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Date: 14.07.2009
From: jan

Subject: hello

just want to say hi,im jan 47 going on 90 !yet again im off work with bad pain :( i am coming to the conclusion that i may have to stop work altogther which frightens me as we will prolly lose our home :( just wasnt to meet peeps who understand my pain and worrys xx
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Date: 14.07.2009
From: Jill

Subject: Re: hello

Welcome Jan, Im Jill and u will find lots of lovely poeple on here with same probs...we all try and help, support each other, Try give advice, but most of all we r m8s, U can feel comfy having a scream, tear, or a shout not too loud tho lol.... feel freee to relax and we will do our best.... I am at the mo in a flare up, today had a huge injection in my Bottom, been feeling unweel over last few days, and last night I was awake in agony with my hips, and elbows... hense the steroid jab...

jan have u been officially diagnosed ? if so, what type meds r U on? mb u need stronger pain killers to help u carry on with work...I had to give up work and eventually a lot of people have to due to the severe pain... I do feel for U jan...take care and look forward to hearing from u soon

lots love Jill x
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Date: 14.07.2009
From: val h

Subject: Re: hello

welcome jan u must b so worried as jll asked which type and have your meds had time to kick in some take time. have a mate who is long time sick gets her morgage paid and just had roof done and re-wired so dont get to upset till u have checked out every thing also stress makes things much worse good luck and if things get to bad come and have a good scream and moan works 4 us val :-)
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Date: 14.07.2009
From: Lynne

Subject: Re: hello

Hi Jan can understand your worries. As with Jill above I've been there. had to give up work 20yrs ago. Was worried about loosing my house too then I found out that I could claim Disability Living allowance (DLA) and incapacity benefit. That was enough to help me through. As Jill asked if you've been diagnosed, if you have it will help you to claim this benefit. The up side is you can also claim it even if you are working..
Take care
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Date: 14.07.2009
From: val h

Subject: Re: hello

jan bid (((((((((((hug)))))))))) to help u through take care rest when u can
val
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Date: 14.07.2009
From: Della

Subject: Re: hello

hiJan sos sorry to hear you are suffering i'm newly diagnosed in may this year hit me like a ton of bricks and i haven't been to work for 3 months nearly really struggling so i fully understand. how long have u had it? anyway i'm new as i say and the support and comfort of talking to people who understand has been absolutely amazing they are so helpful on on here were all like one big family so like jill said come on and moan i have lots of times lol hope u feel a bit better real soon xx
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Date: 15.07.2009
From: Jenny

Subject: Re: hello

hi I am new here too and feeling very old at 50 just told i have it in my hip and at somepoint will need a new one. Its scary and unexpected after being healthy all my life. And reading on here that there are so many young people with it trying to cope was a real eye opener i thought it was just an old age thing.. The best thng is sharing with people that understand it sort of takes the burden off family members.
all the best jenny x
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Date: 15.07.2009
From: val h

Subject: Re: hello

hi jenny i am 48 going on 88 some days have to take it as it comes and do what u can on good days and look after your self on others great to have moan and scream on here dont have to keep moaning at those around u
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