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Date: 06.09.2009
From: jill

Subject: grab rails etc

Thought id add a little positive posting in today....dont have numbers but there will be a place in your area that supply diabled people grab rails and bath supports and toilet seats that r raised a little higher than shop bought seats, plus also shower chairs for use in the shower, to avoid standing etc....you can get all these Free from Occupational health dept at your local council division, when u ring ask for that dept. they will come and see u, not a long appt, see all the things u need, they try and help give u other things that u may need, like an extra banister rail, so taht u have two, if u have to climb the stairs.... they r a god send, I have the grab rails by my loo, and in my shower and bath..... these items cost a lot if u buy them yourself....but they r free if u r diabled and claiming benefits.... once u try these grab rails etc, u will wonder Y u did without them for so long! they truly support the spine and joints.... best wishes Jill x
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Date: 06.09.2009
From: jill

Subject: Re: grab rails etc

also did all the peeps that receive DLA, did u know that u can claim Council Tax discount, providing u have a downstairs loo(not sure if shower needed downstairs too) u can check that out.... also I think the criteria is that you have your bedroom on the ground floor, im lucky as the house is large and I changed one of the reception rooms into a bedroom, just had another hip op at the time and we decided to have our bedroom in reception room that we didnt use as such.....its a saving of about 40quid a month.....we pay over 200.00 a month council tax, so does help a lot...funny thing is tho.... i expected a home visit...they said they wld visit me....but they never did.... so how they allow that without a home visit I never know.....but how I c it....if any of us r disabled, we shld be entitled to that anyway.... ring up and c if u can get that too....ask wot the correct critieria is...if they say u need to sleep downstairs, tell them u do, in the front room, cos u cant walk upstairs...but a toilet is needed for sure downstairs, cos if u can walk to the loo upstairs, then they will think u can get up there at bedtime!!! hope I made sesnse... goood luck and its worth it...I forgot to mention it b4 now...
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Date: 06.09.2009
From: sharon

Subject: Re: grab rails etc

hi jill the dept u talking about is aids and adaptions i got them at min installing another rail on staircase and handrail on step outside plus bedloop on bed to help me sit up when back gone stiff from laying in bed also got frame round loo and automaatic bath lift which is amazing it was my occupational therapist that sorted it all out for me they can also help with stair lift and changing bathroom into wet room if you meet the criteria the draw back about major adaptions is that its means tested and is a long paper chain but is worth it in the end
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Date: 06.09.2009
From: jill

Subject: Re: grab rails etc

Sharon thanks soooo much for that info...my m8 is getting a wet room installed soon, Im so emvious of her, wld love a wet room... thing is, shes got a cdouncil house and seemed to manage to get that easier than maybe me applying for that....we rent this huge house, and they dont like adapting anything here, this house is owned by the church, lived here for 5 years now, but i guess at any time they cld ask for it back, as it use to be the Vicarage LOL @ that...me and mine have de sanctisized it now(lol cant spell that word).... sold my house when i got divorced yers ago... but cant afford a mortgage now, the rent here is 1000.00 a month , Mortgage money I know, but my fellla, well lets say he cant get another mortagage, when he left his ex years ago, she left him with a lot of debt.... oh well. hes blacklisted now...thats y we rent.... mind u, might be worth a try asking, If we dont ask about getting a wet room, we wont get! thanks again x
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Date: 06.09.2009
From: jill

Subject: Re: grab rails etc

Sharon how r u today...can u jsut remind me, cant bear to go hunting the posts, ive got a terrrible memory at the mo, just need a little nudge and them I will remember all about u x
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Date: 06.09.2009
From: sharon

Subject: Re: grab rails etc

hi jill i fine waiting for work to finish me and dhss to make there mind upif sending me for medical and dla to make a decision dos that help u remember i got pa in toes fingers wrists and the way my ahoulder and neck feel these daysmaybe there too dont know. as for u getting a wet room if u dont ask then u cant get to know,as for your house being private rented ask the landlord if he would mind really u are modernising house just replacing shower cubicle with open shower.and from what i read the way you are should have no problem getting one,speak to your gp maybe they can help or ring your occupational therapist and talk to them.all the stuff i got has made life alot easier on bad days,and on the good days i dont use them,even got a wheelchair for when my legs and feet swell like elephant women otherwise i would be completely house bound as cant drive thankfully they havent done that for last 2 weeks.u take care of yourself and i will post tomorrow after my meeting with boss and let u know if i joined the ranks of umemployed due to ill health lol
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Date: 06.09.2009
From: jill

Subject: Re: grab rails etc

Hi Sharon, yea i remember now, thanks for nudging my terrrible memory....if u feel your neck is becoming painful and your shoulders too, please go back and tell them... my neck was in agonlky for years b4 I did anything about it.... discovered that at that time two discs had gone in my neck....then a few years later had another MRI and another was going,hardly anything there(so three discs for sure have gone, god knows wot will happend if others go, that was over 2years now... are u taking any Anti TNFS? Enbrel and the like?
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Date: 06.09.2009
From: sharon

Subject: Re: grab rails etc

no just mtx and various anti inflamatory tabs and tramadol& paracotamol tried codeine made me ill but i started retaining water in my legs and feet now never had anything like that before plus mtx makes me feel really sick for days take it on monday nite and by wednesday i just want to sleep like all day
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Date: 06.09.2009
From: jill

Subject: Re: grab rails etc

same here Sharon, I take MTX and Enbrel on Tues nights, shatterd for days, and feel sicky after taking them...part n parcel of the meds I guess....hate feeling tired all the time.....do u sleep at night? think most of us dont, sometimes I can be awake. not becos of pain, feels like insomnia, brain wont stop working over time, also i take diazapam for spasams in back...but they keep me awake too lol..cant win
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Date: 06.09.2009
From: sharon

Subject: Re: grab rails etc

i havent slept a full night in months go to bed sleep for couple of hours then sat on facebook in early hours of motning then by afternoon i fallasleep on sofa shattered its stupid i can be really tired but just cant sleep sometimes i in pain other times i just cant sleep dont know why it wierd
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Date: 07.09.2009
From: val h :-)

Subject: Re: grab rails etc

why does it always feel wores in night or do we just expect to much lol. fancy us wanting to sleep when every one else does. woke during night had to take pain killer to get back to sleep lol one more night till doc so worth it lol
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Date: 07.09.2009
From: jill

Subject: Re: grab rails etc

same here, but im too lazy to go online lol..... I read, fall asleep, wake up, read, etc and so it goes on...i too like u sharon, have sleeepless nights for no dammm reason on occasions.... cld understand it if I was in agony...not always the case.... think the cat naps knock out the regualr sleeping patterns!....im done in at mo...too much dammm stresss in my life.... isnt healthy! think I mite run away lol....Val I need ya address, have yu got a spare room? lolol
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Date: 07.09.2009
From: val h :-)

Subject: Re: grab rails etc

i wish girl lads will not leave home lol bursting at the seams bath free most of the time any good to u
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Date: 07.09.2009
From: Lynne

Subject: Re: grab rails etc

Hi Jilley I gotta a spare room .. and no kids .. quiet here apart from my polly. xxxxxxxxxxxxxxxxxxx
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Date: 07.09.2009
From: val h :-)

Subject: Re: grab rails etc

there u go jill sorted just pack your bag. better than my bath, save me washing it lol.
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Date: 07.09.2009
From: sharon

Subject: Re: grab rails etc

hi jill if u dont mind moving to yorkshire got 2 spare bedrooms only me my other half and my beautiful lilac hair pussycay (smokey) usually pretty quiet here everybody on there own comp in seperat rooms haha try not to stress know its hard lol
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Date: 07.09.2009
From: val h :-)

Subject: Re: grab rails etc

hi sharon we all talk to each other in this house on face book lol. we keep getting asked dont u live in same house we say yes but all in different rooms lol. jill can go on tour of country from house to house lovely holiday
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Date: 07.09.2009
From: sharon

Subject: Re: grab rails etc

my eldest son only lives down the village from me and we talk more over internet then face to face its funny. jill could have a lovely holiday with all of us at least we know what she going through u take care
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Date: 07.09.2009
From: jill

Subject: Re: grab rails etc

Im Packed thank u sharon LOLOLOLO xxxx
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Date: 07.09.2009
From: Lynne

Subject: Re: grab rails etc

Hey you not commin to mine !!!
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Date: 08.09.2009
From: val h :-)

Subject: Re: grab rails etc

lynne think she coming yours next lol
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Date: 08.09.2009
From: jill

Subject: Re: grab rails etc

Lynne Val...im defffo coming over to yours....my son has not gone in again!!!! devestated...i didnt sleep until 2pm this am...think diasapam keeping me awake...happens everytime I take them..y is that?!! rang my lady from the skool, marcie, and she is coming bk tomoz with the SENCO chap, plus hes a psycoanalasyst? cant spell that word, soz... also hes going back to Camhs!! me and mic spoke this morn....ive been in a mess, and hes there to support me..... this is gals...mic works for the homeless....has done for over 30 years....he works currently with alcholics, drug addicts etc etc....in his view... at end of the day, things take forever to get sorted....for example, I took my son to see a shrink for children 3 years ago, for his rages and aggressive behaviour.... and still nowt has been done, and that was becos my son refused to go to the appointments!!! guess wot...me and mic had to go weekly for 3 months, to learn how to IGNORE bad behaviour!! and obviously praise the good..... the Shrink we saw was just a locum, and refused to home visit my child!! this is the type of crap that happens all the time.... there is always someone that wont fully help....a bit like the crap all of us have experienced with our GPS, rhummys, specialists eetc...we hit a blank wall....... at the moment, ive had a man and woman from shrinks office come to home to see fraser(took a lot of beggging!!!!) and 8 weeks later they visited here.... and this speialised Nurse(the man) he deals with all kids and diagnosis etc..and reckons tht hes on the Autistic spectrum...... I find this hard to beleive becos, I have two boys that have Aspergers(Autism, be it mild, but still a problem for them) anyway..I dont see any sings of aspergers, autisim at all....but tony said that the RAGES he has is part and parcel of autism?? is it? god knows...i have no idea...hes going back to see the shrink for a full diagnosis....Prob tho...he wont go!! will she visit here...dowubt it very much.... so the mad circle goes on and on and on.... its never ending... then the EDUCATION WELFARE OFFICE WILL STICK THEIR NOSES IN(ALREADY HAD THEM ON MY BACK LAST YEAR) ooops caps soz.,... personally, if he doenst go to skool, and diagnosis is clear, they r within their rights to take him from me, so that he Does get an education!! this scares me bad... it happens... my fella know someone that got find 3000.00 and eventually they took their teens off them, they were put in care!!!! sorry, offf topic I know....but its making me ill....and I feel a flare up coming....stress is unbearable, and im sooooooo sad inside, feel sad for my son too... in his head he must be going thru terrror!
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Date: 08.09.2009
From: val h :-)

Subject: Re: grab rails etc

u r right he needs u ,and u will make your self ill. it is not like he 5 and u can get him there bet he as strong as u so u have no chance if he does not want to go. why wont he go doc app. do they scare him ,does he know that he can go into care or does this not get through to him.hope u have got some rest what does he do when not at school? do u ban computer and such like?. can u do home schooling for him will take some of the stress away for both of u. or does he want to go to a different school there is an answer out there u just have to find it pity they did not sort it before when he was younger and easyer to manage for u. do feel for u do not know what i would do in your place but try to stay positive things will get better it takes time we know that.i know people think there should not be special schools but i think there should if main stream is not working there should be something to suit needs of child they r individuals so all have different needs and they r not being met in your sons case is there a chat place like this for what he has u can get advice from good luck and ((((BIG HUGS))))
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Date: 08.09.2009
From: sharon

Subject: Re: grab rails etc

jill i really feel for you why does life have to be so hard when you only want whats best for you and yours makes me so angry if u want anyone to rant and rave at i only happy to listen thinking about you take care otherwise you be no good to anybody yourself or son lol
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Date: 08.09.2009
From: Lynne

Subject: Re: grab rails etc

Oh Jilley my love when it don't rain it pours for you..... makes me bliddy angry too when you can't get the help you obviously need.
Try giving that helpline no a ring they will advocate for you and get the wheels moving. Just in case you can't find it.

Autism Help line; 0845 070 4004

I think you deserve some support hun. They just minght be the ones to get things moving for you.

sending loads of good Karma your way.. and masses of Hugs.
Look after yourself
Lynne xxxxxxxxxxxxx
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