Date: 02.03.2012
From: sue
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Subject: RA pain medication
Hi everyone,told i have RA 6 years ago but still not sure myself,i have not wanted to know too much up untill now as i think i would be looking out all the time for side effects.I am taking mtx 20mg +folic acid 6 days +plaquenil400mg daily.Iam having problems with pain control always taken co codamol +diclofenac which has been replaced with iberufin and tramadol which are not working.I do not want to stop working, never know day to day where pain is going to be the worse time is during night and if i sit down longer than 5 mins.Had steroid inj 5 weeks ago but hasnt helped this time got hosp app next week but all the different meds mentioned by you all have never been mentioned there,and i worry i take far too many painkillers as i take day and night,that is why doc changed my co codamol.sorry for going on a bit i am sick of having the pain nonestop and i need sleep as consentration at work is not good thank you all for letting me get things off my chest and wish you all well.
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Date: 02.03.2012
From: Colin
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Subject: Re: RA pain medication
Sue never found any pain control worked myself , tramadol just makes me feel ill & every NSAIDs cant take because they give me asthma & take CoCodamol mainly when got headaches & not for RA realy think you should push to got on a anti-tnf drug like enbrel , they can make huge differance to controling RA , other thing is to much pain killers & they lose there effect
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Date: 04.03.2012
From: Mrs J
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Subject: Re: RA pain medication
Hi Sue, I would agree with Colin, you really need to push to have your meds changed. Im on 25mg methotrexate sub-cut injection and folic acid. I occasionally take co-codamol, but it only makes me sleepy, doesn't really touch the pain, its kind of a desperation drug i think! Also i occasionally take prednisolone, which is an oral steroid. I found that these worked much better than the steroid injection. I never take NSAIDS as they don't do a thing for me except hurt my stomach. Im hopefully about to be changed onto Anti TNF's and how you've described how you feel is pretty much how I've been the last year. Also i don't know whether this may help you but Ive just completed a 2 month daily diary showing every single pain, joint stiffness, limited movement, time of day and medication etc to show my rheumatologist exactly how bad i am, as typically when i go for my appointment I'm usually having the best day of the year! Hope you manage to get something better sorted out, good luck.
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Date: 04.03.2012
From: sue
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Subject: Re: RA pain medication
thanks colin and mrs J i will hopefully get something sorted with rhmy doc on thursday. when i see rhmy nurse she says if i am in pain it is gp job to sort it, gp says see rhmy doc as i should not need all the pain killers if they were giving me right treatment.i did diary couple of years ago but got fed up doing it but did notice the RA is far worse in winter especially damp weather.i think the pains are getting worse with age im 53 but feel 83 thanks for listening sue
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