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Date: 29.05.2011
From: Gillian

Subject: Back on steroids

I have been having a sore lower back for couple of weeks. On Friday I had awful headache so went to bed when I got home from work. Didnt get up till Saturday afternoon. My back felt so sore. Got up this morning and couldnt stand when I got out of bed. With help I shuffled to bathroom, could hardly lift my leg to get into the shower.
Eventually got downstairs but pain was not even touched with codeine and paracetamol and anti inflammatories. Decided to go to out of hours dr at local supermarket medical centre. Dr was really nice and explained that I needed to go back on steroids as my long lasting steroid injection had obviously run out. She told me to take 40mg a day till I see Consultant on Thursday. Back home and its been four hours since I had them. Hope they kick in soon. I was in tears this morning. I know its early days since diagnosis and only been on Plaquenil for 6 weeks I just wish it would kick in soon. Gillian
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Date: 29.05.2011
From: mads

Subject: Re: Back on steroids

oh Gillian i know what you feel like - i hope you get some relief soon. you poor thing..Is plaquenil similar to metx where it can take some time to kick in. its good that the doctor treated you so quickly.
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Date: 29.05.2011
From: Gillian

Subject: Re: Back on steroids

Thank you for your kind words. Yes apparently Plaquenil will take between 3 and 6 months to have any noticable effect. I felt so good when I had that slow release steroid injection 8 weeks ago but alas its now worn off. My GP did say they only like to give 2 injections a year because of serious side effects. The lady doctor I saw today at Asda said I may need a daily low dose for a while to help me. She said take 40mg a day for now and see what Consultant says. She said he may say reduce the dose over a period of a few weeks then stay on low dose for a little longer till the Plaquinel kicks in. I am not at work till Wednesday so its a nice short week. Going to rest up for the next couple of days. Gillian x
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Date: 29.05.2011
From: Patricia

Subject: Re: Back on steroids

Hope you feel a little better soon Gillian. The pain is terrible isn't it.

I am on Quinoric which is the same as Plaquenil. Have been on it for about three months and still need Steroids (10mg), although I had been on 30mg for months and months, Celebrex and Morphine. Still get pain even taking all that!

I agree that you will probably need the steroids until the Plaquenil kicks in and some good pain relief. Think it gives us a bit of a shock when the pain returns with a vengeance. Seems like two steps forward and one step back all the time!!

Hopefully, you will have a better few days once the steroids start working again. It will help that you are off for a few days and can have a bit of a rest.

Be kind to yourself....x
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