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Date: 30.03.2020
From: Lois

Subject: Hi Lucy and Colin,

Bumping up.
Lucy all good here. Trying to keep busy the mind is so willing the body is screaming ouch ouch ouch.
I started a new post because I couldn't find the old one.
They still find time to fill the forum up with rubbish at a time like this. You would like to think they might have the decency to stop.

My moaning over. I hope you hubby and family are keeping well.
I was saying this morning there will be a baby boom and a lot of divorces after all this has settled just a thought.

xx
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Date: 30.03.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Funnily Lois, I was thinking exactly the same thing lol. We are fine too, at the moment anyway (fingers crossed) It's getting that when I waken up in the morning I have to think what day of the week it is. I have a tesco shop coming tonight between 9-10pm, was all I could get so hoping most of it comes, especially my prosecco lol.

At least it was a better day today, my little grand daughter was colouring in little foam easter eggs that I had got her week ago and then we were hanging them on the tree as she must be wondering what is going on. I ler the rabbit out it's hutch but we are going to have bother getting him back in again, just worried if the delivery man leaves the gate open and it runs out. There is a wild baby rabbit in the garden too so they have been running around together, quite funny watching from the window although it's not a good idea it mixing with the wild boys lol. The rabbit is black and white and there is a large football in the garden (black and white) and two magpies obviously black and white too and they were all together at one point on the grass, it would have made a good photo.

Keep safe, and yes those fools that keep sending there rubbish is annoying. xx
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Date: 30.03.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Hi guys , hope you are all keeping well , I had a hospital bed delivered last week , been years since I went to bed at night , 24 hours in one chair is not great even if it moves to diferent shapes

trying to stay clear of this virus , had few weeks of antibiotics which had reaction to ie: red itchy shin , not great , not going out , not sure if going back on my biologic until this is over , this one you take as a tablet twice a day so dont last in your system very long unlike the one Lucy is on which last up to a year

waiting & trying to get a Tesco home delivery slot which I think may be had , hope you guys are well & look after yourseft & stay safe
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Date: 31.03.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Colin great you can get in a proper bed heres hoping for some greatly needed rest.
I am confined home for 12 weeks goverment orders. Trying to keep myself occupied one week done into second week.
I hope the new biologic tablets work well for you
Stay safe best wishes to the family. X
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Date: 31.03.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

HI Colin & Lois, Glad to hear that you got the bed Colin, and hope it makes a big difference.
I can't believe I have been so stupid, when I was telling you about the magpies beside the rabbit I didn't realise they would attack him. We couldn't find him to get back into his hutch last night and this morning my husband found him lying dead in the garden
with the magpies pecking at him. I didn't realise that's what they do until I went on line and discovered they do. I've still to tell my daughter as it was her rabbit. I feel quite sick now. Take care xx
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Date: 31.03.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Oh Lucy bless you I had no idea magpies would do this. Although they do have a bad reputation for stealing eggs from other birds nests.

Best wishes try not to stress xx
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Date: 04.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys , think need to rant ( alot )

bloody tesco's we have used home deliveries for years cause I cant get out , now find we cant book any , so much for tesco's trying to protect people with major health issues , log on well before midnight to book & only to find myself being put on a waiting list till all the slots have gone , ( & me in big trouble with the boss

my son sounds like he is going down with something , but he has had a cold on & off most the winter , just not sure fancy my chances with this virus

the bed is pretty uncomfortable & not staying over night in it , just want to wake up when all this is over , stopping most my meds to fight this virus , just hope they get a vaccine very quick

Lucy sorry about your rabbit , wildlife care be cruel sometimes , take care both
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Date: 04.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Oh dear Colin, I managed to get a slot with Tescos for the 17th April. My son and daughter have been shopping for us.
I tried everyday for 12 days it is frustrating to say the least.
I am sure the boss will be ok not your fault at all. It is enough to make any one cross. You would think they would have got their act to gether by now. My neighbour had to go shopping and she is supposed to be staying home as one of the vunerable along with her husband. I spoke to her and she is upset and worried.
I hope your son has a cold and stays safe.
Sorry the bed is uncomfortable. I was hopeful it would be giving you a good night's sleep.
I wish i could wake up and find all of this was a dream if only.
Take care
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Date: 05.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Colin, The deliveries are bad, I think most people are using it whether they are vulnerable or not and it makes it difficult for the likes of us. I managed to get an Asda one for tonight but they emailed this morning to say they don't have some of the items. My daughter has been dropping some things off for us. It is a worrying time and I am trying to stay away from everyone. We ordered an Indian take-a-way last night for a change but again it worries me in case the virus is on the carrier bag etc, it is difficult. That's a shame the you are not finding the bed comfy, it maybe take a wee while to get used to it, or could the mattress get changed? I know when we went to a hotel it always took me a wee while to get used to the bed. Stay safe and like yourself I hope this is over soon. xx
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Date: 07.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi I have just had a little cry. Tesco donated 90 eater eggs for the care home patients and the carers. My mum will be made up she loves chocolate.When i saw it on facebook it just touched me.
The table full of easter eggs looked amazing.
I know it is nothing to Tesco but means so much to others. Well done Tesco. Just thought it might bring a smile to your faces


Take care xx
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Date: 07.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

That is lovely Lois, I hope you Mum enjoys. Would be nice if all the other care homes get some too. Hope you are well xx
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Date: 07.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi Lois , that is a nice touch from them , this is toughon everyone ,

quick update from us , my son been suffering for a few days , he lives here with us , no idea how he picked it up , I am starting to have a few tempertures today ,just hope its something else , atleast we did manage to get a delivery/slot from tesco , I did try registering on gov website but son found a way around it , our click & collect place is twenty miles away , waiting to see what tomorrow brings , take care guys & stay safe
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Date: 08.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi there, Colin I hope you and your son are both ok.
My eldest son called paramedics to his girlfriend last night. They were sure she has corona. Now I am sick with worry as my son and granddaughter have asthma. They all have to isolate for 14 days at least.
This is getting too much.
All the idiots who have to flout the rules are beyond me.
They just don't seem to comprehend how serious this is. Thats my moan for today.

Take care xx
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Date: 08.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi Lois , its a worry , my son is not well , had it about 7 days & was hoping he was over the worst , tommorrow we will contact our GP as he may need to go into hospital

I am ok today , taking my biologic in hope to suppress my immune system , they dont realy know how to treat this virus , also got my letter telling me to stay indoors , well bit late but if it helps me gets slots at tesco then happy

hope your family are ok its a worry
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Date: 09.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Colin so sorry about your son. Lets hope he doesn't need hospital help. I feel for you and anyone this virus affects.
Your letter is late but they did say 1,500 had been missed off the list. Lets hope it helps you get a slot. Didn't help me.

Take care keep us posted how your son is doing xx
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Date: 09.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Colin, I'm sorry to hear that your son isn't well, i hope he makes a quick recovery and you don't catch anything. It is a worry especially when it's our kids (no matter how old they are) you take care.

Hope your son's girlfriends is ok Lois. It is a scary time for us all. Just wish it would hurry up and go away.

Going to bed now, i feel more exhausted than ever since this virus came. Stay safe xx
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Date: 12.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys , still got my little bug , had this a week now , my idea of staying in for 16 weeks did not go well , I still having fever & now problems with asthma , see GP on friday , checked oxegen levels in blood & checked lungs , no test for covid-19 but advice .
Son still ill on day 12 , thinking this will take a long time for us both , was told to stay on my immune suppressents , people in chins with lupus seemed to recover quicked on the malaria drug and in china the tried one of the biologic anti-tnt to do the same & control the immune system
guys stay safe & best wishes
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Date: 12.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Colin, Did the doctor give you anything to help? I hope you will soon be over your bug and hope your son is ok. My little grand daughter had some virus about a month ago and she still have a bit of a cough, or more like a constant clearing her throat, not sure what she's had. I am on the malaria drug Colin, I heard that they are trying it on some people.

How are you Lois, hope you are staying safe and well....oh and a Happy Easter xx
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Date: 14.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi both, hope you are still ok Lucy and the family of course.

Colin how are you and your son doing.

My sons girlfriend is getting there.
I saw a picture of her easter and she looks exhausted.

Take care all.xx
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Date: 17.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, Yes we ok thanks, hope you are too. Don't know when it is likely to end though, at least we are fortunate enough to have a garden which I am thankful for, I feel for the people in flats that have kids. My tooth is a bit irritating, just hope it doesn't get any worse as I don't even know if my dentist is open and I don't fancy going anyway with this going on. That's good that your sons girlfriend is on the mend.

I have been getting my butcher meat delivered and tomorrow I am having a veg box delivered as the tesco deliveries are few and far between.

Hope you are ok Colin.

Stay safe and have as good a weekend as possible. xx
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Date: 19.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, glad to hear you are all ok.
We are in the garden as much as possible. Like you say a flat with children must be awful.
I have managed to get a fortnightly slot with Asda don't use them normally but as you say Tescos are few and far between. I am grateful for any food delivery at this time.
Tried to get a milkman but nothing in my area.
We are managing ok now for food.
My sons girlfriend is good apart from pains in her legs. This virus is so weird.
I just wish it would go away.

Take care and stay safe x
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Date: 20.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys ,
I thought I was over the worst but gave me a quick reminder yesterday , our son still suffering after 18 days , did offer him a few immune suppressant but he wont take them , he is on day 18 & still not right & his immune system over active

Lois I how she gets better soon , you are right & this virus is wierd , the goverment have messed this up allowing everyone bacK into this country & not checking them , here there was loads back fromItaly on skiing holidays , could rank for a long time with them

guys stay safe & dont catch this
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Date: 20.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Sorry to hear that you and your son have been so unwell Colin, is it the carona virus? whatever it is I hope you both will feel better soon.

I got a letter in this morning telling me to self isolate for at least 12 weeks, it said I would probably have had a previous letter telling me to do so but this is the first one, they said we will be allocated priority slots with the major supermarkets so will have to check how it works.

Thank goodness the weather is dry and bright, I would love to go for a walk but even if this wasn't happening I wouldn't be able to walk much further than the end of the street.

The care home called me last week to say they think my brother had a chest infection but the next day he seemed a bit better but they have tested him for the virus so should know in a day or so, hopefully he hasn't but goodness knows when and if ever I will see him again. Sad times

Take care and look after yourselves xx
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Date: 20.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lucy good you got the letter , you may get a box of groceries , having slots may help but they dont make it easy

as for the care homes , its such a worry , down here they sent people out of hospital to care homes with the virus , with alot of deaths in a bed home , we dont know the numbers but over 10 deaths

we have not been tested for the virus but told it was , I am alot better today & slowly think our son is improving , just greatful my immune suppressants helped
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Date: 20.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Colin, Glad to hear that you are feeling a bit better. They said in the letter that I got to text back if I needed the box of groceries but only if I had no family or friends to get shopping for me so I haven't bothered as when my daughters manage to get slots I just add a few things onto theirs. I also have a butchers that does deliveries and also someone that delivers fruit and veg, it was a huge box I got on Saturday for 20.00, it had everything you could think of in it, potatoes, carrot & onions, leek, cabbage, turnip, cauliflower, and loads of fruit, so we are ok at the moment for food. I made some soup today with the leek and veg.

How are you Lois? How are you passing your time, do you bake, watch films or are you managing to get plants for the garden? I usually go to the garden centres at this time of year but everything is upside down, i was thinking of ordering some plants online.

Keep well and stay safe xx
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Date: 21.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi guys, got my first Tesco delivery today. Nice to see the fridge filled again

I have been growing seeds in the greenhouse i had bought earlier in the year. I had a big delivery of plug plants to bring on in the greenhouse. So far so good. All coming on nicely. I don't normally do this but it is easier than seeds. I am trying Marrows tomato peppers lettuice beetroot. I will let you know how well that will turn out. I ordered mine on line and was pleasantly surprised how well packed they were. Have a go at ordering. I just bought a few to start with. Just to make sure the plants were ok.

Home made soup sounds good something to think about. I haven't baked any cakes so far. Not like me.
Your veggie box sounded great for the money.

Colin good to hear you are on the mend and your son of course. Bloody virus we are living in a war zone except we are fighting this weird virus.

Take care and stay safe xxx
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Date: 23.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

quick bump , we are doing well , hope both of us are over this now , just taking time
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Date: 23.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Oh Colin good to hear. My sons girlfriend is on the mend as well.
This is like fighting a war but not seeing where the enemy is coming from.
Take carex
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Date: 24.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lois , not sure which drugs you are on but immune suppressants seems to be the way to go , there is a arthritis forum on facbook & there are several recovering on there after taking the drugs against the advice from our doctors

but they are doing trials on several biologics & the malaria drug but they are taking time & people are dieing from it which is very sad

I am pleased she is recovering now , it takes time & can come back a bit so makes sure she is clear for over a week before any contact
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Date: 24.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Guys, So pleased to hear that you are a lot better now Colin and of course your sons girlfriend Lois. It is such a shame that so many people have died with this virus and not having enough ventilators and gowns etc is bad, they knew it was coming so should have been prepared. There is so much contradiction around too, most other countries wear masks when they are out.

It is a lovely morning here so perhaps later we will have a wee BBQ, I have some steak coming in my butcher order today. Oh I got an email from Asda offering priority slots so that is helpful although it is usually Tesco I shop at as my daughter works in Tesco bank and we get a discount but sometimes think there prices are dearer to start with and beggers can't be choosers lol.

Take care and have a good weekend xx
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Date: 24.04.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, this virus is so bad first it was just the sick and elderley that was at risk. Now it seems it can take anyones life. It is so bloody scary. The goverment and politicians are all over the place and talk the talk but thats all.
All the covering up about how many people have died in care homes and treating it like it doesn't matter well it Does to people like us.
Mum care home have recieved ppe 2 days ago. This is disgraceful. Considering how vunerable they are this should have been sorted from day one.
Now the testing kits have run out already. It was only set up today.

Anyway something a bit different I went with Asda as they offer for priority a weekly fortnightly or monthly recurring slot when you register with them. I cant remember if its after your first delivery.
I usually shop with Tesco but glad to have a delivery from anyone.
Hope you get a slot ok.

Take carex

Colin I hope all is still going in the right direction with you and your son x
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Date: 29.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Guys,

Hope you are well and managing to pass your time ok. What a change in the weather from last week, hopefully it will brighten up again and we can get out in the garden again. I've ordered some wild flower seeds so will be interesting to see if they come to anything. I might order some plants online.

I've got a tesco shop coming this afternoon, I've ordered some news baking tins so will make some fruit scones later today. I've been ordering chocolate bars etc from Amazon and getting them delivered direct to my brother, he loves his chocolate and even got Amazon to deliver his Irn Bru (our other national drink) lol. I was surprised to see it online, I sent him a bottle of whisky a few weeks ago, I just hope they give him a small glass in the evening. Oh I forgot to tell you, I had a call from the carehome on Sunday night to say there had been an incident, I thought what now, anyway he was caught kissing another resident, seemingly they had to separate them, I found it hard not to laugh but she said they have to record it.

Take care xx
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Date: 29.04.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi Guys F*** this Covid-19 , thought we was over it or nearly , my son it came back last weekend and wiped him out , he is on day 28 today & still not over it

Myself cameback at the weekend as well , had 5 days clear & then had chest pains + asthma problem , got a temperture reader & a blood oxygen tester a peakflow meter so phoned doc's & put on antibiotics , stopped all immunesuppressants & upped steriods , starting to get better , dont want to end up in hospital , this virus keeps giving
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Date: 29.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Oh that's a shame Colin, I have heard that, you think it's going then there is a second phase of it, I hope it clears up soon for the both of you. I hope I'm not in for something, it feels like something is about to start so hoping it's just a wee cold. Take care x
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Date: 29.04.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

bumping up
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Date: 02.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lucy , dont know about second , but what about the third - 4th & 5th , dont understand it really but still positive & hope I am winning but at least the chest infection is starting to get better , - just trying to stay positive

two things I seen Covid Symptom Tracker is a app done by Kings College London & they are tracking the virus in the UK , they need people to give 1min updates every day even if you dont have it , there are over 3 million users in the country using the app which is brilliant & giving updates

other thing is from Cornwall live & here they save a mans life using tocilizumab when he was close to death , so proud they took the risk treating him & hope the doctors learn from this

hope you two are good , stay safe like I did

https://www.cornwalllive.com/news/cornwall-news/italian-doctor-saves-life-covid-4097892?fbclid=IwAR0E_Cmjf2pVSCS125VJYpRNDM5S-hK8ZOmETRO3t3o11LzRr5alnv6ITjk
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Date: 02.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

I didn't know that you had tested positive for the virus, Colin. Hopefully you are over the worst of it now. I'm pleased to hear that your chest infection is getting better. Take care of yourself.

That is very interesting about tocilizumab saving the man. I didn't know that, I wonder if it means people already on it will be safe from the virus. I did hear that the malaria drug could help.

My daughter said she has been reading about vitamin D and how a lot of doctors think it helps, she seems to think that's why so many ethnic people are dying from the virus as they need a lot more vitamin D than us when they live here.

Try and get outside if you can as that's the best way to get it.

Are you ok Lois?

Take care and stay safe xx
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Date: 02.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Guys, Lucy I am fine. I had a couple of days of feeling really lost. My youngest son has been bad with his asthma. They gave him an appointment with an on call GP at his local hospital. Thet sorted him out he has to take anti histamine pills and nasal spray. Along with two inhalers.
It doesn't matter how old they are you want to be there and unfortunately we can't.
I have been gardening all day. Well sorting out the greenhouse and planting out. The weather was lovely to-day.

I sent my mum a card and flowers yesterday. My daughter is doing skype with mum next week.

Colin i am really sorry you and your son are still unwell. My sons girlfriend has been suffering with awful pains in her legs since she has covid. This virus is just so odd nothing like I have ever heard of.
Colin take care.

Stay Safe xx
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Date: 02.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Glad to hear you ok Lois. You are right, as a mother you constantly worry about your kids.

That's good that you have been in the garden, the weather here is dry but not warm enough to sit outside.

I had a call from the care home on Wednesday night, well almost Thursday as it was after 2am when they rang and I got such a fright, I hate when the phone rings at that time, they had to call an ambulance for my brother as his oxygen levels were low, i called the hospital and they said he didn't need oxygen and his levels were fine so don't know what's going on. They had to keep him in and check for the virus again before they sent him back to the care home, the results were negative so he is back there again. It really is such a worry with them when this is going on, i just hope things can get back to normal soon.

Take care xx
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Date: 03.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

bump the right one this time

btw I am on my second lot of antibiotics , was a bit close to going in last week , looked at the 111 site & said dail 999 , think not but chest was hurting so they would check its not the heart but sure it was my lungs , my son is over a month now & think he needs antibiotics , still not right , this is one hateful virus ,

as for the boss still clear & wounder if she is one of them that had it with little signs , anyway she wants in on the action & broke a rib , never had it myself before but know it hurts & could end up with all us here on antibiotics

take care & stay safe
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Date: 03.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Oh my, 50th Anniversary, is it this month Lois? many congratulations. You will just have to have a special meal in the house and go somewhere when this is all over.

I'm sure your Mum would have loved the flowers and she knows you are thinking of her.

Make sure you finish the antibiotics Colin and take care of yourself. A broken rib is painful, I found it very hard to turn in bed when I broke mine and there is nothing that they do for it, i remember years ago they would strap people up when they broke a rib but not now.

Take care and keep well xx
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Date: 04.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Meant to say...hope both your sons are OK and recovering x
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Date: 04.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, my anniversary is 30th so there is hope yet.
Colin you and your son have had a long journey with this virus. I hope you will both be on the mend real soon.
A broken rib is a real shame I bet the pain is awful.

Lucy, my son is ok now the pollen made his asthma bad.
My other sons girlfriend is suffering with pains in her legs. It must be bad it wakes her up. Its all part of the virus.

To be honest i am hopeful they wont send the kids back to school yet. We will lnow soon what they are going to do.

Take care xx
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Date: 05.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, It is a shame that we can't plan for anything at the moment, i'm glad i hadn't booked any holidays. It would be nice to see the sea but goodness knows when that will happen now and as long as we are safe that's the main thing.

Glad to hear that your son is ok. I thought i had something starting but I think it's an allergy as I keep sneezing so perhaps the pollen is causing it.

Hope you are on the road to recovery now, Colin.

Take care and stay safe xx
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Date: 06.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, I had booked a holiday for our anniversay but I cancelled and I didn't loose a penny. I will go to that hotel sometime it looks amazing sea views and a balcony. It is in Dorset one of our favourite places.
You are right as long as we stay home we will be safe.
Apparently the pollen is really high this year they told my son that is not helpful for people with asthma. I have been taking a one a day pill and a nose spray I have been good so far.
What is your granddaughter making of all this. My two youngest are a little bored but have accepted it all without to much fuss. Kids are pretty resilient.
Take care Lucy. X
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Date: 06.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

That was good that you didn't lose your money Lois, although it is a disappointment when you had looked forward to going, but you can go another time.

It was a lovely day here today, I think my little grand daughter is probably getting a bit bored now, we have a swing park beside us but she can't use it just now, but we are managing ok, I got a trampoline for the garden that she enjoys, she is due to start school in August but not sure what is happening with that yet.

My ankles have been really sore lately, not sure what will happen with the operation now and to be honest I'm not in a rush as feel a bit apprehensive about it now.

Take care xx
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Date: 07.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Thats good your little one is having fun on her trampoline. Lets hope by August things will be better.
Just received a new NHS Safeguarding text telling us we have to stay in until the end of June now.
That is a sign that things are still pretty bad out there. My daughter came today with flowers and sweets and a chat through the window. Hubby made tea and left it by the front door for her. It was strange but nice to be a little bit normal

Sorry your ankles are sore. At least you are being given time to make a rash decision about the operation. Weigh up all the pros and cons and then make your choice. Whatever you decide it will be your decision. I am sure you will make the right choice.
It has been lovely here also. Spent the afternoon taking in the sun just what the Dr ordered.
Take care xx
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Date: 08.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Just a short post. I had a call from Mums care home. They tested all the residents for corona virus. My mum came back positive. She isn't showing any signs yet. I am devastated. I just feel I should be there.
X
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Date: 08.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lois , I am so sorry , really dont know what to say , try to find out how they are going to treat your mother , I used a immune suppressant thinking it was the best chance I had to fight it ,

here they do treat people with a Disease-modifying antirheumatic drug (DMARDs)hydroxychloroquine (anti-malarial) , they found it helps with Lupus & using it to treat coronavirus patience

thinking of you & your Mother & everyone else at the home , ask them could she be treated with the drug

We are still not fully recovered but so much better , my lad got more antibiotics & not sure if I need them , will wait until after the weekend
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Date: 08.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

I was thinking about what you said & your mother not showing signs of the virus , after six weeks somehow my boss remains totaly clear & thinking some do have the virus but never show symtoms , best wishes to you all xxx
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Date: 08.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, I hope you Mum is ok. It may be possible some people could have it and have it so mild that they don't know. I hope that is the case with your Mum. It is so hard when we can't see them. It just seems to be going on so long. My nephew's daughter was in hospital with it but she seems to be fine now, she is taking part in some trial, she has to go back in a month, something to do with donating plasma or something.

Good to hear that you are recovering Colin, just take it easy.

Take care xx
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Date: 09.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy Colin,
Hardly slept. Colin they are treating Mum with antibiotics.
This not showing signs is weird your Wife (boss) not showing signs. When my son's girlfriend had it and she isn't fully herself yet there was 4 other people in the house that showed no signs.
It is beyond me how it works.
Lucy I was reading about the plasma they are going to give it to people with the virus and see if helps. I am little more myself today.
I had to call my brothers and let them know. My younger brother was finding it hard I could here his voice breaking he is 9 years younger than me. My older brother was quiet and it felt like I had thrown a bomb at them both.
I hate this part of breaking bad news.

Colin so pleased you and your Son seem to be well on the mend. Take it slowly both of you.

Lucy take care x
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Date: 09.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lois , I dont really know , I am pleased they are giving her antibiotics , they do suppress the immune system a bit , the drug sulphsalizine is part antibiotic & one of the four DMARd's along with MTX & the malaria drug that are non biologic , alot depends on her health & how her body can fight this virus

how some people dont show symptoms is strange , I hope she stays the same , do feel sorry for you are your brothers , like nothing you can do apart from give her support

btw my son not great again , still trying to go down on his lungs , I got something similar but gonna take my drugs to stop it , or hope & maybe more antibiotics , take care xx
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Date: 09.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Colin, sorry about your Son being unwell again. Bless him. You also take care and take it easy. It must be tough on the Boss.

I didn't sleep at all last night. I dropped off about four then at half four the bloody pheasants started calling. That was the end of my sleep.
I am going to call tomorrow to see if anything has changed. They said they will call me. I am not waiting.

Take care x
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Date: 10.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Called Mums care home today. She still has no symptoms. She is isolated to her room and is not happy. She obviously doesn't understand. Ignorance is sometimes bliss as they say.
I am still not counting my chickens just yet.
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Date: 10.05.2020
From: Colin.W

Subject: Re: Hi Lucy and Colin,

Do you know when they done the test , normally it's five days or so afterwards to develop the virus , but some don't , some blood groups seems to be better
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Date: 10.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Colin they did the test on the 4th and told me on the 8th it was positive.
I called them today and they said she is still not showing any signs.
It is so stressful not knowing.

Colin I wish you and your son well. All my best wishes to the Boss

X
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Date: 10.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, You know what they say, no news is good news, so let's hope it stays that way and your Mum continues to show no symptoms. Try not to worry too much, I know it is easier said than done, at least they will be keeping a good eye on your Mum, it is such a difficult time.

I hope your son gets better soon Colin. Never known a time like this. Look after yourselves too xx
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Date: 10.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, it is difficult and as you say no news is good news.
I have been chatting to all three of my kids on WhatsApp tonight. I haven't laughed so much in ages. Although we aren't together its nice we can all chat and be a bit silly and all laugh for a change. We chatted for over an hour. Took my mind off everything and I actually feel a bit better.

Times will be good again I am sure of that but it will be a while yet.

Stay safe and look after yourselves. xx
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Date: 11.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Kois , would expect for your Mum to be showing signsnow like fever & high temperture , the results are not 100% accurate

think it about 5 to 11 days before symptoms comes out but after that you can sleep better ,

I myself & doing well , not totaly gone , want my lad to take a few tablets because his immune system is overloaded , not sure he will , may need more antibiotics
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Date: 11.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Nothing yet phoning again tomorrow. I am keeping my fingers crossed.

So glad you are on the mend. Lets hope your Son will be on the mend soon.

So worrying sending all the people out.
I think it is far to soon.
Lets hope the virus doesnt peak again.
Stressful times. Take care. X
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Date: 12.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

H Lois & Colin,

I hope you are both ok. I hope your son improves soon Colin and glad to hear that you are feeling better.

Any more word on your Mum Lois? It is so hard. I managed to see my brother on skype tonight, he looked well cared for in the sense that his clothes and hair were tidy but I'm not sure if he was aware what was going on as he kept getting off the chair and walking away. I worry that he thinks I have abandoned him, it seems so cruel not being allowed to visit.

I see some of the restrictions down south have been eased. There has been a terrible amount of deaths in the UK, I too think it is a bit premature and just hope there isn't another peak.

Take care and stay safe xx
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Date: 12.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, carry on skpe with your brother. The first time with Mum I could see her frowning a lot. Try again maybe he might be better. Lucy I feel for you this is hard to deal with. Lucy dont stress too much we can't change a thing.
My mum still has no symptoms i spoke to them today. The carer I spoke to said my mum wanted to come out of her room. She said I have plenty of nice clothes to wear my daughter buys them for me. The carer was upset that my mum thought that was the reason and tried to explain again. It must be tough for the carers as well.

I do think relaxing things is early but I can see why the Goverment need to do this. The country will be on its knees if things carry on like this for months.
What is the answer? It is scary times.
I hope if numbers go up we will go into lockdown again.
My daughter has worked all through this. I worry about her constantly.

Well I better go its getting late.

Colin I hope you are still getting there and that your son is ok.
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Date: 13.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lois ,I would wait for another 4-5 days & ask them to retest your mother , the resust are not accurate & she could be one of those that shows no symptoms

the incupation period would be over & reason to retest & just hope she stays clear & everyone else at the home , best wishes & thinking of you

as for us , I am doing pretty good but not 100% but son is still strugling & want him to try my drug , this virus is no fun
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Date: 13.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Thanks Colin, i am phoning there tomorrow as she should be out of isolation. I will ask them about retesting.
Glad you are on the mend. Your son is having a tough struggle. Bless him.
Lets hope he turns the corner soon.

Take care xx
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Date: 14.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Well i spoke to mum on the phone. She was very emotional and asked me to go and see her. I explained the best I could. It was awful hearing Mum cry and knowing she doesn't really understand. She had stopped crying and said what do you think is the best for me to stay here. I said definately. She said the staff are looking after her well.
They are not sure if anyone is going to be retested.
Testing times literally.

I have broken a tooth touch wood not hurting. My dentist not working yet.

Take care all xx
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Date: 14.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lois , really hope your Mum remains clear , is anyone else tested positive at the home , I dont understand it , we tried to get a test kit ourselfs but its a bit late , & hope to get all us here tested with a antibody test sometime

hope your tooth ok , I need several out but they can wait a few more years , Son finished his antibiolics & trying to get him to take a tablets to get him better , not sure he will take it & know its wrong but desperate times
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Date: 15.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Colin, Mum is out of her room complying with the distancing well.
They are not retesting as far as the care home know.
There are some redidents showing signs how bad who knows.
I am not sure the test on Mum was correct.
I would think they would have tested you and your son. I don't understand how it works. Nothing seems to fit right.
We have had it hard in the South but our population is so much more dense. I live in Hertfordshire commuter heaven. The denser parts have had it tough but we are really rural so we are so far good.
I am shopping on line I managed to get a reoccuring weekly slot with Asda for the vunerable. I usually shop at Tesco for convenience. But hey ho!as long as long as i get food I'm ok.

We have been told to stay home until the end of June. Good job we get on. Haha.
Take care best wishes to your family x
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Date: 15.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, That is a good sign if your Mum is still symptom free. They had tested my brother almost 2 weeks ago and he was clear but I got a call from the care home today saying that he has been losing more weight so they are doing blood tests on him. I wonder at times if the care home are panicking, they sent him to hospital almost 2 weeks ago thinking that he maybe had the virus as his oxygen levels were low and yet the hospital said they were fine when he arrived, but he had to isolate for 14 days because he was in hospital (or meant to). They have said it is hard to keep him in his bedroom.

Today I went to Tesco (I am not supposed to) but we had ran out of everything, I did wear a mask but now I am worried as it was busier than I would have liked and had to queue to get in. It just seems to be going on so long.

Hope you are doing alright Colin.

Have as good a weekend as possible. xx
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Date: 16.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, the care homes are having a tough time if it. I think they still are being left to get on with it. My Mum isn't going to be retested doesn't make sense. They were told isolation for one week
They do seem over cautious at your brothers place but in some ways is good.
Your brothers weight loss is one of the things that comes along with dementia/alzheimers. If you remember they monitored Mums intake of food for the same reasons. She had blood tests also nothing showed.
Hopefully your brother will be the same. Bless him.
Lucy can I ask how old is your brother.
I miss seeing my Mum she will be my first visit when I am allowed.
Life is tough and very different. I am missing my kids and grandchildren so much.
Keeping busy is the best thing.
Lucy I am Sure you feel exactly the same.
Sending big hugs. XXX
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Date: 16.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, Yes, it is difficult for the care homes too. I'm sure the staff are doing a great job, just a shame so many of the residents have been affected with this virus. I'm sure they took blood from him for this before and I agree with you that this is probably part of his condition. He is 76, he will be 77 in December. He never married and has always been very independent and would spend a month in the Algarve every year, this dementia is horrible as he was fit every other way. Getting older isn't nice.

I heard we have to get it really warm during next week so I'm hoping it will be and can sit outside under my parasol as I burn in the sun, I think a lot of it is to do with the medication although I was never good with the sun, I have such a pale skin.

Hopefully you will see the family soon, Lois. It is hard on everyone, the nurse I spoke to at the care home said some of the residents are finding it hard as they were used to their relatives going in two and tree times a day, that must have been the ones that lived closed by or had a lot of family.

Hope you are well Colin and of course your son.

Take care and hugs to you both xx
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Date: 18.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, we have had two days of beautiful weather. Been in the garden all day both days.
My back and right leg have been so painful it is really getting to me and making me a bit miserable. My other half said im not but I always hide it well. I am laying on the sofa and I really could scream.

Your brother is in the best place like my Mum but it is from our side awful to watch. The hard part is them not understanding. I hope his bloods are ok.
Lucy make the most of the weather and just relax.

Take care xx
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Date: 20.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, It has been lovely here today, we had a bbq in the garden, it was nice to get a bit of sunshine. I hope your Mum is doing alright. I called the care home yesterday, they said they are keeping most of the residents in their bedroom but it's hard keeping my brother in as he likes to walk around, I really feel for them all and think it is cruel keeping them isolated. My daughter has been saying for a long time about taking vitamin D, now they are saying it could help with the virus, I think they should be giving it to all the people in care homes too, I am going to ask about that tomorrow when I call them again.

I hope your back is a bit better, perhaps the warmer weather will help. I hate when my back plays up.

Take care and stay safe xxx
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Date: 20.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, the weather is just what we all need. I just sat in the garden today. My back is always trouble now but the last few days have been really bad.
I am sure it will settle again.
It is nice to have bbq. My son was doing the same today the kids love it.
My Mum played up terrible they shut her door. She is claustrophobic so they just had to deal with it. Yes it is cruel especially when they dont know what is going on.she told them to take her dinner away they tried to make her eat it and she threw it at them plate cutlery the lot. I laughed because my Mum is tiny and very lady like they were shocked. I wasn't she has a temper always has. The care staff are certainly working hard right now.

Well heres to more sunshine and taking in the fresh air.
My daughtr is coming over for a chat through the window in thd next couple of dsys so that will be nice.

Takd care xx
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Date: 21.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys , sorry been so long , my son not well , dont really know why , he had this virus alot worse than myself apart from my asthma & low blood oxegen levels , normaly around 90 & need breathing exersizes to keep it up & lowest of 71 oops ,

but he has problems , seemed like he had a stroke si they took him down to hospital & found nothing which was good , but with this virus you can get post viral fatique (like ME) and chest pains which is pretty normal & I still get them

we think some could be coming from his neck & trapped nerve , the GP's here are crap , & think its all anxietie , then they are moaning he was not tested for the virus but they never offered either of us a test & only now this week can someone with the virus get tested , there is about 3 million in the UK not tested who had/got the virus , stupid idiots running this

hope you are both good , rant over almost , we trying to get some antibody test , gotta blame the boss if she comes back positive , but hope she does & dont have to go throught it , as for the vaccine , looks like it will be live & not sure us on biologic drugs can have the vaccine

stay safe & take care
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Date: 21.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Colin, Oh that's a shame that your son isn't well, i hope he feels better soon and gets some answers. This is a crazy time.

I got a call from the care home during the night to say that they had to call the doctor out to my brother again and he thought he maybe had a chest infection AGAIN so he is back in hospital, I don't know what's going on, he will be traumatised with all this and so difficult when he is unable to communicate.

I have an infusion due in a couple of weeks and a bit apprehensive now but they said they are still doing them. The GP's here are the same Colin, I called today to ask if they could send a nurse out to check my blood so think they are but I have to call again tomorrow.

Hope your Mum is alright Lois, at least she has life in her when she can throw plates at them lol.

Take care and hope the weather isn't too bad where you are tomorrow, wind and rain forecast here
xx
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Date: 22.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy Colin.
Well I dont understand what is going on at all. Your Son Colin is suffering for so long. I would have thought you all should have been tested. I hope your son gets better soon such a worry for you and the boss.

Lucy so sorry your Brother is unwell bless him. Lucy from what I saw when Mum was in hospital they are pretty good with putting dementia patients at ease.
Lets hope he isnt there for too long.
It makes you feel useless not being able to be with them. Lucy i wish your brother well.

My mum is fine I skype her today and we had a clear conversation for 15mins then she just went full mode off on eligible chat. She did say when this is all over we should all go to hers and have coffee and cake. Love her.

Wish you both well xx
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Date: 23.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois & Colin,

I hope things are a bit better with you both, and hope your son is getting better Colin.

Glad to hear that your Mum is happy Lois, that is reassuring for you. My brother got out the hospital today and is now back in the care home, seemingly he has lost 11kg, almost 2 stone. I am finding it all so frustrating not being able to see him and wonder if i ever will, it's not a nice time.

Today has been more like an autumn day, we have had wind and rain so I don't miss going out on a day like this.

I've added a hair colour onto my Tesco order lol, goodness knows what it will be like at the end of this lol.

Take care and hope the sun shines where you are xx
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Date: 24.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, my hair needs a good cut and colour. First Treat when I get parole LOL

So pleased your brother is back and well. My Mum lost 4 stone in total. She is so tiny. She eats well. I was saying the same I am wondering if I will ever get to visit again.
Yesterday the weather was the same here didn't know what it wanted to do.
Just waiting on my food delivery order. Thats the most exciting thing thats going to happen today.

Colin I Hope all is well with you and your son.

Take care x
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Date: 25.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

I took ages to find the right post. Bumping up.
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Date: 25.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, Those people are so annoying. I hope your back is a bit easier today, wouldn't it be nice to have a day with no pain anywhere. My ankle has been very sore so I think when I get word to go I will be going to get it replaced. I will be very nervous getting it done but I don't feel confident walking anymore as I always feel unsteady. The care home called today to say that they had the doctor in checking on my brother today and he has said he has to come off the anti-psychotics, I told the care home on Saturday I wasn't happy with him getting them especially when he has had a few falls. The chap that called said they will only put him on them again if he becomes aggressive. i just feel they should be trying to find out why he would be upset at something before rushing to sedate him.

I took the scissors to my hair today as it was looking quite bushy at the sides, I thought to myself I can't make it any worse lol.

How are you and your son Colin? I hope you are both feeling better.

Take care xx
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Date: 26.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys ,
I am feeling alot better , not 100% but not far off , the lad is doing a bit better but still not right , dont know why he suffered more but must be something to do with the drugs , + the boss is still suffering with her cracked ribs , needs another three weeks

Lucy , your ankle can get alot worse , ask if they can make a boot which will brace it & give some support until having a opperation , the ankle can go over it self & not sure if they can repair it , would be careful

hope your families are ok & the care homes looking after your brother & lois Mum , & would ask about your mum being tested with the antibody test , the other one can give false results , take care & stay safe
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Date: 26.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy and Colin,
I haven't been great with my back. It is going on a longer time than normal.
Lucy as they say best foot forward. The operation will be worth it. You will be glad of the relief of pain and worrying about falling.
I am so glad for your brother love him. You are right they should be trying to find out what the trigger is. They should know how to deal with him.
I laughed when you said about your hair i have done the same. My fringe was so long I couldnt see.
My mum is doing ok.

Colin so pleased you and your son are on the mend. It has been so long for you.
I feel so sorry for the boss she must be in agony. I cant even imagine. Years ago I popped a muscle in my ribs. Every breath was agony for five days. Cracked ribs ouch.

Take care xx
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Date: 26.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Colin, I am pleased to hear that both you and your son are getting better, just look after yourselves. They did offer me a boot when I went to see the consultant with the stress fracture on my shin but it was feeling a lot better when I went so I said I would manage without it, at times I wonder if I was too quick in saying that. I do have something that I wrap around my ankle and it helps a bit.

Lois, I'm sorry to hear that your back hasn't eased off. Poor you, perhaps a nice massage would help if hubby could do it for you.

I called the care home today to see if I could see my brother on skype and they said he had been sleeping all day, I asked if he had been up for breakfast and lunch and she said no, I said about him losing almost 2 stone and how he can't afford to miss meals and she said oh he can get something when he wakens, I said perhaps he is wakening and when no one is there is he falling asleep again and she said the girls went in and changed him as he had wet himself and he wanted to go back to sleep again, I was quite upset to hear that so I got my husband to call tonight and seemingly he was still asleep, she told him she is going to call the doctor in tomorrow to see him. I don't know what to think, when I told her he should be getting wakened she said well he does have an infection, so god knows. I just can't bear to think of him lying there in his urine, he would be horrified if he knew that.

Take are both of you and hope the sunshine that is forecast will help your back Lois.

xx
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Date: 27.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, I couldn't believe what I was reading. Ok your brother is tired because he is unwell. Does this mean he hasnt had a fluid intake all day. It is so important for him to be taking fluid.
They should be trying to get your brother to eat even if it was just a sandwich.
I would definately write a complaint. This is verging on neglect.
I know how difficult they can be. My Mum is difficult at times but they manage to coaxed her round.

As for him lying in his own urine if your brother is not incontinent they should be reminding he needs to use the toilet

When my Mum came out of hospital she was so weak she couldn't walk and was incontinent. They had her walking and using the toilet again within a week.
That's how your brothers care home should be.
God love him and you Lucy I feel for you
Sending a big (((hug))) xx
Take care and get some rest. I hope tomorrow you get some better news
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Date: 27.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Bumping up
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Date: 27.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, I have a feeling they are getting annoyed at me asking so many question but it isn't nice not knowing what is going on. I called today and was told that he slept until 8pm last night but got up this morning for breakfast and lunch and has been walking up and down the corridor. Seemingly he couldn't swallow the antibiotics so they asked for it in liquid form and that was them just arriving today so obviously he hasn't been treated since he got out the hospital. I sent him a parcel last week with pyjamas, socks and chocolate and asked if he had received it but they couldn't tell me. They may be short staffed, I don't know, and if I could I would go and take him out the place but that's not possible. I just wish I could go and see him and find out what's going on.

Take care Lois and look after yourself xx
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Date: 28.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi lucy, i hope your brother starts toget well now he has his antibiotics
No wonder he slept all day bless him.

I dont do politics but the way care homes have been treated all over this country is a disgrace. Thats it dont get me started.

Take care Lucy phone to skype him again at least you can see if he looks ok. Thats part of the reason I do it.

X
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Date: 31.05.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Guys, Hope you are well and enjoying the beautiful sunshine. What a difference it makes to see a blue sky.

My brother is back in hospital, he has aspiration pneumonia and when I called last night they said there is sepsis showing up. I can't imagine how he must be feeling, poor soul. It is so hard not being allowed to see him and such a worry.

Take care xx
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Date: 31.05.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lucy , I do feel for you , having sepsis is not great & with pneumonia is not the best combination & hope he pulls through , he will not know much about it , with the drugs they will give him will make him hallucinate & he should improve soon

so sad you cant see him , know how bad sepsis is & think we had pneumonia with covid earlier this year ,

nice the sun is out but not been outside myself , aleast we seem to be over covid at last , we will try to get antibody test , stay safe & hope your brother pulls through xxx
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Date: 31.05.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, your brother is in the best place. He must of been feeling rough poor thing. Lucy i hope your brother improves quickly.
The weather is lovely helps with everthing.
Lucy take care and try not to worry. X
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Date: 03.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys , we have done a couple of antibody test , hope to know the results later this week , the nhs is trying to stop people getting these done until they check there own test , the Boss & my son have done it , if he comes back positive as expected , I will know I had the virus , as for the Boss , we need to know if she has some antibodies to Covid

Lucy , really hope your brother is improving , I improved after 48 hours but that was sepsis& kidney failure , pneumonia can take some time , its sad you cant see him & he id left alone in ICU , hope he pulls through quick , take care , thinking of you
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Date: 03.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Colin, glad you have at last got tested. It is something you need to know. Glad you and son are on the mend.


Lucy I hope you are ok and your brotheris improving xx
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Date: 03.06.2020
From: Lucy

Subject: Re: Hi Lucy and Colin,

That's good that you have had the test Colin, at least you will now know for sure whether you have had it or not. I hope you and your son continue to improve and your wife too of course with the broken ribs.

I'm ok Lois, thanks. My brother was sent back to the care home this afternoon for pallitive care. The consultant at the hospital has sent a care plan and he won't be admitted to the hospital again. That is three hospital stays in a month and each time he comes back worse than he went in. The care home wanted further tests on him before he went back because of the weight loss but the hospital said he would have to be sedated to do tests and no point and I agreed with them, they said it would be cruel to put him through tests and if they found anything they wouldn't do anything anyway as his condition is so poor. I have made my feelings clear to both the care home and the social work dept as to his care. I am very disappointed, in fact angry is more how I feel.

The weather here has turned so much cooler today, but at least it's more comfortable, i found it too warm trying to sleep.

I am meant to have my infusion next Tuesday, I think it is going ahead.

Take care and keep well xx
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Date: 03.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Lucy, I am sorry to hear about your brother. I am with you putting him through lots of tests and the hospital wont do anything what is the point. Bless him.
I understand your anger. I hope they listen to what you want put in place. It is so hard when we cant even visit our family.
Lucy I can't say I know how you feel because I dont. I can imagine. Take care and look after yourself. I hope your infusion goes ahead.
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Date: 04.06.2020
From: Colin.W

Subject: Re: Hi Lucy and Colin,

Hi Lucy , I am so sorry about your brother , I know what we went through in the last few weeks with my Mother in Law , the word pallitive care is something I hate, I hope they treat him better than she did , for his family its very had , she was sent to a care home with no views and a small box room which was not fit , atleast they could visit and try to see him ,

Thinking of you, take care ,hope the infusion helps xx
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Date: 05.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Lucy I hope everything is ok with you.
xxx
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Date: 06.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

I'm ok Lois thanks. I hope you are well. I feel very tired and not 100% but then I never do lol. I should have had my B12 injection a few months ago and the doctor said they are not doing them at the moment and I was wanting my thyroid checked as I have put some weight on again. Perhaps the infusion will help.

Hope you and your family are fully recovered now Colin. The one thing that I can say about my brother's care home is that his room is big and bright and the home itself is nice enough (no urine smell at all) and a lovely entrance. I called this afternoon and was told he was fine and that he had a long lie this morning (that will mean he missed breakfast) they said he had a big lunch, so who knows. I got an email from the HC1 group to say that from mid June they may be allowing some visitors in but it will be outside but they will inform us again next week, that may just apply to England, that I don't know. I have asked to see him on skype tomorrow at 3pm.

I was so cold in bed last night, had to put a blanket on top of the duvet as I was shivering.

Take care and look after yourselves xx
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Date: 07.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, the weather has certainly changed. It is cold wet and blowy.

It will be good to see your brother again.
Skype is useful to see how he looks.
Its good to know the care home is bright and his room is big. I know what you mean about urine no smell in Mums carehome either.
.
I cant wait to see my mum. I will be first there. LOL.

Unfortunately my back pain is never ending. I think something has changed with one of the 5 discs that are slipped. I slept for 6 hours last night good for me. I could barely get out of bed.
Well thats life I now know how my Dad must of felt. Never really appreciated his pain and how bad it was.

Colin hope all is good for you and you are all on the mend including the Boss.

Take care. X
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Date: 08.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, Sorry to hear that your back has been so sore, I know it's difficult but you should try and get it seen to when you can. When I sit I stiffen up so I guess it's the same with your back. I hope it eases a bit.

I saw my brother on skype yesterday but he didn't look good at all and now they are saying people that are shielding have to continue with it now until the end of July, that would be almost 5 months since I would see him and that's not good for him. I am meant to be too but I have the infusion tomorrow and it's going ahead. I didn't mention it to them but they know what i'm going in for so they must know, as the rituximab must be the reason I got the letter.

My eye is all inflamed and even my cheek, it is so nippy and gritty too, I wakened up with it like that this morning, you would think I had been punched in the eye.

Hope all is well with you Colin. xx
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Date: 09.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

this needs a little bump

Lucy hope your infusion goes well , I am pleased they are doing them , heard of alot of biologic transfering over to injrctions/tablets because of covid & they not getting on with them so much ,

I hope your brother improves & get a chance to catch up , as for your eyes you may need someone who knows & eye trained to look at them , I was took several things before seen a eye consultant , the normal GP dont know that much

we are all doing good apart from the boss , & she still suffering with her ribs , I think I am almost fully recovered , just takes time ,

Lois , sorry about your back , ask for physio buttnot sure they would do it at the moment

take care & stay safe
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Date: 10.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Thanks Colin, I got the infusion yesterday and then when I got home I got a call from the consultant at the hospital to say my white cells count is very low so I've to go back in tomorrow to see them. I can see me not getting the next one in 2 weeks time. Hope your wife ribs heal soon, it takes at least six weeks for the pain to ease. xx
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Date: 11.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy and Colin,
Pleased to hear your infusion was done. I hope you get your second one done. I hope its something that wont interfere with your treatment.

I got a text to say my Mums cardiology appointment has been cancelled. I hope they realise she only has 6 months left on her pacemaker. She was supposed to be checked then an appointment made for the replacement. I will phone them if it gets a bit close.
What a bloody mess we are all in.
I had a call from my rhumy consultant after 18months to see how I am getting on. Bit late to be concerned. There you go and she might wonder why I have stopped all RA meds.
The weather suits my mood miserable.

Hi Colin good to hear you are doing well. Ribs take so long to heal hope the Boss feels better soon.
Take care both x
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Date: 11.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

HI Lois, Just as well your Mum has you to look out for her, it is a worry when things get cancelled, they couldn't allow her to go beyond her time to have it fitted surely.

I had to go back today for more blood tests and I was hardly home when they called again to say they are still low so they have called my doctor to arrange for a nurse to come in twice a week from Monday to check my blood and the next infusion has been cancelled and I've been told to stay off all my meds. Ah well, I suppose it had to be expected sometime, I have been quite lucky with the blood tests up until now.

The weather has been disappointing especially after the beautiful weather we had in May.

Take care xx
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Date: 11.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Lucy, sorry to hear your next infusion has been cancelled. Will you be able to go back on your meds?
I hope you get sorted quick. So much rubbish going on.
I dont know what to think about Mum. I have put a reminder on my calender to call them in a few weeks.
The NHS are so streched now.
It is good to know they are taking good care of you. Take it easy.
xx
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Date: 12.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys

I am at last feel better after my bug/virus that thought was covid-19 , anyway sent of for two antibody test , one for my son & second for the boss , we needto know if she has had it , but both test comeback negitive ,

we are stunned as how our son did not have it , and can only think the test is wrong & will have to get the NHS test at some point

Lucy hopr youe white cell count sorts its self out , & hope your brother picks up a bit . & same for you Lois , that your back is better
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Date: 13.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Thanks guys. At least you have had the test Colin and hopefully it is reassuring. Just continue to be careful as I am sure you will.

I saw my brother on skype tonight, he seemed to smile when I spoke but again he got up and started walking along the corridor, i think it is a phone they are using otherwise I wouldn't have seen him walking so far. He was nice and clean but he didn't have his glasses on so I wasn't happy. I got cut off after a couple of minutes so I called them and they said they had a bad connection, I told them about how important it is that he has his glasses on at all times, he seemed to be rolling his eyes about a lot, whatever is causing that I don't know. I really feel for him.

I got a letter in yesterday to say that I have to shield until end of July. This is becoming very hard.

Take care and stay well xxx
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Date: 13.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, it still is unsafe out there.
We have decided we are going to wait anyway.
At least with the skype you can see if your brother looks well and is dressed properly.
I am glad he at least smiled it says a lot.
It seems so long that i haven't visited Mum. I really miss her.

Colin I am shocked your son come back negative. If the test is right what did you both have?

Take care. Xx
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Date: 15.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Bumping up. Hope you guys are ok.
reply | back to forum

Date: 15.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

hi guys , we are getting over our antibody test , dont understand it but know they are not 100% ,

my bloody car playing up , something to do with the electrics and wont start , sort of tempted not to have one , but anyway we are doing ok

hope everything is ok-ish with you guys
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Date: 15.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Colin,
Glad to hear you are doing ok.
Cars and the electrics are a nightmare. My OH has a mecedes sports car he has the same issue. Just sitting on the drive OH is getting rid. He said he isnt spending any money on it.
Well Colin once again so pleased you are feeling better.
Take care.
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Date: 16.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

lol needs another bump , the cars immubilizing system is faults , so another bill on its way
reply | back to forum

Date: 16.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Oh dear hope its not too expensive for you.
reply | back to forum

Date: 17.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Bumping up
reply | back to forum

Date: 17.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Bumping up again. Theses posters are a real pain.
reply | back to forum

Date: 17.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

And again.
reply | back to forum

Date: 19.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Bumping up.
reply | back to forum

Date: 19.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Well the ads are all gone.
I hope Lucy and Colin you are both well.
reply | back to forum

Date: 20.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

lois thank you & the admin for helping delete all those stupid adds ,

hope you are good , we got a little water leak in our kitchen , only to find out it comes from our fridge , so think it needs replacing
reply | back to forum

Date: 20.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Oh dear Colin that happened to our last fridge.
I had to ask them to delete the ads they were getting a real pain.
Well my back is still being a real problem. I have just taken some co dydramol it is easier now. The only problem is they make me sleepy. They cause brain fog as well. Apparently it happens when you take gabapentin as well.
Apart from that I am good.
I was thinking about Lucy earlier I hope she is ok. Especially as they stopped all her meds.
Colin take care I hope you and your son are over covid. As for the boss I hope her ribs are mending well.
reply | back to forum

Date: 20.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

I'm ok thanks Lois, The nurse has been coming in to take my blood, on Tuesday the hospital called to say that my white cells have got a bit better but they didn't call yesterday so I will call on Monday, I'm not sure if they will allow the infusion to go ahead on Tuesday or not seen they have went up a bit.

It's been quite stressful with my brother, he had a fall yesterday and injured his eye and his arm. The unit manager called the other day saying they were trying to encourage him to stay in his bed as he is so frail, I wasn't happy to hear that but he was then off for a few days and when I called the two nurses that I spoke to said he is walking fine and the reason for the fall was that he tripped, yet the unit manager said he needs assistance to walk, the nurses didn't know why he said that, i saw him on skype last night and he got up and wandered off again and was walking better than me so I really don't know what to think now.

I hope your back eases Lois, just take it easy.

I had to get a new fridge a few months ago Colin, I preferred my old one, it's a fridge freezer and this one hasn't the same room in the freezer as my old one, I wanted a self defrosting one to save a wee bit work.

Take care and look after yourselves xx
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Date: 21.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, just ignore the manager doesn't have as much to do with your brother. The nurses will tell you exactly what happened. The Managers spend most of the day in the office.
The carers are the ones I always speak to about Mum. My Mum has fallen over three or four times they have never suggested she stays in bed. Just ridiculous thing to say.
Ive upped my pain meds so feeling a bit better today. My back is always going to be an issue now. Just have to learn to cope.

I am pleased you blood cells are looking better. Hopefully they will go ahead on Tuesday.
Take care and try not to worry about your brother too much.
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Date: 21.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Thanks Lois, Well today the unit manager called to tell me that my brother had a bad night and they called the doctor out again as he was screaming in pain. I was upset to hear that, especially when I thought he seemed not too bad on friday night on skype. They are now giving him morphine injections and something to sedate him, I asked if it was possible frustration was making him scream and how where

they so sure he was in pain and he said when he gets up off a chair he is in pain, I said well on Friday he had no bother getting up, he said I don't think you realise how ill your brother is. I then asked to be allowed a visit but that was denied. It is such a horrible time not being allowed in to see what is going on with him.

Glad to hear that your back is a bit better, take it easy.

It is 10.40pm and still light outside, I think today is the longest day.

Night night and sleep well xx
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Date: 21.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Oh Lucy, it is awful not being able to see your brother. Bless him. Maybe he hurt his self more than they even realise. Did he go to A&E. Maybe he needs some x rays.

I am just laying on the bed its quarter past eleven. I just had a shower i let the hot water run on my back for ages.

I guess I should say nite nite as well.
Take care xx
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Date: 22.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

It just seems anytime the unit manager is on when I call I get told how much pain he is in and he is encouraged to stay in bed and given sedatives. He has had pneumonia and I think being in bed so much is bad for his chest. I have the feeling he is nearing his end, well according to him he is. I could tell he was getting annoyed with me on the phone saying I don't think you understand how ill your brother is and what can I say to make you understand. When it's one of the nurses or carers they tell me he is doing ok and walking around. I think this lockdown for people like by brother is cruel and they are not going to allow me to even see him outside, they said when the time comes it will be in his room with all the protective gear on and not to sit close to him. I am not happy with that at all. I had hoped by now they would have had some plan in place for visitors, even if it was by appointment but they couldn't give me any indication as to when that might be.

Sorry, that is my rant over.

I will need to call the hospital now and see whether the infusion is going ahead or not tomorrow.

Take care xx
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Date: 22.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Lucy tell him i am being given mixed information. The nurses say he is doing ok and you say he is so ill. It is such a pain not being able to see our relatives. The care home will be taking advice from the goverments.
When I see care homes setting up special areas for visiting. I just think how good is that. Then I start thinking how my Mums care home could do that.
There is no sign of it happening soon.
I feel for you. Take care hope that infusion goes ahead.x
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Date: 22.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, I had a call just after my last post to you to say that I could go and see him as his end of life is near so I went this afternoon. It was horrible seeing him the way he is. When I got to reception they took my temperature and put the gloves and apron on me, I had my own mask on, then they sent a carer down to take me up to his room. When I went in he was trying to get out of his bed, he looked so frail and couldn't speak at all. I am sure he knew I was there as I said to him that if he went out the room they would send me away so he went into bed and they left me alone with him for a while, I just spoke to him and he fell asleep. I asked when I was leaving about fluid etc as they had said he can't swallow, I asked why he wasn't on a drip and they said they don't have them in the care home, I found that upsetting as it means his pain relief is my injection. They expect death with the next day or two and when I was leaving they even asked about undertakers. I shook my head as I hadn't even thought of that.

My infusion is going ahead tomorrow but couldn't be at a worse time.

Sorry for the depressing post. Hope you are ok xx
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Date: 22.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, thank goodness they let you see your brother. I am sure by what you say he knew you were there.
Get your infusion done tomorrow as you need to take care of yourself.
The rest you can sort out when you Need to.
I will be thinking of you.
Lucy my heart goes out to you. XXXX


By the way don't worry about any posts I am here for you. I know we can only chat on here. I class you as a friend I just have not met xxxxx.
reply | back to forum

Date: 22.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

I appreciate that so much lois xx
reply | back to forum

Date: 22.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lucy I am so sorry for you , he would be out of his suffering but just seeing him after four months is so cruel on you , thinking about my mother-in-law , they phomes 5.30 in the morning telling us she had died & wanting to know the name of the undertakers ,
my thoughts are with you and you family , hope the infusion goes well , take care
reply | back to forum

Date: 23.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Thank you Colin xx
reply | back to forum

Date: 23.06.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois & Colin, Just to let you know that my brother passed away this morning. x
reply | back to forum

Date: 23.06.2020
From: Colin W

Subject: Re: Hi Lucy and Colin,

Lucy , I am so sorry , its never easy losing those very close but remember them all the time , feel for you and your family at this time , take care xx
reply | back to forum

Date: 24.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, so sorry. It's hard but remember your brother is at peace. Remember the good times.
Sending you all my love and will be thinking of you and your family.
Take care.xx
reply | back to forum

Date: 25.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Just bumping up.
reply | back to forum

Date: 26.06.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Bumping up
reply | back to forum

Date: 02.07.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy no need to answer. Just to let you know I am thinking of you. X
reply | back to forum

Date: 02.07.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Thank you Lois, I just went on the message you and saw your lovely post. My brother's funeral was yesterday and what a day it was, the rain was so heavy during the burial. I had a piper playing but we only were allowed fifteen people at the graveside.

I hope you are keeping well (you too Colin) I've been ok, I think being kept busy arranging things helped. The hard part will be clearing the house out.

Take care xx
reply | back to forum

Date: 02.07.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Hi Lucy, how lovely a Piper. I am sure you did your brother proud under the circumstances.
Lucy I know that clearing your brothers house will be hard. Be sure you have someone helping you.


Make sure you take a break and rest up.
Lucy did you manage your 2nd infusion.

Speak soon xxxx
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Date: 03.07.2020
From: lucy

Subject: Re: Hi Lucy and Colin,

Hi Lois, Yes I got it on the 23rd, was in the shower getting ready to go for it when the care home called about my brother. It makes me wonder how the hospital can manage to do it safely when doctors won't see patients at all. When I asked the hospital before the first infusion a month ago she said oh we have things in place and would be more dangerous leaving patients without their treatment.

How is your Mum doing now Lois, are you allowed in yet?

Another wet miserable morning here. xx
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Date: 03.07.2020
From: Lois

Subject: Re: Hi Lucy and Colin,

Well at my Mums place they are doing the gsrden up. So I got a
Bird bath and some other bits on the list. I am still shielding but I just needed to go out so we dropped the stuff to Mums place. Where you go in they have a glass window. They brought Mum to the Window. So we had a chat. It was good to see her again. They are still in firm lockdown.

So glad you got your infusion. I hope it is helping you. Lucy take careof your self.
Lets hope we get back to what ever
Normal is soon.


Colin I hope you are still doing ok.
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