Date: 04.01.2008
From: Kate
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Subject: Rheumatoid Arthritus - Can anyone help?
Hello Everyone I just wondered if anyone out there could help me? After 7 years of hospital appointments and joint problems I have just been diagnosed with Rheumatoid arthritus. I am finding it really difficult to cope with and have been feeling very alone. I don't really have anyone I can speak to about it, I have tried to speak to my friends but they don't understand and when I try to talk to them about it they tell me we all get aches and pains and all tablets cause liver problems (At the moment I have to have my liver checked every 2 weeks becuase of medication arava/leflunimide). I have just been feeling so upset, I just can't think how I can get through this, I am really worried about the medication I have to take and the serious side effects they have such as Liver damage and I know I probably sound really vain but also Hair loss. I just wondered if anyone has any suggestions on coping strategies or if anyone has felt the same but managed to come through the other side. Thankyou for reading my email Kate
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Date: 06.01.2008
From: lyndsey
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
i dont have it personally but most of my family do , my mum being the worst , and i see how she copes or rather doesnt cope on most days . All i can say is you are not alone & if ever you feel you can not manage or need that little bit of extra help carrying bags or around the home you must ask family or friends for the help .
The fact you are worried is normal , and nobody will understand what your going through other than other sufferers or people like me who cares for someone suffering from it, As other people dont know enough about it to understand , which i would tell them to sod off if they can not work with you & understand & support you . At a time when you need friends sometimes online friends are the best & other sufferers in your area . I cant really suggest a way to cope as everyone copes diff but just dont deny the fact you have it & ask for the help when you need it.
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Date: 08.01.2008
From: Mrs. G. Filipe
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Kate, I was diagnosed with Rheumatic Arthritis in 2002, and given diclofenac to ease the pain and inflammation. I was also offered methotrexate, but refused it because of the toxicity of the drug. Like you, I was very worried about the toxicity of these drugs. I am a befriender at my local hospital, and have seen first hand what these drugs can do ie. liver damage etc. etc. I did a lot of research on the internet and came across the Roadback foundation, and includes information and support about a safe, low-cost treatment for rheumatic conditions such as rheumatoid arthritis, and related diseases. The particular treatment focuses on antibiotic therapy, which has proven safe and effective. I made contact with them, and then targeted my GP with my evidence. Then, I walked like I was 80 and felt like I was 90 (I am 48). I was tired, in pain, and depressed. Luckily, he was very open-minded about it all and prescribed the antibiotic, and within weeks I felt like I had been reborn. To cut a long story short...the antibiotic worked for me and in a very short time and almost all my pain was gone. I still work full-time, and do everything that had been part of my life before this disease came in.And it has given me the unshakeable belief that there ARE answers if we care to seek them - using patience, discrimination and wisdom. And, most of all, if we make a commitment to educate ourselves and to case-manage our own healing, finding and using expertise that makes sense to us, rather than unquestioningly putting our wellbeing and healing in the hands of those who will not step (or even look) outside the square of medical orthodoxy. Please feel free to contact me.
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Date: 20.02.2008
From: Cyndi
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I have been recently diagnosed with RA to, I thought my doctors where crazy,.....they started me on methotrexate...I was allergic, now the want me to try the lefunomide 10 mg, I am very nervous about taking that two....Also they have prescribed tremadol? pain killer?, My doc says if I don't start taking this now, to put everything into remission than I will get worse...What do you all think?
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Date: 02.03.2008
From: Jimmi
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I've had RA for many years in my hands. On really bad days I wasn't even able to hold a cup, turn on a tap or use my computer without pain. I had to leave my job as I'm on the computer all day. I got sooo down. Since I'm allergic to seafood I can't take glucosomine or any cortisoen due to the preservatives they contain. For the last seven months I've been using health gloves with thermomedic therapy and am really pleased with the way they help stop the RA pain. It's not a cure but I can get on with my life without pain, afterall there's not much you can do if you can't use your hands!! There are also other therapy garments for back, knee, hip arthritic pain that do the same work. I hope this helps you because I know how bad the pain can be!!!
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Date: 26.03.2008
From: mariangela
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Kate, I'm 44 and I've been diagnosed with RA in 2004,and soon started with Arava: I didn't experience any bad side effects, no hair loss, just weight loss (not so negative, after all!) and much more tiredness. I know I've been lucky in not getting any infections, nor liver or kidney damages. What I can tell you is try to be positive because Arava can work, try to eat well (fruit, vegetables, no junk food, few sweets), so your liver hans't to work so much, don't exaggerate with pain-killers or others medicine and take something to strengthen your hair.
Unfortunately, in my case, Arava didn't work, and I've been taking Enbrel (biological drug) since 2005. I'll be happy if you want to write to me again, actually I don't know anyone who takes these medicines. Sorry, you may find my English poor, but you may have realised I'm not an English mother tongue, Take careGeorge T
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Date: 17.04.2008
From: lukey123
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Subject: in my experience
Arthritis in the feet
Seaweed has been known since Roman times for alleviate the pain of arthritis and it really does.
1 tablespoonful of Aalgo shaken through a sieve into either an electric foot spa or in a basin of hot water.
The first time you do this keep your feet in the spa until the pain has gone.
Have a foot spa daily usually in the evening this will kill the pain and allow you to sleep. If you are going to be on your feet for an unusually long period of time have a foot spa in the morning to get you going and another one that evening.
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Date: 04.06.2008
From: Candy
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi, I'm 27 years old and started having these pains in my thumbs in January 2008. In February the pain spread over to my wrists, elbows and shoulders, and about 2 weeks later the pain spread all over to my whole body, hips, knees, neck, jaws, feet, etc. Strangely, the only joints not in pain is my ankles. Even the joints in my voice is affected, it sounds like I have a permanent cold with my voice breaking up the whole time and the wrong notes coming out the wrong times. Anyhows, I went for tests because by March I could barely move due to excessive pain. The GP gave me cortisone injection and sent some blood in for testing. All the tests came back normal. Went back a few times, just to get the injection. Decided to go for a second opinion in April and that GP told me I had RA, and that the RA factor don't need to be positive in order to have it. Got an appointment at our specialist only in May and he put me on Methotraxate. Went well the first 4 weeks with slight nausea that went away after a small meal. I'm now going into the 7th week and I've had a couple of "flare ups" as they're called where I needed some painkillers, but so far so good. What I'm wondering is I have had this only for about 6 months, and the internet and forums is full of people who have needed joint replacements etc. How does this work? How do I just suddenly get this. And how long will it be before I will also have the extreme problems that come with this diagnosis? Me and my husband is keeping very positive on this and we're trying to learn all we can about this, but the variety is too much. Every case is different, and that makes it difficult to know exactly what is going to happen to me. Just wondering how I can know exactly how things are going to be 5 years from now... ;)
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Date: 29.10.2009
From: Sarah
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Can anyone suggest a good foot spa? I got run over by a lorry 14 years ago and my calf and foot were crushed - I have recently been diagnosed with severe arthritis in several foot joints (further worsened by tissue and nerve damage in my foot and calf) which is hard to cope with but unless I keep walking for 2 hours a day it is terrible when I try to walk short distances and with 2 children under 4 and another one on the way I can't really sit at home and put my foot up! Looking for a good foot spa I can use in pregnancy and gives a good foot massage. Just wondered if anyone has any tips????? Thanks!
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Date: 29.10.2009
From: karen
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
hi i have ra in my hands and feet and am on metoraxrate meds as pain killers dint really work only been on them for 10 weeks so dont really know much yet .but just wondering lynsday what is this antibotic all about and surly the nurses at the hospital would recomened this i would like to know more about this tham mext meds thanks
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Date: 29.10.2009
From: Sarah
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Just read your entry Mrs Felipe, do you know what the side effects are and why it is not a treatment generally given in the UK? Sounds amazing treatment, sounds like you have done really well on it. I have only had steroid injections directly into my joints carried out by a specialist as very specific, only been given this as an option but not sure if this is because my problem is due to a crush injury rather than an actual condition through my body? Because I use my foot joints all the time the only other options I have been given are to have the joints fused which means I wouldn;t be able to walk... It is pretty severe and quite debilitating sometimes, pregnancy usually helps as relaxin is produced in the body but with my current pregnancy this time it is worse. Accident happened when I was 22 so been dealing with this with no medication until just recently as only just diagnosed.
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Date: 30.10.2009
From: Jill
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
MRS g fILLIPE....Tell Us then what the ANTIBIOTIC Is callled then? that way we can all research it! seems to me that if U suddenly for better Immed...then U cant have had that such a bad case of R.A. how comes our consultants do not tell us about a simple Antibiotic treatment??? I cost the NHS way over 10grand a year..... surely a simple antibiotic wld be cheaper for the NHS!! also PLEASE do not ever JUDGE any one of us for not "Looking outside the box" I find that a dammm insult!!! id like to know how many Corective Operations U have had in the last 5 years.... since 2003 ive had 7!!!!!!!
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Date: 30.10.2009
From: jill
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Candy, if your Rhumatologist is wanting u to go on Methrexate, that is the way to go....helps dampen down the joint damage that R.a. causes, Ive been On Methtrexate over two years along with the Biologics meds..Enbrel....less flare ups....but sadly ive had a lot of samage and had corrective surgery.... becos I wasnt given the correct meds asap...pple that tell us about antibiotic therapy is talking POO!! nlisten to your EXPERT the rhummy, after all hes trained for years and years...they wldnt offer us expoensive meds...plus with regard to side affects, they r small compared to the affects tht R.A. cause.... get the correct balance.... No one knows how they will be in say 5 yearsa.....back in 20002 i didnt think id be the way i am now...need another spine op....but not all people with R.a> do.....we r all differnt...have a healthy lifestyle, get support from ya hubby, so it helps him ti understand...get ppl to read the articles on R.A. we r all sifferent, u may be fab in 5 years, sooner u get on thye correct treatment the better..... damage will happen, if u dont.... remember there is always the ANTI TNF meds.... ask your rhummy about them...im on Enbrel.....I wld be a cripple if I didnt take that by injection weekly..... along with Methtrexate..... side affects r few...trust me.....take care Jill x
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Date: 03.11.2009
From: greg
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
If only the cause of your problem is high level of uric acid, i can recommend you the Mac Plus that makes my mother-in-law PAIN Free just days after drinking it. Many doctors say that Rheumatoid Arthritis and Gout can be miss diagnosed. Often people who have Rheumatoid Arthritis actually have Gout and it goes unnoticed or untreated.
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Date: 04.11.2009
From: jill
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
oh well if gout is painful like R.A., then it should all be treated the same then...Pain is pain....I have inflamatory arthritis, does Not mean that R.A. is more painful.... just R.A. is more commonly known..... my med treatment is same as R.A....im being treated aggresssively for this, as i keep having operations! oh well, we r all different.....take it ya mum in law has Gout then?
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Date: 09.11.2009
From: Lucy
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Kate, Im sorry you are feeling so alone with this and can sympathise as I have felt like this many times myself. I have had rheumatoid arthritis since the age of 2 and have tried many different treatments including methatrexate which I came off due to the side effects of the drug. I tend to keep myself to myself because people dont understand my condition and often feel lonely because of this. All I ca say is try to get any loved ones or friends some information re RA and give it them to read, I have done this with a new partner recently and it really worked as I dont like talking about my condition as I feel like im moaniing and like to keep as positive as I can. Try to limit activities which cause you pain, which I know is easier said than done if you have chldren or have to work. If you wantto ask anything else feel free but please remember you are not alone hun x Lucy
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Date: 24.11.2009
From: jae
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
hi mrs filippe, What is the anti biotic you are on? I've been diagnosed with RA which is in every joint of my body and have so far been on mtx which i had very bad side effects to the point where it had to be stopped, i am now being offered leflunomide which i am extremely nervous about taking. i have heard about taking anti biotics can you give me any more info? thanks jae
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Date: 25.11.2009
From: jill
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Jae, as u can see I asked Mrs Filllippppe, the same question....its crap...we get oddbods in here,, just to upset us all....our cinsultants wld know all about the antibiotibs....blimey, I take enuff of the stuff...... whats the secret I ask myself.......NONE....cos others like her, have written the same rubbish....take care Jae Jill
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Date: 25.11.2009
From: Mrs. G. Filipe
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Jae, Apologies for not answering sooner but have not visited the site for a while. I am not just an 'oddbod' and I suggest that you visit the
Roadback Foundation website www.roadback.org. and educate yourself about the therapy. For your information, I am still taking the antibiotic - and 7 years later - feel very well, work full-time and have a good quality of life.
The consultants do know about the anbiotic but I believe that there is a hidden agenda. The antibiotic is listed on the NHS best treatment guide and there have been trials conducted by the Kennedy Institute for Rheumatology, at
the Charing Cross Hospital in London, with the majority of patients tested making a remarkable improvement on this regime.
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Date: 25.11.2009
From: Angela
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hiya Mrs F,
I spotted your post a long while ago and was so grateful for any form of help at the time,it gave me real hope and pushed me more into exploring other routes to try and tackle this disease.
I am sure that reading your success story inspires others on here that feel helpless, and want to try anything, I also understand the long term sufferers chain of thought to.
I actually bought and read the book on the therapy if anyone would like it I will be happy to pass it on at a very reasonable price of course.
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Date: 30.11.2009
From: jill
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
so what is the ANTIBIOTIC CALLLED..... THAT WAY I DONT HAVE TO WAIT MONTHS HUNTING FOR IT, U CLD TELL ME, AND I CAN RING MY RHYMMY NURSE....SIMPLE.... ooops apologies for the caps..... not shouting....just asking Y u cant tell me the name of the antibiotic treatment..... if U thibnk there is a hidden agenda...then spread the word...and tell us all what the name of the antibiotic therapy is callled?? Im assssuming by Angelas comments about the boook lol, its errrr hoohar!! am I right angela, apologies if I misread your post, jsut if I bought a book and thort it waas Brillian, I wouldnt want to sell it lolol
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Date: 30.11.2009
From: Angela
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Alright Alright Jill, I am happy to sell the book because I found it very difficult to read okay!..there now you know lol.
It is one of those books that you really have to concentrate on to absorb the information, and my concentration went up the Swannie months and months ago, so I opened it, tried to read the first few pages which all sounded gobbledigook, closed it, went for a cuppa, and it has been on the book shelf ever since.
Now that doesn't mean that it is not a interesting book,I just wish someone would read it for me and tell me about it in a simplified form.
Mrs G does mention the Roadback Foundation that does explain the Antibiotic therapy and if you want a try it, there is a whole load of info to take to your GP, I took it to mine, and he wouldn't touch it,I also took it to my Rhummy and got the same reaction. They have a set Protocol and although some do give in to their patients a lot wont.They say it has not been tried and tested enough yet, and lets face it would Pharmacutical Companies want to test good old antibiotics to treat RA when they can get £10,000 per person per year for biologics?
Its is our GP's and Rhummys that want us well, and they would be singing from the hilltops if they got something that worked, but the Pharmacutical Companies wouldn't.Maybe I am just being critical but I think not.
I will get off my soap box now lol.
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Date: 02.12.2009
From: jill
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
ooops ok...didnt mean to offend..... lso y wld onsultants and doctors worry what the pharmacutical companies get? doesnt affect a doctors salary dos it.....politics arnt my best subject...obviously involves all that.....just cant understand that IF the NHS New about this amazzzzzing antibiotic, they wld be fighting it in court to NOT have to pay out ten grand for some of us.....u hear about postcode meds that ppl cant have....so y wouldnt the NHS fight that in court.....dont get it......mind u, I was pumped full of antibiotics, 3 seprate bags a day for 24/7 for three weeks, i ended up with C Difficile..... nearly died....so id rather keep the meds im on...
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Date: 02.12.2009
From: Angela
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I would not be offended by you Jill.I was only being playful.
I understand what you are saying, and I respect it as I would do reading anyone elses views.
We just see things from different perspectives.
Wouldn't do for us all to think the same hey, life would be a right drag lol.
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Date: 02.12.2009
From: dennis rooney
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Kate,
I have just posted my experience with arthritis and you may find some useful information in it.Your story sounds so familar.It would seem that the health professionals have been lacking in their approach to your treatment and concerns.With out knowing you age ,medication, occupation and severity of affected joints it would be difficult to recommend a course of action.If you feel comfortable divulging that information I may be able to help in some small way.Kind Regards,
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Date: 04.11.2010
From: Fee
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Subject: coming off anti tnf treatment
Have had to stop taking anti tnf treatment for the moment as I have developed SLE symptoms. Has any one else experienced withdrawal symptoms? Feeling exhausted and very low.
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Date: 04.11.2010
From: ALFREDO A ATWATER
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hello ; Yes, I can help you. I was an osteoarthritis sufferer and I am free of stiffness and pain since the year 2008. No medical doctor will cure any disease. They only provide relief to a disease with their chemical regime.They are disease control professionals. There is no disease curable from their point of view. It's about repetitive chemical consumption and big money. But I got a solution for you in my e book. True Arthritis Cause And Cure. I GOT SOME FREE COPIES . I AM VERY GENEROUS BECAUSE I NEED YOUR SUCCESS STORIES TO SELL THE BOOK. I HAVE NOT SOLD ONE YET. CAN WE HELP EACH OTHER ? ALFREDO A ATWATER
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Date: 05.11.2010
From: Maz
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I don't know why Dr's don't tell people about antibiotic therapy (AP) my personal view is that interns whist they are learning, are told if someone presents with this, then this is the preferred treatment path; if someone presents with that, that is the treatment path & eventually they just get used to prescribing the same old same old. There are many patients who have actually got better using abx & yet their doctor still won't agree that it may be the antibiotics that is helping. Sadly medicine is not an exact science & many doctors forget that fact. There is a book you can read written about this treatment called 'The New Arthritis Breakthrough, by Henry Scammel' as well as The Roadback website www.rbfbb.org which is primarily for physicians & patients alike who use antibiotic therapy to control their disease. The website has a wealth of information about AP. There is not a 'one fits all' antibiotic, because we as human beings are not all the same. Nor is there 'a one fits all' for traditional medications either for the same reason. Remembering that there isn't a cure for RA & many other AI diseases it should then also be remembered that the majority of traditional treatment paths are only used to diminish the symptoms. Also remembering that for some people these traditional medications can & many do eventually stop working. It is up to each of us to be well versed in our disease & knowledgeable about whatever treatment path we choose to use .. the doctors can & should advise their patients but it is not the doctors who make the final decisions.
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Date: 05.11.2010
From: Maz
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I really don't understand anyones reluctance to listen or read for themselves about a treatment path they don't know about. Surely if you are in pain & nothing seems to be helping you would learn all about eating crayfish poo if someone told you it would help! Jill has likened using AP therapy to having a PIC line 24/7 which is incorrect. Using abx as it is intended in AP therapy to treat RA & similar diseases is not the same as having a PIC line in; the antibiotics used & method of delivery are 2 entirely different things. Instead of asking a fellow patient to tell you everything about AP therapy why don't you read it for yourself so then you have a clear understanding of what is suggested before you start condemning it. Although I use AP myself I don't condemn anyone who chooses to use traditional medications. It is my view that the primary purpose of most websites such as this one is that we can support each other.
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Date: 05.11.2010
From: maz
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Sorry --- said only used, meant mainly used !!
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Date: 05.11.2010
From: bsk
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Not Again!
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Date: 05.11.2010
From: WHAT A JOKE!
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Its probably THE SAME PERSON but hes decided to change his name!!!!!!!!! IF ONLY we could become cured by eating herbs etc! LETS GET BACK TO REALITY PLEASEEEEE!
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Date: 29.11.2010
From: dolly
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I THINK I MIGHT BE ABLE TO HELP SOMEWHAT. I AM 56 AND HAVE HAD RA FOR 41 YEARS. IVE HAD 30 SURGERIES. IVE BEEN ON ALMOST ALL THE MEDICATIONS OUT THERE. WHEN I FIRST GOT DIAGNOSED WITH RA THERE WASNT THE DRUGS OUT THERE THAT THEY HAVE TODAY. I STRONGLY SUGGEST THAT YOU DO AS YOUR DOCTOR SAYS WHEN IT COMES TO WHAT MEDICATION THAT HE WANTS YOU TO TRY. EVERYONE REACTS DIFFERENT TO ANY OF THE RA MEDS OUT THERE. IT TAKES TIME TO FIGURE OUT WHICH ONE WILL WORK FOR YOU. YOU CANT GO BY HOW SOMEONE REACTS TO A CERTAIN MEDICATION BECAUSE MORE THAN LIKELY IT WILL BE DIFFERENT FOR YOU. THE WAY I DEAL WITH THIS PROBLEM IS I SET IT IN MY MIND THAT IM GOING TO FIGHT THIS BY BEING STRONG AND STUBBORN MENTALLY. IN OTHER WORDS I DEAL WITH ALOT OF THINGS "MIND OVER MATTER". I FIND WAYS TO DO THINGS THAT I WANT DONE. IT MAY TAKE AWHILE OR A FEW TRYS BUT I GET IT DONE. MY RHEUMATOLOGIST TOLD ME THAT IM VERY STRONG MINDED AND THAT HELPS ALOT. AFTER HAVING RA FOR 41 YRS. YOU DONT HAVE MUCH CHOICE. I HAVE DEFORMED HANDS AND FEET. IF I COULD START ALL OVER AGAIN I WOULD DO A COUPLE OF THINGS DIFFERENT,LIKE STICK WITH THE PHYSIO THERAPY AND TAKE THE ANTI INFLAMATORIES LIKE I WAS SUPPOSED. THE RESULT OF NOT DOING THOSE THINGS IS I ENDED UP WITH SO MANY SERIOUS "FLARE UPS" AND INFLAMED JOINTS THEY DETERIORATED AND DEFORMED REALLY QUICK, LIKE IN A COUPLE OF YEARS. IT TOOK ME CLOSE TO 20 YRS. TO "ACCEPT" THIS DISEASE. MY DOCTOR TOLD RA SHOULDNT HAVE BEEN CALLED RA BECAUSE IT AFFECTS SO MANY OTHER THINGS HEALTHWISE. THE PEOPLE THAT IVE KNOWN TO PASS AWAY AND HAD RA ALWAYS DIED FROM A SERIOUS INFECTION THAT WASNT CAUGHT IN TIME. RA IS EVERYTHING TO DO WITH YOUR IMMUNE SYSTEM. SO YOU HAVE TO LEARN YOUR OWN BODY AND GET A CHECK UP AS SOON AS YOU KNOW SOMETHING IS EVEN SLIGHTLY OFF. I GOT A KIDNEY INFECTION ONCE WHICH GOT INTO MY BLOOD STREAM AND WAS TOLD THAT THEY {THE DOCTOR} DIDNT KNOW IF I WAS GOING TO LEAVE THE HOSPITAL OR NOT. SO NOW I WATCH EVERYTHING ABOUT MYSELF LIKE A HAWK. SO ANYONE READING THIS WATCH AND LEARN YOUR BODY WELL. FEEL FREE TO ASK ANY QUESTIONS.
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Date: 30.11.2010
From: Lynn B
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Dolly I realy dont think the anti inflamatories and phisio would have stopped you having deformed joints, or the flare ups. What you needed then was the biologicals or anti tnf. You needed something to slow down the disease, not only the inflamation. But you are so right about listening to your own body, and knowing yourself that something is not right. And having it checked ASAP. Take Care. x.
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Date: 01.12.2010
From: dolly
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
HI LYNN I CAN TELL YOU THAT I KNOW FOR A FACT THAT PHYSIO THERAPY AND ANTI-INFLAMATORIES WOULD HAVE HELPED BECAUSE CONSTANT INFLAMATION IN THE JOINTS WILL MAKE THEM DETERIORATE, THEN AFTER BEING WITHOUT A SUCCESSFUL ANTI-INFLAMATORY FOR YEARS THE JOINTS WILL DEFORM. IF YOU DO NOT HAVE PHYSIO THERAPY YOU SLOWLY START LOSING MUSCLE BECAUSE ITS HARD TO DO ALMOST ANYTHING WHEN YOYU HAVE SEVERE RA. HOW DOES THAT SAYING GO "YOU DONT USE IT YOU WILL LOSE IT". YOU NEED GOOD MUSCLES TO MOVE AND KEEP MOVING YOUR JOINTS. YOU HAVE TO KEEP THE INFLAMATION AWAY TO MOVE THESE JOINTS. MY DOCTOR TOLD ME IF I HAD BETTER ANTI-INFLAMATORIES AND CONSTANT PHYSIO THERAPY MY RA WOULD NOT HAVE ENDED UP BEING SO SEVERE. REMEMBER HOW LONG I HAVE HAD RA, SO I THINK I KNOW WHAT I AM TALKING ABOUT. TALK SOON.
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Date: 01.12.2010
From: Lynn B
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Thanks Dolly, just hope you dont think I was being funny.I realy didnt mean to offend you (hope I havent) You realy have had a lifetime of pain, sending you (((hugs))) and good wishes. take care.x
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Date: 03.12.2010
From: serena
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
I strongly recommend those who are concerned about the side-effects of traditional medicine against Rheumatoid Arthritis that they seek the help of a top homeopath. I could no longer walk unaided and had severe pain at night which prevented me from sleeping. I saw a few Classical Homeopaths, who helped only half way (the symptoms always returned) and then I finally found an excellent Practical Homeopath who gave me life again, literally. To this day I have free of all symptoms. HOW HOMEOPATHY TREATS ARTHRITIS: http://www.arthritis-homeopathy.com/
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Date: 11.12.2010
From: Pam
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Very interested to know if your RA is still being controlled by Roadback treatment. See your e-mail is from 2008, so if you are continuing with the antibiotics, could you pls advise what type they are, etc.
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Date: 11.12.2010
From: Pam
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Back again, sorry I'm new to this site - just seen all you replies. Seems it could be yet another con - after over 25 yrs with this disease, you'd think I'd know better, but you keep hoping there is a less lethal treatment out there! I started off taking Plaquenil which worked like a dream for 15 years(no joint damage to speak of and really used to forget I had anything wrong), but it did eventually stop being effective and I tried various drugs - now on Methotrexate, but have started having trouble with my feet for the first time and now have disfiguring joint damage in hands. Being encouraged to try Embril (not sure of spelling), but understand it's an injection - would like to hear from anyone on this drug.
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Date: 15.02.2011
From: George Ashford
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Mariangela, I work for a market research company that specialises in the medical device field. We are looking for RA sufferers that inject Enbrel and either live in the London area or are willing and able to travel to London to take part in an interview. The interview will relate to a new device to help RA sufferers administer their drugs. We will pay £200 to cover expenses and the interview would last approx 90 minutes. Would you be interested? Please do get in touch if you would like to know more - george.ashford@creativemedicalresearch.com Best regards,
George
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Date: 17.02.2011
From: diane m
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
so an antibiotic cured yr arthritis? i dont understand!
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Date: 17.02.2011
From: Maz
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
No antibiotic or any other drug can 'cure' arthritis; however there is a treatment based on the theory that arthritis, and many other AI diseases, are actually caused by bacteria; if that is the case, it can be treated with antibiotics. There are many people who use this treatment for their AI diseases rather than the traditional medications offered it is called AP Therapy.
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Date: 02.07.2012
From: Cynthia
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Subject: Re: Rheumatoid Arthritis in hands - Can anyone help?
Hi Jill - I've only just found this forum and have read that you have had several corrective operations. Have you had thumb and knuckle ops? I should be interested how they went and if you came out being more able to grip. Or whether it was too painful afterwards and 'not worth it' in balance. I am in the consultative process at the moment and have been offered the ops in the near future.
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Date: 02.07.2012
From: marlene
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Hi Cynthia and welcome, so glad you found this forum. I f you go to the top of the page you will see Start New Topic click on this and start a new thread. Name it corrective operations or something similar and I am sure the correct people will help you.
So glad you joined the forum, they are all a great crowd, they will help if they can and the best thing they do is listen and never judge, the advice on here is great.Hope this helps. Take Care
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Date: 02.07.2012
From: Cynthia
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
Thank you, Marlene, I shall do that.
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Date: 04.09.2013
From: Maz
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Subject: Re: Rheumatoid Arthritus - Can anyone help?
HiPam, I am 5 yrs down the track with RA & still using AP therapy .. Originally within 6 mths I had to leave my job & was in excruciating pain a lot of the time, after 10 mths on AP therapy the pain dissipated & within 18 mths was occasionally a little achey but not sore at all. 5 yrs down the track am pleased to report I have been asymptomatic for about 3 yrs. I still have RA but no pain so for me this treatment path is working. It is up to everyone to thoroughly research whatever treatment they wish to use & if it works for them then good luck to them I wish them all the best. I have no agenda for AP or traditional meds, whatever you choose to use, if it is working then that's a good thing. Cheers, Maz
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