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Date: 19.08.2009
From: Karen

Subject: Stop methotrexate

Hi guys,

That's me been on methotrexate for 3 weeks now, went for my routine 2 weekly blood tests last week. I have received a letter from my GP today telling me to stop taking my methotrexate and to go back next week for further blood tests and to discuss my results.

Has this happened to anyone? Is it quite common? Obviously Im a bit concerned as to what it can be. I phoned thema nd they said that something was wrong with my blood tests..which I gathered. Along with the letter was a card which I have to take with me with FBC, ESR, U&Es, LFTs all ticked, anyone know what these relate to?

Kx
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Date: 19.08.2009
From: Jill

Subject: Re: Stop methotrexate

Hi Karen

soz I cant help...dont worrry sweeetie ok....becos for a start u havnt been on them to have caused u any thing major...so put that worrry out of your mind...nowt sisnster im sure...mb it shwoed u were a little anemic... or mb your Esr is more raised.... when the glas come onm later, im sure they can help u there...but I in the meantime just wanted to say, please dont worrry ok... its goood that they r looking after u so well!

((((hugs))))
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Date: 19.08.2009
From: Lynne

Subject: Re: Stop methotrexate

Hi Karen yes had most of those bloods done CBC is full blood count. Checks your red , White plateletes, esr is to see if you've got inflamation. Under 16 is good anything hr is not good. Lft is liver function test. Don't know what u&e is each area uses different initials for same test
I wouldn't worry too much if it was really serious you'd be in having them done the same day. I think it's reasonably common to have to stop MTX if you have or are showing an infection on your bloods. I had to do that once or twice while I was on it. One was because of infection. The other time my White platelette were down to4 not good. But within a week they were back to normal. Hope this helps take care
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Date: 19.08.2009
From: Jill

Subject: Re: Stop methotrexate

Hmmm Lynnne.... wheres my Welcome Home hug! LOL
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Date: 19.08.2009
From: Lynne

Subject: Re: Stop methotrexate

Hi sweetie
((((((((((((((((((((((((((((HUGs)))£)))))))))££££))))))))))
did say hi in one of the other posts jilllly. Hope your refreshed XxXxXxX
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Date: 19.08.2009
From: Karen

Subject: Re: Stop methotrexate

Thanks guys, so do you think most proabably I will be off them for a week or two then back on them?

I hate taking them, half of me is quietly hoping I will get put on something else as a result of this x
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Date: 20.08.2009
From: Karen

Subject: Re: Stop methotrexate

just had a call from hospital, my white blood count is too low after 2 weeks of taking it. Rhum says good chance i will have to come off it as they don't know how i will cope going up to 9.
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Date: 20.08.2009
From: Lynne

Subject: Re: Stop methotrexate

Hi Karen your bloods should come back to normal on a week or so. Try asking your rheumy about the Anti TNF drugs. They are hard to get them prescribed for you but they do work. If you've had a reaction to MTX you may qualify for them.
In the mean time if you get really I'll and in pain they may be able to give you a steroid injection which will reduce the pain. Don't suffer in silence there is nearly always something else they can do for you. But you do have to keep asking. Otherwise they will let you go home without anything. Hope you get the help you need take care xxxx
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Date: 21.08.2009
From: Karen

Subject: Re: Stop methotrexate

Yeah im going to ask for them Lynne.

Had steroid injections a few times but don't think they are up to much x
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Date: 25.08.2009
From: Lynne

Subject: Re: Stop methotrexate

Hi Karen how are you doing now are your bloods back to normal yet. Hope so take care xxxxx
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Date: 26.08.2009
From: Karen

Subject: Re: Stop methotrexate

Get them done tmrw Lynne, so hopefully know early next week. Im praying I can get off them x
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Date: 26.08.2009
From: Lynne

Subject: Re: Stop methotrexate

Ok sweetie let us know how you get on
good luck and take care.
Xxxxxxxxxxxxxxxxxxxxx
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Date: 26.08.2009
From: Karen

Subject: Re: Stop methotrexate

Thanks, means alot.. Be back on next week x
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Date: 26.08.2009
From: Lynne

Subject: Re: Stop methotrexate

Look forward to hearing from you. Hope things go well. take care xx
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Date: 01.09.2009
From: Karen

Subject: Re: Stop methotrexate

Went to the doctors yesterday, my wbc has gone back up so looks like the methotrxt is causing the problem, GP waiting on rhum getting back to him, but reckons I won't be going back on it.

Off to bed as my body is aching.. don't want to go back on it but my body wants me to :(

x
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Date: 01.09.2009
From: Lynne

Subject: Re: Stop methotrexate

Good news your bloods back to normal. Sorry your not well if your in pain you can always ring your rheumy nurse and tell her your in pain then she may then offer you a steroid injection whilst you wait for your specialist to sort out your meds.
Try asking about the newer Anti TNF drugs. They have less sideeffects than the other drugs.
Hope you feel better soon. Take care xxx
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Date: 10.09.2009
From: Karen

Subject: Re: Stop methotrexate

Hey guys,
so pi$$ed off today, yet another wasted trip to doctors today, according to them they are waiting on rhuem dept getting back to them regarding my medication ( two weeks ago he contacted them) stormed out surgery told them I would phone the hosital myself.
Little anxious as im off to Cyprus on Wednesday so going to be weeks before I find out, and more importanatly can I have alcohol whilst im away??
apologies for the moan x
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Date: 10.09.2009
From: val h :-)

Subject: Re: Stop methotrexate

can understand u having a little moan any one would in your shoes. do not know about drink but some one will come on and let u know have good time
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Date: 10.09.2009
From: Karen

Subject: Re: Stop methotrexate

thanks Val, been off the mtx for 3 weeks so should be okay to drink, i hope x
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Date: 10.09.2009
From: val h :-)

Subject: Re: Stop methotrexate

i should think so as well jill would know but do not think she bean on to night
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Date: 11.09.2009
From: Jules

Subject: Re: Stop methotrexate

Hi Karen if you ring your rheumys sec and be all nice and sweet with her and explain your going away she may be able to get back to you with the results. Or if you have a rheumy nurse do the same. They will usually help. Good luck xx
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Date: 13.09.2009
From: jill

Subject: Re: Stop methotrexate

im on mtx and do drink...if u have been offf it, im sure that wld be ok....but it is always best to ask....have a gr8 hols.... l.ynne will know wots best btw... x
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Date: 13.09.2009
From: jill

Subject: Re: Stop methotrexate

guys will be bk in a few days..... take care all x
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Date: 13.09.2009
From: Karen

Subject: Re: Stop methotrexate

thanks guys, Rheum called me yesterday and asked what dosage im on and that i should reduce it..im on the starting dosage, arghh :(

I havent drank since starting them ... I think im at 7 weeks and although im loving not having hangovers im dying for a wee drink!!

Off to ayia napa on Wednesday, cant wait
x
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Date: 13.09.2009
From: val h :-)

Subject: Re: Stop methotrexate

hi have fun bet u can not wait
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Date: 14.09.2009
From: Karen

Subject: Re: Stop methotrexate

peeing my pants with excitement :)
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Date: 14.09.2009
From: val h :-)

Subject: Re: Stop methotrexate

well have a paddle for me, love to walk by the sea and stop for the odd drink.
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