Arthritis Forum
Home.

News.

Personal Stories. Links. Message Board.  
Arthritis Forum  
Add your comments to this topic Start a new topic
Date: 31.07.2009
From: Julia

Subject: I feel like I'm falling apart and nobody believes me

Hi all, I'm at the end of my tether... I ache so much, my fingers have painful swellings, my knees hurt so much I can't run anymore, my ankles have started to hurt, I feel so tired and depressed and this morning I ached so much and was so fed up I couldn't get out of bed. I've had steroid injections in my spine and hips due to worn discs and bursitis, I've had physio for a period 6 months 3 times a week, I've had numerous blood test - all inconclusive as my nucleic levels change and I feel like a hypocondriac!! My latest bloods have raised anti nucleic and my doc has referred me to a rheumatologist for the third time... last time 4 months ago he said I had hypermobility syndrome and the pain in my fingers was a tissue 'thing' I'm just so fed up - been in pain on and off since I was 12 and I'm now 40 - reading the signs and symptoms of RA I just know thats what I have - why are the doctors just saying anything else???
reply | back to forum

Date: 31.07.2009
From: val h

Subject: Re: I feel like I'm falling apart and nobody believes me

hi u poor thing it is horid when no one belives u kept getting told wear and tear lol given no help. till came across another doc who told me what it was and gave meds that helped. so keep going u need help u will get there be strong tell them how bad it is a big hug for u and good luck hope they sort u soon
reply | back to forum

Date: 31.07.2009
From: Bernie

Subject: Re: I feel like I'm falling apart and nobody believes me

Hi Julia,
I can understand totaly with you, I'm suffering with bursitis in both hips, I can barely walk. I had one hip injected but the pain returned. I also have fibromyalgia and I ache all over. My doctor is not very sympathetic, like youself, I take so many tablets, I dont think any of them are doing any good, except maybe the sleeping tablet. I'm just wondering how are your hips since you got them injected.I really feel for you.
reply | back to forum

Date: 31.07.2009
From: Julia

Subject: Re: I feel like I'm falling apart and nobody believes me

Thanks for thr reply's guys.... means so much to hear I'm not alone! Bernie, the injections helped but only short term, I gave up on them and started doing exercise to lenthen my ilio tybial (sp?) band as this is what was causing mine. How did you have the injections? Mine were under aneasthetic in surgery under X-ray.
reply | back to forum

Date: 31.07.2009
From: Bernie

Subject: Re: I feel like I'm falling apart and nobody believes me

I wasn't as lucky as you, I just lay on my side and I got 4 injections in the hip, it was so so painfull, I nearly ate the pillow. The rhummy was going to do them again last week but he didn't think it would work. I don't want to get them again. I didn't know you could get them done under anesthetic, wish I did.
reply | back to forum

Date: 01.08.2009
From: Jill

Subject: Re: I feel like I'm falling apart and nobody believes me

Hi Julia, along with Infla Artha and Reiters Disease, I like u have a complex Bursitis Prob, in both hips, infact had my right Bursa removed!...In feb I went into surgery like U, had a huge (spinal probe) for my back(Also have DDD) Degen Disc Disease) and the injection helped my spine and took my Bursitis hip pain away....but now the probe has worn offf, back pain returned along with my bursitis in hips.....My spine surgeon has told me, the Hip pain is coming from my spine! Need another spine op, seeing surgeon 7th aug, will know more then!...Julia U must keeep seeing your Rhummy, I over the years have seen him at leasst 12 times.... so dont worry about the amount of times U see him But u MUST ask for a diagnosis, or get a 2nd Opinion, this is crazy, U cant posssibly cope with that horrifc pain....I have to take Morphine for that pain, how on earth do u cope? Lots love
Jill x
reply | back to forum

Date: 03.08.2009
From: vicky

Subject: Re: I feel like I'm falling apart and nobody believes me

Hiya,

I just wanted to say dont give up on your gp. I started getting artheritus sympotms in october last year i knew somthing was wrong first i though it was somthing todo with another condition it wasnt. So i went to the doctors every single day (literally) i begged with them, cried and everything else in the end i got referal to my local rhmertologist which i took a diary to so he had to listen to me! Just keep on at the dont give up
reply | back to forum

Date: 04.08.2009
From: val h

Subject: Re: I feel like I'm falling apart and nobody believes me

hi how is it going r things getting any better julia cant u do exercises and have injections if u need them? i see it as a fine ballence keeping mobile and pain free and not over doing the meds as dont like taking them plenty of fresh fruit and veg exercise (more on good days than bad) keep going till u find what works 4 u good luck have pain free day
reply | back to forum

Date: 04.08.2009
From: Jill

Subject: Re: I feel like I'm falling apart and nobody believes me

Lyneeeee elllllooooooooooooooooo Hows u today? goood I hope, cos U never seem to complain of pain... nor does val....Blimey I do ...lol...mind u, feeling ok at mo...but just soooooooo tired.....CT scan came thru for 18th Aug at 120m(day my lovely Mum died in 99 that is too) talk about timing.... oh well, will be 4 best...knackered even as I type this...mind u, got a bit of stresss here...ive got three sons...16(aspergers)...another 10 recently diagnosed with aspergers, and another son that is so angry and mooody and aggressive, had specialist visit from childrens mental health here today(waited months for home visit),,we thought he wld have anger management course, they visited here becos he refused to go to them...anyway, this guy, seesm to know his stufff seems to think that this Son may also have a type of Autistic tendancies.... now hes been investigated for a diagnosis....if it dont rain here, it pours!!.... heard of other mums having three kids with autistic spectrum disorder, but I never beleived it.... now I do.... thing is, hes ok in every other way, accept for his terrrible temper, and im worried about his future, girlfriends etc, cos hes a total control freak!...god help me eh? LOLOL
reply | back to forum

Date: 04.08.2009
From: Lynne

Subject: Re: I feel like I'm falling apart and nobody believes me

Jillly poooos HI lovie just had chest -ray today have to wait for result week next thur yawn yawn.. also did a peak flow metre test on my breathing.. been a bit laboured recently.. I hit 500 on it not sure what that means.. I think I could get a job on one of those naughty chat lines cos my breathing a little louder that usual ROTFL LOL

Glad your sons getting some attention hope you get the help you need Take care XxXxX
reply | back to forum

Date: 04.08.2009
From: Jill

Subject: Re: I feel like I'm falling apart and nobody believes me

well Lynnne My daughter is astmatic(both gals r in fact) and 500 peak flow is brill....hers is usally 400, but gets as low as 300, shes ill then... so I wld say 500 is prettty gooood, dont worrry about that...... mb thre is still infection in ya bagpipes...:( x
reply | back to forum

Date: 04.08.2009
From: Lynne

Subject: Re: I feel like I'm falling apart and nobody believes me

Pleased to hear thats not a bad reading... I've been looking up sjorgrens syndrome which is what I also have, and it says that your windpipes can get inflamed .. also your lungs as well.. think my doctor is thinking down those lines.. but is covering his back by ruleing out everything else.. mine not bad at the moment.. will have to wait for results.
reply | back to forum

Date: 04.08.2009
From: val h

Subject: Re: I feel like I'm falling apart and nobody believes me

hi all bet we have all felt like hypocondriac at some time know i did some of the time before found out why i was in so much pain and so tierd lol. jill u have to much on your shoulders how u cope i dont know only 4 of us and washer on every day dont iron anything dont have to these days and they take there own up stairs if not in wash basket does not get washed they r old enough to sort them selves out on a bad day so hope life sends u some good luck and u feel better soon
reply | back to forum

Date: 06.08.2009
From: Jill

Subject: Re: I feel like I'm falling apart and nobody believes me

thanks val xxxx
reply | back to forum

 

Add your comments to this topic
Subject:
Please type your comment here:

Your name:
email:

3+4=
(This sum is to help prevent automatic spamming through this page - thank-you)


top

Site design: T - Creative Home | News | Personal Stories | Links | Message Board