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Date: 28.01.2011
From: cazza

Subject: Arnold chiari malformation

I have ra since september last year im think im having a flare up as some of you call it but im in agony my rheumy nurse has not given nothing for the pain but will be begging for some by tuesday my own Gp wouldnt get involve told me as im under the hospital it their choice.

Anyway after a recent MRI scan for Query MS I was incedentially found to have type 1 Arnold Chiari Malformation has any body heard of this is your RA a result of having it I have requested to go back to a new consultant in the neurology dept to see what happens next. I hope its not serious :(
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Date: 31.01.2011
From: gail

Subject: Re: Arnold chiari malformation

Hi cazza its a brain malformation but type 1 is mild by all acounts and if it needs treatment it can usualy be done via a scope. Symptoms can be facial and neck pain and potentially face weakness. A neurologist will explain much better. But many of us will be walking around with this and know nothing about it try not to worry. Easier said than done i know xxx
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Date: 07.03.2011
From: cazza

Subject: Re: Arnold chiari malformation

I finally got my appointment for the 7 th of April. I wouldnt say ive worried but the tiredness and the pain really has got me down some what I really feel I should be like this at 35 I cant get through a day at work with out feel exhausted Its now 7pm and Im ready for my bed my constant headaches shoulder and neck pain lower back pain memory loss Im not sure how long I can take this pain for Its not off the rictor scales but the consistant pain 24?7 is not good
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Date: 07.03.2011
From: davina

Subject: Re: Arnold chiari malformation

hi cazza your gp should help with pain meds as he is your 1st point of contact and issues your other meds too.
i would try and see another doctor and ask again

t/c
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