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Date: 18.06.2012
From: Laura

Subject: So unfair

Hi all I have had a really shit day I went to physio today for a review I have eczema on my knee cap which makes it difficult to walk for weeks I have been walking on my toes practically rheumy said I would damage my feet physio said I would damage the tendons in my feet he said what do I think of a walking stick I said what are the benefits I work as a career so it's important I'm fit for work I said of it helps I will try it . I'm 23 years old it feels so unfair anyway I told my manager what happened they put strategies in place weeks ago to support me with my fibro they are very supportive my manager had a chat with me and said she was concerned about safety for service users and me I said what is the next stage now she said she didn't know I said is my job safe she said she wasn't sure what if I have ruined my career my mum hates me for it says I'm just doing it on purpose she is fed up with me and that I'm trying to act the victim. What if I have lost my job my mum now hates me and I'm 23 years old with a walking stick I'm so useless
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Date: 18.06.2012
From: Lynnr

Subject: Re: So unfair

Aw Laura how awfull for you please dont think that way I'm sure your mum doesn't hate you and I'm sure you won't have lost your job they can't legally sack you because of a disability I'm like you I have 2 walking stick had them for 2 years since I was 33 not nice and you are even younger but they help me so now I learn to forget what other people say and you need to do the same unless people have fibro or arthritis then they do not know how painful and depressing it can be, explain to your mum how your feeling and I hope things improve for you soon

Take care x
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Date: 19.06.2012
From: laura

Subject: Re: So unfair

hi thank you for your reply mum is great we are so simular the way we react hence why we argue. i went to work today my manager told me that i have to have an appointment with occupational health and i cant be at work til i do although i will get paid. i feel abit scared as i dont know which way situation will go.
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Date: 19.06.2012
From: Yasmin

Subject: Re: So unfair

Laura, try and keep your stress levels down as much as possible, it may help to ease your eczema flare up...Your manager seems to have taken the right course, seeing the occupational therapist will give put your mind at rest...they are there to help, they may be able to signpost you to a treatment or someone who can help...Like Lynn said, talk to your mum tell her how you're feeling...sometimes we want other people to just know and feel what we're feeling I'm afraid it just doesn't work that way in life, communication is vital with our friends and family...You really need your mums support at this moment, life is hard without a good support network...Wish you all the best:)!

P.s Laura, how long have you had Eczema? Have you tried Homeopathic meds for your Eczema, they take time but they work better than the conventional medications...Steroids can be very bad long term...Two of my neices had very severe Eczema both are now almost completley cured...I understand fully when you talk about the debilitating painful stiffness in your knee due to the Eczema ...Out of curiousity Laura have you recieved a diagnosis for your fibro?
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Date: 21.06.2012
From: willis

Subject: Re: So unfair

Hi Laura
agree with lyn and yasmin here, try not to stress too much and work are doing the right thing for you - could be worse they could just try to get you out without proper processes - involved with carers for years and know what the environment can be like. have you looked at fibro pages for other sufferers? may help also. Colleague has 23 yr old daughter who has had Fibro for 6 years and everyday is different, glad you are at least on here talking to us. My step son 34- was ill for years before diagnosed with it and he has gone through hell - doesn't work anymore - your mum perhaps doesn't really understand what you are going through as it is difficult to watch someone with your condition - maybe get some leaflets and put them where she can see them so she can get in the know about your condition. My Arthritis is a nightmare some days and my meds are recently changed and driving me mad but Fibro - different kettle of fish and I really feel for you darling. Keep as calm asyou can and come on here and shout and scream and cry just as often as you have to - we're all listening even if we cant do anything but send you lots of love xxxx
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Date: 21.06.2012
From: laura

Subject: Re: So unfair

hi thank you all for your replys it really is helping right now my mum bless her is great she actually has fibro to but not chronic like me which im glad about cos she has rheumatoid arthritis and she has had a hard time with it she worrys about me. fibro is a right pain in the arse and i think what scares me the most is whether i will have to use a stick permanantly in the care industry would i still be able to work as a carer with a stick? my company are fantastic they really want to help they put stragies in place to help but now occupational health are needed my poor manager was avoiding me most of my shift and i knew something was wrong and she said to me that she was trying to avoid me cos she knew it would make me anxous and cos she knew i would be worried they really are a nice bunch so may not be as bleak as i think :)
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Date: 25.06.2012
From: Yasmin

Subject: Re: So unfair

Glad things are looking brighter for you Laura, I have also been told I have Fibro but not really diagnosed with it as there is no way of diagnosing it a 100%...I almost became an invalid at one point but I didn't want to give up and fought tooth and nail to get my life back...it can be done Laura...Depression and stress are the main triggers, if you can find a way to lessen stress in your life, do simple yoga streches to open up your blocked energy levels in your body...its a start to win back your life...It has taken me 5 years to get to the point were I am today, empowering my mind and body to go back into balance...As hard as it is it all starts with US my darling...there is no easy way to sort our health out but through the eye of the storm...I have proved the doctors wrong who said, Anti depressants and pain mangement were the only 2 options for having any kind of life for me...Face your problems head on, rest when you need to, fear is just an uncomfortable feeling, listen to your body always...your inner voice will always guide you to what your body needs...change your lifestyle if it needs a little tweeking, tweek:) you will thank yourself a couple of years down the line...We all have in within us to help ourselves as much as we can...Try swimming or water aerobics if you can...body massage, reflexology, accupunture, meditation, breathing exercises these have all helped me to get back to the person I once was, to be able to get on with life and be be there for others also and not be house bound and in constant pain...have faith things will work out, they always do...The choice is always ours what path do we want to take and do we want to keep on suffering when we have the power and choice to do something about it? All the best...x
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Date: 26.06.2012
From: laura

Subject: Re: So unfair

hi thank you all for messages i feel alot better im seeing my doctor hopefully this afternoon to get his back up when i go to occupational health. i feel very sorry for occupational health cos alot of people think they take jobs away but they actually help people keep jobs i dont think they will stop me working i think they will adjust things for me mum and i have talked aswell and we agree we both worry to much
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Date: 26.06.2012
From: Marlene

Subject: Re: So unfair

Hi Laura, so glad you and your mum have had a chat. Laura you should always remind yourself no matter what your mum will always be your best friend. I for one didn't always appreciate this until I had children myself. Oh bless you both try to talk more and maybe your worries will fade a bit. Take Care and I wish you and mum well.
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