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Date: 30.09.2009
From: Jill

Subject: WE NEED MORE SUPPORTERS OF THE FORUM

Hi everyone

Even if U just pop in and read a few posts, it would be good to hear from you, by giving a little information on the condition that U may have and maybe we can support u all....it keeps the forum going and keeps it helpful and interesting for anyone that does pop in and take a look..... anyway, be goood to hear from u...take care all

Jill Inflamatory Arthritis, DDD, Reiters
Disease
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Date: 30.09.2009
From: Kirsty

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

YAY!!!
SUPPORT lol, can I walk around with one of those banners you can get and have a loud speaker?
xxx
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Date: 01.10.2009
From: jo

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

Hi
I pop in now and again, so I thought I would say hi, HI:)
I'm 43, recently diagnosed with imflamatory arthritis, also have hypermobility. Rheumy wants me to start mxt or sulpha in nov when i see him. Also daughter recently told she has oa in rignt knee, and pos in left hip, but not had xray on hip yet. she is waiting for mri results of knee. And she is just 17 :(
so hi again, and hope everyone is well, Jo x
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Date: 01.10.2009
From: Nora

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

Hi All - I first posted a couple of weeks ago when I was first diagnosed with RA. I seem to be getting steroid withdrawal symptoms at the mo.-was on Prednisolone for 15 days and was tapered down properly. finished tablets last Thursday but have had a headache since Sat. and feel nausea,weak, shakey - just a bit wierd really. My GP knows nothing,so she was no help. She even told me I can take Arthrotec NSAIDs with Methotrexate but that's not quite right- they can interact. Still I do feel a lot better after the ster. - that RA pain is horrible. Anyhow, just thought I would pop in and say hello. I do read the posts most days and have replied once or twice.
Jo - sorry to hear your Daughter has been diagnosed with RA at such a young age too!
Hugs to all but not too tight aye? (lol)
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Date: 01.10.2009
From: jill

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

Kirsty lol...yea u can do that for us....but ya gotta do a back flip at the end ok? lol...hows uini? hyope your coping and keeeeping well....

Jo thanks for popping in, I do reemmber u from b4....sorry to hear about your gal, its horrible when u c ya child suffer.....my daughter is now 18, at age 13 she began to have painful knees, and then her back hurt bad, she couldnt keep up with her m8s, saw specialist etc...had mri scan, by this time shes 14ish.... seemd that her Disc is bulging, but not badly, but enuff to give her pain none the less, they say in her knees she has, chondomalacia, means crumbling of the carteledge in the knees, but they say that as shes young, it will repair its self...... shes now 18 and still has bad back and painful knees, not had proper diagnosis.....we r thinking of seeing rhummy again....jo did they say how they think u got infla artha? mines due to Reiters disease, left me with inflam artha>? nasty isnt it, attacks every joints, soft tissue, tendons, ligaments eyes, etc....... anyway, hope gal get sbetter soon, and you of course...love Jill x

Nora, thanks 4 popping in, lovely to hear from u....must go bed now, its 11, take care all

love Jill x
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Date: 02.10.2009
From: jo

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

Hi Jill
They haven't said how yet, maybe I will no more when see rheumy in nov. I thought maybe it is ra? It started in fingers about 5 years ago, but now in shoulders, some toes, ankles, also get terrible pain in legs, also wrists seem to be joining the party (my little joke). I didn't see rheumy after mri, he just sent me a letter saying "confirms an imflamatory arthritis, here is a script for steroids. and will see you in nov to start mxt or sulpha" Great Hey. hugs to you
Nora, hope you feel better now coming off steroids, hugs to you.
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Date: 02.10.2009
From: jill

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

Blimey....yea that sounds kinda harsh..... to write and tell a patient that they have inflam artha and that he starting U on those Immune suppressants, is terrible.......but sont be too concerend ok, mb they didnt have time to see u, at least u kn ow you willl now get the correct meds ok.... they will look after u well too ok....take care

Jill x
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Date: 04.10.2009
From: j

Subject: Re: WE NEED MORE SUPPORTERS OF THE FORUM

bump this one upski!
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