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Date: 04.03.2010
From: Sally

Subject: welcome back Jill!

Hello darlin'
How lovely that you are back with us! Sorry to hear you've had such a rubbish time in hospital but glad you are better and home now. Want to hear what's been going on when you are ready but just so pleased to have you back.
Sally xx
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Date: 04.03.2010
From: valh

Subject: Re: welcome back Jill!

great to see you back we all missed you take care and take things slow you not been out long
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Date: 04.03.2010
From: Lynn B

Subject: Re: welcome back Jill!

Hi Jill great news!!! So glad to hear your back,take it easy, and take care xxxx
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Date: 06.03.2010
From: MOONFAIRY

Subject: Re: welcome back Jill!

Hey me Girlie how's you, been quiet without you on here, i am still recovering it is such a long process slightly going quietly mad lol, hope to speak to you soon loves ya xxx x
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Date: 06.03.2010
From: KayJay

Subject: Re: welcome back Jill!

Hey MoonFairy - nice to hear from you. Hope all is well ? xx
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Date: 07.03.2010
From: Jill

Subject: Re: welcome back Jill!

hi gang, soz not been on, even tho been back from hosp a week tomoz, still bliddy struggling!...registras at that bliddy hosp told me my gall bladder was Inflamed!! consultant said it isnt, glad it isnt, but another consultant said they will Not remove GB even tho it has 6 stones in there, and the stones can move into the biliary duct, or pancreas, well u lot know me, I get the bliddy extreme of everything! my stomach lining is inflamed(Gastritis), prob due to meds i take, cna happen to anyone, infection causes it, anyway, I still cant eat a meal, just small bits and peices, havnt had a full meal in nearly 8 weeks now!...im seeing a stomach surgeon as I need a Colonoscopy(lovely) up the whatsit lol...will find out for sure then about my Gall bladder to be removed, its a simple op(assiming GB isnt inflamed) they do it by key hole, and out next day! no way am i walking this earth with gall stones inside, someone in there had her stuck in her Pancreas!....if I dont eat, then im ok....lol...weight loss is good, but not in the correct way....I havnt had a chance to read all the posts, but I will get around to it.....Thanks guys for all your thoughts and kind words, lots love Jill xx
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Date: 07.03.2010
From: KayJay

Subject: Re: welcome back Jill!

Hey Jill sorry to hear you have 6 of the little bu**ers in the GB - I've got 3. Spoke before about the GB and associated problems and you have my every sympathy !! Have they put you on Lansoprazole ? They took my pain away quite quickly. Don't worry about the Colonoscopy ;0) it's not as bad as it sounds !! Hope you are managing to be pain free and it's greaattt to have ya back.
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Date: 07.03.2010
From: Jill

Subject: Re: welcome back Jill!

Hi Kj hosp put me on Omeprazole...guess same thing ? gastro resisitan capsule, with regards the GB, I dont eben have a high fat diet, I have always had low fat, I dont eat any dairy produce wotsoever, however I know there r hidden fats in foods...the funny thing is, they gave me a Low fat diet sheet...guess what, everything they put on there NOT to eat, LOL I dont eat at all!!mind u Alchol can do that, went thru a stint where I drank a lot of wine....dont now, it owrries me tho KJ that they can and do travel around the body, last thing I want or need, so i am going to ask them to remove the Blighter!..how U doing otther wise? hope ya well x
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Date: 07.03.2010
From: KayJay

Subject: Re: welcome back Jill!

Hiya Jill. I've had mine for about 11 years they told me they can travel but mine seems happy to stay put !! Could be hereditary ? as Grandma had them and had to have emergency op because they got caught somewhere else in her body ? I can well remember her showing me them in an old jam jar when I was wee !!yuk!! She seemed proud of them anyway and I suppose to get through the op circa 1940's was a feat in itself !!

Yeah the Omerprazole are in the same family as Lansoprazole I think there called Proton Pump Inhibitors or something like that.

I got a final diagnosis of RA a few weeks back they put me on Plaquenil b'cos the RF was " out of range " in the blood test. Got appointment this Tues with the Rhumie Nurse.

Take care xxx
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Date: 07.03.2010
From: Jill

Subject: Re: welcome back Jill!

Awwwww KJ, nasty i know, but at least u now know what u r up against, the rhumie nurses r brill, they sure know there stuff in the rhumatology field...my nurse came and visited me in hosp... anyway KJ lots luck and love for Tues ok. chat when u find out what they plan for u...tc, im off for a while now, knackered...prob back on tomoz ok....xxxx
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Date: 07.03.2010
From: Sally

Subject: Re: welcome back Jill!

Hi Jill, sorry to hear about your gall stones. My aunt had her GB removed and it went fine. Hope you can persuade them to take yours out! My dad had a colonoscopy and said he didn't feel a thing, so don't worry about that. My family seem to have had most things between them lol!

Good to see you up and about!
love Sally xx
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Date: 07.03.2010
From: jill

Subject: Re: welcome back Jill!

hi Sally, good to hear from u, hope u r keeping well, how r u coping daily? know after a while when we r in here, we help others, but dont often talk about our origional reasons for coming in here, so thats y im asking...u seem so strong...tc sweetie x offf to bed now xx
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Date: 07.03.2010
From: Sally

Subject: Re: welcome back Jill!

I'm ok thanks, dealing with it quite well all things considered. Got a few things from OT around the house which helps. Also mega jab of stds which also helps lol! Knowing peeps like you also helps :) Been lots of changes in my life over the past year and it takes time to adjust so not being too hard on myself, though some days it's a bit of a struggle. Think of my mum a lot which makes me sad. Esp with mother's day coming up, going to bury my head in the sand over that one!
speak again soon. xx
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Date: 08.03.2010
From: Jill

Subject: Re: welcome back Jill!

Sally ya know wot? im a Mum, yet everytime its Mothers day, I dont think its for me, I think of My Mum, its Our Mums day, altho its my Kids day for me, if ya know what I mean......makes me sad, cant walk past the blidddy cards all over the place! know how ya feel Sally, we were/are both close to our mums....wehn I get low, boy do i cry for my Parents, mainly My fab Mum, still fell like an orphan, think we always will....this pain makes it harder Sally i agreee, the emotions we get, think its becos when we were little, even in my 20s, when i was unwell, My Mum looked after me, so loving.....that hurts...but I know my parents are close by, just around the corner, that gets me thru my days...tc sally xx
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Date: 08.03.2010
From: Sally

Subject: Re: welcome back Jill!

Oh Jill you are are so lovely! Yes, you are right and of course my Mum is with me, even more so now in some ways. I have to remember all the good stuff. Everyone says the first year is the hardest, all the aniversaries etc. I keep seeing things I think Mum would like and then remembering she's not there. Of course I don't want to forget her either :)
thanks again for your kind words - I know you understand and that helps in itself.
How are you feeling today?
xx
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Date: 08.03.2010
From: KayJay

Subject: Re: welcome back Jill!

Sorry to hear about your Mum's guys. I've still got mine but she has Dementia and has " not been with us " for the last 10 years if you know what I mean. It breaks my heart every time I visit because it's still Mum's body that is here but not her personality or spirit. She was a fab Mum and a best friend and I miss her like hell.
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Date: 08.03.2010
From: sally

Subject: Re: welcome back Jill!

Hi Kay,I'm sorry to hear about your Mum - that must be really hard to deal with.
xx
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Date: 08.03.2010
From: Jill

Subject: Re: welcome back Jill!

Hi KJ, that has gotta be the hardest experience, I cant imgagine that at all, Dementia is a dreadful illness, that much I know,and I guess U have lost ya Mum like we have, so KJ your news is terrible, much harder than ours, I think anyway, also that illness scared the hell outta me, in terms of me getting it, having said that, when ur not knowing ppl, I wonder if it wld scare me(if u get what I mean)guess I wldnt know any different? maube u cld tell me, sorry for being so ignorant on Dementia, my Daughter is in placement for college and she is working with the elderly, some have Dementia, and she has told me some things, Y cant they find a Cure for this illness? KJ all i can give u is some Jilly Hugs ((((((( xxx))))))

(((((((4 sally too)))))) xx

ps sally saw my GP today, refering me Urgently to surgeon, asking for Gall Bladder to be removed, everyday Im getting more pain, been talking to KJ about it, and KJ the pain is now spreading around to my shoulder blade! typical GB symtoms...im ok tho, coping at mo, feel better I have a great GP xx
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Date: 08.03.2010
From: KayJay

Subject: Re: welcome back Jill!

Jill there are many types of dementia my Mum has one of the rarest forms called Fronto Temporal Dementia [ where the damage/shrinkage is specifically in the fronal lobes ] . Alzheimers is usually all over the brain [ or global ] . With FTD the strongest symptom is drastic change in personality, like they become very selfish and lack insight into others troubles. This is totally different to how she used to be as she was the most thoughtful Mum anyone could have. She also lost her speech almost immediately. She also has compulsive obsessive / repetetive behaviour. There is no medicines or cures for FTD as the brain dammage cannot be reversed.It is one of the most cruelest of Dementia's. Although none of them are fair and with people living longer there will be thousands more with it in the future. I would advise your daughter to try to look into all the different types of Dementia's as this does affect the way the people behave. Some can be very agressive - thank god Mum isn't one of those. At the beginning she used to get her words mixed up and got very worried about it we just thought it was nerves but sadly not. What has made things a lot worse for us is having to sell her much loved home to pay the 2000k nursing home fees per month. She would be devastated if she knew about that.

Does the GP know about the pain in your shoulder blades Jill ? and if not I would get back to them and tell them.
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Date: 08.03.2010
From: sally

Subject: Re: welcome back Jill!

Kay, your Mum's dementia sounds awful. Jill is right, it must be much harder for you to watch her suffering and for you to lose your Mum in that way. My uncle had Alzheimer's and that was pretty bad, he did get violent in the end and my aunt had to find a home. It's a tragic disease.

Jill, am really pleased your gp has referred you. You don't need gall bladder pain on top of everything else. god knows you have enough to deal with!
xx
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Date: 08.03.2010
From: Jill

Subject: Re: welcome back Jill!

that is terrrible KJ, seem to remember u telling me tht b4, tht is so tragic re the house, and the costs of it, blidddy dreadful! I worrry about my brother who has MS, but has Temporal Lobal siezures....he had MS diagnosed when 22..hes now 52, looks amazing, but gave up work reluctantly few years back, he use to ride a superbike up to the docklands, great job etc....the lobal seizures made him give up...too dangerous...hes under lots medication, as u mentioned your Mums Fronto Temporal Dementia, it sounded like my Brothers Temproal lobal siezures...I dont know if that cld happen to him...they still cant get to bottom of his conditon, its kinda rare to get that with MS, altho does happen, but his MS has been the 'gentle type' so to speak over the years....always fit until last 5 years with the TLS! so sad........ well KJ u have just taught me something, I had No idea there were many diff types...i knew a girl whos mother use to set the house on fire, had no choice but help her and put her into a good care home, she felt like shite!...gotta be hard....and ya right about whatu said, the longer we live, the more people will get it, becos we r living longer thatn we have eve b4...its normal to hear that someone has reached 90....all I can say to u KJ, is that your Mum is so loved, that she is being given the best care u could give her, she may not realise that, but its your Heart that does know.

Gp knows bout shoulder blades, thats y hes writing Urgently....mind u, he said it will be 3 week wait...if it gets worse KJ, Il be Knocking on A&E doors, trust me!!...thanks for support x
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Date: 08.03.2010
From: KayJay

Subject: Re: welcome back Jill!

Jill if you have any worries about your bro's temporal lobe seizures then get him to request an MRI scan. Sounds like my son he's bike mad !! Scares me to death he does.

Mum was fine before she started saying the wrong words then acting strange. We had no choice but to put her in a nursing home when she started to stop cars coming down her road asking the drivers for a light for her ciggy. xx
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Date: 08.03.2010
From: jill

Subject: Re: welcome back Jill!

OMG ....just had a wee giggle tomyself there KJ, just picturing her bless her heart, on the serious side of things, she was bliddy lucky they did stop...bet she was a right larf your Mum.... regards my bro...he has regular brain scans, jsut a few, well maybe 10/12 spots on the grey matter, apprently that is low, hes well looked after and goes to the best hosp for everything, they do look after him, thing is, he doenst pass out, like in epilepsy, altho they r like epilespsy, hes awake, when the werid strange feeling goes thru him like a bolt!...nitemare.... ok gotta go bed, fella just bought a New monitor, trying it out, cost 160.00 and itys bliddy 'Orrible! lol shhhhh dont tell him xx
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