Arthritis Forum
Home.

News.

Personal Stories. Links. Message Board.  
Arthritis Forum  
Add your comments to this topic Start a new topic
Date: 28.05.2009
From: Jill

Subject: Disability Living Allowance/benefits

Hi guys

Just want to know if many of you lovely people on here that are incapacitated by this terrible disease actually Claim Disability benefit ?? or DLA Disability Living Allownance... We are all entitled to that benefit, the government allow it, so we are entitled to apply for it, it does not hurt to get a claim form and apply, dont give up tho, if the first time u get refused(happened to me) I tried again and Bingo I got what I was entitled to, over the years tho Ive got worse, and becos of that, I put in a fresh claim, and I am now entitled to the Mobility rate,(top rate) for me this is gr8 becos I cannot return to work, altho I would love toand I feel entitled to this benefit, even tho i do Not claim for any other Benefits becos my partner works, thank god, but I am entitled to it in my own right, I do not feel guilty applying for it.

I just want everyone to know, that even if they work, they can still claim and receive the DLA, I wasnt told this for years, so I am an advocate in telling everyone I come across that if u are riddled with Arthritis, R.A. that u r entitled to have it, plus more chance to get it if u r on the DMARDS...Remember WE R ENTITLED to it ok

Feel better now Ive spread the good word LOL

Take care all
Jill
reply | back to forum

Date: 28.05.2009
From: Blogger

Subject: Re: Disability Living Allowance/benefits

Lots of hoops and a medical history required to claim these benefits
reply | back to forum

Date: 28.05.2009
From: Lynne A

Subject: Re: Disability Living Allowance/benefits

Hi jill. I totally agree with you. I wasn't told about this benefit at all when I had to go off sick. As you rightly say you can aslo claim it when you are working too. If you do get DLA for mobility the component at highest level, you entitled to much more such as your car tax paid for and a disabled badge. Check out this web site Entitledto.co.uk it takes about 5mins to complete the questionaire then it well give you what benefits your entitled too, Does what it says on the can. Good hunting everyone.
reply | back to forum

Date: 28.05.2009
From: Lynne A

Subject: Re: Disability Living Allowance/benefits

Hello. Yes it is lots of hoops and hard work but worth it in the end. I found getting a professional to help fill in the form such as the citizens advice centre, greatly improves your chance of getting it, Also keeping a record of all the doctor/specialist/nurses/physio etc and put their names down on the form as references it all helps.
reply | back to forum

Date: 29.05.2009
From: J

Subject: Re: Disability Living Allowance/benefits

Absolutely Lynne, it is worth it, they make the Forms to put people offf....so many people arnt claiming what they are entitled to... for me to fill that form out, takes me over three days to write it all, Nightmare...plus I have two boys with Aspergers syndrome(autisim) and I dread filling out their forms, takes me over a week...

dont be put offf tho
reply | back to forum

Date: 30.05.2009
From: Angela

Subject: Re: Disability Living Allowance/benefits

I did apply for DLA and was refused.
Filling in that questionaire was very distressing,having to look at my condition so thoroughly.
I got upset on numerous occasions just knowing that I had to admit to my lack of ability to function normally, and how dependant I had become on my family compared to only one year ago.Then to be turned down I thought, they think I am a liar!! I know "crazy" now I see that lots get turned down but probably with feeling so low anyway, I took it really personally.
The very thought of having to go through all that again turns my stomach, but after some encouragement from family and friends saying how I should appeal, I have now done it, so I can only wait and see now.
Thanks to Jill and everyone for their imput, it is a very important subject as I had no clue I could apply either, and I wish I had been more prepared mentally for that form, I could have saved myself loads of grief.
So if there is anyone else out there thinking about applying, I hope this helps.
reply | back to forum

Date: 31.05.2009
From: Team 1 DLA officer

Subject: Re: Disability Living Allowance/benefits

It keeps more benefit people in work and makes them feel important.

Just imagine how many more would be unemployed if all the DLA officers did not have a job.
reply | back to forum

Date: 03.06.2009
From: Della

Subject: Re: Disability Living Allowance/benefits

does anyone know how soon you can apply for DLA as ive now been off work for 5 weeks and have another 2 weeks sicknote as im still not well enough and wonder if i will be able to go back at all :(.Do they write to the rhumatologist for details or the doctor as i haven't actually been given a proper diagnosis in writing but have all the meds and had a steroid injection so am being treated for inflamatory arthritis as far as i know as the rhummy did say quite a few long names i can't remember any info would be great thanks x
reply | back to forum

Date: 04.06.2009
From: BLOGGER

Subject: Re: Disability Living Allowance/benefits

Check the Direct.Gov.uk website for DLA
reply | back to forum

Date: 04.06.2009
From: Team 1 DLA officer

Subject: Re: Disability Living Allowance/benefits

3 month and likely to be infirm for 6 or more months.
reply | back to forum

Date: 04.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Team 1 DLA thanks for your info...really does help us crippplies...x
reply | back to forum

Date: 05.06.2009
From: James Purnell

Subject: Re: Disability Living Allowance/benefits

Back to work is far better for you as I am finding out now :-)
reply | back to forum

Date: 05.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

James Hi there< of course that is very true, My Brain wants to return to work, sadly tho my body does Not, so for some of us, we cant return back to work, I guess you are one of the luckyones that mb dont suffer as much as some of us, thank god, my probs change almost on a daily/weekly basis, I am totally unreliable where work is comcerened, thas y I had to give up in the first place, but U will be pleased to know, that the only benefits I recieve is DLA, the one im truly entitled to...good luck with work, hope it works out for u, let us know how u get on, id be interested...may I ask what your disabilty has been/is ?

take care JIll
reply | back to forum

Date: 05.06.2009
From: BLOGGER

Subject: Re: Disability Living Allowance/benefits

Jill its the DWP minister James Purnell who has recently resigned from Govt. He was the person that set up welfare to work but is looking for himself now :-( its a little fun
reply | back to forum

Date: 05.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

right... I know a nuthing about Politics... LOL ,except seems all the MPs are nicking dosh from us lot, the hard working class!Plus the PM is a Pompus twit!...still gotta look after my sprogs, and that is hard work beleive me, have two sons with Aspergers Syndrome 16 and 10, and an 11 year old that is a friggging nightmare as he has behaviour probs, and causes riots withing our household! hey james are u an MP? ?
reply | back to forum

Date: 08.06.2009
From: Lynne A

Subject: Re: Disability Living Allowance/benefits

Good for you team 1 DLA officer, nice to know someone out there cares about us.
reply | back to forum

Date: 08.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

wish i could go back to work i hate being stuck indoors and have commitments like everyone eles really struggling at the moment mon ey wise x
reply | back to forum

Date: 08.06.2009
From: Team 1 DLA officer

Subject: Re: Disability Living Allowance/benefits

Welfare to workm is the answer

Phone the team at Jobcentre +

You see we care that much we have a team monitoring all BLOG sites and cookies posting messages back to us to prevent FRAUD

We can also provide the sticks and zimmer frames to help you back to work.

Just ask our assessment team
reply | back to forum

Date: 09.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Really Team 1...wow that must take up a lot of your time, must get boring for u to read all thesse messages, Y does it help prevent FRAUD ?, Unless your unwell with R.A. Inflamatory Arthritis, a person wouldnt bother coming on here to whinge and moan and ask for info unless they are telling the truth!..dont get it... aLSO does that then mean, that people u have registed disabled and getting DLA who DONT come on here are looked into as possible Fraudsters becos they dont bother asking for info and support on this forum ?? Cant see how this site helps u find Benefit Spongers ? surely u see the type of messages that are on this Forum are similar, everyone looking for a cure, or an answer, or some pain relief, or a Stratedgy for coping with this Illness from one of us that has had it for years!

Thought this site was just for Disabled people supporting one another, which i try and do...and believe me, If i could go back to work I would...but dont think any employer would want me, im Unreliable with my health due to a multitude of problems and I would be falli ng asleep due to severe fatigue... so unless u have this disease how can u know by people typing a simple message on here to ask for answers are Fraudulent¶?
reply | back to forum

Date: 09.06.2009
From: Team 1 DLA Officer

Subject: Re: Disability Living Allowance/benefits

You would be surprised who notify's us of these sites and who has forgot their walking stick or scooter. Its not us but our informants. Its usually a long standing grudge, ex, jealous person etc,etc Then when it is investigated usually a small percentage lose their benefits.
reply | back to forum

Date: 09.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

LOL you r serious arnt u? so we have spyies on here? OMG if a disabled person forgets their walking stick what does that infact tell u? I need a Scotter when im in a bad way, I bought it becos I struggle very much, and on my flare ups I will use it...So that doesnt mean too much....U cant base just those things on someone that claims DLA as a fraudster! Also u do get malicious neighbours, ex's etc who inform benefit people and it isnt true, obviously different type of investigations MUST be made, not just from this Forum... I dont agree with Benefit Frauds either,it give us lot that are genuine on here a bad name, but u need concrete evidence, not just becos a person isnt usiung their Stick,or Scooter, Oh well takes all sorts I guess.... I would look into the type of Meds these Fraudsters take...theres usually a clue in there, I would of thought most people that are on DLA, take DMARDS etc...anyway goood luck in your job
reply | back to forum

Date: 09.06.2009
From: Thanks

Subject: Re: Disability Living Allowance/benefits

Hi Team 1 DLA Office

Im unwell most days with pain etc and severe tiredness, I have to go to bed, sometimes I want to go back to work, but as soon as I think that, something else goes wrong with me, How does DLA work with regards trying to go back to work, but it not working out? does working affect the DLA awarded to a person? does it go by the amount of hours a person works? Even though im registered Disabled, I would love to try going back to work, part time, maybe twice a week to begin with, do u know if or not it does affect the DLA we are given, I cant afford to not have my DLA, try a job and then go thru the rigmaroll of getting it back again...its taken me a lot of years b4 i got awarded the correct amount of DLA for my condition, only asking as you are on this forum, .. can you help ? I can ring of course the correct dept, thats if I remember

thanks
reply | back to forum

Date: 09.06.2009
From: Team 1 DLA Officer

Subject: Re: Disability Living Allowance/benefits

If you are on DLA as you claim you should know that it can be awarded indefinately or for a short while or longer period of time and can be reviewed at anytime.

If there is a significant change in your condition you have to inform the DLA office.

The information is all in the Pack

You could do some computer work as you seem efficient at putting blogs on this site
reply | back to forum

Date: 09.06.2009
From: val h

Subject: re:disabillity all?ben

hi team 1 dla office could we all have jobs logging on here, we all do it whenever having bad day would b great to get paid to do it. not a bad job we could do it from home when having good day i work part time as not to bad yet u only have to read how bad some people r how down they get with the pain and severe tiredness lfe is hard enough this is a place to get help and friendship from people who understand how it feels. i hope reading these posts helps u understand how bad life can be 4 some people so remember not everyone is trying to pull the wool over your eyes :-(
reply | back to forum

Date: 09.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Thank you sooooooooooooo Much Val.... My point exactly!! I come on here to support others and also get support that I need from time to time... I cant beleive that we actually have the DLA team watching what we type.... Like u said, I cld do that job from home too lol... Lucky ole DLA Officers that can work HUH? actually altho Team 1 DLA Officer is very nice, Ive thought about this over the say, and im not sure shes genuine. tho....reckon its a person from this forum,.. seems bliddy stooopid that they actually pay someone in the Unlikely event that there is a FRAUDSTER on here LOLOLOL, Spongers wldnt bother coming on here, they wld be trying to figure out their next SCAM!! but Val thanks for your input, u hit the nail right on the head...Jillx
reply | back to forum

Date: 09.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

LOL at U Team 1 Officer.... U really are damm ignornat arnt u... LOL... think u need re training, thank foook I dont have to deal with u if I Was on benefits.... I dont have to expalin to u anything about me, yea Im good at putting blogs on this site...thank fook my fingers still work at this time.... becos last year I cldnt type!!!! really peed offf with your crap comment...Really shows your ignorance.... I do not sit on a computer all day long, Unlike U! I need a spine op soon, and I cant sit for more than ten mins at a time...I then go and do other stuff, after all, like U I have to keep my brain Occupied, How dare u make a shite comment like that....Who the heck do u think u r...ur type make me sick.... dont ever talk to me again...your type are short sighted ignorant idiots, bet u any money your a Jobs worth!! LOL rather have all the pain I have, all the operations ive had, Id rather DIE than be YOU!!!!!
reply | back to forum

Date: 09.06.2009
From: anita

Subject: Re: Disability Living Allowance/benefits

i don't think the DLA officer is genuine so i wouldn't let them get to you, how can they find out stuff about people on here?? they only see your first name LOL some sad pathetic people about
reply | back to forum

Date: 09.06.2009
From: J

Subject: Re: Disability Living Allowance/benefits

Anita so true lol...thanks x
reply | back to forum

Date: 10.06.2009
From: Trina

Subject: Re: Disability Living Allowance/benefits

To: Team 1 DLA Officer

It has come to our attention that you have been posting messages on this board. If you are posting in a professional capacity then please email (info@arthritisforum.org.uk) me your full name and details of where you work, as I would like to contact you concerning the nature of posts you have made.

This is a space for people with arthritis to give and receive support from others in the same position, it is a place where people can speak openly and honestly about how they are feeling day-to-day. I would hate people to feel that they were being watched and may lose their benefit if they put a post on saying they were having a good day.

I have contacted my technical team and they say there is no way anyone's identity can be got from posting on this message board as people only use first names or nick names, emails are not visible and cookies cannot be retrieved in this way by a 3rd party.

If I do not receive your contact details I shall assume you are just posting to cause trouble and distress to the genuine uses of this site and therefore all your posts will be removed.

Trina - Arthritis Forum moderator
reply | back to forum

Date: 10.06.2009
From: J

Subject: Re: Disability Living Allowance/benefits

THANK YOU soooooo much Trina, appreciated very much by all of us

Jill
reply | back to forum

Date: 10.06.2009
From: NutMagnet

Subject: Re: Disability Living Allowance/benefits

Team 1 DLA Officer..YOUR BUSTED!! rofl lmao LOL
reply | back to forum

Date: 10.06.2009
From: Team 1 DLA officer

Subject: Re: Disability Living Allowance/benefits

Did you not find the information useful?
You did pose some questions and they were answered obviously not to your satisfaction.If you want open debate you should allow comments from all users good or bad as long as its not offensive whats in a name? You people have nothing to fear as you are all geniune does that help.
reply | back to forum

Date: 10.06.2009
From: Trina - Arthritis Forum Moderator

Subject: Re: Disability Living Allowance/benefits

I think it is safe to say that some of the things you said were not to our satisfaction. Your comment - "You see we care that much we have a team monitoring all BLOG sites and cookies posting messages back to us to prevent FRAUD" - was designed to worry people and make them feel vulnerable. There is no way you or anyone else can find the identity of the people who contribute to this site so why put this type of comment on if it is not just to make disabled people fear for their future financial security?

So to make my position clear - if I do not receive your contact details by the end of the day I shall remove all your future posts.
reply | back to forum

Date: 10.06.2009
From: Team 1 DLA Officer

Subject: Re: Disability Living Allowance/benefits

Goodbye from the team that will not stop us monitoring sites.

Did you not see the national TV campaign today from the Team?
reply | back to forum

Date: 10.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

See your doing it again.... U are a Nasty sod, and also a COWARD becausse u didnt give Trina any contact details....I think if you had be genuine, U would have Obliged, U didnt, so not only are u a fake, a coward, u r also the biggest loser !!!However, Im rather good at people watching, and thankgod I cant see your UglyMug, I will be able to detect who u r by your rather BORING comment Format
So glad I reported you LOLOLOL
Goodbye Stoooopid!!!
reply | back to forum

Date: 10.06.2009
From: Team 1 DLA Officer

Subject: Re: Disability Living Allowance/benefits

OK then Jill

Direct.Gov.UK
reply | back to forum

Date: 10.06.2009
From: JILL

Subject: Re: Disability Living Allowance/benefits

ok then Jill what? LOL@direct.Gov.UK we all know that name DIMBO... u havnt revealed anything we didnt already know, assuming that U r genuine...but this reply makes me KNOW that u r just a GENUINE FAKE!!! LOLOLOLOLOLOLOO LMAOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOLOLOLOLOLOL
reply | back to forum

Date: 10.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

BY the way I could take the Pee all day out of you, but becos I respect Trina and the other members on here, I will No way message u, the Forum Idiot!! by the Way your Villiage is looking for you!! LOLOLOLOL
reply | back to forum

Date: 10.06.2009
From: christine

Subject: Re: Disability Living Allowance/benefits

hi jill hope your well cant believe them posts of that idiot, how dare he, i would never wish this disease on anyone, not even him,hes a very sad person to talk like that, i would give anything for my health back,the reason for these forums is to help us, because only we can relate to the pain we are in, even though my family support me, they dont know the pain im in, only the people on here know that, what gos round comes round, and im sure it will come to him, for being so nasty, hope you read this mr dla officer, and do you realise R,A. is a horrible crippling disiese, you nasty person.
reply | back to forum

Date: 10.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Hi Christine...I reported the twat. lol... felt goood... I would wish it on him/she/it!! deserves it... as u can see by my messages to it, I won LOl... anyway, enuff about that Freak, How r u today?

Jill x
reply | back to forum

Date: 10.06.2009
From: christine

Subject: Re: Disability Living Allowance/benefits

Or not so good,i cant inject my embrel this wk, ive been put on antibiotics, got a chest infection, god jill these drugs help you, but they also knock you down dont they,its hit and miss all the time,as you know, i should of injected to day, bye god im feeling it all over,but we have to carry on, how are you luv, god when i seen them post it got me all wound up, the cheeky ba-----, especially me feeling like this, im glad u reported {it},i think its some sad person with nothing better to do, winding poorly people up, he wont have any luck.x christine
reply | back to forum

Date: 10.06.2009
From: J

Subject: Re: Disability Living Allowance/benefits

I Havnt taekn my Enbrel 2 wks b4 having my teeth extracted and two weeks after, since being off it, Im fatigued, have Iritis, and generally feel shite! suppose to wait another 4 days for my Enbrel and MTX but will take the lot tonight...infection has gone now from my gums... yea there is always an idiot some where, and was it LOl.... still I won and gotta the better of the daft ignorant loser!

U take care and tret yourself kindly, rest when u have to ok

Love Jill x
reply | back to forum

Date: 10.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

well when i read the reply from him-her i was really shocked thats why i didn't reply back yes i am struggling at the moment but to say about giving us a walking stick or zimmer frame to get us back to work what a bloody insult. and yes i have used a walking stick before because i have also suffered with chronic back ache since ht e age of 16 but i have never moaned or tryed to screw the system,but now i have this arthritis it has knocked me for six and i haven't been able to work. So Jill glad you stood up to him and that it has now been sorted. off to the hospital tomorrow bit apprehensive but hopefully i will feel better having the steroid by
infusion. Christine sorry to hear you have an infection and really hope you feel better soon. Also Jill hope you feel better real soon now you can take the meds again take it easy xx
reply | back to forum

Date: 11.06.2009
From: christine

Subject: Re: Disability Living Allowance/benefits

Hi del hope your feeling better after the steroid infusion, ive had 3 of them, but didnt touch me, a got immune to steroids because i had that much in 1 year, kenalog,etc,anyway hope it works for you, del do you have R,A, if so are you not on the ant tnf drug,?, take care christine.x
reply | back to forum

Date: 11.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

hi christine wasn't to bad had a couple of small panic attacks but the nurses were lovely think it was because they couldn't find a good vein took 3 attempts but went ok really. im on napraxon and pain killers and sulfazalsine spelt it wrong sorry but at the moment RA isn't showing up so classed as sero negative RA at the moment and inflammation quite raised , had a steroid injection but did nothing thats why ive had this hope it works. keep well xxx
reply | back to forum

Date: 11.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

has anyone had a horrible taste and a bit of a sore throat after having it just wondered ?? xx
reply | back to forum

Date: 12.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

I del...I get Orrible tast in my mouth after ive taken my methtrexate... hey Del LOl I bet that DLA Impersonator has got a bad taste in ITS gob!! LOL...Del was that infusion painful? what type painkillers r u on? mb u cld get stronger ones ? like Tramodol....Hope it works for u Sweetie x
reply | back to forum

Date: 12.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

Hi Jill it wasn't really painful just made myself worse cause of these damm panic attacks had them over 20 years and im still terrified everytime i have one didn't help that they had to read me all the side effects i worry about taking things as it is but hey i got through it without running a mile so pleased wiv myself really.Well the taste has gone today just had a thumping head today and tired but seems to have taken the swelling down a bit and i do have a bit more movement in it so heres hoping it works i can have another 2 if it does'nt but shall wait and see.i shall ask doc about tramadol thanks jill at the moment on parcetamol and codeine pains not been to bad last few days thankk goodness.I'm glad u saw off that DLA person Jill i did laugh at u lol go girl . Thing is don't think i would get it anyway as i'm not as bad as a lot of ppl and haven't had any ops or anything and am newly diagnosed thing is the p/t job i have is a physical job cleaning and lifting so i haven't been able to work do u think it would be worth my while applying for DLA as also because i have a bad back i am unable to walk that far without pain but i dont need a wheelchair or anything like that (not yet anyway)ive plodded on wiv the back pain and sciatica for years.Anyway do hope your hip pain eases off for you real soon xxx
reply | back to forum

Date: 12.06.2009
From: j

Subject: Re: Disability Living Allowance/benefits

Del u r as entitled to appy as anyone, they make the final decision to c if u are entitled, they will contact the rhumtologist and your GP... doesnt matter that u work, people work and still claim, however, your job must be hurting you physically, cant u change jobs Della? seems like hard graft to me... Have u had your back looked at? u MUST tell your Rhummy if u havnt, cos he can send u to have an MRI...u never know mb the start of your back pain was the begining of your R.A.... also the DLA people know that some people arnt as bad as others, but they take that into account...u might qualify for the lower rate... they have different rates... also when u fill out your form, u expalin that u havnt been able to work, becos the pain is all over, and that it is terrible, the mistakes some people make when filling out the form, mb they feel good that hour that they fill out the form, and next day they r bedridden, u really muset tell them how bad it gets ok... how bad U r at the mo... etc...give them the correct info, but make sure they undeerstand how bad it is...plus your gp will be asked about u to ok...anyway goood luck ok, Jill x
reply | back to forum

Date: 12.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

del gotta go now, have a great weekend x
reply | back to forum

Date: 12.06.2009
From: BLOGGER

Subject: Re: Disability Living Allowance/benefits

Del

Thats interesting 'Panic Attacks' I had a few of those before I was diagnosed with RA 10 years later. Doctor suggested physical exercise which held off the diagnosis for 10 years amazing!
reply | back to forum

Date: 14.06.2009
From: ill

Subject: Re: Disability Living Allowance/benefits

think a lot of us have had them, in the first days of this crap disease... ? wonder if thts the case..any info pls...
reply | back to forum

Date: 14.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

Alful things ive had them for over 20 years but haven't had one for a while i always seem to get them when im really ill or really stressed had a lifelong battle with them all the docs do is give me tablets when i first got them they didn't really know as much and i didnt receive the right treatment think im a lost cause now as far as panic attacks are concerned. But when i got the arthritisit seems to have brought them back abit a if there isn't enough to cope with. Maybe its the uncertainty of this desease that makes ppl have them as well x
reply | back to forum

Date: 15.06.2009
From: Lynne A

Subject: Re: Disability Living Allowance/benefits

Hi del further to jills comments also don't forget to include telling the DLA about your panic attacks, there is a section covering these kind of problems, tell them in as much detail as possible how your illness and panic attacks affect your life. And what significant others have to do for you when you are on your worst day. eg having to cook, clean, help you dress, accompany you out side in case of panic attack. etc the more you can explain how your life is affected the better. If your worried about filling in the form people like the CAB are very good at helping you with it.
reply | back to forum

Date: 15.06.2009
From: Del

Subject: Re: Disability Living Allowance/benefits

Thankyou so much for the advice Jill and Lynne i will have a go at applying then as it doesn't look like this is going to clear up yet been continuous pain for 7 weeks now and thanks fr the advice about the panic attacks lynne hope all is well with u all take care xx
reply | back to forum

Date: 16.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Very true Lynne, glad u added that bit... Del they also ask about depression, like Lynne says, U must tell them about everything, panick attacks, others that help u etc...very good advice there, wld be surprised they dont give it to u Della


Jill x
reply | back to forum

Date: 17.06.2009
From: sam

Subject: Re: Disability Living Allowance/benefits

Hi I am new to this forum.Apologise for butting in but i noticed one member has two children witn aspergers. I also have two sons on the autistic spectum plus I have R A which makes caring for them really difficult.I thought I was the only one! But it keeps me going. Id prob stay in bed all day otherwise!I have got progressively worse since 1999 and am now at the stage of methotrex,Humira(self injected) sulfasalazine and other meds.About to have a hip operation and am petrified.Any advice from you lovely people out there?
reply | back to forum

Date: 18.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Hi Sam

i asked u a queation on another blogg about your meds, but just read it here, ok glad to see that ur getting the correct meds..

its me that has two children with ASD.. one is 16, and other son is 10 just recently diagnosed...I kbnow what u mean about wanting to be in bed all day, its hard having this condition and two kids that need us so much....

What kind of Hip op arre u having? I had a Bursa removed 18mths ago on right hip, and also went back in and had arthritis removed(scraped it off) plus had a huge tear that was repaired... they were thinking of hip resurfacing... might still need to have that done, still get pain in both hips btw... im due to have a spine op too...trying to put tht off as much as pos, already had a major spine op in 2003, have 4 bolts in my lumber region...

Please dont be scared about your hip operation, u obvioulsy need it doing, and once u r over the first week, u will feel stronger, also my friend recently had a hip op, the less invasive one, smaller instruments etc...she had a total hip replacement, and she fel amazing in one week! honest its made her feel a different person, no more pain... u can look that hip op up on line...its the less invasive one... u can be out in one day too! happy to chat to u more about this, if u send me your email address...

take care ok

stay Positive

Love Jill x
reply | back to forum

Date: 18.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Ps sam u arnt Butting in lol...its great to have u on board, and im sure u will support others also, we r one big happy family on here....so welcome Sam x
reply | back to forum

Date: 18.06.2009
From: sam

Subject: Re: Disability Living Allowance/benefits

Thanku Jill,
I have been told I need my right hip replaced but I have no idea what sort of replacement! I have a date for the op and I am worried about the children because they need so much supervision.Partner says he can manage!I am not so sure!I am scared of the op and the recovery and how we will cope.
reply | back to forum

Date: 19.06.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Hi Sam

You will be surprised how much your Partner will cope LOL....Please dont worry about that, Altho I always do when I have an op.... Honest u will be fine, my friends recovery was fast... walking around with out sticks aftter a week, back at work in 5 weeks...she was out of pain within a week..how fab is that? the Benefits are amazing...so think of that when your having a bad day...Chin up, stay Positive and Please let us all know how u get on after the Operation

Take care

Jill x
reply | back to forum

Date: 05.07.2009
From: vicky

Subject: Re: Disability Living Allowance/benefits

Hello,

My gp/rhmertologist/cardiologist told me to apply for DLA. I was refused for DLA on ground of my heart condition. However when i was diagnoised with RA i re-papplied and have been given medium rate care only. Im currently in the process of appealing so my health profestionals & support worker believes this is wrong! I let you know how my appeal goes.
reply | back to forum

Date: 05.07.2009
From: Lynne A

Subject: Re: Disability Living Allowance/benefits

Don't be discouraged they nearly always turn you down the first couple of times you apply.. you need to be persistant.. and you need to put as much down on the form about ALL your illnesses as possible.. you need to have verbal diarrhea!! tell them if you get out of breath walking just everything that your illness inpacks on. When you fill in the form make sure you tell them what it's like on your worst day. It can be a little embarrassing answering the questions but it's worth it in the end. Good luck
reply | back to forum

Date: 05.07.2009
From: Blogger

Subject: Re: Disability Living Allowance/benefits

I did not get a sausage only a flat refusal. Its all these fraudulent claimers thats making it worse for the truly ill.

But some say thats what the medicine is there for and the heart ops to make you fit for work
reply | back to forum

Date: 05.07.2009
From: Lynne A

Subject: Re: Disability Living Allowance/benefits

Keep trying bloggs I know you've got the stamina.. from what you were saying about your bike rides..
reply | back to forum

Date: 05.07.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

MMMMMMM bike outfits loook yummmmmmmmmm bet ya got ome goood Muskles Blooogsy LOl x
reply | back to forum

Date: 07.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi Vicky how did things go with the DLA claim any luck?
reply | back to forum

Date: 07.07.2009
From: Alex F

Subject: Re: Disability Living Allowance/benefits

I work but get DLA due to ostio arthritis in the Knees
reply | back to forum

Date: 07.07.2009
From: Amelia

Subject: Re: Disability Living Allowance/benefits

You have inspired me Jill to go and make a claim i never even thought about it before but every little penny counts, i have been applying for jobs for the last year and as soon as i mention i have RA they are not intrested in me, most people have been telling me not to tell potential employers about it but, i am far too honest and if i have a flare up etc.. and am struggling they would be aware of it. Will let you all know how i get on i think i will get my local CAB ( citizens advice center) to help me with forms
reply | back to forum

Date: 08.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Great Amelia. Please do apply.. it's hard work filling in the form but well worth it. You can also claim if your working too. Sorry to hear about the job front. You may be entitled to other benefits. Try web site called entitledto.co.uk it takes about 5mins to fill in the questions then it tell you what you are entitled too. well worth it. Good luck
reply | back to forum

Date: 16.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi alex how are you. Not heard from you before. The DLA does make a significant difference to my quality of life
reply | back to forum

Date: 16.07.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

gooood luck amelia x
reply | back to forum

Date: 23.07.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Thank you Jill for this info as I posted on another thread just been diagnosed with PA and started MTX a week ago. I was not aware of this benefit so rang Jobcentre + and they have sent me a checklist I am definately eligable but think I will have to wait for 3 months even though I have had symptons since Feb.
Thanks again all
reply | back to forum

Date: 24.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi sas I think you are eligable to claim now. I think you within the qualifying period. Best to go to the citizens advice centre to get help filling in the form. It can be quite off putting filling it in. You have to be bruteally honest and write down about your absolute worst day. Wish you luck
lynne
reply | back to forum

Date: 24.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi sas Please get the form done asap they will not back date your claim to feb if I remember correctly. They will only back date three months. Please don't delay. Xxxx
reply | back to forum

Date: 24.07.2009
From: Sandie

Subject: Re: Disability Living Allowance/benefits

I think lynnes right about that. Plus they done always give you the benefit straight away. They often send you a letter that discourage you to reapply. Please don't be put off xxxx
reply | back to forum

Date: 24.07.2009
From: Lin

Subject: Re: Disability Living Allowance/benefits

Hi sas please claim now don't wait good luck
reply | back to forum

Date: 24.07.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Thanks Ladies for your comments and encouragement. I am definately going to claim even though having a good day ....emptied dishwasher(can't normally even open the door) and put 2 loads of washing on and all on my own!!x
reply | back to forum

Date: 24.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Good for you sas keep us updated with any progress
XXXX
reply | back to forum

Date: 24.07.2009
From: donna71

Subject: Re: Disability Living Allowance/benefits

Hello everyone, I am new here. I have recently been diagnosed the RA after 5 hellish months of pain and extreme stiffness, the GPS were dismissing me and I didnt think I could cope any longer. Thankfully when i finally got to see the Rheumatologist they diagnosed and gave me steriod injection and sulphasalazine. So im still struggling and limping badly until the Sulph. takes affect. the injections was AMAZING and it gave me a good few days relief. My question is does anyone know if People struggling with RA should be able to apply for Incapacity Benefit... i am currently on Income support. I would find it impossible to work at the moment due to the stiffness and extreme exhaustion every day is unpredictable. I read the posts from the Benefit Team and they were very nasty. Im glad the fraud was chucked off the site! dont need advice like that from anyone.. espcially someone who has no idea how upsetting and disabling this condition is. Im 38 and a full time mum of a beautiful 13month baby girl. I am determined not to let this spoil my life.. but it is very hard sometimes. thanks for reading. donna
reply | back to forum

Date: 24.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi donna sorry your not well pleased you managed to see rheumy and got diagnosed. I'm not sure of the new criteria for incapacity benefit is now I know it changed recently. Most of us with Ra get it. Are you off sick at the moment.
reply | back to forum

Date: 25.07.2009
From: donna

Subject: Re: Disability Living Allowance/benefits

HI lynne, I am at home at the moment looking after my baby girl... at my last job centre interview they didnt pressure me to go back to work, thankfully, and I explained to the adviser that I was unwell and awaiting to see a specialist as I had not been diagnosed then. But i was struggling really badly to get out of bed and to move . The next time I have my appointment Im not sure if i should be on a different benefit. Im on income support at the moment. I know that the incapacity benefit is now called something like employment support allowance?
Donna
reply | back to forum

Date: 25.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi donna from what you've been saying it sounds like you should qualify for the DLA benefit. If you go to your local citizens advice bureau they will do a benefit check for you plus they are very good at helping you fill in the forms good luck
reply | back to forum

Date: 26.07.2009
From: Sandie

Subject: Re: Disability Living Allowance/benefits

Hi All yes I recently visited them.. like Lynne said, they helped me fill in the DLA form it was hard facing the truth about my illness and seeing it all written down. But hey it was worth it I got it in the end. I would advise you to go there ASAP as they will not back date your payments to when you were diagnosed so the sooner you claim the better.. Good luck
reply | back to forum

Date: 26.07.2009
From: Donna71

Subject: Re: Disability Living Allowance/benefits

Is it awarded indefinitely for RA sufferers or do you have to keep them informed of condition, as im sure for many people, you have good days and bad days and medication can change. Is it worth applying without feeling stressed or pressured with the ongoing changes of the disease. I have had nothing but bad days for weeks now, and i am hoping for improvement so not sure whether to apply. Its very exhausting and upsetting and hard to accept. Thanks
reply | back to forum

Date: 26.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

hi donna sorry your not well. Mine been awarded indefinatly don't need to fill in any formS after that. Brill. Yes please do apply you only need to be ill for six months in twelve. They don't back date it either so best do it soonest. Good luck
reply | back to forum

Date: 29.07.2009
From: Jules

Subject: Re: Disability Living Allowance/benefits

Hi donna hope your feeling better. Please do try for the D L A benefit it does make a difference financialy
reply | back to forum

Date: 29.07.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Hi Lynnne, mine hasnt been awarded indef...have to refill out those long boring forms every threee years, comes around fast too!...also a gal I know that has R.A. has to do same as me everythree years....yet my m8 had it indef...dont get y tho?
reply | back to forum

Date: 29.07.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Hi I have taken your advice and rung today for a claim pack!
reply | back to forum

Date: 30.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Good for you sas. The C.A.B can help you fill the form in they know how to word it better. Keep a note of all the people U see ie Docs. Nurses physio etc you'll need to put them down on the form as references. The more the better. Put down your absolute worst day, don't think oh I can manage so I won't put that down. Put down everthing you can think of that affects you. Good luck
reply | back to forum

Date: 30.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi jill don't know why you have to keep filling in the forms I got mine over 15 hrs ago maybe they changed the criteria since then. I just keep going on about the fact that it's a degenerative disease that will only get worse over time. Kept writing that at every oppertunity. Hope your well Hun xx
reply | back to forum

Date: 31.07.2009
From: sharon kartsch

Subject: Re: Disability Living Allowance/benefits

hi new here i got psoriatic arthritis, been diagnosed since march this year it effects my hands feet, knees and back, i applied for dla and used dial to help me fillin forms but was still refused, i had letter fron occ therapist to support my claim explaining my problems but it did no good they make me feel like a liar i since retried and are awaiting a decision has anyone got any advice for me cheers
reply | back to forum

Date: 31.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Sorry to hear that Sharon. Unfortunatlet is quite common to get refused in the first try. I think its a way of putting people off reapplying. It happened to me on my first go. Then when I did get it they put me on the lowest amount I just keep reapplying untill I got the full amount. That's all I can advise rememder to also include all the people you have seen specialist, your gp, nurse even people who know how I'll you are like relative neighbour work mate etc the more the merrier. You need verbal dioarhea. please don't be put off. Reapply. ... Good luck
reply | back to forum

Date: 31.07.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

It's also a good idea to photo copy your claim form so when you resubmit it you know exatly what you put down the time before. Remember the more you can put down about your condition the better. eg Don't just put Down I'm in pain describe it and how it affects you. Put down how it affects you doing things or that you cannot do things. More is better . Again wish you luck x
reply | back to forum

Date: 01.08.2009
From: sharon

Subject: Re: Disability Living Allowance/benefits

thanks lynn what i dont understand is you get people from aids and adaptions quite willingly coming into your home to fit all kinds of rails my gp even recommends a wheelchair as my feet and knees and hips give me so much pain yet these stupid people send you letters saying ok we know you can only walk slow but you can still walk dont any of these departments talk to each other it makes me so angry as i said i have reapplied and this time i think i covered everything but that form is so off putting i mean who times themselves getting in and out of bed or how long it takes you to walk a certain distance its mad but thanks for cheering me up lolsharon
reply | back to forum

Date: 01.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi Sharon I completly agree with you it seems like they just keep putting up hurdles for us to jump over. I do hope you get it this time. Crossing my fingers for you xx
reply | back to forum

Date: 01.08.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Sharon Hi there....I agree with u, it can take me two weeks to bother filling out that long boring form, like u say, who times them selves, plus if u say the time, U think thats it, they wont give me it, becos we Dont know wot they regard as too long! makes me sick...iI have to claim every three years, gets on my nerves,,,,anyway, like Lynne always tellls peeps, U MUST put in the darkets worse days, dont ever admit u have a good day...becos our'Good days' donbt last long do they, mb even just a few hours....so tell them how bad it is daily, at night 24/7!! hurts my hands to fill those forms out too...take care and dont give up...your entitled to it!
reply | back to forum

Date: 04.08.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

My DLA claim form arrived this morning!

Lots of repetitive questions me thinks and a Welsh version as well what a waste of money!!
reply | back to forum

Date: 04.08.2009
From: Jill

Subject: Re: Disability Living Allowance/benefits

Sas LOL well done.... fill it out straight away, or there is a date on there for it to be recieved by...dont go over that day... Good luck filling that in....tell them your worst darkest days...dont mention what U can do, mention everything that U cant do anymore... even if u ramble on, dont worrry, give every detail, big or small, how hard it is to wipe your tush even LOl... sounds awful I know, but its tru, I cldnt even do that at one time, Honest!....tell them everything, like struggling to turn over at night, getting out of bed, takes atges to get dresses, sometimes I didnt bother gettting dresssed, sometimes I didnt even wash(sounds disgusting but I cldnt do it without sevre pain) got partner to help wash me, or use baby wipes, say it all.... that way they realise How Bad u r,...Love Jill xx Ps its terrible that we have to mention such personal things, but do it anyway, I promise u, they r a nitemare with claims, do your best ok xx
reply | back to forum

Date: 04.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Jills right about putting in the detail,, its not nice but you have to do it. Also those repetative questions are there to catch you out.. i feel.. they ask you one question at the begining then a reworded version of it klater.. you have to be consistent so check through it before sending. Also photo copy it sometimes they lose your form, plus its also a good reference point for you next claim. Goods luck
reply | back to forum

Date: 04.08.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

LOL The wiping bit does sound awful but true!!!

Thanks for encouragement I only applied because of you all....
reply | back to forum

Date: 05.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Let us all know how you all get on. It's good to have feed back plus it can help and encourage others. We need all the good news we can get. Good luck to all xx
reply | back to forum

Date: 05.08.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Posted it today so fingers crossed

Of course I will keep you informed.....you don't get rid of me that easily LOL
reply | back to forum

Date: 05.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Gosh sas it didn't tIe you long to fill it in you must be a whiz at these things. Hope you get it take care
reply | back to forum

Date: 05.08.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

I WAS on a mission LOL
reply | back to forum

Date: 06.08.2009
From: val h

Subject: Re: Disability Living Allowance/benefits

ggo 4 u girl hope u told them how hard it is to cut your toe nails lol my feet seem to be getting further away each time lol good luck hope u get it
reply | back to forum

Date: 06.08.2009
From: JILL

Subject: Re: Disability Living Allowance/benefits

PMSL ROFLMAOOOOOOOOOOOOOOOOOOOOO Val UR SO FUNNY....lolololol....sas Blimey takes me at least two weeks to fill the friggng forms out...wellll done....
reply | back to forum

Date: 06.08.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Oh no I didn't!!! That will teach me not to fill forms out so quickly :-O
reply | back to forum

Date: 07.08.2009
From: Della

Subject: Re: Disability Living Allowance/benefits

well have had two replys from the dla one to say they received the form then today to say they were contacting the doctor is that the norm?? had a few bad days been in agony today felt really crap hand as stiff as ever cant believe it it never completely went off and still unable to move middle finger hope this isnt as good as it gets. Hope all is ok wiv everyone and you are painfree xxx
reply | back to forum

Date: 07.08.2009
From: val h

Subject: Re: Disability Living Allowance/benefits

put a link on about govenment trying to do away benifits as they stand, follow it to register against the changes dont get any my self but after reading on here how u all need them have registered against it dont want u all loosing out when u need all the help u can get :-)
reply | back to forum

Date: 07.08.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Yes that's normal to write to GP
reply | back to forum

Date: 09.08.2009
From: sharon

Subject: Re: Disability Living Allowance/benefits

hi all had letter from dla telling me they looking at my claim again but could take up to 11 wks is this normal,trying to get round on legs like elephants at min went out for first time in wheelchair yesterday was weird back at hosp nxt wk wonder what new pill i will get this time rattling already lol sharon
reply | back to forum

Date: 09.08.2009
From: val h

Subject: Re: Disability Living Allowance/benefits

feel 4 u sharon the powers that b will not b hurried will they give u back pay do u think i know that does not help u now but a lump sum would b nice. was it strange in a wheelchair did people look at u strange or did they then think u must b bad lol. only ask as feet bad at momont and not getting about much only a matter of time till they settle down again but still bad at moment and miss popping here and there lol.
reply | back to forum

Date: 09.08.2009
From: DELLA

Subject: Re: Disability Living Allowance/benefits

When i had my second letter they said it would still take 7-9 weeks posted it about 3 weeks ago i think its rediculous to have to wait that long and the thing is im just waiting for the letter and know that its going to say no ive been refused its so frustrating and just cant understand why it takes so long . think they just like to keep us waiting lol
reply | back to forum

Date: 09.08.2009
From: val h

Subject: Re: Disability Living Allowance/benefits

they have to send it around a couple of desks before they send it out to keep them all in jobs lol :-) why will they turn u down only asking as the way things r going will be filling them in my self soon :-(
reply | back to forum

Date: 10.08.2009
From: sharon

Subject: Re: Disability Living Allowance/benefits

hi val was strange at first in wheelchair but feet and legs so swollen and painful i cant get about on sticks at min so doc advised the chair the good thing is i can get out of house its so boring sat in all day and when u sat for long time something else starts to hurt, never really noticed if anybody was looking at me just pleased to be out,c your gp and ask him about it even if u only use it occasionally at least when feet are bad u are not house bound feel for u with your feet i know what u going through lol sharon
reply | back to forum

Date: 10.08.2009
From: val h

Subject: Re: Disability Living Allowance/benefits

hi glad u enjoyed getting out u r right it is better if u can get out and meet people.i am lucky so far have bad few days then can usually get about as long as dont do anything silly taking naproxen ,co-codamol and glucosamine&chondroitin but going back to doc next week as not coping as well as would wish to still managing to work 4 hours a day but dont get house work done some days as something has to give.wet here today hope u have better weather and having good day take care
reply | back to forum

Date: 10.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi gals hope you get some good news re your DLA claims. It's hard waiting but worth it in the end. When you get it , it can often open the doors to getting other benefits a little easier. Like disabled persons rail card, blue badge for car etc. Keeping my fingers crossed for you all good luck xxx
reply | back to forum

Date: 10.08.2009
From: val h

Subject: Re: Disability Living Allowance/benefits

did not know there was a disabled rail card good to know
reply | back to forum

Date: 10.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

yeah val you pay a small fee then you get a third off your rail ticket for you and one other. paid for in a couple of trips. You can also get disabled person bus pass. works the same way I think. lol
reply | back to forum

Date: 15.08.2009
From: Jules

Subject: Re: Disability Living Allowance/benefits

Thats interesting I wasn't aware of that either will check it out. Thanks
reply | back to forum

Date: 21.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Just for all you newbys I thought I'd bump this back up in case you've not claimed yet xxx
reply | back to forum

Date: 21.08.2009
From: val h :-)

Subject: Re: Disability Living Allowance/benefits

hi not got any allowances or benefits but will remember for when do as use trains and busses a lot as do not have car
reply | back to forum

Date: 24.08.2009
From: Elaine

Subject: Re: Disability Living Allowance/benefits

Hi All Im in the process of filling in the form I would not have known about it if it wasnt for you guys thanks.
reply | back to forum

Date: 25.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Hi elaine good luck with the form . Don't forget to photo copy it sometimes they loose them. Plus you have a copy for when you have to reapply later on. Make sure you put everything down and all the nemesis of your Docs nurses etc.

Good luck and take care. Let us know how you get on xx
reply | back to forum

Date: 26.08.2009
From: Elaine

Subject: Re: Disability Living Allowance/benefits

Thanks Lynne I will photocopy it, thanks again for the advice. X X
reply | back to forum

Date: 27.08.2009
From: GirlWonder

Subject: Re: Disability Living Allowance/benefits

what a pile of crap...lol.. please no-one believe this so called "Team 1 DLA Officer" You always get one dont you haha..pathetic.. people on here have enough to worry about without twats like that stirring things up.. laughable!
reply | back to forum

Date: 27.08.2009
From: Brenda

Subject: Re: Disability Living Allowance/benefits

I know, everyone knows we all have good days and we all have bad days... why do people do that, just to be mean.. We all are supposed to stay positive, and this stress does not help anyone.

good for you Jill to report him :-)
reply | back to forum

Date: 28.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Don't worry girls trina the moderator sorted him out some time ago. We do get some odd bods in here on occasions. We report them to trina via email and see gets her tecis to sort em.
Hope you all claimed for DLA benefit x
reply | back to forum

Date: 28.08.2009
From: jill

Subject: Re: Disability Living Allowance/benefits

hehhe hahhha I reported DLA 1 LOLOLOL roflmaoooooooooooooooooooo was fun grasssing him up to Trina lol, did same to that nit wit Wayno too....Aggravate The Jilly and the nasty ones get reported double qwik.lol
reply | back to forum

Date: 28.08.2009
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Me too jilleey reported that psoriosis spammer that's why were all getting good at maths rotfllllll xx
reply | back to forum

Date: 11.09.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

I had a letter staying they had received my claim on 6 August and if I hadn't heard anything within 8 weeks to contact them...........
reply | back to forum

Date: 12.09.2009
From: monica

Subject: Re: Disability Living Allowance/benefits

Hi All
Not been on here for a few days, have been reading through the information. I am absolutly disgusted with this person who makes out he/she is a dla officer. The comments about the fact if you can write on here, you can do it at work. Well whoever that person is wants to get their facts straight first. Yes i have severe oa of neck and spine, also a slipped disc. I worked for the employment office, but i did not get much support regarding the desk and chair i needed, hence my problems got worse, i was retired on health grounds. Yes people like me and others might be able to type on the net, but i can only do it for a short time. Also when you have a disability it is much harder to get into work, its bad enough to get work when you are healthy, and depending on the area where you might live.
What right has this so called dla team one person got to come on this site, to be judge and jury over people who have health problems, As for people that spy on one another, and for twitting on others, i say 'GET A LIFE' they should be glad they do not have the problems we on this site have.
If they want to spy, look in your own back yard before looking else where, look at all the mps that are cheating the people out of our own money. Everyone who had a disability problem who works and who cannot work, they have the right to claim. So claim, take no notice of this arrogant person, and remember always put your worse day down, whether or not you might be having a good day or not. Good luck to all.

Monica
ex civil servant, put that in your dla pipe and smoke it.
reply | back to forum

Date: 14.09.2009
From: jill

Subject: Re: Disability Living Allowance/benefits

bump
reply | back to forum

Date: 14.09.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Had a letter today saying sorry we have not been able to answer we are writing to your GP it took nearly 6 weeks for them to say that.............priceless!!!!
reply | back to forum

Date: 15.09.2009
From: Della

Subject: Re: Disability Living Allowance/benefits

hiya sas yes ive had 3 letters telling me that they were writing to gp etc and then when i phoned up yesterday they told me they had lost a form i had to send back 2 weeks ago so good job i rang its now been 9 weeks since i applied why does it take so long ??
reply | back to forum

Date: 15.09.2009
From: Sas

Subject: Re: Disability Living Allowance/benefits

Hi Della

who's knows? they are unbelievable aren't they?

We must have applied at about the same time do you have to complete another form now then?
reply | back to forum

Date: 16.09.2009
From: Della

Subject: Re: Disability Living Allowance/benefits

No they just wanted to confirm where i got it and the date which she took over the phone and yet i rang them 2 weeks ago when i got it and they said i had to send the forms in lol joke !! there will proberly be no account of me ringing and giving this info u watch bet i get aanother letter grrrrr
reply | back to forum

Date: 16.09.2009
From: val h :-)

Subject: Re: Disability Living Allowance/benefits

think they send them desk to desk just to keep each other in work lol
reply | back to forum

Date: 20.09.2009
From: donna

Subject: Re: Disability Living Allowance/benefits

Hi All, I am so upset . I finally got my DLA letter back and they have NOT awarded me any help. I cannot belive it. I wish i had got some help filling it in, because it seems you have to word it correctly. I strongly feel that i have not been able to express how bad my condition is and i have let myself down. :(
I am going to ask them to reconsider, but i feel it is a waste of time and so disheartening when it took all my energy to do it in the first place. Does any one have any advice if they have been turned down the first time also? thanks, all. Donna. Also my sulphasalizine tabs are at the full dose now and i had hoped for a miracle cure.. sadly i am still suffering with pain, stiffness and weakness in thumb/hand lifting carrying especially.. is this normal?? does it ever go away completely?? does anyone know if the contraceptive pill would help... because of the hormones? i read that u can go into remission in pregnancy so i wondered if the same would happen on the pill? a long shot??
reply | back to forum

Date: 13.01.2010
From: Lynne

Subject: Re: Disability Living Allowance/benefits

Bummp for all you newbies who have not claimed it is full of ideas. Just ignore the comments by the mad so called DLA officer
reply | back to forum

Date: 17.01.2010
From: James

Subject: Re: Disability Living Allowance/benefits

Good advice will bump it up again.
reply | back to forum

 

Add your comments to this topic
Subject:
Please type your comment here:

Your name:
email:

5+5=
(This sum is to help prevent automatic spamming through this page - thank-you)


top

Site design: T - Creative Home | News | Personal Stories | Links | Message Board