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Date: 02.06.2010
From: Abbie

Subject: I'm back!/update

Hi guys! Really missed you all whilst I've not been on but have had/am having a bit of a nightmare. Ankles, right foot and right wrist and hand have been extremely painful and massive. Wrist getting bit better now hence i'm back! This all started 2wks ago and then to add insult to injury a few days after this started my last stubborn mouth sore (from mtx) became quite infected so was given anti biotics and told to lay off my mtx injections for 2wks. Gradually things have got worse. Was in Soooo much pain last Tuesday and couldn't get shoes on dr had to come to my house. He gave me relifex just till i'm back on my injections and increased my morphine. I had to inform my Rheumy about infected sore so left a message and thought nothing of it. I was gonna increase dose this week then again in 4wks but now been told not to do this. I haven't been offered an apt sooner than one is due in 6wks (that I haven't even had date for yet) which is really annoying because that means things meds wise wouldn't have changed since the apt 12wks previous except i'll be totally off pred but my condition worsened. Supposed to be starting Remicade/Infliximab but heard nothing more about it. Will be 1yr begining of Aug I've been under Rheumy and things just worse. This is such a frustrating waiting game! Anyway, i'll stop my rant now! Good to be back and I look forward to catching up on how you are all doing. Go well everyone! XXX
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Date: 02.06.2010
From: Sally

Subject: Re: I'm back!/update

hi Abbie hun, we missed you too! sounds like you are having a terible time. Hang on in there, it will get better. I would take yourself off to A&E if it gets any worse, though your gp sounds good.
I've had bad problems with my wrists on and off and it is frustrating as you say. Can't plan anything though made myself visit friends this weekend and felt better for it.
Take care and big hug ((()))
xx
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Date: 03.06.2010
From: Abbie

Subject: Re: I'm back!/update

Thanks for the hug Sally! Well needed! I'm seriously thinking about calling my Rheumy nurse coz this is getting ridiculous. Even though this all started before I had to lay off my mtx injections do you think I should wait till I've had one again at the weekend? X
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Date: 03.06.2010
From: louloubelle

Subject: Re: I'm back!/update

No! get onto the nurses, there's no point suffering longer than you have to. The worse they can do is tell you you'll have to wait. I think I must be really lucky, my rheumy nurse (and the rheumy for that matter) are happy to speak to me at any time and always try and see me within a week if I'm really struggling.

Beg to see them sooner if you have to!

Take care
Lou x
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Date: 03.06.2010
From: Sally

Subject: Re: I'm back!/update

Hi Abbie, I'm with Lou, don't wait. Get on the phone before the weekend kicks in.
xx
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Date: 04.06.2010
From: Abbie

Subject: Re: I'm back!/update

Thanks guys for the advice it's really given me a kick up the back side to take the bull by the horns tomorrow. I'm gonna phone the Rheumy nurse first thing because as today and this evening has gone on the pain and swelling has got Soooo bad and just Incase I get no where there i'm gonna call the GP surgery coz apts with my fab GP will be open for Tuesday so at least someone can see what i'm going through because to be fair i'm at the end of my tether with it all :,-((( Anyway girlies, THANKS again! Go well XXX
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Date: 04.06.2010
From: Lynn B

Subject: Re: I'm back!/update

Hi Abbie so sorry you are going through all this pain and c..p. you cant go on like that for much longer, believe me I know.please ring your rheummy nurse if you dont get any joy, then ring your GP. You cant go over the weekend like that. please take care. Sending you ((((hugs))).
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Date: 04.06.2010
From: Sally

Subject: Re: I'm back!/update

Hi Abbie, sounds as if you are having a really bad time. I hope you get some help before the weekend. Swelling needs something - can you get it aspirated? I assume you are using cold therapy (can't think of the word this morning as am a bit groggy still but you know what I mean I hope :)
Keep in touch hun and take it as easy as you can.
Big hugs
xx
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Date: 04.06.2010
From: Lynn B

Subject: Re: I'm back!/update

Hi Abbie hope you are feeling better than yesterday, did you have any joy with your rheumy nurse? (hope so) I hope your feeling a bit better soon.tc x
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Date: 05.06.2010
From: Abbie

Subject: Re: I'm back!/update

Hi Lynn! Thanks for your concern. I've written the latest in the post about the Rheumy helpline XXX
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