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Date: 23.12.2011
From: davina

Subject: ahhrr hospitals

hi all hope the pain in this weather isn't to much
Just thought i'll message and say hi as i've not been on for a while.

my rheumy team has p*ssed me off as i should have started cimizia by now and had a new form to starting an infusion which i didn't want and explained this to the rheumy, at the time he agreed now i have this form that i have to complete to start the infusions. aghh

the problem was that i wanted to try for a baby which my rheumy didn't want me too due to uncontrolled ra but now i wish i just come off all my meds to try.

so now not sure what to do, contact team to sort out the cimiza or not?
sorry for the rant

hope all have a lovely Christmas and a wonderful new year. xxx davina
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Date: 23.12.2011
From: bsk

Subject: Re: ahhrr hospitals

Sorry to hear you are being messed about Davina.
Have you had the infusion yet? Can you wait a few months to try for a baby to get arthritis under control?

I would contact team and make them have a proper discussion with you. I've been ages to start Enbrel and my arthritis is bad. Don't want to start it but do as well, if you know what I mean? lol! It's hard to make these decisions but all you can do is be as well informed as you can.
Wish you luck with it all and Happy Christmas!
xx
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Date: 23.12.2011
From: marlene

Subject: Re: ahhrr hospitals

Hi Davina, only you can make this choice why don't you have a good christmas with your family , celebrate the New Year. Then have a good talk with your partner and make a decision.
Life can seem a bit tough at times and it is but there is much more good if you look hard. It will come good for you I am sure. Take Care wishing all the luck in the world X
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Date: 24.12.2011
From: Colin

Subject: Re: ahhrr hospitals

hi Davina
hope you feel better soon , do bit of research into the drugs , on Wiki they imply you can still take it when pregnent but not sure this is correct

http://en.wikipedia.org/wiki/Certolizumab_pegol
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Date: 25.12.2011
From: davina

Subject: Re: ahhrr hospitals

thanks everyone.
bsk no i am not doing the infusions cause its so new i don't want to be a Ginny pig as not a lot of women have had children after this drug also i have been waiting for a baby for about a year so another 6 months will be ok but it will take ages for the hospital to sort this ix up out and give me the right drug. i really hope enbral helps you and stops some of the infections you have had. xx

marlene thanks i will do so just a little angry the doctor and nurses can mess up a simple task of checking the drugs i should be going on to.

colin thanks for the website add i have done so and choose cimiza but the nurses mess up so just got to wait for then to sort it out.
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Date: 27.12.2011
From: marlene

Subject: Re: ahhrr hospitals

Davina I hope this is all sorted soon and all comes good for you. Hang in there!!!! sendiing a big hug x
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Date: 28.12.2011
From: bsk

Subject: Re: ahhrr hospitals

hi Davina, I hope you get what you need soon AND have your baby :) If it's any help, Cimzia worked really quickly for me, though, as you know, I had to come off it. hope you get it soon.
xx
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Date: 28.12.2011
From: davina

Subject: Re: ahhrr hospitals

hi bsk marlene i spoke to my rheumy nurse this morning and agreed to try cimciza for 6 months which i will do so. lets hope it helps for a while then i can go back on it after a baby, i really need to see if this helps so i know i can use something that will work after birth and looking after a baby. we will see. xx
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Date: 28.12.2011
From: marlene

Subject: Re: ahhrr hospitals

Well done for making your decision. Hope it all works out!!!! Big Hugs X
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Date: 28.12.2011
From: chrissy

Subject: Re: ahhrr hospitals

Hi divina my heart gos out to you,ive had R,A, for 6yrs, had my children, im a nana to 5 grandchildren, i think myself very lucky when i read your post,i am 52, im on a infusion once a month it called retuximab,ive had 6 infusions up to now and doing ok, i was on embrel for year and half, but it stopped working,if its any comfort to you a young girl i know with R,A,got pregnant and the R,A,actually left her, and she had a healthy little girl,and her consulant advised her not to have a baby,and their both doing fine,i wish you all the best.
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Date: 28.12.2011
From: davina

Subject: Re: ahhrr hospitals

hi chrissy thanks very much for your info, i have heard the ra can go into remision durring pregnacy and beyond for a while but its still a very hard decision. i so want another baby and i've worked out that if i go on to the cimiza for 6 months then off for 3 and then hopefully concive my son will be 4 when a new baby comes and in full time school so that may help if ra isn't under control.
thanks marlene x
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Date: 28.12.2011
From: bsk

Subject: Re: ahhrr hospitals

That's good news Davina.Good luck! xx
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