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Date: 05.09.2009
From: val h :-)

Subject: shopping

ok went to town (15 min walk) got trainers infirst shop walked around corner to supermarket. stopped for breakfast(had toast earlyer with tabs) oh hungry lol so had nice sit down, called in freezer shop. oh carried heavy shopping me light stuff .got home joints all had little fire works going off in them had to go to bed and sleep, got up joints stiff and ache feel bit strange and shakey. doc says its oa i have lol any one else had this happen going in bath now to see if it helps
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Date: 05.09.2009
From: jill

Subject: Re: shopping

Val I get the shakes if I havnt eaten properly....... cant say that the shakes r a direct result of having Artha? or any type for tha matter...must be something else underlying id say ? the fireworks u describe going offf in your joints is exactly how it feels.....even tho the names of our Arthas mb different...i.e. R.A. P.O. O.A. I. A. the pains is the same.... its hurts as much as anyone elses....however, i havnt been told that some people can have artha and NOT have it as bad, but then they dont get the meds that we get.... they usually stick to say, parecetamol or Ibubrofen...... but when a person is as bad as u feel....yea that is how it hurts....get welll sooon sweetie...treat ya self with care and get lots rest xx
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Date: 06.09.2009
From: val h :-)

Subject: Re: shopping

hi girl rested most of yesterday even sent men to pub out of the way . stopped meds might end up taking pain meds to sleep .just get frustrated at so little can do with out problems this is not the life i want i want to do what i want in a morning then still be able to go to work in after noon with no problems and come home and make tea not fall in a heap. u got it bit fed up and want to scream and shout I AM NOT OLD WHY DO I FEEL IT.i also know i am lucky that many more on here have things much worse than me but it is so frustating mind wants to body falling to bits lol. sorry for rant but oh would worry if told him all this and never get it THANKS 4 being out there one and all. will get this sorted tuesday morning fingers crossed
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Date: 06.09.2009
From: jill

Subject: Re: shopping

Val I kn ow how ya feeel, im in pain today...base of my head is killing me.... Ive got neck probs as u know...our necks have 7 discs, i only have 4 left, as the Reiters disease eats away the dicsc(all soft tissue) anyway, they reckon they cant operate as too close to spinal cord eetc..... however, that dont help me does it, cos i can barely hold my head up, will need to wear my neck brace again! hate that cos it causes other probs like aching shoulders......I like u wonder y the fook Is my life like this.... (feeling soz for myself today grrr) and I think ive suffered enufff cfap in m y life to last a life time as it is..... then I say Y me?? etc etc.....but as U say Val, peeps far worse offf than me..... so i battle on with this war, that we all fight each day and every second........ gott go see my gp, havnt heard from him yet about my CT scan results, guess they r fine, or he wld have been here to see me.... however, I hate this dizzzy, sicky feeling, fed up with the pain, fed up with housework , dont even want to do it.... feel like im 90s years old today.... hate myself feeling like this...thing is, im not strong enuffff to let my family think Im ok.......cos if they think im OK...they dont bother helping!! lol.... my youngest two sons 10 and 11 fight constantly, its a struggle trying to sort all that out!...sick of clearing up dog hairs, dog mess, cant walk the dogs(got 250 ft garden) so they do get exercise, but not the point.... if it wernt for my kids, id jump offf the planet,,,some may say"how ungrateful I am" for mot seeing life as precious!...yhes I s Life as precious, but im also strugggling with it....sick of feeling like I do..... im sorrry if im throwing out negative info today, but hey, im only human, i try and remain positive for all the newbies that want and need info, but Im also not goona lie, Im chronically sick, I know that, like many of us in here, but I cant keep being the supporter of all tht come in here and say be pos etc.... at the end of the day, I beleive in truth.... Im an honest person..... plus im only human...and today and all last week ive felt very ill.... this nasty disease(if u have it chronically of course) is like this for me most days...only rarely do I feel kindda Ok.... I never ever feeel totally well... havnt done for years.....its wearing me down.....but I will praise the Enbrel etc that im taking, cos its that med thats keeping me out of hospital..... when I get unwell my Blood pressure drops too....makes me weak etc...... anyway, I think people should know everything about this Battle we fight, the war never ends!....... its tru im down at the mo, I try and stay pos for everyone, but sometimes even that is far too much for me......I cannot consider working at all, simply becos this frigging illnesss is running my 'life'........ wot I dont quite understand is...................if im on the most Toxic Meds to help me dampenm down my probs.... how comes I feel so friggging sick, and still in pain.....one day its my hip, at night its my back and hip, come morning, its my Neck, come 11clock its my Knees...by 3pm it cld be all of the joints....by midnight it will be sleepnesss nights...and nxt day severe fatigue....nxt day it starts all over again.....pain in the hand, and foot mb...then another hour passes and its my neck...give it two hours and its my back, and my hips and so on and soo on and so on! thats how this crap disease is attacking me! its killing me offf!...thatts My truth....thats my account of this crap condition......apologies for rambling.... i dont do this often, if ever, guess i NEED to..... however, I do want to stipulate to everyone that bothers to reead this long long post, tht im chroniclly bad ok....doesnt mean this will happen to any of u.... however, its happeneing to me.... I was told years ago that I wld never get that bad...... wot a loads poo I was told! oh well, no one knoes whows goona be bad....I know we all suffer, pain is pain is pain...... but ive had enuff..its been over 20 years......... half myt lifetime...this is something I can never get used to, ever....... my elbows r screaming as I type this, so i best go...... soz to be depressing, but this is wot our Forum is for....
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Date: 06.09.2009
From: jill

Subject: Re: shopping

I ve refelected at the previous post, and I know i shouldnt have wsent it....im not looking for sympathy ok, so there isnt any need to make reply to this...but there is something I Do want to make very clear!....Not that i think im far worse than any of us that suffer with arthritis, I promise I dont, Im not thaat type of person,,,,, the thing I want to make very clear is this point...... I origionally suffered with Reiters disease(rare disease, due to a defective gene HLA b27 Pos) to the the fact the Reiters has been chronic for me(not in all people) but for me it is, its becos of the Reiters that it has left me with Inflamtory Artha...which means it attacks any joint it wasnt to....but for me the added complication is the Reiters disease becos it attacks the soft tissues, the tendons, ligaments, eyes, etc....so altho I have Joint pain I can also have Tendon pain, painful eyes(Iritis) infection of the iris... then on top of that again becos of the eiters, my whole spine is poo....they call it DDD Degenerativie Disc disease...again that needs operations to correct....bit its directly due to the Reiters Disease(in some ppl this disease can burn itself out, Mine hasnt) that is y the Rhumatologist that Ive known years has told me there is nowt more he can do, and has left it for the meds and the surgeons to help me..... so all in all folks, that is y i guess im so low...and y the pain gets so bad bedcos im battling with pain in the joints and all the tissues that support our skeletal systom....so the point im making is..... Please Do not feel worried this will happen as bad to u, becos its very very rare for women to get Reiters anyway, I was predisposed to it due to defective Gene, and was triggered offf by foood poisoining!....hopethis clears things up, didnt intend to scare anyone....... and dont want anyone to be worried by my post...wish I hadnt sent it now....take care
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Date: 06.09.2009
From: val h :-)

Subject: Re: shopping

WOW girl u r so bad today glad u put it down can usually tell by posts when u not so good never mind how hard u try to stay positive for us we all get down days. and u so right this is what it is for for all of us u included u should not let things build up this bad in your head we r here to help u as well as put up with your lovely nagging lol. nothing i can do but (((hug ))) u i have no small kids to cope with and compaired to u got things mild but geting your head around all this is just mind blowing lol. how u cope i do not know, our house looks like bomb gone off in it cooking less and less lol. they lucky they get clean clothes lol.so do know where u r coming from wish was near enough to tuck u up in bed and wait on u hand and foot for couple of days just to give u a break my pal. u will have down days i know and there is no snapping out of it it takes time till u will see light at the end of the tunnel but it will come things will never be normal(what ever that is) but u r strong and care so know u will pull through this and cope with what is thrown at u your kids r great warts and all be proud and enjoy them take care luv u
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Date: 06.09.2009
From: jill

Subject: Re: shopping

Val ur a lovely lady, thank you and I know you wld be here for me, anyway, U r, and so is Lynne, I appreciate that truly, I wld do same for u too...and your right I will get over this low moood i have at mo...LOL im on cipralex which is an antidepressant,started them for anxiety at the time... il be ok....hope didt scare u, like the specialists tell me often, ive lot other probs that complicate my artha! ((((hugggsles bk to u and I hope u sleeeep welll tonight) lol dont know how u have the energy to come online at night.... i just have a read, suck on a boiled sweet and hope i fall asleeeep...yes u have guessed it, ive woke up with the sweet still in my mouth lol.... clda choked i guessss, but so far havnt x
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Date: 06.09.2009
From: val h :-)

Subject: Re: shopping

fell asleep in my glasses the other day nearly took my eye out lol. sleep during day some times when things r bad and oh likes having football on yuk so pop on then lol. u would not scare me as feel u r strong deep down and so know u will be ok in long run we all need help from time to time no matter how strong we r
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Date: 06.09.2009
From: jill

Subject: Re: shopping

x I just picked a huge Russat apple off my tree! Yum it is too
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Date: 06.09.2009
From: val h :-)

Subject: Re: shopping

english russat apples lovely (used to work in fruit shop) tried all different ones home grown the best
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Date: 06.09.2009
From: jill

Subject: Re: shopping

Val I love all types of apples, russat a fav of mine, but I love dessert apples too yum...
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Date: 06.09.2009
From: jill

Subject: Re: shopping

ok goona go bed.... worn out.... stay well u, try sleep tonight, relax and think of goood things.....speak tomoz val...lufff ya x
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Date: 06.09.2009
From: val h :-)

Subject: Re: shopping

sleep well will try tea tree if in pain lol no nits on me
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Date: 07.09.2009
From: Lynne

Subject: Re: shopping

Hi Jilley just got back to the forum. soz you not been well over the weekend it's quite ok to come on here and have a shout. your post was not scary you needed to let off steam and that was a very healthy way of doing it. If you bottled it all up you'd explode like a preasure cooker. We can be nice and fluffy all the time when we are in agony that would not be honest ans would not do us any good at all. You were real and telling us how it is for you. nothing wrong with that in my book.
We al need support and a scream on occasions so no need to apologise hun you take care and I hope you get some relief soon.
(((((((((((((((((((((((((((((((((HUG FOR NOW))))))))))))))))))))))))))
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