Date: 20.10.2009
From: karen
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Subject: alternative medcines
hi am just wondering has any orther vitamins or natural tablets helped anyone as have been told not to try anything yet till meds are sorted out .but just wondering does anyone take anything yo help with pain ect
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Date: 20.10.2009
From: val h :-)
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Subject: Re: alternative medcines
hi got oa and take glukomine and chond think it helps things much better at min. think it warm weather and swimming and walking helped a lot hurt a lot at the time but not had to take pain meds since been back wont last long but enjoying it while it lasts. good luck
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Date: 20.10.2009
From: karen
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Subject: Re: alternative medcines
i have ra and its in my feet an hands and knee and i would love to go walkin again
as i am so used to last summer was riding my bike at nights and swimming and walked for miles with my little one in his pram but just at the moment since all this i cant do any .am just wondering now should i push myself to walk if my feet are feelin okish and am awake long enough i dont know what to do 4 the best to rest or rry push myself .aghhhhhhhhh
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Date: 20.10.2009
From: val h :-)
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Subject: Re: alternative medcines
no do not push your self go to arthritis care they have exercises u can do that help keep strenth in your joints only do what feel right listen to your body with ra u have to take care not to damage joints little and often. i needed to get my joints going as they were getting stifer and stifer feet like logs of wood in a morning if do not exercise them and was getting weak . good luck when meds have kicked in u will be able to do more your body will tell u what it needs just trust your self swimming good if water not to cold
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Date: 20.10.2009
From: karen
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Subject: Re: alternative medcines
i ahve been 4 phsio today on my hands and usual they are both swollen but meds kicked in and had steroid injections so that helped but one hand is still swollen and really sore but what happens when i go back next week and say my feet are havin agood day and are not in as much pain will it help than thanks
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Date: 21.10.2009
From: Angela
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Subject: Re: alternative medcines
Hiya Karen, I take m.s.m. for inflammation as my stomach cant accept the anti inflammatories and it does help.My esr was coming down smashing on it, but the rhummy nurse advised me to stop taking it because she needed to check it out with the rhummy, so I did for 1 week and my esr flew up again, so I gathered as much information on it myself and took it back and she said I could take it again.She was worried that it was related to the sulfasalizine that I take but in fact it isn't.
If you go to www.msmguide.com it will give you information on it. Or google methylsulfonyl and you will find plenty of info.
I also take daily vit c, magnesium,and evening primrose just to keep my well being in order as much as I can,(I am 53 and have had RA for 18months by the way)So even though my bloods dont look good,I cant say I feel total poo my energy levels aren't bad, so maybe they help I dont know.
I dont push my joints but I do swim twice a week well I power walk in the water thats all I can do just yet.People look at me as if I have two heads but I dont care lol its better than nothing, and it takes my mind off my aches and pains.
I also watch what I eat and I know pasta, biscuits, pastries and crisp really make me feel bad so I avoid them.
For a long while I kept a diary of all the food I ate and how I felt every day to see if there was a difference and after a while I realized what made me feel worse so I cut them out.
My guess is if I still drank, and ate what I wanted,I would be suffering a lot more. I know its a pain but needs must.
Like you I am used to being very active, and I hate all this but I try to stay as positive as I can.
I know how hard it must be for you with a little one and all. But keep your chin up, and keep asking questions, I am sure you will find a plan that works for you in the end.
Take Care xx
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Date: 21.10.2009
From: karen
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Subject: Re: alternative medcines
ah thanks 4 that i think i will keep a food diary to see if that helps .have waklked to shop today which is 5 mins away and now my feet are in agony but am tryin to keep postive
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Date: 21.10.2009
From: jill9
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Subject: Re: alternative medcines
Hi Karen.....soak ya sore feet in a basin of warm water, put some bubble bath, mkes them feel nice.... the warm helps....your feet will get better, I know U think they wont, but they will....I have synivial inflamation in my feet, and when they hurt OMG i can barely walk.... so like Val said, do what U think is ok....dont push yourself, carry on with physion, they can help u with your questions, im sure they will say take it easy.... my feet use to be horrendous, but since being on the MTX and Enbrel therapy, ive less pain in my feet....r u on good painkillers? take care ok xx
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Date: 21.10.2009
From: jill
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Subject: Re: alternative medcines
Hi Angela, its good to read that u t so positive...welll done,got to admit, if I drink wine say a couple of glasses...i suffer with my feet so much more and my hands....so im cutting it out at the mo.....infact I prefer not to have any.....or il drink it...lol anyway keep well...love Jill x
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Date: 21.10.2009
From: karen
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Subject: Re: alternative medcines
hi jill yeah i do soak my feet and hands in warm water it wasnt helpin till just lately when i assume the mxt was kickin in .but when my feet are bad honestly i cant even put them on floor and cant walk great when they are okish lol.i dont drink since beenin on mtx which is hard as used to love a glass of wine or 2 .i take axcioa inflamtres tablet and paractmol i cant take any orther stronger pain killers as they just knock me out and am half asleep as it is and i have a 3 year old to care 4 .
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Date: 23.10.2009
From: j
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Subject: Re: alternative medcines
Hi karen I know its difficult, ive got a young family 5 kids in all to look after, the youngest is ten, but he has Aspergers syndrome(mild Autism, plus 16 year old with same condition) anyway, being a mum for me is hard too, I use to struggle with my probs when they were youger also, know its hard and a strugggle.... in the past I cld barely walk....but now U r on MTX hopefully there will be improvement...there is alo the Bilogic meds that help even more.... they have helped my feet and hands so much.... I also take Arcoxia inflams, they r suppose to be the best...but remember they r only just an anti inflam with very little painkiller in them.... there r deffo better painkillers out there, but like u said, they knock u out, again after a while, they stop knocking u out as ya body get use to it....im on opiates(morphine) and they dont make me feel anything...but help lots with the pain... I get tired due to my disease... and i want to fall asleep during the day, not becos of the meds im on, its the condtion..... anyway Tramodol work well for pain, u really do need a decent painkiller....mb u can take some when ya hubby is about, say at wekends, that way u get some pain relief....... take care Jill x
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Date: 23.10.2009
From: karen
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Subject: Re: alternative medcines
hi j yeah i take arcoxia which really helps with inflamation but tram adol just knocked me out compLETLY and with a 3 year old its hARD TO DO lol hes here now helpin me he thinks .i have been feelin really ill at the moment but have been told today i have low iron levels so that could be why am ill so will see what happens now am on iron but thanks it helps to know its just not me
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Date: 24.10.2009
From: jill
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Subject: Re: alternative medcines
Karen ya right there...its all of us in here that have these probs.... last night I slept better, but woke with terrible back pain, and elbow pain...back isnt so good today, and even tho I take Opiates, the pain still gets thru, elbow is still bad.... gotta think carefully about If i have my spine op this coming year or not.... if I have the op, I will be out of action for months and mo ths....deffo wont be able to get online at all for months, the last spine o I couldnt sit for a longggggg time...think everyone thort I was dead that new me LOl.....anyway....keep your chin up, sstay Pos, it will help u get thru this nasty time at mo xx
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Date: 24.10.2009
From: karen
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Subject: Re: alternative medcines
thanks jill this site has really helped me and i hope you feelin better are you def havin your back op or could you put it off
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Date: 24.10.2009
From: jill
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Subject: Re: alternative medcines
Hi Karen glas this forum is helping u, i find it useful too, and some lovely people in here that try and do their best to help, if they can, even if we cant, we try to support everyone, as u r doing too.... I amin a better place, im mentally stronger at mo...regards my spine op, ive put it off for a while now, I knew b4 i had last MRI to check the spine, new then another disc had gone, as to the extra pain i was gettting... I knew...ive had a lot of mon ths to think about it, and missed a sept appt, not going now until Jan for another chat with my spine surgeon and to tell him my decision...wont be having op as the waiting lists r a while...thing is, if I have the op, means I cant take the kids on hols with coming august... im wondering to stick it out un til nxt year, when its Unbearable etc... its not unberable at the mo, so gotta think about it soon, as we r sendi ng off deposit for hols for nxt year.....got a few more weeks to think about it, I know I shld have it b4 it gets otta hand, but im tempted to stay as I am, until after aug nxt....dunno, its a big decision... plus got the extra stresss over my son.... will have to seee.. where abouts in the UK r u Karen?...anyway enjoy rest of your weekend take things esy and dont worry about housework as much as u use to OK....its ok to leave it, taken me years to get used to Not doing so much, im not as particular about it anymore...LOL....love Jill x
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Date: 24.10.2009
From: karen
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Subject: Re: alternative medcines
house work lol whats that no i try potter but my mum and partner sre good at doin stuff .i have got a problem with my disc and its a trapped nerve in it some times my leg and back keeps goin so i cant walk and they are thinkin of operating on that but i just keep puttin up with pain 4 now .with everything else thats goin on with this ra and all meds ect am not bothered at mo .i know what you mean bout decidein what to do but its prob best to have it done and then at least you will have a bit of relieve pain wise hopefully .am in lancashire near southport hun were are you and thanks for replyin
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Date: 25.10.2009
From: jill
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Subject: Re: alternative medcines
Hi Karen, lol everyone seeems to ber from up north.....im in east Sussex, Near Rye.... 12 miles from Hastings...1066 country lol...beautiful part of the south..... karen regards your back, if they r wanting to operate to release tht nerve, it will sort out so many of your symptoms, that is exactly Y your back and legs go....plus how do u cope with that type of pain, its Dreadful....lol u told me to have my back op, and Im goona tell U to have yours too lol.... blimey u have got it bad, didnt realise it was so bad for u...R.A. is bad enuff , but to have disc and trappped nerves in ya spine is awful.....what do u do at night for comfort, do u put a pillow behind ya back to support it?so u dont roll over and hurt ya back in ya sleep... mind u, I wake up everytime I move, pain wakes me up...... take care Karen and I will always reply to posts, we all will, thats what we r all here for, to support each other..... BTW when your consultants spoke to u about u needing the spine op...what did they suggest they could do for u?? xx
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Date: 25.10.2009
From: val h :-)
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Subject: Re: alternative medcines
hi u to should have ops done at same hospital and same time u would keep the ward on there toes the docs would not know what had hit them (only kidding) hope u both getting some releaf from the pain take care both of u hope ops go well when u have them
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Date: 26.10.2009
From: jill
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Subject: Re: alternative medcines
Ty Val.... Ive had my hair cut today, and my eyebrows and top lip(dont larf lol) Waxed... my best m8 pampered me lol..... happy with my hair, my hair is just a bit up where the bar sits on my back...and its beeen cut all choppy and layered etc... and then straigtned, I loo so glam now lololol..... this was, the Mobile hairdresser goes to my m8s house every two months, we all get together and she cuts and dyes lots m8s that turn up.... Manic or what, anyway, she treated me to hair etc, was going grey too, so it was dyed , so got no grey hairs left lolol...anyway after 4 half hours of giggles etc... and looking like a new chick, ive come home to 3 boys fighting(fella was in garden)...couldnt beleive it!!! typical, ruin my day....anyway, at mo its all quite, until the next fight!....Val how ya doing?
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Date: 26.10.2009
From: karen
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Subject: Re: alternative medcines
hi jill i went for my consulatant to see about back op and he said that the nerves are trapped but couldnt see which was it was so he didnt want to operate untill it gets worse lol not walkin really dont know how worse it can get but he said get the ra meds sorted first mxt and then pain clinic ect next 2 weeks gotta go there.and then see what happens.but i dont want a op really .as for pain i sleep with a hot water bottle on back and pain killers or just put up with pain .i can cope with that its this constant tiredness and dizzerness that is hard
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Date: 26.10.2009
From: jill
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Subject: Re: alternative medcines
Hi Karen...ok I understand now...sounds nasty tho...its best to get the MTX sorted ya right...struggling with tirednes is awful...it comes part n parcel with the R.A. too...I get fatigued very fast...to the point that whne I go to bed to rest, the house cld burn down and i wldnt be able to move!..anyway, your doing all the right things for now.... stay well and positive ok xx
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Date: 27.10.2009
From: karen
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Subject: Re: alternative medcines
hi jill thanks and you 2 .i only just got out of bed now with the help of my partner my whole body feels like its been run over by a bus all joints are stiff and i could of stayed in bed all day but got hospital at 2 i feel really down today and my mind is doin lots of stuff but my body not able and i feel like crap .does any one else have days like this
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Date: 27.10.2009
From: sonny
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Subject: Re: alternative medcines
vitamin d 3 !! vital to health and reasonably inexpensive, you cannot afford not to be on this guys. http://articles.mercola.com/sites/articles/archive/2008/11/01/Vitamin-D-is-a-Key-Player-in-Your-Overall-Health.aspx
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Date: 27.10.2009
From: jill
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Subject: Re: alternative medcines
Oh yes..... seems u have fatigue today.... think we all feel like this regualr, i certainly do..... eeek the above posting sounds like a past member.... however id ask about anything U take to ask your EXPERT consultant Karen....some ppl post in stuff that havnt even been approved....if ya consultant that have studied our condition for donkeys years, he wld advise us to take VIT D 3....so any postings that u read, dont take them seriously until u have cleared it with ya Experts ok......just letting u know this as ya new to our cosy forum, and watch out for Fakes!! take care Sweetie, try and rest as much as poss and stay mobile also, or u will feel stifffer! let us know how u got on at hosp today...lots love Jill
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Date: 27.10.2009
From: karen
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Subject: Re: alternative medcines
hi well been hospital to see rhumy nurse and she said i was prob feelin rubbish due to be very low in iron am seeing consulatant next week so wills ee what happens regards to meds ect but am hopin meds kick in soon .has anyone else ever had low iron as cant really understand why this is.and havent even thought of taking any vitamins ect as rhumy nurse said at the begining not to untill meds settled
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