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Date: 10.05.2011
From: Jayne Needham

Subject: Arthritis Support Wiki

Please visit my arthritis support wiki. I created it as part of my e-Communications FdA course. We were asked to create a website for a small business and promote it using search engine optimisation techniques.
I suffer from psoriatic arthritis and fibromyalgia and am housebound so I have no links with any of this sort of thing. My link with the outside world comes via the World Wide Web. I spoke to my tutor who suggested that I create a wiki about arthritis.
In my wiki, named arthritis support, I have kicked off by looking at 10 conditions associated with arthritis. They are:
Ankylosing Spondylitis
Carpal Tunnel Syndrome
Cervical Spondylosis
Fibromyalgia
Gout
Juvenile Idiopathic Arthritis
Lupus
Osteoarthritis
Psoriatic Arthritis
Rheumatoid Arthritis
Each page talks about the conditions and looks at:
What is .....?
This looks at the condition and how and why you may have got it. It looks at statistics about the condition and offers some general information.
Who gets ....?
Discusses the type of people who are most likely to get the condition. In Ankylosing Spondylitis for example, the condition affects mainly men and can present itself from as young as 15 years of age.
What are the symptoms of .....?
Looks at how you may be affected by the condition.
How ..... is diagnosed
Tells you what you can expect from your visit to see the doctor. As well as other things it explains what all of the blood tests are and what they are for.
Complications of ......
If your condition has any chance of presenting complications, this area will tell you what you may expect in the future. There are also links to give more information about them.
Medication for .....
Discusses medication that may be prescribed. There are also links to a medication and natural remedies page that tells the reader about the medication, what it does and provides an external link to a page with detailed information about the medication. There is also the opportunity to review your own medication.
Natural therapies for .....
Other treatments for .....
Looks at natural remedies and complementary therapies that may help your condition. There are banner links to sites that sell these goods so that you donât have to trawl the net to find them. An example is Yoga which is recommended for many conditions. There is an accompanying link that takes you directly to a site that specialises in yoga books, DVDâs and equipment. The medication and natural remedies review page asks the reader to review anything that they have tried to ask if they recommend it or not.
Diet for .......
If any conditions benefit from a specific diet, it will be detailed in this section of the page. There may be links with further information.
Forums
Providing links to specialist forums and arthritis forums.
Links
Anything that is mentioned that may be of interest has links to external sites that give more information. An example is that Lupus sufferers are more at risk from pre-eclampsia when pregnant. The link sends the reader to a reliable site that explains pre-eclampsia.
There are links on the wiki to a glossary of terms page. So if youâre not sure what osteoporosis is, just click on it and it will send you to the glossary of terms page to look it up.
There is also a help and support group page where there will be links to organisations that will help the reader such as Arthritis Care, Arthritis Research, Ricability and The Papworth trust. I say will because this is currently work in progress as I am awaiting responses from organisations for banner links to their sites.
Please visit the wiki at arthritis-support.wikispaces.com and let me know what you think of it in the visitors page.
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Date: 13.05.2011
From: cookie

Subject: Re: Arthritis Support Wiki

Looks great jayne lots of useful info on there well done x
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Date: 13.05.2011
From: JayneN

Subject: Re: Arthritis Support Wiki

Cookie
Thankyou! it means a lot to me that it has been viewed by anyone other than me.
I hope it had some useful info for you.
I was amazed when I did the fibro page at just how much of it related to me. It might sound strange but it was good to know that I wan't just going crazy. I think my husband felt the same way but he says he is still not convinced.
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Date: 13.05.2011
From: Patricia

Subject: Re: Arthritis Support Wiki

You have put a LOT of hard work into that site Jayne. Well done :-)...x
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Date: 14.05.2011
From: JayneN

Subject: Re: Arthritis Support Wiki

Hi Patricia
Thank you so much. I hope to expand it and add a page with tips on how to make life easier for all of us who are'nt very strong or mobile or bendy. But for that I need people to participate and to add whatever handy tips they have. I also want to include more conditions. There are so many different types of arthritis and bone and joint conditions such as osteoporosis - that is a huge problem and I am sure there is loads of information that can be added to help people who are suffering or like me on large dose steroids that makes me susceptible to osteoporosis. There is so much more I want to do with the site and if people are using it then its worth the effort.
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Date: 14.05.2011
From: Patricia

Subject: Re: Arthritis Support Wiki

Hi again! Like you Jayne I have also been on high dose steroids for quite some time (although am only on 10mg at the moment) and have osteopenia because of it. If only I had been guided by the professionals at the time of starting steroids, to take calcium/vitamin d supplements, this may well not have happened. I was just too ill at the time to research it. I think adding a page with tips on how to make life easier for us is such a good idea. There are lots of caring people on this forum with loads of knowledge of their condition so I am sure they will participate :-). RA is such an unpredictable illness and it is brilliant to help and support each other. Do take care....x
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Date: 15.05.2011
From: JayneN

Subject: Re: Arthritis Support Wiki

Paricia
It would be really helpful for anyone visiting the site to know that if they are on steroids that they need to take vitamin D and calcium supplements. Thats the beauty of wikis, anybody who is a member can alter content that is not accurate and add content to enrich the site. So that people could give each other the benefit of their knowledge and hopefully help each other to avoid complications such as you have had to endure. I would really appreciate it if you would please join the wiki and add a review next to the steroid you were on to warn people. Its really easy and would be really helpful to anybody reading who is taking steroids. I just had a look at the stats for the site and its doing really well with viewers from UK and USA.
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Date: 15.05.2011
From: Gaynor

Subject: Re: Arthritis Support Wiki

Maybe I'm being a bit "duh", but I can't find your wiki. How do I get to it please? It sounds great. I think a section on helpful hints from people who've lived with the conditions would be great.
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Date: 15.05.2011
From: Patricia

Subject: Re: Arthritis Support Wiki

Hi Jayne. I have joined the wiki but can't seem to add a review next to prednisolone. The page is protected and it won't let me add anything. I am not very computer literate and must be doing something wrong. Help!!! :-)....x
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Date: 16.05.2011
From: JayneN

Subject: Re: Arthritis Support Wiki

Hi Patricia
Sorry to have taken so long to get back to you. I have been mega busy with a 2000 word recommendation report for the wiki. I have accepted your request, and give you my thanks for your participation.
I was given prednisolone about 6 weeks ago for a nasty asthma bout. It didnt do much for the asthma but my joints were great for a couple of weeks!
See you on the wiki.
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Date: 17.05.2011
From: JayneN

Subject: Re: Arthritis Support Wiki

Hi Gaynor
Sorry for not getting back sooner. I had a 2000 word report to do for the wiki and it was a bit heavy going and kept me tied to MS word all day.
The wiki can be accessed from 2 points, they are
arthritis-support.wikispaces.com or arthritis-support.weebly.com.
I am about to set the helpful hints page up, please feel free to add to it.
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Date: 17.05.2011
From: Lynn B

Subject: Re: Arthritis Support Wiki

Can not get on the site anybody help!!
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Date: 17.05.2011
From: marlene

Subject: Re: Arthritis Support Wiki

I cant fiind it either HEEEEEEELP!!!!!!
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Date: 17.05.2011
From: marlene

Subject: Re: Arthritis Support Wiki

I have just found your site, i found it full of good information, well done!! I would just like to ask you Jayne do you have any idea what happens at pain management clinics?
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Date: 18.05.2011
From: Lynn B

Subject: Re: Arthritis Support Wiki

Come On guys help us out!! how do we get on to this site!! PLEASE.......
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Date: 18.05.2011
From: Patricia

Subject: Re: Arthritis Support Wiki

Hi Lynn B :-) Put this link into google and it will take you to the site - arthritis-support.wikispaces.com I registered and was able to put a review in about prednisolone once Jayne had accepted the request. Good luck....x
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Date: 18.05.2011
From: Lynn B

Subject: Re: Arthritis Support Wiki

Thank you Patricia, I can now find the site....x
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