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Date: 02.11.2011
From: kirst

Subject: fed up..(want to swear loudly!)

Had an appointment with the rummy last week. This is a new rummy who has taken over from my recently retired rummy.
In many ways it was a positive appointment but at the same time its made me feel like a fraud.

The new rummy started off by saying he wanted to reasess my diagnosis of RA! he wants to go back to the beginning and rediagnose me from scratch.

I had a steroid injection 4 weeks ago and 1 week ago had bloods done and they are showing up as normal so he is going off that! There was no swelling in my hands on the day of the appointment even running the scanner over them showd nothing.
Im gutted! feel like ive been taking MTX and other meds for nothing.
He agrees i have Fibro and is sending me for an MRI of my spine to rule out AS so that was the only good thing about the appointment.
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Date: 02.11.2011
From: bsk

Subject: Re: fed up..(want to swear loudly!)

You didn't give yourself a diagnosis of RA so you shouldn't feel a fraud!

Any rheumatologist worth his salt knows that steroids mask the blood results. Also, if you are on Mtx you would be expecting them to go down to normal.

Have the MRI and see what happens. You can always ask for a second opinion if you don't agree with what he says.
xx
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Date: 02.11.2011
From: kirst

Subject: Re: fed up..(want to swear loudly!)

i will be asking for a second opinion ether way. Im just so anoyed that the RA diagnosis is even being questioned after a whole 2 years!... really messed with my head and has me wondering what else it could possibly be.

The nurses are gobsmacked as they have watched my blood results and seen the state of my hands fluctuate over that time. the nurse even gave me the name of the rummy she would get a second opinion off if she were in my shoes lol.
x
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Date: 02.11.2011
From: bsk

Subject: Re: fed up..(want to swear loudly!)

Well, thank goodness you have the support of the nurses! It's a terribly destructive comment to make. What a prat!
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Date: 03.11.2011
From: kim

Subject: Re: fed up..(want to swear loudly!)

I have had so many variations of diagnosis for my r a. Like you I have often gone to appointments with my consultant with very little swelling yet previous to that I have been stuck in bed for 3 days in agony. They wouldnt have diagnosed you incorrectly in the first place with ra, see your gp and ask for a second opinion.At the end of the day you know your body the best and the doctors opinion is just that. Good luck and hope you get sorted soon
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Date: 04.11.2011
From: bsk

Subject: Re: fed up..(want to swear loudly!)

Sound advice Kim!
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