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Date: 11.05.2010
From: nadine

Subject: confused in pain and getting angry please help

Hi All,
I ended up taking myself to A&E this morning as for the last 4 days I have had terrible pain in my right hip. This is a pain I have never had before. Couldnt get app to see GP until next week! I sat there for 3 hours was examined and then told as I was still awaiting a diagnosis from the rhummie there was nothing the hospital could do. The doctor I seen was very nice and even admitted that she was embarrassed by the fact tey could do nothing. She tried bleeping the hospital Rhummie but no response. I have been taking the Naproxin and Tramadol but its not doing anything.. The pain feels like it is in my right hip and each time I walk it feels like it is twisting tighter which causes more pain.. Who do I see? any suggestions. Now I am home my anger has turned to frustration and I just feel fed up with it all again. I was first referred over a year ago and nothing has changed. Pain killers are fine but they are not controlling the disease, or stopping it from escalating. An aunt has said she will lend me the money and that I should get a private assesment but I dont know if this will then impact on future treatment or appointments. My GP is generally very good but if you cant get to see them whats the point. Just dont know what to do .... My last appointment with my rhummie he wouldn't even talk about my symptoms!. I had been keeping a diary for my pain, swelling, new body parts hurting etc...To be honest I think he just doesnt like me. He refuses to even look at me and last time I was in and out so quick that I didn't even have a car parking charge from the hospital car park. I have had numerous blood tests which show nothing, Nerve test all normal and a bone scan which I am waiting for the results. Is there something I should be asking for? I am soo tired and ache all the time and after basically being told no one in St Helier hospital can do anything for me I feel like running away and hiding never to bother a medical professional again. I am like a dog chasing its tail going no where and I have run out of ideas to try.... Sorry to moan but finding it really difficult to be bothered after this morning. I think all this is starting to depress me a bit which is unlike me normally. Any suggestions welcome .. as I am drawing a blank ;-)
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Date: 11.05.2010
From: KayJay

Subject: Re: confused in pain and getting angry please help

I'm so sorry to read your post Nadine. Sometimes these " experts " can be very hard work. Would it be any use ringing the NHS Helpline ? I've done that in the past and you at least get to speak to a Nurse. Could you request that your GP to speak to you over the phone ? Mine is quite happy to do that but I just may be one of the lucky few ? Have you ever had Sciatica before ? I know that's a horrible pain - mine was caused by the Rhuemie jnr who insisted I could lift my left leg higher than I actually could so he just yanked it up OUCH !! but it came on in full force a few days after the physical exam. Hope you can get some answers quickly ;0)
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Date: 11.05.2010
From: Jill

Subject: Re: confused in pain and getting angry please help

is st Helier near Torbay?
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Date: 11.05.2010
From: Verity

Subject: Re: confused in pain and getting angry please help

Its Jersey!
god Nadine, that sounds really tough. Its shockin the amount of ppl that get fobbed off by docs. You must keep determined to get sorted. If it is a serious condition then youre better being safe than sorry surely?? Keep on at them Nadine. If you know in ya heart sommets not right then then you gotta do whats best for you. Piss em off until you get what you need lol

Take care xx
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Date: 11.05.2010
From: Sally

Subject: Re: confused in pain and getting angry please help

hi Nadine, perhaps you could do what I have just done today which is write to your rheumy and send a copy to your gp or vice versa. I am caught between two camps and not getting any answers from any of them. Rang my GP last thursday but no response so felt had no option to write. appointments not available for 3 WEEKS!
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Date: 12.05.2010
From: Abbie

Subject: Re: confused in pain and getting angry please help

Just reading this thread I really feel for you Nadine. Could you maybe request to see another member of the Rheumy team as you're entitled to 2 second opinion. I also feel so lucky when I read of people who can't get to see a GP when needed. At our surgery, If u want to see a specific GP you phone and are seen no more than 48hrs later but If you need to be seen that day you phone up and the duty dr will call you back and assess your problem and give you a time slot that day to be seen. I feel blessed. When I was seriously ill in 2007, before I was admitted to hosp for 8wks my GP would come to my house to see me every other day. Sometimes she's been my gaurdian angel. Anyway back to the point. I hope you get answers soon and please check in with us and keep us posted. X
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Date: 12.05.2010
From: Jill

Subject: Re: confused in pain and getting angry please help

Hi Nadine, that is terrible, at my hospital, there is only One rhummy, the rest r registrars, so mb u wont get to see someone different.....I think u Must go back, but take someone close to u, friend or partner, a strong person that will pull that ignornat man up when he does Not look at u, how insulting is that!? that way u will get symptoms sorted, becos the other person can speak up on your behalf?...dont go alone again ok....he has a duty to u....let ya GP know how this rhummy treats u..... stay positive if u can, hard I know, tc ŠJ
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Date: 13.05.2010
From: Lynn B

Subject: Re: confused in pain and getting angry please help

HEY Nadine Jill Is right My rheumy was same, never looked at me made me feel like piece of phoo putting it polterly, never spoke to me, just kept looking down at his paperwork . I lost my rag and" said look at me" I am the name you have got there its my face its my body talk too me not at me, its me you want to go on these drugs. Talk to me, ask me advise me tell me wot you think . And he has he know looks at me when he is speaking, although i bet it p....s him off but we do get on better.tc xx
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