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Date: 14.06.2019
From: lois

Subject: Hi Lucy Colin

I asked the moderator to remove all the dodgy ads as they had added loads more. They removed us as well I don't remember any of us saying anything Dodgy. LOL

Lucy sorry your visit wasn't very good. Have they discussed with you what may happen after the two weeks is up?
Lucy if I can help with any tips just ask. I am sure the North and South work pretty much the same. (pretty useless as one another)
Joking aside ty to have a good week-end. speak soon
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Date: 15.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

I lois , dont worry if they removed anything else , I am pretty dodgy , or so I am being told ,

I am having a good week , new (very old ) car , well bit newer than last one we had for 9 years but it works & I will be able to get in it + getting a new chair , one of those that lifts my old worn out joints

hope you are ok & getting on well
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Date: 15.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Not sure yet Lois, the social worker was meant to go and see him during last week and she hasn't so not sure what happens come Friday. I don't have much faith in her at all.

That's great, Colin, about getting a new car, well even if it isn't brand new, as long as you can get around in it that's all that matters and the chairs are good, I have one too and also a bed that lifts up too, oh and a higher toiler seat lol.

xx
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Date: 16.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin glad you are having a good week.anything that is going to help you get mobile and out and about is good.
The chairs are great my aunt has one she loves it. Good luck with it all.


Lucy you can ask for a new social worker.I changed Mums in March.
They seem to be leaving it a bit late if they intend giving your brother more care time. Maybe you might have to call and just ask what is happening.

Take care all speak soon.
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Date: 16.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Just thought I would shift our post to the top.
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Date: 16.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

They don't take the hint, Lois. Why on earth are they on an arthritis site? so annoying.

I will be calling the social worker during the week, so frustrating when people don't do what they should be doing.

I've been in most of the weekend as not feeling great, i think it's a mixture of the cold and a bit of a flare as feeling so sore.

Take care everyone xx
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Date: 18.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

I am off to the eye clinc today again , been like second home for me of late , had problems with scleritis when they changed over biologics & now have a ulcer on my eye so got 5 or 6 drops to put in my eyes

hope u guys are good , take care
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Date: 18.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

That's not so good, Colin. I hope you get it cleared up soon and keep using the eye drops.

I'm not feeling good at all today, I'm thinking I may call and ask for a steroid injection. I've had a cold or virus but I think a lot of it is coming from the RA and my ankles are so painful, can barely stand on my feet and shoulders sore too, I honestly think stress triggers this.

How is the weather at your end, Colin, we have had an awfully lot of rain although it's dry at moment but i'm still using a hot water bottle at night and this is June too.

Take care xx
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Date: 19.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, just been to see my mum. My hubby is so quiet usually but to-day he lost it big time. My mum hasn't had a shower since she came home last Thursday. She is incontinent let's leave it there. I have never seen him so angry. I have been in touch with her social worker waiting for a call back. They have changed the care company and this one is clearly not working. The better staff have left and not replaced. So standards are dropping.
I am going to see if I can get her moved.

I am not surprised you feel unwell Lucy stress is a big factor for us. I am in trouble this week. This weather doesn't help either.
Take care

Colin your eye sounds really sore I hope they get it sorted for you. All these drugs take there toll on us but what can we do. Take care.

Off for my scan on Saturday. Hoping for good news but is doubtful
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Date: 19.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

That's the same reason that I lost it with the social worker, Lois, and I called today and of course she was out and hasn't bothered to call me back and I am going to see my brother on Friday and I know he will be expecting me to take him home but I have a feeling she will want him to stay there as it will make her job easier and without carers he can't go home. If I had power of attorney it would have made things so much easier.

Hope the scan goes well, what are you getting scanned? I went for one a few weeks ago for osteoporosis and surprisingly it was normal.

Take care and lets pray for some sunshine xx
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Date: 21.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, the safeguarding team have got involved because the Paramedics reported she had an untreated back ulcer. Their documentation is below average.
I am waiting for a meeting in the Hope's of her getting a move with more care facilities. I have no idea how long all this is going to take. Between the family we are visiting every other day so that will keep them on their toes.

I am having a spinal scan. I hurt myself trying to get mum out of the car. They suspect another prolapse disc. I am worried because I have had a disc removal before and surgery is the last thing I want.

On a brighter note we have blue skies and a strange yellow circle I think they call it the SUN. This keep care x
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Date: 21.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Lucy, social services are a nightmare for calling back ring again. I had to ring three days running before I got a call. They are really busy but for me I am only concerned for Mum and you for your Brother. This is exactly as it should be.
Just keep calling until you get your answers. They should have sorted all this by now.
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Date: 21.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois,

Sorry to hear that your Mum has a back ulcer, that sounds so sore, poor soul. A lot of the things that are happening are caused by neglect. It's not right that they get away with it.

Oh I hope the scan is normal, I wish I had a magic wand and could wave all the pain away from us all.


After two days of calls and emailing I got an email last night to say she would like him to stay until she has spoken to the mental health doctor as on his last report it was said that he had capacity and this is debatable. I am going to see him today so I hope he is agreeable to that as there is no care plan in place if he goes home. I have booked a hotel for tonight as it will save the drive home tonight and I can see him again tomorrow and hopefully take him out somewhere. The forecast tomorrow looks better.

Have a good weekend
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Date: 24.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi Lucy , the words capacity fills me with dread , the hospitals etc just seems to use it to how it suits them , we had problems with my late mother-in-law , they dont care about the carers

it comes down to can he look after himself , & be safe , most things can be set up in a home or flats where there are someone on call , we kept my Mother-in-Law at home to long , she needed 24 hour care & was awake most of the night & only the last three weeks of her life did she go into hospital & home , its very hard on the family looking after them
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Date: 24.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin. You are so right. At the moment I don't know what is going on. The social worker hasn't been in touch so he is still in the care home and to be honest I really can't see him getting home as he is quite confused. I am so disappointed in the care he received at home (I should say lack of care) if the proper care had been on place he may have managed at home but he wasn't being looked after at all. When he was at home he was going out and leaving his door unlocked and the same at bedtime. He wasn't even sure where his light switch was. It is such a worry though. The care home isn't perfect but at least he has people there that are hopefully keeping an eye on him. Hope you are doing ok, Colin x
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Date: 25.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi, well mum is back in hospital she had a fall and the staff left her on the floor 5 hours waiting for an ambulance. They are now wanting to talk with me because I have complained as well.
My mum had a blood transfusion because she was so aenimic. This is what was causing her falls. I saw her later that day and she looked so unwell.
She may be 93 but she deserves to be treated better.
Colin and Lucy it is so hard to be left to deal with the unknown this is the first time I have encountered Dementia and I hope it is the last time.
Lucy good luck with it all.
Just waiting on my ct scan results.

Take care both x
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Date: 26.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Sorry to hear about your Mum, Lois. That is a terrible time to wait for an ambulance, you would think at 93 she would have been a priority case. I hope she is getting good care at the hospital.

Hope you get good news with the scan.

I hear we have to get some really warm weather over the next few days. It will make a change and be nice to sit outside.

I had a call today from my brother's friend, he was up visiting him today when the social worker came in, she told him that he will get sent home once they get a new care plan in place for him, that is a worry as he really isn't fit to look after himself, will just have to wait and see what transpires.

Take care everyone and I hope your Mum improves soon, Lois. xx
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Date: 26.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

I know but I don't blame the NHS what can they do no money not enough hospitals.

I hope your brother gets the care plan he deserves. They should be involving you how can your brother answer the questions and know whatis best for him. I go mad at home about them questioning Mum. She has no idea what they are asking her
I am waiting for a call about what they are going to do about mums care.

Lucy I hope the sun comes out these grey skies are making me miserable SAD sufferer. I don't mind cold rain snow just grey skies.
Take care speak soon
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Date: 27.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Just bumping up
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Date: 27.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy & Lois I feel for you guys , my late father-in-law was not that bad & we could work around most of the problems he had but my mother-in-law was different & alot depends on the personality

twice we was forced by the hospitals to have her home , it is such a commitment to look after someone 24/7 , they did give us three days a week night sitting , but my wife would be up 5am & my son going bed after 3am

Lucy dont wait and see what transpires , you cant trust them , they respond to who shouts the loudest , the work capacity is change to how it suits them , dont offer to have him home , it seems cruel but you would never cope , got yourselfs to think of
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Date: 27.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, His friend called me today to say that he went to see him at the home today and he wouldn't speak to him, he is very angry that he is still in there and wants home. I called this afternoon and the nurse that I spoke to said he doesn't want to be there so it makes things very difficult now especially when they are saying he has capacity, so he could really leave if he wants to. The social worker seems to be ignoring me, It would be a lot easier for us if he did stay but if he hates it then it seems cruel to leave him there. she hasn't replied to my email and doesn't return calls. I was hoping he would have settled and if not then she would have had a care plan in place for him.

How are things with your Mum, Lois? Any word on your scan? It is a scorcher here today, really warm. I have just stayed between the house and the garden as too warm to do anything else.

Have a good weekend xx
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Date: 27.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin you are 100% right. I went to see my mum today. Her consultant was there I told him my concerns and I was waiting on Social worker. Guess what this afternoon I get a call to say they have found mum a three week stay in a care home no charge and she will be accessed there
AMAZING sometimes you just have to bite the bullet and go to the top.
Not saying all will be straight forward
Lucy you can speak for your brother believe me they will leave you with it. You need to know for his sake what care plan they intend doing. Ring and ask who you can make a complaint to. It is so hard when you love someone to be hard. Lucy my back issue is because I was stupid enough to say I will take her home from hospital. She slipped getting in the car I caught her and new things had gone wrong in back straight away. Still waiting on results.

I am 68 now and feel it lately
We just take on far too much as Colin said and we pay the price.
Take care the weather is great today.
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Date: 27.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Guys I do feel for you , its never easy

Lucy , one of my older brother has dementia , over fifty years ago he had a accident on a push bike when he was a young lad , endded in a coma for two weeks but was left suffering epilepsy , as a result of drugs & epilepsy he has dementia , he cant stand the noise from his grandkids & goes into his room , its never easy & such a shame

we found it very had with my mother-in-law , my Wife & Son was at the wits end , no help from social care , she refused respite & its all about her , not saying your brother the same + your health not great , think hard before & get a exit plan with the social workers

Lois , hope your back is better , & with some good sunlight will make you feel better
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Date: 27.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Colin, My brother has never married and always been on his own and likes his own space so I suppose being in a home is especially hard for him. He has had a few bad falls probably because of alcohol and it may well have contributed to his problems with dementia. I am at my wits end wondering what is best for him and even thought of bringing him to stay with us but after reading your posts I am wondering if this would be taking on too much as we have our own health problems. My husband has Parkinson's disease but it is hard travelling to see him every week and beginning to wonder if it would be better having him here,

Hope your Mum settles in the care home,Lois. xx
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Date: 28.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , my late Father-in-law had Parkinson's , his GP knew he had it by the wat he walked/shuffled into his surgery , its a horrible illness , he also had mini strokes epileptic fits & after he died we found out he had Lewy body dementia , within six months he would not have known us

he was never a problem caring for , its non of my business telling you what to do , your husband will need some help & get attendence allowance for him , I do feel for you , take care
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Date: 28.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Lucy enquire about assisted living. It worked for mum. I guess Scotland would work exactly the same as down south.
He would be allocated somewhere with 24/7
carers on site. He would still be able to retreat to his own space. Mum had a one bedroom purpose built flat with wetroom.
This scheme is co run with local councils. His social worker can help you with this. It can be done. I feel for you so much.
Mum will probably be going next week when she comes out of hospital.


Colin it is a shame your brother retreats from the grandchildren. My mum used to do the same when mine visited. It just got too much for her. I found mum retreating more and more to her room hard but then I realised her bedroom was her sanctuary.
Take care.x
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Date: 01.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

What a cheek they have, bad enough using our site but now they are onto us. lol. Perhaps they think if we buy their counterfeit bank notes we will be cured. We could go and live in the sun by the beach if we buy enough.

Hope you are both doing alright. Have you had your scan results yet, Lois?

I can't get rid of this virus or whatever it is that I have so i've made a doc's appointment for tomorrow just to check that it isn't in my chest.

Are you still on any of the biologic drugs, Colin?
How is the leg ulcer? Hope it's a bit better and your eye. xx
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Date: 02.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , I should be changing biologics back to the tablet one I was on last year , done little for RA but kept scleritis under control (eyes)

ulcer are not bad justa shame everything else is knackered , wont do list , post will be greated that the stupid scam post

hope you are ok , & hope your brother settles in somewhere btw dont listen to me , do what you think is right , we did not have a chioce because they decided my mother-in-law had capacity , second time she wanted to stay on the ward which was not what they planed
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Date: 03.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi just a quick post. Hope your brother is doing ok Lucy.
Mum still in hospital long story. I am so stressed at the minute.

Colin i wish you well and hope you get to where you want to be. I have stopped all my meds after a long chat with gp. I am coping with it so far and feel better.
Speak soon take care.
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Date: 04.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Just bumping post up. I am not selling anything honest.
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Date: 05.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Guys,

Hope you are both alright. I've had some sort of virus, still not feeling great as coughing a lot and hubby has it too. I've been given antibiotics so if no better today I will start taking them.

Are you having sunshine where you are Colin? Do you live close to the sea? Can't remember if you said it was Cornwall. It is dry here but really doesn't feel like July, last night was quite chilly.

Hope you Mum is a bit better, Lois.

Have a good weekend xx
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Date: 05.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

bumping up
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Date: 05.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , we are on the west coast of Mid Cornwall , Meva & Charlestown where they film Poldark is only a few miles away , I am hoping to get out next week & try to find somewhere to see & here the sea

the OT I seen was very good but nothing has happened since , still not started my biologic , they are not a patch on yours , somehow need to lose weight & drugs & be healthy to get my joints done
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Date: 05.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, That is a lovely part of the country where you live and your weather is always warmer than ours here. I love the sound of the sea.

I've had an awfully lot of rituximab over the years and don't think it is working as well anymore plus before I seldom had a cold and now when I get them they seem to linger on. I've put two stone on since starting it, not sure if it has anything to do with it, maybe too many glasses of wine lol

Have a good weekend and take care xx
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Date: 08.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , the grass is not always greener & most the anti-tnf are crap , look at your other DRAMD first , you can always go back on Rituximab or you can down here , hoping to get out tomorrow & over next few months see if we can change a few things to make it easier to get out the house

next plan maybe weight loss surgey ( the boss is not kean on the idea !!! )
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Date: 08.07.2019
From: lois

Subject: Re: Hi Lucy Colin

Hi, Colin and Lucy,
I think all the pills make weight gain a nightmare. I came off all my pills and 10lbs came off straight away. I have lost over a stone now. I would like another stone please but I think I might have to work hard for that.

My mum is in a care home being assessed and to-day she had another fall and went to A&E. They asked me to take her there but although I felt bad I said I was out. I just think they need to see that without my input she cannot care for herself.
The hospital called and said she is fine and going home.
I am learning to toughen up otherwise I will be back to square one. I do feel a little bit bad like I am ignoring Mum. I have visited twice she has only been there since last Thursday. I will pop in tomorrow to check on her.

How did your brother get on Lucy.
Hope you and Hubby are feeling better. I will try to blow some better weather your way.

Colin I didn't realise you lived in Cornwall one of my favourite places Devon and Cornwall was always our holiday destination when we were kids. My Dad loved all of it and would of lived there given half the chance.
I hope you got out and about and got some sea air.

Well take care x
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Date: 08.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin & Lois,

Surgery is a lot to think about, Colin, I would be trying all other options first, it's hard when you have been on steroids as i'm sure they will have contributed towards it. I went for a wee swim today, I am having problems with my ankles but in the water it was fine, so I will try that and cut down on my wine.

Sorry to hear that your Mum had another fall, Lois, it is hard but I am of the same mind as yourself, I keep telling them that I can't always be there and it does put pressure on you when you have your own things to deal with. We went on Thursday to see him and we took him out for a couple of hours, we went to a hotel for afternoon tea and he got a pint of lager. Yesterday his friend took him to Ayr races, so at least he is getting out and it is a nice home, he has his own room with bathroom and tv and it is a nice big room that he has and in the dining room they have lovely table cloths on the tables, they even have a hairdresser, but he still wants to go home, we are still waiting on the social worker getting the doctor to re-access him regarding capacity, personally I think he would be safer staying there, she certainly isn't rushing for this to be done.

This is the first day in a few weeks that I finally feel as though this virus is lifting. I got an antibiotic prescription but decided to wait and see if it would go on it's own before getting it so hopefully i'm ok now.

Enjoy your days out and about Colin.

hope things improve with your Mum, Lois. xx
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Date: 09.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

well what happened was !!!! we live in a town on the south coast , & they decided we needed road works about hundred yards up the road , which means chaos , + my joints not great & my brother pulled out because his Son wants something & so endded going now where , I am very happy NOT


lois , hope your mum goes on better , its never easy but she needs to be in somewhere like that where there is 24/7 care

Lucy , think your brother getting out will help him & its a bit more like normal life , pleased your cold is settling at last

take care
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Date: 09.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Uff, same here Colin, we have a road closed not far from us and it's to be closed all week. Goodness knows what they are digging up, think it's maybe one of the cable companies.

I called today to see how my brother was as it is going to be the weekend I think before we can get down, they said he is sitting in his room all the time and doesn't want to come out for meals or socialise, he has told me he doesn't like to be around the type of people that are there, some do look quite bad.

Going to go to bed shortly, hope you are both sleeping alright. Night night xx
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Date: 11.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 11.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Just a quick post. Mum had some glue to a cut on her head. She seems ok and isnt to bothered about it. She is more bothered she cant get her hair done. She is still bothered that her hair must be done by a hairdresser every week.
I am shattered been gardening all this week. I love gardening I just let the world go by when I am working in the garden. Take care
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Date: 13.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up.
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Date: 13.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi guys. Just popped in to say hope you have a good weekend Off to see Mum shortly. Then a bit of down time with my daughter shopping. Maybe a coffee or two.
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Date: 14.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

You have a good weekend too Lois, you to Colin. Hope you Mum is improving, a good sign if she is bothered about her hair.

I am going to visit my brother this afternoon, we are going to stay for a couple of nights in a hotel close by and that will allow us to see him tomorrow and Tues as well and we can take him out.

I'm thinking I should have taken the antibiotics as I'm still coughing, but I have my blood to get checked next week so would prefer not to if possible as think they can alter the readings, I guess an infection can to.

Oh and it's a lovely sunny day here..what a difference it makes to see a blue sky xx
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Date: 14.07.2019
From: lois

Subject: Re: Hi Lucy Colin

Lucy, hope you have a few good days with your brother. Staying at hotel is a great idea it will take some pressure off you and hubby.
These summer colds and coughs just hang on forever.
I am also reluctant to take to many antibiotics.

I saw mum her dementia is worse every time I go. I should be hearing from her social worker next week. I am trying to stay positive.
Lucy enjoy that sunshine and blue sky. x
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Date: 19.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 20.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

The weather was lovely last weekend and we managed to get my brother out which was nice. I got a call yesterday from the home to say that the doctor called in and he has been deemed as not having capacity now, I don't know how he will be when I next see him now that he won't be getting home. I just feel so sad for him. Hope your Mum is doing better, Lois.

We have the rain back and I have a funeral today, my husbands niece was found dead at home, she was just in her forties, neighbours heard her cat crying and called the police.

Take care xx
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Date: 20.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys ,
Lucy sorry for your news , but maybe for the best for your brother , I hope he gets to like it there or somewhere he likes , You will fell very guilty not having him live with you but it would be hard plus he is not getting any better . My father inlaw was never any problems , he short term memory was very bad & we had to write down how to use the TV , my Mother-in-law was all about her & she could not think of anyone else , we had carers in 3 days a week because she needed around the clock care
Some people get angry , like my brother who is big & 6ft tall , can't stand the noise of his grandchildren & stays in his own room most the time , you want them to have some quality of life but to be safe at the same time

I am sorry for your loss , that is no age , & cant imagine how her family is coping
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Date: 21.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, I don't think he could have managed alone at home so it is probably for the best and I have my little granddaughter here a lot and although he enjoys seeing her I think she would have been too much for him and to be honest I don't feel able to take on anymore stress.

Hope you are doing alright, Colin. How is the new car? I hope you are managing to get out and about a bit, especially to the coast. That's the one benefit when we visit my brother as it is so close to the sea and it's lovely to go and sit at the promenade (weather permitting)

Take care x
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Date: 21.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi lucy, firstly sorry for your loss.So young.
You will have peace of mind now your brother is sorted. He will settle bless him. You are doing everything right. We cant deal with everything on our own.
My mum has had a second fall. Nothing been said so far looks like i will be chasing everything up again.
I am taking a lot of deep breaths a d counting to ten

Got a call from Dr surgery my scan results are back and need to see my gp.
Oh great so can i book an appointment well can you phone back Tuesday and we will see if there are any appointments.
Sorrry did I miss something i thought they were calling to make a appointment. Oh well I will ring back then.

Colin I hope all as ok your end.
Take care.
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Date: 24.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Guys, It is so warm here today and seemingly tomorrow has to be even warmer. It's hard trying to sleep as I keep waking up covered in sweat. Oh i'm never happy lol.

Did you manage to get an appointment with your doc, Lois? Imagine calling you to make an appointment then telling you to call back as they didn't have any.

I got a call from the care home yesterday so they have moved my brother to a downstairs bedtoom with access into the gardens, seemingly he is much happier, I haven't seen him since Sunday but was told he was at an art class today so at least things seems better with him now that he has been moved, he didn't like being amongst the bad cases so now he is with ones that are frail.

Take care in the sun and keep hydrated. xx
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Date: 25.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy,
So glad your brother is settling more. Must be a bit of relief for you.

It is sweltering down here. Hard to keep cool.
I have drs appointment in August. It will be here soon enough.

I have a meeting tomorrow regarding safeguarding the paramedics raised.
Then on Tuesday another meeting at Mums care home to decide where we go from here.
I know what I will be saying she needs to be in full time care.
I will let you know what happen.

Stay safe in this heat everyone.
reply | back to forum

Date: 25.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois,

It has been so hot here today again, I am sitting with a fan on beside me. I took my little grand daughter for new shoes today, at least the shops had air conditioning. I shouldn't complain though as the rain is due back at the weekend.

My hips and ankles have been so sore, I have to use my stick now and even that is a struggle to walk.

I hope things go well at the meeting tomorrow, Lois. Your Mum is a good age and probably would be better with full time care, it becomes a big worry when we don't know if they are safe.

Enjoy the nice weather but stay in the shade and plenty fluid. xx
reply | back to forum

Date: 26.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy the meeting went well mum is definitely going to stay permanently in a care home. Thank goodness that is settled.
The heat yesterday was unbearable hardly slept for two nights. It is cooler tonight so fingers crossed. My feet are tap dancing on there own I think its the humidity. First time really bad since I dropped the meds. I will need to wait and see if I can stay off meds.

Sorry you are struggling with your hips and ankles. I feel for you
Take care and rest up. X
reply | back to forum

Date: 28.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, Glad the meeting went well for you. You will feel more relaxed now that you know your Mum will be safe.

It is much cooler here now and so much more comfortable in bed, although we had heavy rain yesterday and it's been on and off today.

Take care xx
reply | back to forum

Date: 29.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , pleased some things seems to be a bit more settled with your family & hope they are happy in the homes

myself , everything is the same , one day hope to get out , been waiting for the things the OT tried to sort out , ie: wheelchair & support for my ankle & knee & help getting out this house (wheelchair access) but nothing is happening but its made it clearer what I need , they are changing biologics again but taking months

trying to stay positive but its hard at times
hope u guys are good or as good as can be expected
reply | back to forum

Date: 29.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, That's a shame that you are having problems with your mobility. I remember a nurse telling me that those that shout the loudest get, I think you will need to keep at them as it isn't fair that you can't get out. I am having a lot of problems with my ankles too so I know how you must be feeling. When I have been sitting and go to get up that's when I realise how bad they are as they are so painful. You have to keep positive, as new things are coming out all the time.

My husband was trying to arrange some ramps for his sister that lives alone as she can't get her wheelchair into her kitchen or bathroom as she has a few steps into both places and she called yesterday to say she had a fall in house and was waiting on an ambulance (it isn't arthritis that she has) we heard from her son this morning that she has a fractured hip (it was her daughter that died 2 weeks ago) she is 81 so don't know how she will be.

It's been showery here all day, what a difference to last week.

Take care and hope you get something sorted out soon Colin. x
reply | back to forum

Date: 29.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, sorry your still not out and about. It is very true what Lucy said so keep shouting. It is hard to stay positive but we have to. It is a shambles how it takes so long and goes between many before we get the answers. OT also take their time it is just a job to them
Lets hope they are never in our situation . I hope all is sorted soon for you.

Lucy it never rains as they say your husband must be so stressed and his sister such a shame. If its any help a d comfort my mum had a break in her hip and had a replacement . She also fell. She did very well. She did need a lot of after care fortunately she was kept in hospital for most of it. Six weeks in all. Then six weeks at home for showeres and physio.
It has been lovely here today spent it in the garden
Now time for a relax.
Take care
reply | back to forum

Date: 30.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

bumping up
reply | back to forum

Date: 30.07.2019
From: lois

Subject: Re: Hi Lucy Colin

bumping up
reply | back to forum

Date: 31.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

They are really taking over this site. Wonder why they think we will be interested?
reply | back to forum

Date: 01.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , thanks for the advice , it was brighter this morning but now dark clouds have come in , but it's a bit brighter inside my four walls

talked to the boss yesterday about getting help to lose weight , she is not happy but a ballon maybe which was what I was thinking anyway

seen the OT in june & not heard anything & same for a new/old biologic but chasing them up

hope you guys are ok , hate depression but suffered from it for over twenty years so nothing new just a few more pills (over the counter ones) dont tell my doc , best wishes
reply | back to forum

Date: 04.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois and Colin, Hope you are as well as can be expected.

I am quite worried as I have been coughing up blood, on Friday night i was getting into bed and coughed and was shocked to see quite a bit of blood in my hanky so I called the emergency services, they were very nice and seemed to think it could be coming from a ruptured blood vessel in mt throat so They offered to take me to get checked but I thought if that's what is was I would wait and see, I am still coughing up some blood but not as bad. I will probably try and get an appointment with doc tomorrow and go for an x-ray. I started taking tha antibiotics yesterday as they said there were some crackling sounds in my chest. I should have taken them a month ago.

I will let you know how i get on after the checks. xx
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Date: 04.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

lucy , that is not good , my sure its nothing to do with that cold you had problems shaking off

never realy had that , got ocupational asthma but even with that never blood , hope they got it right

best wishes xxx
reply | back to forum

Date: 05.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, i bet you were worried. Check with your GP and keep taking those antibiotics. Wish you well take care xx
reply | back to forum

Date: 05.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

almost BUMPED into myself
reply | back to forum

Date: 05.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Wow i guess they are finding it hard to post any where else.

Hi Colin hope you are good well what we call good.
Do you know Colin sometimes we need to do what we feel is good for us. Some over the counter products are great
I have psoriasis family thing my younger brother came across Psoriasin he bought it on line i have it mild but he was covered and nothing worked for him. He is now psoriasis free and so am I. His gp didnt want to know my Gp was interested a d said he would take a look his self.
It isnt expensive and has only natural ingedients.
So just go with it anything is worth a try.
Take care.

Lucy i hope you are ok.
X
reply | back to forum

Date: 07.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Guys, well I have the results of my CT scan of my spine.
To say shocked at the result is mild. I feel better about it today as I am unable to change it.
I have 5 slipped discs curved spine right at the bottom and OA spurs. The discs in three places are pressing on nerves causing all the pain.
This would be a big operation so for the time being I will be taking Gabapentin to turn off nerve signals if this does not work then we have to have another discussion.
To top it all mum was given funding and then it was taken away her Social Worker is now on a mission. I have told her if this doesn't get sorted and she is sent back to her flat you will be on your own and I will step back totally because I cannot agree with her not being in a care home.
I have so much going on it is driving me mad.

Just venting speak soon. X
reply | back to forum

Date: 07.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois
I feel so sorry for you results , dont have a lot of problems with my back myself but the boss does ,
that is a lot of slipped disc , not sure about the curve , the boss got hit by a car when she was young & has a curved spine & other problems because of it , would hope some physio would help you
I take pregabalin for nerve pain , it helps & would recommend it

as for your Mum , they are total bastards , know its all about money & funding , maybe a cut in there 200K a year jobs would help
reply | back to forum

Date: 08.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Thanks for your reply Colin I will keep pregabalin in mind if the gabapentin doesnt work. I obviously knew something was going wrong but I wasnt expecting so much damage. Surgery I am not ready for it would be a big one. My last back surgery was bad enough. As long as i can get around i will leave it alone. The curve at the bottom is caused through the break down of bone and disc hernia. My Gp is against phydio or any form of manipulation. I will soldier on as we all haave to

Colin I havent heard a thing about Mum yet. I hope they understood what I was saying. I saw Mum yesterday and she is decling fast bless her. It is such a cruel disease

Take it easy Colin and have a good day.
reply | back to forum

Date: 10.08.2019
From: lois

Subject: Re: Hi Lucy Colin

Hi Lucy just checking in hope you are ok. x
reply | back to forum

Date: 10.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Still waiting on x-ray results Lois, and i'm really quite worried, I have appoint with doc on Tuesday but will give them a call on Monday to see if they will give me them over phone.

Hope things with your Mum are ok.

My husband has cellulitis in his leg so haven't managed down to see my brother in aslmost two weeks, planned going tomorrow but will have to see how he is. This weather is shocking, rain, rain and more rain. xx
reply | back to forum

Date: 12.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , hope the results are good , dont worry to much , it could be anything causing your problems

as for cellulitis be carefull & make sure its cleared up, that is what caused my sepsis two years ago , I was not the only one in critical care with that sepsis & kidney failer
reply | back to forum

Date: 12.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks Colin, I am going to call this afternoon and see if they will let me know.

My husband has the nurse coming in this morning as he has a wee cut on sole of foot, probably where it got in, the last time he had this he was in hospital.
reply | back to forum

Date: 12.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, it never rains hope your results are ok. I also had cellulitis and put on two lots of anti biotics and lucky for me it cleared up. Never really knew why i had it there was no injury to see.
Keep us updated.

Nothing about Mum still waiting. I am just
Waiting.
reply | back to forum

Date: 13.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

lol there post are getting even bigger
reply | back to forum

Date: 13.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 21.08.2019
From: lois

Subject: Re: Hi Lucy Colin

Bumping up.
I have e-mailed the moderator again asking to clear the posts. No response yet. This is a joke and just ruining the site. Surely something can be done.

That's my rant over hope you guys are doing ok.
reply | back to forum

Date: 21.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

lois ask if you could help them moderate as in clearing the spam post

quick update or non update , nothing much is happening , got my new biologic& doing nothing , just nice swellings on my knees , got a appointment next month to look at a brace for my ankle & calipers for my other leg to support my drifting knee

sort of last hope for my legs , there is so much wrong with them & every joint now needs surgery

anyway hope u guys are good
reply | back to forum

Date: 21.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois & Colin, Just a wee update. I got the results of my x-ray (well sort of) said there is consolidation and inflammation shown and got a call from hospital on Monday to go for ct scan next day (yesterday) of chest and stomach (that has worried me more that they scanned stomach too. When the girl called me she said consultant wanted to see scan before my appointment with him, I didn't know I had an appointment with him (they probably post appoint. I'm trying to be positive but very hard, I do feel ok and the strange thing is the arthritis doesnt feel too bad at all. Hope you both ok xx
reply | back to forum

Date: 22.08.2019
From: lois

Subject: Re: Hi Lucy Colin

Hi Colin, lets hope the brace and calipers help. It must be so annoying when things ae going so slow. Shame the new biologic doesn't seem to be helping.
I have not been taking my meds as I just don't
trust my consultant my GP is on my side, so say no more about it. Because to me that says it all when a GP agrees with you. Take care Colin and hopefully your next post will be a bit more positive.

Lucy, sorry to hear you have been left worrying about your results. Do you think you may have had a bit more than a chest infection maybe you had a bout of pneumonia without realising it.
I have to say they are taking good care of you. Chin up easy for me to say I know. xx

Nothing on my Mum still. I am just letting them get on with it at least where she is she is being cared for.

I went down a pot hole and sent the air blue I just hurt so much when I jar my back the Gabapentin only work for a short while maybe I need a better dose. My GP is ringing me Tuesday to see how I am getting on so lets see what happens.

Take care.
reply | back to forum

Date: 23.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Hi Lucy , try to stay positive , the results could be anything knowing he has not looked at them , I would be bricking it as well

lois the boss done the same thing yesterday , no blue air though , hope its feeling better today
reply | back to forum

Date: 23.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, i am still limping today. I am trying not to because its not helpful putting a strain on the other side of the spine. I sat in the sun today hopeful it might help.

I hope Lucy gets her results soon I feel for her all the waiting is the worse.
Fingers crossed her results are all good.
Take care Colin.
reply | back to forum

Date: 26.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi guys, hope your managing this hot weather. I like the heat but this is a bit hot for me.
Just popped in to see if there was any news from Lucy.
Hope all is well with you both.
reply | back to forum

Date: 27.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois , I am ok ish & also hope Lucy gets some good news , I am not coping with the heat , strange as I used to manage a Foundry where they cast tones of iron/steel a day

I have to get out the house next month which will be first time in months

hope you are keeping well
reply | back to forum

Date: 27.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois & Colin, Hope you are both as well as can be expected.

It has now been a week since my scan and I was going to call doc today to see if the results were back but I couldn't, I think I am frightened of what the ressults might be. I will give it another day or so and see if the appointment comes in.

Last night I took a terrible rash on my stomach and today I am totally covered in a horrible itchy rash, well it's more like big blotches, so not sure what is causing it although the antibiotics that I finished over a week ago did say to stay out the sun. I have been sitting outside the last couple of days and I did read that they can problems in the sunlight but didn't think since I had finished them it would matter. The itch is driving me mad and covered from the neck down.

Colin, I hope you get some relief soon and if the caliper helps your leg and does some benefit then it will be worth a try. What is the new biologic called?

Lois, I hope things are alright with you and hope things with your Mum works out too.

Take care xx
reply | back to forum

Date: 27.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi lucy no news is good news. My scan took two weeks before the GP got results.
Your blotches and itching sounds like an allergy. Hopefully it will go soon. Lucy I hope all goes well. XX
Colin the heat has been really over the top I dont mind the heat usually but not this hot.
I hope you get out next month and enjoy it .
Take carex
reply | back to forum

Date: 28.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks for your message Lois, thought i'd bump up. xx
reply | back to forum

Date: 28.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

I had aGp phone consultation and now I have to take 2x3.gabapentin 6 pills a day is not what I really want but to-day was better and it did make me feel a bit easier about it.
Lucy I hope you get sorted soon. Take care xx
reply | back to forum

Date: 28.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

If it helps then worth a try, Lois.

I will let you know when I get my results.

The rash is much better today, my daughter got me some antihistamines so think like you said an allergy to the antibiotics last week. xx
reply | back to forum

Date: 29.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

and was bumping up again x
reply | back to forum

Date: 30.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

All clear again lets see how long before they come back. The moderator e-mailed me to apologise for the delay. Must be fed up with it just like us


Any way Lucy glad to hear the antihistamines worked for you. I hope you get your results soon

Colin hope you are doing ok.

Off for a three day break on Monday Somerset. Staying in a realy old Pub. I just need to escape for a while. No news on Mum. That is driving me mad.
My two brothers will visit so mum will be ok
reply | back to forum

Date: 30.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

oh that sounds lovely, Lois, a well needed break so enjoy, hope the weather is kind to you, it has been raining non stop here all day and yesterday too. At least you know that your Mum is safe and being looked after so try and relax and enjoy the break. xx
reply | back to forum

Date: 31.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guy , lol stunned to see all the spam cleared , its so nice & thanks to the mods for doing it ,

Lucy , pretty sure if anything was realy bad they would have called you by now so staying hopeful , just hard not knowing & thinking the worst

Lois enjoy youe break , think you deserve it

I am thinking I need to do something to lose weight , will talk to the boss & then do what I think is right for me , this new biologic is doing nothing to help , maybe a new brace will help but this cant go on for much longer & will take months to lose weight anyway

guys take care
reply | back to forum

Date: 31.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi. Colin it is hard to get motivated on this weight loss thing. I need to shift a stone at least. I did the first stone and that was it.
We cant win on this one not being able to excercise doesn't help
I do like my food as well not going to lie about it. I think we suffer enough without piling on the pounds. Someone should give us a break.LOL
Take care.

Lucy Colin is right I am sure you would of heard by now if the news was bad. It is the waiting not knowing.
I cant wait to go away just for a chill out
Went to see my son and his family for the day they were spending a long week-end break an hours drive away from us. They have 5 berth motor home. Nice bbq and then my other son popped up so a family gathering. Made a lovely day. Small things in life make happy days

Take care x
reply | back to forum

Date: 01.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up. That didn't take long did it?
reply | back to forum

Date: 01.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

More again Lois
reply | back to forum

Date: 02.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois and Colin, I called the doctors surgery today and was told that the CT Scan showed no abnormalities, I cried when I came off the phone as I was so sure it was lung cancer. I have to go in a few weeks for another x-ray so I'm not sure what caused the bleeding, hopefully just an infection. I just wish I would have called last week as they had the results back on the 27th but I was too frightened to call. Thank you both for your wise words.

I hope you are enjoying your break away, Lois. It's always good to get a change. I hope the weather had been nice for you.

It can be very frustrating trying to lose weight, Colin. Have you been to see a dietician? it is hard especially when you can't get out and about.

I know when I started the rituximab it took around 4 months for it to work. How long have you been on the new biologic? It's definetely worth trying the new brace and hopefully it will help. Try and keep your spirits up as it is very easy to get down with this disease. This may sound silly but I have started drinking a lot of water, I hardly took any before and it seems to have helped. I now keep a glass at the wee table beside me and just keep sipping at it and it can stop me eating so much and seems to help with the RA, unless it's imagination but since drinking more I have felt a bit better.

Take care xx


.
reply | back to forum

Date: 03.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Hi Lucy , so pleased your results was good , its such a worry waiting even if you think you are ok

I been on this biologic 3 weeks but been on it before , its very easy to take being a tablet & only stays in the system a few weeks , but I need to get my steriods down & even on rituxamab I was still taking them , my crp would be 60 - 120 without them , I do drink alow of water a day but it dont help much ,

I not seen anyone about my weight as cant get out the house , my knees are the worst , & need wheelchair to get about but our place has steps & we cant get help , know we should move but been here a long time & finding somewhere that suited for wheelchair is not easy

take care & pleased for your results
reply | back to forum

Date: 03.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thank you so much Colin, you and Lois have been a good help to me with advice and I do appreciate it.

Would a dietician not be able to visit you at home when you have problems getting around Colin?

My sister in law has the same problem as she can't get around, she lives alone and has a few steps going into her bathroon and kitchen and can't get the wheelchair up or down so my husband suggested a ramp in the house. He was arranging to get it done when she had a fall and has been in hospital but getting home on Thursday, I think she would prefer to move but like you say it has to be somewhere suitable.

I really hope things get better for you Colin, have you been in touch with the social work dept to see if they can help? it's not fair that you are left to try and sort this out yourself.

Take care and thanks again xx
reply | back to forum

Date: 06.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, just back from a lovely break in Somerset.

So Pleased your results were good. I knew what you were thinking. I would have cried too. Now you can settle.

Colin why cant you get help surely they can see you cant get out of the house. They should know how bad that is for your morale.
I am not surprised still waiting on social services to fund mum.
Life is a constant strugggle for people like us. I have just given up and I am going along with it. What else can i do?

Take care x
reply | back to forum

Date: 06.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 07.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks Lois, Glad you had a lovely time in Somerset. It's always nice to get a break away.

I'm not surprised that you are still waiting on social serices to get your Mums financial situation sorted. They have still not done my brothers financial assesment as social worker always seems to be off sick. I really don't know how they get away with it.

Hope you have a good weekend, at least the weather is better this weekend.

Take care xx
reply | back to forum

Date: 10.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 13.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy Colin.
The weather here is good again.
I have given up with it all. I will just wait. As long as they are taking care of mum and she is safe I am ok with that.

I hope you are both ok.
Take care
reply | back to forum

Date: 14.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , werther here is very nice , shame I cant get out at moment , but got hospital visit tuesday for ankle brace & maybe callipers for other leg , will wait & see what they offered

asked about wheelchair & they said I needed a electric one but needed to use it four times a week , anyway got myself a lightweight self propelled one cus my other one is very heavy

we should move but with 34 years of junk here & we realy like the place but still way to big for us , but cant see anywhere that would suit what we all need

lois , hope your Mum is good & Lucy hope you are keeping good
reply | back to forum

Date: 14.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, i moved after 30yrs. I thought it would be tough but I took a deep breath chucked the stuff i had in cupboards I had not used for years. The rest just came easy. I got a charity to pick it all up free of charge. No expensive skips.
I live in a three bedroom cottage it isnt huge I have a kitchen lounge and dining room. The dining room will become our bedroom if need be. We have a toilet downstairs which could be a shower room.
Just keep looking Colin you will find somewhere. I have never looked back. This was right for me and hubby.
I hope you get the help from the hospital you need. It is about time they gave you what you need.
Take care Colin it will come to-gether for you. X
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Date: 14.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

This is becoming ridiculous with all the posts on fake diplomas etc.

It has turned quite cold here but as long as it stays dry I don't mind too much.

I sometimes think we should move and I would love to live by the sea but as my daughters and grand daughter live close by I probably won't. We live in a bungalow so at least it is easy for me with no stairs but hubby is finding the garden hard work.

I really hope the hospital can help you Colin and hope the ankle brace etc make a big difference, it isn't fair that you haven't had more help. Would you be able to use a scooter? It is a shame you're not getting out and about. I hope thimgs improve soon for you.

Take care xx
reply | back to forum

Date: 15.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, i will e mail the moderator and ask what she can do. Its a shame you are not getting the weather we have.
I love my gardening but I am finding it tough I was so frustrated earlier I was close to crying.
So get your hubby finding it hard. Is there any volunteers that help with gardening. I know there is locally to me.
A bungalow sounds ideal. I would stay if if I had a bungalow.
I feel for Colin it really is about time they sorted help for him
A mobility scooter would be good. I am thinking about one so I can still get around.
Lucy take care and stay by your lovely family. X
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Date: 16.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

They really are taking over the site Lois.

We do have quite a big garden Lois, the only people that I know of that would help do it as a business. My husband does spend a lot of time in the garden but he will say now and again it is gettting too much for him so we probably will have to get some help soon.

We are going to Ayr today to see my brother and staying over for a couple of night, it is a nice bright day here so we will get him to the promenade for a walk and then to a hotel that overlooks the sea for a bite to eat. I still have his house to sort out.

Hope you got on ok at the hospital Colin

xx
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Date: 17.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, have a good few days with your brother. I hope you find him happy and well. I bet he will enjoy his time with you. I still haven't cleared Mums flat yet.
I am suffering badly with my back so it will be waiting a little longer.

Iam glad you have better weather. X
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Date: 18.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 21.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, We had a nice time staying in Ayr and when we were coming back on Wednesday we brought him back to stay here for a few days, he went home today so we are not long back. It went well for the first two days and the weather was lovely so he sat in the garden and we had a bbq, but last night for some reason he refused to go to bed so I had to cover him up on the chair, he seemed very confused. I must admit it was hard work and I am exhausted now. It was quite hard taking him back today as I could tell he wanted to come with us.

My ankles are so sore, they are saying the x-ray showed osteo-arthritis so no point going for an infusion at the moment as it is the hip and ankles that are giving me the most bother and neither are related to the RA or so they say.

Hope you are doing alright and have enjoyed the sunshine, the rain is due back here tomorrow.

Take care xx
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Date: 21.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, I am glad you had a few good days with your brother. It is so hard when they get confused it is just easier to let them do what the like aslong as they are safe.
I can imagine how tired you must feel that was part of the reason I couldn't look after Mum any more.
I saw mum on Thursday she had her hair done in the morning and had her new top on and she seemed really happy
I took her flowers and she was made up. I felt better when I left.
I have OA in my ankles so I really understand how painful it is. My back is so bad I have forgotton the rest of my pains LOL.

The weather has been lovely been in the garden mostly. The rain is due here tomorrow
Take carex
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Date: 22.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , I went to hospital this week , they done a plaster cast of my legs/feet to make some boots to support my ankles , the left one is going over on its self , the valgus kness they dont think they can help that much , to immobilize my leg would make me walk funny & dont think the other joints would stand it , but nice to get out the house I travel in my new car (not driving) but suffered afterwards

Lucy , pleased you had your brother for a few days , its strangee they give a home 700 a week to look after someone but thier family nothing , with my late mother-in-law we made a fuss and got care three nights a week which was cheaper than putting her in a home but still 9 hours a night at 17/hour

as for you ankle/hip strange after 20 years of RA you develop OA (same as my knees) my only advice is dont leave it to long to get them dont , you will develop other problems with skin/circulation damage & other things can go wrong because the way you end up walking

lois , rememmber one day when I & my mother-in-law was both in our local district hospital , called to see her & she had just had her hair cut , she was so pleased , it cost 8 but I endded up paying for her hair cut , but her smile was worth it & to see her happy , it was moment I did not see that often , its hard with a love one suffering , I do feel for both of you , take care
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Date: 22.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, I hope the boots help your ankle, I remember my mother used to say that when your feet were sore you were all sore and that's how I feel right now. Like yourself I find it hard to believe it's OA in my ankles, I am going to call and see if I can get an injection into them, I rubbed some voltarol into them this morning but need something else. I really struggle putting my feet on the floor when I get out of bed in the morning.

To be honest Colin, I'm not sure if I could have him back to stay as I am shattered now and more sore than ever. He sometimes wet himself and my bathroom floor was forever getting covered in urine. The care home want a meeting this week regarding guardianship, they were meant to sort this out a while ago and this is it just getting done now, I'm now wondering if I should just do it.
They even asked if I could pay the fees to the care home until it's sorted out, i thought that was cheeky.

That's good that your mother seems to be settling, Lois. A hairdo and flowers always cheer me up too.

Take care xx
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Date: 22.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin fingers crossed with the boots.
Colin they would rather we struggle along so they have no cost. A smile is worth everything.

Lucy bloody cheek asking you to pay the fees. If they didn't drag their feet it would be all sorted. Lucy sometimes you have to put yourself first. When you visit your brother it will be quality time with no stress for you.

Me too hairdo flowers and cake smiles all round.
Takecare x
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Date: 24.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi, just to let you know Mums funding has just come through. Lucy your brother can't be far behind. A long old road nearly there just a permanent residence hopefully where she is.
Take care.
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Date: 24.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

That's great Lois. That will be a relief to you.

There is a meeting on Thursday regarding his guardianship, I just wish he had put a power of attorney in place and it would have made things so much easier. I have been told it can take months for that to happen as it has to go through the court. xx
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Date: 24.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy just go with it all. You can't really do much else
Thank goodnes Mums social worker suggested power of attorney when Mum was still able to understand.
I hope the meeting goes well.
I don't know how guardingship works. I hope its no too bad for you.
Take care of yourself and hubby of course.x
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Date: 25.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Bumping up....thanks Lois, I'm not too sure myself how it works but i'm leaving them to it as can't take anymore stress. I have my little grand daughter staying over tonight (no rest for the wicked) lol, although she is good company but never stops chatting. xx
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Date: 25.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi Lucy ,hope your meeting goes well , remember ours , we was sticted up but you should not have that trouble as it was a hospital & all they wanted was to get some out , but dont totaly trust them

dont think you can have power of attorney , but if you do try to get it for money as well as his well being , but the laws in Scotland are a bit different

lois , pleased your funding come through and a bit less stress for you
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Date: 26.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Thanks Colin, now I have to tie the lose ends. Nearly there. She understands that she will be staying where she is and she said it's ok I like it here.
Lucy good for you sit back and it will be over soon.
Off for dinner and a show tonight. Tomorrow off to a two night break and going to an antique fair.

Take care guys. X
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Date: 26.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Oh that sounds lovely Lois, have a lovely time.

Colin, I didn't go to the meeting, I called the social work yesterday and said they can just send me the minutes of the meeting as I feel sore and tired and feel I can't take on anymore responsibility, it is probably foolish of me and I may well regret it but just can't be bothered with it all anymore.

I'm waiting on rheumatology getting back to me about an injection into my ankles.

Have a good weekend xx
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Date: 29.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi guys, back from my break, had a great time bought some stuff for the garden architecture they call it i say ornate. Just got to place them about. The weather was good to us but come back to it pouring down.
Got to start sorting mums stuff flat and bills ect now.

Lucy don't worry about not going to the meeting it will sort its self out. Take it from someone who spent months worrying.

You need to get yourself well.

I can't believd winter is nearly here. Time for cosy nights by the log fire soon

Colin I hope you are doing ok.
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Date: 04.10.2019
From: Colin W

Subject: Re: Hi Lucy Colin

this needs a little bumping !!!! or buy a dodgey cert & lose my credit cards ,

anyway I am back on penicillin again , more ulcer with a infection , anyway a nurse from our surgery phone & decided I needed to get to thier hot foot clinic , & they booked an apiontment the following day & there was no way I could get out the house ,

the nurse phoned again & moaned but they get get here to take a look so told her they get transport & I would go , not happened yet , we have got a crap surgery , four merged into one & gone downhill since
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Date: 04.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

That's terrible Colin. Do you not have a district nurse that can call in to attend to you? When my husband had cellulitis in his leg the nurse called in to dress a tiny wee opening on the sole of his foot every few days and the clinic is a 2 minute walk from my house.

Glad you had a good break Lois and it's always nice to buy something nice, even if it's for the garden, you will get a lot of pleasure from it.

The weather here has got much colder and damp, think we are going to see my brother today as I got a call from carehome at 5am yesterday to say they had to call the doctor into him and he has a chest infection so he is now in hospital.

I'm still waiting on the call or letter about the ankles injection.

Take care xx
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Date: 04.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Colin, surely they know your situation. A nurse should call at your home anytime needed or they can put a district nurse place. I have a good GP and the practice is good apart from my asthma nurse I have never seen her smile. I hope your antibiotics kick in quick. TAKE CARE.

Lucy,lets hope you get that letter soon.
Just to make you feel better we had the log burner on yesterday.
Oh bless him hospital is the best place for him. I hope he is up and about soon.
At least you know the care home is looking after him.
TAKE CARE X
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Date: 06.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up.
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Date: 06.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, Oh I do love a log burner. I bought a fire last year that has what looks like real flames and smoke with logs but there is no heat from it but does look quite realistic.

I went to collect my brother from hospital today and took him back to the care home, he seemed happy to get back. He has a swollen toe, not sure if it's gout, the nurse said she would get the doctor to call in tomorrow to look at it. I can see him getting more and more frail.

We are going away tomorrow to Crieff for an overnight stay for my grand daughter's 4th birthday. It has plenty facilities for the little ones.

Off to bed now, hope you are keeping ok.

Colin, I hope things gets better very soon for you. xx
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Date: 08.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Good news your brother is home. Good sign he was happpy to be back in the care home.
Oh bless him now his toe.
Nothing like flames to make you feel cosy.
I love the log burner getting the chimney swept next week then it will be lit every day it is cold.
Enjoy your stay with your grand daughter I can't believe she is 4. Have we really been moaning that long LMAO
X
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Date: 09.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

I haven't seen a chimney sweep for years Lois, there can't be too many around now. I remember when I was a child we lived in a tenement and a pigeon fell down our chimney, it certainly helped to sweep the soot out. I don't know who was more alarmed though, us or the pigeon, the fire wasn't lit at the time lol.

Our day and night away was lovely, although the weather has been very wet here, rain, rain and more rain. xx
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Date: 09.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Glad you had a good time.
The rain is on and off here I hate the damp weather.
I hadn't seen a chimney sweep since i was a child it does seem odd going back to my childhood. We had a pigeon down the chimney last year just as well it was dead it cost 40 pounds to get it down.LOL
I asked the moderator to clear the forum lets see how long they take to gget back on here.
X
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Date: 10.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 11.10.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , hope you are good , I got district nurses coming in to help make my toes worse , they was heeling until they took over , we was changing it every day & now the nurses turn up twice a week & its getting very wet .

they mean well but nearly finish antibiotics so hope it will improve over next week

hope you guys are good & families are settled & all the funding sorted , take care
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Date: 12.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Oh dear Colin sorry to hear the district nurses are making your problem worse. Lets hope they do improve. You certainly could do with a break.
Mum is all settled and her flat will be gone onthe 21st. I will be closing that door and waiting for the next one to open.
Mums funding all done. So all going well now. Take care Colin x
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Date: 16.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, That's not good that the nurses have been your toes worse. Hope the antibiotics clear them up. Having sore toes and feet is horrible.

I am loaded with the cold again, I seem to be taking so many virus's now and yet before I went onto all the medication I never had a cold. I called about my jag into the ankles and was told the person that does them has been off sick for a while, I would have thought at a large teaching hospital there would have been more than one person trained to do them. Meant to be going for my infusions next week but will see how I feel and I have had a lot of them which worries me.

How are you Lois? I bet you have your log burner on most nights now. Isn't time flying by, it will be xmas before we know it. xx
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Date: 16.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, i have a chest infection second lot of antibiotics and steroids for five days. I do feel a bit better today. The steroids are giving me relief from my back pain i am making the most of it.
My hubby has a second cold so many viruses going around.
Well i am with you how can only one person do the injection ridiculous. I don't know what infusions are or what they do
. Can you have them while you feel unwell?
I hope that cold goes soon.
The log burner has been on a few nights. I need to order some logs. We buy them from the local tree surgeon.
Mum has fluid on her legs again just an age thing but the carer rang and the dr came out and gave her antibiotics and painkillers.
I can't go to see her so i feel pretty bad about that.
Oh well I better go and try to get some sleep
Take care
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Date: 20.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, I hope you are getting over the chest infection, there seems to be so much going around just now. I've been loaded with a cold all week so i'm thinking I will maybe cancel the infusion this week. My daughter has a sore throat too so think we are all getting a turn.

It's a lovely bright day here for a change, we are going to see my brother today and will stay over and hopefully take him to Arran tomorrow, lt's just under an hour on the boat so he should enjoy that.

Take care and hope you feel better soon xx
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Date: 21.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi lucy, much better thanks. We had two nice days so got a bit of autumn gardening done. I am sure my neighbour was delighted listening to me coughing all day.
My mums flat has now been handed back so now its all about moving forward.

That is so lovely I hope your brother and you of course have a lovely day.

Take carexx
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Date: 22.10.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , hope you are both felling better ,
pleased your families are starting to settle , sometime you want to be thier family & not the carers

as for me , at last my leg seems to be getting better , still got district nurses coming but only twice a week , but we are dressing it every other day

anyway hope you both manage to get out with this good weather
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Date: 23.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois and Colin,

Pleased to hear that things are improving for you both.

I cancelled my infusion that was planned for tomorrow as i'm still loaded with this cold, I think I may have to see the doc as I am coughing a lot now.

My brother seems to be sleeping an awfully lot now, when we got there on Sunday he was in such a deep sleep I couldn't waken him so we left and went back on Monday to take him out, I didn't realise that there was such a walk when we got of the ferry and he was exhausted so on the way back we had to get a wheelchair for him. We went to see him again yesterday and again he was asleep but he did waken up this time. I had waited until after lunch before going yesterday and was a bit shocked that they hadn't wakened him up as the lunches were finishing when we went in. I had to go and ask them to get him something to eat. Also his duvet cover was all stained and had been put on inside out and the floor was all sticky. I don't like complaining but I feel I will have to say something when I phone today. Well enough of my moaning. I best make a move and get showered, I'm feeling lazy this morning.

Take care xx
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Date: 23.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, good news your legs are improving. Lets hope you will quickly heal the last bit.
Colin you are right I feel so much better that my visits with Mum are one to one and all about mum. She sems happy so thats good for me.

Hi Lucy, my mum is always asleep when I get there. My mum is awake most of the night. All part of dementia so I'm told.
Lucy if you feel you need to say something then go ahead remember you are speaking up for your brother. I feel if you show them how much you care they will appreciate that. If they don't like it tough. I never say when I am going I just turn up. So far so good nothing come up yet.
Take care both of you .x
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Date: 24.10.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, Yes, you are right. I did call today and said that I was concerned at how sleepy he is and about him missing his meals. They said he gets up at 4am so is tired during the day. I said it would be better if they could encourage him to eat at the right times and was told if he misses his meal they would get him something later if he is hungry. I don't believe they do. He told me yesterday if i hadn't wakened him he would probably have slept all day and that isn't right that he is being left in his room to sleep so long, i feel he should be encouraged to get up.

I have started just turning up at the home too Lois, and he had the same clothes on from the day before, i think he is probably sleeping in them too. I could detect annoyance in the nurses voice today when i called, perhaps I do call too often (usually every other day).

I best get to bed now, it's after 12.30.

Take care xx
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Date: 24.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Lucy I would do exactly the same. Mum is up all night just cat naps. When ever I get there she is in the social room with all the other patients. Shd does fall asleep in the chair but she isnt left in her room. All patients are called awake for meals.
Mum has clean clothes on every day and they change her top and all the others if they drop dinner down themselves.
Lucy don't worry about the nurse being annoyed if they were doing things right you would not be complaining.
Make a list and when you feel it is getting to long ask for a meeting with the Manager of the care home. You are right to be looking out for your brother. They need to know families are not going to put up with second rate care
Take care Lucy x
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Date: 26.10.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 01.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up. These people are such a nuisance. Morons we are far to intelligent for the need of fake degrees. LMAO

Hope you are both ok..
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Date: 02.11.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hey guys , nothing much changed here , apart from 80mph gust here last night , we live about a mile inland but it was rough on the coast

getting a new knee brace next week , hope it helps the valgus deformity I got on my knee , list about 20 degrees sideways & keeps giving out , the ulcers have just about cleared & think the nurses have stopped coming , just have not told me what they are doing

guys I feel for you , with the care homes etc , got some idea what you are going through
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Date: 03.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, good news things are on the up side for you. I really hope the knee brace helps. I am not surprised the nurses have left you not knowing whats happening. Mums nurses used to be the same.

So far Colin Mums care home seems to be very good. I really feel for Lucy, these people never seem to take into account family.

The wind was bad here yesterday my swing seat blew up the garden and has broken I guess we could say we were lucky. It is very open here farmers fields everywhere.
Which makes wind so much worse.

Take care all the best for the knee brace
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Date: 03.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Oh that sounds like it was a gale Colin, I hope there was no damage done. I like to listen to the wind when I'm tucked up in bed but worry a bit in case the roof blows off or the garden wall blows down like it did once before.

I was down visiting my brother today and he looked quite well and happy today. It had been two weeks since my last visit as I have my little grand daughter staying with me at the moment as her Mum is in hospital, it never rains but it pours at this end.

Got an appointment in for later this month for my ankles and surprisingly they haven't been too bad lately.

Take care and keep warm xx
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Date: 04.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Meant to say that I hope the knee brace helps Colin and pleased that the ulcers are clearing.

Hope all well wuth you lois xx
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Date: 06.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

I am all good Mum was 94 yesterday she had a lovely day and a party at tea time. Birthday cake plus extra for everybody.
She was loving the fuss.

When I got there her room had balloons and a banner supplied by the care home.
So all good.

My back has been so painful I am sure it is the weather. My other half is also suffering with his knee and back.
We are both just lounging with the log burner going.

Yesterday I was so excited a barn owl was sitting on my fence they are so cute. I am definitely getting the country bug.
Oh well what do they say little things...

Take care xx
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Date: 16.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up. Here we go again.

Not had a good week at all.

Hope you guys are ok ? Xx
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Date: 18.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 19.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois & Colin, Hope you are both ok. I had an appointment at hospital this morning hoping to get an injection into my ankles but they did a scan and have said it is osteoarthritis and as there was no inflammation showing there was no point in getting a steroid. They have mention shaving some of the bone or fusions so will wait and see when the appointment comes in.

My brothers's friend brought my brother to visit me yesterday, he didn't look good at all and didn't utter a word. I feel so sorry for him as it isn't nice seeing him that way.

It has turned really cold here, the mornings are white with frost. This is the time of year that I am always frightened that I will fall as the path and pavements are always so slippy.

Take care xx
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Date: 20.11.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys ,
Lucy I would consider having your ankle fused , it will help with the pain without restricting you to much , I am so sorry about your brother , its so hard to watch it happening to someone close to you

Yesterday had a boot fitting at hospital , so hope it will help when they finish it , got back manage to get into house , but live upstairs & part has stair lift & then steps , which I endded up falling & could not geyt up until ambalance crew arrived hours later , I am sore & need to change what we do here ,

guys take care & dont fall , my lesson of the week
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Date: 20.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Oh Colin, I do hope you are ok. That's the problem that I have, if I fall I can't get back up. Did they take you to hospital? My sister-in-law is moving to a rented bungalow on Saturday and going to sell her house after xmas as she can't get to her bathroom or kitchen as they have steps.

My ankles have been really sore tonight, I had hoped they would have injected them yesterday but will have to wait now to see what they are going to do. Thanks for advising Colin.

Take care and stay safe xx
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Date: 20.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi guys, sorry you didn't get much help Lucy. Ostearthritis is well known for spurs I had some shaved from my spine and my lasted ct scan shows I have more. I think you have to go along with what ever they think is best. I would mention what Colin suggested because a fused ankle could be the answer.
I am so sorry about your brother. It is not nice watching them. I really feel for you.

Mum has been in hospital for 8 days she had fluid on the lungs. Her dementia was made so much worse she was so confused about where she was. I got a phone call to say they were sending her back to the care home this evening. I said what are you talking about she hasn't even been out of the bed what happened to the physio she needed to get her on her feet again. The Dr has discharge her came the reply.
What can I say they had made their minds up.

Colin falling over is so bad for us no one realises how much it hurts. I hope you feel better soon. Lets hope when you get your boots they will help you. It seems like the last week or so has been pretty awful for us all.
Well lets hope it gets a bit better us soon.

By the way Lucy it is frosty and cold down here as well. I am fed up with winter already.LOL
Take care x
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Date: 21.11.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois
I would ask question about why they are sending your Mum back to the care home , expect its about beds & getting the ones the can out

My Mother-in-Law they sent her from the big hospital in Cornwall to a small local onee & then sent her to a care home knowing she only had days to live , her room was 4 walls & a window she could not see out & only big enough to get a bed in

Make a fuss & dont let them push you around , if they think she is getting better OK but dont trust them or there motives & your Mum only has you to stand up for them

btw two days on I am felling a bit better but still not over falling
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Date: 22.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Colin, good to hear you are feeling better it has been a long time coming.
Colin take extra care walking around. Just dont fall. Lets hope this will be a turn around for you.
Colin I am pretty strong but yesterday I saw Mum and she was crying in pain. The care home were doing everything they could. She has bed sores. They got the Dr to look at her today he gave her a better cream for her skin.
Yesterday I looked up at my younger brother his face told me he wasn't coping
and my daughter looked so sad. I walked away and broke down. The first time I felt I cant cope. I pulled my self together and when they had tucked Mum up in bed I gave her a cuddle.
The carer called me last night to say she slept for hours and they woke her she ate and had a drink. She went bavk to sleep. The phone call was great because I was stressed because Mum refused to eat or drink. So at least I slept a bit.
I am sure they needed the bed but she is being checked every 20 minutes so I think she is getting better care were she is.
The hospitals are so busy I know this but the lack of care for the elderly is a disgrace.
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Date: 23.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 24.11.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois , I have spent a few weeks in hospital over last five years , the treatment of the eldery is disgraceful , if they cant feed themselfs they are going to starve if the dont have relatives to help them
the hospital will make a token effort to feed them but give up at the earliest chance , one man they starved for three days thinking he was going to have a hip opperation & then changing there mind , endded on critical care ward
Its realy had on the family with someone with dementia , you feel helpless some times , your Mum will be better & safer out of hospital which is wrong
take care & make sure you look after yourself
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Date: 24.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Thanks Colin. I feel a bit easier now my Brothers have visited for two days to give me a break. I am going to visit tomorrow.
She is getting much better care in her care home. I am hopeful when I go there she will have improved.
It is so nice to be able to chat with people that understand.
I hope you are still on the up.
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Date: 26.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Guys, Sorry to hear about your Mum Lois, I know when my brother was in hospital with a chest infection they didn't care for him the way they should have. They put a catheter in him and the care home were annoyed at them doing that, so perhaps your Mum is better back there. I hope things improve for her soon.

Hope you are managing with the boot, Colin, and hope it is helping, it may take a bit of time getting used to it.

I don't know whether I am coming or going at the moment as I have my little grand daughter staying with me, her Mum is in hospital, but she keeps me going as she is a little chatter box.

We went to see my bother on Sunday and took him out to a hotel for afternoon tea and a wee drink but I can see him deteriorating every time I visit.

Take care xx
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Date: 27.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, we are not called the sandwich generation for nothing. Looking after the older ones and the little ones.
I hope your daughter is better soon. I bet that little chatterbox keeps you smiling.

Sorry to hear your brother is not doing so well. This dementia is just bloody unfair on everyone.
Lucy make sure you take time for you.

I felt terrible last week and stupid for breaking down in front of everyone. I sm sure deep down I needed to let it all go.

Lets hope Christmas puts us all in a better place Colin you are included.
Speak soon x
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Date: 27.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, Don't worry about breaking down, no shame in showing that you care an d this dementia is a stress on everyone, it isn't nice to see loved ones suffering.

I can't believe how Christmas is only a few weeks away.

Oh there is a program on about arthritis so I will go and see what I can learn lol

Keep well xx
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Date: 28.11.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, thanks it is so helpful when you and Colin understand first hand.
I am off to see Mum and then to do a bit of Christmas shopping.
I hope the programme is helpful.
xx
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Date: 30.11.2019
From: lucy

Subject: Re: Hi Lucy Colin

Bumping up....Hope you guys are doing ok xx
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Date: 01.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Doing good xxx bumping up
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Date: 01.12.2019
From: lucy

Subject: Re: Hi Lucy Colin

Pleased to hear it Lois. It is freezing cold here tonight, back to scraping the ice off the car (well poor husband does it) Going for my infusion on Friday all going well then think I will hibernate until winter is over lol. Would be lovely to go somewhere warm.

Take care and keep warm xx
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Date: 02.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Im with you on the hibernating. It is cold here and I hate the winters now. It would be nice to go somewhere warm maybe next year?
It is our 50th wedding anniversary next May so we debated a new car or cruise. We decided new car and lots of short break holidays over here. So many places we want to see.
Sometimes we have to do the sensible thing.

Sitting by the log burner hubby making dinner life is good. Shame about the back pain. LOL
Take care and keep cosy and warm
xx
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Date: 02.12.2019
From: lucy

Subject: Re: Hi Lucy Colin

Oh that sounds Lovely, Lois. I have what looks like a real fire, it has smoke and flames coming from it but no heat, so not as good as a log burner but nice to look at.

50 years married, quite an achievement, especially nowadays, we are 45 years married this month. Could have done a couple of life sentences in that time lol.

My ankle is still very sore and I am hobbling about, it's very painful on my shin and quite hot, i'm surprised they are saying it is Osteo arthritis so who knows.

How are you Colin? Have you now got the boot? Hope it is helping xx
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Date: 03.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, I have osteo and my knee swells up and gets really hot. I can't tell which arthritis plays me up RA or Osteo they are both painfull. My spine is osteo and it is worse than all of it.
I hope your infusion helps you.
Your fire you have sounds cosy.

45 years congratulations.
Xx
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Date: 03.12.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi Guys ,

thinking 50 & 45 is a bloody long time , we are newbees at this , at 38 years next feb ,

Lucy hope the infusion goes well , that was the only thing that ever worked for me , as for your ankle dont take to long thinking about getting something done , it can get worse & go wrong

lois , new car sounds good & those trips away , make the best & enjoy thing

as for myself , I should have had my eyes checked for glaucoma yesterday but could not get out the house , we are trying to get someone to help us to make wheelchair access , taking the steps away & putting in slop , had a visit from our GP , told us to remeber ZEN like realy WTF is ZEN !!!! our surgery gone all messed up
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Date: 03.12.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, Yes, you are just an apprentice at 38 years, lol, and it's hard to believe it is 45 years, where has all the years gone I often wonder.

The strange thing is my ankle doesn't feel too bad today but it seems to have moved to my shin, I can hardly walk today with the pain up my leg.

Would the optician not call to see you, Colin? I often see advertised that they can make home visits. Hope you get the wheelchair access sorted soon. My sister in law had been moved to a bungalow in a different area but at least she has no steps to contend with now.

Thank for that information Lois, I didn't realise that osteo caused inflammation too. Just wish we could get a taste of no pain, even for a day xxx
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Date: 03.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin,specsavers do home visits at no extra charge for people unable to get to them. ZEN as in what meditation moving the furniture around for good vibes. I'm with you wtf.
Getting a ramp put in sounds a good idea.

Lucy glad to hear your sister in law is in better accommodation.
Went shopping for a few last bits today and came home I needed pain meds and I will have to go again now. I am trying to go when its not busy. Nearly done.

Take care xx
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Date: 04.12.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois , I know specsavers do home visits , but I need my eyes checked , they put drops in so they can photo the back of your eyes , do periferal checks & see a eye consultant , they dont do eye test etc , some of the test can be done at specsavers but not all

as for the bloody GP , they all think just move house , its not that easy , 35 years we have lived here & a huge house full with stuff/crap or anitques/collectables (inlaws were antique dealers) its just gonna take time & cant find anywhere that would suit our needs + the fact I cant do anything
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Date: 05.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin i didn't realise you needed more in depth treatment at the Opticians. This must be so annoying for you.
Do you think Occupational health or your Physio department could get you help with the slope. It just seems ridiculous that they and your GP know you cant get out and they are just ignoring it.

Moving is stressful I moved 6 yrs ago and swore I would never do it again
I could imagine how difficult it would be for you.
Take care chat soon.
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Date: 06.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up.
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Date: 07.12.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Guys, Hope you are both doing alright. I went for my infusion yesterday and told them about the pain going up my leg, they sent for the nurse in charge as the nurse thought it could be cellulitis but I said no it isn't, it does feel hot but not like cellulitis, anyway the head one agreed and the infusion went ahead but the pain in my leg is awful, I can hardly walk, I asked if i could also have a steroid injection but they said because there is a bit in infusion then no. I thought it could be coming from my ankles but it's right up the centre of my shin.

Have a good weekend, at least it is dry here. xx
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Date: 07.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy i hope your infusions helps the ankle and shin. Have they not offered an x ray on your shin?
Put your feet up as much as you can.
I hope your daughter is out of hospital and doing well.

I have a lot of back pain still. I guess this is what it is going to be like. I am going to just get on with what I can do and what I cant do just let it go.

Take care. Xx
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Date: 08.12.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks Lois, They did a scan a few weeks ago on ankles and said they are damaged with OA but at the time there was no pain in my shin> I had to get my husband to get my zimmer out the garage this morning as it is so sore I can barely stand on the foot. I hate having to use it but the walking stick wasn't enough.

My daughter is doing a bit better but I still have my little grand daughter with me, not ideal when i'm struggling myself but love having her.

Sorry to hear that your back is giving you bother and all they probably offer is pain killers. You are right, just do what you can and don't over do things. xx
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Date: 09.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, lets hope the infusion helps you. Take time to rest those feet I know thats difficult with a little one to take care of. I bet she makes you smile and laugh a lot best tonic in the world.
Glad to hear your daughter is on the mend.

I am taking gabapentin for my back it helps the sciatica but the back pain is as bad as ever.
Both of my sons are developing back problems and I worry for them.

Well Christmas is so close now. Are you ready?
Take care x
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Date: 10.12.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, I called the helpline this morning as I can't go on this way not being able to walk so they said to go in and see a consultant at 1pm, well we went in and it was a trainee doctor and not much help, he took some blood and sent me for an x-ray and then said to go home and come back tomorrow, I asked if he was joking, I said I can hardly walk and he said well I will have to speak to the consultant and see what the blood and x-ray says before we can give you anything. He said he would call me in the morning. I wasn't impressed as it was such an effort to get there and the rain was pelting down and he looked liked he couldn't be bothered and not a good attitude.

We do worry about our kids. My other daughter is away to the hospital tonight with my 11 month grand daughter as she had a very high temperature and called NHS helpline and they sent an ambulance and when she got there they said probably a viral infection and sent her home but this afternoon she wasn't good so she took her to doctor and they have sent her back to the hospital, so a worry waiting here and not being able to be of any help.

I am not ready at all for Christmas this year, with so much going on I could put it off for a month or two lol. I've not managed down to see my brother for almost 3 weeks and don't think he understands how difficult it cam be.

Take care and speak soon xx
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Date: 10.12.2019
From: Lois

Subject: Re: Hi Lucy Colin

Lucy, i just have lost a lot of faith i the nhs it is so streched. I feel for you constant pain is soul destroying and they have no idea. I can't believe they got you to struggle there and sent you home no better off.
I hope the news is good on the little one. The worry never goes away.
It is hard when you can't visit my mum doesnt understand that when your sick you cant. Your brother will be ok when you can manage to get there


We are at home for Christmas with just my daughter this year. A quiet one. Saying that I have no doubt during the day the numbers may swell.

Take care chat soon
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