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Date: 15.04.2010
From: Della

Subject: Hi All

hi there been a while since ive been on trying to catch up with all the posts. had quite a bad time of it lately physically and emotionally but went to see consultant yesterday and he had decided because my esr and crp is still all over the place and is still in the 20s and 30s he is going to be putting me on the mtx feel a bit scared about going on it but he seems to think i will improve so got to try it as i feel at the moment that i haven't got much of a life up one day down the next. Just in agony everywhere most days as i now have it all over most of my body now and not just my hands. Anyway enough moaning ona brighter side im glad the weather is picking up and had some lovely sunny days roll on summer just need to lose all this weight ive been saying for the last 5 years lol. Hope you all stay as painfree as you can ((((hugs to all that need it ))))xx
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Date: 15.04.2010
From: KayJay

Subject: Re: Hi All

Hi Della. Like I've said on your other post if they do put you on the MTX they will monitor your bloods etc so they should see if it does not suit you. I think there are other meds they can try as well. Have they tried Plaquenil yet ? I'm on that but I've had diarrhea and feeling sick but the Rhumie Nurse says it's more likely to be the Iron tablets I've been put on. Good luck with losing the weight - I'm trying to shift a few stone and it's very hard when you can't exercise isn't it ?
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Date: 17.04.2010
From: Jill

Subject: Re: Hi All

whilst I was in hospital having GB out, there was a young male nurse, well 34, hes on MTX, Enbrel, and Arcoxiz(anti inflamatory) he told me that the Arcoxia(im on that) puts on weight, and makes it hard to shift weight! altho Arcoixa ia onwe of the best anti inflams, and most expensive compared to other ones, im going to see my GP and ask if I can change to a diff one with regards the weight side affects.....now I realise that whilst I was barely eating during this terrible episode of GB, altho lost some weight, as I was harldy eating, I trukly thort i shoukld have dropped a couple of stone(not too overweight) but now I know Y!...... so anyone can tell me what type of Anti inflams they r on, I personally dont give anti inflams much resepct in terms as helping with flare ups, i rely on the MTX and Enbrel for that, so I think I will try something Less Fattening LOLOL....whos on what type, need them long term tho.....cheers
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Date: 17.04.2010
From: Verity

Subject: Re: Hi All

Ive been takin 75mg diclofenac twice daily for the las 10 yrs or so. None of the others have seemed to work. Did ya say you'd had a bad reaction with diclofenac or am I just imagining conversations?!?! lol
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Date: 18.04.2010
From: Abbie

Subject: Re: Hi All

Hi all! Unfortunately weight is often such an issue for us guys due to all the weight gaining meds and our pain induced inactivity, If you Google seated exercise DVD, a few come up and you can pick one good for you! I have one and swear by it. I have put on 4stone since 2007. I aswell as other weight gaining meds was on 60mg pred for 1yr from 2007 then it took 10months weaning off and had depot steroid injections and been on pred off on now since June last year. It really gets me down but I guess I'd rather be a bit weighty than have awful symptons. Been on morphine 4wks now which has zapped my appetite so who know's may have evened itself out now lol. X
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Date: 18.04.2010
From: jill

Subject: Re: Hi All

Thanks Abbie and Verity, yea Verity, ya right, u have a great memeory, I hated voltrol(diclofenic) never helped me at all.... but is Diclofeniv an anti inflam? thort it a painkilller?

Abbie ya right, too easy to gain weight, but at least we all know in here that it happens to us all....not becoz we r scoffing rubbish, but becos of lack of mobility and the rotten Fattening meds!
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Date: 20.04.2010
From: Abbie

Subject: Re: Hi All

Damn right Jill! I do often worry that people think, God she's fat, she must eat crap! Especially when u watch that fatty and skinny prog on ch4. I was bulimic 4 9 and half years so when trying to lose weight after hefty lot of steroids, said to GP (not my usual one) i'd like to loose weight but in a healthy way because I worry If I don't diet supervised I might get ill again. Well she said there was a group I could attend. Couldn't believe it, when I got there it was ok coz I actually felt slim (i'm a 26) compared to some there but as group got going it became clear GP had sent me to group for binge eaters. Bloody woman must of looked at me and thought, God she must really put it away. Hasten to add, I left the group lol Argh! XXX PS. Sorry to butt in by the way but yes, diclofenac is an anti inflam, not a pain killer. It gave me gastro probs XXX
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Date: 20.04.2010
From: Jill

Subject: Re: Hi All

Abbie I was anorexic in my 20s, even to this day, years on, I still worry about food, nitemare huh....prob y ive got this dreadful disease...anyway ya did the right thing in leaving....as ive gotten older, ŽI dont feel overweight, just want to lose a stone, mite change my Arcoxia anti inflams LOLOL tc Abbie xx
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Date: 20.04.2010
From: Verity

Subject: Re: Hi All

Hey guys, Ive also had eating disorders in the past! At my worst I think I lost over 2 stone in 2-3 months. I just totally refused to eat and if I did id throw it back up. Luckily though I had very supportive friends and parents (nosey parents that go through my diary!) I started to get help just before I went lower than 8 stone. Even now I don't eat properly. The meds are also putting me off food (which I hate anyway) but because of my mind Im actually not too bothered. Its ridiculous! I know its stupid. But it is what it is I guess. I think growing up with arthritis really affected my self esteem but also made me hate my body to the point of self harm and refusing it food!

Ive just realised everything Ive written and am sorry for going on but it must have needed to come out lol Ive had a very frustrating day at work too (Ive already complained to a company we get graze boxes from and Im sure I could have been nicer than I was lol)

Hope everyones well : )
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Date: 20.04.2010
From: Lynn B

Subject: Re: Hi All

Hey Verity I think you might call me one of those (nosey parents), I have a daughter just like you, you remind me so much of her in the things you say. You realy do sound like you have been to hell and back,with all of your years of suffering with arther, I think you are being to hard on youself we all have s....y dats so wot.. I bet the company you complained to didnt even notice. take care of yourself. xx
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Date: 20.04.2010
From: Verity

Subject: Re: Hi All

Hey Lynn,
I hated them for it at the time but Im so glad it came out when it did coz things could have got a lot worse. I havent even had a reply from that company, now i know the email wasn't that offensive lol
xx
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Date: 20.04.2010
From: Lynn B

Subject: Re: Hi All

Verity dont worry it will all come out in the wash... as they say, and tomorrow is another day chill girl. and if there annoyed then thats there look out, bet you get a reply tomorow...tc xx
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Date: 21.04.2010
From: Abbie

Subject: Re: Hi All

Hi Verity I kept my eating disorder from my Mum for 7yrs and it was Only when I was beside myself to a great extent that I could tell her and even now I can Never talk to her about it and could never use the 'B' word when talking with her. Crazy really coz we are so close and share most things. I think I would've died If she read my diary. The nearest thing to a diary of mine she read got me a two month admission to the psych hosp lol. I don't write anything down now Incase it's 'found' XXX
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Date: 21.04.2010
From: Verity

Subject: Re: Hi All

I know what ya mean, I dont tend to use a diary anymore. Kinda why coming on here is so helpful I guess. I find I can organise thoughts when I write them down.
God 7 years Abbie, how did you cope for so long. That much have been so tough. Fair play. How are you with eating now? I still cant get my head round eating 'normally' and get really down if I put on weight. Its really frustrating!!

Hope youre OK hun xx
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