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Date: 19.10.2009
From: shaz

Subject: rheumy appointment today

hi all got hospital appointment today, glad really as eyes still bad and legs swollen so actually got aomething to show him this time maybe he will listen when i talk and tell him how bad my legs get and have some answers for me last time he sent me for hydrotherapy which has been great but hasnt really stopped anything from keep coming back,also since last time i saw him started with problem with eyes maybe he can tell me if this is connected to mtx as never had a problem with eyes before in my life will just have to wait and see will keep you all posted, well val have you got used to being back in cold damp england haha its horrible when you come back of hol usually takes me a few days to stop feeling miserable about having to come home haha. hi jill hope you ok and thinks settled at home a bit for you thinking about you take care lol
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Date: 19.10.2009
From: shaz

Subject: Re: rheumy appointment today

hi all back from hospital news is that they putting me back on max dose mtx even though they know it makes me ill said got to give it a month and if i still cant cope with max dose then got to go on injectable they also sending me for a isotop xray where they inject u with something and xray your whole body,as for the hydrotherapy it stops in 2 weeks and they say that the only way i would benefit from it is to do it 7 days a week and thats not possable so now i waiting for appointment for this xray,plus been given some sleeping pills as apparently i need to rest more which is a joke as when i still joints start aching and legs swell sorry for long post but i dont know whether to class this as good news or not lol
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Date: 19.10.2009
From: val h :-)

Subject: Re: rheumy appointment today

hi bless u no wonder u do not know if bad or good not what u would have wished for hope u cope with meds better this time. (((hug)))
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Date: 19.10.2009
From: jill

Subject: Re: rheumy appointment today

Hi shazzzz, dont get too down, u keep me upbeat.... y cant u do hydro every 7 days? ive heard of that xray thingy, but cant remember y they do it, I think its to see if the meds r reacjing all the corrects parts of your body, please corect me if im wrong, recently read something about that?? I totaly understand that having sleeping pills will keep u in the same position and then u r stifff as cardboard next day...not funny I know, but I think thye need U to mentally rest, I can understand your frustration, but please give it ago, and c what happens? wot amount dose of MTX r they giving u? im on 17.5 plus enbrel injections, I know some ppl r on highter dose than me, and I must admit shaz MTX made me unwell too, but I did get used to it.... intime of course..... btw thanks for your very sweet offer about calling u, so kind, but I think id drive u More nuts than u already r LOLOL (((((huggs 4 u)))) shaz its a pleasure having u here in the forum, ya so funny....so chin up gal, or me and Val will be Nagggging U silly xxxx lots love to u xxx
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Date: 19.10.2009
From: shaz

Subject: Re: rheumy appointment today

hi jill they bumped me back up to 25mg again only just got then to reduce it down to 20mg last time i saw them but no they want me back on 25mg and say got to go back in four weeks and if it makes me ill like it did last time i was on 25mg they going to switch it to injectable mtx other half says that will be a laugh him trying to give me injections as i punch him now when he giving me eye drops cause they sting so he will need a padded suit when he got to stick me with a needle haha anyways jill glad you sound a bit more happier you take care lol
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Date: 19.10.2009
From: jill

Subject: Re: rheumy appointment today

shaz no wonder u feel so sick...I wonder Y they give u such a high dose...my rhummy nurse and rhummy wont put mine up, I use to be on sulfasalazine with MTX and by god did that make me ill as a combined therapy...awful..... so dropped the sulfasalazine and event on enbrel....works well....I think that is a high dose to be on, but hey, who am i, just Jilly from Rye lol...... anyway, my personal opinion , thats y U feel so damm sick, I dont think I cld cope on that high dose, again each area is differnt, I k now in the USA they give high doses, U may think its becos my probs arnt that bad, but trust me lol they r.... so i was always angry with my rhummy, as to Y they cant Up mine..... however, along with the Enbrel biologics combined with the MTX, its working real good........ BTW my fellla use to be scared of his diabetic injections, had to give them to him daily, nitemare...hated doing it......then he got worse and I had to do injections on him 4 times a day!!! bigga nitemare, anyway, he eventually got diabetic pen and hey Presto, he does that himself! FREEEEDOMMMMM from the Jab!! lol...... No way cld I let my fella inject me, so I guess hes kinda brave letting me do tht to him..... id far rather jab my own tum than my fella.....im also going on enbrel Pens, getting them weds, cant wait....(waited 5 months for these) so its goona be far easier and lessss painful for me too.........shazzz ima strong character, and I love to be happy, im fighting my way back up..... but ive still got a mountain to climb....dont know if I mentioned, but psychiatrist has diagnosed my child with School Phobia.....!!!! googled it, it is a real disorder....and he ticks all the boxes!.... got meeting this thus, will c what happens, they want him to learn from home, but i dont hve the energy to referee him to do the work...going to ask for a HOME TUTOR! lolol pigs will fly first xxx
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