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Date: 23.07.2007
From: Barbara

Subject: Feeling very alone.

message: I am 51 years old and was diagnosed with RA at 32 after the birth of my second child. It started with a pain in my hip and quickly spread to most other parts of my body. When I was diagnosed I felt as if myworld had collapsed I had a 5 year old and a new baby and the doctors wanted me to give up breast feeding and go on o cocktail of drugs. I persevered however and just took large doses of Ibuprofen. My right wrist became damaged and deformed (slightly enlarged). After lots of research I bought a book by Margaret Hills and tried the Cider Vinegar cure, sticking to it religiously after about 6 months my RA improved beyond recognition to the point where although my wrist hurt from damage it was not really any bothe in other joints.

Like most things whenyou feel better you stop, but I remained OK for about the next 15 years. Then In started to get pains in my feet and my left wrist started to swell, my neck permanently aching although the xray said there was no damage to my neck. I've had steroid injections in both wrists and my right foot anf these did help in initially.

I was stable and reasonably ok and we decided to move to Spain....we sold our house and as we already have an apartment here decided to live here for a year to see how we felt. This was incredibely stessful even though it was something I had wanted to do for years, physically I found it hard and know I overused my joints whenI shouldn't of.
My husband is commuitin in the short term coming over every 12 days for 5 days, this is had too.

I have been here 6 weeks and in the last 3 weeks have been in agony, I dont know what to do with myself, both wrists, both feet right knee neck both shoulders and now the pain is running down the left side of my back.

I am not on any prescribed medication but think the time has come for me to try something I need some quality of life back...oh yes I am also peri menopausal which I know is not helping..

Any help, suggestions, support anyone can give me would be great as I am feeling very alone and very sad.
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Date: 23.07.2007
From: Kish

Subject: Re: Feeling very alone.

Hi Barbara,

Yes, Arthritis sucks big time! I try to look into positives than negatives. It's hard I know but TRY not let arthritis control your life. What you need is first is to see a specialist as you've mentioned you have not been on any prescribed medication and have just moved to Spain. The sooner you do this the better. Let us know know how it goes. Good Luck!
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Date: 24.08.2007
From: Cherie Cliff

Subject: Re: Feeling very alone.

Hi Barbara, seems like everything has happened at once, which brings lots of pressure. I think that the first step is to go to your GP & ask to be referred to Consultant. You do need some professional help (at the moment). Please know that you're not alone I'm 48 have RA & various moans & have felt like you do in the past. You will come out of the other side. I too am experiencing the joys of menopause. My hot flushes are something else... I would be very happy to talk to you via e-mail so I can provide you with some support. My name is cherie & you can read my story if you click on the link above.
If you want to chat via e-mail just post a message here & I will give you my address. In the meantime know that you're not alone I have heard stories like yours so many times in the past & in my experience things do improve with the right treatment & support. Good luck...
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Date: 07.09.2007
From: Gina

Subject: Re: Feeling very alone.

just alittle note note to say your in my thoughts during your difficult time as Ive gone through loneiness and period of joint problems etc. and to say there is light at the end of the tunnel. you will worked through this sticky patch. when you get the right treatment and support will help and good luck in everything you are doing and say to yourself IM SPECIALevery day adn try to lokk at the postives even if they may seem little.GOOD LUCK
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Date: 15.09.2007
From: Gina

Subject: Re: Feeling very alone.

hi Barbara, just wondering how you are doing?have you been to drs and been referred to a consultant and whether things have settle down for you a little bitis your husband still commuting every 12 days and then stayin for 5or has he been able to spend more time with you. I been thinking of you this evening take care sending special wishes to you to help you through.
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Date: 18.09.2007
From: gypsy

Subject: Re: Feeling very alone.

hi barbara, i hope you are managing o.k. i have to say i agree with previous comments a consultation with a specialist is your best chance of improvement there are some great new drugs now which hopefully will give you a much better quality of life. ask about anti t.n.f. medication it seems to be good for quite a lot of people. in the meantime keep on keeping on you are not alone i do hope things get better for you, kind regards gypsy.
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Date: 09.10.2007
From: donnie

Subject: Re: Feeling very alone.

The stress of moving has caused some of the problems and you need to rest and take OTC NSAIDS as much as possible until you can see a doc.
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Date: 26.07.2008
From: Trish

Subject: Re: Feeling very alone.

Hi, I was diagnosed with RA and Fibromyalgia after coming off HRT, in 2004/5 within two months of coming off it I was diagnosed with RA and Fibromyalgia. Although some 5 years earlier I had an operation for Tennis elbow and Carbal tunnel syndrome neither helped and it was suggested then that 'had I considered that I might have fibromyaliga' I now find I am suffering from hot flushes which I dont know are menopausal (I had hysterectomy some 24 years ago and was on HRT for some 24 odd years)or due to my condition. I am a very positive person and try very had not to look on the black side of things. But as this disease progresses I find it very had to remain positive, although it hasnt changed my sense of humour.. yet! I would dearly love to talk to anyone with RA or Fibromyalgia.
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