Date: 26.07.2009
From: Jill
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Subject: Newbies to Arthritis
Hi gals/guys... jsut a few points that I feel so strongly about, so does my friend Lynne that is a memeber in here also....PLEASE never feel intimidated by your gp when U know U need to be refered to a specialaist/rhumatologist....always write a note to ask questions, as we can forget and get upset being in the clinic.... also try take a best friend that will also listen for u!... also ask for the best Painkillers and anti inflams possible, often we get fobbed offf Initially, dont give up.... also DONT wait more than a few months for a referal...RING up the specialists Secretary, be nice and sweet, and that goes a long way with the Secretarys, as they r often under valued! but tell them the pain u r in! Beg for an urgent appt, and often after your first initial appointment, things can go faster for u.....so hang in there...But Never be fobbed off...and dont feel Intimidated in asking about YOUR Health, Your Body, Your Medications!!
goood luck guys, sorry had to get this offf my chest, as I feel some newbies suffer un necessarily, as I once did...most r goood, but dont take no rubbish xx
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Date: 26.07.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
With you there jill been telling everyone that. Bump this up so peeps get a chance to see it glad your back Hun xx
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Date: 26.07.2009
From: j
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Subject: Re: Newbies to Arthritis
bump
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Date: 26.07.2009
From: val h
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Subject: Re: Newbies to Arthritis
hi girl u r so right as normal. bump :-)
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Date: 26.07.2009
From: Sas
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Subject: Re: Newbies to Arthritis
Thanks all you are right! for me it was such a shock I forgot to listen to the Rheumy then went to Gp's she was great but was concerned about my mood and I was so busy protesting I was OK and I would cope, so forgot to ask more questions. Does this all sound familiar ? I have spend days reading all the threads on here so back to GP's tomorrow for AF's as well....watch this space:-)
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Date: 26.07.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Wish you luck sas take care
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Date: 27.07.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Bummpy bump bump people ned to know this xxx
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Date: 27.07.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Your so right jill it does pay to be persistant with them, that's really good advice
take care
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Date: 05.08.2009
From: Jules
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Subject: Re: Newbies to Arthritis
Thanks jill that was very good advice. The Docs can be very offputting. I often come back confused as to what he has told me xx
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Date: 07.08.2009
From: Kirsty
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Subject: Re: Newbies to Arthritis
Very confused at the moment, wish I has seen this before I met the Rheumy! 'I suspect Rheumatoid Arthritis, but I'm not sure until these tests are done.' Okay so we're back to square one again.
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Date: 07.08.2009
From: val h
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Subject: Re: Newbies to Arthritis
not quite u have a rheumy and he is running tests so u r streets away from me lol. i know the wait is frustrating but u would not want him to guess he is treating u and will do his best just tell him every thing not just good bits but the nitty gritty how eles will he know dont think they did mind reading in those days :-) we all tend to think that not connected to what going through but he does need whole picture to work from then he can help u i know the wait awfull but u can cope and there is light at end of tunnel good luck :-)
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Date: 07.08.2009
From: Jill
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Subject: Re: Newbies to Arthritis
OMG Val have U not seen a rhummy? was this a GP diagnosis? if u say yes to this....ask him to refer u... u seem quite bad, altho its all your joints, u might have something like inflam artha like me, where it attacks anywhere it wants....am I right in thinking u havnt seens a rhummy...?
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Date: 09.08.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
I so agree with jill's advice. We are all in denial at first and don't want to believe we are I'll and therefore don't really take on what the rheumys are saying. And as val says don't always mention everything to them because we don't know they are related. Good idea to write a list to take along with you as you can easily be intimidates by the Docs. Also an idea to take someone with you as they will probably take more information in. As we get a little shell shocked in the begining. Stay posative and take care all xxxx
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Date: 09.08.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Hi val like jill I am concerned that you have not seen a rheumy. Please go back to your GP soonest it's very important for your long term health and mobility. Not to mention the pain relief when your on the right meds. Good luck and let us know how you get on. Take care
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Date: 09.08.2009
From: val h
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Subject: Re: Newbies to Arthritis
hi girls that on my list of questions lol. at top would u belive started off managable but going down hill fast lol. doc great so will sort it could have phoned her before she went away but decided to see how pain killers helped must admit feeling sorry for my self this weekend want to cut the grass ect but know would do me no good so will give it a miss :-) what a good girl am i lol have good day all
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Date: 09.08.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Hi val yes this illness can turn nasty quite quick if your not on the correct meds to slow it down. Please do it soonest before any damage occurs val. Take care
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Date: 10.08.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Hi kirsty pleased you got to see a rheumy. The test do take a while. There is no specific test to tell you what kind of athritis you have they are just indications as to what it may be. Plus the rheumys best guess. We all suffer different symptoms even for say RA. That's why it's so difficult to get the correct diagnosis in the begining. But bear with it and tell them everything even if you don't think it's relative and you'll get there in the end. Good luck and take care xx
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Date: 11.08.2009
From: Jaen
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Subject: Re: Newbies to Arthritis
Please all of you who are in pain and have not seen a rheumy make an appointment soonest. Lynne is right with her advice. It made a difference with me I feel much better now. Please make an appointment take care
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Date: 12.08.2009
From: Sharon
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Subject: Re: Newbies to Arthritis
Thanks Jill and Lynne that was sound advice. I went with my sister and was totally flabergasted and confused by the specialist. My sis was able to tell me what he said about my illness cos when I came out I felt numdand and dazed . Waiting for the results to cone back. Soo pleasesd I had someone with me she asked questions too. Thanks for the advise xx
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Date: 13.08.2009
From: Lynne
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Subject: Re: Newbies to Arthritis
Hi Sharon welcome to the forum there are some really nice people on here who are always willing to offer support and advice if required. You can shout scream moan or stamp your feet there's always someone to listen. Good or bad times.
What sort of arthritis have you got. What meds did he put you on? Hope your well take care xx
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Date: 25.08.2009
From: Jules
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Subject: Re: Newbies to Arthritis
Hi all think the newbys need to read this so bump xx
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Date: 26.08.2009
From: Sharon
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Subject: Re: Newbies to Arthritis
Thanks all for your support it's nice to know your all out there and that we can support each other XXXXXXX
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Date: 28.08.2009
From: Jules
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Subject: Re: Newbies to Arthritis
That's what were all here for to support each other xxx
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