Date: 15.11.2009
From: lynh
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Subject: this disease just keeps getting harder
Hi everyone, i'm not normally one to let this disease get me down too often but today i just feel horrendous. I'm sorry to lay this all on you guys but know you will understand and although i've got a great and supportive family you just can't keep on bringing them down too.
Why so moany? Last night my husband and i were invited to a dressed up 'do'. I looked alright, yeah ok the shoes were comfort more than style but never mind. I thought I'd done all the right things to get organised, sleep in the day, altered analgesia times etc. But had a miserable night, nausea ++ so couldn't eat, tired and swollen joints cos of who knows what. Just wanted to go home but went with friends so didn't want to spoil theirs or my husbands night.
Anyone who thinks this is disease is just a bit of pain is deluded. Today after a horrid night's sleep looks like being great too. sorry everyone, feel so low.
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Date: 15.11.2009
From: valh:-)
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Subject: Re: this disease just keeps getting harder
hi lynh tend not to go to that type of thing as u never ar know how u going to be one day u can mannage most things and another just sitting in a chair to much. so do feel for u and understand glad this year work not putting on big do as it was horid not able to sit or dance just did not enjoy it at all but had to pretend to be having fun lol. get some sun if u can and rest good luck val
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Date: 15.11.2009
From: lisa
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Subject: Re: this disease just keeps getting harder
hi lynh i know exactly how you feel, its not just the pain its the feeling so low from side effects, you feel whats the point of dragging yourself out, ive been there so many times, people think because your out your obviously fine! i often think whats the bloody point! lol so never worry about moaning or feeling low your entitled to, you know it will pass xx ((lynh))
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