Finishing work early then up to the hospital for my pre-screening bloods and x-ray then looking forward to a nice quiet evening :)
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Date: 09.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Eve, Paris was great but I have to confess we used Taxi's. It is a little expensive but worth it. We did do quiet a bit of walking actually we did a lot with coffee shops frequent we did a lot of half hour breaks. I loved Paris and so did the other half.
Glad to read you got a big steroid injection I honestly could do with one of those but with OA it is difficult to get joint steroid injections.
Speaking of which I must phone GP surgery still not heard about my elbow injection. Grrrr

The weather has been good again today I hope it stays a bit longer.

Take care everyone xxxx
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Date: 09.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Everyone, I thought I would let you know I have booked a weeks cruise round the Med. Must have been all the talk of Rome etc, although we are not going there but we are going to Florence. I was sitting having a couple of glasses of wine last night and the next thing I knew I was on booking it. I just hope my feet can stand up to it. I feel we need a break after all the recent stress. xx
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Date: 09.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You won't have to be on your feet, Rhona, just sitting by the pool with a glass of wine in your hand!

Marlene, have you just been to Paris? How did I miss that?
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Date: 10.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, no we went to Paris 2 years ago. It was a birthday present for Hubby's 60th from three children ( adults really). So when they told me I bought trips and Moulin Rouge Tickets.

Rhona, fair play to you that's the way to go. Good for you it will do you the world of good. Glasses of wine nice food and chilling out. When are you going. Let me know what Florence is like.
I am still up for ideas for the anniversary in May.

I have my appointment for the 19th September for my elbow injection. My hubby goes back to see his surgeon the day before. I am a bit worried for him well more than a bit.

How are you Bsk??


Take care all xxxxx
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Date: 10.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm ok,thanks, Marlene. I will keep my fingers crossed for you both. You've had more than your fair share of illness in your family. xx
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Date: 10.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I am glad you are ok. Bsk I really am looking forward to my break in November just me and hubby for two weeks.
I am fed up at the moment I have such painful feet to go along with every thing else.
I am going to be a bit cheeky when I go for my injection. I am going to pick his brain as Colin has said a couple of times I might have PA. My Gp says not likely so I am going to ask Mr Thomas who was a back and joint surgeon for his opinion. After I get the injection of course LOL.

Well I am sitting with my feet up and I can feel the throbbing and the joints are very red but not swollen. No point in dwelling on it.

My dog couldn't get any closer if she tried bless her just seems to know when I am feeling grotty.

Take care and I hope you sleep well. XX
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Date: 10.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, we go on the 20th so not long away. That's good that you are getting the injection soon and I hope it helps a lot.

When are you off to the Canaries? can't be too long now.

Hope everyone is ok and enjoying the nice weather. xxx
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Date: 10.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, wow 10 days enjoy and make the most of the rest sounds just lovely.
We go November the 20th so its not so far away. I just like you need a break and we really missed our winter holiday last year. We have both decided never to go without a holiday again.

Hasn't the weather been lovely a late summer but the nights are drawing in. I hate the winter nights they just seem so long. It will be lovely having the log burner this year.

Take care Rhona xxx
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Date: 10.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh that will be so cozy, Marlene. I just love a real fire, I would love a log fire. I don't like the dark nights either. It was pitch black at 8.30 tonight. We had a BBQ in the garden tonight, perhaps the last this year.

I didn't see your message saying that your feet were so sore, perhaps we were typing at the same time. It's horrible isn't it when the feet hurt. I didn't know that your joints got red with OA so perhaps it is something else like PA, Marlene.

Hope your husband gets on ok at his appointment next week, at least you both have your holiday to look forward to and it's not too long away. I am trying to fit in what I can while I feel ok and as my husband has Parkinson's we have to try and do what we can while we can. I can get quite down when I sit and think of all the crap that's going on but we just have to make the most of things when we can and without the rituximab I wouldn't have been able to do very much.

Take care xxx
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Date: 10.09.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, been a bit busy as I have my grandaughter over. I am taking her to London for the weekend and took her to Edinburgh for the day yesterday on the train.

It's lovely for me. Her English is really good.
She starts training on October 1st so is going back a week on Friday.
It's her first visit on her own.

Hope I can stand the pace in London though!!!!!

Lovely reading about all the lovely trips on your posts.

Will catch up more when my visitor has gone (sob sob)

Regards to all, x Emm
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Date: 11.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Wow, all these holidays! Hope you all have a good time.

Rhona, I'm sorry to hear your husband has Parkinson's. You really do have a lot to deal with and I admire your spirit and determination in the face of everything. That goes for you all. What a strong group of women we are!

hugs to you all. xx
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Date: 11.09.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona I too am sorry to hear your husband has Parkinsons, I must not of read the last post .

It is a lot to deal with at once as you had your daughters health problems too and of course your own.

Sending you hugs. Emm x
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Date: 11.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks girls, He is doing ok and still manages to work, he is actually out cutting the grass at the moment. It has been beautiful here today, what a bonus having all this sunshine.

Hope you are all doing alright xx
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Date: 11.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to hear it, Rhona.

I caved in and went for a steroid injection today. I'm in quite a lot of pain so came home and took some codeine and crashed out. I feel better now.
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Date: 11.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm surprised that you have lasted so long without getting it bsk. I hope you get a bit of relief now and sleep well tonight. I don't know what's wrong with me just now as I am lying awake most of the night, I think I might need to ask for sleeping pills.

Look after yourself bsk. Hope everypne else is ok. xx
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Date: 11.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Rhona.

I take sleeping pills sometimes. They really help. Are you worrying or is it because of pain?
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Date: 11.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I don't think it's pain bsk, I'm doing ok just now, my ankles get sore but in bed they aren't too bad. I think I am tired and then my mind seems to come alive and I can lie awake for hours. I used to blame it on the mtx but I haven't had that in weeks. Perhaps it's a bit depression. Take care xx
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Date: 12.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Worth mentioning to your GP when you next visit, perhaps? xx
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Date: 12.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Rhona when you go on your cruise maybe you may distress a bit. Otherwise ask gp for sleeping pills sometimes its just what we need. I also have taken them when we start laying awake all night the body gets into a bad habit and the pattern needs to be reversed.
Its good to hear your pain is under control!!!

Has the steroid injection helped you BSK ??

Today me and hubby used our tickets for Blenheim Palace. What a fantastic place the house and the gardens. We are both absolutely shattered. The only problem was a lot of stairs to get in the palace and outside in the water gardens ect. There are wheelchair lifts, no lifts for on foot disabled unfortunately. I did manage but walking around the Lake was out of the question a big slope down and I can only imagine it would feel bigger on the way back. So we passed on that.
The Italian Gardens and Water gardens are a sight to behold.
We have had the tickets since May so that is another day out under our Belt. Enjoyable but now ready for bed.

Take care all xx
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Date: 12.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I went to Blenheim palace many years ago. It's impressive.

Steroids not kicked in yet. My shoulder is very painful today as well as my wrist. I'm fed up.
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Date: 12.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sounds lovely, Marlene and with the sun shining you would see it at it's best.

Hope those steroids kick in soon, bsk. I spoke to soon, my ankles are really sore tonight and I feel my shoulders a bit sore too.

Hope you all have a good weekend with as little pain as possible. xx
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Date: 12.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Shoulder pain is particularly difficult to deal with, I think.
Take care everyone. xx
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Date: 14.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, hope under the circumstances you both slept well. Bsk you are right shoulders are a difficult one no matter how you lie it becomes uncomfortable within minutes. The weight of your arm seems to pull all the time. I have to say my shoulder is much better since the steroid injection.

Bsk bless you I can understand why you are fed up. How about a short break for your self somewhere? Treat your self go shopping and buy something!!
Have the Decorators left yet? How does it look?

I went to my eldest Son's last night Birthday visit it is also his Son's 13th in a couple of day's. Expensive visit LOL.

Today I am sore so I think I might need some sofa surfing.

Bsk Rhona take care of yourselves. hugs xxxxx

A big hi to Emm Willis and Eve hope you are all ok xx
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Date: 14.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I wish I could have a holiday but nothing planned for a while. Decorators have gone. My sister says my bedroom looks like a hotel, lol! That won't last long.

Hope you had a good day sofa surfing and everyone else is ok.
xx
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Date: 15.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

morning!! well it is very grey here today not good!!
Bsk so glad your decorating finished and all looking good.
I rested as much as I could yesterday but I just can't sit still for too long. LOL.

My eldest son is 41 today and I was thinking where have all the years gone (feeling old).

Take care everyone and I hope you are all ok. xx
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Date: 15.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, hope you are all well.

I'm back after a lovely four days off work. Steroid injection has helped a bit which is lovely! Lots of lazy mornings then sitting and drinking coffee and reading and chatting.

All went a bit pear shaped last night, found a bite on my leg Sunday morning, no idea what from. Got back home quite excited as had got myself some lovely new bedding (and actually managed to get it on my bed without collapsing :)) then saw the state of my leg, I've got a 5 inch long and a couple of inches wide patch of cellulitis. Much as I really didn't want to venture out again as I had a nice cosy evening planned I figured I couldn't leave it so had a five bus round trip to the hospital walk in then to a late opening pharmacy for the antibiotics.

Was shattered when I got home and still had to dry all my washing then hardly slept last night. Am really not feeling it today. My leg is so sore too, hoping the antibiotics kick in soon as it doesn't get worse, had it on my foot a few years back and it was a beggar to shift, n what I need when I'm due to start on a new drug.

Can't be helped though, just so looking forward to getting home tonight and collapsing on the sofa :) Definitely an early night for me!

You are all inspiring me to get myself a little break booked. I'm thinking of looking up a spa :)

Hope you are all ok ladies xxxx
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Date: 15.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Eve, cellulitis is pretty tough to get rid of had it about 10/11yrs ago and Rhona's husband has recently been in hospital with it. You must rest that leg of yours. I had it on my arm and carried on working had antibiotics and within a week it had spread and I was given two different lots of antibiotics to take. I was told to rest and said what about work I was given a three week certificate and told rest. I hope it clears up quickly for you.

Book yourself a Spa spoil your self it doesn't hurt to have me time. Just do it go on LOL.xx

Take care and a gentle little hug on it's way
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Date: 15.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Eve, what Marlene said, rest that leg! I hope it gets better soon

I've just come back from the gp and I've got thrush in my oesophagus and throat. Oh Joy! More drugs. However, on a more positive note, she is going refer me to the Hospital for Integrated Medicine (which used to be the Homeopathic Hospital) to see if they can help with some alternative treatments. Not homeopathy, I hope, because that is clearly rubbish, but perhaps something else. Watch this space!

Hope everyone is as ok as humanly possible.
xx
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Date: 15.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Bsk what a downer thrush but as you say on a positive note it is worth a try. Integrated Medicine I haven't heard of it before so will google that. Who knows you could get some help lets hope so fingers crossed for you.
I have tried homeopathy useless as you say.

Bsk you sound like you could do with six months holiday being pampered and waited on hand and foot. Lying in the sun reading with the gentle sounds of music in the background and a tall glass of wine. Can I come LOL.
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Date: 15.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Yes, let's all go away to a hot country!
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Date: 15.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear, why does it always happen to us? First of all, be careful with your leg and keep a good eye on it, Eve. As Marlene has told you my husband was in hospital with cellulitis in his leg, watch for any increased redness or red lines and get yourself to the hospital if it gets any worse.

Bsk, You really are a glutton for punishment, thrush is all you need now. It is a horrible thing and usually a side effect of antibiotics. Let's hope the new hospital might be able to offer something to help. I used to attend a homeopathic hospital for other ailments and I thought they were very good. There has to be something there to help you other than steroids. Keep your spirits up and something will turn up that will help you, there has to be something.

Marlene, I hope you are doing alright. It is frightening the way the years pass. My eldest is 36, I wonder where the years have gone. I hope your son had a good birthday.

Hope Emm and Willis are well.

There has been some change in the weather here today, grey sky and drizzle and much colder. I will be looking out the winter woollies shortly and putting me heavier duvet on.

Take care everyone and sleep well. xxx
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Date: 15.09.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening, sorry to hear about all your new ailments, just ine thing after another. Health wise other than feet still being constantly sore and aches from the work i do im feeling not too bad but, I'm really p***ed off tonight.
I work my butt off on evening shifts, I have asked 3 times and mention every shift that I want to work days to be told no day shifts. I go in today 9-5 on overtime to see a new person on days! On leaving I was asked if I wanted another Monday night shift - what about days? (4 day staff have been sacked in last 3 weeks) and again told no day shifts!
Going to write letter to request day shifts to main manager and if no joy then job hunt is on again! Barstewards!
So will stick to my few hours , refuse to work any overtime and sod them.
Rant over lol sorry for moaning but I feel like a good cry.
I hope you all feel better tomorrow and have good day.Xxx
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Date: 16.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's not good, Willis. What sort of contract do you have and can you hold them to it? Any union presence at work?
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Date: 16.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Willis, I did laugh at your post at least you still have your sense of humour. I think if you approach the right one and explain why you need day just maybe they might listen as you say Barstewards!!!!!
Rant all you like it is helpful better than punching someone hahahaha!!

Hi Rhona, I am still getting on with it but have lots of extra pain today. The weather is not nice here at all. Misty Damp and Cold even the dog came back in a bit quick this morning. My elbow is driving me mad just as well I go on the 19th for the steroid injection.
I am so looking forward to my holiday I bet you can't wait to get away. Rhona you and your Hubby should just chill and enjoy pamper is on the menu for you both.

BSK oh for a hot island just for all of us for a week. With our own personal waiters and lots of massages to start and finish the day. Lots of healthy dishes to choose from and wine on ice. Well a girl can dream!!!!

BACK TO REALITY the hovering wants doing the dog wants feeding the ironing needs to be done and of course my hubby needs feeding before his 12 hour shift. Oh yes and a shower sometime in between talking of shower that needs a clean hahahah. Well a girl needs to laugh better than the tears that are so close sometimes.

On that note have a good day all xxxxxx
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Date: 16.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

We are a lot aren't we! :) I'm in for getting away haha!

Sorry to hear that bsk, hope they get it sorted soon, last thig you need!

I have booked some leave so my last day in today until Monday go can rest up and try and get my leg raised. I'm determined to do something different this weekend though, getting cabin fever with the same old places.

I'm keeping a close eye on infecty leg, it is going darker red and looks different, there is a little black spot but I think that is where the original bite was. Not spread much, need to re-line it as the hospital's one has faded a lot from being in the shower. Nurse said it might get a little worse but after 2 days (today) it shouldn't spread so at least I'm not in work if I need to get to the doctors.

Still chasing my test result up to see if the UTI has cleared from last Monday, the results lady rang the lab as not back yet and they are apparently going to send the result to them tomorrow, hoping that's not a bad omen as it's taken so long!

Right, back to it (early lunch as start at 7am), only three hours then 5 days to myself :) :) :)

Take care all xxx
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Date: 16.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Eve, the best thing to do to keep an eye is measure length and width of red patch and write it down. That's what I did. Please rest that leg up when you are off. Enjoy your break they say the weather is going to get better from tomorrow so lets hope!!

Take care xx
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Date: 17.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

How is everyone doing today?. I'm not feeling too good, I can't bend my index finger, my shoulder is sore and my ankles are hurting, and I feel quite fluey with it all, Oh, lucky white heather. If I feel this way tomorrow I will call and see if I can get a jab although I've left it a bit late now as we go away on Saturday.

I hope your leg is improving, Eve and your enjoy your break off work.

Marlene, I feel for you with that sore elbow but only two days to go to get the jab and then make sure you rest it, very difficult I know when it's a joint that you need for everything.

How are you coping, Bsk? I do hope you get an appointment soon. I think my infusion is wearing off now and don't know what will happen now as while my bloods are low they won't do anything.

Hope you manage to get your hours changed, Willis.
Maybe you will need to souk up to the boss, lol.

Take care everyone. xx
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Date: 17.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh, Rhona, what a shame. Do try and get them to see you before you go.

I saw my rheumy today, she is applying for funding for abatacept, which might take a few months. In the meantime, she wants me to take a low dose of steroids and either amityriptyline or gabapentin. Not keen on either so might pass on those! I will see how I get on.

I was a little irritated because she started to say my shoulder pain was a tendon issue. I protested and she read the report again and it clearly said inflammation. He also thought I had erosion of the joint but then she it was degeneration of the joint. I'm not sure what her point is in doing this. I clearly have inflammatory arthritis and it serves no purpose at all to suddenly change a diagnosis. It's almost as if she's got something in mind and is trying to make everything fit. I like her though and she does listen to what I say (and does do what I ask.)

xx
reply | back to forum

Date: 17.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

No wonder you get irritated, bsk. I think some of them just say things for the sake of it, she should have read the report first. Does she think it could be OA that is causing the shoulder pain? RA can also cause tendon issues.

I have always been told to take mtx along with the rituximab and I was reading online last night about a report from Professor Edwards saying there is no reason to take it with rituximab and it is a waste of time. I now don't know what to think. Albeit the report was back in 2004 but from the way I read it he seems to have been the one that first found it's use for RA. I must re-read it tonight as it was late and maybe I misread it. xx
reply | back to forum

Date: 17.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You can always check other sources, Rhona, or check with your consultant. Abatacept, which she is applying for funding for, is only funded for use with Mtx, apparently, though she says is perfectly fine without. They just follow the protocols unless a problem presents itself but that doesn't mean it's the best thing for you. Do you feel it is adding anything to the mix? If not, query it.

Regarding my shoulder, she was saying it was OA. However, the ultrasound consultant said it was clearly inflammatory, i.e. there was fluid in the joint. He said he thought he could see some erosion but he was completely clear that both joints I had injected were RA. He once said to me, 'I wish the consultants could come down here and see what I am looking at.' He said they often get things wrong - which is why they do the injection under ultrasound as you can see exactly what is going on. I think she is trying to find reasons for my pain. I had a steroid jab last week and, although things are easier, I'm not 100% better but this has always been the case for me. There is a good argument to go back on a low dose of oral steroids and see how that goes. On the one hand she is saying I need to do something and, on the other, she seems to be saying some things aren't so bad. It's true that it is tricky to tease things out and she is slowly getting to know me.
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Date: 17.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

There should be no argument if, it was clear on the ultrasound, just as well you are so on the ball, bsk. I hope the Abatacept is the one for you, it's about time they found you something to help. I do remember, when I was first diagnosed, my old GP said if he had RA then he would take a small dose of steroid, I don't know why he said that, as he wasn't offering me them at that point, so perhaps a small dose isn't any worse than anything else.

I'm not sure how much the mtx helps, I've been off it quite a wee while now and my hands and shoulder are sore today but this has happened even when I've been on it and when I was at my worst I was taking 25mg, unless they help the joints from getting deformed, as my hands don't look too bad yet, so perhaps they have helped that way.

Take care. xx
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Date: 17.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well, there is that (stopping deformity of joints.) I'm sero -ve so less likely to get joint damage. Interesting what your GP said and thanks for that snippet of info.

Take care xx
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Date: 18.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I am so angry - I wakened early this morning to hear a crash, I couldn't think what it was so I had a look all around the house but couldn't see anything wrong then I discovered my outside wall has been knocked down. I think it has been a van or lorry that has done it and then left before anyone has seen them.

I called the hospital this morning and asked about a steroid jab so I have to go in this afternoon for it the male nurse that attends to my infusions is excellent, he had a look at the last blood results I had done there and said they are ok to get another infusion so that has been arranged for 2 weeks time.

Hope everyone is ok.
Take care xx
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Date: 18.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh no! That's terrible. Call the police. You never know, someone might have seen something.

Glad you have managed to get a steroid jab before you go away and good news about the infusion.
take care. xx
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Date: 18.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona what horrible people there are. Why wouldn't you knock on the door that's what insurance is for. Report it to the police you never know some one may of seen something.
Well that's good your are getting a steroid injection before your holiday. I bet you just want to get away now. Take Care and try not to stress too much.

BSK how are you doing?

Hubby went to hospital today MRI scan ordered along with steroid injection to the spine. Physio is also another thing he needs to try again. Watch this space.
My steroid jab tomorrow!!!

Take care everyone
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Date: 18.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Marlene, and good luck with the injection tomorrow. xx
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Date: 19.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Well injection done. I always find elbow injections are so painful. I think it is because they aim for the gap in between the nobbly bones. It is throbbing. It will settle by tomorrow I have been assured. Typing with one hand is difficult. I knew it was going to hurt as I had them in the opposite elbow years ago.
Job done and I am crossing fingers for success like my shoulder.

I hope you are all ok.
Rhona are you all set for that holiday?
xxx
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Date: 19.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, I still have my packing to do but I'm getting there and feel so much better today after the injection. Make sure you rest that elbow, I hope it is the left arm, unless of course you are left handed.

Have a good weekend everyone. xxx
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Date: 19.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Are you going tomorrow?

Pleased you've all had your injections. Hope things ease up soon.
xx
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Date: 19.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad to hear you are feeling better so soon after the injection. Have a great holiday. Remember rest and wine order of the day. LOL xxxxx
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Date: 21.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I was just sharing the Love on the other chat thread. Hope you are ok.
I really should get going I have things to do but I am in the can't be bothered mode. Not that's it any thing new lately.
The elbow is better and I hope it stays that way.
I do usually get good results from the injections.

I have a busy week ahead mum has appointments. I am going to get my hair done for a relax and soon a day shopping with my daughter for her birthday.
I am going to book some theatre tickets and other things to do in the winter it is long enough without being shut indoors the whole time.

My dog is pushing the lap top off my lap I think she needs some attention LOL.
Take care xxxxx


I hope Rhona travelled well and has her feet up.

Willis and Emm are you both ok. xxxxxx
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Date: 21.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry, I thought you'd made a genuine mistake! I don't know what I was thinking really. We should share the love more!

I'm very much in the can't be bothered mode. Yesterday I stayed in al day and slept most of it. Don't know why I'm so tired. Maybe the change in the weather.

xx
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Date: 21.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, I just thought maybe people think they can't join this thread as it was mentioned the same names keep popping up. To be honest how many times can we say this thread is for everyone????

I just wish they would pop in now and again and say I am doing ok or I feel rubbish how are you all doing. Thought that was what the forum was for.
Oh well grumpy pants I better be quiet otherwise they might call me something worse than patronising. I have broad shoulders and I bet you do as well. I'm shutting up from now on ummmm!!!

I think maybe the weather does have a lot to do with it. It has been very heavy even though we had the rain. I have been tired my self for days. Then I go to bed and can't sleep overtired springs to mind.
Think of me later selling Tea and Cakes just what the Dr ordered LOL. He probably would be saying what don't you understand about rest!!!!
Bsk just take time for your self after all you have had it rough for some time now and it takes it toll.

speak soon need a shower and some going out clothes on still in PJ's but housework all sorted and washing blowing on the line so hey ho!!

XXXXXXXXXXx sharing the love
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Date: 21.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I've tried, Marlene. I suppose it depends what you want out of a forum. There is limit to how many times I want to discuss treatment, alternative remedies, etc. There is another forum I don't post on any longer as the questions are always the same after a while. Also, people have a right to not want to go down the alternative route or to even not be interested in it. I'm not disinterested but just skeptical but am going to have a go for myself, as I've got nothing to lose.

Oh, well. Hope you don't overdo things this afternoon. There's such a balance to be found between doing things and doing too much. take care.
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Date: 21.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Absolutely Bsk we just have to do what is the best for ourselves . I am also very sceptical of everything now I haven't got an endless pot to keep trying everything especially now I am retired.
When some of the younger ones reach our age I am sure they will be just as sceptical as us oldies hahaahaha.

You take care as well off to sell some cake hi ho hi ho off to work I go!!!!!
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Date: 22.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, the cake sell went well 143 60.
It is a lovely sunny day here now a bit chilly earlier. Took mum to get her feet pampered and popped into Tesco's no food shopping birthday cards I needed and a couple of books to read. I walk out with:- Birthday cards books a new pair of boots two pairs of Pjs more like a sweatshirt and bottoms lovely for the winter when I sofa surf and just want to be comfortable and can still open the door. A new very pretty short sleeve blouse for the holiday.
I say a very good shopping day LOL. I am back home now with my poor painful feet up on the sofa.
My elbow I am glad to say has been a complete success. Just feeling a bit bruised.

I hope you ladies are all ok. Bsk how are you today?
xxx
reply | back to forum

Date: 23.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello Marlene, I didn't see your post yesterday. Excellent cake selling skills shown there! Pleased to hear your elbow is better.

I'm ok, steroids kicked in now so am in considerably less pain. However, I've been feeling rough for days and I don't really know why. Onwards and upwards and all that.
xx
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Date: 23.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

So glad to hear your pain is better. I also have been feeling out of sorts as the expression goes. I just don't know why and can't really put a finger on it. I thought I was just tired but have had a couple of good nights sleep. I hope I am not going to get anything my Flu jab is next Monday.

As you say onwards and upwards. The elbow is still good but I have to be careful as today I moved my arm a bit quick and awkward and the pain was awful but it settled again. I can have a second jab next month if it's not as good as I would like. I will if it is necessary.

It has been a lovely day here but the nights are getting chilly. We haven't used the heating yet as the cottage is insulated well. We have plenty of logs for the burner at the ready.
I think Autumn and Spring are lovely times of the year.

Take care Bsk and sleep well tonight xx
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Date: 23.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene, you too. xx
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Date: 24.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sore throat its like sandpaper bring it on!!! LOL
Joking aside at least I know why I felt rubbish.
Bsk hope you are not getting something germy as well.

XX
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Date: 24.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sympathies, Marlene. I've been threatening something for the last two weeks. My gp thought it was thrush but I've taken the pills and still feel rubbish. Now I'm trying to up my stomach protectors but maybe I'm just fighting off a bug.

Take it easy today. xx
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Date: 24.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk. I have rested of sorts/ I had to take Mum to her first day to the community hall where they lay on lots of things for the older community. They made her so welcome she can't wait for next week. So it was truly worth the effort.
My throat is still sore but nothing else has developed so fingers crossed that's it. Although I could do with out it.
Bsk maybe you are fighting some bug. I hope you are going to win!!
Maybe you should revisit your Gp it could be the thrush hasn't cleared up.

I'm having a quiet day tomorrow. Famous last words.

xxxx
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Date: 25.09.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning, not been on as been trying to rest! Seem to have cold symptoms again, think it may be the weather and that perhaps the hours I did at work last week were just too much! So hoping although working for the next three days that I will get through it ok. On holiday in 3 weeks so will have a good rest then.
Glad to hear you have both got a little respite from pain even if not totally all gone you sound in better spirits :)
Think I will have to turn the heating on soon it's getting so cold here!
Hope you have a good restful day xxxx
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Date: 25.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Willis, I have cold symptoms a lot. I think it is the arthritis, to be honest, is they often don't turn into an actual cold. Unless that is what you are saying, of course!

My heating came on this morning. It is quite chilly out there but I love these autumnal days.
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Date: 28.09.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning all
Well the sun is shining here which is nice as I'm not working today. Been on my feet for the past few days and they are protesting this morning!
Had flu jab that knocked me for 6 for a day, still feel like I've a cold but agree its just Arthur making his presence known!
Hope you having a good weekend bsk and Marlene
I've no doubt Rhona will be having a good time :)
Emm and Lynn I hope you are as well as you can be too!
I'm off to look at carpet for the spare room today, still feels odd saying that only feels like daughter moved out recently not months :)
Empty nest syndrome I think
Keep well ladies xx big hugs
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Date: 29.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, hope you are all well. I get a cold type feeling from time to time which doesn't develop, think it's something RA related and feeling really run down. I got struck down with a nasty virus and stil not right but at least back in work, it flattened me for a few days and I had an upset tummy from the antibiotics I had for the cellulitus but thankfully that has cleared itself up now. I've lost 11kg through it in the last few weeks though, had to do double-take when I stepped on the scales!! There are nicer ways of losing weight but I'll take it :)

Got to go cake buying later as it's the MacMillan coffee morning I am helping organise at work tomorrow :) Was going to bake but just don't have the energy and not a great idea why I'm still coughing.

Really hoping we raise a nice amount of money tomorrow, especially as one of my friend I was doing it for passed away the week before last and another has terminal cancer, so so sad. I jumped on this as it's something I can do without running or walking etc...

That reminds me, I need to get my flu jab booked!
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Date: 29.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone! I hope you all had a good weekend. We had glorious weather here but I've still managed to get ill. My nieces were staying and they had coughs etc. Now I've got it. I'm sofa surfing today.

Eve, I'm sorry to hear about your friends. I lost a good friend to cancer a couple of years ago and it is very hard. I hope you raise plenty of money.
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Date: 29.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, the weather here at the week-end was glorious managed with help of our two sons and daughter to get 9 panels of fencing up !!!!

Today raining so hurting a lot. Had my Flu Jab done this morning.

Oh bless your nieces for sharing LOL. I am so glad you had a lovely week-end with them Bsk.
I am also sofa surfing today too tired and too sore to do much else.

Eve so glad your cellulitus has cleared up and yay for the weight lose not a good way but like you I would take it LOL.
Good luck for tomorrow it is such a worthy cause. Great Nurses bless each and every one!!!!

Willis I hope you are resting up it is so so hard when we have to work as you say the bills have to be paid. xx

Hope the rest of you Ladies are well.( and of course any of you Gentleman popping in).

xxxxxxxxxxxxxx
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Date: 29.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello Ladies, Thought I would pop in and let you know that I am back. We had a nice relaxing time and visited some beautiful places. We spent a couple of hours in Portofino, it was beautiful, seemingly it is popular with celebrities. We sat there and had a coffee (6 euros a cup) I don't think I could afford to go there on holiday but lovely for a visit. Florence was very busy, we went into the cathedral there, it is much more elaborate outside than it is inside.

I have just been catching up with your posts, I didn't realise it was time for the flu jabs, unfortunately I won't be able to get mine for a while as I'm getting the infusion next week and would it be a waste of time as my immune system would not remember getting it as my B cells will be getting depleted.

Take care xx
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Date: 29.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, your cruise sounds just lovely. So glad you had a relaxing time. It is good to have you back thou.

I have been having a relaxing day today was busy all week-end.
It has been drizzling all day so that is my excuse. The garden is enjoying the rain unlike me.

Take care Rhona xxxx
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Date: 30.09.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, that sounds great Rhona, glad you had a great time.

The main part of our work coffee morning is done and I was quite overwhelmed with the amazing baking people did, we had all sorts, cakes, cupcakes, loaves, scones, cheesecake and other things, it looked absolutely amazing, just waiting for a final total but look like we raised a good amount of money and I'm so so pleased :) Am shattered now as been doing bits since I got in at 7am so quite glad of a sit down, think it'll be an early night tonight but some things are worth getting knackered for :)

Still dry here at the moment but a few dark clouds about so wouldn't be surprised if we have some rain later on. Still really mild though.

Take care all xxx
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Date: 30.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sounds like it has been a great success, Eve. Well done! you can sit and relax now, I hope you kept a couple of cakes for yourself, lol.

Weather here has been pretty good although I think the rain is forecast for this afternoon, perhaps they have got it wrong as it looks alright at the moment and to think we are into October tomorrow. I don't know where this year has gone, think that's a sign of getting old.

Have had the men working on my wall so should be finished today. That will be the insurance bumped up. I have sent some photos to the council and asked for some bollards or something to be put up but no doubt I will need to fight for it.

Hope everyone is doing alright and not suffering too much.

Take care and have a good day. xxx
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Date: 30.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi EVE, WELL DONE so worth it. Pleased to hear it was a success for you. Put your feet up later it is well deserved.

Rhona I forgot about your wall. I hope the insurance doesn't go up too much it is expensive enough. The council will be a battle I bet.

It is lovely here today after yesterday's drizzle all day. It is supposed to be a good October as well.

Have a good afternoon xx
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Date: 30.09.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies,
I have been missing for a while as I have been sooo busy, but from now on I am calming down until December.
I had my grandaughter over from Switzerland for a fortnight, I took her to London for a weekend and Edinburgh on the train for a quick day visit, we had a magical special time together, we both loved it.
This weekend I have been to Liverpool for an overnight stay and a Beatles party which was good, a tribute band and disco in the hotel. It was really good. Then a visit to the cavern club and the docks and the Beatles museum.
I have been twice before but the friend I was with hadn't so we did that and it was a lovely weekend.
BUT I am suffering, my knees and ankle are huge and so painful. I had each knee injected about 4 weeks ago and they got me over my visits but they normally last much longer than this for me. Have also a head cold and for 3 days sore eyes and the left one got terribly bloodshot the day we left for Liverpool and I look horrendous still.
Anyway thats me up to date. I hope to be posting more regular now.
I have been looking in occasionally though and seeing what you are all up to.
Rhona I am pleased you enjoyed the cruise, and gosh having your wall knocked down!!!
The cakes sound good, Marlene and Eve, I could just eat one.
Thats all for now. Hug's all round x
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Date: 30.09.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, how busy have you been!!! Grandchildren are jus.t lovely. It must of been such a special time for you both, How old is your granddaughter. My eldest is 15 and she is such a little Lady.
You sound like you have been having great fun all round. No wonder your poor knees and ankle are painful. At the end of the day you have the winter to rest and put those feet up. I still have a few dates marked before winter closes in. Then it will be visits to the theatre and a few meals out.
Take care Emm xxx
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Date: 30.09.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh you have been a busy girl, Emm. I am pleased that you and your grand daughter had such a lovely time together. You are a little raver, Tom Jones and now the Beatles, lol. It's great to be able to get out and about when we can, even if it means getting a few injections to keep us moving. The one I got before I went away is wearing off too. I have my infusion on Monday providing my husband doesn't pass his cold on to me.

You have just reminded me to check out the program for the Concert Hall, I enjoy going to the 60's concerts there and there is usually one around this time of year.

How are you Bsk?

Take care everyone and sleep well. xx
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Date: 30.09.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona et al,

Glad to hear you had a good time one and all. I'm ok, thanks. Usual malarkey with my joints so gave in this morning and downed some steroids. Just a small amount but I've noticed my skin is very fragile after taking them, it tears so easily and doesn't heal. Anyone else get this?

take care everyone. xx
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Date: 01.10.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, thanks, it was such a lovely event and, although I'm waiting for confirmation of the final total it's apparently over 200 which I fantastic, I'm so pleased!

I had some cake later, had to wait a while after being surrounded by cake since 7am haha, had a grgeous hazlenut and chocolate one and some biscuits.

Hope you get the wall sorted Rhona. Wow Emm, that sounds fantastic!!! I loved the Beatles Museum, should go back as not been for years or to Liverpool for a while.

Not that I've noticed bsk though I think they give me blistery rashes and skin issues. I've come up in a blistery rash and raised white cell count a few times now after steroid injections. One they thought might be chickenpox and, even though I'd already had it bad when little, they had me in hospital for a couple of days on anti-virals just in case until my blood result came back it wasn't! Got quite a strange look handing in an envelope from my GP to A&E (was sent there) with chickenpox on it!

Another one they thought might be shingles but just had antivirals to take myself for that.

It might not be the steroids but may be a link! Not had one since last steroid jab (famous last words!), just the cellulitus.

I think my skin hates me! :)

Am hoping Enbrel is kinder than toci, I started getting lots of really horrible painful spots round my face and back and shoulders, even my chest with that, like being a teenager again! My consultant said it's the loweing of the immune system and if you are prone to them you are more likely to get more nasty ones! It's calmed down since I came off it though.

Still waiting for the delivery team to ring!

I need to plan myself something special I think.

Take care all xxx
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Date: 01.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I cut very easily slightest little knock and the skin scuffs up. I have also noticed it bleeds a lot for a little scuff. I asked GP about it and he said it is not Painkillers
causing it. Just as we get older the skin becomes much more fragile.( Thanks a lot bless him!!) He wasn't concerned at all. I find it a bit of a nuisance as my arms are always marked little bruises and little cuts don't look very fetching with short sleeve tops.

Eve, well done!!!!!!!

Rhona Willis and Emm take care and have a good day.
The sun is out and its is just lovely.
xxxx
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Date: 01.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, My mother used to get very fragile skin with the steroids, I think they do cause thinning of the skin. I remember once we had to take her to the casualty as my father accidently kicked her leg and it wouldn't stop bleeding. I think they make us bleed easier too.

The wall is finished now, Eve. The workmen have made a great job of it, it's a really old wall so I was surprised how they have managed to do it, they cleaned all the old bricks and had to add some more but it all blends in. I've been in touch with the council so hopefully they will do something. I hope the Enbrel helps you lots.

I was in town this morning so just having a wee tea break now although I will need to get moving and get some housework done. Perhaps I should think about getting someone in a few hours a week to do a bit cleaning....any volunteers?

Oh, I went in and got some tickets for a concert later this month,the Manfred's. I like of the 60's music.

Take care all xx
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Date: 01.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

The Manfred's oh wow I love the sixties music as well. Hope you enjoy Rhona.
I would help with your house work but sorry too far to commute !!!!! LOL.
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Date: 01.10.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi again, reading about skin being thin with steroids, I have it too, I have taken 4mg daily for years and get joint injections regularly. I can see lots of viens especially on the backs of my hands.

I have still a huge ankle today, its bigger than ever, a bit scary actually! Think I'm having a huge flare up.

60'smusic is good. I think we are of a similar age girls. It was amazing how many young ones were in the Beatles story and also at the Tom Jones concert too though. Manfred Mann was good too, I know Paul Jones who was once the singer is in The Blues Band and they are performing in Durham shortly.

Hope you enjoy them Rhona.

Hope your steroids help you bsk . What we have to do to feel better.

Marlene I know how it is with thin skin and the bruising. Just had a huge one from my last blood test.

Take care all.x
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Date: 01.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, have you had that ankle looked at? Sounds awful for you. Get it checked sweetheart maybe they can give you something to help. Keep that foot up as much as possible. Take care xx

Emm Long John Baldry was my friends cousin. I wasn't that keen but could never let on as I didn't want to upset her.
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Date: 04.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Everyone, Hope you are all doing alright. I feel as though I have something working on me, my throat is quite sore and not feeling great, probably have hubbies cold. Great timing as I'm supposed to get infusion on Monday.

Quite a change in the weather now, cold and damp here. Not good weather for the joints. Looks like it is warm in London, bsk, lucky you!

I hope your ankle is a bit better Emm, try and rest it and if it isn't any better then best see about it. Do you find the hydroxychloroquine is helping? I hope it is.

Can't be too long now until your holiday, Marlene.

How are you Willis, still working hard?

Enjoy the rest of the weekend. I won't be doing very much.

Take care all xx
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Date: 04.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, don't get to upset about the weather not much better here. Been raining all day on and off and it is cold. I hope tomorrow is better as we are supposed to be having a family BBQ for the little ones 2nd birthday. It didn't forecast this weather for us.

My joints are playing havoc and my feet are just ouch ouch ouch.

I have just booked the airport car parking and the health insurance.
20th of November it seemed so long when I booked and now it is right on top of us. I can't wait.
Girlie day out next week with my daughter it is her birthday on Monday. Not that we need an excuse for a girlie day out. Booked in for 10th to have our hairs done so another little look around the shops LOL.

I feel for you with that sore throat I had one for 4 days last week not nice at all.

Rest up my hubby and myself have been sofa surfing the last 2days both feeling a bit yuk!!!

Take care everyone xxxxx
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Date: 04.10.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening ladies
Been catching up on all your posts :) M n S had the Macmillan tea day, they had some live musicians as well, lots of staff made cakes for us all to eat n buy etc, they did a 450 mile cycle on an exercise bike and staff could put their names down , I even did 15 mins but only when those cycling were needed to assist customers I would continue their cycle for them :)
Was resting in the week as spring! cleaned bedroom last Sunday. That's my 3 days for this week done looking forward to a wee rest again now. Meant to be bowling tomorrow night, a work night out, may manage one game but def not the three that are planned! Weather turned today - heavy rain so like you all the joints don't like it.
I hope you all have a lovely weekend , lots of hugs xxx
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Date: 06.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies, well the weather has turned. Log burner at the ready today. It is damp and cold here comes winter!!!!

How is everyone?

Willis The Macmillan day at work sounded like great fun. Well done you having a go on the bike.
Have a bit of a rest now. Hope the bowling went well.

Take care every one and keep warm. XXXXXX
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Date: 06.10.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, hope you are all ok. Well, what a change in the weather, horrible out this morning, got off my first bus to work and it was like stepping into a monsoon, bit dramatic maybe but it was awful! I usually struggle with both an umbrella and a walking stick but no chance of even getting my umbrella up.

Am on germ watch as sounds like someone I sit by has a cold and am just praying I don't get the germs as only just getting right again after the virus I had. It's that time of year thugh I guess but wish I could open a window at least. Eyes really dry today. Just want to be well when they ring to bring my Enbrel so I can get started on it. Still no call yet.

Managed a lovely weekend though, meeting a friend for an early tea out which was gorgeous and got to the cinema to see Gone Girl and did a little shopping :)

That sounds like great fun Willis! Hope you are feeling better Marlene & Rhona and hope the steroids are working for you bsk and you ankle is better Emm.

Take care all x
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Date: 06.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Eve, I'm not so bad. Your week-end sounds just lovely.
Hope you don't catch those germs.
The weather has changed so quickly I lit the log burner for the first time today. It is so cold here damp and just miserable. Feeling cosy!!

Hope you get your Enbrel soon and can get started.
Take care xxxx
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Date: 06.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Enbrel was great for me, Eve, but I sadly had to stop. I hope it works for you.

How is everyone else?
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Date: 07.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk how are you?
I am so so I think my elbow could do with another steroid jab. The last one doesn't seem to have worked much. I am fed up with the sudden sharp pain when I move it wrong.
I spent the whole last four days being so lazy just not like me at all. The log burner was just lovely yesterday (feeling cosy).

I am girlie shopping Wednesday and Friday going to get my hair done. So I will have to get out of this sitting around mode. I just don't know what is wrong with me. No get up and go maybe it is my body telling me something. Or is it the flu jab?
Oh well I am sure it will pass.
Went to my little grandsons birthday on Sunday he was 2yrs. The weather was lovely and BBQ went ahead so that was nice for everyone. I had a few wines and thoroughly enjoyed the afternoon.

They have just said on the radio 11 weeks to Christmas wow how quick has that come around.
I have a holiday first so Christmas will have to wait. LOL.

Take care everyone and don't be fooled by that sun is quiet cold here xxxxxx
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Date: 07.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It might be the flu jab, Marlene. I had mine done yesterday and have an angry throbbing arm!

I'm much the same really. Nothing terribly interesting to report but enjoying the sun today.
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Date: 07.10.2014
From: Eve

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

11 weeks, wow, this year has just flown by!

I have to say I'm feeling a bit perkier since the big steroid jab and getting over the virus. So nce to be able to do a bit more than just resting, am certainly getting through a good deal of books! :)

I got my flu jab letter yesterday so will have to sort that, they are at difficult times though, which is a pain. Would have gone this Saturday morning but my mum is coming up and I am looking forward to a day of shopping and lunch with her. Will sort it though, it's important.

Thankfully I'm a bit less sniffy today and colleague with a cold isn't in but my neck is feeling rather uncomfortable so hoping it's not my glands going up.

Might be delayed shock from yesterday, opened the back door half asleep about 5am when I was getting up to put some bits out for the birds, saw something move and discovered the resident big spider on the arm on my dressing gown!!!!! Managed to (relatively) calmly shake it off onto the side away from where I was going to be though it didn't want to mve for a while! Was quite proud of myself for not freaking out.

It's really making itself at home, was even sat (or whatever spiders do, lurk maybe better) on the floor between me and the TV when I had the Bake Off on last week!

Might be feeling the burn from hydrotherapy self management though haha, first session for over a month. I love it.

Weather a bit so so here, rain on and off but not as bad as yesterday. Hoping it's dry later as there is a cinnamon swirl in Starbucks with my name on it later, half price when buying a coffee (I know, I'm easily led :)). Trying to finish reading The Maze Runner before the film comes out on Friday and enjoying it far more than I thought I would.

Take care all xxx
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Date: 07.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi everyone, It started foggy here this morning but the sun is shining as I type this although it is cold out. I had my infusion yesterday, I was a bit worried I wouldn't get it with my throat being a bit funny but they did it anyway and throat feels ok now.

Sorry that your elbow is still sore Marlene, I think the sunshine in the Canaries will sort it out, at least make it a bit easier.

Bsk, my daughter had her flu jab yesterday and her arm is so sore, she couldn't lie on it in bed last night.

Eve, I had to laugh at the spider, I never kill them either as they eat I think eight times their weight each day in insects so better having a spider loose in the house to eat all the wee beasties.

How are you Emm, hope your ankle isn't too bad.

Take care xx
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Date: 07.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Love a spider making it's self at home come on its miserable outside for it. LOL
My arm was sore Bsk and angry red for a good few days.
Well I got up and have done all the cleaning plus ironing. Just dinner to make so very pleased with myself today. I have also lit the log burner. It is getting cold tonight again.
The sun is still shining so it has been a pleasant day all round.
Off out tomorrow shopping I am sure I can find my self a treat somewhere. LOl
I have to make an effort after my lazy mode!!!!

Have a lovely evening every one hugs all round xxx
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Date: 07.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'd love a log burner but there's no way I can have one here. I have put the heating on though. Am off to a rare trip to the cinema to see Gone Girl. I was slightly dismayed to find it is over 2 and a half hours long but my sister has booked the sofa seats, which are more comfortable. I will let you know the verdict tomorrow!

have a good evening!
xx
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Date: 08.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh what a shame I find is heats the whole house at the moment.
Sofa seats sounds great I tend to fidget a lot and worry about disturbing other people. A sofa seat sounds great.

Have a good day everyone! xxx
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Date: 09.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well it's a sunny one here. Managed to buy 1 xmas prezzie yesterday. I also managed to stay dry.
My feet are very sore today I suppose all the walking/hobbling didn't help yesterday.
Day at home today bits and pieces to do as always LOL.
Tomorrow off to get my hair done. It is long overdue but just couldn't face the long sit in the chair. Covering the grey takes time. I was thinking about letting it grow through but it just makes me more aware how old I am LMAO.

I hope everyone is ok. How was the sofa at the cinema Bsk?
I am booking to see the Jersey Boys Christmas present for hubby. We have to wait until February for it to come local to us. I just don't fancy going into London to see any shows. It makes it so late for getting home and in the winter so cold also. Our local theatre is just great for parking.
Oh well that's it really back to my chores.

Take care all xxx
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Date: 09.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene & everyone else. Try and send some of that sun up here, Marlene, it was foggy here this morning but at least it's dry.

I went to get my hair done yesterday so know what you mean about the grey, sometimes I am tempted to leave it to see what it would look like but only if it was just me that could see it.

My daughter is coming home from Spain tomorrow night, just for a long weekend, be nice but not long enough.

Hope everyone is well. Take care and stay warm.
xx
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Date: 09.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Rhona how lovely for you I bet you can't wait to see her. I know what you are saying about not being long enough just make the most of it. I hope your week-end is full of love and laughter. xx

The sun is slowly giving way to clouds and it has started spitting with rain. Oh well I suppose we need to get used to it. Winter is definitely on the way.
I would leave my hair but it just looks awful with the brown/grey root showing through. The hairdresser sad she could strip the colour but its not good for the hair. I guess I will have to give in one day just not ready yet.
Take care Rhona xx
Me too
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Date: 10.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, feeling better hair chopped and highlighted. How is every one?
The weather has been lovely here again still very sunny.
Off out the week-end to a Autumn steam Fair. Weather allowing of course.
Have a good week end all!! XX
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Date: 11.10.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning, hope you are all fighting the fight! Cold here now and heating on! Not managed to get the log burner sorted yet so fed up with that! Took daughter to dental hospital thurs so up at 6am then had to do an 8 hour shift! Was a wreck yesterday and had trouble holding myself together all day at work, especially after hearing friend has started her Chemo but seems to have no fight in her for going forwards! I can't say anything to her obviously as I have no real understanding of what she feels or thinks. She has a grand baby due at end of October and I just hope when she meets him/her it gives her the strength she needs to fight like billyo.
I'm due a weeks holiday after this week and boy am I looking forward to it. Time to get the spare bedroom completed.
Have a good weekend ladies, keep well,
Big hugs xx
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Date: 11.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, can I just say best wishes and love are being sent to your friend and I hope the new baby perks her up a bit. Bless her!!! As you say we have no idea how she feels. xxxxxx

I can imagine you are looking forward to a break you have been so busy. Please don't forget to take some of the week for YOU!!!!!

Take care xxxx
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Date: 12.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone! I hope you've all had a lovely weekend. Those pesky steroids have kicked in and I'm feeling a bit better. Long may it last but I don't like taking them at all. It is nice to get a bit of relief though.

How is everyone doing?
xx
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Date: 13.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, pleased to hear the steroids are helping. I know you don't like taking them but what else can you do?? You can't keep trying to put up with all that pain. It does make us irritable and we get poor quality of sleep and the cycle just keeps going until we feel fed up I hope you get more relief soon.
My feet and hands are just so painful and this damp weather doesn't help.
We went to a steam fair yesterday the sun was out so it was pleasant just wandering around. Purchased some fudge and peanut brittle.
We finished up at a lovely village pub doing a Sunday Dinner I decided on the Turkey. No wine as my pain killers were more important (shame) Then I had waffles and ice cream. So my diet was very much out of the picture LOL. It was a lovely day and then I sofa surfed all evening.

The weather today is so miserable I have food shopped and now the door is staying shut.

Take care xx
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Date: 13.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to hear that bsk, we don't get any medals for suffering so sometimes whether we like it or not we have to take what gives us a bit relief.

Sounds like you had a nice day, Marlene. What a pity that you had no wine, lol. I'm get too fond of the prosecco, I bought a bottle in M&S the other day and had it tonight, it was very nice.

My daughter left this afternoon so that's her back in Spain now. It was lovely having her here and we went for a meal last night, it wasn't long but at least she will be home again at Christmas.

I heard we have to get a heat wave starting on Friday, let's hope it is true.

Sleep well ladies and pleasant dreams. xxx
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Date: 13.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear you are suffering so much, Marlene. My mother used to take the wine with the painkillers but I am much more cautious than she was! Sounds as if you had a lovely day.

Pleased you had a good time with your daughter, Rhona. Christmas will be here in no time.

Weather is vile today, rain non stop and I slept most of the day. I don't know why I am so tired. Usually, the steroids give me a bi of a boost in energy.

Looking forward to the heatwave!
all the best. xxx
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Date: 15.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Bsk I know that tired feeling I am putting my down to not sleeping well. As for the pain it just goes on. I laughed at the bit about your Mum good for her!!! Maybe we are too cautious haha.

Rhona Christmas will be here soon. So glad you had a great time while your daughter was over. Good for you lovely glass of wine. cheers!!!!!

The weather is awful wet grey and just miserable.
I am hoping the weather is going to be good at the week end.

Emm Willis Eve and anyone reading this post Take Care and keep warm xxxxx
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Date: 15.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk & Marlene, Has the heat wave not arrived with you yet? it was a lovely autumn day here today and also a good washing day, I got my washing all hung out and dried.

That's my daughter back in the sunshine again, it was lovely seeing her but it went in too quick, we went shopping and we all went out for a meal on Sunday night (her last night) it passed in a flash.

I've been feeling more tired this week, I think the darker mornings are making me want to hibernate under the duvet.

I hope that heatwave does arrive for you all on Friday.

Take care everyone. xxx
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Date: 16.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well another cold day but no rain yet. So much rain yesterday all day and night grrrr.
Rhona it seem to be that we are all tired maybe the weather more pain I just can't put a finger on it!!!!
I bet the time with your daughter just flew. It will be Christmas soon. (don't remind me).

I hope you all have a good day xx
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Date: 16.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Wow the sun is out and the temperature has risen. Looks like it's going to be a good day. Thanks for sending it down Rhona. LMAO
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Date: 16.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You're welcome, Marlene. I wish I could have kept it though as not so nice here, it was raining earlier and think we have to get strong winds tomorrow and yet some part of the country have to get a heat wave....crazy!

Going to get blood checked this afternoon to make sure all is ok for the next infusion on Monday.

Have a good day and enjoy the sunshine, Marlene.

Hope everyone is doing alright and I mean everyone on the forum as well as bsk, marlene, willis and Emm and Lynn, that hasn't been on in a while. xxx
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Date: 16.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona good luck for the blood check. Sorry we have stolen your lovely weather I am sure it will be back!!! xx
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Date: 16.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hope things go ok for your infusion, Rhona.

It feels a bit too warm for this time of year and it's confusing my internal thermostat.
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Date: 17.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

The sun is shining just tidied the hanging baskets that are still very pretty. Standing with my back to the sun was just lovely. (small things and all that). I hope the sun is shining on all of you.
I have a real problem with my jaw on the right side. I just looked it up and read a bit and closed the page. Ignorance is bliss I am thinking. I know that with OA there is nothing to stop it so why am I worrying my self about what might or might not happen.
So onwards and upwards.
My daughter is visiting tonight as her Dad is working nights. So a cuppa and a chin wag will be in order and when we have put the worlds to rights she will drive home text me and then I will sleep.(hopefully).

I hope you ladies are all doing relatively well.
Take care and enjoy this weather!!! xx
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Date: 17.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It's worth going to see a dentist and getting a referral, if needs be, Marlene. You may be have something as simple as a TMJ, which is easily sorted out. Also, a night guard when you sleep might help. Obviously, I've go no idea what the problem is but my point is dentists can do a lot to help!

Hope you are all well. xx
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Date: 17.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh a sore jaw is horrible, Marlene. I've had that a few times. I agree with bsk and think you should make an appointment to see the dentist. I didn't know OA affected the jaw, if it is the Arthritis then maybe you should ask to be referred to a rheumatologist and see if they can help.

It started off wet here this morning but was a bit better in the afternoon and quite mild. Great for this time of year though.

Hope you all have a good weekend. xxx
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Date: 17.10.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good evening, well I'm now on 10 days off from work :) oh bliss, my feet are throbbing, the muscles in the back of left lower leg in a knot, I'm weary beyond thinking but at least I got home before the rain started lol.
All I need to do in next 10 days is, complete decorating in spare room, buy some new shoes, see some friends, convince husband to get rid of a lot of things (junk in my eyes), tidy house, get some rest, and, drink some wine, hopefully ill achieve it all . Then maybe I can think of Christmas presents! Has a year really almost flown past! . Hope you are all ok-ish, ooh talking of dentists think I should go too! Fear factor keeps me away.
Have a great weekend ladies xxx
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Date: 18.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning what a change in the weather wet dark miserable. The log burner is glowing so all cosy.

Bsk I looked up TMJ and have found some useful information including exercise and keeping the jaw warm (hot water bottle). So fingers crossed it is a temporary thing. I will give it a while I just don't want to face being pulled around I am so fed up with it all. But thank you for the info I had never heard of it . Thank goodness for this forum and all of you!!!

Rhona thanks for your kind words I hope you are well.

Willis, I feel for you it can't be easy for you. You carry on regardless hat's off to you!!
You sound like you are going to be busy don't forget to take time out for yourself.
I know Christmas is looming.
Dentist is not the best I am not scared but I don't think any one likes it.
Enjoy the wine and put your feet up and buy yourself something nice when you are buying those Christmas presents.

Take care everyone hugs to you all xxxx
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Date: 18.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, it might not be a TMJ! But do go to the dentist. I know what you mean about being fed up with being pulled about but sometimes it's worth it.
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Date: 18.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I will go if it doesn't go in a couple of days. I have a six monthly check in December. I will go don't worry just a bit fed up with it all. I have to get my elbow done again next week so I will mention it to the consultant when I go.

Thanks for your support Bsk it really is appreciated xxxx
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Date: 22.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh my goodness! This board is very quiet at the moment. How are you all doing? Marlene, have you seen anyone about your jaw and is that why you are keeping a low profile?

Rhona, Willies and Emm, I hope you are all doing ok.

I've got to up my steroids. More pain in my shoulder, elbow and particularly my hands. Oh joy! On the other hand, it's not raining any more. Though it's been cold here and I'm in my winter coat already.

take care, everyone. xx
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Date: 22.10.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk just been resting lol and visiting friends, that was a long time coming. Saw my friend who has C today. She is on Rumit? Seen it mentioned on here can't spell it, she's been told its the new wonder drug for combatting against C. Having Chemo too not sure ifs that's it or another drug also but she has infusions and recall you all having conversation about it on here-infusions that is.
She is much more positive than I thought she was, will not contemplate giving in or negativity of any sort and it was heartwarming to see and hear :)
Hope you are well-ish and keeping warm from this horrid weather x
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Date: 22.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, sorry about the typo in your name above.

Is your friend on Rituximab? I've heard of someone else taking it for cancer. I hope it helps your friend and she does well on it. If it's that drug, Rhona takes it.

Good to hear you are resting. You're on holiday, aren't you? Enjoy the time off.
xx
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Date: 24.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, I hope you are all OK. I haven't been on as you know I hide away a bit when I feel really unwell. Sorry!!!!
I have less pain today and the jaw pain has gone. I have mentioned it to my steroid injection consultant and he feels it is probably OA. The pain had gone when I saw him typical but I will ask for a referral if it comes back.
Well that's me.
My holiday is looming and I am looking forward to it.

Willis am pleased your friend is feeling positive Bless her.

Rhona Emm and Eve hope you are all well.

You are right Bsk the whole forum seems very quiet at the moment.

Take care xxxx
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Date: 24.10.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi , bsk I hadn't even noticed the typo lol just shows you see what's meant to be and not what is - bit deep but I meant when reading :)
Glad your pain has gone from jaw Marlene , I've had jaw ache from my RA.
Well I'm more weary and aching now than I was before time off and haven't done half as much as I thought I would. That in itself is depressing so today I must get myself out and about and moving more.
Have as good a weekend as possible everyone
X
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Date: 24.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good evening ladies, Glad to hear you're feeling better, Marlene. Are you feeling a bit better now Bsk with the increase in steroids?

I got the infusion on Monday so hoping it continues to be effective.

We went to the Manfred's on Tuesday night, It was a great show. I can't believe the age of those guys, especially the way Paul Jones moves and jumps about on stage. Tom McGuinness was excellent, loved him singing "When I'm dead and gone"

Hope Emm is alright as she hasn't been on in ages.

Have a good weekend xxx
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Date: 24.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Manfred's wow Rhona what a blast from the past.
Well glad to hear they can still jump around LOL.
I hope the infusion continues to help you fingers crossed.

I was thinking about Emm as well maybe she has gone to visit her daughter? I hope she is ok.

Have a restful evening everyone xxxx
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Date: 24.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Glad the infusion went well, Rhona and peaked to hear your jaw is better, Marlene. I'm suffering a bit today. Shoulder very painful and elbow and wrists. I suspect the steroid jab is wearing off.

Oh well.
night everyone. xx
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Date: 25.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Sorry to hear that, bsk. Have you put your splints on your wrists? and try and rest your shoulder for a day or two and hopefully it will wear off.

Take care and sleep well. xx
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Date: 25.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Rhona. Yes, I'm wearing the splints, they really help but I can't wear them all the time as it stops muscles working.
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Date: 26.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, make sure you rest that arm and shoulder difficult I know. Could you get steroid shot in the shoulder at your GP's? I know how difficult it can be when shoulders and wrist are painful.
Take care xxx

Hi Rhona hope all is well with you. xxx

Hugs to everyone!!!
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Date: 27.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies and all Forum members, I hope everyone is doing alright. The weather here has been horrible, very wet and windy. I think you should send me up your log fire, Marlene, you won't be needing it if you are going away to the sun.

I have been so tired this last week, especially since having the infusion. The dark wet mornings make me want to hibernate, must be the animal instinct. Best get to bed as it's way after midnight, don't want to turn into a pumpkin.

Sleep well xxx

Take care everyone. xxx
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Date: 27.10.2014
From: Helen

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello Rhona&all
Wev had lovely weather down here in Torquay Devon. Not had a coat on just a cardy. Washing has dried out on the line.
Did put the heating on for an hour whilst Ella went to bed as shes only 3 and its a bit chilly for her.
Xxxxx
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Date: 27.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh I didn't know you were in Torquay, Helen. How lovely! I would feel I was on holiday if I lived there. That is good you are having it so nice. My daughter said it is boiling hot in Spain just now, she had a sundress on at work today.

Hope everyone is doing alright. xx
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Date: 29.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, How are you all doing?
The rain hasn't stopped all day so grey as well.
The norm has happened I struggled to get out of bed and have been in a lot of extra pain.
I have had a real easy day had no choice really.

Helen Devon is a lovely area and have had many a holiday there.
Take care all xxxxxxxxxxxxxxxxxxx
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Date: 29.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

We have had it dry today, Marlene, after it raining all week. Just as well that you have your holiday soon and surely the heat will help you. I bet you can't wait. I went for a walk at the loch today and heard what sounded like trumpets, when I got closer I realised it was coming from some of the swans. I checked the internet when I came in and was surprised to hear that there are swans called trumpeter swans although they come from North America and usually go to South America in the winter so not sure why they are here. My ankles are so sore now so I'm resting tonight as we are going to Aviemore tomorrow for a few days. My daughter is starting a new job next week so a wee break beforehand.

How are you bsk? I hope Emm is aright as it has been a while since she has been on.

Take care all xxx
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Date: 30.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm ok, just a bit achey around the elbows, which is a new one for me. I had hydrotherapy yesterday and did not like the physiotherapist who was running it at all. He was abrupt and pushy and tried to make me do things that were really painful. I couldn't stand up when I got out of the pool as my legs wouldn't support me. He just stood there and asked me why I wasn't standing up when it was clear my legs were giving way. His assistant had to get me a chair. Such a prat. I don't know if I will go back next week.

Enjoy Aviemore, Rhona. Sorry to hear you are struggling, Marlene.
Welcome to the thread, Helen.
xx
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Date: 30.10.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That is terrible, bsk. I wonder where they find some of them. I felt worse when I went to physiotherapy and have never went back. I sometimes get soreness at the elbows, it can be very difficult. Is there no sign of them giving you anything else?

Sleep well and hope you both feel a bit better tomorrow. xx
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Date: 30.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello Ladies, Bsk what a way to be treated. The man Is an idiot. Of course your legs were affected mine felt like a ton weight when I came out of the pool. The physio guy said it is normal just hold onto the rail and take your time. I can't believe he could be such a prat as you say and so uncaring. I say if he doesn't like his job move over and let some one else do it. Don't let him stop you going as I am sure it could help you. Can you go on a different day in the hopes some one else will be there. ((hugs)).

Rhona enjoy your break and good luck to your daughter in her new job and I hope she enjoys it.
Walking along the Loch sounds so relaxing for you. I hope you get some more good days for walking before the winter sets in.

Not long now before I go away and I am looking forward to it apart from the journey. It will be worth it. I am looking forward to my massage by Mr Spanish Guy. I hope to get in two or three!!
Printed off my boarding passes today. So ready to go!!

Take care all I hope you are ok Emmx
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Date: 30.10.2014
From: Helen

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk iv just finished a 6mth hydro exercise plan. Didn't think it did anything for me except tire me more than I was before. It was a 121 which I hated. As I'm on the shorter side I couldn't go to far into the pool as I kept losing my balance each time he said go further in I'd have to explain why I couldn't. Every WK was the same. Like you once out my legs&body felt like a ton weight. No help just his word saying its expected. Took longer to undress and redress than the actual pool time 15mins a class. Anyway its finished and made no difference with arthritis&fibro stiffness.
Yes live down on Torquay. Lovely beaches lovely walks and yummy cream teas.
Helen. Xx
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Date: 31.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks for that info, Marlene and Helen. Good to know I'm not alone but why they don't tell you this themselves I don't understand. I might go but my shoulder has been bad today and am not sure if it's the result of the hydro.

I had another disappointing experience today. `My GP referred me to the National Integrated Medicine Hospital in the hope I may get some complimentary therapies and a bit of support. I saw a doctor there today who prescribed homeopathic medicine, which is proven not to work, and when I queried this he said 'well, there's nothing else I can do for you.' I asked about acupuncture and/or diet and he said the former was pointless because RA is systemic.
He wanted to inject my shoulder with a remedy made of ground red ants! I politely declined but he asked about 4 times whether I would have it. No way! There's always a risk with an injection and I wasn't letting him near it. He sent me away with a remedy which I have no intention of taking and some fish oil capsules, which I will take though they usually make me feel very sick. I don't know what I expected but it wasn't that. I'm shocked homeopathic medicine is still available on the NHS given that it has no scientific evidence to back it up. I don't have a problem with the placebo effect but that is hardly going to work if you don't believe in the medicine in the first place!

Also, he looked at my joints and hurt my shoulder by squeezing it very hard. He then prodded my other joints but it all felt very random.

I know my GP is trying to be helpful and I think she will be as disappointed as me.
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Date: 31.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Bsk what a let down. I wouldn't have taken the injection either. Why they always do the "is this where it hurts what about when I do this". Then you come out feeling like you have just been run over by a bus and it takes days to settle??????

Bsk I am willing some help your way it has to happen soon for you. Take care and chin up xxx
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Date: 31.10.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello ladies,

I am letting you all know what has happened to me but am tired so will go into detail later.

I tripped 'out' of my front door step and tore part of myquad muscle from the knee. Had an op and had a full leg pot on for two weeks and now a full leg brace.

Been in hospital for a month . So devastated and just home today!

Will fill you in later with details.

Love to all Emm x
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Date: 31.10.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh my goodness, Emm! I'm so sorry to hear that. We were wondering where you were. Sending massive hugs (((((Emm)))) and good wishes for a speedy recovery. xx
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Date: 31.10.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Bless you Emm!!! We were all wondering what had happened but I am so shocked and sad to hear this. I hope you have a speedy recovery now you are home. ((((((hugs)))))) xxxxxxxx and Love.

Keep in touch when you can chin up xxxx
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Date: 01.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thankyou ladies,

Struggling a bit but lots of family and friends support. Which helps.
I think its gonna take a long time, unfortunately.

Xxx
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Date: 01.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, so glad you have lots of support. Take each day as it comes and slowly but surely you will get there.
I know you love to be out and about and you will be again and I am sure you will recover quicker at home. When you are feeling up to it give your self a big treat. Take care sweetheart and pop in and let us all know how you are doing.
xxxxxxxx (((((hugs))))
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Date: 02.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, thanks for your encouragement, I am struggling to be optimistic at times as I don't see much improvement daily as I would like.

I know patience is a virtue but it's not one of my strengths unfortunately.

X
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Date: 02.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

LOL Emm I am one of the worlds impatient so I totally understand. When I want something done I really wanted it done yesterday. I have mellowed slightly as I've got older.

Take your time Emm the winter is here so make the most of sofa days reading books watching all the old rubbish on tv. I am sure you friends will keep you occupied and your family of course.
I know you are a get up and go person so it will be hard on you. When the spring comes you will be up and running again for the summer.
Make a list of all the things you are going to do when that knee is healed and just keep looking forward.
Take care xxxxx
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Date: 02.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm the same, Emm. It's so frustrating being limited but Marlene talks sense, as usual. It sound as if it will be slow and just accepting that will help you more than you know. Can you get people to bring you things to amuse and entertain you? Dvds? Talking books, puzzles etc.? I don't know what your thing is but trying to keep yourself amused and your mind off things will help a lot. Keep your chin up. You've always got us on here to moan to when it all gets a bit much. (((Emm)))
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Date: 03.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That is awful, Emm, and after you were just getting over your last fall. No wonder that you're struggling to be optimistic, that is such a shame. I had a feeling that something was wrong when you hadn't been on. Take all the help that you are being offered, Emm, and give it a chance to heal.

My shoulders, neck and head has been so sore these last few days, it has been making me feel dizzy and I've had pains shooting through my ears, I am wondering if the arthritis is now in my spine.

Hope everyone is doing ok.
Take care all xxx
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Date: 03.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh, Rhona. I hope not. Can you use a heat pad or hot water bottle on your neck to help?

I've been having a problem with one of my eyes ever since I had the cataract ops. I was given the run around at the Very Famous Eye Hospital near me, different diagnosis from everyone I saw, told I had dry eyes from RA, that there was nothing wrong, blah, blah..

Well, I asked for a referral to the hospital all my other consultants are at from my GP. I saw them this morning and a specialist in What's Wrong With My Eye found out what was wrong. Something to do with pockets of fluid blah, blah. Anyway, he's given me some drops and back in a month and maybe a scan, etc. He's confident he can sort it out for me and thinks it is worth doing. So much for the Very Famous Eye Hospital that's supposed to be the best in the world. The last consultant I saw there was very rude and said there was nothing wrong. I've been trying to get something done about for about 18 months. So I am pleased today.
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Date: 03.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, sorry to hear you are suffering. I have arthritis in my shoulder and some discs at the top of my spin. I suffer with awful headaches because of it. I have to say it has never made me dizzy or caused shooting pains through my ears. It just sounds awful. Rhona if it carries on go see your DR. I hope for you the pain goes away soon.
Take care (((hugs))) xx
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Date: 04.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Bsk & Marlene, It feels a little easier this morning but I still have a terrible heaviness in my head and ear, I will make an appointment with the GP if it is still like this tomorrow, and I will try my massager on it too. I was getting myself a bit worked up thinking it could be some awful side effect from the infusion.

That is good news, bsk. It's always better to get things checked out and keep pushing if you are not happy with the first diagnosis, after all, we are the ones that know when things are not right and we don't need anymore unnecessary worries.

When are you away, Marlene? I hope you have a fab time and enjoy those massages. You deserve the break but we will all miss you on here. xxx
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Date: 04.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Bsk, lets hope the outcome is a helpful one. I always say the hospitals reputation very much depends on the Consultants and surgeons ect. I have encountered rubbish like you in the past nothing wrong with your elbow from a well known hospital consultant then a lesser hospital has me in the operating theatre within three weeks.

It is so wrong to be treated like this to them it's a job to us it is our well being. I am glad you seem to be getting somewhere now.


Rhona, I am off on the 20th. I am just looking forward to a bit of heat my massages and chilling and of course a few glasses of wine with dinner provided by some one else. LOL.
I do need this break I am so fed up lately. I have to go to the Drs Thursday I have eczema (psoriasis) in my ears and it is getting really bad. The steroid spray I have isn't working and it stops me hearing properly. It is also very sore. I have a check for my pacemaker on the14th. So it will be good to go away and forget it all for a while.

Take care ladies. EMM I hope you are bearing up.
xxxxx((((hugs)))
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Date: 06.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, Have you been to the doctors yet? hope you get something to help. You have a lot on your plate too, you will be needing those massages.

I have an appointment in half an hour at the doctors, I haven't been out for a few days, as the dizziness isn't nice, I thought the other day I felt a bit better but yesterday was horrible so hopefully she will have an idea what's causing it.

How are you doing, bsk? It is miserable here, damp and cold.

Hope you are coping ok, Emm.

I guess Willis will be busy, M&S will be getting busier now so she will be working hard.

Hope everyone else is doing alright. xxx
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Date: 06.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, I have been to Drs. I have a chest infection to go along with it all. So I had 5 items went back to the chemist to pick it up OH JOY they only had 2 items so back again tomorrow. So I will have to get a taxi as my hubby is not around tomorrow and I just couldn't stand around waiting for a bus.
I have to go back in 4 weeks to see if the psoriasis creams three different types work. I have to say I will be going back to see this Dr as he is concerned that maybe I may also have PA.
He said go and enjoy holiday then come back and we will discuss what we will do next. So a bit happier.

Rhona I hope you get on Ok. Sounds horrible what you are experiencing. Let me know.

It is very cold here today and we had a bad frost this morning so winter is here.

Take care all xxxx
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Date: 06.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, What a shame you having another chest infection, just as well you are going to the sunshine soon. That would be terrible if you do have PA and they have been treating it as OA all this time but it wouldn't surprise me.

I went to the doctors and my ears are clear so it's not coming from them, she thinks I have a problem with balance whatever that means and my blood pressure is very high so I have to go back and see her next week. I was prescribed prochiorperazine for the dizziness but I don't know if it's the right thing to take as I think it is must be coming from my neck and shoulders, as long as it's not the rare brain disease that can happen with the infusion, that would just be my luck, lol.

Take care and get yourself fit for your holiday, Marlene.
xxx
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Date: 06.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have you rung your rheumy, Rhona? I think you should. Dizziness is listed as a common side effect of Rxmb. They should put it on record, if nothing else, but they ought to know, I think.

Marlene, sorry to hear you have another chest infection. I hope you are well for your holiday. Interesting about the doctor's idea about PA. It will be good to get that looked into.

I'm feeling a bit manic on the steroids and am also still in pain. Gah!

Emm, how are you getting on?
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Date: 06.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona, try not to worry too much. The balance thing she mentions could be vertigo my hubby suffers with it and he says it is a horrible feeling. People always think vertigo is just a fear of heights. What your GP has prescribe is exactly what he takes. Hope you feel better soon. I would also speak with your rheumy nurse. Look after that blood pressure it could be raised because you are feeling stressed!!!

Bsk so sorry you are still suffering. It is just unfair that nothing seems to help. It is a shame the steroids are not great for you. ((hugs)) xx

I am pushing to be tested as my psoriasis is getting slightly worse and my finger nails are now showing lots of signs of psoriasis. The GP was looking at them today. He agreed they are very pitted and look similar to fungal infection on two fingers. It isn't because they have looked the same for a long time now. I
will feel better when I have been checked I would prefer it not to be. By the way Bsk I have 5 days of steroids for my chest wink wink the GP is sure it will help my OA.

Yesterday I had a lovely afternoon out. My mum was 89yrs and I just didn't know what to buy. We have a beautiful garden centre come big gift shop with a lovely restaurant.
I took her for afternoon tea. The table was laid with pretty bone china. I didn't mention it to her at all. She was a little overwhelmed for a minute. I said no tears mum this is for you. Bless her.
I have some lovely photos and the place was decked out for Christmas so the back drop was just gorgeous.
So one happy Mum and a happy Daughter for getting it right. Just wanted to share hope I haven't bored you!!!!

Take care everyone.
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Date: 06.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That sounds lovely, Marlene.

Enjoy your steroids!
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Date: 06.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope it isn't PA either, Marlene, but if it is, then they will prescribe the right medication for you and then you could feel a lot better.

Happy belated Birthday to your Mum, Marlene, Wow, 89 years young. You didn't bore me at all with your story, I enjoyed hearing about it and you sound such a lovely devoted daughter, your Mum is very lucky to have you but I'm sure she appreciates it, sounds a lovely afternoon.

I feel a little better tonight and thanks for your reassurance "again" and hope the steroids help you.

Bsk, My daughter said the same as yourself, if I am any worse tomorrow I will call them. I wish I could find something that would help you, I have read about the steroids doing that. Perhaps they are working on a new drug that will come out soon and suit you, I really hope so.

Sleep well and stay warm.
Love to all xxx
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Date: 06.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks both of you. I'm doing ok really. It's just I can't really talk about it to anyone else much and you know understand what it's like. I am waiting to hear if I've been approved for Abatacept but I'm not holding my breath about that.

I'm pleased you are feeling a little better tonight, Rhona. I hope things improve more tomorrow.

Marlene, your mother sounds pretty amazing for her age and that was a lovely surprise for her. My dad is 88 next week. He's not doing too badly, touch wood.

take care. xx
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Date: 07.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope you do get it, bsk, it's about time they found something to suit you. I was looking through some of our old posts, do you know we have been chatting for over 2 years now? I was looking up dizziness in the search button and discovered that I had the very same symtoms after one of the previous infusions, so you are right about it being a side effect. I think you would make a good consultant. In fact a few on this site would make good consultants.

I'm having some tea and toast then will get to bed.

Nite nite everyone. xx
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Date: 07.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I'm on the job training, Rhona! I hope it settles and you get back to normal but do tell your consultant, just in case it's one of things they have to watch for.

xx
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Date: 07.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well I better watch out Dr BSK and Consultant Mrs Rhona. When I see those names on the door I am running I don't want misery guts underlined on my notes. HAHA LOL

Happy Birthday to your Dad BSK bless them!!!

Bsk I totally understand what you are saying on here we just say it no rolling eyes bored look and well at your age what do you expect. Having a mum 0f 89yrs 63 is not any age.
I hope you are approved the drug. It will be about time.

Take care every one xxxx
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Date: 07.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have you promoted Rhona over me, Marlene..?


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Date: 08.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

As you were feeling under the weather I thought just 5mins with a patient would be enough for you at the moment. The thought 5 mins with me !!!!!

I hope you are feeling a little a better today. I just went out in the garden it is so cold. Lets hope it warms up a bit.

Take care BSK xxx
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Date: 08.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

You are quite right!

Horrid grey day here.
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Date: 08.11.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good morning ladies, you make smile and laugh and that is a good medicine. That you can joke through all the pains etc is great. I hope you are all feeling a little better today.
And as age shows us it seems like only a few months ago we were discussing how cold and frosty the weather is yet we are nearing another Christmas!
Last night was the worst sleep in a long time waking up with the pain in my feet. It was a busy day at work yesterday, goodness knows what I will be like in December as I've no doubt it will be busy all day every day!
I've stopped taking the anitripoleen (lol can't spell it n too lazy to look at box) it keep giving me leg jerking , cramp style feelings so ended up with less sleep than before!
So maybe a sleeping pill once a week will do so that I get at least one decent nights rest!
Grand daughter dragged me to the firework display the other evening but I'm glad she did as been a long time since I went and it was lovely. She is away out with grandad to a farmers market this morning so suddenly very quiet here :)
Emm I hope you are getting through each day ok and trying to keep your spirits up x
Have a great weekend guys xxxxx
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Date: 08.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, feet pain is a very nasty pain I have lots of painful feet days and it is one of the worst. Give them a good soak in warm water with some of your favourite smelly's to sooth away some of the pain.
I bet you will be very busy at Christmas tell them Santa needs a hand so you will have to have Christmas week off LOL.
Willis go with what you think is best for you. We are usually right in making choices for ourselves.
I didn't go to a firework party this year. I usually do.
I love the farmers market's especially this time of the year. Your Granddaughter seems a lovely girl spending time with Nan and Grandad. Love her.

It is good to have some jolly banter!!!

Take care Willis xx
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Date: 10.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,
I am 'hobbling' around a bit better the last couple of days and I feel my confidence growing slowly.
I went out to the pub with friends on Saturday afternoon for a meal as it was my birthday on Friday. The kind barman got me a big cushion on the floor to rest my sticking out leg on.
I get in the caar by having the seat right back and putting my braced leg in first as it sticks out with minimum bend. Then I walk on someones arm for support.
It 's quite scary after 4 weeks of hospital.
I went for Sunday lunch today too at my sisters. So I am beginning to surface.
I have Swiss and Australia trips booked December and February but unsure if I can make them yet.
At hospital this coming Friday so am expecting my brace to be adjusted to 90 degrees! Hope so.
Been reading your posts and enjoyed the 'humour ' too.
I have noticed my elbows feel arthritic the last four days, wonder why, not felt this for years. Could do without this at present.
Well off for a tea and bed now. Sleep well all. X
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Date: 10.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, so pleased you are making good progress. It is good to hear you are getting out again it is so important especially to you as you are a get up and goer. There are many lovely people in this world and it sounds like the Barman is one of them.
Emm fingers crossed that you make those holidays.

Good luck for the hospital appointment. Let us know how you get on.

(((((((hugs)))))) xxxxxxx
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Date: 10.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Eee I have been moaning to people this morning and think they think I am feeling sorry for myself...which i am..
Why am I not allowed to?
They say 'there are people far worse off than you! And oh it won't be long, but this is my 6 th week and I am fed up...
Well there may be, but I still don't like the position I find myself in.

Needed a moan so please don't say Oh it won't be long!!!! UGH.

Why the h..l did I fall over the step!!! UGH

Hope all are well. X
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Date: 10.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh Emm, ignore them of course you are entitled to feel sorry for yourself. Yes there are a lot far worse than all of us but we are human and we need to moan and have people be sympathetic. We also need people to just listen and support us.
Emm this is their problem not yours if they don't understand how you feel. Well all I can say is one day they might look for a sympathetic ear and maybe you won't be so willing to listen.
It is hard for people to understand when it is not them but for goodness sake people really need to have a heart.

This is why this forum is such a good place to come no one but no one will judge you and why should they. Everyone totally understands. Take care Emm and forget the comments we all understand and I just wish I was around the corner you could moan all day long to me over a cuppa as long as you have a nice piece of cake or a few chocolate biscuits. (LOL).
By the way just to say six weeks is a long time and 4 weeks in hospital I get why you are fed up Love and Kisses and a great big hug xxxx
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Date: 10.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It's entirely irrelevant that there are people with worse conditions than you. You wouldn't dismiss someone's pain if it were less than yours. It's nonsense and unsupportive. Being in hospital for a month is no joke, perhaps they should try it themselves. You have every right to feel sorry for yourself!
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Date: 10.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Emm, There is always going to people that don't understand, I remember my niece once telling me I was a hypochondriac, jokingly, but it was still very hurtful. I think the reason people on here understand is because they know what pain is, we know that there is always someone worse off than ourselves but that doesn't make us feel any better. Even when people say, there is no point worrying about things, you could get hit with a bus tomorrow, is that supposed to make us feel better? I do sympathise with you, Emm, you have enough pain without this happening to you but try and keep your spirits up by looking forward to those holidays.

It has been a nice dry day here today after all that rain on Saturday.

Take care everyone. xxx
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Date: 10.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Ladies thanks so much. I feel better already from reading your posts.
How lovely of you Marlene, suggesting tea and cake, it made me think if only us ladies from here could meet up and do this, it would be great!
I have had a visit from one particular friend today who totally understood and said the same as most of you, that unless people live with constant pain, they don't understand, she had experienced this herself from some of her pals before she got new knees and could not keep up with her friend on holiday, the person grumbled at her all the time.
So I feel a little better now.
Thanks all for kind words and support.

Your all lovely xxx
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Date: 11.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, I often think if we met up would we be anything like the picture we have built up of one and other.
So glad you feel better. Your friend has it spot on unless they have experienced what we all do how would they even have the slightest inkling about our pain. Emm because like the rest of us you are get up and go everyone assumes you are ok. Which proves a very big point you get on with your lot and are NOT a moaner.
I was thinking of wearing a badge that say's don't bang into me I am fragile LOL.
It is nice you and your friend have one and other.

It is freezing here today and yesterday afternoon it was bitter. Oh the country life no protection here from big buildings. Not that I would go back to living in a town it is so peaceful here.

Emm have a good day!!!!!
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Date: 11.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning BSK Rhona Willis, I hope you are all ok. It is so cold today. The sun is trying very hard to come out.

I have a red swollen wrist today it started last night. It is hot to the touch so I assume some inflammation. Oh the Joy's of being an old dear with OA LOL.
I must get started on some packing soon otherwise I will have to go to the nudist beach!!!!!

Have a good day and make sure you all keep warm.

xxxxxxx
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Date: 11.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Good morning Marlene & All,

That would make things easier, lol. When my daughter was about twelve we went to the Costa Del Sol and on the first morning we went looking for the beach and saw a couple of guys with towels under their arms so I said we will follow them as that will be where they are going, they led us right to a nudist beach, my daughter was very embarrassed and not amused at me laughing.

On the subject on nudist holidays we actually have a naturist camp at Loch Lomond, the thought makes me shiver. I worked in an office years ago and one of the men went there every year, such a respectable looking man he was too, I innocently said to him, oh that could be nasty if you had to burn yourself with soup but he informed me that they dress for dinner, lol. See what you have started me on now, Mrs Marlene!

Rest that wrist Marlene, another benefit, you wouldn't need to iron so many clothes.

Have a good day xxx
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Date: 11.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Rhona you have me giggling out load and my mum frowning. I won't be filling her in at 89yrs.
Well I will give Loch Lomond a miss as I can do without too much shock and horror!!!!!

I can just picture your daughter's distaste at Mum laughing. My boys at that age would have been mortified at me laughing. Mum's are not supposed to do that sort of thing. My daughter would have just walk off.
It reminds me when me my hubby brother and his wife went off to Cyprus and my brother was walking along and all the young ladies topless caught his attention. His wife said "oh just look at her figure" to me smiling my brother lent over the wall and with a face of horror said "That should be against to law. I don't want any lunch now". The said lady must of been all of 75+ absolutely stark naked. Not a pretty sight boobs hanging to her knees. Well my sister-in-law and myself couldn't walk for laughing. He learned a big lesson that day I am sure. That was at least 30yrs ago and his face just cringes when we mention it.
Rhona have a good day we have a bit of sunshine today puts me in a better frame of mind altogether.
I have just started my anti-biotics and steroids today my chest calmed down but is wheezing again so time to get it sorted before I go away. I have to say I don't feel unwell so that is a bonus.

I better go and do the hovering and prepare dinner. Homemade mince and onion pie proper comfort food.
xxxxxxxx
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Date: 11.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi girls,
I enjoyed reading the last couple of posts, they really cheered me up.
Good to have a laugh.
Emm x
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Date: 11.11.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening everyone, glad to see the conversation is not waning! lol
So Marlene, you've been hovering ! Or was that hoovering :) depends where you were hovering I suppose, was it legal? Any nudist areas near your house? Hmm
I chummed daughter to vets to discuss best fleas destroyer ! Hmm she didn't listen when mum told her the stuff she was using was not strong enough! That said her house has been cleaned from top to bottom! But still has to do it all again this weekend now she has magical spray from vets!
She may listen to mum next time :)
On a serious note, do any of you take or have taken omega 3 oils pills?
I don't eat fish but realise it is very good for me, just wondered if it would help to take the pills and if I was able to with the meds I take ?
Will pop by tomorrow xxxx
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Date: 11.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, I have just been prescribed fish oil but I can't tolerate it. I think you need a particular strength. I'll have a look at the ones I've got and let you know tomorrow.
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Date: 11.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, I used to take fish oil capsules and I think they did help. They have quite a few benefits. I had no problems taking them and don't think they would interact with any medication that you would take. The hospital was aware that I took them and said that some people found them beneficial. x
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Date: 12.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis next time I will just say giving the house a quick once over. I wouldn't like any one to imagine me nude LOL. Some one no names mentioned must have turned on the predictor on the lap top as it keeps coming back as hovering. Now I have to get my son to turn it off.
Willis I have been taking fish oil for years I don't know if it helps but it can't hurt either.
We have to oil old springs and hinges now and again so same principle I think!!

It is pouring down with rain and so grey it looks like it is still early hours of the morning.

Duvet day looming log burner hot chocolate or tomato soup and the tv or book.

My wrist is so painful but the red hot swelling has nearly gone so I guessed correct inflammation.

Willis they never listen to Mum we are too old haha. I think maybe we were just the same hmmmm
But of course you were correct!!!!

Have a good day everyone xxxxx

I wonder what has happened to Lynn I do hope she is ok. It is really sad when people drop off. If you are reading the post's Lynn (((hugs))
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Date: 14.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, very quiet on here I hope you are all ok.
The weather has been real miserable here.
Hospital today having a pacemaker check all good.
So off on holiday with no worries on that score. YES!!!!!

I have to say my joints are so much better for taking steroids but tomorrow is the last day so I guess it will be all back to normal soon. It has been really good the last few days and I have been getting on with everything I need to do before holiday next week.

Just settling down to watch tv if there is anything worth watching.

Take care all xxxx
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Date: 15.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have a lovely holiday Marlene, I hope the steroid effect lasts until you get back at least.
reply | back to forum

Date: 15.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thank you so much Emm and I hope you continue to improve. (((((hugs)))) xxxx
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Date: 15.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Marlene, have a fabulous holiday. I hope the steroid effect takes you through until you get back.

How is everyone else?
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Date: 15.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, It has turned very cold here tonight. I bet you are getting excited now, Marlene. Have you got all the packing done now? You are well due this holiday so have a fab time and enjoy every minute of it. xx
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Date: 15.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, no packing done but all clothes hanging waiting to go in suitcase.
I am looking forward to this break.
Just me and hubby doing nothing but chilling out.

Thanks for your kind words Rhona it means a lot!!!

I will miss our chats but will catch up when I get back.

Take care while I am away and be good lol.

xxxxxxx
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Date: 15.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Bsk, I hope you are ok.

I am hoping the steroids stay for a while but I am fully intending not to let any aches or pains spoil my holiday. Hopefully chilling out will be helpful to ward off the worst pains along with the warm weather. Not forgetting being waited on hand and foot. No cleaning no cooking washing ironing!!!!!!

Then back to reality and a suitcase full of washing LOL

Take care catch up soon xxxxx
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Date: 15.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Enjoy it! xx
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Date: 18.11.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening, Marlene have a great time
Hope everyone else is surviving the start of winter!
Shock to body this cold but large jumpers ad thick coats are out
Keep well all, big hugs xxxxx
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Date: 18.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks Willis I'm off soon!!!

Look after yourself xx
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Date: 18.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies, It has turned cold here too, Willis, but at least it's dry. I'm sitting here in my warm dressing gown tonight.

Marlene, I wanted to wish you well for your holiday, if I remember correctly then you will be away on Thursday, have a great time. We will all miss your posts but will look forward to hearing about it when you get back.

Take care everyone. xxx
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Date: 19.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thankyou Rhona, just having a chill pills all taken LOL. We are off tomorrow!!

I will post as soon as I get back take care sweetheart.

Take care all and be GOOD!!!!!!

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
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Date: 19.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Have a wonderful holiday, Marlene. Put your feet up and let someone else do all the work for a change!

xx
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Date: 19.11.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I will Bsk xx
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Date: 23.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies,

My big ugly brace comes off next Friday 28th.
Gosh its 8 weeks now, what a long haul it's been.

Am still 'hobbling around but my confidence is growing slowly.

Hope all are doing well.

Love Emm xxx
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Date: 23.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Emm, That is good news. I bet your leg with feel so light when it comes off, it will be a relief. I hope it isn't too long until it is all mended. Are you going to Switzerland for Christmas?

How are you bsk & Willis and all our other ladies? I hope you are doing alright.

been nice and bright here today but getting colder.

Take care xxx
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Date: 24.11.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, glad to hear your news Emm :)
It was dry but really frosty and cold here today Rhona and we know its only going to get worse :(
Went to London yesterday, the lights are lovely, it was pouring with rain but didn't put us off
Keep well girls xxxx
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Date: 24.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Excellent news Emm, I hope it goes well.

Cold here today. I had my last hydrotherapy session this morning. I'm going to miss it but have to find a pool where I can continue.
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Date: 28.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, It has been very quiet on here over the last few days. I am even wondering if some of you have decided to join Marlene in the Canaries for a wee break.

It's very damp here today but surprisingly mild for this time of year. I will need to go and get some shopping in this afternoon at Tesco. I had my eyes tested last week so will decide on what glasses to buy today. I need them for reading and the laptop. They have advised on a pair for each, I have always just used the same ones for both reading and the laptop, I do use different ones for driving. Just as well Tesco are offering two pairs for the price of one.

Have you all started your xmas shopping? or should I say finished it. I have been doing most of mine online. I don't know what I would do without the internet now, it does make life so much easier.

Have a good weekend and take care of yourselves xx
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Date: 28.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

PS It sounds as if I am advertising Tesco, but that wasn't the intention.
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Date: 28.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

It would take more than that to get me into Tesco at the moment, Rhona! Was it crazy in there this afternoon? It seems Black Friday has caught on here and I'm avoiding the shops like the plague.
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Date: 28.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi bsk, It wasn't too bad went I went this afternoon, although it was a bit busier than normal. Someone was telling my daughter that they were going mad and fighting at the Tesco at Silverburn this morning as they had TV's on offer, glad I wasn't there. My sister that lives in Canada said they were queuing outside shops there from 6am this morning and Canada is colder than here, must have been freezing, even if they had been giving it away free I don't think I would have queued, that's one of my pet hates. xx
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Date: 28.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Just read in the newspaper that the police had to be called to the above mentioned supermarket as people were fighting over the TV's. Madness!
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Date: 28.11.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening ladies, hope you are well. I was looking online at this Black Friday stuff but nothing caught my eye and I wouldn't buy just because they claim it is reduced! Te fights in the shops is madness. I've bought a few bits but I suppose it's now time to hurry up and get it done so I can just think about the food for the day. I'm off now till Thursday but have plans for mon, tues, wed, so Sunday will be rest day I think lol.
Still taking ibuprofen 400mg two/three times a day as wouldn't get anything done otherwise but I could be worse i suppose :)
Have a great weekend, hope the weather stays mild.
I'm sure Marlene is having a great time :)
Hugs xxx
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Date: 29.11.2014
From: Emm

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning ladies.

Yippee I have got the horrid full leg brace off!!!
All the skin is peeling off my leg!
I got it off yesterday and today I am doing things even easier. So I am delighted.

I feel like their is a wide piece of elastic in my knee, it's strange, but feels strong today.
It's been a long two months and my Christmas has been on hold.
I just ordered currency online last night as my grandchildren want money, so that's easy.
Happy shopping ladies. I will hopefully write in a bit more often now my ordeal is over.

Love Emm x
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Date: 29.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Great news, Emm. It must feel wonderful to be getting back to doing things.
reply | back to forum

Date: 29.11.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

That's good to hear, Emm. I hope it is an easy road now for you, you haven't had it easy this year. Let's hope next year will be a better one for us all. Take care.

Enjoy your time off Willis, make the most of those days off.

How are you doing, bsk? My hip is starting to get sore, I have had twinges before but it is more than a few twinges this time and making me limp a bit.

I do hope Marlene is having a lovely time.

Take care everyone. xxx
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Date: 29.11.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I've got a problem with one of my elbows. It's extremely painful but I had a depo jab on Wednesday so hoping that will kick in. I'm also having physio and I'm wondering if that has aggravated it. If it's not one joint, it's another and I'm sorry to hear about your hip. Must make walking difficult and painful. Are you due to see anything anytime soon?

take care everyone. xx
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Date: 02.12.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi ladies
Just popping in to say hi and that I hope you are all well. Bsk is your elbow any better?
Emm how are you getting on
Rhona hope your hip is behaving itself.
Big hugs xxx
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Date: 03.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis & friends. Thanks, Willis, it does seem a bit easier now but I think it's moved to my knee now. How is the work going, is it really hectic just now? I've been doing most of my shopping online, I just can't be bothered with it at all.

It has turned much colder here, that's winter arrived here now alright, I wonder if we will have a white Christmas.

How are you bsk? I hope your elbow isn't too sore.

Are you managing to get out and about now, Emm?

I can hear the sirens going mad outside, must be a road accident somewhere, I hate to hear them.

Can't believe that will be Marlene's holiday about over, I do hope she had a great time.

Have a good day, everyone. xxx
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Date: 03.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello everyone,

My elbow is somewhat better, thanks, but not brilliant. Hey ho.

Like you, Rhona, most of my shopping is being done online. I love internet shopping, so much easier on the joints. We've got a 10 limit on presents this year which is making it quite tricky to find stuff. Some people are getting interesting cheap things, others are just getting things.

How are you all? I hope the colder weather isn't affecting you too much.

take care xx
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Date: 05.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, well I am back home to the winter.

I had a very relaxed holiday treated myself to a few bits and have put on 5lbs so will have to shift that what with Christmas coming up. The weather was 22-26 just right for me we did have rain mostly at night. We got caught in one down pour at the market but was dry again in minutes. I have a little tan which makes me look very healthy so that is quiet good.
Back to reality going to pick my dog up and of course my mum.

I have read all your posts and I hope you are all ok. I will catch up soon.

Take care everyone xxxxx
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Date: 05.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Welcome back, Marlene. Pleased to hear that you had a relaxed holiday and don't worry about the extra weight, you can diet after Christmas. It has turned colder here over the last few days. My brother returned from his months holiday in Portugal the other day and is feeling it very cold. That's the only thing about being away at this time of year when you have to leave the heat.

I can't believe it's less than 3 weeks until Christmas. My daughter will be home in just over two weeks. I don't know where this year has went to.

I bet you will get a huge welcome from your dog and your Mum too, lol.

Have a good day everyone. xxx
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Date: 05.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, I am freezing today but have been in and out of it. Tesco's here I come. Then this evening log burner on.

Don't remind me about Christmas I have present buying to do now. My hubby still has 6 days holiday so we will be doing it in the next few days.

My dog went mad bless her she is just checking out her garden. My mum has enjoyed her stay with my daughter. My daughter is made up with her handbags we purchased for her so wagging tails all round LOL.

Rhona our holiday started off just awful a lady on the plane 2 minutes in to take off collapsed and died. She was 55yrs and travelling alone. She was sitting in front of my husband I have never felt so stressed. Bless her and her family that she was returning home to.

On a brighter note the holiday was just what I needed I feel really chilled out as they say.

Oh Rhona I bet you can't wait for your daughter to be home with you all. It will make Christmas even more special for you.

Well I had better go and get some food otherwise I will be in trouble haha. I am so not used to this food shopping and cooking anymore LMAO.

xxxxxxxxx
Our journey was so long but it was
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Date: 05.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh that must have been awful for you Marlene and poor woman. I bet you felt sick. This may sound an odd question to ask but what did they do with her when she died, they surely couldn't have left her in her seat and I can't think where they would put her. I must be morbid asking a thing like that.

Have a good weekend and stay warm. Oh I want a log fire. xx
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Date: 05.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Welcome back, Marlene! Glad you had a good time but am sorry about your experience going over. That must have been distressing.

I will chat more tomorrow as I'm just about to go out.
xx
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Date: 06.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, no I understand why you would ask. Because we had only just taken off the pilot had to climb to dump all the fuel and turn back and land again. If we had been further on I have no idea what would happen.

Log fire going on in about 10 mins it is freezing here the fish pond is covered in ice.

I am staying home all day have plenty to keep me busy.

Have a good week-end. xxxx
I just looked at my last post and see it isn't finished LOL.
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Date: 06.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I bet you needed a drink after that, Marlene. Not the sort of thing you expect to happen.

It is raining here this morning but it could be a lot worse. I heard that we could get snow tomorrow but hopefully not.

Soon be time to write out the Christmas cards but not a job I enjoy anymore. Perhaps I should have had them printed and saved the bother. I find holding a pen hurts a lot and I hate to see my writing now. I used to pride myself in my writing but not anymore.

I ordered some new curtains online, they came yesterday and I only ordered them Wednesday night. I am pleased with them and they look exactly as the photo.

Have a good weekend all. xxx
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Date: 06.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, I know exactly what you mean about card writing after about three I get pins and needles and my wrist starts hurting and my handwriting is not what it used to be.
So glad you are happy with your new curtains. Sometimes buying on line can be disappointing.

I have just ordered a lot of my presents on line. So I hope they all come in time. I can't be doing with all the shopping this year I found it so hard last year. When I go with my daughter for our pre Christmas girlie day out I won't have much too buy and we can have a long lunch.
I look forward to our days out she works so hard and long hours so it is nice to catch up and have a little giggle and spoil ourselves.

Oh dear Snoooowwww I will hibernate when that appears. I love to see everywhere covered in white but I don't venture out if I can help it the thought of falling!!! Take care Rhona if the snow does come.
I was pleased to read Emm is progressing well and hope she will get away to Switzerland. Fingers crossed for her.
Well the log burner has been on for hours but my feet are still cold ggggrrrrr winter is truly here.
xxxx
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Date: 07.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I've always sworn that tomatoes don't affect my joints but I had a few for lunch today, after not eating any for weeks, and my joints are quite painful this evening. As is my finger where a large splinter went into my nail bed earlier. I got it out but it's painful to type.

I've done a few Christmas cards but I always find it a bit of a chore.
Night everyone!
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Date: 08.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning Ladies, lovely sunny one here.

Bsk how weird that tomatoes should have you in pain. I guess there are many things that we eat cause us problems it is just knowing what!!
Your poor finger sounds very sore.

I am off out today with Mum to get her Christmas cards and prezzies then we are eating out. My O/H is coming to do driving and carrying.

I am off on Thursday to see my 4yr old Granddaughter playing Mary she is so excited they are having an extra performance for Grandparents. Grandad is working so Great grandma is going with me it will be fantastic. I am looking forward to it.

Take care all xx
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Date: 08.12.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, welcome back Marlene glad to hear you had a good time.
A sad day today for me :( I heard 7 different blue light vehicles go past house about 5 pm last night. Went out to staff Xmas party and when home at 1am, I find out the sirens were for a car collision and that our friends 18 year old son died! So spent half the night in tears until my body gave up and fell asleep and today I've not been much different!
Don't think the pain I feel today is a comparison to our friends grief.
Sorry to bring it down a bit :)
I hope you are all keeping warm, getting your shopping done and hoping it doesn't snow lol
Rhona may get it before us but I'm just guessing :)
Have a good day ladies xxxx
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Date: 08.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh that is so sad Willis. Your friend will be devastated. What a shame. There seems to be so many young people being killed on the roads, I think they should increase the driving age. Poor boy.

I think you're right about the snow, we haven't had it yet but some place like East Kilbride have and that's not too far away.

It is lovely to see the wee ones in their nativity plays Marlene. Have a good day shopping, you will be ready to sit and have lunch by the time you are finished.

Hope you ok now Bsk and the tomatoes have got out your system. I think oranges affect me more but I do like them.

How are you Emm? I hope you are well. xxx
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Date: 08.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Willis, I am so sorry, that must be so very upsetting. My condolences to you and your friend & family.
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Date: 08.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis how very sad especially at this time of the year. My heart goes out to you and his family.
(((((hugs))))).

Take care xxxx
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Date: 09.12.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening all,
Hope you are all doing ok with Christmas shopping,
Rhona won't be long till daughter home, happy days.
Did you and mum get all shopping the other day Marlene? Aw the nativity will be brill :)
How's the elbow doing bsk? Hope your finger has settled down a bit now.
How is your leg feeling Emm? Getting about better i hope x

Saw my friends today and as you'd expect they are still pretty shell shocked , stunned and cannot comprehend this tradegy.
I can only offer practicalities that as hurting as they are they have to eat as found out they'd had no food at all yesterday! Not good for them, they will have no energy to cope.
They are stronger people than they realise at the moment and will get through this but will never be the same again. Their whole lives will change.

On a positive note I had an interview today and was successful so going back into administration which, I hope, is sitting down more. Certainly wont be as bad on my bones as the lifting boxes etc as it is just now. Should be January start date but that will be confirmed.

Off to get hot water bottle and go bed. Sleep tight, keep warm.
Lots of hugs xxxx
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Date: 09.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Congratulations on the new post, Willis. That is very good news!

I imagine your friends will take a while to come to terms with what has happened.

I'm feeling a lot better now the steroids are fully working. I shall enjoy this short interlude before it all comes back!

xx
reply | back to forum

Date: 09.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aww well done Willis, that should make such a big difference to you. What a nice Christmas present to get. Pleased for you.

It will be very hard for your friends, Willis and I'm sure they must appreciate your support.

Pleased to hear that you are getting a bit relief, bsk. I hope it lasts for a while.

It is blowing a gale here tonight. It is quite scary listening to it. I just hope there is no damage done. My wee house might get blown away, it really is wild. Would hate to be out in it.

Hope Emm is alright, it's been a wee while since she checked in.

You ok, Marlene?

sleep well everyone. xxx
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Date: 10.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, Willis well done you like this will definitely help you. On your feet all day must take it's toll. I hope you enjoy your new job.
I hope your friends draw strength to get through this as you say they will ever be the same again. My heart goes out to them. It must be so so hard.
Willis we did a good shop Mum's all done and I am going out Monday with my Daughter to buy a few bits that I couldn't buy with Mum and hubby there. I will be lunching out again.

Bsk glad to hear you are feeling better. Oh what joy those steroids are they help me so much and I only get a five day course. I hope you stay pain free for Christmas. What are you doing Bsk anything exciting this year?

Rhona I am okay apart from I went into the Log shed and some of the logs fell and hit me in the shin and it is bruised and cut. I did say a few bad words!! It is still very sore two days later.

I am off tomorrow to see the little one in her Nativity play tomorrow morning. I can't wait and she is so excited that her two Nan's are going.
I have bought her a little Frozen T-Shirt for her to say well done. How ever it goes. LOL.
Take care everyone xxxxx
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Date: 11.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I have just come home after the Nativity oh they all were so lovely brought back memories of mine when the were young. I always took the time off of work to see them in their plays.
I could see my granddaughter looking for us and when she did her whole face had the biggest beaming smile ever. She was a gorgeous little Mary even if I do say so myself.
The staff must of worked so hard for this production of 4/5 year olds.

Hope you are all ok. xxxx
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Date: 11.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Aww, bet you were so proud of her, Marlene. Did you manage to get some photos taken?

We had all kinds of weather yesterday, high winds, hailstones, thunder and lightening, thankfully no damage done here, although what a mess it has made of my windows, they are filthy now.

Have a good day. xxx
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Date: 11.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Rhona, I got a few pictures of her and her class.

I thought about you yesterday when I saw the weather forecast. As long as you are safe and no damage. Don't worry about the windows I am sure rain will sort them out at some stage.
I love a good storm but not when they are causing havoc everywhere.
They were showing our weather this morning saying sunny with a few scattered showers. I said to my Mum what planet is she on? its dark total cloud block and pouring down with rain. I can't believe they got it so wrong it is so cold again.

Right I need to go and make a dinner for the o/h arriving home from work.
xxxxxx
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Date: 11.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Pleased to report all Christmas cards written and waiting to be posted tomorrow. Another job ticked off the list I am glad to say.

Night everyone sleep well. xx
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Date: 12.12.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear everyone seems so organised for Christmas, I haven't bought a Christmas card yet!
Oh I'm so tired today could just crawl back to bed lol
Hope you are managing to keep warm and are feeling ok today x
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Date: 12.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis, you will get there last year was a nightmare I did all my shopping Christmas week.
I made it easy by giving most of them gift cards for their favourite shops.
You will be organised Christmas day just the same because that's what we ladies do.
What are you doing Christmas. We are staying home and hopefully chilling out.
Oh bless you I bet you are tired lets hope the new job will suit you better.

My Log burner has been on every day and keeps the whole house cosy.

Take care xxx
reply | back to forum

Date: 13.12.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Evening all,
Well I'm well jealous of your log burner as we have one but spent a lot of time this year trying to find someom to service it, re line it, and sweep chimney, no success so far so house is freezing lol. Maybe in January we will get lucky and find someone who can do it and I can trust .
I hope you are all feeling well and that is horrid cold isn't having too much impact on you.
Off to bed now so sleep tight you all .xxxx
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Date: 13.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Willis the rain and cold has done it's worst my hands are swollen my joints are sore and my back feels like it is breaking but apart from that I am fine. LOL. It is what it is and I am muddling through the best I can a bit too slow but hey ho.
I am sure in January when things are quite and everyone has spent their money some one will jump at the chance of some work. Fingers crossed for a up and running log burner!!
I am off to bed soon sleep tight everyone xx
reply | back to forum

Date: 15.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi all, you are all very quiet are you all ok?????

I have had a good day xmas prezzie shopping all done. I have bought lots of bags and boxes to avoid too much wrapping. I hope you are all nearly done.

I have to say I am paying the price so doing a bit of sofa surfing. I have Drs tomorrow to ask about PA test so watch this space. I really can't be bothered with a It fight about it right now.
I had a letter to say they found a bit of a heart race going on a couple of times on my pacemaker check. I don't understand it so that's why a visit to the GP. They did say nothing needs to be done but I want an explanation of what this means for the future if anything.

Take care and have a good evening xxxx
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Date: 15.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Marlene, I hope all goes well at the doctors for you tomorrow. Sometimes they just worry us with half telling us things. Why tell you if nothing needs done, I often wonder who composes these letters. Hopefully the doctor will explain it all tomorrow and everything will be fine

I think I have all the presents in now and most of then wrapped. I'm not looking forward to the food shop next week but it has to be done.

Hope everyone is well, we haven't heard much from you, bsk, is everything alright?

Take care and keep warm. xx
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Date: 16.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Morning everyone,

I've just got a cold, Rhona, hence my being quiet on here. Been feeling a bit rough and trying to prevent it going to my chest, as it is wont to do.

Hope things go well for you today, Marlene.

Hello to everyone else.
xx
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Date: 16.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hi Ladies, well just to be on the safe side after Christmas I am going to wear a heart monitor for 24hrs as my blood pressure was slightly raised. It could be raised due to pain. I am feeling better about the whole thing my GP was a little cross with them sending me a letter without explaining things to me.
I have to say good news is I have had bloods done for RA and PA as they had a free appointment at the Drs this morning. Depending on the blood results another appointment with a Rhuemy Consultant.
The Gp I saw today is not my allocated Dr but if I can see him I will he is just lovely and listens to everything I say.

He was asking me about looking after my Mum how stressful is it and to be honest it is a little after the New Year I am taking her for a test for Dementia/Alz her short term memory is becoming a problem bless her it just could be she 89yrs old and this is normal.(please let it be)
I did speak to the Gp and he says there is help for it if caught early. I have talked about it with Mum as I would never do anything behind her back because I would never disrespect her. She is happy with it all.

Sorry about the long miserable post I know you will all understand that I just need to share.

BSK I hope that cold disappears before Christmas. I like you always worry about my chest when I get a cold. Bsk do you have Antibiotics at home for emergencies i.e week ends bank holidays. My asthma nurse arranged it for me so I can begin the course if my chest becomes bad and then visit the Gp for a check. They put it on a repeat prescription then you can always have it ready. Apparently this is common practice not that I had ever heard of it before last month. So we learn new things every day LOL.

Rhona I have the wrapping to do. I have to food shop and am hoping I can do it before the rush. I am not waiting until Christmas Eve that's for sure.

Hi Willis hope you are well.

EMM are you ok???????

Take care xxx
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Date: 16.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Thanks, Marlene, yes I do but this was organised by my chest consultant, not the GP. Glad to hear yours seems to be up to date on things. Just bear in mind that sometimes the arthritis tests come back negative, mine did, though you might well have raised ESR and CRP, which is what alerted them to my disease.

Try not to overly worry about your Mum's memory. My Dad is a similar age and is somewhat forgetful but the attitude I take is that, as long as he doesn't forget anything vital (like turning the cooker off or how to drive), it's not a terrible problem. Frustrating, yes, but not life threatening. And, as your doctor says, there are drugs to help slow the process down. I'm sure it is stressful for you, Dad would drive me nuts, but I also know you get a lot of pleasure from being with her. So don't forget that!

xx
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Date: 16.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh that's good Bsk!! Thanks for the info it is great that I am learning from all of you what to expect from test results.

I am not too concerned about Mum it is just that others have commented and I just want to do the best for her.
She is out for Lunch today with my eldest and youngest brothers. Thursday Christmas dinner with her Club so she keeps busy. She is very mobile for her age and keeps in good health. (touch wood). Bless them we just love them don't we.

Take care Bsk and thanks for your kind words xxx
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Date: 16.12.2014
From: bsk

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh good, to all that, Marlene.
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Date: 17.12.2014
From: Willis

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Hello x
Glad to hear you got doctor that listens Marlene, defo helps. I hope your hands etc feel a bit better today.
Sorry you got cold bsk, I hope it stays out of chest so you can relax over festive season x
Rhona keep inside in warm I can imagine the feeling of the Scottish weather, especially when sis is sending pics of the snow in Peebles at the weekend!
Well I was in London yesterday to see The Jersey Boys, it was fabulous, their singing was just brilliant. Went to winter wonderland afterwards. It was lovely but did more walking than I wanted to so a bit peeved at one of my friends as she was being very selfish. By end of night I was 100 yards behind them limping so I guess you find out who your real friends are! I know she thinks everything is about her but to experience it like that I decided last night I don't need a friend like that. Shame but there you go. Today I'm about dropping with exhaustion , had a nice hot bath n now just chilling. I know though, that I will not make it into work tomorrow so will have to phone and annoy them tonight with that news!
My right eye is starting to swell up. Arghhh
Sorry for the moan , it was a great show but the way friend behaved was bit of a shock to be honest.
Anyway, on and up. Presents wrapped. Only food to buy so happy with that for progress.
Have a good day
Xxxxx
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Date: 17.12.2014
From: marlene

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

Oh dear Willis sometimes when people show their real colours it is a bit of a shock. It will be her loss not yours.
If you are not well enough to work what can you do? You have to look after yourself first.
So glad you enjoyed the Jersey Boys as I have bought tickets for our local theatre for my Hubby as part of his Christmas present.

I have all my presents to wrap and really must make a start tonight.

Take care and rest up and take time out for you!!!

xxxxxx
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Date: 17.12.2014
From: rhona

Subject: Re: New thread for, Bsk, Marlene, Emm, Willis & Lynn

I hope you are feeling a bit better bsk and managing to keep that cold out of your chest. A wee hot toddy at bedtime might help.

That's good that they are keeping an eye on you, Marlene and it will be reassuring to have the monitor on. It's always better to keep a check on it.

It annoys me too, Willis when people know you have a problem and march on...very ignorant. Your health comes before the job so rest up and get yourself better for Christmas. Funny you saying about your eye, I have a red blotch inside my bottom eyelid with a white spot in the middle of it, like a pimple inside the eye.

I can't really get myself into the Christmas spirit at all this year, I'm not really looking forward to it this year at all, just feel a bit down with everything. I'm wishing I would just have cancelled Christmas and went away somewhere.

We are almost at our 1,000 post ladies!

How are you Emm? let us know you are alright please.