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Date: 15.12.2011
From: laura

Subject: bit of help please

hi hope u all dont mind me posting i am new here :)

well i am 21 years old. i have been suffering with my joints since i was about 14 or 15. i finally plucked up the courage to go to the doctors a few weeks ago (been putting it off and ignoring it and hoping it would go away) well they sent me for blood tests for quite a few different things, my vitamin d is low and some others came back abnormal to do with inflamation so the doctor called me in "asap" for an appointment i was put on steroids for 5 days they are called prednisone 5mg i was told to take 6 of them a day. the doctor said if the prednisone work then it means ive got some sort of artheritis, is this right??[/color] well they worked wonders was like a miracle drug i was less stiff could walk alot faster slept alot better hardly any pain at all had no problems with day to day activities that were hard to do before. since i came off them the pain and stiffness and clicking and locking ect is coming back. i have my first reumatology appointment tomorow and i am wondering what to expect? what will they do during my appointment?
thanks :) laura x
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Date: 15.12.2011
From: bsk

Subject: Re: bit of help please

Hi Laura, well done for getting yourself to the doctor.Tomorrow they will probably examine you, do some blood tests and maybe some xrays. They might want you to take more drugs depending on how you are.

There are lots of types of arthritis so sometimes it is not always quick to diagnose which one, but it may be obvious to them of course.

Let us know how you get on.
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Date: 15.12.2011
From: laura

Subject: Re: bit of help please

my friend has been through all this and she told me how they do theyre physical examination ive just tried to do a bit of one on myself, as i moved my joints i put my hands on them and all i could feel was alot of clicking :( and stiffness and acheyness and some pain. and i get alot of locking too :( i just want to know whats wrong with me but i know it will probably take time to find out exactly what it is. thanks for ur reply x
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Date: 15.12.2011
From: marlene

Subject: Re: bit of help please

Hope all goes well at your rhumy appointment and you get some answers. Take Care let us know how you get on.
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Date: 15.12.2011
From: Colin

Subject: Re: bit of help please

hope things go well tomorrow , most arthritis can be controled very good now so dont worry to much , & hope they sort out whats wrong soon
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Date: 17.12.2011
From: Laura

Subject: Re: bit of help please

Thank you for your replies.

I went for my appointment yesterday, she asked loads of questions and examined me. Then told me I have got Joint Hypermobility Syndrome and "Ligaments like elastic bands" they are all floppy. Ive got to go for more blood tests and an ultrasound and xrays of all my joints to see if ive got any arthritis.

xx
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Date: 17.12.2011
From: davina

Subject: Re: bit of help please

hi laura at least they are doing the tests required, pred was great for me in high doses as i reduced i had pain and stiffness ect... again.
i have been on a 5-2.5 mg dose for about 3 months and just can't go less than that otherwise i would not function. even that dose is to low sometimes anyway hope they can get a correct diagnosis and get you on meds you need. i am 31 on 2nd jan and have ra for 2 years after i had my son so i know how hard it is to be young with a horrible disease.

hope your well as pos take care
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Date: 17.12.2011
From: marlene

Subject: Re: bit of help please

Hi Laura, glad to hear you are getting sorted. Keep your chin up.Fingers crossed no arthritis. Take Care.
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Date: 24.12.2011
From: Sidney

Subject: Re: bit of help please

Hi Laura sorry to hear that you hv hypermobility syndrome... but, I hope too that you hv no arthritis
do you feel pain if you try to bend your little finger backwards ? Can you bend it ?
how is your elbow doing ? do you feel pain there too?
hope you sleep well every night... Merry Christmas
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