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Date: 05.07.2009
From: DELLA

Subject: feeling sad

sorry to moan again but after having the infusion on wednesday i was told if it didn't improve by friday to ring well it did seem like last time to have helped, my fingers went down but today they are killing me again and puffy and all swollen why isnt anything working for me ive really had enough now :(
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Date: 05.07.2009
From: Jill

Subject: Re: feeling sad

((((((((((((((((((((DElllllaaaaaaaaaaa)))))))))))))))))) I think the time has mb come whre u need more help....maybe methtrexate... enbrel?? RING THE NURSE UP...THIS CANT GO ON FOR U..... ooops caps soz xxxx
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Date: 05.07.2009
From: Jill

Subject: Re: feeling sad

DELLA I do feel so bad for u, cos ur such a lovely gal.... i do think your nurse and rhummy r trying out the kinda stufff to seeif u get better, its a kind of trial and errror game...I didnt go on my Meds for over threee years after Diagnosis, s3ems to me they r helping u faster than they did me...so i think u will get more help soon, they must have disgusssed with one another that IF this last infusuin did Not help U, then U ned something more better...I.e.MTX, Sulfasazaline, Enbrel..... ring them up tomoz Della, cos this isnt fair for u....remember tho, takes 3 months for those DMARDS to get into your system, so ring them Immmed... Lots of love and hugs 4 u...iv gotta go bed now, shatttered... got to get up early too... if U need me, face book me, I get emails first from faceboook messages... xxxxxxxxxx
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Date: 05.07.2009
From: Della

Subject: Re: feeling sad

Hi Jill ye i know ive been really lucky compared to some have been on the sulfasazine for 9 weeks now maybe i need to wait till the 3 months are up ill ask them tomorrow thanks for the support jill u r so sweet x
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Date: 05.07.2009
From: Della

Subject: Re: feeling sad

just wondered as i said ive been a lot luckier than a lot of ladies on here as i was seen very quickly by my rhummy and if i have a problem i ring and leave a message for the nurse and they always get back to me within a day so no complaints there. What i wondered does anyone know that as it looks like this second infusion hasnt worked i think i may be able to have one more if that doesn't worked what would be the next step as i'm already on anti flamms and dmarts what is the next option if all eles fails .
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Date: 05.07.2009
From: val h

Subject: Re: feeling sad

hi u r going through it u poor thing u must b so angry sad and very fed up. wish could wave magic wand 4 u. sending u lots of hugs and positive thoughts wont help u much but hope knowing u r not alone will help fingers crossed something works 4 u soon :-)
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Date: 05.07.2009
From: Jill

Subject: Re: feeling sad

Dellla Im so sorry I cant answer that qwesssy...simply becos i dont know... But I tend to believe that oce U r On say MTX(beleive that is better than Sulfasazaline(im not on sulfa as it didnt help me, made me ill and no help with the joints... But since being on Methtrexate and Enbrel...ive been lot better, has less pain, less flare ups, dont get me wrong, i still gert fatigue bad, and I am in pain with my elbow and hips and spine, but as u seen me say, need spine op... and hips will be better once had spine op...But I do beleive that as they caught u early, earlier than say most, that U will get sorted and they will prescribe the other meds(ask about them) and U will feeelo so much better.....remember gettting sad is part and parcel becos of the knock on affects of the joints, we are bound to be sad. BUT I promise U, it will get better, in the scheme of things, having the pain U hav had 9 weeks continous, in the life span of artha, it hasnt been long, for u its been forever, but for the arthritis..the R.A. its such early days... so becos of that, I want U* to feel more Positive, as there was noway when U first came into room(glad U have x) that I couldnt tell U that U wld still be like this... but as ive got to know u, I can now say, that I think and u probably realise this now, that there is no qwik fix....takes ages to become stabilised on the meds.... this condition is a long drawn out disease, and altho its jsut your hand s and feet at mo, it can go any where within your body, so the sooner u get those goood meds we r on, the better, start Screammmmming at them Del, to be heard!!having said that Della, the process is slow, took me over 3 months to gert mine from the time seh agreed that I cld start them...might be different in difff ares etc//// Dellla have to go bed now....so try and sleeep well, get some Diaz-apam in to u, they relax the Musckles in the body... and help u rest.... speak tomoz sweeetie

Love Jill xxx
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Date: 05.07.2009
From: Angela

Subject: Re: feeling sad

I cant give you any information or suggest anything Della, I wish I could, but as you know i am to new myself.
Just want to let you know I am thinking about you.
Take Care xx
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Date: 06.07.2009
From: Della

Subject: Re: feeling sad

Thanks all for the words of support i really find it helps and touches my heart wen u know that u r not alone thankyou so much. have rang hospital and left message so shall wait to hear from them xx
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Date: 06.07.2009
From: Lynne A

Subject: Re: feeling sad

Della hang on in there luveee,feeling despair is part of living with the condition.. just keep on at your rheumy like you are doing.. and they will try another med or combination of meds.. unfortunatly it can take some months to get it under control.. Theres no quick fix. sweatheart.. Take care
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Date: 06.07.2009
From: val h

Subject: Re: feeling sad

lynne a right from all i have read it takes a while to find meds that suit u as a person stay strong take care huggs to u
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Date: 06.07.2009
From: Lynne

Subject: Re: feeling sad

Sorry Della my spellings well off today Meant sweetheart... opps got too lololol or we'd be crying all the time..
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