Date: 19.08.2015
From: lol
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Subject: arthritis of the spine
Hi it's Lol not been on for a while been really bad with flare up just found out I have arthritis of the spine had a dexi scan said since 2012 it's got worse said I would have to go on bonviva but don't wnt to because of the jaw desease does anyone have this and is there anyone who has gone on treatment for it rhummy nurse was dead nasty said she would give me two weeks to think about it but said there was no choice if I didn't my spine would just get worse any ideas really worried about it does anyone know what happens if it gets worse help
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Date: 19.08.2015
From: sleek fox
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Subject: Re: arthritis of the spine
Lol, bonviva is given for osteoporosis usually. I think there are other treatments you can have and there is one that you have once a year, IIRC. Bypass your rheumy nurse and speak to your consultant.
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Date: 19.08.2015
From: lois
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Subject: Re: arthritis of the spine
Hi lol, this treatment is not the only one that can be used. Speak with your GP or Consultant. My Mum has always used ADCAL. It is awful when nurses drs ect are rude and nasty I would by pass her as Sleekfox suggests. Good luck with it all. Take care.
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Date: 20.08.2015
From: Patricia
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Subject: Re: arthritis of the spine
Hi lol :-) really sorry to hear about the arthritis in your spine - it comes as a shock when we are given a diagnosis like this - and it hasn't helped that your rheumatology nurse has been so abrupt and unhelpful. I can really understand your alarm when reading the side effects about the jaw disease (necrosis I think) because I felt the same way when I read about the osteoporosis medication which I was advised to take. I spoke to my dentist about it because I was extremely worried like you and he said he had never seen it in his career and I trust him completely - that isn't to say it can't happen of course - but I decided to go ahead with the meds - and I have a yearly infusion called Aclasta. I felt weighing everything up I had to do something about my osteoporosis because my decline was quite rapid, hereditary and taking steroids I think, and I felt my quality of life would be seriously affected if I did nothing at all. Please talk to someone who you can trust - your rheumatologist, dentist or doctor, who is more helpful than the nurse. You most certainly shouldn't be treated like that - especially when you are at your most vulnerable - you are asking a valid question and they should respect that. Take care xx
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