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Date: 06.09.2010
From: jo rose

Subject: Advice about medication side effects please

Hi all, I was diagnosed with psoriatic arthritis in Jan 2010. Taking diclofenic 150mg and methotrexate. Increased mtx to from 15mg to 20mg over the past two weeks. Side effects are unbearable. The worst is the exhaustion - physical and mental. Its got so bad over the past two weeks that I am struggling to think straight and at times have not been able to read due to lack of concentration. I havent been driving due to the tiredness and I`m stuck indoors sitting in a chair all day almost comatose, and I struggle to find the energy to go upstairs to the loo.I have had three bad headaches in the past week and have got a cold sore for the first time in two years. I feel sick and have lost my appetite. I also have a sore tongue. Apart from this I`m feeling great !!! I am due my next dose tomorrow evening and I am dreading it. I have contacted the rheumatology nurse and been advised to take 15mg, but this dose was not helping my joint pain. Anyone else been in a similar situation ? Did you persevere, or did you try other drugs ? Also I am on 5mg of folic acid. Does anyone know if this dose needs to increase along with the mtx? Please help me because I already suffer with long standing depression and this is making my life seem unbearable.
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Date: 06.09.2010
From: Lynn B

Subject: Re: Advice about medication side effects please

Hi jo dont know If I can help or not, I also have pa I got up to 17mg of mtx and was so ill. I had ulcers all over my mouth cold sores, headaches, and nausea.I was told to drop the methotrexate down to 15mg and take 5mg of folic acid 4 times a week. It did stop the sickly feeling and the headaches, but it hasnt stopped the ulcers and cold sores. And it hasnt stopped the fatigue which just wipes you out completly.My rheumy has told me to take the folic acid 6 times a week now and see how I go. Hope that helps a little. take care.
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Date: 06.09.2010
From: jo rose

Subject: Re: Advice about medication side effects please

Thanks very much for replying Lynn. No one told me to increase the folic acid...I currently take mine three days after the mtx. Do you take yours every day except the day you take your mtx ? I will talk to the rheumy nurse about this tomorrow. Thanks again :)
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Date: 06.09.2010
From: Lynn B

Subject: Re: Advice about medication side effects please

Yes Jo everyday except mtxt day, only just started 6 days, as I only saw rheumy on friday, will let you know how I get on. take care.
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Date: 07.09.2010
From: Romy

Subject: Re: Advice about medication side effects please

I am on 25 mg (ugh) of MTX and I started taking wheatgrass (natural liquid form) just for overall health and well being.
My side effects on the MTX have pretty much been erased. Serisously. No idea if there is a connection. I told my rhemy about it and she said to keep taking it but she had never heard of it diminishing the effects. I used to be on 15 mg and it wiped me, but good. I was like a zombie. Now< i have to almost check to make sure I took the pills because I feel fine.
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Date: 07.09.2010
From: jo rose

Subject: Re: Advice about medication side effects please

Hi Romy, its really good to hear that you`ve found something that works for you :) I will get my ass down to Holland and Barrett at the first opportunity and give it a go ! How much do you drink per day ? Thanks for your reply - it makes all the difference knowing that others are finding ways of coping with the horrible meds. It makes me believe that there is light at the end of the tunnel.
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Date: 07.09.2010
From: Lynn B

Subject: Re: Advice about medication side effects please

Hi I might just give it a go myself, "nothing ventured nothing gained"... as they say. So glad its working for you Romy. T.C.
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Date: 07.09.2010
From: Romy

Subject: Re: Advice about medication side effects please

I would love for other people to to try to see if we are on to something. Of course it can just be how my body works or somethign completly unrelated,lol

I take 4-5 oz/week. Always 1 oz on MTX day. I buy it in 1 oz frozen cubes at health food stores. it's the cheapest way. I tried to grow my own, but I realized I needed a juicer, lol.
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Date: 11.09.2010
From: Abbie

Subject: Re: Advice about medication side effects please

I too had bad side effects so now take it in injection form and now all I have is fatigue for a day or two after. I'm on15mg on a Sat. With regards folic acid you should be on at least the same amount in a wk as mtx. I was taking 15mg on a sunday but got loads of mouth sores now I take 5mg every day except mtx day and they've got a bit better. I hope things get better for you! Keep us posted! Go well X
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