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Date: 03.07.2009
From: Louise

Subject: Anaemia

Hi,
are there any other people on here who are anaemic with RA?
how is it managed etc?
Any advice?
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Date: 03.07.2009
From: Lynne A

Subject: Re: Anaemia

Several years ago I had a mild form caused by my meds. just stopped them for a while on docs orders and my bloods came back to reasonably normal. You seen you rheumy about it??
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Date: 03.07.2009
From: Louise

Subject: Re: Anaemia

Thanks for your reply Lynne.
Due to see rheumy in a couple of weeks. GP is ordering some extra blood tests. Has been going on for a while, but last lot of results show it's getting worse, not sure why, I have tried to eat plenty of iron and folic acid rich foods - that doesn't seem to help.
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Date: 03.07.2009
From: Angela

Subject: Re: Anaemia

Hiya Louise,
My doc is monitering me at the moment. Apparently my hb is going lower on each blood test, and he keeps mentioning anaemia and is watching me.
I have never been anaemic in my life that I know of, and upto being diagnosed in December just gone, i donated blood regularly, and they always used to check for that.
I am drinking beetroot and carrot juice daily for now to see if that helps.
I am due to see my Rhummy as well next week, maybe he will have some advice, I will let you know if I get anything useful.
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Date: 04.07.2009
From: Lynne A

Subject: Re: Anaemia

Hi Louise and angela.. Have you got a rheumatolgy specialist nurse at your hospital? I have found that giving them a ring, they can give you advice or even bump you up the waiting like and get you in to see your specialist sooner.. I have found you need to be proactive with your specialist or they will just examine you then tell you to come back in six month .. no better off
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Date: 04.07.2009
From: Jill

Subject: Re: Anaemia

Very tru Lynne...LOl gald u found that out...I can ring my Nurse too and get in faster...well we deserve at least that, pain is a terrrilbe thing....x
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Date: 04.07.2009
From: Angela

Subject: Re: Anaemia

Hiya Lynne, Unfortunately the rhummy nurse at our local hospital is always on answerphone and most times it wont let you leave a message, and if you can she never gets back to you.
The last appointment with her was yet again rescheduled from June to October
This happened at the beginning of my treatment and I ended up waiting 4 months for my medication. Not Good.
The trouble is they are so understaffed plus one of them has been off sick since March, so they are overloaded.
Yes thanks for that I intend to be proactive with my Rhummy, I have a list for him in fact lol.
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Date: 04.07.2009
From: Jill

Subject: Re: Anaemia

Angela that is so rotten for u...well when U get in to see your Rhummy, give him both barrels lol..and tell him u cant get intouch with the nurse...you never know, he might get more stafff ? jsut a thought...
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Date: 04.07.2009
From: Lynne A

Subject: Re: Anaemia

I think I read somewhere that you can book a specialist appointment online..?? I know I can log onto my local GP web page and put a special code in that the receptionst gave me and I can book appointment at the hospital maybe you can give your local GP a ring and find out if this is available for you.. if you don't ask they don't tell you!!
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Date: 05.07.2009
From: Lynne A

Subject: Re: Anaemia

Here's another thought .how about visiting you GP and asking him to write a letter to your Rheumy .. never know?
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Date: 05.07.2009
From: Angela

Subject: Re: Anaemia

Hiya again,
I have complained to the rhummy Jill, (delicately)and he said if I needed help with anything and can't get the nurse, then call his secretary, which I have and she was lovely but quite simply couldnt answer my questions, and emailed the nurse for me but I have had no replies.
Lynne I have booked an online appt but only after being sent details to log on, not just of my own accord, but i will look into that, and if after tomorrow when I see the rhummy I get no joy, I will mention it to my doc like you suggest thanks.
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Date: 05.07.2009
From: jill

Subject: Re: Anaemia

I ring my Rhummys Sec, she makes me a new appointment, howver, U wont beleive this...but my Rhuumy told me there is nowt he can do anymore for me!! he told me that my Reiters has a pain cycle of its own..... Im on the correct meds now, and its now up to my Sugeons to correct anything that is damaged.... i use the surgeons now,... not the Rhummy, but I do use my nurse, shes gr8
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Date: 05.07.2009
From: Angela

Subject: Re: Anaemia

Thank God you have the nurse then Jill, you can do without rhummys like that i think
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Date: 05.07.2009
From: Jill

Subject: Re: Anaemia

thing is Angela, he is very goood, but I asked him back 3 years ago..."what can u do for me, do I have this Reiters diseae for life"? he said Yes....there isnt anything I can do for u, accept offfer the meds...and if u need the ops, then see the surgeons, they have been brilliant... but since i was diagnosed in 2002 these r the ops that i have to correct the damage....

here goes lol..... 2 knne ops(arthrospys) no cartledge in both knees(reiters)
spine op 2003 (lost two discs) (due to reiters)]
20002 huge Bladder repair and prolapsed womb(becos it happened lol)
2006/7 2 shoulder ops, due to reiters
2007/8 2 Hip ops..arthrisits removal...and bursa removal, and tear in soft tissues repaired (reiters caused this, apart from the Arthritis, casued by Inflam artha now...

now I need another spine op, as anotehr disc has been lost (reiters yet again, it east the soft tissue) however, 2 years ago, that disc was in place... now its gone, and ive been on MTX and enbrel and that is suppose to stop degeneration....in my case it hasnt, altho I have lesss flare ups now.... and on top of all thar crap...i sufer from sever tiredness, fatigue GRRRRRRRRRRRRRRRRRRRR..... I guesss thas y i lose patience with stoooolopid ppl that think they know it all.... even after all this(blowing my own trumpet) i still lik to help others, its only now and again that I go all morose and tell peeps in here all the ops ive had...... i know many peeeps r worse offf than me...but ive had my share op corrective surgery and ive got more to come....I also have three discs in my neck that have been lost ttoo, due to Goood old Reiters!! grrrrrrrrrrrr again LOLOLOL x
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Date: 05.07.2009
From: Jill

Subject: Re: Anaemia

Oppps this is an aneamia topic isnt it lol...never had that yet !!!! PMSL
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Date: 05.07.2009
From: Jill

Subject: Re: Anaemia

PS we only have & discs in the neck.... i sometimes have to hold my head up, as it feels tooo heavy, i do have a neck brace but hate it!
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Date: 05.07.2009
From: Jill

Subject: Re: Anaemia

* 7 Discs in the neck* Soz
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Date: 05.07.2009
From: Angela

Subject: Re: Anaemia

I know you have been in the wars Jill, thats why I understand when you lose patience with some posts, and you have got every right to.
I also know that you soon forgive and forget to,and that you care, it is clear your heart is in the right place.
It is also clear lots of folk on here enjoy your humour.
Take Care
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Date: 05.07.2009
From: JILL

Subject: Re: Anaemia

I know ive been a dumpty at times... howevr, i am usually an upbeat chick...and I geneuinely(cant spell that LOL) care about ppl... thanks for your sweet words, I try and stay pos, but I do get bitter when shite happens to me again and again... guess thats the name og the game this disease...attacks us all at different times, some worse than others... Yet im still bliddy GORJUS.... lol I just dont get it!! PMSL ROFLMfaooooooooooooooooooooo
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Date: 05.07.2009
From: J

Subject: Re: Anaemia

oooPS MEANT nUMPTY!!! lol
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Date: 06.07.2009
From: Lynne

Subject: Re: Anaemia

How did you get on with your Rheumy Angela??
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Date: 06.07.2009
From: val h

Subject: Re: Anaemia

jill seen your pic u r gorgus that is so true. u seem to have teretts(cant spell it) shout things out at inopertune times lol
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Date: 07.07.2009
From: Jill

Subject: Re: Anaemia

ROFLMAOOOOOOOOO, LOL i ONLY JOKE THAT IM GORJUS LOL....PLUS THAT IS THE WORST PIC OF ME, MY SIS SENT ME IT AFTER WE WENT TO PORTUGAL TOGETHER ooops caps...genuinely didnt know i was typing caps there lol....i never have piccy taken, oh yea I had a few down my neck too, thats Y I posed for that SWL x
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Date: 07.07.2009
From: val h

Subject: Re: Anaemia

my oh said why r all the pics i put on face book of him with glass in hand, told him it was only time he would let me take one . i take the pics then dont have to b in them lol works 4 me
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Date: 07.07.2009
From: val h

Subject: Re: Anaemia

my oh said why r all the pics i put on face book of him with glass in hand, told him it was only time he would let me take one . i take the pics then dont have to b in them lol works 4 me
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Date: 07.07.2009
From: val h

Subject: Re: Anaemia

my oh said why r all the pics i put on face book of him with glass in hand, told him it was only time he would let me take one . i take the pics then dont have to b in them lol works 4 me
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Date: 07.07.2009
From: val h

Subject: Re: Anaemia

oops got stutter there lol
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Date: 07.07.2009
From: Angela

Subject: Re: Anaemia

Hiya again Lynne, Rhummy was okay, he wants me to go on mex as well as sulfa, he says that should definately bring down my ESR, i have got a 6 week wait before i can get in to see the nurse to get started (as usual). but there you go.
He said I can go back for another aspiration and steroid injection in my knee if it gets to unbearable.
Thanks for asking.
How are you feeling today?
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Date: 08.07.2009
From: Lynne

Subject: Re: Anaemia

Angela, Glad they are doing something for you at last. The meds will take a little time to kick in unfortunenatley there's no quick fix. but at least your on the way. Me reasonable today thanks, a little achey but Ok on the whole. Take care
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Date: 08.07.2009
From: J

Subject: Re: Anaemia

Poo was about to write summat then....gotta gooooooooooooooooo get my baby from skool xxx laters gals xxxxxxxxxxxxx
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Date: 08.07.2009
From: Lynne

Subject: Re: Anaemia

Louise how are you doing girl.. any luck with the blood test's yet?
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Date: 09.07.2009
From: Louise

Subject: Re: Anaemia

Hi Lynne
GP wants them done in a couple of weeks. Seen Rheumy, he has sent me for xrays(back and knees) and another yet another blood test! He does not seem concerned that I'm anaemic and said that it is very common with inflammatory arthritis.
Hope you are well today?
Take care
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Date: 09.07.2009
From: Jill

Subject: Re: Anaemia

Hi Louise

I have infla artha as well, to be honest, its almost same as R.A., however, one rhummy told me I have R.A. as esr was 97 and another one said I wasnt, so to be honest, altho i have Reiters, that leaves me with Inflam Artha, it cld be R.A. 2? dunno...what u gals think that have R.A.? I know it doenst really matter, as the treatments are the same, but it does get me down not truly knowing the exact diagnosis...oh well anyway hope your ok Louise, hopefully your blooods will get better, do u eat Spinage?meant to be goood for Iron, r u on supplements? take care
Jill x
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Date: 09.07.2009
From: Lynne

Subject: Re: Anaemia

Hi louise
It quite typical of Rheumys not to take your symtoms seriously in the begining, as you may see on some of the other threads above^ What meds are you on
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