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Date: 26.02.2011
From: kazzie

Subject: soooo feddddd upppp

am so fed up have really bad ra and been on so many meds none worked been hospitailzed ect but 6 weeks ago was put on enbrel and the first 3 4 weeks felf great like i didnt really have it but now am in agony again my legs keep swellin up were there so tight the skin all my joints swellin again the only day thats ok is a fri i keep thinkin its something am eating so stopped tomatos and satsumas as was eatin loads of theses but nothing is reliefing me .has this happened to anyone else .its really gettin me down as for them few weeks i had a bit of a normal life again ,with out my partner havin to dress me ect as my hands are so swollen and no power in them .sorry to go on but i just dont know whats happing ,am on 50 enbrel can they up it does anyone know .thanks
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Date: 26.02.2011
From: Lucy

Subject: Re: soooo feddddd upppp

Hey Kazzie, sounds like you're having a crappy time of it. I dont know much about enbrel, but know it works for some people and not for others. I'm on Humira and have found it life changing, I wouldnt swap it for anything. I know how you feel having to ask for help with dressing etc, it really sucks and makes you feel like an old lady. At least your partner is supportive. This may just be a flare up which you will probably still get occasionally. Hopefully it'll ease soon and the Enbrel will do its job. Am sure these drugs take a while to kick in properly. Can your rheumies get you in for steroid infusions? I had this a month ago and it gave me a turbo boost. May tide you over until Enbrel works?
I've had my RA 32 years and have tried and given up on the food thing, stopping things didnt help and I figured I'm miserable enough with the RA pain so I'm bloody well gonna eat and drink what I want!
Hope you get a restful weekend, try not to stress as this definately doesnt help. Keep your chin up honey xx
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Date: 26.02.2011
From: dolly

Subject: Re: soooo feddddd upppp

hi kazz. sorry to hear ur not doin very good. i think its a flare up from stress, food and maybe overdoing something. these drugs take a few weeks to kick in like 6 to 8 weeks. r u takin something else with it. usually ur givin something [ an anti-inflamatory ] to take with these type of drugs. take care and lots of water and rest.
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Date: 28.02.2011
From: kazzie

Subject: Re: soooo feddddd upppp

i cant underrsatnd why theses drugs workrd at first felt like the old me then after 4th week just not good have stopped eaten foods i thought were causing flare up but still no better my hands are so swollen i feel like i got constant flu in my joints and muscles its so hard work to even walk .i juat dont understand and cant stand feelin like this again
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Date: 28.02.2011
From: peter plant

Subject: Re: soooo feddddd upppp

hi kazzie, i am on 50 enbrel also and the docs put me on the injection form of methotrexate, i only lasted about 6 weeks on the methotrexate as it made me very down and still affected my stomache, the docs say that the anti tnf drugs work better in tandem with another 2nd line drug, i was on humira prior to enbrel and it didnt have any effect at all, i also have patches of about once every 6 weeks that it feels like its stopped working but it only lasts about a week, try to keep smiling, pete
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Date: 28.02.2011
From: Gaynor

Subject: Re: soooo feddddd upppp

Hi Kazzie. I hope you are doing a bit better today. It's a lot like a rollercoaster I am finding. Up, down, up, down ... sooner or later we have to hit a level bit.
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Date: 01.03.2011
From: kazzie

Subject: Re: soooo feddddd upppp

hi i am on 50 enbrel and 15 mxt injections and pain killers but its just getting me down as swellin up bad ect and feel like every muscle aching and cant walk and fed up thanks for repling
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