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Date: 14.10.2010
From: katknapp

Subject: Just got back fro my second visit to consultant

Hi all,
I have just had my second visit(managed to bring it forward)and im still none the wiser!He is still saying its inflamatory arthritis but not which one,He has put me on Sulfasalazine Dmard? Has anyone else taken these? I also had xrays on my back,i asked him about my legs being trebly and weak and he just said it was probably because i was in pain hmmm kinda wishy washy answer!so i left there NOT reassured but confused upset and angry!!!!!!
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Date: 14.10.2010
From: athena

Subject: Re: Just got back fro my second visit to consultant

hi katnapp

i just started sulfasalazine a week and half ago, no problems with it so far (apart from orange urine) but i always do take it just after ive eaten, have you got to build it up slowly, 1 for the first week, 2 daily for the second week etc? one bit of advise tho drink plenty of water to help with any possible headaches

good luck with it x
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Date: 14.10.2010
From: caz

Subject: Re: Just got back fro my second visit to consultant

im on sulfasalazine for sero neg arthiritis as all my bloods have come back negative so the nurse said although not had my results given to me as yet bit fed up first week 1 tablet which was fine but second week ive had the sickness ans diahorrea not good really when i have to still work im not sure if the tiredness is a side effect but feel drained. Your lucky i dont get to see my consultant until january which will be my second visit ive had no r ray though the pain seams tobe getting worse i was also put on amitriptyline which is mean help to relax me and give me a better nights sleep Hope you treatment works for you good luck xx
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Date: 14.10.2010
From: charlotte

Subject: Re: Just got back fro my second visit to consultant

Hi

I have been on Salfazalazine since May this year. I have the orange urine butt not many other side effects. I had been on steroids for a month to reduce the inflammation but symptom free 90% of the time. with the 10% being very mild.

Until end of August and have been in the worst state possible. Last visit to consulatant got me a shot of steroids and a hint that the tablets aren't perhaps the best for me ... will wait and see

Hope the side effects go soon
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Date: 16.10.2010
From: katknapp

Subject: Re: Just got back fro my second visit to consultant

Im starting the tablets on monday,i was also told i had to have regular blood tests not good news as its like getting blood from a stone with me :(,i did feel my visit to the consultant was a complete waste of time i felt he didnt even listen to me does anyone else feel this way?
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Date: 16.10.2010
From: caz

Subject: Re: Just got back fro my second visit to consultant

Ive only seen my consultant 1ce and will admit what a waste of time I dont see him now until january which is a bit of putting since I was put straight on the tablets at my first visit ive had 2 lots of bloods done due my 3rd lot on monday so i can visit my nurse tuesday. I feel so cheated at the min. have thought about asking for a second opinion
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Date: 17.10.2010
From: katknapp

Subject: Re: Just got back fro my second visit to consultant

i know what you mean Caz,i came out more confused than ever all hes told me is i have an imflamatory arthritis so i dont actually know what i have and any questions i ask just seem to be met with evasive hazy answers which doesnt help when you are frightened and confused,i am meant to see him in 3 months time but no appointments were availible so i have to wait till march!!!!!!
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Date: 17.10.2010
From: Sally

Subject: Re: Just got back fro my second visit to consultant

hi Knapp, I've have inflammatory arthritis but don't know which one either. I noticed on my hospital prescription he had written RA as the diagnosis even though I'm RF negative. He told me ages back this is a notoriously difficult illness to treat. Not great to hear but useful to know. I'm currently on Hydroxychloroquine so can't help you with the meds.
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Date: 17.10.2010
From: katknapp

Subject: Re: Just got back fro my second visit to consultant

Hi sally,i have the prescription i will have a look at it later for clues,i did feel as though i was expected to just sit quiet while he filled out my prescription and say thank you at the end,mind you it was nearly 12 so perhaps his mind was more on what he was going to have for lunch rather than my silly little illness bless him how unthoughtful of me
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Date: 17.10.2010
From: Sally

Subject: Re: Just got back fro my second visit to consultant

Shame you don't have a sympathetic consultant. Mine is lovely with a good sense of humour (he always makes me laugh.) He phones me or writes me a letter if I have a query and copies me into all his correspondence so I don't feel he is hiding anything. Perhaps you could write to yours and ask him what you want to know? He'd have to reply.
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