Date: 18.11.2009
From: Lydia
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Subject: Hello everyone :-)
Hi all ! I am new here and just wanted to introduce myself. Lovely to meet you all I am 27 and have suffered from chronic joint pain for about 4 years. Just had my first Rheumy appointment and he suspects some sort of Arthritis not sure which at the mo. Rhuemy ordered tons of bloods (loads Ive never even heard of) and xrays and I have to go back in 12 weeks. He reckons once all these are back he can make an exact diagnosis and then we can make a plan for treatment. Not sure how this all works and was wondering about other peoples exeperiences of getting diagnosed and best treatments etc. Also I have a long history of chronic gastritis and he seemed really interested in this but didnt say why, anyone got any ideas would love to know?? Take care all big hugs
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Date: 18.11.2009
From: karen
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Subject: Re: Hello everyone :-)
hi i have got rummmy arthritis been digonised now 4 about 4 months and this is a good web site i have found it really helpfull .and lots of nice people on here with good advice if need it .so am sayin hi and welcome
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Date: 19.11.2009
From: phil
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Subject: Re: Hello everyone :-)
hi lydia
ive had RA for 9 years now and was diagnosed very quick.welcome to the forum
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Date: 19.11.2009
From: Jo
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Subject: Re: Hello everyone :-)
Hi and welcome. I hope you do get a quick diaganosis, sorry to say its not always this way. It took 4 or 5 years for me to get a diagnosis of imflamatory arthritis, which was this August. Some times blood and xrays don't show what pain we are suffering:(
But hopefully if won't be like this for you. Love and Hugs Jo
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Date: 19.11.2009
From: gary
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Subject: Re: Hello everyone :-)
hi lydia
i was diagnosed with inflam rhuemy arthur about 3 months ago. just had my 2nd rhuemy app on monday. i have been prescribed prednesolone and methrotrexate. will start the mtx on sat as ive heard it makes you feel bad the next day.hope they sort u out soon. take care
gary
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Date: 20.11.2009
From: jill
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Subject: Re: Hello everyone :-)
Wow Jo and Gary, U have same type as me!!! blimey im gobsmacked, cos most in here have R.A..... gary and Jo, does your conditon attack all your joints? had any corrective surgerys? ive had blidddy 7 ops in 6 years..... anyway take care speaks soon x
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Date: 20.11.2009
From: jill
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Subject: Re: Hello everyone :-)
Lydia hi there......im jill....have Reiters disease, DDD and Chronic Inflamatory arth due to the Reiters....... ok I* think I Might know y Rhummy is interested in the Gastric side of things....... Often gastic probs can trigger off arthritis, tht is my understanding ok..... I know this only becos I have Reiters Disease, I had terrrible food Poisoning years ago, I also have a defective Gene HLA B27.......the fact I got food poisoning and the defective Gene, Meant I was Predisposed to gettting Reiters Disease...... and I have....the defect Gene is hereditary and my eldest gal has it"..... anyway, that began all my Problems, having tum bug, getting Reiters and now suffer chronicall,y with Inflam artha........ so mb, just mb hes interested in the Tum gastric and looking for a connection.....hope this kinda helps..... he may find the reson as to Y u have so much joint pain.......... iwas 26 when all this began for me...... the meds r so much better now, and u will get the best treatment, when all tests r thru....seesm like a long time to wait, but in the scheme of things, it isnt, bearing in mind tht U have had pain for 4 years, hope that makes sense...... waiting will make sure He gives U the correct meds ok...... and the correct diagnosis..... all I can say to u now Lydia is, make sure U see GP, tell him whats what, he shld know already, tell him U NEED decent pain killers until u get diagnosed.....so many good meds out there, u shldnt have to suffer ok...... hope this answers some of your questions...... welcome to the group and hope u stay...we r a gr8 bunch, and some of us r even Nuts LOLOLOLOL......U will find out the ones that are..........(me) lol...take care Love JIll x
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Date: 20.11.2009
From: gary
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Subject: Re: Hello everyone :-)
hi jill.
only started suffering about 4 months ago.pain in the knee's elbow's toes wrist. swollen ankels and fingers.started pred on monday and will pop a mtx on saturday as i have heard it doesnt make u feel so good ( and i want a few beers tonight lol )
take care all
gary
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Date: 20.11.2009
From: jill
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Subject: Re: Hello everyone :-)
Gary hi there.... remember to take the MTX at night, bedtime, that way its working thru your system whilst u r sleeeping, if u sleep tht is....due to pain etc....also gota tell u, drinking and being on MTX will make ya sick....(i know lol) gave up wine now.....take care and good luck
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Date: 21.11.2009
From: gary
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Subject: Re: Hello everyone :-)
just read your post jill.a bit late tho as i took mtx tab at 3 oclock. oh well,just have to see what happens.the beer went down well last night and feeling fine. feet a bit tender tho cuz i couldnt resist a boogie
gary
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Date: 22.11.2009
From: sarah
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Subject: Re: Hello everyone :-)
hi im also new here never thought of this before. i have sero-negative athritus (rhematic) i only got diagnosed a year ago but i am only 19. sarah
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Date: 22.11.2009
From: gary
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Subject: Re: Hello everyone :-)
hi sarah welcome to the forum
some great people on here so if u need some support or have a moan just fire away and im sure someone will help.
glad to say i havent had any side affects from the mtx as yet so feeling good today. can anyone tell me the best time to take the folic acid tablet.
cheers
gary
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Date: 22.11.2009
From: lisa
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Subject: Re: Hello everyone :-)
hi sarah welcome im new too but have felt really welcome and always get a response its lovely someone can always share an experience x
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Date: 22.11.2009
From: sarah
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Subject: Re: Hello everyone :-)
thank you very much i sometimes people dont realise the pain im going through menatlly and physically... but i do try to mask it alittle.
good that your not see side effects today, i wish id have one of those days :) x
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Date: 23.11.2009
From: Lydia
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Subject: Re: Hello everyone :-)
Thanks for the info re: gastro Jill, really interesting. The G.P that finally referred me to Rheumy suspected Reiters as I had a chest infection not long before this most recent flare and she said that this and funnily enough food poisoning can trigger them. What blood test did they do to find the defecting gene, would be interested to know as Rhuemy ordered a ton of tests and although I scoured the net couldnt find out what some where for. Pain pretty bad at the moment, mornings are a nightmare have to wake up 4 hours earlier the usual as it takes me about 2 hours to get moving and after that I am still stiff and slow as. Hit an all time low this morning when I got in the bath and had to call my hubby to come drag me out because I couldnt do it alone. Poor man its bad enough that I wear so many joint suppports that It looks like he married an egyptian mummy, poor man now has to carry me about as well. Have made appointment to see G.P re: more pain relief as suggested, try and keep pills to a minimum if I can, find that too much medication tends to worsen the gastro side of things. Somewhat of a viscious circle but no choice cant face another repeat of this morning. Big hugs to all
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Date: 25.11.2009
From: jill
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Subject: Re: Hello everyone :-)
Hi Lydia...so glad u have a hubby that understands....I was ikn hosp in 2002, I presented to them at the time with Masssive pain in all joints, Inflamed wotsit below, and conjunctivits....typical sysmtoms of Reiters,,,,However, I Must stres i got mine thru food posioning and sore throat, My dad at the time was dying of a brain Tumour, it triggered it all off, due to the tmu, and sore throat.....I had to get admitted, they did a simple blood test for HLA B27.. mine came back Pos....some people have HLA B27 Neg.... so i am HLA b27Pos...defective gene...simple blood test, sadly my daughter has it too... my rhumatologist said out of my 5 children that I have 2 mb 3 will have saem defective Gene....only had my two gals tested, as they have had aches and pains..my eldest had teh defect.....she is now careful NOT to eat out at restaurants, fastfood outlets etc etc...Hygiene in Everything!.......also However, U can geet Reiters Via an STD.....Not suggesting U did lol.....but I was a virgin so was my hubby at the time.....I was never Promiscuious(shame lol) at the time..... years on, the triad of symtoms, and blood test revealed Reiters......but Lydia, its not left me with Chronic Inflamatory Arthritis, be r all diff, and we all take symptoms differently...... mine happens to be chronic......... Lydia did U know that U can get help form Occupational therapists, they send u form, fill it in, and they will evaluate U, and what your needs are within your home, they will give U grab rails, extra Banister for up the stairs.... grab rails out side your hse.... they can give One off Grants, and they can also with a lot of Pushing, install Shower rooms into your home, assuming U cant walk Upstairs..... my bedroom is the 2nd reception room in my house....lucky its huge..... also Please tell me U r Claiming Disability Living Allownace...DLA for short!!!!.....Lydia, get back to me ok..... if u want my email addy, u can contact me there....if your happy for info on here, then im happy with that.....all of us can help u with the DLA side of things etc.... what type painkillers r u on? know u have gastric probs, but I take Opiates, and I have gastric probs, and im fine on them, as long as i take with food, im lso On Immune suppressants and Enbrel Injections to dampen down the destruction of this disease....... take care ok Lots hugs and love and support from Me, and the forum xxx
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Date: 25.11.2009
From: Lydia
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Subject: Re: Hello everyone :-)
Hi Jill thanx so much for your thoughtfull response. Sounds like you have had a real time of it with your illness over the years, it seems that your a real trooper, I very much hope that you have an easier time of things from here. I and (iam sure all others who use the forum) really appreciate you sharing your knowledge, so first a big thanks for that :-). I am not claiming DLA at the mo, I am a community care Social Worker by trade(although sometimes I feel like iam in need of some community care myself lol) so know quiet alot about benefits etc. This may sound really silly but until I get a frim diagnosis sort of feel abit of a fraud claiming guess part of its probs denial and me just hoping that this will all just go away amd never come back. Have spoken to one of the O.T's I work with and she has dug me out an old bath seat from the storage cupboard to borrow and see how I get on with, felt really strange using it this morning but must admit was much easier then being dragged out the bath lol. I am currently just taking naproxen and co-dydramol (tons off). My G.P dosent really want to prescribe anything stronger, and I havent been back since seeing the Rhuemy. I find that the pain varies usually I get 10 or so pretty days a month. Have had 4 big flares over the past 4-5 years were the pain gets unbearable and persist usually for about 12- 14 weeks then dies down. Its about 11 weeks in this time so fingers x'd ill soon get time off for good behaviour lol. G.P wanted to admit me when it first started but I point blank refused, like most others I hate hospitals and figured if iam gonna be sore and bored I may as well do it in the comfort of my own home :-) probably not the right attitude I know lol. Thanks once again for all your support big hugs to you and everyone else here. Your a great bunch and have made me feel super welcome. Big hugs xxxx
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Date: 26.11.2009
From: bsk
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Subject: Re: Hello everyone :-)
hi everyone, I'm new here as well and interested to read your posts. What is the difference between rheumatoid arthritis and inflammatory? I've recently been diagnosed with inflammatory (viral or reactive being ruled out)and I can't find out what the difference is. I am serum negative - is that the distinction? I've been treated with steroids up to now but it flares when I drop down. Will start methotrexate in the new year. It seems the treatment of the two are the same. Is that right? Any insight v. helpful. Thanks.
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Date: 28.11.2009
From: Kirsty
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Subject: Re: Hello everyone :-)
Hey and welcome!! :)
If your dianoses takes a long time, try not worry and keep on going. I've had 'arthritis' since December 08 and they still haven't decided which one it is!
I hope you have some answers soon!
Take care
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Date: 29.11.2009
From: bsk
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Subject: Re: Hello everyone :-)
hi Kirsty, thanks very much, so I am not alone! Since I posted I talked to another GP in my practice who was a bit more helpful. She said the management and outcome of inflammatory and rheumatoid were essentially the same so not to worry about 'labels'. I found that helpful. she also recommended I follow my consultant's suggestions as he is very good.
Thanks again. x
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