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Date: 14.06.2019
From: lois

Subject: Hi Lucy Colin

I asked the moderator to remove all the dodgy ads as they had added loads more. They removed us as well I don't remember any of us saying anything Dodgy. LOL

Lucy sorry your visit wasn't very good. Have they discussed with you what may happen after the two weeks is up?
Lucy if I can help with any tips just ask. I am sure the North and South work pretty much the same. (pretty useless as one another)
Joking aside ty to have a good week-end. speak soon
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Date: 15.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

I lois , dont worry if they removed anything else , I am pretty dodgy , or so I am being told ,

I am having a good week , new (very old ) car , well bit newer than last one we had for 9 years but it works & I will be able to get in it + getting a new chair , one of those that lifts my old worn out joints

hope you are ok & getting on well
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Date: 15.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Not sure yet Lois, the social worker was meant to go and see him during last week and she hasn't so not sure what happens come Friday. I don't have much faith in her at all.

That's great, Colin, about getting a new car, well even if it isn't brand new, as long as you can get around in it that's all that matters and the chairs are good, I have one too and also a bed that lifts up too, oh and a higher toiler seat lol.

xx
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Date: 16.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin glad you are having a good week.anything that is going to help you get mobile and out and about is good.
The chairs are great my aunt has one she loves it. Good luck with it all.


Lucy you can ask for a new social worker.I changed Mums in March.
They seem to be leaving it a bit late if they intend giving your brother more care time. Maybe you might have to call and just ask what is happening.

Take care all speak soon.
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Date: 16.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Just thought I would shift our post to the top.
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Date: 16.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

They don't take the hint, Lois. Why on earth are they on an arthritis site? so annoying.

I will be calling the social worker during the week, so frustrating when people don't do what they should be doing.

I've been in most of the weekend as not feeling great, i think it's a mixture of the cold and a bit of a flare as feeling so sore.

Take care everyone xx
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Date: 18.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

I am off to the eye clinc today again , been like second home for me of late , had problems with scleritis when they changed over biologics & now have a ulcer on my eye so got 5 or 6 drops to put in my eyes

hope u guys are good , take care
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Date: 18.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

That's not so good, Colin. I hope you get it cleared up soon and keep using the eye drops.

I'm not feeling good at all today, I'm thinking I may call and ask for a steroid injection. I've had a cold or virus but I think a lot of it is coming from the RA and my ankles are so painful, can barely stand on my feet and shoulders sore too, I honestly think stress triggers this.

How is the weather at your end, Colin, we have had an awfully lot of rain although it's dry at moment but i'm still using a hot water bottle at night and this is June too.

Take care xx
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Date: 19.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, just been to see my mum. My hubby is so quiet usually but to-day he lost it big time. My mum hasn't had a shower since she came home last Thursday. She is incontinent let's leave it there. I have never seen him so angry. I have been in touch with her social worker waiting for a call back. They have changed the care company and this one is clearly not working. The better staff have left and not replaced. So standards are dropping.
I am going to see if I can get her moved.

I am not surprised you feel unwell Lucy stress is a big factor for us. I am in trouble this week. This weather doesn't help either.
Take care

Colin your eye sounds really sore I hope they get it sorted for you. All these drugs take there toll on us but what can we do. Take care.

Off for my scan on Saturday. Hoping for good news but is doubtful
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Date: 19.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

That's the same reason that I lost it with the social worker, Lois, and I called today and of course she was out and hasn't bothered to call me back and I am going to see my brother on Friday and I know he will be expecting me to take him home but I have a feeling she will want him to stay there as it will make her job easier and without carers he can't go home. If I had power of attorney it would have made things so much easier.

Hope the scan goes well, what are you getting scanned? I went for one a few weeks ago for osteoporosis and surprisingly it was normal.

Take care and lets pray for some sunshine xx
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Date: 21.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, the safeguarding team have got involved because the Paramedics reported she had an untreated back ulcer. Their documentation is below average.
I am waiting for a meeting in the Hope's of her getting a move with more care facilities. I have no idea how long all this is going to take. Between the family we are visiting every other day so that will keep them on their toes.

I am having a spinal scan. I hurt myself trying to get mum out of the car. They suspect another prolapse disc. I am worried because I have had a disc removal before and surgery is the last thing I want.

On a brighter note we have blue skies and a strange yellow circle I think they call it the SUN. This keep care x
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Date: 21.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Lucy, social services are a nightmare for calling back ring again. I had to ring three days running before I got a call. They are really busy but for me I am only concerned for Mum and you for your Brother. This is exactly as it should be.
Just keep calling until you get your answers. They should have sorted all this by now.
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Date: 21.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois,

Sorry to hear that your Mum has a back ulcer, that sounds so sore, poor soul. A lot of the things that are happening are caused by neglect. It's not right that they get away with it.

Oh I hope the scan is normal, I wish I had a magic wand and could wave all the pain away from us all.


After two days of calls and emailing I got an email last night to say she would like him to stay until she has spoken to the mental health doctor as on his last report it was said that he had capacity and this is debatable. I am going to see him today so I hope he is agreeable to that as there is no care plan in place if he goes home. I have booked a hotel for tonight as it will save the drive home tonight and I can see him again tomorrow and hopefully take him out somewhere. The forecast tomorrow looks better.

Have a good weekend
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Date: 24.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi Lucy , the words capacity fills me with dread , the hospitals etc just seems to use it to how it suits them , we had problems with my late mother-in-law , they dont care about the carers

it comes down to can he look after himself , & be safe , most things can be set up in a home or flats where there are someone on call , we kept my Mother-in-Law at home to long , she needed 24 hour care & was awake most of the night & only the last three weeks of her life did she go into hospital & home , its very hard on the family looking after them
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Date: 24.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin. You are so right. At the moment I don't know what is going on. The social worker hasn't been in touch so he is still in the care home and to be honest I really can't see him getting home as he is quite confused. I am so disappointed in the care he received at home (I should say lack of care) if the proper care had been on place he may have managed at home but he wasn't being looked after at all. When he was at home he was going out and leaving his door unlocked and the same at bedtime. He wasn't even sure where his light switch was. It is such a worry though. The care home isn't perfect but at least he has people there that are hopefully keeping an eye on him. Hope you are doing ok, Colin x
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Date: 25.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi, well mum is back in hospital she had a fall and the staff left her on the floor 5 hours waiting for an ambulance. They are now wanting to talk with me because I have complained as well.
My mum had a blood transfusion because she was so aenimic. This is what was causing her falls. I saw her later that day and she looked so unwell.
She may be 93 but she deserves to be treated better.
Colin and Lucy it is so hard to be left to deal with the unknown this is the first time I have encountered Dementia and I hope it is the last time.
Lucy good luck with it all.
Just waiting on my ct scan results.

Take care both x
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Date: 26.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Sorry to hear about your Mum, Lois. That is a terrible time to wait for an ambulance, you would think at 93 she would have been a priority case. I hope she is getting good care at the hospital.

Hope you get good news with the scan.

I hear we have to get some really warm weather over the next few days. It will make a change and be nice to sit outside.

I had a call today from my brother's friend, he was up visiting him today when the social worker came in, she told him that he will get sent home once they get a new care plan in place for him, that is a worry as he really isn't fit to look after himself, will just have to wait and see what transpires.

Take care everyone and I hope your Mum improves soon, Lois. xx
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Date: 26.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

I know but I don't blame the NHS what can they do no money not enough hospitals.

I hope your brother gets the care plan he deserves. They should be involving you how can your brother answer the questions and know whatis best for him. I go mad at home about them questioning Mum. She has no idea what they are asking her
I am waiting for a call about what they are going to do about mums care.

Lucy I hope the sun comes out these grey skies are making me miserable SAD sufferer. I don't mind cold rain snow just grey skies.
Take care speak soon
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Date: 27.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Just bumping up
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Date: 27.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy & Lois I feel for you guys , my late father-in-law was not that bad & we could work around most of the problems he had but my mother-in-law was different & alot depends on the personality

twice we was forced by the hospitals to have her home , it is such a commitment to look after someone 24/7 , they did give us three days a week night sitting , but my wife would be up 5am & my son going bed after 3am

Lucy dont wait and see what transpires , you cant trust them , they respond to who shouts the loudest , the work capacity is change to how it suits them , dont offer to have him home , it seems cruel but you would never cope , got yourselfs to think of
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Date: 27.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, His friend called me today to say that he went to see him at the home today and he wouldn't speak to him, he is very angry that he is still in there and wants home. I called this afternoon and the nurse that I spoke to said he doesn't want to be there so it makes things very difficult now especially when they are saying he has capacity, so he could really leave if he wants to. The social worker seems to be ignoring me, It would be a lot easier for us if he did stay but if he hates it then it seems cruel to leave him there. she hasn't replied to my email and doesn't return calls. I was hoping he would have settled and if not then she would have had a care plan in place for him.

How are things with your Mum, Lois? Any word on your scan? It is a scorcher here today, really warm. I have just stayed between the house and the garden as too warm to do anything else.

Have a good weekend xx
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Date: 27.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin you are 100% right. I went to see my mum today. Her consultant was there I told him my concerns and I was waiting on Social worker. Guess what this afternoon I get a call to say they have found mum a three week stay in a care home no charge and she will be accessed there
AMAZING sometimes you just have to bite the bullet and go to the top.
Not saying all will be straight forward
Lucy you can speak for your brother believe me they will leave you with it. You need to know for his sake what care plan they intend doing. Ring and ask who you can make a complaint to. It is so hard when you love someone to be hard. Lucy my back issue is because I was stupid enough to say I will take her home from hospital. She slipped getting in the car I caught her and new things had gone wrong in back straight away. Still waiting on results.

I am 68 now and feel it lately
We just take on far too much as Colin said and we pay the price.
Take care the weather is great today.
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Date: 27.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Guys I do feel for you , its never easy

Lucy , one of my older brother has dementia , over fifty years ago he had a accident on a push bike when he was a young lad , endded in a coma for two weeks but was left suffering epilepsy , as a result of drugs & epilepsy he has dementia , he cant stand the noise from his grandkids & goes into his room , its never easy & such a shame

we found it very had with my mother-in-law , my Wife & Son was at the wits end , no help from social care , she refused respite & its all about her , not saying your brother the same + your health not great , think hard before & get a exit plan with the social workers

Lois , hope your back is better , & with some good sunlight will make you feel better
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Date: 27.06.2019
From: lucy

Subject: Re: Hi Lucy Colin

Colin, My brother has never married and always been on his own and likes his own space so I suppose being in a home is especially hard for him. He has had a few bad falls probably because of alcohol and it may well have contributed to his problems with dementia. I am at my wits end wondering what is best for him and even thought of bringing him to stay with us but after reading your posts I am wondering if this would be taking on too much as we have our own health problems. My husband has Parkinson's disease but it is hard travelling to see him every week and beginning to wonder if it would be better having him here,

Hope your Mum settles in the care home,Lois. xx
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Date: 28.06.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , my late Father-in-law had Parkinson's , his GP knew he had it by the wat he walked/shuffled into his surgery , its a horrible illness , he also had mini strokes epileptic fits & after he died we found out he had Lewy body dementia , within six months he would not have known us

he was never a problem caring for , its non of my business telling you what to do , your husband will need some help & get attendence allowance for him , I do feel for you , take care
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Date: 28.06.2019
From: Lois

Subject: Re: Hi Lucy Colin

Lucy enquire about assisted living. It worked for mum. I guess Scotland would work exactly the same as down south.
He would be allocated somewhere with 24/7
carers on site. He would still be able to retreat to his own space. Mum had a one bedroom purpose built flat with wetroom.
This scheme is co run with local councils. His social worker can help you with this. It can be done. I feel for you so much.
Mum will probably be going next week when she comes out of hospital.


Colin it is a shame your brother retreats from the grandchildren. My mum used to do the same when mine visited. It just got too much for her. I found mum retreating more and more to her room hard but then I realised her bedroom was her sanctuary.
Take care.x
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Date: 01.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

What a cheek they have, bad enough using our site but now they are onto us. lol. Perhaps they think if we buy their counterfeit bank notes we will be cured. We could go and live in the sun by the beach if we buy enough.

Hope you are both doing alright. Have you had your scan results yet, Lois?

I can't get rid of this virus or whatever it is that I have so i've made a doc's appointment for tomorrow just to check that it isn't in my chest.

Are you still on any of the biologic drugs, Colin?
How is the leg ulcer? Hope it's a bit better and your eye. xx
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Date: 02.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , I should be changing biologics back to the tablet one I was on last year , done little for RA but kept scleritis under control (eyes)

ulcer are not bad justa shame everything else is knackered , wont do list , post will be greated that the stupid scam post

hope you are ok , & hope your brother settles in somewhere btw dont listen to me , do what you think is right , we did not have a chioce because they decided my mother-in-law had capacity , second time she wanted to stay on the ward which was not what they planed
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Date: 03.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi just a quick post. Hope your brother is doing ok Lucy.
Mum still in hospital long story. I am so stressed at the minute.

Colin i wish you well and hope you get to where you want to be. I have stopped all my meds after a long chat with gp. I am coping with it so far and feel better.
Speak soon take care.
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Date: 04.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Just bumping post up. I am not selling anything honest.
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Date: 05.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Guys,

Hope you are both alright. I've had some sort of virus, still not feeling great as coughing a lot and hubby has it too. I've been given antibiotics so if no better today I will start taking them.

Are you having sunshine where you are Colin? Do you live close to the sea? Can't remember if you said it was Cornwall. It is dry here but really doesn't feel like July, last night was quite chilly.

Hope you Mum is a bit better, Lois.

Have a good weekend xx
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Date: 05.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

bumping up
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Date: 05.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , we are on the west coast of Mid Cornwall , Meva & Charlestown where they film Poldark is only a few miles away , I am hoping to get out next week & try to find somewhere to see & here the sea

the OT I seen was very good but nothing has happened since , still not started my biologic , they are not a patch on yours , somehow need to lose weight & drugs & be healthy to get my joints done
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Date: 05.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, That is a lovely part of the country where you live and your weather is always warmer than ours here. I love the sound of the sea.

I've had an awfully lot of rituximab over the years and don't think it is working as well anymore plus before I seldom had a cold and now when I get them they seem to linger on. I've put two stone on since starting it, not sure if it has anything to do with it, maybe too many glasses of wine lol

Have a good weekend and take care xx
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Date: 08.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , the grass is not always greener & most the anti-tnf are crap , look at your other DRAMD first , you can always go back on Rituximab or you can down here , hoping to get out tomorrow & over next few months see if we can change a few things to make it easier to get out the house

next plan maybe weight loss surgey ( the boss is not kean on the idea !!! )
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Date: 08.07.2019
From: lois

Subject: Re: Hi Lucy Colin

Hi, Colin and Lucy,
I think all the pills make weight gain a nightmare. I came off all my pills and 10lbs came off straight away. I have lost over a stone now. I would like another stone please but I think I might have to work hard for that.

My mum is in a care home being assessed and to-day she had another fall and went to A&E. They asked me to take her there but although I felt bad I said I was out. I just think they need to see that without my input she cannot care for herself.
The hospital called and said she is fine and going home.
I am learning to toughen up otherwise I will be back to square one. I do feel a little bit bad like I am ignoring Mum. I have visited twice she has only been there since last Thursday. I will pop in tomorrow to check on her.

How did your brother get on Lucy.
Hope you and Hubby are feeling better. I will try to blow some better weather your way.

Colin I didn't realise you lived in Cornwall one of my favourite places Devon and Cornwall was always our holiday destination when we were kids. My Dad loved all of it and would of lived there given half the chance.
I hope you got out and about and got some sea air.

Well take care x
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Date: 08.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin & Lois,

Surgery is a lot to think about, Colin, I would be trying all other options first, it's hard when you have been on steroids as i'm sure they will have contributed towards it. I went for a wee swim today, I am having problems with my ankles but in the water it was fine, so I will try that and cut down on my wine.

Sorry to hear that your Mum had another fall, Lois, it is hard but I am of the same mind as yourself, I keep telling them that I can't always be there and it does put pressure on you when you have your own things to deal with. We went on Thursday to see him and we took him out for a couple of hours, we went to a hotel for afternoon tea and he got a pint of lager. Yesterday his friend took him to Ayr races, so at least he is getting out and it is a nice home, he has his own room with bathroom and tv and it is a nice big room that he has and in the dining room they have lovely table cloths on the tables, they even have a hairdresser, but he still wants to go home, we are still waiting on the social worker getting the doctor to re-access him regarding capacity, personally I think he would be safer staying there, she certainly isn't rushing for this to be done.

This is the first day in a few weeks that I finally feel as though this virus is lifting. I got an antibiotic prescription but decided to wait and see if it would go on it's own before getting it so hopefully i'm ok now.

Enjoy your days out and about Colin.

hope things improve with your Mum, Lois. xx
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Date: 09.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

well what happened was !!!! we live in a town on the south coast , & they decided we needed road works about hundred yards up the road , which means chaos , + my joints not great & my brother pulled out because his Son wants something & so endded going now where , I am very happy NOT


lois , hope your mum goes on better , its never easy but she needs to be in somewhere like that where there is 24/7 care

Lucy , think your brother getting out will help him & its a bit more like normal life , pleased your cold is settling at last

take care
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Date: 09.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Uff, same here Colin, we have a road closed not far from us and it's to be closed all week. Goodness knows what they are digging up, think it's maybe one of the cable companies.

I called today to see how my brother was as it is going to be the weekend I think before we can get down, they said he is sitting in his room all the time and doesn't want to come out for meals or socialise, he has told me he doesn't like to be around the type of people that are there, some do look quite bad.

Going to go to bed shortly, hope you are both sleeping alright. Night night xx
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Date: 11.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 11.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Just a quick post. Mum had some glue to a cut on her head. She seems ok and isnt to bothered about it. She is more bothered she cant get her hair done. She is still bothered that her hair must be done by a hairdresser every week.
I am shattered been gardening all this week. I love gardening I just let the world go by when I am working in the garden. Take care
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Date: 13.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up.
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Date: 13.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi guys. Just popped in to say hope you have a good weekend Off to see Mum shortly. Then a bit of down time with my daughter shopping. Maybe a coffee or two.
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Date: 14.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

You have a good weekend too Lois, you to Colin. Hope you Mum is improving, a good sign if she is bothered about her hair.

I am going to visit my brother this afternoon, we are going to stay for a couple of nights in a hotel close by and that will allow us to see him tomorrow and Tues as well and we can take him out.

I'm thinking I should have taken the antibiotics as I'm still coughing, but I have my blood to get checked next week so would prefer not to if possible as think they can alter the readings, I guess an infection can to.

Oh and it's a lovely sunny day here..what a difference it makes to see a blue sky xx
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Date: 14.07.2019
From: lois

Subject: Re: Hi Lucy Colin

Lucy, hope you have a few good days with your brother. Staying at hotel is a great idea it will take some pressure off you and hubby.
These summer colds and coughs just hang on forever.
I am also reluctant to take to many antibiotics.

I saw mum her dementia is worse every time I go. I should be hearing from her social worker next week. I am trying to stay positive.
Lucy enjoy that sunshine and blue sky. x
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Date: 19.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
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Date: 20.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

The weather was lovely last weekend and we managed to get my brother out which was nice. I got a call yesterday from the home to say that the doctor called in and he has been deemed as not having capacity now, I don't know how he will be when I next see him now that he won't be getting home. I just feel so sad for him. Hope your Mum is doing better, Lois.

We have the rain back and I have a funeral today, my husbands niece was found dead at home, she was just in her forties, neighbours heard her cat crying and called the police.

Take care xx
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Date: 20.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys ,
Lucy sorry for your news , but maybe for the best for your brother , I hope he gets to like it there or somewhere he likes , You will fell very guilty not having him live with you but it would be hard plus he is not getting any better . My father inlaw was never any problems , he short term memory was very bad & we had to write down how to use the TV , my Mother-in-law was all about her & she could not think of anyone else , we had carers in 3 days a week because she needed around the clock care
Some people get angry , like my brother who is big & 6ft tall , can't stand the noise of his grandchildren & stays in his own room most the time , you want them to have some quality of life but to be safe at the same time

I am sorry for your loss , that is no age , & cant imagine how her family is coping
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Date: 21.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, I don't think he could have managed alone at home so it is probably for the best and I have my little granddaughter here a lot and although he enjoys seeing her I think she would have been too much for him and to be honest I don't feel able to take on anymore stress.

Hope you are doing alright, Colin. How is the new car? I hope you are managing to get out and about a bit, especially to the coast. That's the one benefit when we visit my brother as it is so close to the sea and it's lovely to go and sit at the promenade (weather permitting)

Take care x
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Date: 21.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi lucy, firstly sorry for your loss.So young.
You will have peace of mind now your brother is sorted. He will settle bless him. You are doing everything right. We cant deal with everything on our own.
My mum has had a second fall. Nothing been said so far looks like i will be chasing everything up again.
I am taking a lot of deep breaths a d counting to ten

Got a call from Dr surgery my scan results are back and need to see my gp.
Oh great so can i book an appointment well can you phone back Tuesday and we will see if there are any appointments.
Sorrry did I miss something i thought they were calling to make a appointment. Oh well I will ring back then.

Colin I hope all as ok your end.
Take care.
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Date: 24.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Guys, It is so warm here today and seemingly tomorrow has to be even warmer. It's hard trying to sleep as I keep waking up covered in sweat. Oh i'm never happy lol.

Did you manage to get an appointment with your doc, Lois? Imagine calling you to make an appointment then telling you to call back as they didn't have any.

I got a call from the care home yesterday so they have moved my brother to a downstairs bedtoom with access into the gardens, seemingly he is much happier, I haven't seen him since Sunday but was told he was at an art class today so at least things seems better with him now that he has been moved, he didn't like being amongst the bad cases so now he is with ones that are frail.

Take care in the sun and keep hydrated. xx
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Date: 25.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy,
So glad your brother is settling more. Must be a bit of relief for you.

It is sweltering down here. Hard to keep cool.
I have drs appointment in August. It will be here soon enough.

I have a meeting tomorrow regarding safeguarding the paramedics raised.
Then on Tuesday another meeting at Mums care home to decide where we go from here.
I know what I will be saying she needs to be in full time care.
I will let you know what happen.

Stay safe in this heat everyone.
reply | back to forum

Date: 25.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois,

It has been so hot here today again, I am sitting with a fan on beside me. I took my little grand daughter for new shoes today, at least the shops had air conditioning. I shouldn't complain though as the rain is due back at the weekend.

My hips and ankles have been so sore, I have to use my stick now and even that is a struggle to walk.

I hope things go well at the meeting tomorrow, Lois. Your Mum is a good age and probably would be better with full time care, it becomes a big worry when we don't know if they are safe.

Enjoy the nice weather but stay in the shade and plenty fluid. xx
reply | back to forum

Date: 26.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy the meeting went well mum is definitely going to stay permanently in a care home. Thank goodness that is settled.
The heat yesterday was unbearable hardly slept for two nights. It is cooler tonight so fingers crossed. My feet are tap dancing on there own I think its the humidity. First time really bad since I dropped the meds. I will need to wait and see if I can stay off meds.

Sorry you are struggling with your hips and ankles. I feel for you
Take care and rest up. X
reply | back to forum

Date: 28.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, Glad the meeting went well for you. You will feel more relaxed now that you know your Mum will be safe.

It is much cooler here now and so much more comfortable in bed, although we had heavy rain yesterday and it's been on and off today.

Take care xx
reply | back to forum

Date: 29.07.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , pleased some things seems to be a bit more settled with your family & hope they are happy in the homes

myself , everything is the same , one day hope to get out , been waiting for the things the OT tried to sort out , ie: wheelchair & support for my ankle & knee & help getting out this house (wheelchair access) but nothing is happening but its made it clearer what I need , they are changing biologics again but taking months

trying to stay positive but its hard at times
hope u guys are good or as good as can be expected
reply | back to forum

Date: 29.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, That's a shame that you are having problems with your mobility. I remember a nurse telling me that those that shout the loudest get, I think you will need to keep at them as it isn't fair that you can't get out. I am having a lot of problems with my ankles too so I know how you must be feeling. When I have been sitting and go to get up that's when I realise how bad they are as they are so painful. You have to keep positive, as new things are coming out all the time.

My husband was trying to arrange some ramps for his sister that lives alone as she can't get her wheelchair into her kitchen or bathroom as she has a few steps into both places and she called yesterday to say she had a fall in house and was waiting on an ambulance (it isn't arthritis that she has) we heard from her son this morning that she has a fractured hip (it was her daughter that died 2 weeks ago) she is 81 so don't know how she will be.

It's been showery here all day, what a difference to last week.

Take care and hope you get something sorted out soon Colin. x
reply | back to forum

Date: 29.07.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, sorry your still not out and about. It is very true what Lucy said so keep shouting. It is hard to stay positive but we have to. It is a shambles how it takes so long and goes between many before we get the answers. OT also take their time it is just a job to them
Lets hope they are never in our situation . I hope all is sorted soon for you.

Lucy it never rains as they say your husband must be so stressed and his sister such a shame. If its any help a d comfort my mum had a break in her hip and had a replacement . She also fell. She did very well. She did need a lot of after care fortunately she was kept in hospital for most of it. Six weeks in all. Then six weeks at home for showeres and physio.
It has been lovely here today spent it in the garden
Now time for a relax.
Take care
reply | back to forum

Date: 30.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

bumping up
reply | back to forum

Date: 30.07.2019
From: lois

Subject: Re: Hi Lucy Colin

bumping up
reply | back to forum

Date: 31.07.2019
From: lucy

Subject: Re: Hi Lucy Colin

They are really taking over this site. Wonder why they think we will be interested?
reply | back to forum

Date: 01.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , thanks for the advice , it was brighter this morning but now dark clouds have come in , but it's a bit brighter inside my four walls

talked to the boss yesterday about getting help to lose weight , she is not happy but a ballon maybe which was what I was thinking anyway

seen the OT in june & not heard anything & same for a new/old biologic but chasing them up

hope you guys are ok , hate depression but suffered from it for over twenty years so nothing new just a few more pills (over the counter ones) dont tell my doc , best wishes
reply | back to forum

Date: 04.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois and Colin, Hope you are as well as can be expected.

I am quite worried as I have been coughing up blood, on Friday night i was getting into bed and coughed and was shocked to see quite a bit of blood in my hanky so I called the emergency services, they were very nice and seemed to think it could be coming from a ruptured blood vessel in mt throat so They offered to take me to get checked but I thought if that's what is was I would wait and see, I am still coughing up some blood but not as bad. I will probably try and get an appointment with doc tomorrow and go for an x-ray. I started taking tha antibiotics yesterday as they said there were some crackling sounds in my chest. I should have taken them a month ago.

I will let you know how i get on after the checks. xx
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Date: 04.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

lucy , that is not good , my sure its nothing to do with that cold you had problems shaking off

never realy had that , got ocupational asthma but even with that never blood , hope they got it right

best wishes xxx
reply | back to forum

Date: 05.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, i bet you were worried. Check with your GP and keep taking those antibiotics. Wish you well take care xx
reply | back to forum

Date: 05.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

almost BUMPED into myself
reply | back to forum

Date: 05.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Wow i guess they are finding it hard to post any where else.

Hi Colin hope you are good well what we call good.
Do you know Colin sometimes we need to do what we feel is good for us. Some over the counter products are great
I have psoriasis family thing my younger brother came across Psoriasin he bought it on line i have it mild but he was covered and nothing worked for him. He is now psoriasis free and so am I. His gp didnt want to know my Gp was interested a d said he would take a look his self.
It isnt expensive and has only natural ingedients.
So just go with it anything is worth a try.
Take care.

Lucy i hope you are ok.
X
reply | back to forum

Date: 07.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Guys, well I have the results of my CT scan of my spine.
To say shocked at the result is mild. I feel better about it today as I am unable to change it.
I have 5 slipped discs curved spine right at the bottom and OA spurs. The discs in three places are pressing on nerves causing all the pain.
This would be a big operation so for the time being I will be taking Gabapentin to turn off nerve signals if this does not work then we have to have another discussion.
To top it all mum was given funding and then it was taken away her Social Worker is now on a mission. I have told her if this doesn't get sorted and she is sent back to her flat you will be on your own and I will step back totally because I cannot agree with her not being in a care home.
I have so much going on it is driving me mad.

Just venting speak soon. X
reply | back to forum

Date: 07.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois
I feel so sorry for you results , dont have a lot of problems with my back myself but the boss does ,
that is a lot of slipped disc , not sure about the curve , the boss got hit by a car when she was young & has a curved spine & other problems because of it , would hope some physio would help you
I take pregabalin for nerve pain , it helps & would recommend it

as for your Mum , they are total bastards , know its all about money & funding , maybe a cut in there 200K a year jobs would help
reply | back to forum

Date: 08.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Thanks for your reply Colin I will keep pregabalin in mind if the gabapentin doesnt work. I obviously knew something was going wrong but I wasnt expecting so much damage. Surgery I am not ready for it would be a big one. My last back surgery was bad enough. As long as i can get around i will leave it alone. The curve at the bottom is caused through the break down of bone and disc hernia. My Gp is against phydio or any form of manipulation. I will soldier on as we all haave to

Colin I havent heard a thing about Mum yet. I hope they understood what I was saying. I saw Mum yesterday and she is decling fast bless her. It is such a cruel disease

Take it easy Colin and have a good day.
reply | back to forum

Date: 10.08.2019
From: lois

Subject: Re: Hi Lucy Colin

Hi Lucy just checking in hope you are ok. x
reply | back to forum

Date: 10.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Still waiting on x-ray results Lois, and i'm really quite worried, I have appoint with doc on Tuesday but will give them a call on Monday to see if they will give me them over phone.

Hope things with your Mum are ok.

My husband has cellulitis in his leg so haven't managed down to see my brother in aslmost two weeks, planned going tomorrow but will have to see how he is. This weather is shocking, rain, rain and more rain. xx
reply | back to forum

Date: 12.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lucy , hope the results are good , dont worry to much , it could be anything causing your problems

as for cellulitis be carefull & make sure its cleared up, that is what caused my sepsis two years ago , I was not the only one in critical care with that sepsis & kidney failer
reply | back to forum

Date: 12.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks Colin, I am going to call this afternoon and see if they will let me know.

My husband has the nurse coming in this morning as he has a wee cut on sole of foot, probably where it got in, the last time he had this he was in hospital.
reply | back to forum

Date: 12.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, it never rains hope your results are ok. I also had cellulitis and put on two lots of anti biotics and lucky for me it cleared up. Never really knew why i had it there was no injury to see.
Keep us updated.

Nothing about Mum still waiting. I am just
Waiting.
reply | back to forum

Date: 13.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

lol there post are getting even bigger
reply | back to forum

Date: 13.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 21.08.2019
From: lois

Subject: Re: Hi Lucy Colin

Bumping up.
I have e-mailed the moderator again asking to clear the posts. No response yet. This is a joke and just ruining the site. Surely something can be done.

That's my rant over hope you guys are doing ok.
reply | back to forum

Date: 21.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

lois ask if you could help them moderate as in clearing the spam post

quick update or non update , nothing much is happening , got my new biologic& doing nothing , just nice swellings on my knees , got a appointment next month to look at a brace for my ankle & calipers for my other leg to support my drifting knee

sort of last hope for my legs , there is so much wrong with them & every joint now needs surgery

anyway hope u guys are good
reply | back to forum

Date: 21.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois & Colin, Just a wee update. I got the results of my x-ray (well sort of) said there is consolidation and inflammation shown and got a call from hospital on Monday to go for ct scan next day (yesterday) of chest and stomach (that has worried me more that they scanned stomach too. When the girl called me she said consultant wanted to see scan before my appointment with him, I didn't know I had an appointment with him (they probably post appoint. I'm trying to be positive but very hard, I do feel ok and the strange thing is the arthritis doesnt feel too bad at all. Hope you both ok xx
reply | back to forum

Date: 22.08.2019
From: lois

Subject: Re: Hi Lucy Colin

Hi Colin, lets hope the brace and calipers help. It must be so annoying when things ae going so slow. Shame the new biologic doesn't seem to be helping.
I have not been taking my meds as I just don't
trust my consultant my GP is on my side, so say no more about it. Because to me that says it all when a GP agrees with you. Take care Colin and hopefully your next post will be a bit more positive.

Lucy, sorry to hear you have been left worrying about your results. Do you think you may have had a bit more than a chest infection maybe you had a bout of pneumonia without realising it.
I have to say they are taking good care of you. Chin up easy for me to say I know. xx

Nothing on my Mum still. I am just letting them get on with it at least where she is she is being cared for.

I went down a pot hole and sent the air blue I just hurt so much when I jar my back the Gabapentin only work for a short while maybe I need a better dose. My GP is ringing me Tuesday to see how I am getting on so lets see what happens.

Take care.
reply | back to forum

Date: 23.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Hi Lucy , try to stay positive , the results could be anything knowing he has not looked at them , I would be bricking it as well

lois the boss done the same thing yesterday , no blue air though , hope its feeling better today
reply | back to forum

Date: 23.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, i am still limping today. I am trying not to because its not helpful putting a strain on the other side of the spine. I sat in the sun today hopeful it might help.

I hope Lucy gets her results soon I feel for her all the waiting is the worse.
Fingers crossed her results are all good.
Take care Colin.
reply | back to forum

Date: 26.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi guys, hope your managing this hot weather. I like the heat but this is a bit hot for me.
Just popped in to see if there was any news from Lucy.
Hope all is well with you both.
reply | back to forum

Date: 27.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Lois , I am ok ish & also hope Lucy gets some good news , I am not coping with the heat , strange as I used to manage a Foundry where they cast tones of iron/steel a day

I have to get out the house next month which will be first time in months

hope you are keeping well
reply | back to forum

Date: 27.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois & Colin, Hope you are both as well as can be expected.

It has now been a week since my scan and I was going to call doc today to see if the results were back but I couldn't, I think I am frightened of what the ressults might be. I will give it another day or so and see if the appointment comes in.

Last night I took a terrible rash on my stomach and today I am totally covered in a horrible itchy rash, well it's more like big blotches, so not sure what is causing it although the antibiotics that I finished over a week ago did say to stay out the sun. I have been sitting outside the last couple of days and I did read that they can problems in the sunlight but didn't think since I had finished them it would matter. The itch is driving me mad and covered from the neck down.

Colin, I hope you get some relief soon and if the caliper helps your leg and does some benefit then it will be worth a try. What is the new biologic called?

Lois, I hope things are alright with you and hope things with your Mum works out too.

Take care xx
reply | back to forum

Date: 27.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi lucy no news is good news. My scan took two weeks before the GP got results.
Your blotches and itching sounds like an allergy. Hopefully it will go soon. Lucy I hope all goes well. XX
Colin the heat has been really over the top I dont mind the heat usually but not this hot.
I hope you get out next month and enjoy it .
Take carex
reply | back to forum

Date: 28.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks for your message Lois, thought i'd bump up. xx
reply | back to forum

Date: 28.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

I had aGp phone consultation and now I have to take 2x3.gabapentin 6 pills a day is not what I really want but to-day was better and it did make me feel a bit easier about it.
Lucy I hope you get sorted soon. Take care xx
reply | back to forum

Date: 28.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

If it helps then worth a try, Lois.

I will let you know when I get my results.

The rash is much better today, my daughter got me some antihistamines so think like you said an allergy to the antibiotics last week. xx
reply | back to forum

Date: 29.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

and was bumping up again x
reply | back to forum

Date: 30.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

All clear again lets see how long before they come back. The moderator e-mailed me to apologise for the delay. Must be fed up with it just like us


Any way Lucy glad to hear the antihistamines worked for you. I hope you get your results soon

Colin hope you are doing ok.

Off for a three day break on Monday Somerset. Staying in a realy old Pub. I just need to escape for a while. No news on Mum. That is driving me mad.
My two brothers will visit so mum will be ok
reply | back to forum

Date: 30.08.2019
From: lucy

Subject: Re: Hi Lucy Colin

oh that sounds lovely, Lois, a well needed break so enjoy, hope the weather is kind to you, it has been raining non stop here all day and yesterday too. At least you know that your Mum is safe and being looked after so try and relax and enjoy the break. xx
reply | back to forum

Date: 31.08.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guy , lol stunned to see all the spam cleared , its so nice & thanks to the mods for doing it ,

Lucy , pretty sure if anything was realy bad they would have called you by now so staying hopeful , just hard not knowing & thinking the worst

Lois enjoy youe break , think you deserve it

I am thinking I need to do something to lose weight , will talk to the boss & then do what I think is right for me , this new biologic is doing nothing to help , maybe a new brace will help but this cant go on for much longer & will take months to lose weight anyway

guys take care
reply | back to forum

Date: 31.08.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi. Colin it is hard to get motivated on this weight loss thing. I need to shift a stone at least. I did the first stone and that was it.
We cant win on this one not being able to excercise doesn't help
I do like my food as well not going to lie about it. I think we suffer enough without piling on the pounds. Someone should give us a break.LOL
Take care.

Lucy Colin is right I am sure you would of heard by now if the news was bad. It is the waiting not knowing.
I cant wait to go away just for a chill out
Went to see my son and his family for the day they were spending a long week-end break an hours drive away from us. They have 5 berth motor home. Nice bbq and then my other son popped up so a family gathering. Made a lovely day. Small things in life make happy days

Take care x
reply | back to forum

Date: 01.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up. That didn't take long did it?
reply | back to forum

Date: 01.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

More again Lois
reply | back to forum

Date: 02.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois and Colin, I called the doctors surgery today and was told that the CT Scan showed no abnormalities, I cried when I came off the phone as I was so sure it was lung cancer. I have to go in a few weeks for another x-ray so I'm not sure what caused the bleeding, hopefully just an infection. I just wish I would have called last week as they had the results back on the 27th but I was too frightened to call. Thank you both for your wise words.

I hope you are enjoying your break away, Lois. It's always good to get a change. I hope the weather had been nice for you.

It can be very frustrating trying to lose weight, Colin. Have you been to see a dietician? it is hard especially when you can't get out and about.

I know when I started the rituximab it took around 4 months for it to work. How long have you been on the new biologic? It's definetely worth trying the new brace and hopefully it will help. Try and keep your spirits up as it is very easy to get down with this disease. This may sound silly but I have started drinking a lot of water, I hardly took any before and it seems to have helped. I now keep a glass at the wee table beside me and just keep sipping at it and it can stop me eating so much and seems to help with the RA, unless it's imagination but since drinking more I have felt a bit better.

Take care xx


.
reply | back to forum

Date: 03.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

Hi Lucy , so pleased your results was good , its such a worry waiting even if you think you are ok

I been on this biologic 3 weeks but been on it before , its very easy to take being a tablet & only stays in the system a few weeks , but I need to get my steriods down & even on rituxamab I was still taking them , my crp would be 60 - 120 without them , I do drink alow of water a day but it dont help much ,

I not seen anyone about my weight as cant get out the house , my knees are the worst , & need wheelchair to get about but our place has steps & we cant get help , know we should move but been here a long time & finding somewhere that suited for wheelchair is not easy

take care & pleased for your results
reply | back to forum

Date: 03.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thank you so much Colin, you and Lois have been a good help to me with advice and I do appreciate it.

Would a dietician not be able to visit you at home when you have problems getting around Colin?

My sister in law has the same problem as she can't get around, she lives alone and has a few steps going into her bathroon and kitchen and can't get the wheelchair up or down so my husband suggested a ramp in the house. He was arranging to get it done when she had a fall and has been in hospital but getting home on Thursday, I think she would prefer to move but like you say it has to be somewhere suitable.

I really hope things get better for you Colin, have you been in touch with the social work dept to see if they can help? it's not fair that you are left to try and sort this out yourself.

Take care and thanks again xx
reply | back to forum

Date: 06.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, just back from a lovely break in Somerset.

So Pleased your results were good. I knew what you were thinking. I would have cried too. Now you can settle.

Colin why cant you get help surely they can see you cant get out of the house. They should know how bad that is for your morale.
I am not surprised still waiting on social services to fund mum.
Life is a constant strugggle for people like us. I have just given up and I am going along with it. What else can i do?

Take care x
reply | back to forum

Date: 06.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 07.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Thanks Lois, Glad you had a lovely time in Somerset. It's always nice to get a break away.

I'm not surprised that you are still waiting on social serices to get your Mums financial situation sorted. They have still not done my brothers financial assesment as social worker always seems to be off sick. I really don't know how they get away with it.

Hope you have a good weekend, at least the weather is better this weekend.

Take care xx
reply | back to forum

Date: 10.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 13.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy Colin.
The weather here is good again.
I have given up with it all. I will just wait. As long as they are taking care of mum and she is safe I am ok with that.

I hope you are both ok.
Take care
reply | back to forum

Date: 14.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , werther here is very nice , shame I cant get out at moment , but got hospital visit tuesday for ankle brace & maybe callipers for other leg , will wait & see what they offered

asked about wheelchair & they said I needed a electric one but needed to use it four times a week , anyway got myself a lightweight self propelled one cus my other one is very heavy

we should move but with 34 years of junk here & we realy like the place but still way to big for us , but cant see anywhere that would suit what we all need

lois , hope your Mum is good & Lucy hope you are keeping good
reply | back to forum

Date: 14.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin, i moved after 30yrs. I thought it would be tough but I took a deep breath chucked the stuff i had in cupboards I had not used for years. The rest just came easy. I got a charity to pick it all up free of charge. No expensive skips.
I live in a three bedroom cottage it isnt huge I have a kitchen lounge and dining room. The dining room will become our bedroom if need be. We have a toilet downstairs which could be a shower room.
Just keep looking Colin you will find somewhere. I have never looked back. This was right for me and hubby.
I hope you get the help from the hospital you need. It is about time they gave you what you need.
Take care Colin it will come to-gether for you. X
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Date: 14.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

This is becoming ridiculous with all the posts on fake diplomas etc.

It has turned quite cold here but as long as it stays dry I don't mind too much.

I sometimes think we should move and I would love to live by the sea but as my daughters and grand daughter live close by I probably won't. We live in a bungalow so at least it is easy for me with no stairs but hubby is finding the garden hard work.

I really hope the hospital can help you Colin and hope the ankle brace etc make a big difference, it isn't fair that you haven't had more help. Would you be able to use a scooter? It is a shame you're not getting out and about. I hope thimgs improve soon for you.

Take care xx
reply | back to forum

Date: 15.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, i will e mail the moderator and ask what she can do. Its a shame you are not getting the weather we have.
I love my gardening but I am finding it tough I was so frustrated earlier I was close to crying.
So get your hubby finding it hard. Is there any volunteers that help with gardening. I know there is locally to me.
A bungalow sounds ideal. I would stay if if I had a bungalow.
I feel for Colin it really is about time they sorted help for him
A mobility scooter would be good. I am thinking about one so I can still get around.
Lucy take care and stay by your lovely family. X
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Date: 16.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

They really are taking over the site Lois.

We do have quite a big garden Lois, the only people that I know of that would help do it as a business. My husband does spend a lot of time in the garden but he will say now and again it is gettting too much for him so we probably will have to get some help soon.

We are going to Ayr today to see my brother and staying over for a couple of night, it is a nice bright day here so we will get him to the promenade for a walk and then to a hotel that overlooks the sea for a bite to eat. I still have his house to sort out.

Hope you got on ok at the hospital Colin

xx
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Date: 17.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, have a good few days with your brother. I hope you find him happy and well. I bet he will enjoy his time with you. I still haven't cleared Mums flat yet.
I am suffering badly with my back so it will be waiting a little longer.

Iam glad you have better weather. X
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Date: 18.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Bumping up
reply | back to forum

Date: 21.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Lois, We had a nice time staying in Ayr and when we were coming back on Wednesday we brought him back to stay here for a few days, he went home today so we are not long back. It went well for the first two days and the weather was lovely so he sat in the garden and we had a bbq, but last night for some reason he refused to go to bed so I had to cover him up on the chair, he seemed very confused. I must admit it was hard work and I am exhausted now. It was quite hard taking him back today as I could tell he wanted to come with us.

My ankles are so sore, they are saying the x-ray showed osteo-arthritis so no point going for an infusion at the moment as it is the hip and ankles that are giving me the most bother and neither are related to the RA or so they say.

Hope you are doing alright and have enjoyed the sunshine, the rain is due back here tomorrow.

Take care xx
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Date: 21.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Lucy, I am glad you had a few good days with your brother. It is so hard when they get confused it is just easier to let them do what the like aslong as they are safe.
I can imagine how tired you must feel that was part of the reason I couldn't look after Mum any more.
I saw mum on Thursday she had her hair done in the morning and had her new top on and she seemed really happy
I took her flowers and she was made up. I felt better when I left.
I have OA in my ankles so I really understand how painful it is. My back is so bad I have forgotton the rest of my pains LOL.

The weather has been lovely been in the garden mostly. The rain is due here tomorrow
Take carex
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Date: 22.09.2019
From: Colin W

Subject: Re: Hi Lucy Colin

hi guys , I went to hospital this week , they done a plaster cast of my legs/feet to make some boots to support my ankles , the left one is going over on its self , the valgus kness they dont think they can help that much , to immobilize my leg would make me walk funny & dont think the other joints would stand it , but nice to get out the house I travel in my new car (not driving) but suffered afterwards

Lucy , pleased you had your brother for a few days , its strangee they give a home 700 a week to look after someone but thier family nothing , with my late mother-in-law we made a fuss and got care three nights a week which was cheaper than putting her in a home but still 9 hours a night at 17/hour

as for you ankle/hip strange after 20 years of RA you develop OA (same as my knees) my only advice is dont leave it to long to get them dont , you will develop other problems with skin/circulation damage & other things can go wrong because the way you end up walking

lois , rememmber one day when I & my mother-in-law was both in our local district hospital , called to see her & she had just had her hair cut , she was so pleased , it cost 8 but I endded up paying for her hair cut , but her smile was worth it & to see her happy , it was moment I did not see that often , its hard with a love one suffering , I do feel for both of you , take care
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Date: 22.09.2019
From: lucy

Subject: Re: Hi Lucy Colin

Hi Colin, I hope the boots help your ankle, I remember my mother used to say that when your feet were sore you were all sore and that's how I feel right now. Like yourself I find it hard to believe it's OA in my ankles, I am going to call and see if I can get an injection into them, I rubbed some voltarol into them this morning but need something else. I really struggle putting my feet on the floor when I get out of bed in the morning.

To be honest Colin, I'm not sure if I could have him back to stay as I am shattered now and more sore than ever. He sometimes wet himself and my bathroom floor was forever getting covered in urine. The care home want a meeting this week regarding guardianship, they were meant to sort this out a while ago and this is it just getting done now, I'm now wondering if I should just do it.
They even asked if I could pay the fees to the care home until it's sorted out, i thought that was cheeky.

That's good that your mother seems to be settling, Lois. A hairdo and flowers always cheer me up too.

Take care xx
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Date: 22.09.2019
From: Lois

Subject: Re: Hi Lucy Colin

Hi Colin fingers crossed with the boots.
Colin they would rather we struggle along so they have no cost. A smile is worth everything.

Lucy bloody cheek asking you to pay the fees. If they didn't drag their feet it would be all sorted. Lucy sometimes you have to put yourself first. When you visit your brother it will be quality time with no stress for you.

Me too hairdo flowers and cake smiles all round.
Takecare x
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