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Date: 17.06.2009
From: Della

Subject: hospital again i think

hi there me again well ive given in today after being woke up the last two mornings with my hand and i rang the hospital waiting for a reply as think im gonna have to go in for another infusion.My middle finger is the worse cant even move it now.Was wondering also what happens if the infusions dont work again i know they said i can have 3 but just wondered what they would do if it didn't work again do they try different meds?. Also what is the normal nuber that your esr and crp should be as mine seems to just keep going up all the time. Also i would just like to say a big thankyou to everyone because before i found this site and all you lovely ppl i really felt alone and miserable and now i feel like i have made some good friends and the support that u all show is great so A BIG THANKYOU FROM ME TO YOU XXX
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Date: 17.06.2009
From: Del

Subject: Re: hospital again i think

oh! i'm in so much pain with it tonight feel like i want to chop it off :(
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Date: 18.06.2009
From: Della

Subject: Re: hospital again i think

well its 3.20 am haven't been to sleep yet in so much pain wish i had someone to talk to help the night away :(
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Date: 18.06.2009
From: val h

Subject: Re: hospital again i think

hi hope u got some sleep. it is horrible when u r in pain the middle of the night makes it all seem even worse. hope something works 4 u soon take care let us know how u get on. big hug sent to u incase u need it :-)
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Date: 18.06.2009
From: Jill

Subject: Re: hospital again i think

Hi dellla....awwwwww sorry i couldnt reply sooooner, normal ESR is below 8 i think... if your esr keeps going up, u need to go back to rhummy, gett another diagnosis....then mb they might put u on the anti TNF meds, which wld help damage to your joints, and help with your pain...ask the rhummy about them Del

fingers crossed and hope u feel better today sweetie

Love jill and thankyou for saying a BIG Thankyou to all of us on here, so kind of u to say, but remember u also give support too, so thank you to U 2 LOl xxxxx
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Date: 18.06.2009
From: Jill

Subject: Re: hospital again i think

Hi dellla....awwwwww sorry i couldnt reply sooooner, normal ESR is below 8 i think... if your esr keeps going up, u need to go back to rhummy, gett another diagnosis....then mb they might put u on the anti TNF meds, which wld help damage to your joints, and help with your pain...ask the rhummy about them Del

fingers crossed and hope u feel better today sweetie

Love jill and thankyou for saying a BIG Thankyou to all of us on here, so kind of u to say, but remember u also give support too, so thank you to U 2 LOl xxxxx
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Date: 18.06.2009
From: Della

Subject: Re: hospital again i think

Hi Val and jill thankyou for your replys felt rotten all day with the pain but the hospitals been really good heard from the nurse and then the Rhummy rang me tonight at 7pm and said to give it another week just incase the steroids do work although i don't think they will and he is gonna ring me next week and if no better have to go in for another infusion or steroid tablets but quite a strong dose. He said that if nothing has improved after 3 months there is other things they can try so just have to get through this best i can at the moment he said hopefully the sulf will start to kick in only been on them 3 weeks.been a bit down in the dumps today bit tearful but think its the pain and tiredness an't believe its been 7 weeks now of continuous pain has anyone eles had a flare up last that long? anyway hopefully soon i shall come on and be a bit happier i'm such a happy go lucky bubbly person normally not always like this honest lol xx
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Date: 19.06.2009
From: amelia

Subject: Re: hospital again i think

Sorry to hear that you are feeling crappy Della hugs to you.
i found out i had RA when i was 21 but it took me months to go to my gp and say something i think i was nervous that he would say i was imagining it or i was too young to have it !! Anyway babbling on lol i had a steriod injec last year and it was my 2nd one it didn't touch me i was still in agony with my feet i left it a couple of weeks to give it chance but still no change and was told to wait to see the consultant but my appt was not for another 6 weeks so put up with it for 8 or 9 weeks i felt soooo depressed.
When i eventually saw the consultant i was given more steriods but this time rather than having it in usual place (me bum lol) i had it injected inbetween the joints and i must say it worked wonders.
I have a tendacey to waffle on sorry, hope you feel better real soon

amelia xx
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Date: 19.06.2009
From: Della

Subject: Re: hospital again i think

hi Amelia no u haven't waffled on at all i love hearing from everyone makes u realise u aren't alone.I'm so sorry u got this awful decease so yung bless u it must have been awful. its all new to me i'm 47 and its hit me like a ton of bricks i can't believe the pain it is giving me was up all night again last night, just hope i get some relief soon take care and thankyou for the hugs god i need it at the moment xxx
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Date: 19.06.2009
From: val h

Subject: Re: hospital again i think

hi more hugs as u r really going through it :-( hope u get some relief soon dont have it bad but when get flare up it disrupts your life totally so thoughts r with u :-)keep in touch
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Date: 19.06.2009
From: Jill

Subject: Re: hospital again i think

(((((DELLLAAAA))))) LOTS HUGS FROM mE x my flare ups use to last months b4 i started my methtrexate and Enbrel...Honest Del, its normal, but for u as time has passed, it does seem that u need extra help via meds from Rhummy....remeber this...thank god your not waiting years(like I did) b4 u get on the DMARDS that most of us r now on.... stay positvie ok...honest we do know what your going thru sweetie, I was wake last night with Hip pain... think i will be having my spine Op sooner than I thought... my back has started offf again...so when your not sleeping, remeber us lot in here, we r with u in spirit ok... wish I cld do more 4 U della, your such a sweet gal

Love jill xx
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Date: 19.06.2009
From: Della

Subject: Re: hospital again i think

oh! Jill bless you i do hope you aren't in too much pain u are so supportive of everyone it makes me feel better reading your replys take care of yourself
Della xxx
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Date: 20.06.2009
From: Jill

Subject: Re: hospital again i think

Im ok Della LOL... im just like u lot...in pain, tired etc....thanks tho Della, appreciate your support x
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Date: 20.06.2009
From: val h

Subject: Re: hospital again i think

hi jill and della hope u both having good day if not heres a couple of hugs 4 u both have good weekend thanks from me as well jill always helps to get replies gives a simle through the pain :-)
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Date: 21.06.2009
From: Jill

Subject: Re: hospital again i think

Fankkooo...I lufff my Hugs I do :) xx
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