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Date: 16.10.2010
From: Tom H

Subject: Tell us the good stuff!

Pretty depressing stuff on this messageboard at the moent which is completely understandable as we all go through difficult times.
I just thought I'd try and lighten the mood a little and try and get some positivity to the surface and also give myself some hope!!!

Please if you can post any little stories about being able to do something again due to successful treatment that you didn't think you would ever do again and what it meant to you.

I live in hope that I will play golf again someday, had to give it up 13 months ago, fingers crossed!

Hope everyone is having a nice saturday.

Cheers, Tom
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Date: 17.10.2010
From: Lynn B

Subject: Re: Tell us the good stuff!

Hi Tom, are we that bad? so sorry dont mean to be. I have just had the most awful flare lasted 6 weeks, the last week has gotten so good, Iam afraid to say anything. I can actualy open milk cartons, turn the taps, hoover the house my god cant believe it. the other day I actualy filled 2 black bin bags of leaves from the garden, /something I havent been able to do for 18monthsI did ache and was a bit sore, but I havent been able to do any of those things for a long time.T.C. P.S It does feel sooooo good .
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Date: 17.10.2010
From: paul

Subject: Re: Tell us the good stuff!

I'm kitesurfing again :-) since taking Cimzia.

Cannot do it for long as i get really tired really quickly. But to actually give it a go again is great. Also teaching all my neighbours to fly big powerkites on our local park, all are hooked... HE HE I hardly get a go myself.

Will also start running again soon, something i used to love until the arthritis hit me big time. I wont be fast and will just plod but who cares ;-) its all about getting some fresh air and some fitness.

Another one, i drove to Cornwall the other week to Polzeath, a 6 hour drive each way and went normal surfing with my mates. I haven't the strength and my wrists are deformed to actually get up on the board standing but i can catch a wave and kneel up without any problems. Its great fun but when the others are out getting drunk i cannot. I find with Cimzia that if i have even 1 beer i feel sick and dizzy for a minimum of 1 week.

Not long ago i couldn't lift the top of a toothpaste tube and today i am not 100% no way near it but life is about living and arthtritis will stop you enjoying things to the max but just to give something a go is worth doing everytime.

regards

Paul
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Date: 17.10.2010
From: S

Subject: Re: Tell us the good stuff!

not much to tell, people usually come on here when they are fed up and having difficulties. When good stuff is happening I'm out there doing it and don't feel the need to post.
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Date: 17.10.2010
From: caroline

Subject: Re: Tell us the good stuff!

I dont come on here when Im fed up. I come on here because I care about others if they have a high or low day i will still come and check. Im newly diagnosed sero neg RA Im still plodding on think im getting worse tablets dont seam to be working at the min but wake up every morning knowing I have a lovely family surrounding me i am still doing as much as i can darnt give up yet still got some fight in me
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Date: 17.10.2010
From: S

Subject: Re: Tell us the good stuff!

Well I do!
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Date: 17.10.2010
From: CAROLINE

Subject: Re: Tell us the good stuff!

OOPS I APOLOGISE FOR SAYING AND TRYING TO BE POSITIVE !!!!!!!!
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Date: 17.10.2010
From: L...B

Subject: Re: Tell us the good stuff!

Well I am sorry but I come on here most of the time, The only time I dont come on is when I am realy bad cos my hands are to sore to use the keyboard properly. t,c.
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Date: 17.10.2010
From: S

Subject: Re: Tell us the good stuff!

no need to shout
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Date: 17.10.2010
From: katknapp

Subject: Re: Tell us the good stuff!

sorry but at the moment is there any good stuff?im at the very start of this and all i can see is a long slow painful journey,i know there are some sad stories on here but there is also some lovely supportive people who are very giving and positive despite their own pain,trying to help each other through these dark moments and i come on here for that support,answers or to maybe in my inexperienced way attempt to help someone else,which i must admit is very limited lol
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Date: 17.10.2010
From: Sally

Subject: Re: Tell us the good stuff!

I'm with you KN, what good stuff? Yes, people are supportive and that's great (try to be myself) but good stuff is only interesting if you have a rapport with someone. Otherwise, not interesting.
I can't do anything that I used to do Tom! Sorry but that's the way it is.
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Date: 18.10.2010
From: Tom H

Subject: Re: Tell us the good stuff!

Just to avoid confusion, this board has been a great source of comfort to me, the only time when I actually nod my head. I appreciatte that times are very hard for everyone and this is a horrible disease we have.
I just thought tha a couple of positive stories could be a comfort for people, including me. So thanks to Lynn and Paul for entering the spirit, you put a smile on my face.
I hope to come back to this thread and add my own story soon and hope you can all add something in the future.

Thanks, Tom
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Date: 19.10.2010
From: Laura

Subject: Re: Tell us the good stuff!

Aww Tom I think it's a pretty cool idea what you've tried to do here :)
I think I've been getting too caught up in feeling sorry for myself recently, not that there's anything wrong with that but I refuse to let this disease beat me so I've just been trying to look at things in a different way!

I'm 24 and have been playing rugby for 12 years, I live and breath rugby but I had to stop playing in March when I got RA which has really got me down but I decided to do my coaching badge, I've now qualified and it was a real struggle cos I couldn't always do the practical stuff but I soldiered through and now I coach my own team and I absolutley love it :)
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Date: 20.10.2010
From: Lynn B

Subject: Re: Tell us the good stuff!

Well done Laura, good for you!! t.c.
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Date: 20.10.2010
From: Rose

Subject: Re: Tell us the good stuff!

Hi Tom I think you are trying to do a good thing here too with this thread and I hope it keeps going as we all need inspiration hope and courage to go about our daily lives. But I think that what the others are saying is true too, that when we have a good day we get on out there and go go go. Very few and far between are the good days, and thats where sharing our pain and hurts, our ups and downs and our fear we can all feel surrounded by likeminded people and this in turn helps us to feel positive. Also I too come on here to see how everyone is and to learn the many things I dont as yet know. I am not young any more but very young in heart and my good days are usually being able to walk around and that is truly all there is and its great. Dont feel discouraged by trying to bring lightness to the messageboard we need both sides of it all.
TC and keep in touch Rose X

To Laura, Good on you keep going as long as you can and feel proud. tc. Rose X
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Date: 20.10.2010
From: Laura

Subject: Re: Tell us the good stuff!

Thanks guys :)

I can understand how some of you feel, I've shed an endless amount of tears over the past 6 months due to this disease but I'm learning to appreciate the things that I can do a lot more these days, the meds I'm taking are starting to work but they can knock the crap out of me some weeks and I'm just trying to keep going, I'd much sooner feel ropey n run down every other week than not be able to get out of bed on a morning and I'm taking advantage of feeling good (if that's what ya wanna call it) while i can cos I never know when a flare up Is round the corner!

Gonna attempt to go swimmin tomorrow but the thought of it has worn me out already lol, do any of you guys go swimming n find it helps, my rheumy advised me to go twice a week :s
Xx
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Date: 20.10.2010
From: Lynn B

Subject: Re: Tell us the good stuff!

Hi Laura, yes I go swimming when I can and it does help as In feeling great that i can move so much easier in the water. I do ache a lot later on , but it does keep your mucles stronger, wich is what we need to compensate for our crappy joints. T.C.
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